Episode Transcript
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(00:18):
Hello.
Check.
Okay. That's better.
Really perfect though. Let's see. What's up.
Yeah Okay.
Fine.
We're back on what's the matter with me.
I think I got my volume you. My
levels
okay.
There's a lot going on.
(00:38):
Skip the toilet is part of history now.
That's what my sunset.
I slept
last night
I have slept
okay.
I think like 3 out of the past
4 or 4 out of 5 nights of
dude okay. It's normal of sleeping.
(01:01):
That helps. So I can laid down a
bed
and
put the leap out happily a device on
it not freak out.
And have to leave the bed
okay to be a bed.
But the war is not over
2 days ago. I was at
(01:24):
until what
something
tried to go to sleep,
having a hard time laying,
in bed, cold.
Called lee.
Welcome, Welcome in gather
around the speaker rocks.
What's the matter with me podcast.
(01:45):
My name is John up 45.
I have multiple
sclerosis sclerosis.
Tri j
judd that made this podcast to share when
I'm going through.
Hot sauce.
It's the best hot sauce.
Sauce.
It's the best sauce
(02:06):
the world.
The world
Telling you.
Last
episode was the world on sleep
anxiety,
compulsive
behavior sequences,
we're keeping me up all night.
A good night's sleep, dr from bad, dead
(02:28):
dressed, go outside, try to call down come
back to bed
repeat.
That's the war on
sleep
anxiety.
The
for that episode was like a soldier in
camouflage,
looking out at a clock.
A digital clock with a red background
(02:51):
in white letters, and it's 03:33.
I've been using Ai. You gonna, like, tell
like what to do. I've been using it
to make images for the episodes and
some of them are kinda okay. The world
sleep anxiety checking out what's in matter with
(03:11):
me dot 0RG.
Or wherever you get
podcasts.
You are too into the... What's the matter
with me, Podcast podcasts. They're gone casts,
featuring
cast.
Wanted to give a shout out to Matt
and Amy.
I went in their house.
(03:33):
They made burgers.
My kid's way was spun,
shout out Matt and Amy.
Also shout out Stan,
Anthony came over.
Big shout now. I've known Anthony
for a long time.
Up put a link. We covered development
(03:55):
underground song heroin
with Joe Shut to Joe, and I... It's
on Youtube so I'll send a link to
that. You can see how I spent
my college time
So the sleep apnea mere device that would
giving me fits.
It has like low pressure. I can't figure
(04:17):
it out. It's kinda freaky we out.
Hard to breathe through. I start over breathing
kinda hyper vent
or at least
breathing too much for this tube the is
attached to my nose.
And it it... And It shouldn't be surprising
(04:39):
at all. It's kinda obvious. It's like, sucking
through a really long
straw,
and that starts, like, freaking me out and
causing
anxiety id.
But like I said, I've been sleeping the
last few days and it hasn't been
as much of our problem or cause that
much
(05:00):
anxiety.
I'm trying to schedule a meeting with the
sleep doctor
Yeah. To get up she looked out. I
think the pressure is kinda weird. I think
it's... But it is not just an I
think everything
weird. You're weird. Thank you for tuning in
into what's the matter with be podcast.
(05:22):
Don't breathe through really loans
draw.
So, yeah, last few days to counteract the
feeling of not being able to get a
good breath through
the machine.
I just the pressure,
and they helped me sleep a little longer.
I just switched it in the mode to
(05:45):
a higher pressure mode, and then back to
the automatic that I always use and it
just stays at the higher pressure.
It's kinda odd.
It's causing me anxiety. I slept
okay.
Last night, 2 nights ago. I was up
to, like, 01:30,
but then 3 nights before that, I slept
(06:06):
okay. Normal.
So I'm getting there. And that's your update
on the war
of sleep
anxiety.
There is a soldier
with a hell a fl helmet on
He's looking at a clock. It's says 03:33.
I started
submitting some point tree again.
(06:28):
It's kinda comforting
thing to do because it could just go
on forever,
and it's kinda like the radio. Like, give
just keep putting a little bit into it.
It just goes on.
And the can community the radio
dj
is like that. You know, you have to
(06:48):
volunteer
to
dig the grave.
Graveyard your ship for 2 to 6AM.
You do 13 of
before you get all the daytime air.
And
Process
you're you become this like tote.
This tote
(07:08):
figure,
the community the radio
Dj Holding
torch loft
by the side of the ink black
ocean.
Kind of a beacon of hope, a statue
of liberty
for community
radio in the middle of the night. That's
(07:29):
how I pictured myself when I was digging
the gray of I was, like,
I'm here next to the ocean.
I said I went to that barbecue at
Madden amy's.
Connor was there his wife in. It was
cool. We're hanging out.
And you know talking, I'm been seeing different
(07:50):
groups of people and talking to a... To
my friends.
Many of them have some
source of anxiety
from stress or responsibility ability
They wake up in the middle of the
night. Nobody could drink afternoon,
coffee,
drinking beer. It's sleepy bad dudes are like,
(08:13):
oh, I have 3 board beers and I
have horrible sleep and.
So I guess what I'm wanna be is
what I'm going through
is, like, fairly
call me, a lot of people have some
anxiety. And so maybe I can get comfort
in that that we're all managing.
(08:35):
I'm winning the war on the anxiety. You
can tell, you know, we're we're managing.
So
vacation is coming up at the end of
June at beginning of July.
I looked into Alaska,
cruise
because we watch port
(08:55):
protection Alaska,
and I'm not sure that I'm up to
going there by will go through town and
see what they got in Alaska.
But
I wanted to get an inaccessible
cabin. It's all good. We got it. Got
(09:16):
the the kids are in like an inside
room,
and there's an
observation deck, so we'll...
We're going kinda our earlier,
like we're going at end of June
beginning of July.
I have a feeling it's gonna be colder.
Which
(09:37):
Okay with. Maybe maybe I should look that
up. Hold on a second.
So temperatures
Southeast
Alaska
tends to be milder and wet,
Frequent
rape.
So I think that it gets rainy.
We're gonna go on a 7 day cruise
(10:00):
I think Holland America baby. But in 2025,
because I was like, I need an accessible
in, I need room for the kids,
and I want them to have their own
room and they experience that
there's gonna be incredibly
(10:22):
long daylight hours.
That sounds fun.
Anytime you visit
Alaska, it's
necessary to pack layers.
So I got the
the
Tour,
the cruise
info for curb pre with corey lee dot
(10:43):
com.
He's like a disabled
travel,
curb
free with corey
lee dot com
he's like a wheelchair travel
expert.
So he does
guides for all these
locations all over the place.
(11:04):
Africa,
Asia Australia, Caribbean central
America, Europe, Middle east, South America
Usa canada.
So he gets
everywhere it is wheelchair,
And so he's a great
resource
for me because I'm like, how
what what's there? You know, he kinda
(11:26):
I could do a little more things
because I'm wheelchair optional,
but I would be to know what I
can do in my wheelchair in a place.
It to see what I can get done
it. You know, because it's not optional if
I'm be walking through the mall. I gotta
(11:47):
have a wheelchair.
Anyhow curb free with Corey Lee, we're going
to
Alaska in 2025
I got all the info from him.
We have a new coffee
machine here.
I wanna a switch from travel
to breakfast.
(12:07):
Oh wait. Hold on. I gotta tell you.
So I tried to book the cruise
this year, but since I need the wheelchair
accessible
situation.
I had to
book next year
So this year, what are we gonna do?
We thought we'd go to Port,
(12:27):
it turns out about half of the people
are out of town.
So
then I heard my cousin
is gonna go to Mi
Montana.
In this suburb.
So I was like,
because her husband and her daughter
going to Mi,
(12:48):
So we're all going. We're gonna go to
Montana. We're gonna check out the Mi
Children's
theater.
And
so, you know, who who knows it's we'll
see.
So at the end of Jude
beginning of July. We're all flying to Montana.
(13:09):
We have a 2 hour layover. It'll be
the kids first layover.
That'll be fun.
We're gonna have a great time.
A right to poetry
bay vacation. But I think that's a good
goal.
To write some poland.
To be like, oh,
montana. O, 0 to green greenery.
(13:30):
Owed to a stream.
I'm getting warmed up. I gotta a I
gotta chill out
because all I'll pull it myself out before
vacation. Come on.
Speaking of being a poet. You got coffee
shop poetry reading.
I have a new coffee machine.
I have a new coffee machine of
(13:54):
elite,
Victoria,
and it's making better
espresso.
Espresso,
better espresso,
but I haven't been able to figure out
how to steep every thing and do it
just perfect, like I like to.
You know, you get a kinda
(14:15):
routine it's like a dance. You do a
certain
step order.
And so now with a new machine, the
dance is a little different, but pretty similar.
I started out steaming the milk first and
then there may be espresso by the time
(14:35):
I did that, the milk was no longer
pho eat with all flat.
So, you know, that's a process, but the
coffee is better. It's making better espresso.
And the cup cappuccino, where... I'm I'm getting
a hang of it. So I've been taking
the kids to school every day for 3
(14:58):
weeks now, maybe they're about to be out
of school.
Just in time, I started taking them now
they're done.
They're gonna start going to camp and camping
in the neighborhood. They can walk there.
I can rule there with them. It's no
big deal.
I've been having though as
(15:18):
uncontrolled the anxious boss, you, maybe
3 days, yeah 2 days ago, and you
know, week ago. The thought chains keeping me
for bed
and not getting to sleep too to go
until after 1.
So I started doing something,
(15:38):
either when
Having me having these like bad,
anxiety, bad
insomnia.
I kind of am not satisfied
with that. A dry me to kind of
toy, make it better.
So I did something
that I've been afraid of doing for months.
(16:00):
We brought this
wheelchair lift on the back of my van.
And my idea was I was gonna load
the wheelchair
onto to the lift and
drive to jc.
But I didn't
feel like I had enough balance in dexterity,
(16:23):
especially when Was on elevated
drugs,
medication before
the surgery,
but that was 2 months ago, and I've
been getting better. I can stand up, I
can move around. It's a little easier
to balance.
So I did it myself. But I was
(16:44):
like, I gotta do this. So
I've been afraid of do we give for
months since we got the wheelchair lift?
So it sounds like I got in November
of
2023.
So it's been quite a while,
but I I've had a been on so
(17:05):
much Medicare she did the time Now I
come off of it. I've loaded my wheelchair
of right down to the lift.
Ratchet it up.
Could you have stay to tie it down
4 on all 4 quarters, so it doesn't
fly off.
And I was, like, kind of
(17:25):
too out of it to do that. You
have to get up and kinda walk around.
Now I figured it out.
And
I loaded and unloaded the wheelchair onto my
van by myself.
And I had
that I couldn't do it because their straps
in restraints and it's a little complicated.
(17:49):
But I figured out the way I can
use it, like my own method,
and there's
no other way to figure it what that
is than just doing it.
And I owe, like,
tremendous
gratitude to my wife who supported me through
it. And for years who loaded my chair
(18:12):
in out of my van
in her car,
for years they know I figured out how
to do it on my own.
And I was, like, empowering, and it also
expanded
my base of
operations greatly.
Yesterday,
I went to pick up some pants from
(18:32):
the Taylor in Oakland.
Join the fashion
Taylor,
and I'd be going there for, like, 20
years
when I lived in New York I would
come home and he would, like, he did
I remember burberry
trench coat for me. What time he asked
me? Are you a weight lift sir, and
(18:54):
I was like, I'm just are you a
body builder? That's what he said. And I
was like, you're the best taylor?
No.
With the answer. But, yeah. Of course, yeah
workout.
Workout. That's a good question.
For taylor. So are you a body filter?
(19:14):
I'd be getting things altered there forever I
hem my pants
They're like, 6 inches too long.
And so hem them like, changed their proportion
of my clothes.
Now I have a little ankle
on my socks with a sit down and
wait they used to be, like, literally he
(19:37):
had hemmed
6
inches off of them. I was like, how
much have 6
inches.
So he changed the proportion of what I
wear, like, how long my shirt, you know,
everything,
my jacket,
It's cool. It's like everything's
new
(19:57):
because the proportion is different.
For years, I would buy my pants too
long,
because I would always be sitting down in
a wheelchair. So I started wearing my pants
too long.
You guys have you seen cbd the toilet,
the heads are in its Cbd d toilet.
(20:19):
Sc
SKIBIDI.
Sc league toilet,
and it's on Youtube
there it's a toilet that rolls around a
a man's head a toilet
singing this song
sc dot dot WSS.
(20:40):
Deep, dave.
Okay. Skip toy.
The kids are into this. I asked my
son. I was like, what up with Scooby
toilet?
And he's like, it's gone viral.
In 50
years,
you'll
look in the history book and there is
skip the toilet.
(21:02):
So that was his take on day. It's
a part of history.
Skip the toilet. Check it out.
If you... If you have a got there,
your might as well go there. So I've
been sleeping.
It's keeping the toilet,
Thanks for tuning in to the what's the
matter with me podcast.