Real voices. Real stories. Demystifying narcolepsy one symptom at a time. Host Di Spillane, a person who lives with narcolepsy type one or with cataplexy, with the assistance of each guest, will be Diving into the real-life experiences of individuals living with narcolepsy, by providing detailed information centred around how each guest experienced one of their symptoms prior to receiving a diagnosis. Reading the words and looking up their meaning doesn't provide the knowledge that those with lived experience can.
The final episode of the Waking Up Tired - Narcolepsy Symptoms Explained podcast features Dr David Cunnington, a specialist sleep physician and educator, who’s spent over two decades listening to patients and helping decode the complexities of sleep disorders.
David shares what narcolepsy looks like from the other side of the desk, why diagnosis takes time, how clinicians think through sleepiness, and what makes narcolepsy with cat...
Episode seven of the Waking Up Tired – Narcolepsy Symptoms Explained podcast is about the one symptom that differs between narcolepsy type one and two, cataplexy. Narcolepsy Type 1 is defined by both excessive daytime sleepiness and cataplexy. Narcolepsy Type 2 is characterised by excessive daytime sleepiness but without cataplexy.
Because cataplexy varies so much between people who live with narcolepsy type one, this week we have t...
In episode six of the Waking Up Tired - Narcolepsy Symptoms Explained podcast, host Di Spillane introduces us to Laura who shares her experience of one of the core narcolepsy symptoms, hallucinations.
When Laura first started seeing the Shadow Man, a dark, looming figure who hovered near her bed she thought she was losing her mind. The hallucinations were vivid, terrifying, and impossible to explain. She could see him. Feel him. And...
In episode five of the Waking Up Tired - Narcolepsy Symptoms Explained podcast, host Di Spillane introduces us to Erin who was only 16 when she first experienced sleep paralysis. Sleep paralysis can occur as you are transitioning from wakefulness to sleep, or when your brain wakes up before your body does. You’re conscious—but frozen. You can’t move, can’t speak, and sometimes, you’re not alone.
During a sleep paralysis episode, ma...
How would you cope if you were to wake up multiple times every night? Find out exactly what that is like by listening to Waking Up Tired - Narcolepsy Symptoms Explained.
In episode four of the Waking Up Tired podcast, we’re joined by Dr. Aaron Shockman, a lived experience research fellow at the University of Sydney, whose personal journey with narcolepsy has shaped his research and advocacy.
Aaron opens up about the brutal reality of...
Waking Up Tired - Narcolepsy Symptoms Explained Episode Three - Vivid Dreams
In this deeply personal episode, Alicia shares navigating the blurred lines between dreams and reality—where vivid, realistic dreams can reopen trauma, strain relationships, and leave lasting confusion. Diagnosed with narcolepsy at 26 after years of misdiagnosis and dismissal, Alicia shares how the condition affects memory, emotional processing, and daily ...
Waking Up Tired - Narcolepsy Symptoms Explained
Sleep Attacks/ Micro Sleeps
Description:
In episode two, Jana, shares her powerful journey living withnarcolepsy type 1 in Australia. From falling asleep mid-conversation to microsleeps behind the wheel, Jana opens up about the subtle signs, emotional toll, and safety risks of sleep attacks — often misunderstood and misdiagnosed.
She reflects on the years before her diagnosis, the shame ...
Real voices. Real stories. Demystifying narcolepsy one symptom at a time.
Waking Up Tired: Narcolepsy Symptoms Explained - Excessive Daytime Sleepiness.
Diving into the real-life experiences of individuals living with narcolepsy, by providing detailed information centred around how they each experienced one of the symptoms prior to receiving a diagnosis.
Despite increased public education, misperceptions persist. Symptoms like EDS ar...
Real voices. Real stories. Demystifying Narcolepsy One Symptom at a Time. Diving into the real-life experiences of individuals living with narcolepsy, by providing detailed information centred around how they each experienced one of the symptoms prior to receiving a diagnosis.
Waking Up Tired: Narcolepsy Symptoms Explained is a limited podcast series that amplifies the lived experiences of people with narcolepsy, offering insight i...
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