In this episode of Unboxed & Fearless with Dr. Natasha Weems, DNP-BC, we bring attention to Dravet Syndrome, epilepsy awareness, and the vital role of caregivers.
During Tay’s Play Day, Neurologist Dr. Holder highlighted that over 600 genes are linked to epilepsy, emphasizing the importance of specialized treatment and expert care. Jenece Bond, founder of the Taylen Lauren Horton Foundation, shared her mission to support caregivers and families navigating Dravet Syndrome and special needs challenges.
A special acknowledgment to event coordinator Ebony Edwards, whose dedication made this impactful event possible.
Caregivers play an essential role in supporting their loved ones, often sacrificing their own needs to provide care. Their resilience and dedication deserve recognition, and community support can make a significant difference in their journey.
Listen to the full conversation and be part of the movement advocating for awareness, better resources, and stronger community support.
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Resources for Caregivers:
For those caring for loved ones with Dravet Syndrome, epilepsy, or special needs, the following organizations offer support, guidance, and resources:
• Inland Regional Center – Provides services and support for individuals with developmental disabilities in Southern California.
Website: inlandrc.org
• Easter Seals – Offers disability and caregiving resources, therapy, and support for individuals and families.
Website: easterseals.com
• Taylen Lauren Horton Foundation – Advocacy and support for families navigating Dravet Syndrome and epilepsy.
Website: taylenlaurenhortonfoundation.org
• The Epilepsy Foundation – Comprehensive resources, advocacy, and research for those affected by epilepsy.
Website: epilepsy.com
Caregiver Resources:
Email: info@thepearlhealthfoundation.com
Website: www.thepearlhealthfoundation.com
Advocacy and awareness are critical in ensuring better care and resources for those affected. Support caregivers, educate communities, and take action toward meaningful change.
Follow Dr. Natasha Weems:
Instagram: @drnatasha_
Podcast: @unboxedandfearlesspodcast
Website: drnatashathenp.com
#UnboxedAndFearless #DrNatashaWeems #DravetSyndrome #EpilepsyAwareness #CaregiverSupport #Neurology #MentalHealthMatters #SpecialNeedsFamilies #PodcastLife #AdvocateForYourself #Philanthropy #InlandRegionalCenter #EasterSeals #TaylenLaurenHortonFoundat
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