Thriving Over Surviving Multiple Sclerosis
Multiple sclerosis (MS) is an incurable autoimmune disease. Thriving over surviving shares experiences of those living with MS who lean into their core values to live their best lives. Our host, Edie, was diagnosed with RRMS in 2015. In each episode, she chats it up with MS thrivers to learn and grow from each other's experiences. Chronic illnesses such as MS can impact our lives in ways that may become overwhelming. It is nice to know that others out there focus on thriving despite their diagnosis. New episodes are published each week. Thank you for joining our thriving community!
Episodes
Ah, the optimist's perspective is one many strive to achieve. When dealing with challenges brought on by MS, it is a lot more work to stay optimistic. But the work is well worth it! Matt Knaggs possesses all the qualities of an optimist. He is self-motivated, always around the most motivated people, he believes in possibilities, he is full of joy and finds ways to express gratitude in all things. Yup, we can all learn a thing or tw...
Sleep, nutrition, exercise, mindset, stress management... oh my! We cover all the things in this episode, but most importantly we discuss vitality and gratitude. Vitality is a word we use sparingly in everyday conversation because it sometimes seems unattainable. Laura Leigh may have the secret to gaining this perspective. Let's chat it up!
Instagram: @wellnesswithLL
FB: Wellness with LL
Instagram: @thriving...
The love from a child is special and the bond between mother and daughter is one of a kind. Roni shares how her daughter Grey makes it easy for her to lean into her core value of family with ease. Let's chat it up!
https://www.youtube.com/baestationtv
Instagram: @ronigraham
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
What is the biggest risk you have ever taken? Was it one that led you on a grand adventure to far-off places you never dared to go before? For many, that is a bit extreme. For some, life would be boring without an unexpected twist or turn. For Melissa Cook, the author of The Call of the Last Frontier, blogger, and YouTube star there is never a dull moment. It is not an option for MS to put her down, even after over 20 years of livi...
Getting a diagnosis is one thing. Owning a diagnosis is another. With Relapsing Remitting Multiple Sclerosis, for some, it is easy to ignore it. But when it creeps back in and reminds us that MS is still there, that's when we begin to pay attention. Megan from The MS Stage chats with Edie about owning her diagnosis and taking action to improve her own life and the lives of others. Let's chat it up!
Instagram: @t...
How have you grown since your diagnosis of multiple sclerosis? We all have, whether we like it or not. Maybe in the knowledge of the disease, maybe spiritually, or could it be that you have grown your knowledge and understanding of what a healthy lifestyle means to you? Growth as a core value can be somewhat daunting. I know from experience. It is like I can never get enough knowledge and experience. Chatting with Amy, she has grow...
For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you.
Instagram: @msgi...
Have you ever joined a Facebook Group with other people diagnosed with MS? MS Friends United has over 300 very active members. Twice a week they get together on Zoom to chat about whatever is on their mind, MS or otherwise. There are people from all over but each has multiple sclerosis in common. How do they make this happen every week? Teamwork. Join me as I chat it up with Lily and Darren.
Have you ever kept a journal or a diary? Turning pain into something incredible is not something Robbie set out to do when he began putting pen to paper. Journaling helped him process how multiple sclerosis was impacting his life. Today, he has turned those thoughts into a collection of poetry that explores all the emotions. Check out Thoughts of a Warrior; Beneath the Tracksuit by Robert Gillett.
Instagram: @beneath_the_tracksui...
Matthew Embry and his father, Dr. Ashton Embry, created MS Hope for people who have been newly diagnosed or currently living with MS. Their goal is to provide the science-based strategies that have enabled Matthew and many others with multiple sclerosis to live a drug-free, healthy life. Lee joins Edie to chat it up about how following the Best Bet Diet has enhanced his life since his MS diagnosis.
Instagram: @l...
Authenticity is so darn rare. What does it look like, sound like, and feel like when you find it? When I discovered Samantha Salvaggio I realized this was the real deal. She trusts her gut and embraces whatever she is feeling in the moment. Recognizing that nothing is perfect and that it's ok to have less than ideal moments throughout this journey is one thing. Embracing it is another and that is Sam 100%. Let's chat it up!
Clinical Trial: Efficacy of Diet on Quality of Life in Multiple Sclerosis (EDQ:MS)
ClinicalTrials.gov Identifier: NCT05007483
Type of MS: relapsing-remitting multiple sclerosis (RRMS)
Treatment mode of action: dietary intervention
Number of Participants: 156
Medication: Participants may continue disease-modifying treatments if they are on them
Institution: University of Iowa
Address: 200 Hawkins Drive, Iowa City, Iowa 52242
Contact...
Don't put yourself in a box. We all have unlimited potential. Yes, even if you have MS. In this episode, Edie and Linda discuss what it means to be healthy. It really depends on how YOU definite it for yourself. That means you have to know yourself pretty well to determine what healthy looks and feels like. How well do you know yourself? Let's find out.
Instagram: @lindamrhyne or @lindarhyneconsulting
Instagram: @thrivingoversurvi...
Healthcare discrimination, underrepresentation of minority populations in decision-making, bias in the medical profession, and mistrust of the healthcare system are all topics that came up in my chat with Roxy. The Multiple Sclerosis Fashionista's insight and first-hand knowledge of these topics brought new issues to light for me. If you are in the UK, please check out the ADAMS study.
Instagram: @multiplesclerosisfashionista
Has your doctor ever discussed sexual dysfunction with you? Have you ever had any issues with libido in the past? There is actually a high rate of dissatisfaction in the sex department among people with MS. This happens for a variety of reasons. In this episode, Edie explores these topics and much more with Brittany Quiroz, AKA "A Hot MS". Let's chat it up!
Instagram, Facebook, Tik Tok: @ahotms
www.ahotms.com
Instagram: @thrivingo...
Yes, it can be scary to show your vulnerable side. Some consider it a weakness. But vulnerability can be a powerful asset when you own it, share your story, and know your limits. Along with vulnerability comes trust. if we don't have trusting relationships, especially those of us who deal with autoimmune diseases like MS, we can feel unsupported and alone. In this episode, LaRoyia shares how her core value of vulnerability provides...
After Emily was diagnosed with multiple sclerosis, she realized her life's purpose. She loves to move-it, move-it! And she loves to get other people moving and shaking it too. She does it because she loves it, and she wants to help others who deal with chronic illnesses.
Check out her YouTube Channel!
https://www.youtube.com/results?search_query=keep+moving+with+emily
Instagram: @keepmovingwithemily
Instagram: @thrivingoversurvivi...
Have you adjusted your diet at all after your diagnosis? There are a lot of different recommendations out there. Well, I was surprised with Dr. Krick recommended Keto for MS because of all the dairy I associate with that. Boy did he set me straight. He even had some research on hand to back up his thoughts. Chatting it up for the second time with Dr. Taylor Krick.
Setting goals and achieving them is easier said than done. When you reach them, do you celebrate? You gotta celebrate your success! Please don't miss out on celebrating the wins, even the smallest ones. Randy Patrick, creator of Must Stop MS and #ChatMS shares how his involvement with the MS community helps him achieve his goals.
Twitter: @MustStopMS
TikTok: @muststopms
Instagram: @must_stop_ms
Instagram...
Melissa was the very first guest on TOSP. One year later on the season 3 premiere, we welcome her back. This time she brought her twin sister Brandy to discuss how they use gratitude to lift themselves up. Their lives are not all peaches and roses, Melissa has MS and Brandy has had some serious turmoil the last couple of years. But with the love and support of their family, gratitude helps them to focus on all the great things in t...
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