Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
AutisticRadio.com (00:03):
We speak our words,
we listen, we speak our words, we listen.
We speak our words.
We listen.
We speak our words.
We listen.
Good evening
Harry-Autistic-Association.org (00:19):
everyone.
This is 555 Harry's Facebook forSunday the 19th of January 2025.
This
is where we go through theFacebook posts on the page.
And we just have a set oftopics to generate from them.
So, the first post is from PeteWharmby, autistic author, who is an
(00:44):
autistic and ADHD writer and speaker onautism and autistic lived experience.
And what he shared is that
When talking or working withautistic people, don't treat
our clarifying questions as achallenge to your authority.
(01:06):
They're just questions sowe don't misunderstand.
It's horrible to misunderstand
all the time.
That's it.
AutisticRadio.com (01:17):
Yeah,
questions are important.
I was reading something about this
yesterday about, , how processing timetakes a wee while for some of us and so
Ray-AutisticRadio.com (01:34):
given time
we eventually, it's not that we
don't understand, but eventuallywe, we understand in our way.
So asking questions is a meansof, you know, clarifying.
Yeah.
And it was something that was broughtup by the chap from Texas we were
talking to during the week about
(01:55):
the method he uses, the Socratic method,which is the idea of asking questions,
a way of revealing what is almostalready known through, asking questions.
So it's definitely an important thingfor the autistic person to help process.
What attracted you to this one, Harry?
(02:16):
What it says to me,
Harry-Autistic-Association.org (02:18):
what
it brings to me, as I can remember
growing up, and I can remember evennow, When you ask questions over
and over to get it into my head,
like instructions, even though somethingmay be simple to the person, that's
(02:41):
kinda given the instruction, likegiven information, I feel that I need
a lot of it to be explained more thantwice, and sometimes even I prefer
it to be on a text written down.
So that I can read itover and over and over.
(03:03):
But, some people take offence if youask questions over and over and over.
Like a manager for instance, likesomeone who thinks that They're actually
helping you by giving you information.
They've probably made it as simpleas possible for you to follow,
but you're asking questions.
(03:24):
It's the same question over and over,and they feel it's like a challenge to
the authority, even though it's not.
And although maybe apart from school,I don't think I've had too much
of that happening to me as such.
But I'm aware that this happens toa lot of autistic people out there.
Ray-AutisticRadio.com (03:45):
Do you remember
the wee kid who was always asking why?
They often think this is an irritatingchild who should be seen and not heard.
But, this is how you find things out.
It's an exploratory nature, isn't it?
But it's also when youdon't fully understand your
environment or other people.
Or you have, you know, adifficult relationship with it.
(04:07):
You need to ask questions.
But when he says misunderstanding here,I sometimes think misunderstanding
can be okay., Sometimes you canget a feel for what somebody means.
You'll never truly know whatthey mean, but you can walk away
with a sense of what they meant.
Misunderstanding can sometimes lead toinnovation and new perspectives and things
(04:30):
because you got it wrong, as it were.
But it's this nasty thing of havingit reinforced in you that you
did get something wrong accordingto everybody else, yeah, which
can be a bit of social pressure.
Nicola-AutisticRadio.com (04:45):
I've been
thinking more about the first part,
about the challenge to authority part,and I think that not recognising, , or
not valuing in the same way, notappreciating in the same way social
hierarchies, , can be read reallynegatively when one of the examples I
think of with this was, I've shared beforethat there's a lot of autistic traits in
(05:08):
my household and I found it was reallydifficult to have any conversations
about Christmas with very curiouschildren who ask very good questions.
And so I do think that there's sometimeswhere the clarifying questions are
a challenge to authority because theauthority is the thing that's you're
(05:28):
meant to be focused on not the illogicalnature of some of these rules or
perhaps some of the lies or perhapssome of the things that you're not
meant to know that a hierarchy can hide.
I personally would have loved to bejust like, there's no such thing as
Christmas, it's nonsense, we're not goingto do that, but I cave to peer pressure
(05:49):
and we do, I begrudgingly celebrateChristmas and I try and make it nice.
But the question, when they were small, Ihad to say, Oh, you best ask Auntie Dani,
she knows much more about that than I do.
Because I couldn't, , I was absolutelycrumbling under their interrogation.
Ray-AutisticRadio.com (06:06):
Good move, Nicola.
Nicola-AutisticRadio.com (06:09):
Yeah, their
aunt was awesome because she could
do that spirit of Christmas thing.
So when they were small, theybelieved that she was an elf, and they
didn't actually hold it against her.
And I don't know if they'veever stopped believing.
That she is also an elf,but I couldn't do it.
I really, really struggled with, whatfelt like lying, and it caused me quite
(06:30):
a lot of stress, actually, , that I thenhad to try and cope with, like, how do
I look after myself when these kids arejust trying to have a nice Christmas?
So I had to rely on my network.
Harry-Autistic-Association.org (06:40):
The next
post is from the KIDD clinic and it's A
psychology service to provide evidencebased, collaborative and respectful
psychological services to provide hope.
And it's based in Boorloo North Perth,in Walyalup, Femantle in Western
Australia and Naarm in Victoria.
(07:04):
And what I've shared from them isthe promotion of an autistic women's
group . The Kidd Clinic is hostingan in person group for clinically
diagnosed or self identifiedautistic women over the age of 18.
In our therapeutic work, we have noticedthere are common areas in which autistic
people are seeking support and guidance.
(07:27):
... we are passionate about providinga safe group space where people can
learn from and support others withshared lived experience and build
connections and a sense of community.
The sessions will include presentationby Dr Miriam Kirby and Melanie Turner,
followed by facilitated discussion.
(07:47):
The five session group begins onSaturday the 22nd of February from 9.
30am to 11am.
Continue the next week and thenfortnightly at our North Perth clinic and
also provides other links for information
(08:08):
. .Nicola-AutisticRadio.com: I was thinking
about, how a good bunch of years ago,
I think it was probably about 2017or 18, that The explanation of autism
kind of floated itself in my mind andI just think how, it took till last
year before I got to go to the EmbraceAutism, group, and got so much from that.
(08:33):
And now it just seems like there'sso many more services like that
available, and I feel kind of likepeople who are coming across this,
coming across like autism or whatever.
Yeah.
Like now, or our sort ofunderstanding now, there's a lot
more available than there was evenlike five years ago, ten years ago.
, it's really dramatically different
AutisticRadio.com (08:53):
now, even
though it's still early days.
, Ray-AutisticRadio.com (08:58):
I was going
to initially mention the women only
aspect of this because I'm in agroup just now and it's a mixture,
and I can see the differing needs,in this group that I'm currently in.
So I think it would be good forwomen to be in, a women only space.
(09:20):
And perhaps men too, it all depends.
It's just a thought that arosethere reading through this.
But there's also this aspect of,like, identifying autism, which
is brought up, I think, here.
, the presentation followed by afacilitated discussion of common
areas in which autistic peopleare seeking support and guidance.
(09:41):
It's like knowing what you want andknowing what you're experiencing.
And I was a wee bit suspiciousat first about a lot of that,
because it seemed like everybodywas kind of reading from a script.
There'd be this
kind of received knowledge of, oh,it's this and it's this and it's this.
But there are things that seem tostick that are common, experiences.
(10:03):
And if you dwell on themenough, you can appreciate them.
And so it's handy, being a facilitateddiscussion with people who've got
a wee bit more knowledge of it thanyourself, or can help you, discuss
AutisticRadio.com (10:15):
it.
For many years,
Harry-Autistic-Association.org (10:20):
autism
was looked upon as a male only, certainly
male dominated condition, disorder,whatever was described by the medical.
So seeing a lot of these womenonly, , groups,, was vital... And
(10:42):
it's great to see that there'smore and more of them, because
it's not before time sort of thing.
Because there's been discussion before,like, because of the medical model
so outdated, the females That areautistic get missed out because of the
way that the diagnosis criteria went.
(11:03):
So a lot of these people will maybe inthese groups that have actually fell
through , the net because of that.
And people can share experiencesof how they feel about that and
certainly give possible advice or
support or just a generalconversation in a safe environment.
It's always nice to seethings like that happening.
(11:25):
The next post is fromNeurodiversity Manitoba.
It's a mental health service.
Neurodiversity affirming livedexperience supports for schools,
adults, families, teens and children.
And it's based in Canada.
And what it's talking about is aboutthe principles of behaviourism.
(11:50):
And what it says is the principles ofbehaviourism are ubiquitous through
society, especially in public educationand in particular with autistic students.
For more than three decades, expertsin child development and related fields
have expressed increasing concernsabout the potential psychological
(12:12):
damage caused by their use.
In more recent years, researchers haveshown even the most positively framed
and implemented behaviour programmes.
May still do more harm than good.
Ray-AutisticRadio.com (12:26):
I'm quite
intrigued that they've got a photograph
of the philosopher Foucault there.
You know, the man with nohair, with all the books.
He's very intrigued by hisidea of language as power.
And of course he also talksabout biopower, which is a
medicalisation of society.
I think I can see the point here becauseif it's the recent kind of form of
(12:51):
behaviorism as practiced, in the areasthat it's practiced in, that might
be a debatable subject, but behavior.
is an aspect of our lives.
And, I wouldn't blameanybody for their behaviour.
I think you have to look at otherthings that cause behaviour to a certain
extent or are a part of behaviour.
(13:12):
But it is a thorny subjectfor getting your, perspective.
Harry-Autistic-Association.org:
Yeah, it certainly is. (13:18):
undefined
I mean, I'm certainly feeling thisin a similar way as well, Raymond,
you know, considering the talksand discussions that we've had, you
know, with many different people.
But it's also worthwhile sharing this sortof stuff so that people can see different
perspectives and people's concerns.
I just thought it was worthwhile, youknow, just as a Canadian perspective.
(13:42):
It just shows you, it's, , it'snot just the UK, it's not just the
United States and Ireland, , itjust shows you how global this is.
Ray-AutisticRadio.com (13:50):
Yeah,
ordered behaviour and discipline
is worldwide, you know, it's kindof how people are raised, isn't it?
And it's like, the idea of behaviour,self or There's all these rules,
that paper over, I think, the realityof, you know, common experience.
But we live in these standardisedarrangements of, like, families and that.
(14:15):
People, assume these things areall natural, and to a certain
extent they possibly are.
But, There are variations and we've got tocontemplate this phrase, neurodivergent.
Harry-Autistic-Association.org (14:28):
The
next post is from Laura Helfeld,
Neurodivergent Nurse Consulting,and it's talking about AAC.
Communication is a human right.
And it's crucial that we learn aboutcommunication options and how to
support AAC users in advocating fortheir rights to education, health care,
(14:54):
relationships, social activities and work.
Please find a link to my blog inthe comments that is signposting
lists which will grow over
time.
Happy learning.
AAC stands for Augmentative andAlternative Communication, which
are ways people use to communicatebesides talking verbal speech.
Ray-AutisticRadio.com (15:20):
Recently I
had this experience of being quite
mute in sort of online discussions.
And I see it as a form of communication.
And what I was saying earlierwas about misunderstanding.
You know, getting a senseof what someone means.
There are varying wayspeople can communicate.
And it's not the expected ways sometimes.
(15:43):
So I'm very curious about anything thatsupports different ways of communicating.
Nicola-AutisticRadio.com (15:51):
Yeah, I
thought about this, quite a lot.
I saw this post come in during the week.
, I think it must just been yesterday.
I was having a look and a memorycame back to me, from when I was a
young nurse and it was , a patientbeing who wanted to communicate
in writing and seeing the nurses.
(16:15):
Refuse to take that communication onboard, you'd be like, nope, she has
to use her words, she has to speak,and it was just this awful, I remember
at the time thinking, gosh, like,listen, this is a way that this person
is trying to get their voice throughand they feel really disempowered.
And now even more, like, myunderstanding is so much deeper.
I just feel so awful.
(16:37):
I couldn't have donemore in that situation.
, it really impressed upon me how
poorly, people can be treated whenthey're not able to use speech.
And I think for people who sometimescan speak and not speak, that's
really not understood either.
I've lost the ability to speakin a few different situations and
(16:58):
it's really quite distressing.
I did see somebody like using an appon their phone that flashed up the
words quite big so that they wereable to kind of communicate, , too.
So that was my thoughts thatcame up for me on this post.
Harry-Autistic-Association.org (17:12):
The
next post is from Autism Discovery,
an educational consultant, anautism specialist mentoring all
autistic people and offeringguided self assessment for adults.
And what they've shared is a picture ofescalators and what it says is, going
(17:36):
up the down escalator could look alot of ways for neurodivergent people.
Fighting against societal forces, humblingour gifts, deferring to those who have
power or influence that we don't have.
Not because we are intimidated,but because sometimes changing at
least some of what is so wrong,can seem better than doing nothing.
(18:01):
We have insights.
We have energy, we have drive,and we are willing to work hard
to contribute to needed change.
But when we are not heard or even listenedto, that can be very hard to sit with.
It can, in time, become so crushing.
(18:21):
When, worse, we also not treatedwith respect or cardamadery because
we are seen as different, or areactually openly treated with disrespect
and a lack of care, then that canbecome pretty much unbearable.
Too many of us know thoserealities and those results.
(18:45):
Because our brains are wired differently,our needs in order to succeed, flourish
and contribute best are different too.
Unaware of my neurodivergence for so long,like so many others, I did what I could to
survive under suffocating circumstances.
Now, instead, many of us arerising and finding ways to put our
(19:08):
energies to use for the good ofeach other, and the good for all.
We have so much to say, and we arenot invested for personal gain.
We strive to help.
We strive to help others.
We stand to help the world.
Help us along, give us a chance, givesupporting someone different a try.
(19:33):
I think you'll be both happyand grateful that you did.
Ray-AutisticRadio.com (19:39):
Think this is
quite positive and, I think I needed
to hear this because recently I've beengetting a wee bit cynical about what I
see as, like, the grift or the businessmodel of, autism discussions online.
It was just a feeling I was gettingsometimes that it, you know It's like
almost a job for some people, whichis fair enough because you're, giving
(20:02):
out your experience as a mutual aid,but sometimes I just got that feeling
and it's good to hear somebody saythe things that are positive here,
reflecting on that, not knowingfor so long and then being able to.
Access that in a positive light.
AutisticRadio.com (20:24):
The
next post is from Dogs for
Harry-Autistic-Association.org (20:28):
autism,
which is a charity organisation,
non profit organisation, animals.
Our vision is to train and provideassistance dogs at no charge to autistic
people of any age anywhere in theUK who will significantly benefit.
(20:50):
Enriching
AutisticRadio.com (20:50):
lives,
expanding horizons.
And they've shared a quote from Grace.
Harry-Autistic-Association.org (20:59):
Makka
will alert me to my anxiety and high
heart rate and help me calm down.
He is my constant, mysoul mate, my best friend
this beautiful quote from Gracehighlights the life changing
bond between our assistance dogs
(21:21):
and their partners.
Dogs like Makka are more than companions.
They provide critical support, helpingindividuals navigate challenges
and enriching lives every day.
At Dogs for Autism, we're proudto see how these incredible
partnerships transform lives.
Nicola-AutisticRadio.com (21:42):
I can't talk
about this too much because I'll start
to cry, but I can really relate, to this.
I got a dog last summer, , andit's been quite life changing.
AutisticRadio.com (21:53):
I
don't have a dog
myself.
I appreciate how a dog, for autismcan be very beneficial for people.
And I've shared a few quotes and stories
Harry-Autistic-Association.org (22:10):
and
always brings a tear to your eye and
in a good way because of the positiveimpact it has on so many people who
feel that if they didn't have a dog,an assistance dog, their lives would
be so much more difficult and there'dbe a lot of things that they can't do.
So it's nice to share these sort ofthings and it's great that these services.
(22:33):
and organizations exist.
Nicola-AutisticRadio.com (22:37):
LinkedIn
user, says, animals are the most
beautiful and accepting creatures.
There should be service animalsof many species for people who may
have allergies to hair and dander.
I love that idea.
I'm thinking of Philip Pullman withhis, everybody had a different animal.
That sounds ace.
, Harry-Autistic-Association.org (22:57):
not
everybody would want to have a dog.
They would want some other kind ofpet that would be sort of similar
to what an assistance dog is.
I don't know how realistic or
how workable that is, butit's certainly a good point.
Ray-AutisticRadio.com (23:15):
There was a woman
on the radio this week who was so into,
insects and exotic creatures that when herbeloved stick insect died, she, she went
to the taxidermist to try and preserve it.
Nicola-AutisticRadio.com (23:28):
There's a
lady local to be here as a pet sheep.
Pooh, she's raised like a weedog and she swears it's just
like the loveliest company.
It's her second sheep becauseher first one just won her heart.
I just think it's lovely.
I remember I was absolutely delightedthe day that she told me about it.
Harry-Autistic-Association.org (23:46):
Yeah,
there's a thing about animals and
AutisticRadio.com (23:49):
autistic people.
The connection, the notfeeling judged, you know,
Harry-Autistic-Association.org:
the comforting relationship, a (23:58):
undefined
lot of people do take to animals.
The next post is from Chloe Hayden.
Blogger.
Autistic, ADHD, boldly me, from Australia.
And it's shown a picture of her being at
(24:20):
an exhibition about dinosaurs.
And she, says , I love being autistic.
I love having special interests.
Neurotypicals are missing out.
AutisticRadio.com (24:33):
What stuck out
to me was the special interest part.
Because in
Harry-Autistic-Association.org:
society, in general, Autistic (24:41):
undefined
special interest to others seemssomething strange or negative, like
an obsession, that sort of thing.
AutisticRadio.com (24:57):
Like,
Harry-Autistic-Association.org:
people that have special interests (24:58):
undefined
about certain things like,
, cars, trains, certain typesof buildings, certain types
AutisticRadio.com (25:11):
of anything.
Harry-Autistic-Association.org:
My special interest, as a boy, (25:12):
undefined
for some reason, was lampposts.
Because I was fascinated how lampposts,were different in different streets
and in different areas and why that is.
So for many years, while otherboys were interested in, you know,
(25:33):
football and all kinds of stufflike that, and cars, I was more
interested in lampposts.
And I'm not so much now, but I likekind of going back to that because that
would have been seen upon as a negativething, or that's strange, that's odd.
But
it wasn't really that odd, itwas actually quite harmless.
I didn't collect them, I didn't take themhome, of course, of course you can't,
(25:56):
but You know, it's just something that
fascinated me.
Nicola-AutisticRadio.com (26:01):
I remember
when I was younger, way before I had any
understanding , of autism or myself, Iused to feel quite guilty for engaging
in, my special interests because, like,I would find a lot of comfort in sort
of recataloging this, , knowledge thatI had, like, kind of just, like, putting
Writing stuff down in different ways.
(26:22):
It just really was so soothing thatit would be like hyper focusing on
tiny little details about things.
And like I knew that I got, I wasresourced by this, but I didn't understand
it and it became such a hidden thing.
And I really worry aboutpeople finding my books.
And there was nothing like shameful in it.
(26:43):
I was judging myself so harshly andit's really nice to be at where.
Chloe, describes in the post andhave that, autistic joy in being able
to engage with my special interestsand I feel like I engage with them
so much more freely now, yeah.
. The
Harry-Autistic-Association.org:
next post is from the Autistic poet. (27:00):
undefined
Public figure.
Life on the spectrum as an autistic adult.
Out and about with my family.
Poems, thoughts and information onall aspects of autism and diagnosis.
And what they've
shared is an
article from the
(27:23):
BBC.
It offers you an 18 year waitfor adult autism assessments.
And what they're saying is,getting an autism diagnosis is not
something you suddenly decide to do.
It is usually the result of yearsof questioning, confusion and upset.
Diagnosis offers the hopes of findingan answer to why you feel different.
(27:43):
To why you act and think the way you
do and to finding somesupport to carry on.
Many people are desperate for a yesno so that they can move forward
on their journey to self discovery.
Some need the confirmationof an autistic mind to put an
(28:06):
end to dark thoughts and pain.
Adults in Oxfordshire who werereferred to after July 2024, now have
to wait 18 years for an assessment.
This cannot be allowed to happen.
These people need help and formany, getting a diagnosis is the
only thing they have to cling to.
Nicola-AutisticRadio.com (28:29):
I just
think that's such a Awful choice.
Oh yeah, we can give youan appointment in 18 years.
That's a humongous wait.
And question that pops into my headis there must be an alternative to
Ray-AutisticRadio.com (28:44):
this.
Isn't self diagnosis the alternative?
But if you're wanting the authoritativeassessment, I suppose you go for that one.
When I had mine two years ago, thatwas a four or five year wait, what
was promised to me back in 2018.
They said it would be about fouror five years, regardless of the
fact that there was a pandemic.
(29:08):
So, yeah, alternatives.
But I think basically it's just thisprivatisation of the health service again.
It's like we're going to haveto pay for things like this.
AutisticRadio.com (29:21):
What I'll do
is read the article it links to
Harry-Autistic-Association.org (29:25):
and
it's from Ethan Gudge from the BBC
News and it's from 20th of December
2024.
Adults waiting an autismdiagnosis may have to wait up to
18 years before being assessed.
The Oxfordshire Adult Autism Diagnosticand Support Service stopped taking on
new patients at the end of November dueto the size of its current waiting list.
(29:49):
In documents seen by the BBC, OxfordAdult Autism Diagnostic and Support
Service has told patients that thosereferred after July of this year will not
be assessed until 2041 at the earliest.
Buckinghamshire andOxfordshire and Berkshire.
West Integrated Care Council, who
(30:13):
oversee adult autism diagnosis inthe county, said it was working
to find a solution to the delays.
Sarah's 19 year old son was recentlyreferred to the service, being told
that their waiting list was closed.
Unfortunately, we've met a bit of adead end with the process already.
(30:35):
As soon as it started,it stopped, she told BBC.
Sarah's son was warned by his GP that atest may take up to a year after being
forwarded to an assessment service.
A few days later, received a letterfrom the surgery to say that they've
just been informed that the clinic inOxfordshire that performs the adult
(30:55):
autism assessments has closed their booksand has such a huge backlog that it's
going to take them 18 years to clear it.
That's almost Sarah'sson's age over again.
He would be 37 by the time hecould even pursue that option.
Hayley from Oxford said her brotheris currently on the waiting list
(31:16):
and will be assessed in 2030.
Which she labelled as just nuts.
That's a really long time in anadult's life who has already been
struggling for many, many yearsto then have to wait even further.
Having seen the waiting times foradults in Oxfordshire, Hayley decided
to pursue a private assessment throughthe NHS Right to Choose policy.
(31:41):
It enables GPs to refer new patientsfor specialist treatment such as . An
ADHD or Autism assessment at anappropriate private healthcare provider.
These costs are provided by the NHS.
Knowledge is power.
And if they're empowered with theknowledge of what they can and can't do,
(32:02):
and what's hard for them, and how theycan work through those challenges, that's
only got to be a positive thing she said.
But Sarah questioned the policy.
Saying it was essentially kickingus up to a clinic we really
don't know anything about.
In a
statement, the local, care board says,As commissioners of this service for
(32:25):
adult patients, we are aware of theorganisation's situation and we are
working with them to find a solution.
The care board added that a demandfor autism assessments in the UK has
significantly increased in recent years.
This rise is largely due to greaterawareness and understanding of autism,
(32:45):
leading more people to seek diagnoses.
So it opens up the story more.
Ray-AutisticRadio.com (32:52):
It's specific
to that area, but I imagine it's
not uncommon, given backlogs.
Although Scotland is slightlydifferent from England regarding health
services, but no great advantage.
It might be getting to a pointwhere they've tried to disadvantage
the autistic community.
I don't know.
I don't want to go down any paranoidloops, but, it does feel sometimes that
(33:16):
getting your assessment and gettingthat empowerment and getting that
knowledge might be something they wantto avoid, they, what society may want
to avoid people obtaining, a bit like,
AutisticRadio.com (33:30):
you know, closing
down spaces or behaving in certain ways.
It's all
about
money.
It's all about lack of
Harry-Autistic-Association.org (33:44):
funding.
So, services are reduced.
Less people are working in theseservices and things are reduced and the
service becomes, I don't want to sayinferior, but what happens is it doesn't
become as effective as it once was.
And if something is reduced andless people are working there and
(34:07):
less work is being done on it, it
would obviously show you that it's onlynatural that it's going to struggle.
But 18 years is ridiculous.
I mean, I
have heard about someone thatI know that was going to go, is
going for an assessment in Glasgow.
(34:30):
For an autism assessment.
And it was told that it would takea considerable amount of time.
It could take one to two years.
And the reason for that isbecause the priority is children.
Early
years.
So adults are kinda pushed to the backof the queue as not being priority
(34:54):
because they're looking at the children.
And it's all down to cost as well and,as I've said before, I mean I thought
one or two years was bad enough, butwhen someone says 18 years, I mean it is
a headline thing, it's a headline thatyou can throw out, but it does actually
have quotes saying, It could take up to2041, until, an assessment can be done,
(35:20):
and that's just the assessment starting,, it's a frustrating one, but it's not
uncommon because a lot of services, inthe UK, including the NHS, are struggling
due to lack of finance, lack of funding.
And there is always an option,which doesn't always get funded
by the NHS, to go down the privateroute, which, I'm aware, can cost
(35:43):
thousands and thousands of pounds.
I don't have an exact figurebut it's very expensive.
I'm gonna move on to final postjust before we finish tonight.
And it's from AUsome Training, whoare an autistic led neuro affirming
training, mentoring, consultancy andsupport for people ready to make the
(36:05):
world a better place for autistics.
And it says, You can imaginemy face when people ask, do
you have a course on autism?
Yes, yes indeed we do.
67 now to be exact.
There is so much to share and learnabout our community and we won't stop at
(36:29):
67 either.
Whether you're interested in spendingtwo hours learning about a specific
topic or if you want to do an in depth30 to 60 hour CPD, we have you covered.
Nicola-AutisticRadio.com:
I love seeing Autistic led, (36:43):
undefined
neuroaffirming.
That sounds, so good.
And as a parent, I'm seeingthe results of Autistic people
doing these sorts of things.
My, , Kids class teacher was sharingthat they'd just been part of a
really great training that's beendeveloped by autistic people that
(37:07):
was like a really collaborative one.
When she was talking about it, Icould hear she was like buzzing.
She was feeling like She's a teacherwho's kind of instinctively kind
of got it and been frustrated abouthow does she communicate this to
other teachers who are not seeingthings in that autism affirming way.
(37:28):
Think this training has been ableto, they were able to kind of work
with give case examples and Reallymake it tangible to the teachers.
So I think our voices really do matter.
Harry-Autistic-Association.org:
Thanks, Nicola. (37:42):
undefined
That ends tonight's broadcast,a really positive note.
So thanks again and thanks everyonewho's taking part tonight, either
through audio or through the text.
Thanks to the people who sharethe posts that we talk about
in this particular broadcast.
It's much appreciatedthat these things exist.
(38:02):
And it just brings so much, Conversation.
Now I'll hand over to Jules.
Jules-AutisticRadio.com (38:09):
It's busy,
and I'm going to quickly go through
some of the different podcast streams.
I recorded recently with , a gentlemanfrom the United States, Scott Frazard,
and we'll be putting that out shortly,and he's , come back to us to say that
he wants to do more with us., He'sout there as an advocate, and he has
(38:35):
a whole thing with YouTube and such.
But the thing that impressed me about himwas how easy it was , to relate to him.
And I think we're goingto enjoy listening to it.
In house, , Raymond and,Lucy have an ongoing project.
(38:56):
We have.
A few recordings in the can
AutisticRadio.com (38:59):
for her
Lucy Autie Unmasked substack.
And an experiment we did recently.
Traveling autistic.
Nicola has taken the helm.
Jules-AutisticRadio.com (39:17):
And she has some
ideas that, , it doesn't just have to
be about wild travel all over the place.
It can be just the ideaof leaving the house.
So, we'll see what Nicoladoes to develop that.
She has two, , episodes alreadymade, interviewing me where
I am at the moment in India.
(39:40):
And, all in all, I can saythat we've started this year
in a very positive place.
Just for the kind ofoutput supports us all.
We regularly meet every Sundayfor the 444 for the drop in.
Different people joining and puttinga voice or putting a text together.
(40:04):
And that feeds us into thekind of ideas that we have.
And that's on top of thestalwart, the 555 with Harry.
Harry's always there and he's alwaysproducing the , Facebook for us.
To inspire us and getthe conversation flowing.
AutisticRadio.com (40:24):
The serious stuff,
we're representing at, , an unusual venue.
The UK SBA, Societyfor Behaviour Analysts.
A controversial
Jules-AutisticRadio.com (40:41):
talk is
going to be shown there by myself.
I'm not going to pull any punches.
I'm going to tell them how we feel.
.. Not just how I feel, but I've beenreceiving, via various social medias
and emails, some of the ideas to put tothe behaviourists, from the advocates
(41:04):
that are out there that make it,
their task, their job, their interest,to look at what behaviourism has done
in the past, but more particularly,Whether it's adapting in the future to
be appropriate for the neurodiversityparadigm, it's always been in conflict.
(41:28):
Autistic radio is about us,it's for us, and it's from us.
Autistic radio is about you, it'sfor you, and it can be from you.
We have, every single Sunday, Drop in.
(41:49):
4 4 4 p. m. every Sunday.
That's not live.
That's us getting together.
Us talking.
Community.
Every Sunday, Harry leads a 5 55 p. m. A discussion around the
Facebook page that he creates.
(42:12):
Involve yourself by suggestingwhat we should talk about next.
Share it with Harry.
AutisticRadio.com (42:20):
And
then, the bigger picture.
Advocate.
Use us.
Jules-AutisticRadio.com:
Speak to the world. (42:28):
undefined
Your project.
Your idea.
Your enthusiasm.
We have a whole range of differentprograms that will fit what you want.
AutisticRadio.com (42:41):
As far
as listening goes, there's
Jules-AutisticRadio.com (42:44):
some
challenging stuff out there.
Because amongst the identity, theentertainment, and the community,
we also make serious programs withAutism professionals challenging
their ideas and bringing whatyou say in other spaces to them.
(43:08):
A lot of those are difficult listens,but it's a holistic gathering.
It comes all together.
Autistic
AutisticRadio.com (43:19):
radio is very varied.
We need a favour.
To encourage us, we need you to share us.
Jules-AutisticRadio.com (43:30):
When you share
us, you give Autistic people power.
When you share us, you makeus impossible to ignore.
Autism When you repost on LinkedInand Facebook and anywhere else,
you're advocating for everybodyin the autistic community.
(43:53):
So pick the things that you'rehappy with and get them out there.
So thank you.
Thank you.
Thank you.
Thank you.
From all of us.