The Pituitary World News Podcast

Today's podcast is about an important Chiesi Rare Diseases initiative to learn more about the psychological, social, and emotional health issues facing acromegaly patients.  We talked to Stuart Siedman, Chiesi's Vice President of advocacy.  Stuart has an extensive background in rare diseases and a personal connection as an advocate.  This is an important subject. We hope you will help by participating in the survey. 

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In today's podcast, we are excited to welcome Dr. Joanna Spencer-Segal, a research assistant professor at the Michigan Neuroscience Institute and an assistant professor in the Department of Internal Medicine, Division of Metabolism, Endocrinology, and Diabetes at the University of Michigan. She joins Dr. Lewis Blevins and me to discuss the promising new treatment options for acromegaly.

Our conversation delves into the latest thera...

I am pleased to welcome Dr. Scott Pescatore to the Pituitary Podcast.  In today's podcast, we discuss some of the work being done in the pituitary and adrenal space.  Dr. Pescatore's - and other industry leaders we've featured on the Pituitary Podcasts - opinions and points of view are essential to developing current and future therapies and potential new treatments affecting access to medications for pituitary disease.  By and lar...

Today's podcast features my chat with Dr. Mario Maldonado, Head of Development and Global Endocrinology atRecordati Rare Diseases.  Dr. Maldonado brings a wealth of experience and a great perspective on drug development. He was involved in developing both pasireotide and osilodrostat, two essential compounds used in drugs to treat Cushing's.   Listen to this fascinating talk with one of the most dynamic experts in endocrine drug de...

Mental health is an ongoing challenge for people dealing with Pituitary conditions, from brain fog to anxiety to downright depression. These and other emotional issues are some of the most talked about and commonly related when people talk about what it's like to live with one of these devastating conditions.  Today's podcast brings together two leading experts in mental health and pituitary disease for an in-depth round-table disc...

Today's podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications.  Our conversation focuses on the original meeting held in 2021 and a recent listening session where the AC provided additional feedback to the FDA.  These meetings help ensure the FDA considers patie...

On today's podcast and  Cushing's awareness day and month, we bring you a few excerpts from our soon-to-be-released new book on Cushing's. The book's author and Pituitary World News cofounder, Dr. Lewis Blevins, reads from a few selected chapters to give insight into the book's content. We are delighted to present these excerpts to join the many organizations, patients, and healthcare professionals in recognizing Cushing's disease ...

Today’s podcast is about our super athlete friend Risa August and her new book, “The Road Unpaved.”  We first met Risa in 2019 when she came to the Pituitary World News/UCSF patient gathering. We chatted about her experience and and her plans to ride her bike from Canada to Mexico. We followed her herculean effort to ride 1845-plus miles to get from Canada to Mexico on the Pacific Coast Highway, which, as you can imagine, is no pic...

The Spanish Endocrine Conference was organized late last year by the "Sociedad Española de Endocrinologia y Nutricion (SEEN). SEEN offers an excellent resource for information to the Spanish-speaking world. Spain and Spanish-speaking countries have been our focus as we seek to develop more content in Spanish for our edition of Pituitary Word New in Español. Today's podcasts covers part of the conference and shares my conversations ...

In today's podcast, we talk with Giacomo Chiesi, Head of Global Rare Diseases at the Chiesi Group, where he leads a team in developing and marketing treatments for rare and ultra-rare diseases. Chiesi, headquartered in Parma, Italy, is a family-owned enterprise in an industry not known for many family businesses.   Chiesi entered the acromegaly space when the company recently acquired Ireland-based Amryt Pharma, which marketed the ...

Today's' podcast is a recording of the Pituitary World News talk program that aired live on November 16. The information comes directly from one of the busiest, most successful clinics in the world of pituitary disease. The podcast presents a real-world, honest, in-depth discussion of health insurance denials, how this practice affects patients and physicians, how they use guidelines to muddy the process, oppose individualized care...

In today's podcast, Veronica, an MBA graduate of Notre Dame University and law school student, tells us about her experience with a prolactinoma. What is interesting about this story is that in pituitary medicine, where delays in diagnosis and general unawareness are all too often the order of the day, this is a perfect example of how awareness and smart thinking make things work as they are supposed to. The patient is aware and di...

Today, Dr. Scott Struthers talks to PWN about paltusotine, their new once-a-day acromegaly oral drug candidate. Crinetics recently published results from the latest phase of the paltusotine clinical trial. He discussed the results and provided a fascinating look at the details and their learning from the data as they analyzed these initial results. He also shared the status of a new drug for Cushing's and Congenital Adrenal Hyperpl...

Today, I am particularly thrilled about this podcast with a group of leading professional nurses who are educators, scientists, researchers, nurse practitioners, and graduate students. Their work is critical to pituitary patients' care and quality of life. It affects how endocrine nurses practice and how they are trained, what they learn, and how they do their jobs. In this podcast, you will hear their opinions about the opportunit...

Listen to this informative podcast with Ren Renwick, CEO of the Pituitary Foundation in the United Kindom. The foundation is a leading volunteer organization providing a variety of resources and support functions for people with pituitary disease. These include helplines with nurses and patients where people can ask medical and practical questions and a variety of helpful resources for patients' physical and emotional well-being. R...