12. Caroline Kiefer - A Mother’s Fight: Rare Disease (GAND) and Breast Cancer

The Long Road – Episode 12

Guest: Caroline Kiefer

Hosted by: Lisa McKelvey

A Mother’s Fight
Caroline Kiefer is a mother of two from Melbourne, Victoria. In this episode, Caroline shares her remarkable story of strength and resilience after her only daughter, Alana, was diagnosed with a rare condition—GATAD2B-associated neurodevelopmental disorder (GAND).

Together with her husband Chris and eldest son Bailey, Caroline has spent the past 17 years dedicated to giving Alana the best quality of life possible. Their journey has been filled with love, sacrifice, and tireless advocacy.

As if navigating the complexities of Alana’s care wasn’t enough, Caroline received a life-changing breast cancer diagnosis when Alana was just two years old—adding a new layer of challenge and courage to their story.

This is a deeply moving conversation about motherhood, perseverance, and the unbreakable bonds of family. Caroline’s voice is one of quiet strength, and her story is one you won’t forget.

Tune in to hear a powerful journey of love, hope, and what it truly means to keep going—no matter what.

Notes & Support Links:

• Mumz n' Bubz Help - Lactation Consultant, Breastfeeding Support
• What is GAND? - Helping Hands for GAND
• Very Special Kids - Providing holistic palliative care for children and young people across Victoria.

If you enjoy the episode please leave a quick review, it will really help the podcast out.

Lisa McKelvey xx