Surviving the First Year of Grief: Identity Loss As A Bereaved Parent (with Jacob's Mama)

In this profoundly moving episode of The Sad Moms, Ishani welcomes Adrien, who shares the deeply emotional journey of parenting her son Jacob, who was originally diagnosed with Autism at age three and later found to have Sanfilippo Syndrome at age ten. Adrien reflects on her bond with Jacob, who is a happy, easygoing child. She recounts the struggle of watching him gradually lose his abilities and the fight to provide him the best care and support, including early intervention programs and various therapies.

Adrien also delves into the bittersweet diagnosis of Sanfilippo Syndrome, describing the heartbreak of discovering that Jacob had a condition with no cure and a limited life expectancy. She discusses the emotional turmoil of his final months, the decision to begin hospice care, and the transition from fighting for his life to coming to being told he would lose his life at age fourteen. Throughout, Adrien highlights the love, strength, and joy Jacob brought into their lives, despite his challenges.

She candidly shares the impact of this loss on her identity, her family dynamics, and her efforts to cope with grief, such as finding solace in daily walks and looking for signs from Jacob. Adrien's story is a heartfelt tribute to her son and an intimate look at the enduring pain and love of a grieving mother surviving her first year of grief. Join us as she honors Jacob’s memory and navigates the complexities of life after his passing.

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