In this bonus episode, I will be talking about our second annual PANS/PANDAS Advocacy Day on Capitol Hill, a joint event planned by the National Alliance of PANS/PANDAS Action (NAPPA) and The Alex Manfull Fund (TAMF) to be held on Friday, April 12th in Washington, DC. My guests -- Amanda Peel Crowley, co-founder of NAPPA, and Paul J. Murphy, Treasurer of The Alex Manfull Fund -- have all the details!
LINK to register: https://thealexmanfullfund.org/advocacy-day-on-capitol-hill-2024/
On Saturday, April 13th, our second annual 5K Run/Walk will take place.
LINK to register: https://thealexmanfullfund.org/the-alex-manfull-fund-2024-5k-run-walk/
BREAKING NEWS: April 8th marks more than (just) solar eclipse!
The Alex Manfull Fund Silent Auction will go live on Monday, April 8th at 12:00 p.m. and will end Sunday, April 14th at 9:00 p.m. with the culmination of the weekend events.
The ECLIPSE serves as a metaphor for the unique and marvelous nature of "36 Hours in DC," a time when patients, advocates, doctors, researchers, scientists, health providers, and legislators come together to advance change on PANDAS/PANS. Where the lives lost will move us all to a place where no life ever again be cut short -- or interrupted -- by infection-associated neuroimmune disorders.
Together, we can ECLIPSE PANDAS/PANS!
Here is the LINK to view the auction items: https://alexmanfullfund.betterworld.org/auctions/going-distance-capitol-hill-poto
Recorded March 29, 2024.
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.
Credits: Music by Kingsley Durant from his "Convertible" album
To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org
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