Transcript
Guests:
Nora Ramirez lives in California and was diagnosed with Selenon (SEPN1)-related myopathy (RM) at the age of 9 years old. She is one of four siblings with SEPN1-RM; the other three siblings have passed away, which is one of the reasons why advocacy is such an important topic for her. Nora is a dog mom of two, one of which was a foster, and the other found through a rescue organization. She is also a wife, daughter, and aunt. During her free time, she loves to volunteer for nonprofit organizations, and also help friends, family, and strangers with anything they allow. Helping and creating connections with others is what keeps her grounded, motivated, and provides energy for the days ahead. When she is not volunteering, she enjoys playing video games, drawing, painting, writing, reading, or researching.
Connect with Nora:
- Instagram: thatchickwithmd
- LinkedIn: https://www.linkedin.com/in/nora-r-946219302
In addition to his professional work, Justin is an active speaker and recently served as the keynote speaker for an IT company’s Global Accessibility Awareness Day (GAAD), where he highlighted the importance of accessibility and flexibility in fostering inclusive work environments. Outside of work, he enjoys sports—especially basketball and football—and values quality time with his family.
Connect with Justin:
- Tik Tok: @justinjaylopez24
- Facebook: Justin Jay Lopez
- X/Twitter: @justinjaylo24
Connect with K.L.:
- Website: klcleeton.com
- Instagram: https://www.instagram.com/realhighhands89/
- Bluesky: https://bsky.app/profile/highhands89.bsky.social
- Twitter/X: https://x.com/highhands89
Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.
Connect with Mindy:
- LinkedIn: https://www.linkedin.com/in/hendersonmindy/
- Instagram: https://www.instagram.com/mindyhen
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