When Mr. Jeffrey Butler, alongside his son Jerry and their friend Maurice Carlisle, sat down to reflect on their kidney health journeys, they unearthed a wealth of wisdom and warnings that could save lives. Through their stories of managing dialysis and the power of informed choices, our latest episode becomes a beacon of hope and a call to action. These gentlemen share not just the stark reality of kidney failure but also the triumph of turning the tide on diabetes with nothing but dietary diligence and steadfast commitment to health.
In an intimate heart-to-heart, we explore the silent threats of hypertension and diabetes, the culprits often lurking behind kidney disease. The Butler family's relentless advocacy for proper care stands as a testament to the strength found in self-advocacy and community support. This episode isn't just another health podcast; it's an inspirational saga filled with personal struggles, societal challenges during a pandemic, and an unwavering commitment to change the narrative around kidney health—one informed decision at a time. Join us and be part of the conversation that could very well change the course of your health journey.
With hosts Maurice Carlisle and Ira McAliley
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Along with you guys's video as well too.
Speaker 2 (00:02):
So so as we go that love to ask Mr Butler, if you
had Something to say.
The folks that are on dialysisare headed towards that, like,
do you have a nugget or somenuggets that you can just leave
people with?
Speaker 3 (00:19):
Well, you know as.
Speaker 4 (00:23):
Educate yourself yeah .
Speaker 3 (00:24):
I just just educate yourself on dialysis, especially
foods.
What's the foods that you eat?
And Of course, you know whatyou consume in the fluids and
Hopefully, hopefully, that thetax and the nurses that where
(00:47):
you receive us care, or as goodas the tax that I had at the be
the North Ohio Right, especiallyMaurice, correct, you know.
Speaker 4 (01:10):
Oh, I'd love to be.
Speaker 1 (01:28):
I so good reaching out to you and we'll have to
have lunch and everything thisDisease has been going around
(01:53):
over the old light enough.
Yeah, yeah, we get rid of theseviruses and stuff.
Speaker 2 (02:02):
Go ahead.
Speaker 3 (02:03):
Oh yeah, that was another thing with the
transplant that oh yeah forwardmade made it twice as hard for
me and everyone else to that hada transplant during that time.
Now with COVID with COVID, youknow.
Stop it because you know you'renot allowed to see anyone.
He might have to release youfrom the hospital.
Speaker 1 (02:24):
Yeah.
Speaker 3 (02:26):
No, friends, nothing.
Speaker 4 (02:28):
Yeah, I can say, sister, that what they do.
Speaker 3 (02:30):
Yeah yeah, your sister dealt with the same thing
.
Speaker 1 (02:34):
Yeah.
Speaker 2 (02:36):
Yeah, I mean she was in and out of hospital during
COVID just with complicationsfrom her.
You know she had, she had tohave her.
She had to go back on Himo at apoint because her port got
infected, so like yeah, so theyhad to like I think they totally
took it out and then she had togo on Himo for a bit until the
(02:57):
new one, you know like healed,and then it wasn't much after
that, maybe six months out ofthe timeline, but that she
actually got her transplant.
So yeah, but you know itdoesn't, it doesn't matter that
you're almost there, it's likeyou have to take care right.
Speaker 4 (03:16):
What do you guys?
What do you think I mean?
Leading cause of kidney failureis I mean ethnicity,
hypertension, what do you I mean?
Speaker 1 (03:27):
Yeah, I mean dialysis is kidney failure, usually is
blood pressure or diabetes orboth.
Yeah, and they.
Just for what I've seen in mycareer, they just keep changing
positions.
Right, you know, four yearsfrom now it could be diabetes,
four years after that it couldbe high blood pressure.
But they, they are one and two,consistently right, I've been a
(03:49):
technician, so those are thetwo leading causes and you know
those.
Those are issues that don'tshow up until they do.
I mean, you know, most peopledon't know they have high blood
pressure until they get sick.
Most people don't know theyhave diabetes until they get
sick.
Yeah, all the stuff leading upto that.
It's like the silent killer.
Is that silent Issue thatnobody really knows about?
(04:12):
well, it's mostly diet, right?
I mean, yes, nated, and I'lljust.
I'll just speak to mysweetheart here.
She was diagnosed with Diabetesby just going in for a checkup
and she goes every year for acheckup.
This particular she goes in.
They say you got diabetes.
They put on a bunch ofmedication.
Her family doctor did, I think,pretty much the maximum dose of
(04:35):
what she should be taking.
I didn't know why he did that,but she eventually decided that
she didn't want to take allthose meds and she went to a
keto diet and Her doctor sheasked her doctor to see an
endocrinologist, which is aspecialist for Diabetes.
Her doctor questioned it and soshe kind of got in his face and
(04:57):
said hey, that's the specialist.
You didn't go to school to be aspecialist.
You didn't take those six yearsto just treat diabetes patients
.
Give her a little bit morepushback.
And she said you know, I needthat referral.
He referred her to aendocrinologist and, lo and
behold, she was taken off everyone of those medications.
(05:17):
She is no longer diabetic.
Speaker 4 (05:22):
Just follows that?
Yeah, because she follows a lowglycemic index.
Speaker 1 (05:26):
That's right.
So we're basically eatingsugary foods and then trying to
cover them With medication,right, and so I'm gonna get her
on here at some point, ira, andwe're gonna interview her and
talk to her about that, becauseI think it can be very helpful
to other diabetic patients whoare on dialysis.
But she actually does not havea designation anymore of
(05:49):
diabetes.
Her chart doesn't.
Her chart doesn't say thatshe's diabetic anymore.
That is huge, because it wasall diet and exercise.
That's all she did.
She bought a palatine and shewent on a keto diet.
Yeah, you know, it's all.
Speaker 4 (06:07):
They all make a definitive diagnosis With just
lab work, to yes, and they never, they never, ever take a look
at the patient.
And it's you, you know, even indialysis.
You know doctors in and outonce a week, that's it that.
Speaker 1 (06:27):
If only need to see you once a month, right and
seeing you can be, look at yourchart Right, physically be
laying eyes on you, absolutelybecause I've had to holler at
the kidney doctor at night atthe Vita before.
Speaker 3 (06:43):
Like you say, you know what months a week is.
Once a month you might see himgo through.
Yeah, yeah, yeah and then youhad to, you know, get his
attention, you know, to comeover to you.
Speaker 1 (06:56):
Yes.
Speaker 3 (06:57):
He was just gonna walk by and wave.
Speaker 1 (07:00):
Yeah, I remember, I remember telling you, I said
he's here.
Yes, now when he, like I'mtelling, I'm telling mr Buller
said, hey, he's here, you tellhim you don't need to run three
days a week.
And boys I mean and, and Iremember when he left you he
(07:22):
went over to the nurse's stationand one or the girl said, hey,
marisa's telling them that stuff.
Speaker 4 (07:26):
Oh, oh my god.
Speaker 1 (07:29):
I'll never forget it and it was pretty funny.
It was pretty funny and andhe's looking at me like, and you
know, I never spoke to himafter that.
Speaker 3 (07:40):
With you.
Speaker 1 (07:42):
Never spoke to me anymore.
We just never you know.
We just never you know.
We spoke.
I think we said hi and bye orwhatever, but we never had any
any kind of a conversation.
I remember him asking me onetime to.
He said I Was taking, I wastaking care of a patient and I
told him exactly what I wasdoing.
And later that patient went inthe hospital and the family
(08:02):
members Went to see their momand they said that she had too
much fluid and her like she hadfluid in her lungs, and so they
asked the doctor.
They said well, is Moe tryingto kill our mom?
And?
And I don't know what hisspecific answer was, but I don't
think it was good, becauselater he came to me in the
(08:23):
center and you pull me to theside.
He said you can't tell patientswhat you're doing.
And I said, excuse me so.
Yeah, he said you can't betelling patients what you're
doing.
You told that lady you put some, you gave her 200 cc's of fluid
and then she ended up going inthe hospital that weekend.
I said, sir, her blood pressurewas 84 when I gave her that 200
(08:44):
cc's of fluid.
I said I did exactly what I wassupposed to do.
And he said, well, don't tellhim what you're doing.
And I said, sir, I can't, Ican't do that.
Yeah, we agreed to disagree,but those are some of the things
that you know you run into whenyou're a technician.
If you're not a Strongtechnician, you're gonna get ran
(09:04):
right over.
It's like being bullied at highschool.
Yeah, I mean that kid's gonnakeep beating you up until you
put up your fists.
Yeah, if you don't saysomething, you're gonna keep
getting bullied.
Speaker 3 (09:16):
So I just realized something it's the one for you.
I would not have got atransplant as soon as I had it,
because I feel that the vetowanted me the hell out of there
because of the education thatyou gave me.
Speaker 1 (09:31):
Yes, they, they ran me off at you.
They gave you a kidney beforethey ran you off.
They ran us off just to say Ithink we're gonna get you back.
Speaker 4 (09:49):
We're gonna get you back Right.
They had to weigh their optionson that.
Speaker 1 (09:54):
Just get him a kidney man, get him out of our way.
Well, good, that's a good thing.
Speaker 3 (10:01):
That's a good thing, yes, well, it's so good talking
with you we won't take anymoreof you guys's time, but thank
you so much for your time.
Speaker 1 (10:07):
I can't wait to see you and actually shake your hand
and give you absolutely, andwe'll do that again Let me tell
you hi, oh cool.
Yeah, I take care of her nowGood, good, well, tell her, I
said hello.
Speaker 4 (10:26):
Yeah, I was.
Uh, it was, I mean, my pleasureto even be able to speak with
you.
Yes, thanks a lot foreverything you do.
Speaker 2 (10:35):
Yes, thank you, thank you.
Um, just keep you know, we'llall collectively, like now, take
care of you guys, so that arejust being advocates and just
inspiring people to be advocatesfor themselves.
And so you know, just keepspreading the word and and, uh,
mr Butler, just keep beingstrong and being that guy that
(10:56):
won't take crap from anybody.
Speaker 1 (11:00):
That's right.
Speaker 2 (11:01):
That's right.
You know one person at a time.
We're gonna make change, so youknow it's happening and so
thank you for being here, thankyou for the great talk and, um,
we hope to have thisconversation again, because you
know the issues aren't goingaway soon and no, and you're
part of the team and people willstart to know who you are.
(11:24):
You'll become a WD celebrity.
Speaker 1 (11:26):
Right, right, absolutely, absolutely.
Speaker 3 (11:30):
Well, thank you.
Thanks both of you so much.
Appreciate it.
Mo has been so great seeing youagain.
Yes, great seeing you and greatseeing you?
Speaker 1 (11:42):
I hope so, alright.
Speaker 3 (11:43):
I still have a lot more I don't.
I want to talk to you about.
Speaker 1 (11:47):
Okay, we'll get to it .
We'll get to it, okay, well,you guys, hey, thank you Alright
, folks.
Speaker 2 (11:54):
So this is gonna be the end of this episode of
what's the Deal with Dialysis,with Mr Jeffrey Butler and his
son, jerry, and Maurice Carlisleand myself.
We're just gonna say goodbye,have a wonderful day, take care
of your stuff and take care ofyour community and stay safe.
Speaker 1 (12:44):
You.
Along with you guys's video as well too.
Speaker 2 (00:02):
So so as we go that love to ask Mr Butler, if you
had Something to say.
The folks that are on dialysisare headed towards that, like,
do you have a nugget or somenuggets that you can just leave
people with?
Speaker 3 (00:19):
Well, you know as.
Speaker 4 (00:23):
Educate yourself yeah .
Speaker 3 (00:24):
I just just educate yourself on dialysis, especially
foods.
What's the foods that you eat?
And Of course, you know whatyou consume in the fluids and
Hopefully, hopefully, that thetax and the nurses that where
(00:47):
you receive us care, or as goodas the tax that I had at the be
the North Ohio Right, especiallyMaurice, correct, you know.
Speaker 4 (01:10):
Oh, I'd love to be.
Speaker 1 (01:28):
I so good reaching out to you and we'll have to
have lunch and everything thisDisease has been going around
(01:53):
over the old light enough.
Yeah, yeah, we get rid of theseviruses and stuff.
Speaker 2 (02:02):
Go ahead.
Speaker 3 (02:03):
Oh yeah, that was another thing with the
transplant that oh yeah forwardmade made it twice as hard for
me and everyone else to that hada transplant during that time.
Now with COVID with COVID, youknow.
Stop it because you know you'renot allowed to see anyone.
He might have to release youfrom the hospital.
Speaker 1 (02:24):
Yeah.
Speaker 3 (02:26):
No, friends, nothing.
Speaker 4 (02:28):
Yeah, I can say, sister, that what they do.
Speaker 3 (02:30):
Yeah yeah, your sister dealt with the same thing
.
Speaker 1 (02:34):
Yeah.
Speaker 2 (02:36):
Yeah, I mean she was in and out of hospital during
COVID just with complicationsfrom her.
You know she had, she had tohave her.
She had to go back on Himo at apoint because her port got
infected, so like yeah, so theyhad to like I think they totally
took it out and then she had togo on Himo for a bit until the
(02:57):
new one, you know like healed,and then it wasn't much after
that, maybe six months out ofthe timeline, but that she
actually got her transplant.
So yeah, but you know itdoesn't, it doesn't matter that
you're almost there, it's likeyou have to take care right.
Speaker 4 (03:16):
What do you guys?
What do you think I mean?
Leading cause of kidney failureis I mean ethnicity,
hypertension, what do you I mean?
Speaker 1 (03:27):
Yeah, I mean dialysis is kidney failure, usually is
blood pressure or diabetes orboth.
Yeah, and they.
Just for what I've seen in mycareer, they just keep changing
positions.
Right, you know, four yearsfrom now it could be diabetes,
four years after that it couldbe high blood pressure.
But they, they are one and two,consistently right, I've been a
(03:49):
technician, so those are thetwo leading causes and you know
those.
Those are issues that don'tshow up until they do.
I mean, you know, most peopledon't know they have high blood
pressure until they get sick.
Most people don't know theyhave diabetes until they get
sick.
Yeah, all the stuff leading upto that.
It's like the silent killer.
Is that silent Issue thatnobody really knows about?
(04:12):
well, it's mostly diet, right?
I mean, yes, nated, and I'lljust.
I'll just speak to mysweetheart here.
She was diagnosed with Diabetesby just going in for a checkup
and she goes every year for acheckup.
This particular she goes in.
They say you got diabetes.
They put on a bunch ofmedication.
Her family doctor did, I think,pretty much the maximum dose of
(04:35):
what she should be taking.
I didn't know why he did that,but she eventually decided that
she didn't want to take allthose meds and she went to a
keto diet and Her doctor sheasked her doctor to see an
endocrinologist, which is aspecialist for Diabetes.
Her doctor questioned it and soshe kind of got in his face and
(04:57):
said hey, that's the specialist.
You didn't go to school to be aspecialist.
You didn't take those six yearsto just treat diabetes patients
.
Give her a little bit morepushback.
And she said you know, I needthat referral.
He referred her to aendocrinologist and, lo and
behold, she was taken off everyone of those medications.
(05:17):
She is no longer diabetic.
Speaker 4 (05:22):
Just follows that?
Yeah, because she follows a lowglycemic index.
Speaker 1 (05:26):
That's right.
So we're basically eatingsugary foods and then trying to
cover them With medication,right, and so I'm gonna get her
on here at some point, ira, andwe're gonna interview her and
talk to her about that, becauseI think it can be very helpful
to other diabetic patients whoare on dialysis.
But she actually does not havea designation anymore of
(05:49):
diabetes.
Her chart doesn't.
Her chart doesn't say thatshe's diabetic anymore.
That is huge, because it wasall diet and exercise.
That's all she did.
She bought a palatine and shewent on a keto diet.
Yeah, you know, it's all.
Speaker 4 (06:07):
They all make a definitive diagnosis With just
lab work, to yes, and they never, they never, ever take a look
at the patient.
And it's you, you know, even indialysis.
You know doctors in and outonce a week, that's it that.
Speaker 1 (06:27):
If only need to see you once a month, right and
seeing you can be, look at yourchart Right, physically be
laying eyes on you, absolutelybecause I've had to holler at
the kidney doctor at night atthe Vita before.
Speaker 3 (06:43):
Like you say, you know what months a week is.
Once a month you might see himgo through.
Yeah, yeah, yeah and then youhad to, you know, get his
attention, you know, to comeover to you.
Speaker 1 (06:56):
Yes.
Speaker 3 (06:57):
He was just gonna walk by and wave.
Speaker 1 (07:00):
Yeah, I remember, I remember telling you, I said
he's here.
Yes, now when he, like I'mtelling, I'm telling mr Buller
said, hey, he's here, you tellhim you don't need to run three
days a week.
And boys I mean and, and Iremember when he left you he
(07:22):
went over to the nurse's stationand one or the girl said, hey,
marisa's telling them that stuff.
Speaker 4 (07:26):
Oh, oh my god.
Speaker 1 (07:29):
I'll never forget it and it was pretty funny.
It was pretty funny and andhe's looking at me like, and you
know, I never spoke to himafter that.
Speaker 3 (07:40):
With you.
Speaker 1 (07:42):
Never spoke to me anymore.
We just never you know.
We just never you know.
We spoke.
I think we said hi and bye orwhatever, but we never had any
any kind of a conversation.
I remember him asking me onetime to.
He said I Was taking, I wastaking care of a patient and I
told him exactly what I wasdoing.
And later that patient went inthe hospital and the family
(08:02):
members Went to see their momand they said that she had too
much fluid and her like she hadfluid in her lungs, and so they
asked the doctor.
They said well, is Moe tryingto kill our mom?
And?
And I don't know what hisspecific answer was, but I don't
think it was good, becauselater he came to me in the
(08:23):
center and you pull me to theside.
He said you can't tell patientswhat you're doing.
And I said, excuse me so.
Yeah, he said you can't betelling patients what you're
doing.
You told that lady you put some, you gave her 200 cc's of fluid
and then she ended up going inthe hospital that weekend.
I said, sir, her blood pressurewas 84 when I gave her that 200
(08:44):
cc's of fluid.
I said I did exactly what I wassupposed to do.
And he said, well, don't tellhim what you're doing.
And I said, sir, I can't, Ican't do that.
Yeah, we agreed to disagree,but those are some of the things
that you know you run into whenyou're a technician.
If you're not a Strongtechnician, you're gonna get ran
(09:04):
right over.
It's like being bullied at highschool.
Yeah, I mean that kid's gonnakeep beating you up until you
put up your fists.
Yeah, if you don't saysomething, you're gonna keep
getting bullied.
Speaker 3 (09:16):
So I just realized something it's the one for you.
I would not have got atransplant as soon as I had it,
because I feel that the vetowanted me the hell out of there
because of the education thatyou gave me.
Speaker 1 (09:31):
Yes, they, they ran me off at you.
They gave you a kidney beforethey ran you off.
They ran us off just to say Ithink we're gonna get you back.
Speaker 4 (09:49):
We're gonna get you back Right.
They had to weigh their optionson that.
Speaker 1 (09:54):
Just get him a kidney man, get him out of our way.
Well, good, that's a good thing.
Speaker 3 (10:01):
That's a good thing, yes, well, it's so good talking
with you we won't take anymoreof you guys's time, but thank
you so much for your time.
Speaker 1 (10:07):
I can't wait to see you and actually shake your hand
and give you absolutely, andwe'll do that again Let me tell
you hi, oh cool.
Yeah, I take care of her nowGood, good, well, tell her, I
said hello.
Speaker 4 (10:26):
Yeah, I was.
Uh, it was, I mean, my pleasureto even be able to speak with
you.
Yes, thanks a lot foreverything you do.
Speaker 2 (10:35):
Yes, thank you, thank you.
Um, just keep you know, we'llall collectively, like now, take
care of you guys, so that arejust being advocates and just
inspiring people to be advocatesfor themselves.
And so you know, just keepspreading the word and and, uh,
mr Butler, just keep beingstrong and being that guy that
(10:56):
won't take crap from anybody.
Speaker 1 (11:00):
That's right.
Speaker 2 (11:01):
That's right.
You know one person at a time.
We're gonna make change, so youknow it's happening and so
thank you for being here, thankyou for the great talk and, um,
we hope to have thisconversation again, because you
know the issues aren't goingaway soon and no, and you're
part of the team and people willstart to know who you are.
(11:24):
You'll become a WD celebrity.
Speaker 1 (11:26):
Right, right, absolutely, absolutely.
Speaker 3 (11:30):
Well, thank you.
Thanks both of you so much.
Appreciate it.
Mo has been so great seeing youagain.
Yes, great seeing you and greatseeing you?
Speaker 1 (11:42):
I hope so, alright.
Speaker 3 (11:43):
I still have a lot more I don't.
I want to talk to you about.
Speaker 1 (11:47):
Okay, we'll get to it .
We'll get to it, okay, well,you guys, hey, thank you Alright
, folks.
Speaker 2 (11:54):
So this is gonna be the end of this episode of
what's the Deal with Dialysis,with Mr Jeffrey Butler and his
son, jerry, and Maurice Carlisleand myself.
We're just gonna say goodbye,have a wonderful day, take care
of your stuff and take care ofyour community and stay safe.
Speaker 1 (12:44):
You.
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