January 13, 2025 • 28 mins
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What if managing an autoimmune disorder meant redefining your entire approach to fitness? Join me on the Tea with Tina podcast as I share my personal journey through the ups and downs of living with Hashimoto's. As a fitness trainer, every day presents new challenges—like the battle for a proper diagnosis and the frustration of feeling misunderstood. I open up about the stigma of looking well while feeling far from it, revealing the complexities of navigating life with an autoimmune disorder.
In this episode, I shed light on how my fitness journey has evolved drastically—from intensive workouts to embracing yoga and Pilates. I discuss finding peace in gentler movements amidst dealing with fatigue, discomfort, and the impact of birth control on my condition. Discover how yoga became my sanctuary, providing both vigorous and restorative practices that align with my new physical limits. As a group instructor, balancing energy levels and moderating workouts has become essential, ensuring I maintain the necessary stamina for both myself and my clients.
This episode is a heartfelt narrative that aims to support others on similar journeys. I discuss working with trainers who misunderstood the need for workout adjustments and stress the importance of listening to your body. Sometimes, doing less can mean feeling more balanced and energized. Through sharing my story, I hope to offer encouragement and remind you that you're not alone in seeking a fitness routine that accommodates your unique needs.
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Hello everyone and welcome back to another episode
of the Tea with Tina podcast.
Today I want to talk aboutflare-ups, so anybody who has an
autoimmune disorder.
Maybe you know someone who hasan autoimmune disorder.
They're getting pretty commonin the United States,
particularly in women, butthat's not a good thing.
(00:25):
But uh, that that's a wholeanother podcast topic for
another day, but I wanted tochat about it and kind of work
through some thoughts.
This is definitely gonna be achit chat podcast today.
Some of my just like rawthoughts and feelings and how
having an autoimmune disorderworks with, uh, being a trainer
(00:45):
and some of the things that Ifelt as a fitness trainer and
kind of my thoughts movingforward.
Ok, so this idea stemmed fromthe idea that I took a two week
break, essentially beforeChristmas, and I did not go into
the gym.
(01:05):
I did some minor home computerwork, a lot of like weird
projects I needed to get donethat like I didn't have time for
normally in my week.
It was really really nice.
I still did housework and stuff, like I was still up and moving
, but it was definitely a lotmore toned down on my body and I
was getting a lot more sleepand um me.
(01:28):
If you don't know, I haveHashimoto's um, which is an
autoimmune disorder related tothe thyroid.
So there are these um cells inmy body that are just like hey,
the uh thyroid's's bad, let'sattack it.
Okay, it's the enemy.
And they claim that there'sthese certain molecules that
(01:50):
attach to your thyroid, thatmake it appear as an enemy,
because I researched it a littlebit, they're not 100% sure if
this is the case, but that's whyit randomly triggers and your
body will start attacking yourthyroid.
Now the thing that's tricky iseverybody is different, because
they don't know enough about howor why this works.
But some people, the onset ofthis autoimmune disorder can
(02:12):
happen immediately, like you canjust feel like garbage
instantly and you, your health,can deteriorate very quickly.
Sometimes you can have flarewhich we're going to talk about
a little bit Again.
Sometimes it's over months andyears.
Sometimes you almost go intoremission, where your body stops
(02:33):
attacking your thyroid.
And let me say, for any of youout there who may be
experiencing negative symptomsand maybe your doctor is not
giving you any answers,definitely be your own advocate.
I literally went through thewait and see, trial and error,
(02:54):
because my levels wereborderline high, normal
Generally, you know, dependingon what scale doctors use, I
would say healthy thyroid rangeis 0.5 to 4 or 4.5.
I was sitting between 5 and 6,sometimes 7, so slightly above.
They actually don't starttreating people until 10, which
(03:14):
is ridiculous to me.
There are some people who sitat like 100 on the scale or even
in the thousands and they don'teven really realize, like
they're just used to feelinglike garbage, and there's some
people who feel absolutely awfulat four.
So it's very different personto person.
And they weren't really testingme, uh, the way I should have
(03:35):
been tested.
They weren't testing myantibodies, which if there are a
presence of antibodies, thatmeans that you have Hashimoto's,
because these antibodies arewhat's attacking your thyroid.
And when I bought my ownantibody test, both of the tests
were high.
The one was off the charts, thescale only went up to 999 and
(03:57):
mine was 999.
So I don't really know how manyantibodies I had.
And this was frustrating for mebecause they again they wanted
to see a wait and see like, oh,maybe your thyroid is elevated a
little bit, let's wait to seeif it came down.
And I was really determined todo things the quote unquote
natural way I was like well, I'mmanaging my rest, I'm drinking
water, I'm sleeping, I'm eatingnutrient dense food.
(04:20):
I'm trying to limit gluten anddairy.
I did everything and I would.
I would get a test done and itwould be worse.
Uh, so it's not necessarily.
Sometimes you know what you cando in your environment.
Sometimes you do just getthings due to genetics, like it
is a genetic thing, my mom hadit, um, her mom had it.
(04:40):
So there there is a, a geneticcomponent.
I think my lifestyle factorsprobably allow the symptoms to
be easier to manage.
But here's the tricky part andwhat I've been personally
struggling with.
And if you do not have anautoimmune disorder, please pay
attention because it's hard towrap your mind around.
I have an autoimmune disorderand it's hard for me to wrap my
(05:01):
mind around.
I think people with autoimmunedisorders get a bad rep.
A lot of people call them lazy,and there's a variety of
autoimmune disorders.
A lot of people call them lazy,say they're just making stuff
up, they're not trying hardenough, because on the outside
you look normal, you lookhealthy, you there's nothing
(05:23):
visibly wrong with you and it'sit sucks because you know people
are going to say that or thinkthat and you, you try to keep up
and and here's the tricky partwith flare ups and a flare up
would just be, you know, forsome reason the symptoms are
worse something you did orsomething your body did, uh
(05:45):
caused excess inflammation, sothat's extra stress on your body
and your body's trying to useits resources to bring your body
kind of back to a normal state.
So the energy would you wouldnormally have to do like your
everyday things is gone right.
Um, it'd be like if you'regetting sick, like when you get
sick, your body uses energy,extra energy, to fight things
off right, and you feel likeshit.
(06:05):
You just want to like lay inbed, uh, do nothing.
That's what a flare-up feelslike, and flare-ups can feel
different for everybody.
I was actually reading a postabout a girl who has um
hashimoto's and she was sharingsome of the symptoms and it can
be migraines that you have.
Um, fatigue is definitely acommon one, I know.
For me, I feel feverish.
(06:25):
That's a telltale sign if it'sbad, like a bad flare-up.
There's definitely varyingdegrees, but yeah, that feeling
of being feverish, like yourbody heats up.
For a little bit you don'tquite have a fever and then it
goes back.
Um, I always think I'm about toget sick or something, but then
it never happens, and thatactually happened to me this
past weekend.
(06:47):
But kind of going back to whyit's frustrating with the
flare-ups, is there's no rhymeor reason to them.
Okay, sometimes it can bebecause you pushed a little bit
too hard or you work too much ortoo much stress, and I think my
flare-up was a result of.
I rested for two weeks and Ifelt really good, so then I went
(07:08):
back into my routine and I wasvery on it.
I wouldn't say that I overdid,I just had the extra energy, so
I used it.
So we are in this really shittybalance because usually when we
rest and we feel good, if youhave an autoimmune disorder,
you're like yes, I finally haveenergy, I finally feel good, I
want to use this.
And some of you may be able torelate from a fitness
(07:29):
perspective too.
Like maybe you haven't workedout for a while and you're like
I feel fresh, I'm going to doheavy weights, I feel really
good.
And then you wake up the nextday and you're like oh my God, I
can't walk because you overdidit.
And I really try to manage thisin my clients.
I'm like you almost want it tofeel slightly easy if you're
just starting out, until youbuild up some reps.
And it's the same withautoimmune, with the exception
(07:52):
that sometimes your body canknock you down for no rhyme or
reason.
I said I was doing things, Iwas running around, it's the new
year, I was meeting a lot ofnew people, doing things I
normally wouldn't do, but I feltgreat the whole time until the
end of the week.
Now, this is really strange.
I don't know if this wasrelated to the autoimmune
(08:13):
component, but I was gettingwhat would be called like a
phantom smell.
I woke up at about 10 at night.
I went to bed around nine, solike just an hour later, but I
was in a deep sleep and I feltlike a cooling sensation in my
throat, almost like menthol ormint, every time I breathed in.
(08:34):
And it was so intense to thepoint that, like every time I
was breathing, I was gettingnauseous and I kind of panicked
because I woke up because ofthat sensation and I didn't
really know what was going on.
So I tried to calm myself down.
Um, but pretty much that wasThursday night.
Um, all of Friday I felt that.
So I was feeling nauseous, kindof had a headache from that
(08:55):
feeling.
Um, I was just feeling drained,starting to feel a little
feverish.
I thought I was coming downwith something, because there's
something coming around, um, andthen then Saturday I woke up,
still felt a little iffy.
Um, I was waiting to get sickand uh, as of yesterday because
I'm recording on a Monday uh, Ifelt pretty much back to normal.
(09:16):
I definitely feel a little bitlower energy, but nothing crazy,
and that's another thing too.
If you have, if you have anautoimmune disorder or something
equivalent, that kind of takesyour energy.
Uh, you learn to function atshittier levels, which is not
good.
And I talk about this withstress as well anybody who's
really stressed.
When you are in high stresssituations maybe you're working
(09:39):
long hours or you're dealingwith you know, screaming
children or just a fast pacedlife you adapt to it, which, in
a way, is a good thing.
Our bodies try to adapt to thescenarios we're in to stay alive
.
But then you forget what itfeels like to feel normal, like
that becomes your new normal andyou think everything's fine
until, like, maybe you take avacation or you actually take a
(10:01):
rest day and you're like, holyshit, I have been running and
that's kind of what happened tome on that two-week break.
Um, I think I kept up prettywell with what I've been doing
and I've just realized, with anautoimmune disorder, this is
kind of like a necessary evilfor me, um, but like, when I was
getting rest, I was like, oh mygod, because I would struggle
(10:23):
with brain fog to some extentand remembering things, and I
believe it was from just beingon so much and having to juggle
so many things.
When I finally got sleep and Ifinally got rest, I was like, oh
, I have my witty self and I canthink of fun things and say
funny things and I I feel morepresent, I feel more me.
I don't feel as much like awalking zombie, um, but I
(10:46):
definitely have systems in place.
Like, don't think I'm just likerunning myself into the ground.
We've done that before in thepast, when I was younger, uh,
before I knew I had any of thisstuff going on, I thought I was
just broken and wasn't workinghard enough, which many of you
may think like, oh, I wasn't,I'm just not working hard enough
or I'm just not like, I'm justweak.
You know, that's the thought.
(11:07):
If I just keep trying harderand harder, I will get better
and, in a way, yes, you will.
I do think it is important tokind of push your boundaries a
little bit, just like withtraining, but there is
definitely needed times of rest,right.
But yeah, I definitely havesome systems in place that I've
(11:29):
been working on to refine it,and I think that's a natural
part of at least being abusiness owner, and this could
happen in life as well,depending on how much you focus
on self growth.
But it's like your lifestylechanges.
You need to kind of refine yourlifestyle to fit that.
Some people don't, which is whytheir life is chaos, um.
(11:50):
So if that feels like you, Iwould definitely do some
introspection.
But it got to the point whereyou know I was, uh.
I finally am in business formyself, I, which I actually did
this in an attempt to alleviatesome autoimmune uh issues,
because when you're in businessfor yourself, you have a little
bit more flexibility.
You don't have to show up tonecessarily a nine to five.
(12:11):
I have my online coaching,which I can kind of coach at a
pace that feels good to me,unless I'm doing a virtual
session, but I don't have toagain show up at a certain time
and rely on how I'm feelingright.
That's another thing that'sreally frustrating.
A month out you might try tosay, yeah, I'm going to come to
this event, I feel amazing, I'mgoing to be there, and then the
(12:33):
day comes and you just feel liketrash and you're like I do not
want to go.
That usually happens.
But I definitely have beenimplementing different
scheduling things, differentsystems for myself to just make
things easier, try to take lessbrain power, kind of level up to
(12:56):
the next level, take everythingI'm doing, condense it, be more
efficient.
That is where I'm at there, andthis last year my first real
year in business by myself hasbeen a lot of experimenting and
figuring out what systems workand trying new things and
playing around, and it's alwaysgoing to be like that.
But I definitely think it'sgotten a lot more refined and
(13:17):
that has been helpful.
So I think I was kind of at mybreaking point there, but then I
leveled up to the next leveland things feel a lot more
manageable now.
Now, the one thing I havestruggled with since I've been
diagnosed I'd say I have beendiagnosed for a little over like
a year and a half, almost twoyears, so it's still relatively
(13:38):
new to me, and my symptoms, Iwould say, almost virtually came
out of nowhere too, which iskind of creepy.
But when I was gettingdiagnosed, it's like I this has
to do with my working out.
Okay, this is what I strugglewith as a trainer.
Right, you're a fitness trainer, you work out and you might say
, tina, there's, you know, allkinds of body types and there's
(14:02):
all kinds of workout methods,and I do preach that, but I'm
trying to figure out how to fitit with my body right?
So, you know, prior to meexperiencing symptoms because
it's like one day, all of asudden, I just started feeling
really run down, really badbrain fog, just all these
(14:23):
symptoms, feeling really reallycold all the time, like all this
crazy stuff.
And before that, though, I would.
I would run for hours, nothours, but I would run, you know
, almost every day.
I'd sprint, I would push myselfand try these fun challenges, I
would lift heavy weights, and Iloved it, I looked forward to
(14:44):
it, it was my outlet, and thatwas becoming, it was starting to
become somewhat resentful in mybrain.
I just didn't have the energyto push.
That was something verydistinct, is that?
And again, I don't know ifpeople who don't have never
experienced autoimmune can graspthis or understand this.
I don't think you can trulyunderstand it unless you
experience it Because, again, Istill have trouble wrapping my
(15:07):
head around it.
But when something was hard, itwas challenging in a good way.
Like I, my muscles would burnand I'd be sweating, but I would
enjoy it.
Right like like I would lovethe challenge of sprinting.
And when I first started outlike I wasn't doing all this
stuff, right like I never workedout before when I first started
(15:28):
.
So I gradually built up, Ipushed whatever was right Like I
never worked out before when Ifirst started.
So I gradually built up, Ipushed whatever was challenging
for me.
I remember jogging for like 30seconds and dying and like you
got to make it to 30 seconds,you got to make it to 40 seconds
and it was good.
It was a good kind of pain.
Same thing with lifting itwould be hard, but it was a good
kind of pain.
And it seems like ever sinceI've been diagnosed, um, most of
(15:54):
the time any of the discomfortI feel is more like not a good
pain, it's, it's fatigue, it'syou're feeling drained picture
you got like a crappy night ofsleep and maybe you didn't eat
really well.
Like picture a bad day oftraining for you and you trying
to get through it.
That's what all of my sessionsfeel like.
Okay, so I've been on this pathof figuring out what my
(16:16):
intensity needs to be and whatmy combo of working out needs to
be, and I think this isprobably going to be different
person to person.
And I will also say, to throw ontop of the mix, when I was
getting diagnosed don't know ifit was related or just
coincidence, but I tore.
I don't know if I toresomething, but I strained kind
of like an inner thigh muscle, agroin muscle, and the pain
(16:38):
radiated all the way up to likemy lower left abdomen, right.
So bad to the point I wouldwake up in the middle of the
night in pain.
Advil wouldn't even really takeit away.
Higher doses.
I could not work out, I couldonly walk, and even some days,
if I walked a certain distance,like longer than 10 minutes, I'd
(16:59):
be in pain.
Sometimes I could do two milesand be fine.
It was terrible.
I always had a low level of pain, went to physical therapy,
didn't really do anything.
I always had a low level ofpain, went to physical therapy
didn't really do anything.
Went to the doctor.
He refused to get an MRI or doanything.
Needless to say, this guy isnot my doctor anymore.
I need to find a new doctor.
But I was also on a birthcontrol pill that was giving me
(17:24):
a lot of side effects and when Iswitched that, the symptoms
significantly improved.
So I was thinking the injurywas not related to birth control
, but I think the birth controlwas increasing inflammation to
that area, making it not able toheal.
Of course, there's not enoughresearch on us to confirm that
in science, but just fromanecdotal experience that's my
(17:45):
thoughts on that.
But we were experiencing thatfor about a year and this was me
leaving my job, my comfortablehourly job, to pursue my own
business.
I was just getting diagnosedwith Hashimoto's and I just felt
so freaking lost, like I'm atrainer and I can only walk.
And then I got into yoga and Ifell in love with yoga, which is
(18:06):
a wonderful story, yoga.
And I fell in love with yoga,which is a wonderful story, um,
and it made me really respectyoga.
For when you need yoga, um, youcould truly appreciate the
beauty of its movement,especially when it's done right,
and there's so many methods ofyoga.
You can do really hard yoga,like.
I taught a yoga class, um,which I'm newly certified, uh,
my 200 hour certification, um.
(18:28):
But when I taught a yoga class,I like woke up the next day.
I was like my butt, cheeks aresore.
That's weird why.
And I was like, oh, my god, itwas for me, uh, doing that yoga
flow, you know, um, so it can bechallenging in its own way.
But there's also really gentle,restorative yoga, there's
meditative yoga, so there's somany different kinds, uh, so
don't knock it till you try it.
(18:48):
I'm also exploring Pilates.
I do have a Pilatescertification I'm working on as
well.
You actually don't need to be,which is a little scary.
You don't need to be certifiedin these things to teach them.
There's not a lot of strictlaws, at least in Pennsylvania,
but I would prefer to becertified to at least know the
(19:08):
foundational things, theterminology, the roots.
That's why I kind of gotcertified in yoga to learn more
about the terminology and thehistory and specific flows and
the meanings behind it, and thenyou eventually kind of put your
own little twist on things.
Same thing with Pilates.
I'd be interested to see,because I don't know a lot about
Pilates, but it seems reallyinteresting to me now, and I'm
(19:29):
not going to lie before I hadthis autoimmune stuff.
I kind of thought this stuff wasfor weaklings or people who
don't like working out and in away it could be good for them.
But let me tell you, uh, in aworld that I think we're living
(19:53):
in, where it's so high stress,so fast paced, and we, we tend
to burn out quicker and ourstress is higher, I think we
need this type of movement morethan ever.
There are some people out therewho who are, uh, really high
energy all the time.
They're almost adrenalinejunkies and they love, like the
crossfit, the ice baths, thesprinting, the heavy lifting,
(20:17):
the always killing themselvesand you know what.
They're fine, they never burnout.
I've witnessed it.
But then there's also the otherend of the spectrum where
people need more gentle movementbecause if they get too much
they burn out.
And again, that's that's whereI'm at.
So I'm kind of playing aroundnow with the idea of movement
(20:38):
because I've noticed,particularly on my two weeks off
, I was doing some at-homeworkouts.
I was following HeatherRobertson on YouTube.
If you don't follow HeatherRobertson, she's wonderful, I
love her stuff, but I was mainlypicking like core, body weight,
mobility, that kind of stuff,and let me tell you back in the
(20:59):
day, like I said, before I gotdiagnosed, I would have done
that stuff.
I've been like this is too easy, this is too easy, and let me
tell you, if this is you, youknow, and you feel like you need
to do more, that's fine.
Then maybe you need to do more.
I would encourage you, though,to do some sort of mobility,
(21:19):
stretching, ab work, like on arest day, active rest day, maybe
in compliments with a workoutor whatever, and that would be
me, but my body must need it,because when I do these moves,
it feels like enough, right, andI even slow down some of the
moves or modify a little bit tothe point where the movement
feels good, like a goodchallenging.
(21:42):
It's not like I'm dying throughevery move in a bad way, like
my body's struggling, and thatkind of flipped the switch for
me, and I was like okay, and Ifelt energized after my workout
instead of drained.
And here's my thoughts on this.
For anybody who's listening,that maybe feels like hopeless,
and sometimes I feel that waytoo, like am I ever going to be
(22:03):
able to do anything ever again.
I will say that I think peoplewith autoimmune disorders have
the ability to progress, likemove up in weight, you know all
that fun stuff.
But I think it's going to takelonger than the average person.
I think you have to stop beforeyou're burned out, like almost
(22:28):
keep working, like stop workingeven when you feel good, right,
like I was reading the one girlwho is an autoimmune coach and
she was like if you want to getinto running, walk and then run
for two minutes and that's it.
She's like don't push anymore.
You're going to feel like youwant to, but your body's going
to be mad at you if you doanymore.
And I could definitely agreewith her on that.
I've experienced that because Ido love running and jogging.
(22:51):
But I think you could progresstowards it.
It just takes a lot more timeand patience and I've always
said that is the number oneskill.
I don't care how easily you cando 100 burpees, I don't care
how hard you can work till youthrow up or till you're laying
on the floor sweating.
It's easy to go from zero to100.
It's easy to put your foot, youknow, pedal all the way to the
(23:13):
ground floor.
That's easy.
The hard part is learning whento pull back and to control and
to moderate.
That's the challenging part,because everybody's 0 to 100 and
then they burn out.
But to be able to keep andlisten to your body and keep a
pace and even do a little bitless, even though you want to do
a little bit more to maintain,that's the hard game.
(23:37):
Right, and this again can applyto people who don't have
autoimmune disorders.
But that's the balance I'mfiguring out right now.
As somebody who teaches classes,this is also a challenge
Because I mean, I guess listen,my class people will love me.
I like to do the workouts withthem, but I have to leave my ego
at the door and either learn topace myself or not do the whole
(24:00):
workout.
Because, if you notice, being agroup instructor is actually a
very exhausting job for anybodyLike people who teach seven,
eight classes a day.
Bless their hearts, they'reworking out that much.
Usually Me, I only teach likeone or two a day and a lot of
them are easier.
But for my total body classesthose are pretty intense and I
(24:21):
like to push myself because itfeels good.
But I might be cutting back onthat, the intensity, taking some
more time to walk around andcheck form versus actually
getting into the workout,because I've just noticed it's
like it drains the crap out ofme, right.
So, and it's sad because I wasthinking back to, like, I ran a
5k, uh, back in May last yearand I felt good doing it, but
(24:43):
then I remember the rest of theday I was like done, exhausted,
and normally I would not be, um,and this isn't a oh, you're
getting older kind of thing.
I mean, I'm 29, I'm gonna be 30.
That's still pretty young and Itake care of myself really well
.
I think it's just theinflammation of my body which
(25:04):
sucks.
But you know, this aligns withwhat I teach.
I true, this is why I got intofitness in the first place,
because I was somebody who I wasnever athletic.
I, like you know, um, thepeople who were in sports and
stuff were like either naturallygifted or they got into it
super early, so they were kindof conditioned and and, like you
(25:25):
know, when you learn stuff as akid, it doesn't feel like
you're really learning, like itjust feels like a natural, like
uh, skill right, because italmost feels like a game or or
fun to you as you're learning it.
So I never got to experiencethat really.
Growing up I did a little bitbut I was never in official
sports and stuff.
I'd play outside with myfriends but I had periods where
(25:46):
I was chubbier and more sitting,more inactive, and I had
periods where I tried to be morefit and lose some weight.
But I want to be that voice forthe people who aren't athletic
but they want to get into arealm of movement or maybe they
feel guilty that they're not.
You know running marathons andyou know deadlifting 200 pounds
(26:10):
like maybe they just want gentlemovement and they don't want to
be made fun of for that.
Like what's wrong?
What's wrong with that?
You're moving your body in away that feels good for you and
it's going to be good for youand maybe one day you do choose
to push a little bit more if itfeels good.
But and sometimes for my peoplewith the autoimmune disorders
or certain restrictions thatdon't allow them to train at
(26:32):
that pace, there could be somany reasons that they can't do
this and I I just want to bethat.
I want to be that person forthem.
I want to support you, I wantto cheer you on and let you know
that it's okay, because there'sway too many coaches out there
who shame people.
If you don't fit into my box, Iwas a bodybuilder, you know?
Not me, I was not a bodybuilder.
(26:52):
But they'll just say that, oh,I was a bodybuilder and this is
how you train.
And if you don't train that way, you're weak.
Or I run marathons, this is howyou do it.
If you don't do it this way,you're weak.
Or I did football and this iswhat we learned.
And if you don't do this,you're weak.
And I see that a lot and itfrustrates me.
They don't adapt to the person.
They don't look at their needsor their lifestyle.
(27:15):
Um, I'm someone who I found II've never been understood,
especially as a female infitness.
It's like I also had hormonalimbalances and days that I'd
feel in crippling pain.
A lot of the trainers that Iworked with, particularly males,
like would just not understand.
Like if I could not push, theyjust thought I was being weak.
I'm like well, let's tradebodies and see if you could do
it.
So yeah, I have a lot ofpassion around that, but yeah,
(27:39):
so that's just.
I just wanted to kind of getthat out of my system, about
venting in regards to justmodifying my routine to fit my
body.
So I feel energized andsometimes that requires doing
less and I think I'm okay withthat.
It's just I need to figure outhow I'm going to implement it.
(28:01):
But thanks for tuning in.
Hopefully someone found thishelpful who's maybe going on a
similar journey, but you're notalone and I will catch you in
the next one, guys.
Bye.
Hello everyone and welcome back to another episode
of the Tea with Tina podcast.
Today I want to talk aboutflare-ups, so anybody who has an
autoimmune disorder.
Maybe you know someone who hasan autoimmune disorder.
They're getting pretty commonin the United States,
particularly in women, butthat's not a good thing.
(00:25):
But uh, that that's a wholeanother podcast topic for
another day, but I wanted tochat about it and kind of work
through some thoughts.
This is definitely gonna be achit chat podcast today.
Some of my just like rawthoughts and feelings and how
having an autoimmune disorderworks with, uh, being a trainer
(00:45):
and some of the things that Ifelt as a fitness trainer and
kind of my thoughts movingforward.
Ok, so this idea stemmed fromthe idea that I took a two week
break, essentially beforeChristmas, and I did not go into
the gym.
(01:05):
I did some minor home computerwork, a lot of like weird
projects I needed to get donethat like I didn't have time for
normally in my week.
It was really really nice.
I still did housework and stuff, like I was still up and moving
, but it was definitely a lotmore toned down on my body and I
was getting a lot more sleepand um me.
(01:28):
If you don't know, I haveHashimoto's um, which is an
autoimmune disorder related tothe thyroid.
So there are these um cells inmy body that are just like hey,
the uh thyroid's's bad, let'sattack it.
Okay, it's the enemy.
And they claim that there'sthese certain molecules that
(01:50):
attach to your thyroid, thatmake it appear as an enemy,
because I researched it a littlebit, they're not 100% sure if
this is the case, but that's whyit randomly triggers and your
body will start attacking yourthyroid.
Now the thing that's tricky iseverybody is different, because
they don't know enough about howor why this works.
But some people, the onset ofthis autoimmune disorder can
(02:12):
happen immediately, like you canjust feel like garbage
instantly and you, your health,can deteriorate very quickly.
Sometimes you can have flarewhich we're going to talk about
a little bit Again.
Sometimes it's over months andyears.
Sometimes you almost go intoremission, where your body stops
(02:33):
attacking your thyroid.
And let me say, for any of youout there who may be
experiencing negative symptomsand maybe your doctor is not
giving you any answers,definitely be your own advocate.
I literally went through thewait and see, trial and error,
(02:54):
because my levels wereborderline high, normal
Generally, you know, dependingon what scale doctors use, I
would say healthy thyroid rangeis 0.5 to 4 or 4.5.
I was sitting between 5 and 6,sometimes 7, so slightly above.
They actually don't starttreating people until 10, which
(03:14):
is ridiculous to me.
There are some people who sitat like 100 on the scale or even
in the thousands and they don'teven really realize, like
they're just used to feelinglike garbage, and there's some
people who feel absolutely awfulat four.
So it's very different personto person.
And they weren't really testingme, uh, the way I should have
(03:35):
been tested.
They weren't testing myantibodies, which if there are a
presence of antibodies, thatmeans that you have Hashimoto's,
because these antibodies arewhat's attacking your thyroid.
And when I bought my ownantibody test, both of the tests
were high.
The one was off the charts, thescale only went up to 999 and
(03:57):
mine was 999.
So I don't really know how manyantibodies I had.
And this was frustrating for mebecause they again they wanted
to see a wait and see like, oh,maybe your thyroid is elevated a
little bit, let's wait to seeif it came down.
And I was really determined todo things the quote unquote
natural way I was like well, I'mmanaging my rest, I'm drinking
water, I'm sleeping, I'm eatingnutrient dense food.
(04:20):
I'm trying to limit gluten anddairy.
I did everything and I would.
I would get a test done and itwould be worse.
Uh, so it's not necessarily.
Sometimes you know what you cando in your environment.
Sometimes you do just getthings due to genetics, like it
is a genetic thing, my mom hadit, um, her mom had it.
(04:40):
So there there is a, a geneticcomponent.
I think my lifestyle factorsprobably allow the symptoms to
be easier to manage.
But here's the tricky part andwhat I've been personally
struggling with.
And if you do not have anautoimmune disorder, please pay
attention because it's hard towrap your mind around.
I have an autoimmune disorderand it's hard for me to wrap my
(05:01):
mind around.
I think people with autoimmunedisorders get a bad rep.
A lot of people call them lazy,and there's a variety of
autoimmune disorders.
A lot of people call them lazy,say they're just making stuff
up, they're not trying hardenough, because on the outside
you look normal, you lookhealthy, you there's nothing
(05:23):
visibly wrong with you and it'sit sucks because you know people
are going to say that or thinkthat and you, you try to keep up
and and here's the tricky partwith flare ups and a flare up
would just be, you know, forsome reason the symptoms are
worse something you did orsomething your body did, uh
(05:45):
caused excess inflammation, sothat's extra stress on your body
and your body's trying to useits resources to bring your body
kind of back to a normal state.
So the energy would you wouldnormally have to do like your
everyday things is gone right.
Um, it'd be like if you'regetting sick, like when you get
sick, your body uses energy,extra energy, to fight things
off right, and you feel likeshit.
(06:05):
You just want to like lay inbed, uh, do nothing.
That's what a flare-up feelslike, and flare-ups can feel
different for everybody.
I was actually reading a postabout a girl who has um
hashimoto's and she was sharingsome of the symptoms and it can
be migraines that you have.
Um, fatigue is definitely acommon one, I know.
For me, I feel feverish.
(06:25):
That's a telltale sign if it'sbad, like a bad flare-up.
There's definitely varyingdegrees, but yeah, that feeling
of being feverish, like yourbody heats up.
For a little bit you don'tquite have a fever and then it
goes back.
Um, I always think I'm about toget sick or something, but then
it never happens, and thatactually happened to me this
past weekend.
(06:47):
But kind of going back to whyit's frustrating with the
flare-ups, is there's no rhymeor reason to them.
Okay, sometimes it can bebecause you pushed a little bit
too hard or you work too much ortoo much stress, and I think my
flare-up was a result of.
I rested for two weeks and Ifelt really good, so then I went
(07:08):
back into my routine and I wasvery on it.
I wouldn't say that I overdid,I just had the extra energy, so
I used it.
So we are in this really shittybalance because usually when we
rest and we feel good, if youhave an autoimmune disorder,
you're like yes, I finally haveenergy, I finally feel good, I
want to use this.
And some of you may be able torelate from a fitness
(07:29):
perspective too.
Like maybe you haven't workedout for a while and you're like
I feel fresh, I'm going to doheavy weights, I feel really
good.
And then you wake up the nextday and you're like oh my God, I
can't walk because you overdidit.
And I really try to manage thisin my clients.
I'm like you almost want it tofeel slightly easy if you're
just starting out, until youbuild up some reps.
And it's the same withautoimmune, with the exception
(07:52):
that sometimes your body canknock you down for no rhyme or
reason.
I said I was doing things, Iwas running around, it's the new
year, I was meeting a lot ofnew people, doing things I
normally wouldn't do, but I feltgreat the whole time until the
end of the week.
Now, this is really strange.
I don't know if this wasrelated to the autoimmune
(08:13):
component, but I was gettingwhat would be called like a
phantom smell.
I woke up at about 10 at night.
I went to bed around nine, solike just an hour later, but I
was in a deep sleep and I feltlike a cooling sensation in my
throat, almost like menthol ormint, every time I breathed in.
(08:34):
And it was so intense to thepoint that, like every time I
was breathing, I was gettingnauseous and I kind of panicked
because I woke up because ofthat sensation and I didn't
really know what was going on.
So I tried to calm myself down.
Um, but pretty much that wasThursday night.
Um, all of Friday I felt that.
So I was feeling nauseous, kindof had a headache from that
(08:55):
feeling.
Um, I was just feeling drained,starting to feel a little
feverish.
I thought I was coming downwith something, because there's
something coming around, um, andthen then Saturday I woke up,
still felt a little iffy.
Um, I was waiting to get sickand uh, as of yesterday because
I'm recording on a Monday uh, Ifelt pretty much back to normal.
(09:16):
I definitely feel a little bitlower energy, but nothing crazy,
and that's another thing too.
If you have, if you have anautoimmune disorder or something
equivalent, that kind of takesyour energy.
Uh, you learn to function atshittier levels, which is not
good.
And I talk about this withstress as well anybody who's
really stressed.
When you are in high stresssituations maybe you're working
(09:39):
long hours or you're dealingwith you know, screaming
children or just a fast pacedlife you adapt to it, which, in
a way, is a good thing.
Our bodies try to adapt to thescenarios we're in to stay alive
.
But then you forget what itfeels like to feel normal, like
that becomes your new normal andyou think everything's fine
until, like, maybe you take avacation or you actually take a
(10:01):
rest day and you're like, holyshit, I have been running and
that's kind of what happened tome on that two-week break.
Um, I think I kept up prettywell with what I've been doing
and I've just realized, with anautoimmune disorder, this is
kind of like a necessary evilfor me, um, but like, when I was
getting rest, I was like, oh mygod, because I would struggle
(10:23):
with brain fog to some extentand remembering things, and I
believe it was from just beingon so much and having to juggle
so many things.
When I finally got sleep and Ifinally got rest, I was like, oh
, I have my witty self and I canthink of fun things and say
funny things and I I feel morepresent, I feel more me.
I don't feel as much like awalking zombie, um, but I
(10:46):
definitely have systems in place.
Like, don't think I'm just likerunning myself into the ground.
We've done that before in thepast, when I was younger, uh,
before I knew I had any of thisstuff going on, I thought I was
just broken and wasn't workinghard enough, which many of you
may think like, oh, I wasn't,I'm just not working hard enough
or I'm just not like, I'm justweak.
You know, that's the thought.
(11:07):
If I just keep trying harderand harder, I will get better
and, in a way, yes, you will.
I do think it is important tokind of push your boundaries a
little bit, just like withtraining, but there is
definitely needed times of rest,right.
But yeah, I definitely havesome systems in place that I've
(11:29):
been working on to refine it,and I think that's a natural
part of at least being abusiness owner, and this could
happen in life as well,depending on how much you focus
on self growth.
But it's like your lifestylechanges.
You need to kind of refine yourlifestyle to fit that.
Some people don't, which is whytheir life is chaos, um.
(11:50):
So if that feels like you, Iwould definitely do some
introspection.
But it got to the point whereyou know I was, uh.
I finally am in business formyself, I, which I actually did
this in an attempt to alleviatesome autoimmune uh issues,
because when you're in businessfor yourself, you have a little
bit more flexibility.
You don't have to show up tonecessarily a nine to five.
(12:11):
I have my online coaching,which I can kind of coach at a
pace that feels good to me,unless I'm doing a virtual
session, but I don't have toagain show up at a certain time
and rely on how I'm feelingright.
That's another thing that'sreally frustrating.
A month out you might try tosay, yeah, I'm going to come to
this event, I feel amazing, I'mgoing to be there, and then the
(12:33):
day comes and you just feel liketrash and you're like I do not
want to go.
That usually happens.
But I definitely have beenimplementing different
scheduling things, differentsystems for myself to just make
things easier, try to take lessbrain power, kind of level up to
(12:56):
the next level, take everythingI'm doing, condense it, be more
efficient.
That is where I'm at there, andthis last year my first real
year in business by myself hasbeen a lot of experimenting and
figuring out what systems workand trying new things and
playing around, and it's alwaysgoing to be like that.
But I definitely think it'sgotten a lot more refined and
(13:17):
that has been helpful.
So I think I was kind of at mybreaking point there, but then I
leveled up to the next leveland things feel a lot more
manageable now.
Now, the one thing I havestruggled with since I've been
diagnosed I'd say I have beendiagnosed for a little over like
a year and a half, almost twoyears, so it's still relatively
(13:38):
new to me, and my symptoms, Iwould say, almost virtually came
out of nowhere too, which iskind of creepy.
But when I was gettingdiagnosed, it's like I this has
to do with my working out.
Okay, this is what I strugglewith as a trainer.
Right, you're a fitness trainer, you work out and you might say
, tina, there's, you know, allkinds of body types and there's
(14:02):
all kinds of workout methods,and I do preach that, but I'm
trying to figure out how to fitit with my body right?
So, you know, prior to meexperiencing symptoms because
it's like one day, all of asudden, I just started feeling
really run down, really badbrain fog, just all these
(14:23):
symptoms, feeling really reallycold all the time, like all this
crazy stuff.
And before that, though, I would.
I would run for hours, nothours, but I would run, you know
, almost every day.
I'd sprint, I would push myselfand try these fun challenges, I
would lift heavy weights, and Iloved it, I looked forward to
(14:44):
it, it was my outlet, and thatwas becoming, it was starting to
become somewhat resentful in mybrain.
I just didn't have the energyto push.
That was something verydistinct, is that?
And again, I don't know ifpeople who don't have never
experienced autoimmune can graspthis or understand this.
I don't think you can trulyunderstand it unless you
experience it Because, again, Istill have trouble wrapping my
(15:07):
head around it.
But when something was hard, itwas challenging in a good way.
Like I, my muscles would burnand I'd be sweating, but I would
enjoy it.
Right like like I would lovethe challenge of sprinting.
And when I first started outlike I wasn't doing all this
stuff, right like I never workedout before when I first started
(15:28):
.
So I gradually built up, Ipushed whatever was right Like I
never worked out before when Ifirst started.
So I gradually built up, Ipushed whatever was challenging
for me.
I remember jogging for like 30seconds and dying and like you
got to make it to 30 seconds,you got to make it to 40 seconds
and it was good.
It was a good kind of pain.
Same thing with lifting itwould be hard, but it was a good
kind of pain.
And it seems like ever sinceI've been diagnosed, um, most of
(15:54):
the time any of the discomfortI feel is more like not a good
pain, it's, it's fatigue, it'syou're feeling drained picture
you got like a crappy night ofsleep and maybe you didn't eat
really well.
Like picture a bad day oftraining for you and you trying
to get through it.
That's what all of my sessionsfeel like.
Okay, so I've been on this pathof figuring out what my
(16:16):
intensity needs to be and whatmy combo of working out needs to
be, and I think this isprobably going to be different
person to person.
And I will also say, to throw ontop of the mix, when I was
getting diagnosed don't know ifit was related or just
coincidence, but I tore.
I don't know if I toresomething, but I strained kind
of like an inner thigh muscle, agroin muscle, and the pain
(16:38):
radiated all the way up to likemy lower left abdomen, right.
So bad to the point I wouldwake up in the middle of the
night in pain.
Advil wouldn't even really takeit away.
Higher doses.
I could not work out, I couldonly walk, and even some days,
if I walked a certain distance,like longer than 10 minutes, I'd
(16:59):
be in pain.
Sometimes I could do two milesand be fine.
It was terrible.
I always had a low level of pain, went to physical therapy,
didn't really do anything.
I always had a low level ofpain, went to physical therapy
didn't really do anything.
Went to the doctor.
He refused to get an MRI or doanything.
Needless to say, this guy isnot my doctor anymore.
I need to find a new doctor.
But I was also on a birthcontrol pill that was giving me
(17:24):
a lot of side effects and when Iswitched that, the symptoms
significantly improved.
So I was thinking the injurywas not related to birth control
, but I think the birth controlwas increasing inflammation to
that area, making it not able toheal.
Of course, there's not enoughresearch on us to confirm that
in science, but just fromanecdotal experience that's my
(17:45):
thoughts on that.
But we were experiencing thatfor about a year and this was me
leaving my job, my comfortablehourly job, to pursue my own
business.
I was just getting diagnosedwith Hashimoto's and I just felt
so freaking lost, like I'm atrainer and I can only walk.
And then I got into yoga and Ifell in love with yoga, which is
(18:06):
a wonderful story, yoga.
And I fell in love with yoga,which is a wonderful story, um,
and it made me really respectyoga.
For when you need yoga, um, youcould truly appreciate the
beauty of its movement,especially when it's done right,
and there's so many methods ofyoga.
You can do really hard yoga,like.
I taught a yoga class, um,which I'm newly certified, uh,
my 200 hour certification, um.
(18:28):
But when I taught a yoga class,I like woke up the next day.
I was like my butt, cheeks aresore.
That's weird why.
And I was like, oh, my god, itwas for me, uh, doing that yoga
flow, you know, um, so it can bechallenging in its own way.
But there's also really gentle,restorative yoga, there's
meditative yoga, so there's somany different kinds, uh, so
don't knock it till you try it.
(18:48):
I'm also exploring Pilates.
I do have a Pilatescertification I'm working on as
well.
You actually don't need to be,which is a little scary.
You don't need to be certifiedin these things to teach them.
There's not a lot of strictlaws, at least in Pennsylvania,
but I would prefer to becertified to at least know the
(19:08):
foundational things, theterminology, the roots.
That's why I kind of gotcertified in yoga to learn more
about the terminology and thehistory and specific flows and
the meanings behind it, and thenyou eventually kind of put your
own little twist on things.
Same thing with Pilates.
I'd be interested to see,because I don't know a lot about
Pilates, but it seems reallyinteresting to me now, and I'm
(19:29):
not going to lie before I hadthis autoimmune stuff.
I kind of thought this stuff wasfor weaklings or people who
don't like working out and in away it could be good for them.
But let me tell you, uh, in aworld that I think we're living
(19:53):
in, where it's so high stress,so fast paced, and we, we tend
to burn out quicker and ourstress is higher, I think we
need this type of movement morethan ever.
There are some people out therewho who are, uh, really high
energy all the time.
They're almost adrenalinejunkies and they love, like the
crossfit, the ice baths, thesprinting, the heavy lifting,
(20:17):
the always killing themselvesand you know what.
They're fine, they never burnout.
I've witnessed it.
But then there's also the otherend of the spectrum where
people need more gentle movementbecause if they get too much
they burn out.
And again, that's that's whereI'm at.
So I'm kind of playing aroundnow with the idea of movement
(20:38):
because I've noticed,particularly on my two weeks off
, I was doing some at-homeworkouts.
I was following HeatherRobertson on YouTube.
If you don't follow HeatherRobertson, she's wonderful, I
love her stuff, but I was mainlypicking like core, body weight,
mobility, that kind of stuff,and let me tell you back in the
(20:59):
day, like I said, before I gotdiagnosed, I would have done
that stuff.
I've been like this is too easy, this is too easy, and let me
tell you, if this is you, youknow, and you feel like you need
to do more, that's fine.
Then maybe you need to do more.
I would encourage you, though,to do some sort of mobility,
(21:19):
stretching, ab work, like on arest day, active rest day, maybe
in compliments with a workoutor whatever, and that would be
me, but my body must need it,because when I do these moves,
it feels like enough, right, andI even slow down some of the
moves or modify a little bit tothe point where the movement
feels good, like a goodchallenging.
(21:42):
It's not like I'm dying throughevery move in a bad way, like
my body's struggling, and thatkind of flipped the switch for
me, and I was like okay, and Ifelt energized after my workout
instead of drained.
And here's my thoughts on this.
For anybody who's listening,that maybe feels like hopeless,
and sometimes I feel that waytoo, like am I ever going to be
(22:03):
able to do anything ever again.
I will say that I think peoplewith autoimmune disorders have
the ability to progress, likemove up in weight, you know all
that fun stuff.
But I think it's going to takelonger than the average person.
I think you have to stop beforeyou're burned out, like almost
(22:28):
keep working, like stop workingeven when you feel good, right,
like I was reading the one girlwho is an autoimmune coach and
she was like if you want to getinto running, walk and then run
for two minutes and that's it.
She's like don't push anymore.
You're going to feel like youwant to, but your body's going
to be mad at you if you doanymore.
And I could definitely agreewith her on that.
I've experienced that because Ido love running and jogging.
(22:51):
But I think you could progresstowards it.
It just takes a lot more timeand patience and I've always
said that is the number oneskill.
I don't care how easily you cando 100 burpees, I don't care
how hard you can work till youthrow up or till you're laying
on the floor sweating.
It's easy to go from zero to100.
It's easy to put your foot, youknow, pedal all the way to the
(23:13):
ground floor.
That's easy.
The hard part is learning whento pull back and to control and
to moderate.
That's the challenging part,because everybody's 0 to 100 and
then they burn out.
But to be able to keep andlisten to your body and keep a
pace and even do a little bitless, even though you want to do
a little bit more to maintain,that's the hard game.
(23:37):
Right, and this again can applyto people who don't have
autoimmune disorders.
But that's the balance I'mfiguring out right now.
As somebody who teaches classes,this is also a challenge
Because I mean, I guess listen,my class people will love me.
I like to do the workouts withthem, but I have to leave my ego
at the door and either learn topace myself or not do the whole
(24:00):
workout.
Because, if you notice, being agroup instructor is actually a
very exhausting job for anybodyLike people who teach seven,
eight classes a day.
Bless their hearts, they'reworking out that much.
Usually Me, I only teach likeone or two a day and a lot of
them are easier.
But for my total body classesthose are pretty intense and I
(24:21):
like to push myself because itfeels good.
But I might be cutting back onthat, the intensity, taking some
more time to walk around andcheck form versus actually
getting into the workout,because I've just noticed it's
like it drains the crap out ofme, right.
So, and it's sad because I wasthinking back to, like, I ran a
5k, uh, back in May last yearand I felt good doing it, but
(24:43):
then I remember the rest of theday I was like done, exhausted,
and normally I would not be, um,and this isn't a oh, you're
getting older kind of thing.
I mean, I'm 29, I'm gonna be 30.
That's still pretty young and Itake care of myself really well
.
I think it's just theinflammation of my body which
(25:04):
sucks.
But you know, this aligns withwhat I teach.
I true, this is why I got intofitness in the first place,
because I was somebody who I wasnever athletic.
I, like you know, um, thepeople who were in sports and
stuff were like either naturallygifted or they got into it
super early, so they were kindof conditioned and and, like you
(25:25):
know, when you learn stuff as akid, it doesn't feel like
you're really learning, like itjust feels like a natural, like
uh, skill right, because italmost feels like a game or or
fun to you as you're learning it.
So I never got to experiencethat really.
Growing up I did a little bitbut I was never in official
sports and stuff.
I'd play outside with myfriends but I had periods where
(25:46):
I was chubbier and more sitting,more inactive, and I had
periods where I tried to be morefit and lose some weight.
But I want to be that voice forthe people who aren't athletic
but they want to get into arealm of movement or maybe they
feel guilty that they're not.
You know running marathons andyou know deadlifting 200 pounds
(26:10):
like maybe they just want gentlemovement and they don't want to
be made fun of for that.
Like what's wrong?
What's wrong with that?
You're moving your body in away that feels good for you and
it's going to be good for youand maybe one day you do choose
to push a little bit more if itfeels good.
But and sometimes for my peoplewith the autoimmune disorders
or certain restrictions thatdon't allow them to train at
(26:32):
that pace, there could be somany reasons that they can't do
this and I I just want to bethat.
I want to be that person forthem.
I want to support you, I wantto cheer you on and let you know
that it's okay, because there'sway too many coaches out there
who shame people.
If you don't fit into my box, Iwas a bodybuilder, you know?
Not me, I was not a bodybuilder.
(26:52):
But they'll just say that, oh,I was a bodybuilder and this is
how you train.
And if you don't train that way, you're weak.
Or I run marathons, this is howyou do it.
If you don't do it this way,you're weak.
Or I did football and this iswhat we learned.
And if you don't do this,you're weak.
And I see that a lot and itfrustrates me.
They don't adapt to the person.
They don't look at their needsor their lifestyle.
(27:15):
Um, I'm someone who I found II've never been understood,
especially as a female infitness.
It's like I also had hormonalimbalances and days that I'd
feel in crippling pain.
A lot of the trainers that Iworked with, particularly males,
like would just not understand.
Like if I could not push, theyjust thought I was being weak.
I'm like well, let's tradebodies and see if you could do
it.
So yeah, I have a lot ofpassion around that, but yeah,
(27:39):
so that's just.
I just wanted to kind of getthat out of my system, about
venting in regards to justmodifying my routine to fit my
body.
So I feel energized andsometimes that requires doing
less and I think I'm okay withthat.
It's just I need to figure outhow I'm going to implement it.
(28:01):
But thanks for tuning in.
Hopefully someone found thishelpful who's maybe going on a
similar journey, but you're notalone and I will catch you in
the next one, guys.
Bye.
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