The Collective Mind: A CurePSP Podcast

The Collective Mind: A CurePSP Podcast

The Collective Mind features the latest from care partners, advocates, physicians, scientists, researchers and staff members on the fight against PSP, CBD and MSA, from the people bringing us closer to a cure. We aim to educate and share the experiences of CurePSP community members, amplifying your voices and spreading awareness to make living with these diseases a little more manageable. Host: Oscar Sullivan

Episodes

S2 Ep3: Navigating a Diagnosis With CurePSP’s Patient and Care Partner Advocacy Team

September 10, 2025 • 52 mins
People living with PSP, CBD or MSA face a unique set of challenges that require specialized and informed experts. Meet the CurePSP Patient Care Partner and Advocacy team: Jessica, Courtney, Kelsey and Joanna, the versatile group behind the phone calls, educational resources and Capitol Hill advocacy efforts that are building genuine community connections for those navigating these rare diseases.

They discuss how suppo...
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    S2 Ep2: A Hidden Caregiving Crisis With Jennifer Levin

    August 6, 2025 • 67 mins
    At 32, Jennifer Levin was celebrating her first TV writing credit when her father's PSP diagnosis changed everything. She immediately found herself managing medical appointments from across the country, becoming a healthcare proxy, coordinating care — all while trying to maintain her budding career. She felt completely alone. 

    Then she discovered a staggering truth: one in four millennials are caregivers. Over 10 mill...
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    S2 Ep1: Cherishing Each “One More Day” With Chris and Mike

    July 9, 2025 • 36 mins
    Welcome back for Season Two! This season is all about you: our dedicated community members. Your commitment is the glue of our organization, a guiding light that inspires others and grows our network. For community members Chris and Mike, commitment to each other — and to making the most out of every single day — has been transformative. It has allowed them to complete an incredible 118-mile pilgrimage on the Camino de Santiag...
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    S1 Ep6: Investigating Blood-Based Biomarkers With Dr. Maura Malpetti

    February 5, 2025 • 25 mins
    Clinical trials are urgently needed for PSP and CBD. Dr. Maura Malpetti and her team at the University of Cambridge have identified chronic brain inflammation as a key contributor to disease progression, and are developing a blood test for inflammation that will help track the effectiveness of clinical trials and treatments, thus accelerating the development of more clinical trials. 

    Dr. Malpetti spoke to us about the...
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    S1 Ep5: Exploring Mitochondrial Dysfunction With Dr. Kat Bowles

    January 8, 2025 • 25 mins
    Tauopathies remain some of the most mysterious diseases in science, with no current treatments available for conditions like PSP, CBD and MSA. Dr. Kathryn Bowles and her team at the University of Edinburgh are studying mutations in the MAPT gene, a known driver of tauopathies, and how these mutations alter mitochondrial function in brain cells. Using cutting-edge 3D organoid models, or “mini-brains” created from patient blood ...
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    S1 Ep4: Celebrating a Historic Year of Advocacy With Jessica and Julie

    December 4, 2024 • 59 mins
    Anyone affected by PSP, CBD or MSA knows the importance of advocating for yourself. After years of limited awareness, 2024 marked a turning point for PSP, CBD and MSA advocacy with the historic passage of the National Plan to End Parkinson’s Act. From Congresswoman Jennifer Wexton’s announcement of her PSP diagnosis to the numerous messages that our community members sent to their local representatives, several factors emerged...
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    S1 Ep3: How to Feel Prepared and Supported With the Flying Solo Support Group

    November 6, 2024 • 40 mins
    Eugenia Aguirre found herself at a crossroads when she was diagnosed with corticobasal degeneration (CBD). Overwhelmed by the rapid lifestyle changes that accompanied her diagnosis, she chose to make the most of every day and fight as hard as she could. Living alone meant managing the disease was a lonely and daunting journey, until she connected with the Flying Solo Support Group, where she met a group of similarly independen...
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    S1 Ep2: Decoding DNA With Dr. Jessica Rexach

    October 2, 2024 • 38 mins
    The causes of progressive supranuclear palsy (PSP) remain one of the biggest mysteries of the disease. Dr. Jessica Rexach and her team at UCLA have been scouring sequencing data from over 10,000 individuals searching for clues in the DNA that could explain how changes in the immune system might influence why some individuals develop the disease. Dr. Rexach spoke to me about the crucial role that the immune system seems to play...
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    S1 Ep1: Care Partner Reflections With Robert B. Weide

    September 4, 2024 • 54 mins
    Caring for a loved one is a grueling journey that no care partner would ever turn away from. Bob Weide did not know what to expect when he started noticing little differences in his wife Linda’s balance and speech. He could not have known that these were the first symptoms of progressive supranuclear palsy (PSP), an uncompromising disease that requires seemingly endless amounts of patience and grace. Bob spoke to me almost two...
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    Introducing The Collective Mind

    August 8, 2024 • 1 min
    Meet Oscar and learn more about this original series that will spotlight stories and insights from the CurePSP community and discuss the latest in cutting-edge research. 
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