October 8, 2025 • 24 mins
Saying My Age — Conversation With My Brain — Mortal Husk (Canto XIII) — Fell Against The House — A Place For Us, By Us — Argumentative Life — New Hope For Patients With MS and Other Neurological Disorders — My Son's Resolution
Shout outs
To Rocky, Sandman, Jersey Girl
A Place For Us, By Us
‘A Place for Us, By Us’: San Francisco’s Disability Cultural Center Breaks New Ground
KQED Story about a first-in-the-nation disability community center in San Francisco, featuring Deborah Kaplan, Alice Wong, and others.
New Hope
Crossing the blood-brain barrier
Wheelchair Breakdown
My son's resolution for a perfect world
This Week's Selfie
"New Hope For Argumentative Life" Selfie
00:00:11 - Saying My Age
00:01:39 - Conversation With My Brain
00:02:36 - Mortal Husk (Canto XIII)
00:04:44 - Fell Against The House
00:06:40 - Shoutouts
00:07:34 - "A Place For Us, By Us" KQED Story
00:13:07 - Argumentative Life
00:14:47 - New Hope For Patients With MS and Other Neurological Disorders
00:22:10 - My Son's Resolution
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
Check. Check. Check.
Got it. Okay.
You are tuned in to What's the Matter
with Me podcast
of John.
Super old. I'm
I'm 46
years old.
My god.
Sometimes
(00:21):
it's hard that I
that I started off with my age like
that. It's kinda
it's kinda shocking.
It's like
when you're driving
in the car and you go past
an accident
with like foam and they're putting out a
(00:42):
fire. And you're just like, oh look at
that, you know. And when you say your
age, you're like, woah.
Like there could be a YouTube
supercut
of senior citizens
or anyone 30
(01:02):
saying their age.
Just supercut.
I'm
this many years old.
Do that. That's a vibe. A drone.
A vibe.
It's What's the Matter With Me podcast.
My name is John. I'm 46
(01:22):
years
old.
That is rough.
It blanks
the mind when you say your age and
it's like a really high number.
It like obliterates
everything else. It's like
your your brain says back to you when
(01:42):
you say your age. Your brain is like
getting you back. It blanks on you because
it's like, how dare you
say how old I am.
I'm your brain. I've been here the the
whole time.
I haven't taken a second
off. I'm your brain.
(02:03):
I've been through
everything
you've been through.
I'm stuck in your head. You you like
to get out of your head,
but I there's I have no such luck.
It would be interesting to have a conversation
with your brain.
(02:24):
I wonder how it would feel.
I hope not resentful.
Why resentful?
It's like,
what have you done with your brain?
What have you done with your, what did
they call that? Like your bodily
husk?
Your
mortal,
(02:44):
your mortal husk.
Okay, I'll settle for that because
I can't remember what they call,
a bodily
is it called the mortal husk? I don't
know. That doesn't sound right. Hold on.
So in Dante's
(03:04):
Inferno,
the mortal husk
refers to the human body
that the souls of the suicides
cast off
when they took their own lives.
As a punishment
for rejecting
the body,
They are transformed
(03:24):
into gnarled,
thorny trees and bushes
in the wood of the suicides.
This appears
in the second ring of the seventh
circle of hell
in canto eight of the Divine Comedy
by Dante.
(03:45):
The trees can only speak and weep blood
when one of their branches
is broken.
They are tormented by the harpies,
monstrous
birds with the faces of women
who tear their leaves.
On judgment day, while other souls will be
(04:07):
reunited
with their body, the suicide's
physical
bodies
will be hung from their own
branches,
eternally
separated,
but also a constant
reminder of their sin.
Kinda horror sounds dramatic.
(04:27):
It's with Dante.
That's an AI overview of Dante,
so
I'm not even diving deeper there. But that's
a mortal husk in the divine comedy, the
inferno.
I I fell,
on my butt
(04:48):
in
the laundry room right outside
my room
at night
again,
and I, like,
broke my rib again.
It's, like, really sucks.
So it like, a lot's going down. My
body
(05:09):
at that in that area, the laundry room,
it used to actually
be
the garage
was one house, and then
the the house the bedroom,
the where you live was like another house.
And
in the eighty's, I think they combined them
(05:30):
into one house. That's where we live now.
But the laundry room used to be like
the breezeway
between the two houses.
So
it's like exterior
walls.
So I fell and it hit my back
against the corner,
(05:51):
the wall, but it was like the corner
of the old house.
It was very solid and
it hurt. And it still,
you know, it definitely
kinda hurts. I'm past the stage where
it like hurts to cough or
any of that, but it's like achy.
(06:14):
I took an Ibuprofen
this morning and a Tylenol
at lunch.
So I'm getting over it. I'm living. It's
not bad.
But I fell and broke my rib again.
So I'm just trying to get it together
man and string these rehabs
(06:35):
together
and try and get back into one piece.
I wanted to give some shout outs real
quick.
Wanna give a shout out to Rocky,
shout outs to Matt,
shout outs to my empress, Nami, the one
called John John Little Coco. I see that
(06:57):
word.
Shout out to
The Sandman.
Been checking that out on the radio. Feeling
I've been The Sandman is good. He's on
KFJC
from Saturday
six to 9AM.
They call him Jeremiah
(07:17):
Johnson,
goes by the name.
So we listen to that. Sometimes he gives
me a shout out on the air, so
I gotta return the favor.
Shoutouts
to Jersey
Girl. She wrote in
Jersey Girl, she's a KFJCDJ.
(07:38):
She sent me,
a couple weeks ago, she sent me an
article,
that they
ran on KQED,
which is a TV station and
the NPR
affiliate
and
PBS.
So it's headlined,
(08:00):
it's by Sydney Johnson,
date 08/25/2025,
a place for us by us,
San Francisco's
Disability
Cultural Center breaks new ground.
Nearly
(08:21):
five decades ago, frustration
over the government's
lack of urgency
to make public
buildings more accessible
reached a flashpoint.
It was April
1977
and more than a 100 disabled
protesters
(08:42):
staged a nearly
month long sit in at a federal building
in San Francisco's
UN Plaza.
After a twenty six days
support from groups like Black Panthers
and allies like George Moscone,
(09:02):
the activist
successfully
convinced the country's secretary
of health,
education, and welfare
to implement
the long delayed section
five zero four
of the Rehabilitation
Act
that had been passed in 1973.
(09:23):
That law prohibits
discrimination
based on disability
in programs
that receive
federal financial
aid.
The protest
became
recognized as the five zero four
sit in
and paved the way for the Americans with
(09:44):
Disabilities
Act
more than a decade later.
This summer,
the city moved the legacy
forward,
opening the nation's first disability
cultural center
located directly
across from San Francisco
(10:04):
City Hall.
It took a while to start to see
things
change but the ADA
ushered in new building standards.
New buildings had to be accessible
in very specific
ways,
said Deborah Kaplan, Deputy
(10:26):
Director at San Francisco's
Office on Disability
and accessibility.
The five zero four sit in protest sprouted
up in cities across the country in 1977
and Kaplan
participated
in Washington,
D. C. All of a sudden, I could
(10:48):
go places,
not enough to scope it out in advance
and worry there was no way in or
worry that I couldn't use the bathroom for
new places.
Kaplan said a progress that have has followed
in the decades since.
(11:08):
Activists
like Kaplan have pushed San Francisco
and the nation
to raise accessibility
standards for decades.
Having this space of belonging,
celebrating
disabled joy, and having the disability
community
(11:28):
seen
right across from City Hall.
It's so incredibly
unique and powerful,
said Eli Gellard,
director
of the city's
office on disability
and accessibility.
And today it's bustling
classes
(11:49):
and film festivals,
a cool article
on the disability,
the Disability
Cultural Center in San Francisco.
The center is on the Ground Floor of
the Kelsey Civic Center
in San Francisco.
(12:10):
Thanks to Jersey Girl for sending that in
massive
shout outs. It's fundraiser
right now on KFJC
and often time in the month of October.
And I've been hearing a lot of great
production
spots and they have a
(12:31):
really good one.
Jersey girl and max level, they kinda ad
lib, and it's something to look forward to.
Always
enjoyable,
always coming through.
A sure shot. If you tune into KFJC
right now,
you probably hear it. It's all the good
(12:53):
stuff. Kfjc.0rg.
Donate .kfjc.0rg
is how you donate.
Now I'm not really trying to push you
around, but I wear the shirts
because,
I I think it's polite to wear a
shirt,
and they're good for that. You put it
(13:15):
on, no one's gonna bother you
about not wearing a shirt. No one's gonna
be like, hey. Put your shirt on. You're
gonna be like, yeah. I got one. Hey.
Put a shirt on. That makes it seem
like it's more argumentative
outside in my life than it needs to
be. It's not like that.
(13:37):
I usually have a shirt on. People don't
yell. Even if I didn't though,
they would be like,
can I help you? Well, like that one
time I went into
the the breakfast spot and my underwear fell
out
of my pant leg and the guy was
like, sir, your underwear.
(13:59):
Yeah. Go back in time man. Something happened
at Bill's Cafe.
This was back in January
2019.
Something happened
at Bill's Cafe.
I ordered coffee and toast. John John got
pancakes.
Tap on my shoulder, he's like, excuse me,
(14:19):
sir.
Is that
your underwear?
And, you know, I never I was, like,
thought he was gonna ask me if I
wanted more coffee.
January
2019,
it's good that I have this podcast to
record the times
that my underwear
(14:41):
comes out in public.
Whoops.
Something happened.
I had a meeting
with my
primary,
MS doctor, not my primary care doctor, but
my MS.
He's like a neurologist.
He's the MS guy.
(15:02):
And he was telling me there's a lot
of new
advances
in multiple
sclerosis. Like, he was saying it's like a,
a golden age. He was like, I think
we'll look back on this time as like
a golden
age of MS
(15:23):
research and discovery,
and he was talking about all these new
medications.
And they're called I think they're, let me
let me get the name right over
here. BTK
inhibitors,
Bruton
tyrosine
kinase
(15:45):
inhibitors
are a class of drugs that target and
inhibit the activity
of the BTK
pro protein.
BTK is an enzyme that plays a crucial
role
in the development
and function of b cells,
(16:05):
which are white blood cells that produce antibodies.
So
there are new medications
and I'm not sure if the BTK
inhibitors
are one but because they have FDA approval,
but my doctor was talking to me about
(16:25):
a class of medications
for
MS
and they can do things like cross the
blood brain
barrier.
Cross the brain
blood barrier where
your brain has, like, its own blood and
it's hard to target.
(16:47):
Like, in MS, the brain
gets inflammation,
I think, from these b cells.
And
they they can't target it the same way.
Like you can't just take an anti inflammatory.
It doesn't work in your brain
because of this blood brain barrier.
(17:13):
This is like we're 35,000,
40,000,
we're a 125,000
feet
cruising cruising
at the edge of space.
In terms of my scientific
knowledge here. Like,
this is beyond beyond.
(17:35):
And but the what my neurologist
was trying to tell me is that there's
new stuff on the horizon
like immediate.
And he was talking about like I take
my medication
every six months
and like I'm taking it later
(17:57):
in a couple of weeks actually.
And he was talking maybe
six months from then, I could be on
a new medication.
And I could be dealing my nerve,
my b cells are causing inflammation
in my brain.
(18:18):
Can these new medications
restore functioning?
Can they get me out of my wheelchair?
Can they get me walking more?
And it seems like they kinda can.
There are some articles
along with some videos I've seen of neuro
(18:39):
rehab patients
of people getting up and out of their
wheelchairs.
So there's like something going on
with brain plasticity
and remyelination
and all the holy grails
that
MS people have been trying to get together
(19:00):
for years and decades and
and they're close to it, I think. So
it's kinda giving me a new hope
for the treatment. Like I'm gonna see we're
all gonna see some kind of evolution
in neurological
treatment
in the next five years.
(19:22):
I mean, we've seen it in the last
five years, but we'll see even more.
And they figured out some key stuff, I
think.
Getting the
medication,
being able to target
inflammation
across this barrier
(19:43):
and target
inflammation
in my brain
and
plasticity
and remyelination
and
to even think of all that stuff is
pretty wild.
Meanwhile,
it's like there's still
pragmatic
(20:03):
reality,
right? I broke my rib a couple weeks
ago
and also
as a result of that,
I stopped using
my cane
to get around because
I I hit my back.
And when I was using my cane,
I would push off of it and it
(20:25):
would hurt a lot. So I stopped using
my cane
right after I had this injury.
I've seen it's rehabilitated
and
it's wheelchair is not really even an option
the same way.
I've rehabilitated
and
so that I can walk with my cane.
(20:46):
It's fine.
But
my wheelchair in the meantime,
my wheelchair
broke down.
Something
happened to be electrical.
It was parked in my house, thankfully.
I turned it off and then I could
never turn it back on.
(21:07):
I think it has something to do with
the joystick
or the wire. Maybe it got crimped.
It's kinda zip tied and
so I
turned it off. I
got into the nook
and I was hanging out there for a
bit ready to go. I could never get
it on again.
(21:29):
So the wheelchair tech, that was last week
and I called
the company
that
services
the wheelchair and in a week they'll send
someone.
So that'll be in a couple days,
but so I've
I couldn't walk with my cane.
(21:51):
Thankfully,
the wheelchair works long enough so I could
heal enough to walk with my cane.
So that's where I'm at now. My wheelchair
will be fixed in a couple days
and
I'm kinda up and about with the cane.
Speaking of that, John had a resolution.
(22:14):
He was talking to counselor
at school.
He had some kinda
dust up after school with the other kid
and
they were having kinda
negotiation
to end it.
And the counselor
asked John,
what is your perfect
(22:34):
resolution?
If we if this was a perfect world,
what does the resolution
look like for you? This is my son,
John.
And John answers. He goes,
in a perfect world,
there'd be a medicine
that would
cure my papa
(22:56):
from MS. Like, he wasn't understanding
the question.
The lady was asking him
was about the dispute he was embroiled in.
But John took it bigger. He was like,
what would
resolution
in a perfect world look like? And he
was like,
(23:17):
papa cured from MS. And then like a
week, two weeks later,
I had this meeting with my doctor
and he was like, there is new medication.
It's a big deal.
And this is gonna be, like I said,
the golden,
this is gonna be something you look back
(23:39):
on and you say, wow, man. That that
was critical,
a corner turn there.
So with that in mind, I hope that
in a perfect world, I love that John
dared to dream,
you know.
And,
I kinda
think
(24:01):
that I'm with that. I'm with all of
it.
Let me take some selfie.
You know, it's hardly you can't tell the
players without a selfie.
Alright. There we go, the selfie. Thanks for
tuning in.
There's good news on the horizon
(24:22):
if you're a neurologist.
Right? Or if you dare to dream like
a child.
So thank you for tuning in to the
What's the Matter with Me podcast. Shout out
to you. Check-in
next time.
Check. Check. Check.
Got it. Okay.
You are tuned in to What's the Matter
with Me podcast
of John.
Super old. I'm
I'm 46
years old.
My god.
Sometimes
(00:21):
it's hard that I
that I started off with my age like
that. It's kinda
it's kinda shocking.
It's like
when you're driving
in the car and you go past
an accident
with like foam and they're putting out a
(00:42):
fire. And you're just like, oh look at
that, you know. And when you say your
age, you're like, woah.
Like there could be a YouTube
supercut
of senior citizens
or anyone 30
(01:02):
saying their age.
Just supercut.
I'm
this many years old.
Do that. That's a vibe. A drone.
A vibe.
It's What's the Matter With Me podcast.
My name is John. I'm 46
(01:22):
years
old.
That is rough.
It blanks
the mind when you say your age and
it's like a really high number.
It like obliterates
everything else. It's like
your your brain says back to you when
(01:42):
you say your age. Your brain is like
getting you back. It blanks on you because
it's like, how dare you
say how old I am.
I'm your brain. I've been here the the
whole time.
I haven't taken a second
off. I'm your brain.
(02:03):
I've been through
everything
you've been through.
I'm stuck in your head. You you like
to get out of your head,
but I there's I have no such luck.
It would be interesting to have a conversation
with your brain.
(02:24):
I wonder how it would feel.
I hope not resentful.
Why resentful?
It's like,
what have you done with your brain?
What have you done with your, what did
they call that? Like your bodily
husk?
Your
mortal,
(02:44):
your mortal husk.
Okay, I'll settle for that because
I can't remember what they call,
a bodily
is it called the mortal husk? I don't
know. That doesn't sound right. Hold on.
So in Dante's
(03:04):
Inferno,
the mortal husk
refers to the human body
that the souls of the suicides
cast off
when they took their own lives.
As a punishment
for rejecting
the body,
They are transformed
(03:24):
into gnarled,
thorny trees and bushes
in the wood of the suicides.
This appears
in the second ring of the seventh
circle of hell
in canto eight of the Divine Comedy
by Dante.
(03:45):
The trees can only speak and weep blood
when one of their branches
is broken.
They are tormented by the harpies,
monstrous
birds with the faces of women
who tear their leaves.
On judgment day, while other souls will be
(04:07):
reunited
with their body, the suicide's
physical
bodies
will be hung from their own
branches,
eternally
separated,
but also a constant
reminder of their sin.
Kinda horror sounds dramatic.
(04:27):
It's with Dante.
That's an AI overview of Dante,
so
I'm not even diving deeper there. But that's
a mortal husk in the divine comedy, the
inferno.
I I fell,
on my butt
(04:48):
in
the laundry room right outside
my room
at night
again,
and I, like,
broke my rib again.
It's, like, really sucks.
So it like, a lot's going down. My
body
(05:09):
at that in that area, the laundry room,
it used to actually
be
the garage
was one house, and then
the the house the bedroom,
the where you live was like another house.
And
in the eighty's, I think they combined them
(05:30):
into one house. That's where we live now.
But the laundry room used to be like
the breezeway
between the two houses.
So
it's like exterior
walls.
So I fell and it hit my back
against the corner,
(05:51):
the wall, but it was like the corner
of the old house.
It was very solid and
it hurt. And it still,
you know, it definitely
kinda hurts. I'm past the stage where
it like hurts to cough or
any of that, but it's like achy.
(06:14):
I took an Ibuprofen
this morning and a Tylenol
at lunch.
So I'm getting over it. I'm living. It's
not bad.
But I fell and broke my rib again.
So I'm just trying to get it together
man and string these rehabs
(06:35):
together
and try and get back into one piece.
I wanted to give some shout outs real
quick.
Wanna give a shout out to Rocky,
shout outs to Matt,
shout outs to my empress, Nami, the one
called John John Little Coco. I see that
(06:57):
word.
Shout out to
The Sandman.
Been checking that out on the radio. Feeling
I've been The Sandman is good. He's on
KFJC
from Saturday
six to 9AM.
They call him Jeremiah
(07:17):
Johnson,
goes by the name.
So we listen to that. Sometimes he gives
me a shout out on the air, so
I gotta return the favor.
Shoutouts
to Jersey
Girl. She wrote in
Jersey Girl, she's a KFJCDJ.
(07:38):
She sent me,
a couple weeks ago, she sent me an
article,
that they
ran on KQED,
which is a TV station and
the NPR
affiliate
and
PBS.
So it's headlined,
(08:00):
it's by Sydney Johnson,
date 08/25/2025,
a place for us by us,
San Francisco's
Disability
Cultural Center breaks new ground.
Nearly
(08:21):
five decades ago, frustration
over the government's
lack of urgency
to make public
buildings more accessible
reached a flashpoint.
It was April
1977
and more than a 100 disabled
protesters
(08:42):
staged a nearly
month long sit in at a federal building
in San Francisco's
UN Plaza.
After a twenty six days
support from groups like Black Panthers
and allies like George Moscone,
(09:02):
the activist
successfully
convinced the country's secretary
of health,
education, and welfare
to implement
the long delayed section
five zero four
of the Rehabilitation
Act
that had been passed in 1973.
(09:23):
That law prohibits
discrimination
based on disability
in programs
that receive
federal financial
aid.
The protest
became
recognized as the five zero four
sit in
and paved the way for the Americans with
(09:44):
Disabilities
Act
more than a decade later.
This summer,
the city moved the legacy
forward,
opening the nation's first disability
cultural center
located directly
across from San Francisco
(10:04):
City Hall.
It took a while to start to see
things
change but the ADA
ushered in new building standards.
New buildings had to be accessible
in very specific
ways,
said Deborah Kaplan, Deputy
(10:26):
Director at San Francisco's
Office on Disability
and accessibility.
The five zero four sit in protest sprouted
up in cities across the country in 1977
and Kaplan
participated
in Washington,
D. C. All of a sudden, I could
(10:48):
go places,
not enough to scope it out in advance
and worry there was no way in or
worry that I couldn't use the bathroom for
new places.
Kaplan said a progress that have has followed
in the decades since.
(11:08):
Activists
like Kaplan have pushed San Francisco
and the nation
to raise accessibility
standards for decades.
Having this space of belonging,
celebrating
disabled joy, and having the disability
community
(11:28):
seen
right across from City Hall.
It's so incredibly
unique and powerful,
said Eli Gellard,
director
of the city's
office on disability
and accessibility.
And today it's bustling
classes
(11:49):
and film festivals,
a cool article
on the disability,
the Disability
Cultural Center in San Francisco.
The center is on the Ground Floor of
the Kelsey Civic Center
in San Francisco.
(12:10):
Thanks to Jersey Girl for sending that in
massive
shout outs. It's fundraiser
right now on KFJC
and often time in the month of October.
And I've been hearing a lot of great
production
spots and they have a
(12:31):
really good one.
Jersey girl and max level, they kinda ad
lib, and it's something to look forward to.
Always
enjoyable,
always coming through.
A sure shot. If you tune into KFJC
right now,
you probably hear it. It's all the good
(12:53):
stuff. Kfjc.0rg.
Donate .kfjc.0rg
is how you donate.
Now I'm not really trying to push you
around, but I wear the shirts
because,
I I think it's polite to wear a
shirt,
and they're good for that. You put it
(13:15):
on, no one's gonna bother you
about not wearing a shirt. No one's gonna
be like, hey. Put your shirt on. You're
gonna be like, yeah. I got one. Hey.
Put a shirt on. That makes it seem
like it's more argumentative
outside in my life than it needs to
be. It's not like that.
(13:37):
I usually have a shirt on. People don't
yell. Even if I didn't though,
they would be like,
can I help you? Well, like that one
time I went into
the the breakfast spot and my underwear fell
out
of my pant leg and the guy was
like, sir, your underwear.
(13:59):
Yeah. Go back in time man. Something happened
at Bill's Cafe.
This was back in January
2019.
Something happened
at Bill's Cafe.
I ordered coffee and toast. John John got
pancakes.
Tap on my shoulder, he's like, excuse me,
(14:19):
sir.
Is that
your underwear?
And, you know, I never I was, like,
thought he was gonna ask me if I
wanted more coffee.
January
2019,
it's good that I have this podcast to
record the times
that my underwear
(14:41):
comes out in public.
Whoops.
Something happened.
I had a meeting
with my
primary,
MS doctor, not my primary care doctor, but
my MS.
He's like a neurologist.
He's the MS guy.
(15:02):
And he was telling me there's a lot
of new
advances
in multiple
sclerosis. Like, he was saying it's like a,
a golden age. He was like, I think
we'll look back on this time as like
a golden
age of MS
(15:23):
research and discovery,
and he was talking about all these new
medications.
And they're called I think they're, let me
let me get the name right over
here. BTK
inhibitors,
Bruton
tyrosine
kinase
(15:45):
inhibitors
are a class of drugs that target and
inhibit the activity
of the BTK
pro protein.
BTK is an enzyme that plays a crucial
role
in the development
and function of b cells,
(16:05):
which are white blood cells that produce antibodies.
So
there are new medications
and I'm not sure if the BTK
inhibitors
are one but because they have FDA approval,
but my doctor was talking to me about
(16:25):
a class of medications
for
MS
and they can do things like cross the
blood brain
barrier.
Cross the brain
blood barrier where
your brain has, like, its own blood and
it's hard to target.
(16:47):
Like, in MS, the brain
gets inflammation,
I think, from these b cells.
And
they they can't target it the same way.
Like you can't just take an anti inflammatory.
It doesn't work in your brain
because of this blood brain barrier.
(17:13):
This is like we're 35,000,
40,000,
we're a 125,000
feet
cruising cruising
at the edge of space.
In terms of my scientific
knowledge here. Like,
this is beyond beyond.
(17:35):
And but the what my neurologist
was trying to tell me is that there's
new stuff on the horizon
like immediate.
And he was talking about like I take
my medication
every six months
and like I'm taking it later
(17:57):
in a couple of weeks actually.
And he was talking maybe
six months from then, I could be on
a new medication.
And I could be dealing my nerve,
my b cells are causing inflammation
in my brain.
(18:18):
Can these new medications
restore functioning?
Can they get me out of my wheelchair?
Can they get me walking more?
And it seems like they kinda can.
There are some articles
along with some videos I've seen of neuro
(18:39):
rehab patients
of people getting up and out of their
wheelchairs.
So there's like something going on
with brain plasticity
and remyelination
and all the holy grails
that
MS people have been trying to get together
(19:00):
for years and decades and
and they're close to it, I think. So
it's kinda giving me a new hope
for the treatment. Like I'm gonna see we're
all gonna see some kind of evolution
in neurological
treatment
in the next five years.
(19:22):
I mean, we've seen it in the last
five years, but we'll see even more.
And they figured out some key stuff, I
think.
Getting the
medication,
being able to target
inflammation
across this barrier
(19:43):
and target
inflammation
in my brain
and
plasticity
and remyelination
and
to even think of all that stuff is
pretty wild.
Meanwhile,
it's like there's still
pragmatic
(20:03):
reality,
right? I broke my rib a couple weeks
ago
and also
as a result of that,
I stopped using
my cane
to get around because
I I hit my back.
And when I was using my cane,
I would push off of it and it
(20:25):
would hurt a lot. So I stopped using
my cane
right after I had this injury.
I've seen it's rehabilitated
and
it's wheelchair is not really even an option
the same way.
I've rehabilitated
and
so that I can walk with my cane.
(20:46):
It's fine.
But
my wheelchair in the meantime,
my wheelchair
broke down.
Something
happened to be electrical.
It was parked in my house, thankfully.
I turned it off and then I could
never turn it back on.
(21:07):
I think it has something to do with
the joystick
or the wire. Maybe it got crimped.
It's kinda zip tied and
so I
turned it off. I
got into the nook
and I was hanging out there for a
bit ready to go. I could never get
it on again.
(21:29):
So the wheelchair tech, that was last week
and I called
the company
that
services
the wheelchair and in a week they'll send
someone.
So that'll be in a couple days,
but so I've
I couldn't walk with my cane.
(21:51):
Thankfully,
the wheelchair works long enough so I could
heal enough to walk with my cane.
So that's where I'm at now. My wheelchair
will be fixed in a couple days
and
I'm kinda up and about with the cane.
Speaking of that, John had a resolution.
(22:14):
He was talking to counselor
at school.
He had some kinda
dust up after school with the other kid
and
they were having kinda
negotiation
to end it.
And the counselor
asked John,
what is your perfect
(22:34):
resolution?
If we if this was a perfect world,
what does the resolution
look like for you? This is my son,
John.
And John answers. He goes,
in a perfect world,
there'd be a medicine
that would
cure my papa
(22:56):
from MS. Like, he wasn't understanding
the question.
The lady was asking him
was about the dispute he was embroiled in.
But John took it bigger. He was like,
what would
resolution
in a perfect world look like? And he
was like,
(23:17):
papa cured from MS. And then like a
week, two weeks later,
I had this meeting with my doctor
and he was like, there is new medication.
It's a big deal.
And this is gonna be, like I said,
the golden,
this is gonna be something you look back
(23:39):
on and you say, wow, man. That that
was critical,
a corner turn there.
So with that in mind, I hope that
in a perfect world, I love that John
dared to dream,
you know.
And,
I kinda
think
(24:01):
that I'm with that. I'm with all of
it.
Let me take some selfie.
You know, it's hardly you can't tell the
players without a selfie.
Alright. There we go, the selfie. Thanks for
tuning in.
There's good news on the horizon
(24:22):
if you're a neurologist.
Right? Or if you dare to dream like
a child.
So thank you for tuning in to the
What's the Matter with Me podcast. Shout out
to you. Check-in
next time.
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