In this episode, we reconnect with a former colleague to discuss her personal journey navigating Pathological Demand Avoidance (PDA) with her son. We delve into the challenges of understanding and managing PDA, a nervous system disability characterized by an extreme sensitivity to demands. The discussion spans from her initial realizations, the impact of societal norms, difficulties with traditional behavioral analysis methods, to the unique struggles faced by families dealing with PDA. We also touch upon the broader implications for education, community safety, and the need for greater awareness and understanding. This emotional and enlightening conversation offers valuable insights into a poorly understood condition and highlights the importance of empathetic and adaptable approaches.
00:00 Reconnecting After Years Apart
00:18 Life Changes and New Beginnings
01:41 Understanding PDA and Autism
04:08 Challenges of Raising a Child with PDA
05:36 Navigating School and Burnout
09:25 Adapting Parenting Strategies
12:22 The Importance of Low Demand Approaches
15:14 Balancing Family Dynamics
16:06 The Need for Awareness and Support
28:50 Interdependence and Compassion
41:02 Navigating Communication Challenges
41:12 Understanding Nervous System Disorders
41:45 Autonomous Strategies for PDA
42:19 Special Interests and Low Demand Life
43:38 Social Situations and Perceived Threats
45:03 Holiday Challenges and Low Demand Parenting
52:27 Tragic Consequences and Advocacy
01:03:56 Rehumanization Project and Future Goals
01:17:14 Final Thoughts and Staying Connected
Resources:
Amanda Diekman - amandadiekman.com
Dr. Casey Ehrlich - atpeaceparents.com
Lindsay Flannigan- hiveparents.com
PDA North America - pdanorthamerica.org
Poppy and the Overactive Amygdala - by Holly Rae Provan
Sensory Trauma - by Dr Rorie Fulton , Emma Reardon, et al.
Low Demand Parenting - by Amanda Diekman
The Educators Experience of Pathological Demand Avoidance - by Laura Kerbey
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