We Speak To Shalyn Eggleton After Her Son's Potentially Lifesaving Transplant Was Left On The Tarmac
February 22, 2023 • 5 mins
We Speak To Shalyn Eggleton After Her Son's Potentially Lifesaving Transplant Was Left On The Tarmac
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Episode Transcript
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Speaker 1 (00:00):
Robin terial Kid on Brisbane's Kiss ninety seven three.
Speaker 2 (00:05):
If you've been hearing us this morning, you would have
heard in our news at the top of the hour
that our lead story regarding a little boy here in Queensland.
His name is Mateo and he has a very rare condition.
It's not cancer, but it's treated light cancer and he's
been waiting for a really long time for a transplant.
(00:26):
That transplant became available and then something's happened, and we've
got his mum on the phone. Hey, Chialen, Hey, how
you going Mate? They left it on the tarmac.
Speaker 3 (00:39):
Yeah, I honestly don't know how this has happened. There's
no way and there's no reason why it should happen.
Someone should be held accountable.
Speaker 4 (00:47):
It's happened to be immersed, especially in the case of
transplant material. And again we're only going from television and
things we've seen that's ice boxes and protocols would be
transferred anywhere.
Speaker 3 (00:58):
That's it. There should be protocols players, there should be laws,
there should be regulations, there should be someone supervising at
twenty four to seven, like this is a life saving
measure for a little boy and it's just been forgotten.
Like it's not a little thing. It's not you know,
mean like your bread or milk, like this is this
is the medical intervention and the.
Speaker 1 (01:15):
Fact that you're getting it from the US and it's
having to come all that way for them to add
this final hurdle. I mean, the excitement you must have
had knowing it was coming and then to find out
that it's it's not.
Speaker 5 (01:25):
So I understand that we.
Speaker 3 (01:27):
Were you go, oh, that's it, like we were right,
we were all ready for transplanting, I mean coming off Tuesday,
and now for this this is just putt a big
backslashing it.
Speaker 2 (01:36):
Okay, So explain to me how we got to this point.
Speaker 3 (01:40):
So materio materia. As a little baby, he was always sick.
Doctors always said it was crue. Back in twenty nineteen,
went up finally getting answers. He was actually diagnosed. Took
three weeks, but he was diagnosed with a rare condition
called chronic gremula minus disease. He's been fighting that. Had
to have a bone Marrior transplant, his first bone marriage
transplant in twenty twenty, and that was a success that
(02:04):
cured his DGD. Like the cronic griminal minus disease. But
now as a result of that transplant, he's now got
hemi leticodemia where his body's just attacking itself. We've tried
nine different procedures, We've tried different adult chemotherapy drugs and
like this a five year old ottle boy at the time,
Plug maphriesis. We've tried many different things and nothing's worked.
(02:25):
And now our last hope is this transplant. And it
was supposed to be scheduled and booked, you know, I
mean he was supposed to start conditioning on the twenty eighth.
Since next Tuesday, nine days of hard chemos just to
wipe out his whole body and then on the transplant.
Speaker 5 (02:38):
So the transplant is bone marrow.
Speaker 3 (02:40):
He's a bone marriage transplant. That's correct.
Speaker 2 (02:42):
So what happens now? Do we know if the bone
marrow is okay? Like how long did it sit on.
Speaker 3 (02:49):
We have no answers our on colleges. He's an extraordinary doctor.
He just come in on Tuesday pretty much just says like, look,
everything's gone good, but we have a massive problem. We
don't know how long it's been sitting at the air
the airport for we don't know whose fault it is.
We don't know what as viability is until it literally
gets to Australia. The lab tested and it is pretty
(03:11):
much ingrafted into Matao to see if it works or not.
Speaker 4 (03:14):
In the meantime, Matao's a six year old little boy
has been poked and prodded his whole life. At least
you haven't started this next protocol, which has been very
tough on him as well, have you.
Speaker 3 (03:23):
Yeah, So this is going to be one of the
toughest rounds yet because we honestly don't know how this
is going to go, because we actually have tried so
many options and nothing's work. So this is our last hope.
We're pretty much not knowing the outcome. So this is
this is it for Mateo. So if this does not work,
it's not going to end nice. And this is this
(03:44):
is our hope. And just we have a step back
like this, it just we lose hope because what if
something's happened, or what if it was sitting out that
extra longer. We're not going to have all the answers
we need for going into this transplant.
Speaker 5 (03:55):
Now, what can we do? Shaleen? Is there anything anyone
can do?
Speaker 2 (03:59):
Yourselfer shining a light on it, and I'm sure that
the medical people will try and find some answers, but
is it just a matter of waiting.
Speaker 3 (04:08):
So at the current moment, it's just pretty much waiting
to get the word that hopefully fingers crossed, that these
cells will be on the plane or hopefully on the
way sometime soon. And then it's pretty much just getting
the word out to Australias too, that Australian people that
here in Australia there's not actually many people in the
bone marrying registry, like most bone marrow donor recipients actually
come from around the world, Like this is our second
(04:30):
donor from around the world to second transplant. So it's
just pretty much also raising awareness that we do need
donors here in Australia.
Speaker 5 (04:37):
And how do we do that.
Speaker 3 (04:39):
So pretty much it's just going down to like donating blood,
just going down to your local Life bloodston A center
and just saying, hey, I want to be on the
bone marry registry. It's just signing out a couple informations,
just your health background check, a simple blood test that
gets sent off and then if you are a match,
they'll call you. You know, I mean it's in hospital
for a day or two and harvested and then that's it.
(05:01):
It's literally nothing like it's not it's not big for
a person like it's.
Speaker 5 (05:06):
You can all do that.
Speaker 3 (05:07):
You can do you can do it, everyone can do it.
Speaker 1 (05:10):
It's not big, but what a massive gift it is
for someone, you know what I mean.
Speaker 3 (05:14):
Life.
Speaker 2 (05:14):
Okay, so maybe this call, I've got goosebumps all over
my body. If if you, if you can give blood,
go and do that, put your bone marrow up, because maybe,
just maybe someone in Australia might have a match and
all of this will actually result in what you need
to have happened.
Speaker 3 (05:31):
That's it, and then we wouldn't have the issue of
being forgetting at the airport. It would be here in
Australia like it'd be Los delivery guys.
Speaker 5 (05:37):
Book on get to life blood. That's all you got
to do.
Speaker 4 (05:40):
Good luck, keep us posted.
Speaker 3 (05:41):
Hey, I will thank you so much for that.
Speaker 1 (05:44):
Thanks. It's invovant.
Speaker 5 (05:45):
Terry and Kids on Brisbane's Cheese ninety seventy three
Robin terial Kid on Brisbane's Kiss ninety seven three.
Speaker 2 (00:05):
If you've been hearing us this morning, you would have
heard in our news at the top of the hour
that our lead story regarding a little boy here in Queensland.
His name is Mateo and he has a very rare condition.
It's not cancer, but it's treated light cancer and he's
been waiting for a really long time for a transplant.
(00:26):
That transplant became available and then something's happened, and we've
got his mum on the phone. Hey, Chialen, Hey, how
you going Mate? They left it on the tarmac.
Speaker 3 (00:39):
Yeah, I honestly don't know how this has happened. There's
no way and there's no reason why it should happen.
Someone should be held accountable.
Speaker 4 (00:47):
It's happened to be immersed, especially in the case of
transplant material. And again we're only going from television and
things we've seen that's ice boxes and protocols would be
transferred anywhere.
Speaker 3 (00:58):
That's it. There should be protocols players, there should be laws,
there should be regulations, there should be someone supervising at
twenty four to seven, like this is a life saving
measure for a little boy and it's just been forgotten.
Like it's not a little thing. It's not you know,
mean like your bread or milk, like this is this
is the medical intervention and the.
Speaker 1 (01:15):
Fact that you're getting it from the US and it's
having to come all that way for them to add
this final hurdle. I mean, the excitement you must have
had knowing it was coming and then to find out
that it's it's not.
Speaker 5 (01:25):
So I understand that we.
Speaker 3 (01:27):
Were you go, oh, that's it, like we were right,
we were all ready for transplanting, I mean coming off Tuesday,
and now for this this is just putt a big
backslashing it.
Speaker 2 (01:36):
Okay, So explain to me how we got to this point.
Speaker 3 (01:40):
So materio materia. As a little baby, he was always sick.
Doctors always said it was crue. Back in twenty nineteen,
went up finally getting answers. He was actually diagnosed. Took
three weeks, but he was diagnosed with a rare condition
called chronic gremula minus disease. He's been fighting that. Had
to have a bone Marrior transplant, his first bone marriage
transplant in twenty twenty, and that was a success that
(02:04):
cured his DGD. Like the cronic griminal minus disease. But
now as a result of that transplant, he's now got
hemi leticodemia where his body's just attacking itself. We've tried
nine different procedures, We've tried different adult chemotherapy drugs and
like this a five year old ottle boy at the time,
Plug maphriesis. We've tried many different things and nothing's worked.
(02:25):
And now our last hope is this transplant. And it
was supposed to be scheduled and booked, you know, I
mean he was supposed to start conditioning on the twenty eighth.
Since next Tuesday, nine days of hard chemos just to
wipe out his whole body and then on the transplant.
Speaker 5 (02:38):
So the transplant is bone marrow.
Speaker 3 (02:40):
He's a bone marriage transplant. That's correct.
Speaker 2 (02:42):
So what happens now? Do we know if the bone
marrow is okay? Like how long did it sit on.
Speaker 3 (02:49):
We have no answers our on colleges. He's an extraordinary doctor.
He just come in on Tuesday pretty much just says like, look,
everything's gone good, but we have a massive problem. We
don't know how long it's been sitting at the air
the airport for we don't know whose fault it is.
We don't know what as viability is until it literally
gets to Australia. The lab tested and it is pretty
(03:11):
much ingrafted into Matao to see if it works or not.
Speaker 4 (03:14):
In the meantime, Matao's a six year old little boy
has been poked and prodded his whole life. At least
you haven't started this next protocol, which has been very
tough on him as well, have you.
Speaker 3 (03:23):
Yeah, So this is going to be one of the
toughest rounds yet because we honestly don't know how this
is going to go, because we actually have tried so
many options and nothing's work. So this is our last hope.
We're pretty much not knowing the outcome. So this is
this is it for Mateo. So if this does not work,
it's not going to end nice. And this is this
(03:44):
is our hope. And just we have a step back
like this, it just we lose hope because what if
something's happened, or what if it was sitting out that
extra longer. We're not going to have all the answers
we need for going into this transplant.
Speaker 5 (03:55):
Now, what can we do? Shaleen? Is there anything anyone
can do?
Speaker 2 (03:59):
Yourselfer shining a light on it, and I'm sure that
the medical people will try and find some answers, but
is it just a matter of waiting.
Speaker 3 (04:08):
So at the current moment, it's just pretty much waiting
to get the word that hopefully fingers crossed, that these
cells will be on the plane or hopefully on the
way sometime soon. And then it's pretty much just getting
the word out to Australias too, that Australian people that
here in Australia there's not actually many people in the
bone marrying registry, like most bone marrow donor recipients actually
come from around the world, Like this is our second
(04:30):
donor from around the world to second transplant. So it's
just pretty much also raising awareness that we do need
donors here in Australia.
Speaker 5 (04:37):
And how do we do that.
Speaker 3 (04:39):
So pretty much it's just going down to like donating blood,
just going down to your local Life bloodston A center
and just saying, hey, I want to be on the
bone marry registry. It's just signing out a couple informations,
just your health background check, a simple blood test that
gets sent off and then if you are a match,
they'll call you. You know, I mean it's in hospital
for a day or two and harvested and then that's it.
(05:01):
It's literally nothing like it's not it's not big for
a person like it's.
Speaker 5 (05:06):
You can all do that.
Speaker 3 (05:07):
You can do you can do it, everyone can do it.
Speaker 1 (05:10):
It's not big, but what a massive gift it is
for someone, you know what I mean.
Speaker 3 (05:14):
Life.
Speaker 2 (05:14):
Okay, so maybe this call, I've got goosebumps all over
my body. If if you, if you can give blood,
go and do that, put your bone marrow up, because maybe,
just maybe someone in Australia might have a match and
all of this will actually result in what you need
to have happened.
Speaker 3 (05:31):
That's it, and then we wouldn't have the issue of
being forgetting at the airport. It would be here in
Australia like it'd be Los delivery guys.
Speaker 5 (05:37):
Book on get to life blood. That's all you got
to do.
Speaker 4 (05:40):
Good luck, keep us posted.
Speaker 3 (05:41):
Hey, I will thank you so much for that.
Speaker 1 (05:44):
Thanks. It's invovant.
Speaker 5 (05:45):
Terry and Kids on Brisbane's Cheese ninety seventy three
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