Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 2 (00:12):
So, in my main artery .
(00:38):
So they put two stents in thereand then two weeks later I had
a boom car accident.
It moved the stent.
I ended up back in the hospitalgetting another stent in there
with more dialysis because theydid the angiogram.
So that's the second time I hadangiogram and my kidney still
functioning, and now theynoticed that my aorta valve was
slowly calcifying and closing,and closing.
(01:02):
And then they said you know,we've got know, we've got to do
an open heart surgery on you.
And I don't know why, but everybone in my body quivered at the
sound and thought of open heartsurgery because I've had
lifelong diabetes.
I'm very frail.
I tell people that look at meand my life condition.
(01:24):
Don't judge me by my lifecondition and how young I look,
because on the inside it's adifferent story and doctors are
like all right, you're too young.
So I researched online.
I found this doctor that was inclinical trials.
He said wait one more year andit could possibly open to
(01:46):
everybody.
So I waited another year andthen he says well, you're too
young, most of our patients are80, you know that can't handle
an open heart surgery.
I'm like I don't think I canhandle an open heart surgery
because of all the complicationsand the infections and the
diabetes alone means you healfour times slower than a normal
(02:07):
person.
So anyway, long story short,they got me in and they go the
same way.
They put a stent in your artery, they put a valve inside my old
valve.
They had to use dye againinside my old valve.
(02:31):
They had to use dye again andagain I had.
So I had a total of I don'tknow four or five incidents of
that toxic dye put in me and theand the you know temporary
dialysis in my neck to take itout.
And so my you know my kidneywent through a lot and still
works, and it did get to thepoint where they wanted me to go
on diet.
Well, actually they wanted meon dialysis because they thought
(02:52):
I was going to have an openheart surgery.
So I decided to have and they,I researched both kinds of
dialysis and all the doctorswere telling me now do the
hemodialysis.
And I found this one doctor whosays you know, the peritoneal
dialysis is, it's easier, youknow less infections and it's
(03:15):
not blood.
You know they don't take yourblood.
I said, well, what do they take?
And he explains they put, youknow they put there's's a cavity
peritoneal in your stomach andhe said it fills it up with a
type of sugar water and it sitsthere and dwells and it pulls
(03:35):
from your intestines all thetoxins and um, and then it
drains it out of you and then itfills you back up.
So there's like five or sixcycles during the night of this
procedure and I'm like, oh, andthen I found out that I have to
eat protein because at the timeI was vegetarian.
Speaker 1 (03:56):
So I'm like yay, protein, how good.
Speaker 2 (04:00):
And then I didn't have to stop eating potassium,
which meant I could have myavocados and bananas and
tomatoes, so I went straight forit.
Speaker 3 (04:10):
Really quickly tell me what is the hemodialysis.
What is it that you would havehad to do if you weren't doing
the peritoneal?
Speaker 2 (04:19):
Hemodialysis is a not-at-home procedure.
You can't do it yourself.
The person has to be licensedand certified like a nurse and
it's done at these clinics andthey put a stent up your arm
which you have to have donethree months before.
(04:42):
It takes three months to healand graft.
I don't know and, but, being adiabetic, anything blood related
, like a sore.
It takes so long to heal.
And then I've seen people whenthis one collapsed they have to
go to another one, and thenthere's one in the leg and I'm
like one in the chest.
(05:03):
I'm like, oh no, you know, Iwant to stay away from hospitals
and doctors.
So I you know, and then theonly trouble there is with
peritoneal is that you can getan infection in your peritonitis
it's called peritonitis, andthat takes like almost a year to
(05:25):
heal and I would have to go tohemodialysis in the meanwhile.
So I'm trying to stay.
You know, when I show you, whenI hook up and everything, it's
going to be a sterile, um, umenvironment right.
Speaker 3 (05:40):
Um, that's all great stuff.
Hold on, just let me just lookat my hand.
So you had mentioned um thatyour boyfriend then become
husband was willing to give youa kidney.
Um, have you?
(06:02):
Are you in line for a kidneytransplant, or is that something
that happened?
What was the process there?
What, how did that work?
Speaker 2 (06:08):
well, um, when my husband said he would that work
well, um, when my husband saidhe would give me uh, offer me
one of his kidneys, I did theagain.
I went through the procedure ofthe checkoff list to get all
the tests done, because it hadbeen a couple years because of
the heart procedure I had tostop for.
So now that I got the, theclearance on the heart and the
clearance on everything, um, theonly thing I had left to do was
(06:33):
teeth, and no one told me this,but someone I can't remember,
some non related doctor told meoh, you know, you shouldn't have
any work done on your teethafter this procedure.
Show, get it done now.
So I'm'm like, oh, thank youvery much.
So I did have a cracked toothand they I got it repaired, and
(06:56):
then I went on the list for theNational Kidney Association, and
so my husband had to fill outthis long questionnaire from
Cedars, and since he has aproblem where he's taking pain
medication, they said would hebe willing to take another type
(07:18):
of medication or none at all?
And so he just got a clearancefrom his doctor that he doesn't
need any more pain medication.
So he's going to continue withthe process of a living donor
now, uh, currently I'm on thelist for a double transplant,
(07:40):
which is kidney and pancreas.
So the whole reason I havekidney disease is because of
diabetes and if I get a newpancre, I get rid of diabetes
and get rid of kidney diseaseand that'll be the end of that
it's.
The only problem is I'll be onlifelong immune suppressant
(08:01):
drugs.
I've currently researched howto get a kidney and not be on
lifelong medication, and they'redoing a clinical trial in
Massachusetts where they takeand it's not a full-on
transplant of bone marrow, it'sa partial transplant.
(08:24):
So I guess a full-on transplantcould take a year of bone
marrow.
But they take the bone marrowfrom the living donor, they
culture it, they put it into theperson that's going to receive
it and for a year their bodygoes through transformation and
it turns into whatever bloodtype and tissue type the donor
(08:49):
is and then they won't need theimmune suppressant drugs anymore
because their body has becomethe recipient I mean the donors.
So if that's the case, if thatbecomes out there, I'm going to
consider that highly and dealwith diabetes.
(09:11):
I'm going to consider thathighly and deal with diabetes,
maybe with stem cells.
You know, across that bridgesoon.
But you know we'll see whathappens first.
Great.
Great stuff, let's see how hasyour life changed, your
(10:03):
day-to-day?
Speaker 1 (10:04):
change from before you had to do your dialysis at
home.
You know, like in terms of yourwork and like how has it
affected your life, and alsolike your husband.
Well, dialysis has affected mylife in.
Thank you.
So, in my main artery .
(00:38):
So they put two stents in thereand then two weeks later I had
a boom car accident.
It moved the stent.
I ended up back in the hospitalgetting another stent in there
with more dialysis because theydid the angiogram.
So that's the second time I hadangiogram and my kidney still
functioning, and now theynoticed that my aorta valve was
slowly calcifying and closing,and closing.
(01:02):
And then they said you know,we've got know, we've got to do
an open heart surgery on you.
And I don't know why, but everybone in my body quivered at the
sound and thought of open heartsurgery because I've had
lifelong diabetes.
I'm very frail.
I tell people that look at meand my life condition.
(01:24):
Don't judge me by my lifecondition and how young I look,
because on the inside it's adifferent story and doctors are
like all right, you're too young.
So I researched online.
I found this doctor that was inclinical trials.
He said wait one more year andit could possibly open to
(01:46):
everybody.
So I waited another year andthen he says well, you're too
young, most of our patients are80, you know that can't handle
an open heart surgery.
I'm like I don't think I canhandle an open heart surgery
because of all the complicationsand the infections and the
diabetes alone means you healfour times slower than a normal
(02:07):
person.
So anyway, long story short,they got me in and they go the
same way.
They put a stent in your artery, they put a valve inside my old
valve.
They had to use dye againinside my old valve.
(02:31):
They had to use dye again andagain I had.
So I had a total of I don'tknow four or five incidents of
that toxic dye put in me and theand the you know temporary
dialysis in my neck to take itout.
And so my you know my kidneywent through a lot and still
works, and it did get to thepoint where they wanted me to go
on diet.
Well, actually they wanted meon dialysis because they thought
(02:52):
I was going to have an openheart surgery.
So I decided to have and they,I researched both kinds of
dialysis and all the doctorswere telling me now do the
hemodialysis.
And I found this one doctor whosays you know, the peritoneal
dialysis is, it's easier, youknow less infections and it's
(03:15):
not blood.
You know they don't take yourblood.
I said, well, what do they take?
And he explains they put, youknow they put there's's a cavity
peritoneal in your stomach andhe said it fills it up with a
type of sugar water and it sitsthere and dwells and it pulls
(03:35):
from your intestines all thetoxins and um, and then it
drains it out of you and then itfills you back up.
So there's like five or sixcycles during the night of this
procedure and I'm like, oh, andthen I found out that I have to
eat protein because at the timeI was vegetarian.
Speaker 1 (03:56):
So I'm like yay, protein, how good.
Speaker 2 (04:00):
And then I didn't have to stop eating potassium,
which meant I could have myavocados and bananas and
tomatoes, so I went straight forit.
Speaker 3 (04:10):
Really quickly tell me what is the hemodialysis.
What is it that you would havehad to do if you weren't doing
the peritoneal?
Speaker 2 (04:19):
Hemodialysis is a not-at-home procedure.
You can't do it yourself.
The person has to be licensedand certified like a nurse and
it's done at these clinics andthey put a stent up your arm
which you have to have donethree months before.
(04:42):
It takes three months to healand graft.
I don't know and, but, being adiabetic, anything blood related
, like a sore.
It takes so long to heal.
And then I've seen people whenthis one collapsed they have to
go to another one, and thenthere's one in the leg and I'm
like one in the chest.
(05:03):
I'm like, oh no, you know, Iwant to stay away from hospitals
and doctors.
So I you know, and then theonly trouble there is with
peritoneal is that you can getan infection in your peritonitis
it's called peritonitis, andthat takes like almost a year to
(05:25):
heal and I would have to go tohemodialysis in the meanwhile.
So I'm trying to stay.
You know, when I show you, whenI hook up and everything, it's
going to be a sterile, um, umenvironment right.
Speaker 3 (05:40):
Um, that's all great stuff.
Hold on, just let me just lookat my hand.
So you had mentioned um thatyour boyfriend then become
husband was willing to give youa kidney.
Um, have you?
(06:02):
Are you in line for a kidneytransplant, or is that something
that happened?
What was the process there?
What, how did that work?
Speaker 2 (06:08):
well, um, when my husband said he would that work
well, um, when my husband saidhe would give me uh, offer me
one of his kidneys, I did theagain.
I went through the procedure ofthe checkoff list to get all
the tests done, because it hadbeen a couple years because of
the heart procedure I had tostop for.
So now that I got the, theclearance on the heart and the
clearance on everything, um, theonly thing I had left to do was
(06:33):
teeth, and no one told me this,but someone I can't remember,
some non related doctor told meoh, you know, you shouldn't have
any work done on your teethafter this procedure.
Show, get it done now.
So I'm'm like, oh, thank youvery much.
So I did have a cracked toothand they I got it repaired, and
(06:56):
then I went on the list for theNational Kidney Association, and
so my husband had to fill outthis long questionnaire from
Cedars, and since he has aproblem where he's taking pain
medication, they said would hebe willing to take another type
(07:18):
of medication or none at all?
And so he just got a clearancefrom his doctor that he doesn't
need any more pain medication.
So he's going to continue withthe process of a living donor
now, uh, currently I'm on thelist for a double transplant,
(07:40):
which is kidney and pancreas.
So the whole reason I havekidney disease is because of
diabetes and if I get a newpancre, I get rid of diabetes
and get rid of kidney diseaseand that'll be the end of that
it's.
The only problem is I'll be onlifelong immune suppressant
(08:01):
drugs.
I've currently researched howto get a kidney and not be on
lifelong medication, and they'redoing a clinical trial in
Massachusetts where they takeand it's not a full-on
transplant of bone marrow, it'sa partial transplant.
(08:24):
So I guess a full-on transplantcould take a year of bone
marrow.
But they take the bone marrowfrom the living donor, they
culture it, they put it into theperson that's going to receive
it and for a year their bodygoes through transformation and
it turns into whatever bloodtype and tissue type the donor
(08:49):
is and then they won't need theimmune suppressant drugs anymore
because their body has becomethe recipient I mean the donors.
So if that's the case, if thatbecomes out there, I'm going to
consider that highly and dealwith diabetes.
(09:11):
I'm going to consider thathighly and deal with diabetes,
maybe with stem cells.
You know, across that bridgesoon.
But you know we'll see whathappens first.
Great.
Great stuff, let's see how hasyour life changed, your
(10:03):
day-to-day?
Speaker 1 (10:04):
change from before you had to do your dialysis at
home.
You know, like in terms of yourwork and like how has it
affected your life, and alsolike your husband.
Well, dialysis has affected mylife in.
Thank you.
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