Episode Transcript
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Speaker 1 (00:25):
What's up, beautiful
people, I'm Aaron McLaughlin,
here for another edition ofwhat's the Deal with Dialysis,
where we talk about issuesaround kidney dialysis and just
the kidney dialysis industry.
And today we're talking onceagain Maurice Carlile, who is
(00:46):
our technician and the creatorof this whole concept, and if
you've been on here before, youknow that Maurice is in Ohio and
he has been a technician foryears and found that there were
some things in the system thathe wasn't really, you know,
really vibing on.
(01:07):
So he wanted to, you know,share education, share issues,
and so we're starting to haveconversations.
And today we're bringing backsomebody that we talked to years
ago, mr Al Fila, and he's got astory, and so since the last
time I talked to you, al,there's been a lot going on.
(01:27):
So, just to let the people knowwho you are, first of all, give
us like kind of a kind of abrief history of who you are,
where you're from, and then,like just the first time, like
when I met you, you had gotten atransplant, but you had told me
about how you came to find outthat you had kidney failure, and
(01:48):
so give us that part and thenwe'll continue from there.
Speaker 2 (01:52):
So the way everything
started, for me it's kind of
like a.
It's like a street fairytalemeets Jesus Christ in the prison
system.
Slash three kidney transplantslater.
Here we are right, but itstarted out and those little
rambushes in the streets.
I grew up in a place called theInland Empire, like the Inland
(02:14):
region of California, and youknow I caught myself gang
banging and drug dealing and thethings that a lot of us kids do
in poverty when we try to, youknow, make a way for ourselves
with no roadmap or noinstructions or no father figure
and things of that nature,right?
So I ended up getting startedin my back and after I started
(02:34):
getting real sick, like alwaysvomiting, having headaches, high
temperatures and figures, andat that time I was 17 years old.
So when I went to the doctor,the doctor told me I needed to
go on dialysis.
So I never really went back tothe doctor because I assumed in
my young mind that dialysis waslike yeah, so I was like I got
to go back to the doctor, getthis prescription I needed, you
(02:54):
know, do it, but when I get timeright.
So subsequently, like I said, Iwasn't having all of these
issues, you know, with you know,being a good guy at heart but
doing, you know, street thingsand being young, you know what
off the father figure.
I found myself in prison at 18.
So when I went to prison iswhen I really kind of knew what
(03:17):
dialysis was and got anunderstanding of it.
That's why I started dialysisside of genome prison in 1990, I
told so once I started dialysis.
My first round with it was moreor less like it was like a whole
change of lifestyle.
You know, it was almost like Ididn't want to believe it.
I looked at it from like avanity point of view, like like
(03:40):
I thought I was a pretty youngdude, you know.
And it's like now y'all,starting with my arms, you put
in these, these tubes in my arm,now got all these tracks on my
arm, you know, and I didn't evenhave to answer as well was
going on and then my friends wasasking me like what's wrong
with your arms?
You got all this, you knowdifferent things in your chest.
Like you know, it was more likea confusing type of situation
because it was totally abnormalfrom what was my normal and so
(04:06):
just to move a little further,so I ended up doing like four
years in prison on dollars andas time progressed I started to
look at dialysis like a wind,because after the shock kind of
wore off, of like having theseneedles in my arm and needing
the machine stay alive and kindof feeling that anxiety every
night kind of society and I wasthinking that it is a win
(04:29):
because it got me out of prisonevery other day.
Back in the 90s they would takeus to dollars units because they
didn't have them inside theprison at that point and so I
started meeting people.
You know a lot of good people.
You know like Marie's, likeyourself, and they would just
tell me like, do this, this iswhat you could do for your diet.
You know, try to keep yourselfdown in the pool, won't be so
(04:50):
hard and you won't feel sofatigued, you know.
And I just started learning.
You know that was like thestart of my kind of accepting
and learning more about it andthat was kind of like the
beginning of my dollars journeyright there in the next year.
Speaker 1 (05:07):
Great that's, I mean
number one.
It's an amazing story.
First of all, you got shot andthat you were in jail and you
know, just not having theinformation and that's something
that we come up against all thetime as we have these
conversations and part of thedrive here is because you had no
idea what was going on with you, like you had nobody telling
(05:28):
you for a while, it seems likeright, and nobody around me what
that was right, and so you knowthat's what we're trying to do,
is educate.
So tell me about you knowyou're in jail, you're going
through dialysis, tell me aboutthe journey to your first kidney
transplant.
Speaker 2 (05:46):
Okay, so what
happened?
I got out of jail June 25, 1995, it was Mac dab.
In the summer I had been injail since 1990, october 14.
And this is where the God partcomes in.
And I was just praying becauseI was just like, at this point I
was more educated.
You know, having working out inprison, I had got used to being
(06:09):
on dialysis and now it wasactually looking forward to the
transplant because I had did,you know, some, some research
and I started finding out aboutthe little procurement process
and all the little entities thatwere involved.
You know, as far as trying toget a transplant, how to get on
the waiting list, and whileyou're in prison you can't get
on the waiting list.
So I felt like not only was Igetting released from prison, I
(06:30):
wasn't getting released to theopportunity of actually being
able to get on this list that Ikept hearing about, right?
So I got on the list and itdidn't seem like nothing was
really happening in.
The year went by, another yearwent by and I just kept praying.
I just kept praying.
At this time I was going tochurch like really heavy, going
to Bible studies and Wednesdaynight churches.
On Sunday, then it touched withmy brothers and I was like we
(06:52):
can just stay faithful, you know, to the work and I felt like
the spirit kept telling meyou're going to get a kidney,
like against all the odds.
You know, you hear about theseven year waiting list.
You hear about people dying ondialysis.
You hear about, you know,people becoming diabetic or,
vice versa, diabetes becoming,you know, dialysis patients.
Just all this stuff comingthrough the filter my young mind
(07:14):
I was 25 at the time but thisis what happened.
My wife was a dialysistechnician.
She was a dialysis technician.
She just stopped, maybe sevenyears ago, and she started doing
foster care.
But she was a dialysistechnician for like 25 years and
she was working at a hospitalin San Bernardino, california,
called St Bernardino MedicalCenter.
(07:36):
And it just so happened.
This is how God linedeverything up.
It just so happened that it wasa transplant.
I don't know what they call itat the time, if it was like a
transplant team.
I know it was definitely adialysis center, but they had
her actually go upstairs totheir transplant department.
That's what it was samebrandings.
(07:57):
She just gave blood one day andshe didn't even tell me she was
just like you know.
They told me that I possiblycould be a donor.
But it's all about you know theblood and antigens and how
things match up and blood sizeetc.
So she just caught me on thephone one day and she said hey,
you won't believe this.
I said what she said on mylunch break, you know.
A couple weeks back, whatever,I went upstairs and they tested
(08:18):
me out and they said I met you,I can give you a kidney.
I'm like no way.
She's like yeah, they said Ican give you a kidney.
So to speed up, two more yearsnow we in 1998.
And my wife she gave me myfirst kidney transplant.
Wow, yeah, yeah, my wife gaveme my first.
And we still together today.
We've been together 34 years.
Speaker 3 (08:41):
Man, that's awesome
man.
Speaker 1 (08:43):
You don't look like
it's three years old dude, I
just turned 50.
Speaker 2 (08:46):
I just turned 50 last
month, March 4th.
Speaker 3 (08:49):
Congratulations man,
Thank you my brother.
Speaker 2 (08:52):
Thank you, my brother
.
Speaker 1 (08:53):
So really quickly,
like just speak to.
Like that process I mean you'reused to, you know people that
are in Dallas is for a long timelike how rare, is that what
he's talking about?
Speaker 3 (09:04):
Yeah, very rare.
I mean they are getting betterat matching people, but I mean
the process is just strung outlike over years.
Man, it's a blessing that youhave somebody get tested,
because basically most of thetime they just wait, just wait
to see if somebody matches withyou.
A lot of times people areasking family members and stuff
(09:27):
now, and that's a common thingnow.
A lot of times they don't matchup or there's other things in
the way.
Speaker 1 (09:34):
Man.
So, all right, you get one.
Right.
Most people wait a long time toget one yeah, eight years.
So how did it come Like firstof all, how did like what
happened that made you need toget a second one?
And then how did?
What was that process like?
Speaker 2 (09:54):
Well, I found out
that what happened during the
course of me getting shot,subsequently going to jail, all
kind of simultaneously, withinlike six, seven months, that I
had something called polycystickidney disease and it's just a
slow deterioration of yourkidneys that my dad I didn't
mention.
My dad was on kidney dialysiswhen he passed away.
(10:14):
So they said usually a skips ageneration, but it didn't.
It went from him and I had itright.
So I don't know if me gettingshot sped up the process,
because I did have acute failurebecause of getting shot, but
they never, ever kicked back in.
But they, they you know howthey do biopsies and tissues
research they said it wasbecause of the polycystic kidney
(10:36):
disease.
So that was kind of likesomething that probably was
going to happen to me later downthe line.
But I think that my incidentgetting shot kind of sped it up
and that's kind of how I endedup on the dialysis machine and
then I got the transplant frommy wife in 1998.
That was my very firsttransplant that I had and that
(10:58):
transplant lasted me all the way.
I remember I went back ondialysis 2007, march 12th,
because I remember they wantedto put me on my birthday week
and they said no, I will giveyou seven more days.
So I went on that next.
I think it was a Monday likeMarch 12th, and that was I was
back on dialysis again becausethat, that, that kidney.
(11:19):
It only lasted like eight years, nine years, and they just kept
looking at the labs and theywere like your crack is getting
high and be you in and all thisstuff is out of, out of whack.
We see you having, you know,seven, eight more months with
this kid, you know.
And back then this was so earlyin dialysis that they weren't
doing a lot of things Like theydo now, like I'm right now.
(11:41):
I'm on a bunch of steroids andI'm on some medicine called the
lightest set, some fusion saucecalled plasma Bob, they didn't
have all of these things to tryto say kidneys.
It was almost like look at thelabs, labs say that the kidneys
failing.
We give you eight months, right?
So that was my first situationUm, getting the kidney, the
(12:03):
kidney failing, in 2007.
Went back on dialysis for thesecond time March 12, 2007.
And I stayed on dialysis allthe way until October 2016.
That's when I got my secondkidney transplant and UC Irvine.
Now this is where the story getsinterest.
Usually, when you have a kidneytransplant, you have and you
(12:29):
develop high antibodies.
It's like a country that usedto have in wars, that second,
that third war, they're more warready.
So they kind of standing on thefront line, their soldiers
right, and that's how yourantibodies do.
Once your body has been invadedby transplant, like any kind of
organ transplant, you havethese high antibodies in your
(12:49):
body.
That's just going to rejectanything, putting your body at
this point at like a veryprogressive level.
So in 2016 in October, when Iwent to a university Irvine
Medical Center to get my secondtransplant, they've seen that
the antibodies were high but thetransplant had came like so
(13:13):
fast.
I had just started going tothis nephrologist.
They were working me up.
They were just putting me backon the transplant list because
at this time I didn't have adonor.
I didn't have another donor, soI imagined they thought like I
thought that it would be sometime, but the kidney came up
like nine months.
So they called me and we werekind of in a predicament and the
(13:34):
predicament was, when you havethese anti-bodies, you should go
through a process ofdesensitization, and the way
they do that is they do itthrough something called plasma
pharesis.
They use this thing called IVIGintravenous immunogoblins, which
are basically likeimmunosuppressants to suppress
your antibodies, and plasmapharesis is almost like they
(13:56):
take some of your plasma out andthey take the antibodies out
and they give it back to youlike dialysis.
But it's called plasma pharesisand basically what they're
doing when they transplant youthey wanna have your antibodies
at an all-time low.
Being that the kidney was there, it was ready and they said
listen, we got a kidney matchfor you.
It just came up.
(14:16):
By the grace of God.
Do you wanna transplant?
We don't have time to do thedesensitization because that
takes like three to four weeksor even longer depending on how
your antibodies react.
So we all agreed let's do thetransplant.
So we subsequently did thetransplant.
The transplant worked for maybefour months and it rejected All
(14:37):
right, we'll see you next time.