Your Story Our Fight by Lupus LA
Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.
Episodes
Season FIVE Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Brett Kohler. Brett Kohler is a musician and lead singer and guitar player for the up and coming band The Detours. He was diagnosed with Lupus in his late 20's, a moment that changed his life forever. Music is what helped Brett get through the early stages of his diagnosis and ultimately led him to learning guitar and places now in music he never though...
Season FIVE Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Joselyn Williams. Joselyn is 53 years old and has been diagnosed with SLE Lupus and Lupus Nephritis since 2012. Joselyn is currently a Branch Manager at a library, where she enjoys serving the community in any way she can.
Season FIVE Episode TWELVE of the Your Story Our Fight® podcast welcomes AlexAndriA G. Porter. AlexAndriA is a Master of Nursing student at the Duke University School of Nursing, published scholar, and multidisciplinary leader whose work bridges healthcare, advocacy, and the arts. She serves as the 2025 Cohort Representative, Student Liaison for the Clinical Resource Team, and President of Nurses Amplifying Voices (NAV), advancing ...
Season FIVE Episode ELEVEN of the Your Story Our Fight® podcast welcomes Rene Santos. Rene is from Pasadena, California, and was diagnosed with lupus at 13 years old. This experience shaped his resilience and perspective on healthcare early in life. Growing up, Rene played basketball through high school and into college. Today Rene stays committed to fitness and overall wellness. Living with lupus has fueled his passion to advocat...
Season FIVE Episode TEN of the Your Story Our Fight® podcast welcomes Dr. Aly Cohen. Dr. Aly Cohen is a board-certified rheumatologist, integrative medicine, and environmental health expert in Princeton, New Jersey, and she educates the public about the harmful toxins in our lives and their impacts on health. She delivers speaker engagements, appears as a guest expert on news outlets and podcasts, and authored the best-selling book...
Season FIVE Episode NINE of the Your Story Our Fight® podcast welcomes Ruth Wilson. Ruth Wilson is a scientist and laboratory leader with a background in immunology and microbiology, as well as data science. Diagnosed with lupus as a young adult, she became a passionate advocate and transformed her personal challenges into a mission to amplify the patient voice and drive more compassionate, patient-centered research. Through her ad...
Season FIVE Episode EIGHT of the Your Story Our Fight® podcast welcomes Dr. Nya Oglesby. Dr. Nya Oglesby is a lupus survivor who turned her diagnosis into purpose-driven advocacy. Diagnosed as a teenager, she uses her lived experience to educate, empower, and uplift others impacted by lupus. She is pursuing a career in pediatric rheumatology and is committed to closing gaps in care for underserved communities. Her work centers on s...
Season FIVE Episode SEVEN of the Your Story Our Fight® podcast welcomes Dr. Sheetal Desai, MD, MSED. Sheetal Desai completed medical school at the University of Southern California (USC) followed by Internal Medicine residency and Rheumatology fellowship at UCLA. She pursued a Master of Science in Medical Education from the USC Rossier School of Education. She joined the University of California, Irvine (UCI) as rheumatology facu...
Season SIX Episode FIVE of the Your Story Our Fight® podcast welcomes Linda Park. In this episode, we sit down with the multi-talented Linda Park. Known for her iconic roles in Star Trek: Enterprise and Bosch, and most recently seen in Peacock’s The Paper and Netflix’s A Man on the Inside, Linda has spent her career acting alongside industry greats.
But behind the scenes, Linda has navigated a different journey: a lupus diagno...
Season FIVE Episode FIVE of the Your Story Our Fight® podcast welcomes Shedrica Holmes. Shedrica is a lupus advocate, podcast host, and creator of the Chronically Planned platform. Diagnosed with lupus in 2008, she shares honest conversations around chronic illness, identity, faith, and rebuilding life through intentional planning. Through storytelling and guidance, Shedrica creates space for women living with lupus to feel seen, ...
Season FIVE Episode FOUR of the Your Story Our Fight® podcast welcomes Vania and Alfredo Losoya. Vania Dzib is a dedicated educator, lupus warrior, and a passionate member of Lupus LA’s Patient Advocacy Panel. In the midst of the 2020 pandemic (a time defined by distance and uncertainty) she met her now-husband, Alfredo, through an online match. What started as a digital connection blossomed into a partnership built on mutual empa...
Season FIVE Episode THREE of the Your Story Our Fight® podcast welcomes Rachel Carmen Ceasar. Rachel Carmen Ceasar is a medical anthropologist and public health researcher committed to helping people make informed health decisions rooted in science and evidence. She holds a PhD in Medical Anthropology from the University of California, Berkeley, and currently serves as an Assistant Professor at the Keck School of Medicine at the Un...
Season FIVE Episode TWO of the Your Story Our Fight® podcast welcomes Sarina Mawji. Sarina Lives in Vancouver, BC, Canada and was diagnosed in 2016. Sarina works within and for communities through ongoing community engagement programming initiatives through identifying community needs, capacities, & assets. She is committed to creating a better world, which is evident through her work of organizing initiatives, that foster genu...
Season FIVE Episode ONE of the Your Story Our Fight® podcast welcomes Princess Wilson. Princess is a lupus warrior who is determined to learn more about Lupus through her community. She is passionate about raising awareness and resources available for lupus patients.
Season FOUR Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Chantelle Chandler. Chantelle is a resilient lupus warrior who has been navigating life with systemic lupus erythematosus (SLE), hypothyroidism, rheumatoid arthritis, and Raynaud's syndrome for over three decades. In addition to managing these autoimmune conditions, she has also lived with jugular deep vein thrombosis (DVT) for the past 28 years. Through...
Season FOUR Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Roxanne Lerner. Roxanne Lerner is a certified yoga teacher and holistic health coach who has been living with lupus for the past 14 years. She is happily married with two young children. Roxanne takes a mindfulness-based approach to health and is passionate about sharing with other chronic illness warriors the science-backed practices that have been instrume...
Season FOUR Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Hayley Weinstein. Diagnosed in 1999 with Lupus, Hayley has struggled with a plethora of various autoimmune health-related challenges over the years. Native to Los Angeles, Hayley has been working for 25+ ( off and on) as a Casting Director, primarily casting Reality TV. Her casting expertise is in casting “real people” in everything from Medical Shows, Compe...
Season FOUR Episode TWELVE of the Your Story Our Fight® podcast welcomes Dr. Shabnam Esmailzadeh. Shabnam is a Doctor of Acupuncture and Traditional Chinese Medicine. Diagnosed with lupus at the age of 18, she took charge of her well-being by focusing on mental, emotional, physical, and spiritual health. This personal journey has deeply shaped her practice, inspiring her to guide her patients toward balance and wellness through the...
Season FOUR Episode ELEVEN of the Your Story Our Fight® podcast welcomes Dr. Katherine VanHise. Katherine is an OBGYN and fertility specialist based in Beverly Hills, California. Immediately following her graduation from OBGYN residency she developed her first symptoms of lupus. Her diagnosis of SLE came 15 months later after consulting with over 20 physicians across different specialties and institutions. Her journey navigating...
Season FOUR Episode TEN of the Your Story Our Fight® podcast welcomes Connie Sparks. Connie Sparks is the Founder of Wadeco Business Center, LLC a MWBE, DBE, WOSB, and SB-designated entity. Connie’s consulting and financing career spans over 24 years and is widely recognized as an award-winning leading expert on business development, strategic planning, and supplier contracting. She has worked with business owners at all levels, ...
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