Living with Sickle Cell Disease and Celebrating Motherhood

In this episode of The Paid Leave Podcast, we are focusing on Sickle Cell Disease (SCD) September is National Sickle Cell Awareness Month. Sickle cell disease affects about 100,000 people in the United States; more than 90% are non-Hispanic Black or African American. Many people with Sickle Cell Disease do not receive the recommended healthcare screenings and treatments mainly because of social barriers. 

My guests are Dr. Genice Nelson. Dr.  Nelson is the Nursing Director at UConn Health-at the New England Sickle Cell Institute, Hemophilia Treatment Center, and Outpatient Behavioral Health Programs.

Daisha Dillon is a mom who was diagnosed at birth with sickle cell disease and has been suffering since she was 6 months old. She always wanted to be a mom and has a healthy daughter who was born without Sickle cell disease. Daisha is seen at the New England Sickle cell Institute and gets her treatments for sickle cell and pain there at UConn Health. We discussed what sickle cell disease is and how it effects the body. Dr. Nelson is aware of CT Paid Leave, and the benefits it has for the patients she treats and their caregivers. Daisha's health has been improving with the newer medications that have become available to combat the symptoms and the pain. 

To get more information about the New England Sickle Cell Institute: New England Sickle Cell Institute | UConn Health

For more information about Dr. Genice Nelson: Genice Nelson, DNP, MSN, APRN, ANP-BC | UConn Health

For more information or to apply for benefits: ctpaidleave.org

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