March 3, 2024 • 20 mins
When Jeffrey Butler stepped back into his garden, shears in hand, ready to cut the grass after months of feeling too weak, it was a moment of triumph over his dialysis struggles—a journey I had the honor to be a part of as his former technician. Our latest episode invites you to witness the powerful story of Jeffrey and his son Jerry, as we delve into the delicate balance of dialysis patient care. Through our discussion, you'll understand how precise adjustments to treatment can profoundly impact a patient's quality of life, as well as the critical role of patient advocacy in navigating healthcare complexities. Jeffrey's sincere appreciation for the guidance that empowered him to take control of his health and share his knowledge with others is a testament to the deep bonds that can form between patients and those who care for them.
The heart of healthcare lies in the personal narratives of those it serves, and this episode doesn't shy away from confronting the challenges they face. You'll hear from Allison, a patient who suffered from incorrect machine settings, and the ripple effect her experience had on policy changes within the dialysis clinic, ensuring a higher standard of patient safety. We also tackle the tough conversations about the intersection of healthcare compensation and patient well-being, dissecting how these factors can influence treatment goals and outcomes. Join us for an eye-opening exploration of what it means to be a partner in care, and how advocacy, education, and genuine compassion are reshaping the experiences of those who depend on dialysis to live fully and vibrantly.
With hosts Maurice Carlisle and Ira McAliley
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:26):
What's up, beautiful people, this is McAliley here
for another edition of what'sthe Deal with Dialysis with
Maurice Carlisle.
Maurice Carlisle and myselfwe're a little hung up there,
but we're happy to be backtogether here again and we have
special guests today.
We have Jeffrey Butler and hisson Jerry Butler, and we're
(00:49):
going to learn a little bitabout, you know, jeffrey's
kidney history and what he'sgone through, and full
disclosure.
Maurice was Jeffrey'stechnician a while back, so
we'll get that story too.
Take it away, Maurice.
Speaker 2 (01:05):
Yeah, so yes, I had the fortune of taking care of Mr
Butler.
We go way back on that.
One of the things that happenedis that we were treating Mr
Butler for his you know, hisdialysis treatments at my
previous center and when heinitially came in he wasn't
(01:30):
gaining any weight or anything.
He wasn't gaining any fluid,and what I was seeing is that my
co-workers were taking hisfluids off of him too rapidly
and too much.
One of the things that he toldme is that he would go home and
he couldn't do anything.
He couldn't cut the grass, hecouldn't really get around, he'd
be labored when he tried to getup and go places and stuff like
(01:51):
that, and so at the hospitalyeah, yeah, it was even worse,
wasn't it?
Speaker 1 (01:57):
Yes, it was yeah.
Speaker 2 (01:59):
So we me and him formed a plan.
We decided that we wouldn'ttake a lot of fluid off of him
and we'd figure out a way to gethis blood pressures up a little
bit.
What I was seeing is his bloodpressure around 100 when he
would get ready to leave.
So I knew that in order for himto feel better, his blood
pressures had to be over 100 forjust to start out.
(02:21):
So what I would do is I'd goover and ask him was he feeling
well?
Of course he'd say no, and I'dsay well, we're going to turn
down your goal and we're goingto make sure that you leave with
a little bit of fluid on theday.
And we did that on a Friday.
And I can clearly remember whenhe came in on Monday, he was
like Mo, I don't know what youdid, but I could cut the grass,
I could get around, absolutelyyeah, and so, and so that's what
(02:44):
we did at that point.
We would do that every time,even if I wasn't taking care of
him.
I'd sneak over, yes, he would,yes, and change some stuff, and
finally he started feelingbetter.
So tell me about after that.
You know, I remember we talkedto the doctor, mr Butler, and we
(03:04):
asked him to cut your time, solet's talk about that.
What was his response to that?
Speaker 3 (03:11):
Well, his first response was no, and then I kept
insisting and I said you know,I don't, I really I don't feel
what I need for our share time,you know and we, your VA, hit
his VA doctor even suggestedthat Um he go down in time or
(03:33):
miss a day, but they didn't wanthim out of the chair either.
Speaker 4 (03:37):
Right right, you know , I got.
Speaker 3 (03:41):
The doctor was, you know, kind of hard to deal with
there and hard to get a hold of.
Especially, you know like whenI first started, dialysis came
out of the hospital in theMoneon.
I lost a lot of weight on countof that and then I found out
about the kidney problem.
But Anyway, I kept complainingto the doctor that you know I am
(04:03):
gaining body weight but youknow I'm not retaining fluid,
you know, and Of course onadvice that you gave me to Moe
was, you know, to complain tohim about it, you know.
And Finally it did sink intohim and they started, you know,
raising my body weight or dryweight.
Speaker 4 (04:26):
You know, when I came in, but they only decreased it
by a half hour.
They still want to have a chairthree hours or Three days a
week.
Speaker 3 (04:35):
Yeah, that's true, they did decrease it by a half
hour, which I thought was abattle one.
But what I would like to talkabout is Moe and how I Really
feel at Moe saved my life.
You know, in that place I havepeople over Dialinize me and
(04:57):
also, if I can't say this, I waslucky enough have Moe in that
place to give me a littleeducation on the settings on
that machine and really Not tonot to really trust anyone and
and have him set that machineface towards me so I can
(05:20):
actually see what the dialysiswhich pissed a lot of people off
, oh yeah, but, like Moe says,it's your health.
He says, and you, you got towatch your own butt.
And you know, I was justthankful To have Moe there to
(05:40):
tell me this, which a lot ofpeople, you know, did not know.
And, and, moe, even after youleft, I was trying to pass that
knowledge on to other patientsthat was there and I actually
(06:02):
they would separate me, you know, for mispatient, you know, like
I'd be beside them for a weekor two, you know, and we've been
talking about it, you know, andthen this patient would start
to question what's going on.
Well, they would separate usthis we was together on one
(06:22):
corner of the building andFinally they separated, as they
put him in one corner and me inthe other corner, on the other
side of the building.
Speaker 1 (06:35):
Yes, so this kind what you're saying kind of
speaks to what we've beentalking about for a long time
and what, what?
What basically made Moe startthis whole process is the fact
that Patients aren't beingeducated properly, right, and it
feels to me from my perspectivethat you know you talked about
(06:58):
only being taken off for a halfhour.
It's like it's being hooked,it's literally sucking money out
of people, right, because it'sit's time, it's time on the
clock or what have you, but, butthe important thing is that,
you know, for my sister, forother people, is that Patients
are educated and that theconversation between you and
Maurice, as a technician, shouldbe Supported.
(07:21):
You know what I mean, and andfor whatever reason, it's not.
And so what do you think couldbe done to kind of help patients
and and technicians kind ofwork more together, because
you're together most of the time, right?
Speaker 3 (07:35):
Yeah, absolutely.
I'm not saying alt, alt tax.
I mean I Don't think it's thatmaybe not the tax fault, I think
it's more on the nurses that'sactually running the place or
who the text has got an answerto.
I Remember one time this nursewas telling the tech that my
(08:03):
body needed Taxed.
You know, and I'm thinking now,what the hell does that mean?
Excuse my language and Actuallywhat that meant was To take
them the maximum amount of Floodoff my body.
Mm-hmm that they possibly, couldyou know, up until feigning,
(08:29):
breaking out in a sweat,feigning in the chair, blood
pressure crashing, and Mo hasdone this more and once for me.
He has come over to see whatthe hell is going on In that
chair with me and he says thisman needs flood.
Speaker 4 (08:48):
I Think the biggest thing, what I noticed Was that
there is a lack of patientadvocacy.
They want to keep keep people,you know, more of a blind eye.
They want them in the chair.
You know, making people betterdoes not, you know it just take
(09:13):
a money out of their pocket.
I mean without all theconspiracy theories and things
of that nature.
But you know it's very.
Yeah, it's not quite often theyhave a health care practitioner
that actually shares knowledge.
You know, in in diocese, thereagain you see so many people
(09:35):
that are non-compliant I whattheir diet and things of that.
But you know, like, like dadwas saying, I mean he'd come in
at like 63 kilos is dry weightand Mud, like be like no way man
, like 80 over 40.
He's like no way you're leaving.
It was.
(09:59):
I mean, you know, is it beingfamily and things like that.
You know, and I'm a nurse and Iwas amazed because I really,
you know, it was really prettysad to see, you know, so many
people in that state, but Withno help.
(10:20):
I mean they, if people had alittle bit more education, I
mean that's the key, educationis the key.
I, I mean, I've been a nursefor 20 years, I didn't know
anything about dialysis.
I you know one, one quarter,you know that was it.
You know, and you know it'slike I, oh, I didn't know, I've
(10:40):
never dealt with anything likethat, but he ended up making it.
I mean, in reality everythinghappens for a reason.
I Not only I mean wasfriendships forged, but I mean
education, advocacy.
I mean too bad it.
You know, I don't think.
(11:03):
Well, I don't think they hadmuch time for Really wanting to
do any kind of patient education, you know yeah it's pretty
Pretty sketchy.
not that it was a bad clinic,they were good people there.
Speaker 3 (11:21):
Yeah, there's definitely good people there,
but my father, I mean, I'm sorry, I gotta ring, ring your bell,
I gotta praise you Would thankyou, sir.
You were absolutely right.
I mean, those people had medown when my wife would bring me
home.
Now this is in the summertime,it's 85 degrees out and I got
(11:44):
the heater on the car cominghome.
Wow I get home and I cannot getout of the car, my wife
Literally drags me in the house,puts me in bed and I'm in a
Damn near an unconscious statetill about nine o'clock In the
(12:05):
evening when I finally you know,starting to move around get up.
Speaker 4 (12:10):
Well, they didn't even really instruct you how to
eat.
Mo was telling you my word likego home, eat a pickle like you
know right.
Speaker 3 (12:18):
Right yeah well, gave me that.
I mean that basis, my god man.
He says I go home and eat apickle.
He says that will help.
He says Believe me.
And it did and I did do that.
And another thing, if I couldsay this oh says there's another
little secret, says squeezeyour butt cheeks.
If I can't add this, mo isabsolutely right.
(12:55):
I mean, and I did tell him andI saw I celebrated this crap
when I came in and you know, inlike the next day or Whatever
you know, I said Mo, you did it.
I said I went home and therewas a blizzard outside.
Well, it's snowing like helland my mailbox is about an
eighth mile round trip there tothe mailbox and back into the
(13:18):
house.
And I Mean, I felt like a kid,you know, out there in the snow.
Wow, you know, and that's justthe difference between you know
the text, you know and.
Speaker 4 (13:33):
You start getting in a good mood, and my brother and
I were like we want our old dadback.
Speaker 2 (13:40):
Absolutely, and I think.
Well, mr Butler, I remember oneoccasion there was a nurse
there and she told me that theywere gonna take two kilos of
fluid off of you and I said Isaid no, absolutely not, we're
not doing that.
And she said I'm the nurse.
Remember this, nice says I'mthe nurse and I'll tell you.
(14:01):
You don't know.
Yeah, I said, and I didn't wantto do that in front of you, but
yes, she was pushing me andfinally I told her.
I said well, I think you'vebeen a nurse for two years.
Absolutely, I said I've been adialysis technician for over 19.
I said that's your two years.
(14:22):
Yes, what you don't know is shewent back to the manager.
Yeah, I'm manager.
She told the manager that Ibelittled her in front of the
patient and I was counsel forthat.
I wouldn't do it any different.
I probably would have told herthe same thing.
Speaker 3 (14:42):
That's just able to drug me in on that deal.
Well, that's okay, you know Iwas my, I was, so I was so mad
about that deal and and I Meanit's true.
I mean you know you stuck upfor me and and you, and that's
exactly what you told her.
You know you've been here,you've been a nurse there of two
(15:02):
years or Whatever, and you saidI've been a tech, you know, for
19,.
You know, yeah, it's in yourexperience counts.
I mean, for me personally, Idon't think I would have
survived that place without you,man, and I want to thank you
(15:24):
for recommending me for kidneytransplant to absolutely,
absolutely.
Speaker 2 (15:28):
I wanted to get you out of there and I knew that
would be the only way and Well,can I mention a nurse's name,
allison?
Speaker 3 (15:42):
Well, you already did Mean.
I don't want to get sued for.
Speaker 2 (15:50):
No last names.
I don't even know the last name.
Speaker 3 (15:55):
But this is well.
After you left, and rightbefore my transplant, wow Came
in and I made a mistake.
Allison hooked me up, you know,and and I Said, well, she was
in a hurry and all this, and IDidn't tell her to turn the
(16:17):
machine towards me to see whatthe settings was, and when you
know, she had it on like 300,yeah, and Anyway, she told me
that the machine reset itself.
That's why.
But I don't, I don't believethat crap.
(16:37):
Yeah, my wife came in to visitme.
Uh-huh or pick me up.
That day she came back andthere I was in the chair
sweating profusely, couldn'ttalk, and Of course, you know,
my wife panicked and got it, youknow, allison, over there right
away and they put in two bigbags of fluid in me.
Speaker 4 (17:03):
After two liters of fluid he weighed in at 88 pounds
.
Speaker 3 (17:14):
Oh, my gosh man.
Anyway, it pissed me off somuch I wrote a letter to David
oh, wow, yeah, and I told themwhat happened and that I forget
what all the letter said.
But it was a two page letter, Iwas very happy about it.
What?
Was their response.
They decided that they wasgoing to double check the
(17:41):
patient's settings on themachine by.
You know, two different people.
Speaker 2 (17:46):
Yeah, yeah, and that's supposed to happen anyway
.
So yeah, I found that out lateryeah typically the nurse isn't
usually there when I'm hookingyou up, like she comes around,
she sees you at first and thenafter that we take care of you,
and then the nurse comes overand gives you some meds or
whatever.
So, just to clarify, they setyou for three kilos, which is
(18:11):
about six pounds of fluid.
You've never had six pounds offluid on you ever.
I'm just telling you that rightnow.
I know that, I know that you'venever gained that much fluid.
Unfortunately, it is true thatwhen we reset the machine, it
does set at three kilos, butthat would mean that she never
(18:33):
set a goal for you at all.
Okay, and so for her to saythat that was you know that the
machine resets, hey, I get thatthat's an argument, but she
didn't set a goal for you at all, so she never touched that box
where that goal is set.
She left it at three kilos,which is, you know which is
(18:53):
horrible, because you, like Isaid, you don't gain three kilos
in two weeks, and so that's sixtreatments.
So if we were to just thinkabout that, you would gain a
half a kilo every time for sixtreatments to even equal out
three kilos.
Just don't gain like that.
You never have, you never did,yeah.
(19:14):
And so I think sometimes partof the problem just clarify this
part of the problem is is thatthe government tied the fluid to
compensation.
So they set a driveway for youMaybe your dry waste 84.
And every time they get you to84, they get a full payment, and
(19:36):
every time you leave at 85,they don't see.
So that's the problem.
Speaker 3 (19:43):
I was coming in the driveway about 62, 64.
Speaker 4 (19:47):
Mm hmm, and then they would.
They would probably want tolower your dry weight all the
time.
Yes, yeah so if you think it'snot a good.
Speaker 2 (19:58):
Yeah, if you reach 64 tomorrow, we're going to try
for 63.5.
Right.
Speaker 3 (20:02):
Right.
Speaker 2 (20:04):
But that you know.
But your blood pressure is anindication to us whether that's
working or not, and when yourblood pressure is under 100.
I mean, I think sometimes theargument is if you come in in a
wheelchair or you can leaveunder 100.
If you can talk.
What's up, beautiful people, this is McAliley here
for another edition of what'sthe Deal with Dialysis with
Maurice Carlisle.
Maurice Carlisle and myselfwe're a little hung up there,
but we're happy to be backtogether here again and we have
special guests today.
We have Jeffrey Butler and hisson Jerry Butler, and we're
(00:49):
going to learn a little bitabout, you know, jeffrey's
kidney history and what he'sgone through, and full
disclosure.
Maurice was Jeffrey'stechnician a while back, so
we'll get that story too.
Take it away, Maurice.
Speaker 2 (01:05):
Yeah, so yes, I had the fortune of taking care of Mr
Butler.
We go way back on that.
One of the things that happenedis that we were treating Mr
Butler for his you know, hisdialysis treatments at my
previous center and when heinitially came in he wasn't
(01:30):
gaining any weight or anything.
He wasn't gaining any fluid,and what I was seeing is that my
co-workers were taking hisfluids off of him too rapidly
and too much.
One of the things that he toldme is that he would go home and
he couldn't do anything.
He couldn't cut the grass, hecouldn't really get around, he'd
be labored when he tried to getup and go places and stuff like
(01:51):
that, and so at the hospitalyeah, yeah, it was even worse,
wasn't it?
Speaker 1 (01:57):
Yes, it was yeah.
Speaker 2 (01:59):
So we me and him formed a plan.
We decided that we wouldn'ttake a lot of fluid off of him
and we'd figure out a way to gethis blood pressures up a little
bit.
What I was seeing is his bloodpressure around 100 when he
would get ready to leave.
So I knew that in order for himto feel better, his blood
pressures had to be over 100 forjust to start out.
(02:21):
So what I would do is I'd goover and ask him was he feeling
well?
Of course he'd say no, and I'dsay well, we're going to turn
down your goal and we're goingto make sure that you leave with
a little bit of fluid on theday.
And we did that on a Friday.
And I can clearly remember whenhe came in on Monday, he was
like Mo, I don't know what youdid, but I could cut the grass,
I could get around, absolutelyyeah, and so, and so that's what
(02:44):
we did at that point.
We would do that every time,even if I wasn't taking care of
him.
I'd sneak over, yes, he would,yes, and change some stuff, and
finally he started feelingbetter.
So tell me about after that.
You know, I remember we talkedto the doctor, mr Butler, and we
(03:04):
asked him to cut your time, solet's talk about that.
What was his response to that?
Speaker 3 (03:11):
Well, his first response was no, and then I kept
insisting and I said you know,I don't, I really I don't feel
what I need for our share time,you know and we, your VA, hit
his VA doctor even suggestedthat Um he go down in time or
(03:33):
miss a day, but they didn't wanthim out of the chair either.
Speaker 4 (03:37):
Right right, you know , I got.
Speaker 3 (03:41):
The doctor was, you know, kind of hard to deal with
there and hard to get a hold of.
Especially, you know like whenI first started, dialysis came
out of the hospital in theMoneon.
I lost a lot of weight on countof that and then I found out
about the kidney problem.
But Anyway, I kept complainingto the doctor that you know I am
(04:03):
gaining body weight but youknow I'm not retaining fluid,
you know, and Of course onadvice that you gave me to Moe
was, you know, to complain tohim about it, you know.
And Finally it did sink intohim and they started, you know,
raising my body weight or dryweight.
Speaker 4 (04:26):
You know, when I came in, but they only decreased it
by a half hour.
They still want to have a chairthree hours or Three days a
week.
Speaker 3 (04:35):
Yeah, that's true, they did decrease it by a half
hour, which I thought was abattle one.
But what I would like to talkabout is Moe and how I Really
feel at Moe saved my life.
You know, in that place I havepeople over Dialinize me and
(04:57):
also, if I can't say this, I waslucky enough have Moe in that
place to give me a littleeducation on the settings on
that machine and really Not tonot to really trust anyone and
and have him set that machineface towards me so I can
(05:20):
actually see what the dialysiswhich pissed a lot of people off
, oh yeah, but, like Moe says,it's your health.
He says, and you, you got towatch your own butt.
And you know, I was justthankful To have Moe there to
(05:40):
tell me this, which a lot ofpeople, you know, did not know.
And, and, moe, even after youleft, I was trying to pass that
knowledge on to other patientsthat was there and I actually
(06:02):
they would separate me, you know, for mispatient, you know, like
I'd be beside them for a weekor two, you know, and we've been
talking about it, you know, andthen this patient would start
to question what's going on.
Well, they would separate usthis we was together on one
(06:22):
corner of the building andFinally they separated, as they
put him in one corner and me inthe other corner, on the other
side of the building.
Speaker 1 (06:35):
Yes, so this kind what you're saying kind of
speaks to what we've beentalking about for a long time
and what, what?
What basically made Moe startthis whole process is the fact
that Patients aren't beingeducated properly, right, and it
feels to me from my perspectivethat you know you talked about
(06:58):
only being taken off for a halfhour.
It's like it's being hooked,it's literally sucking money out
of people, right, because it'sit's time, it's time on the
clock or what have you, but, butthe important thing is that,
you know, for my sister, forother people, is that Patients
are educated and that theconversation between you and
Maurice, as a technician, shouldbe Supported.
(07:21):
You know what I mean, and andfor whatever reason, it's not.
And so what do you think couldbe done to kind of help patients
and and technicians kind ofwork more together, because
you're together most of the time, right?
Speaker 3 (07:35):
Yeah, absolutely.
I'm not saying alt, alt tax.
I mean I Don't think it's thatmaybe not the tax fault, I think
it's more on the nurses that'sactually running the place or
who the text has got an answerto.
I Remember one time this nursewas telling the tech that my
(08:03):
body needed Taxed.
You know, and I'm thinking now,what the hell does that mean?
Excuse my language and Actuallywhat that meant was To take
them the maximum amount of Floodoff my body.
Mm-hmm that they possibly, couldyou know, up until feigning,
(08:29):
breaking out in a sweat,feigning in the chair, blood
pressure crashing, and Mo hasdone this more and once for me.
He has come over to see whatthe hell is going on In that
chair with me and he says thisman needs flood.
Speaker 4 (08:48):
I Think the biggest thing, what I noticed Was that
there is a lack of patientadvocacy.
They want to keep keep people,you know, more of a blind eye.
They want them in the chair.
You know, making people betterdoes not, you know it just take
(09:13):
a money out of their pocket.
I mean without all theconspiracy theories and things
of that nature.
But you know it's very.
Yeah, it's not quite often theyhave a health care practitioner
that actually shares knowledge.
You know, in in diocese, thereagain you see so many people
(09:35):
that are non-compliant I whattheir diet and things of that.
But you know, like, like dadwas saying, I mean he'd come in
at like 63 kilos is dry weightand Mud, like be like no way man
, like 80 over 40.
He's like no way you're leaving.
It was.
(09:59):
I mean, you know, is it beingfamily and things like that.
You know, and I'm a nurse and Iwas amazed because I really,
you know, it was really prettysad to see, you know, so many
people in that state, but Withno help.
(10:20):
I mean they, if people had alittle bit more education, I
mean that's the key, educationis the key.
I, I mean, I've been a nursefor 20 years, I didn't know
anything about dialysis.
I you know one, one quarter,you know that was it.
You know, and you know it'slike I, oh, I didn't know, I've
(10:40):
never dealt with anything likethat, but he ended up making it.
I mean, in reality everythinghappens for a reason.
I Not only I mean wasfriendships forged, but I mean
education, advocacy.
I mean too bad it.
You know, I don't think.
(11:03):
Well, I don't think they hadmuch time for Really wanting to
do any kind of patient education, you know yeah it's pretty
Pretty sketchy.
not that it was a bad clinic,they were good people there.
Speaker 3 (11:21):
Yeah, there's definitely good people there,
but my father, I mean, I'm sorry, I gotta ring, ring your bell,
I gotta praise you Would thankyou, sir.
You were absolutely right.
I mean, those people had medown when my wife would bring me
home.
Now this is in the summertime,it's 85 degrees out and I got
(11:44):
the heater on the car cominghome.
Wow I get home and I cannot getout of the car, my wife
Literally drags me in the house,puts me in bed and I'm in a
Damn near an unconscious statetill about nine o'clock In the
(12:05):
evening when I finally you know,starting to move around get up.
Speaker 4 (12:10):
Well, they didn't even really instruct you how to
eat.
Mo was telling you my word likego home, eat a pickle like you
know right.
Speaker 3 (12:18):
Right yeah well, gave me that.
I mean that basis, my god man.
He says I go home and eat apickle.
He says that will help.
He says Believe me.
And it did and I did do that.
And another thing, if I couldsay this oh says there's another
little secret, says squeezeyour butt cheeks.
If I can't add this, mo isabsolutely right.
(12:55):
I mean, and I did tell him andI saw I celebrated this crap
when I came in and you know, inlike the next day or Whatever
you know, I said Mo, you did it.
I said I went home and therewas a blizzard outside.
Well, it's snowing like helland my mailbox is about an
eighth mile round trip there tothe mailbox and back into the
(13:18):
house.
And I Mean, I felt like a kid,you know, out there in the snow.
Wow, you know, and that's justthe difference between you know
the text, you know and.
Speaker 4 (13:33):
You start getting in a good mood, and my brother and
I were like we want our old dadback.
Speaker 2 (13:40):
Absolutely, and I think.
Well, mr Butler, I remember oneoccasion there was a nurse
there and she told me that theywere gonna take two kilos of
fluid off of you and I said Isaid no, absolutely not, we're
not doing that.
And she said I'm the nurse.
Remember this, nice says I'mthe nurse and I'll tell you.
(14:01):
You don't know.
Yeah, I said, and I didn't wantto do that in front of you, but
yes, she was pushing me andfinally I told her.
I said well, I think you'vebeen a nurse for two years.
Absolutely, I said I've been adialysis technician for over 19.
I said that's your two years.
(14:22):
Yes, what you don't know is shewent back to the manager.
Yeah, I'm manager.
She told the manager that Ibelittled her in front of the
patient and I was counsel forthat.
I wouldn't do it any different.
I probably would have told herthe same thing.
Speaker 3 (14:42):
That's just able to drug me in on that deal.
Well, that's okay, you know Iwas my, I was, so I was so mad
about that deal and and I Meanit's true.
I mean you know you stuck upfor me and and you, and that's
exactly what you told her.
You know you've been here,you've been a nurse there of two
(15:02):
years or Whatever, and you saidI've been a tech, you know, for
19,.
You know, yeah, it's in yourexperience counts.
I mean, for me personally, Idon't think I would have
survived that place without you,man, and I want to thank you
(15:24):
for recommending me for kidneytransplant to absolutely,
absolutely.
Speaker 2 (15:28):
I wanted to get you out of there and I knew that
would be the only way and Well,can I mention a nurse's name,
allison?
Speaker 3 (15:42):
Well, you already did Mean.
I don't want to get sued for.
Speaker 2 (15:50):
No last names.
I don't even know the last name.
Speaker 3 (15:55):
But this is well.
After you left, and rightbefore my transplant, wow Came
in and I made a mistake.
Allison hooked me up, you know,and and I Said, well, she was
in a hurry and all this, and IDidn't tell her to turn the
(16:17):
machine towards me to see whatthe settings was, and when you
know, she had it on like 300,yeah, and Anyway, she told me
that the machine reset itself.
That's why.
But I don't, I don't believethat crap.
(16:37):
Yeah, my wife came in to visitme.
Uh-huh or pick me up.
That day she came back andthere I was in the chair
sweating profusely, couldn'ttalk, and Of course, you know,
my wife panicked and got it, youknow, allison, over there right
away and they put in two bigbags of fluid in me.
Speaker 4 (17:03):
After two liters of fluid he weighed in at 88 pounds
.
Speaker 3 (17:14):
Oh, my gosh man.
Anyway, it pissed me off somuch I wrote a letter to David
oh, wow, yeah, and I told themwhat happened and that I forget
what all the letter said.
But it was a two page letter, Iwas very happy about it.
What?
Was their response.
They decided that they wasgoing to double check the
(17:41):
patient's settings on themachine by.
You know, two different people.
Speaker 2 (17:46):
Yeah, yeah, and that's supposed to happen anyway
.
So yeah, I found that out lateryeah typically the nurse isn't
usually there when I'm hookingyou up, like she comes around,
she sees you at first and thenafter that we take care of you,
and then the nurse comes overand gives you some meds or
whatever.
So, just to clarify, they setyou for three kilos, which is
(18:11):
about six pounds of fluid.
You've never had six pounds offluid on you ever.
I'm just telling you that rightnow.
I know that, I know that you'venever gained that much fluid.
Unfortunately, it is true thatwhen we reset the machine, it
does set at three kilos, butthat would mean that she never
(18:33):
set a goal for you at all.
Okay, and so for her to saythat that was you know that the
machine resets, hey, I get thatthat's an argument, but she
didn't set a goal for you at all, so she never touched that box
where that goal is set.
She left it at three kilos,which is, you know which is
(18:53):
horrible, because you, like Isaid, you don't gain three kilos
in two weeks, and so that's sixtreatments.
So if we were to just thinkabout that, you would gain a
half a kilo every time for sixtreatments to even equal out
three kilos.
Just don't gain like that.
You never have, you never did,yeah.
(19:14):
And so I think sometimes partof the problem just clarify this
part of the problem is is thatthe government tied the fluid to
compensation.
So they set a driveway for youMaybe your dry waste 84.
And every time they get you to84, they get a full payment, and
(19:36):
every time you leave at 85,they don't see.
So that's the problem.
Speaker 3 (19:43):
I was coming in the driveway about 62, 64.
Speaker 4 (19:47):
Mm hmm, and then they would.
They would probably want tolower your dry weight all the
time.
Yes, yeah so if you think it'snot a good.
Speaker 2 (19:58):
Yeah, if you reach 64 tomorrow, we're going to try
for 63.5.
Right.
Speaker 3 (20:02):
Right.
Speaker 2 (20:04):
But that you know.
But your blood pressure is anindication to us whether that's
working or not, and when yourblood pressure is under 100.
I mean, I think sometimes theargument is if you come in in a
wheelchair or you can leaveunder 100.
If you can talk.
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