June 22, 2025 • 48 mins
***NEW PODCAST***
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Spectrum Voices Conversation presents "Harry's Facebook - 20th April 2025 - Easter Sunday".
Sharing and discussing topics posted on Autistic Radio's Facebook page. Some items having an Easter theme.
Shared posts originally from:
Reach Every Voice
I've Been Autistic All Along?
Autistic Village
Scottish Ethnic Minority Autistics CIC
Emergence Divergence
Stevo's Autistic Surplus
Recorded on Sunday 20th April 2025.
Podcast runtime - 58 minutes.
#Easter #AlternativeCommunication #Non-speaking
#PersumeCompetence #LateAutistic #UKGovernment
#AutismAct2009 #Restraint #Seclusion #Equality
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(00:02):
We speak our words, we listen,we speak our words, we listen.
We speak our words.
We listen.
We speak our words.
We listen.
this is Harry's Facebook for Sunday,the 20th of April, 2025, Easter Sunday.
So happy Easter everyone, oreveryone that celebrates Easter.
And the first post we're gonna startwith this evening is from Reach
(00:26):
Every Voice, which is a disabilityservice, and described as a practice of
educators working with non-speaking andminimally speaking autistic students.
We teach these students to expressthemselves with alternative communication.
We also collaborate with familiesand schools, and what they've
(00:47):
shared is the following, manywell-meaning people, family, teachers,
behaviors, completely misunderstandthe behaviors of autistic individuals.
And it often leads to people giving up.
Challenging behaviors are oftenseen as original defiance.
He refuses to sit.
She won't do what I ask andcan lead to teachers or parents
(01:09):
saying, that's it, I'm done.
If they don't want to doit, we are not doing it.
It sometimes pushes people to theopposite extreme, the struggle that we
are going to sit here until you do this.
Or the idea you have to finish the thingyou said you were going to do like a
page or three math problems instead ofcontinuing with our agenda or giving up,
(01:33):
we as parents, teachers, and communicationpartners need to listen to and respect
feelings of anxiety and dysregulation.
Certain behaviors areactually coping responses.
In her book Beyond Behaviors, MonaHoo writes, we fail to recognize
that many behaviors representthe body response to stress.
(01:56):
There are ways of compensatingfor and dealing with
a body.
They experience sensoryand motor differences.
We need to remember that our studentsdon't want to give us a hard time.
They're having a
hard time pursue competence.
Oh God.
Wow.
I really want to jump in asquickly as I can on this, Harry.
It's really well put and it follows atheme that I am trying to impress upon
(02:21):
the professionals in behaviorism out therewhen I was at the recent conference, and
I will do it again at the next conference.
The thing that I said to them thatgarnered a lot of them contacting me
separate to say what the power was inthe talk that I gave was when I discussed
the misunderstanding that peopleattempting to support people had about
(02:47):
the behaviors that they were observing.
And I put the propositionthat as an autistic man.
I was able to empathize with what I sawin front of me in an autistic person,
whether that person be an autistic child,an autistic man, woman, transgender,
(03:07):
whatever type of autistic person.
I put forward the proposition that I.Just being autistic gave me a little
bit of a key of empathy that meantthat I would interpret what I was
seeing in front of me very differentlyfrom what they were interpreting.
And I have to say thatthey accepted that people.
Came back to say that what they weretrying to do in this country, in
(03:31):
this small group of forward thinking,progressive behaviorists, I'm not
gonna talk about the whole gamut ofdifferent behavioral interventions that
exist out there in the whole world.
Just this group of people,they are trying to get it.
They don't get it.
(03:51):
But they're trying to get it, andif we can get them to interpret our
behavior in a more accurate way,then I believe that some of the
things that they do in behaviorismwill have some validity for us.
I think a lot of autistic peoplewhen they're hearing me say that here
on autistic radio are going to spitfeathers just on the basis that I'm
(04:12):
saying that it might have validity.
I like these posts.
It's basically a reminder or maybeeven giving a lesson, educating about
not assuming because people that arewell-meaning and people working listed
there, but a lot can be friends and allthat as well is they try to do the best
(04:34):
thing, what they think in their is thebest thing a. I believe are trying to
be understanding, but they feel thatdiscipline and our scope is, the best way
to combat the issue they feel they needto combat because it's been misunderstood.
If someone, a child is kinda behaving,distressed, basically like a meltdown,
(04:57):
which may be misinterpreted a.
Well, they can't get away with this.
They must be punished for that, causinga scene or causing distress to the parent
or causing distress to other people.
So it's nice that these sort ofposts come up to remind people.
It's not as simple as that.
It's not as simple asbeing good and being bad.
(05:19):
It's about being understandingof how different people being
are and how they live, and howthey respond, and how they feel.
Because a lot of the time, I mean,I can remember being young myself,
and there was a lot of sensitivethings, like loud noises, crowded
places and things like that.
But that's with the communicationwhere I speak, there's people
(05:41):
that have communication that's
different, that's alternative.
And that in itself is another thingthat organizations and people are trying
to get people to understand as well.
It's not just about talking.
It's about communicatingdifferent ways and taking the
onboard and pursuing competence.
I was gonna ask about assumedcompetence 'cause it seemed to come
(06:02):
up what you just said there, Harry.
And the earlier what Joel said was thisidea of the behaviorist community as.
It's their interpretationof that assumed competence.
So am I right in understandingit in that context?
I think they don'tunderstand necessarily, and
I think there is such a difference inwhat a behavior might mean for an autistic
(06:27):
person and for a non-autistic person.
It requires a specialism thatnot all professionals have.
In fact, I would say it wasrare for them to have it.
So my cooperation with them, I. It isnot about saying that they have it right.
It's actually saying that thisis something that they need
(06:48):
to look at and they need us tohelp them to reinterpret things.
They need the autistic communityto help them to interpret things.
Somebody in the text has writtenthis assumed normativity.
The power struggle.
What creates the judgment?
That behavior is challenging.
Under what criteria and Isit an assumed normativity?
(07:11):
And yes, you know, the criteriais produced by the outside body.
I. And yes, I believe it is an assumednormativity in most circumstances,
the most progressive professionals,and it takes a lot for them to be
that progressive, get the idea thatof the neurological difference and
(07:32):
of the neurodiversity paradigm.
But an awful lot of it is.
Thinking that they've got it because theyhave the words that they can use, but I
don't believe that until they experienceit a bit more deeper with us guiding
them, that they will get it emotionally.
I. I think they're trying, but Ithink they're failing and that's
(07:56):
why I'm not willing to just say bana, b, a, be because it's out there.
It's big, it's enormous, and it'sgrowing and banning isn't gonna happen.
We need to change it and get thebest people of them to then explain
it to the worst people of them.
That's why I want to cooperate with'em to some degree, is to change
what they do and change what theyunderstand so that we put the input in.
(08:20):
Yes, a neurodivergentsolution, an autistic solution.
'cause you can't just roundup all these people and tell
them to stop and disappear.
You know?
You have to work with them.
It's like any problem inlife, it won't go away.
The next post is from I've beenAutistic all along, who's a blogger
(08:42):
sharing my experience of late diagnosedautism, A DHD with memes, cats,
sunset, sprinkled in qualified autismpeer support worker, and what the
shared is about theautism All along workbook.
Guided self-reflection tool designedfor late discovered autistic
adults, diagnose or self-identified.
(09:05):
It helps you explore your artisticidentity, build self-compassion,
and develop practical strategiesfor living authentically business.
Four adults who recentlydiscovered their artistic.
Anyone struggling to understand howautism shows up in their life, and
people looking for self-compassionateways to support themselves?
What's inside thoughtful prompts tohelp you reflect on your experiences,
(09:29):
a deep dive into masking burnout,sensing needs and boundaries,
practical strategies to support yourwellbeing and encouragement to embrace
your true self without judgment.
I'm Curious about this phrase,your autistic identity.
The only real understanding I have ofthat phrase is what I've shared with other
(09:50):
autistic people in an autistic community.
I think that's where onegains an understanding of.
What is meant by that phrase,your autistic identity?
'cause there is a fear I havethat a lot of it is inherited.
It's almost conditioned.
It comes from outside.
I quite like workbooks like this.
If they're like, if they're done well, and
(10:13):
there's thoughts are comingto my head or a bit like it.
I got some help from an OT to look atsome of my sensory needs, which to help me
with my kind of daily living activities.
And it sounds like it would kind of belike a kind of DIY version of that as
well, like trying to help you serve.
Like , figure yourself out.
(10:34):
And sometimes it's just like,there's just sometimes little ways
of asking questions and reflecting onthings that can just help you to see
things like from a new perspective.
Yeah.
Nicole, it made me think of what you'dsaid a couple of weeks back, or was it
even months back about a book that you'dpicked up from a local community resource?
Yeah.
Self-management to a certain extent.
(10:55):
Yeah, that was like, I remembersaying, I just wish that I could
find out all the things that I'mresponsible for, you know, teaching
my kids as they're trying to grow up.
If there was some lesson where, and theperson was like, well, actually, and
gave me this little booklet and it waskind of looking at all the different.
Activities or your life that you mighthave to go through to get all your deeds
met and how you could approach them.
(11:16):
So yeah, I found that quite helpful.
Yeah, almost like a Howto be a person manual.
I've got a lot of these goodhousekeeping books from the 1920s
and thirties that are really amazing.
You know, about like how to run ahome, how to mend something, how
to get a certain type of stainout of a certain type of material.
They're amazing.
(11:37):
It's just the way my mind works.
I hear these things and I think,what are we learning here?
How to be autistic?
But then again, that's me justputting a negative tongue on it.
You know?
The positive tongue could belike, okay, I am autistic.
I have an autistic experience.
What's the best way of managing this?
Or what is the currentthinking on shared thinking on.
(12:00):
What this experience is like andhow to manage it and be with it.
I like these books, although I don'treally read anything like that now, but
I've read or at least seen these sortof things, you know, over the years.
It's someone's experience, andthen what they also do is they
realize sometime down that journey.
Probably earlier on in the journeythat it's a unique experience
(12:20):
they have and it's not just
a general artistic
experience, it's theirartistic experience.
'cause they speak to other peopleand they realize, as I've done in
the past, you know, people withautism, everybody's different.
Just like basically everything else.
And it's like, it's acollection of these.
(12:43):
Sound bites can even bit researchedand all clear into one workbook,
which would be limited in a waybecause you can't get everyone.
But it's certainly a startingpoint for some people and
the language as well alike.
There used to be the worddiagnosis and it still gets used
because people are diagnosed.
(13:04):
I mean, I was diagnosed and other peopleare diagnosed and get a certificate, you
know, the medical sort of kinda rubberstamp of you're autistic because that's
the way that autism comes about in manypeople's lives, but other people's lives.
People realize it's a way that they areand it's like they're self identified.
, A lot of people this way
feel that they're on the outsidebecause there's a bit of resentment
(13:27):
saying, you're not really autistic.
You need to get the diagnosis youneed to, you're not part of our club.
You know, that's sort of an nonsenseyou seen to get everywhere.
But I like that sort of inclusive languageso that everyone, or at least most people,
you say that a good amount of people,if not everyone would feel included.
And feel that boot would be worthwhilehaving a look at least just a look
(13:50):
over, if not a complete video.
It's just nice.
It's not just about obviously autisticpeople, it's also kinda educating
other people regarding autism and whatto expect and breakdown stereotypes.
Yeah, just putting the notes here toexplain it that you know, we talk often
about advocacy and it's something thathappens to people who may be energized
(14:10):
by their self discovery in this context.
So I put that would I ever feelI have to help other autistic
people with my insights?
Because in the secondpart it said I could be.
Quite unique in my responses.
You know, it's particular to myself andmy own circumstances, but I suppose we're
all out there trying to find a commonlanguage of a shared experience because,
(14:36):
you know, that inclination, isolation,it's not necessarily a positive thing.
I feel like for me, Iwouldn't be just like.
Randomly just want to just do books
just because I'm autistic.
But I did a kind ofrecourse that was similar.
I think it was like Neurodivergent Lou,we've read some of their stuff before
and it was like their work on burnout.
(14:57):
I found it really helpful actually.
And there was quite a few wee bitsand pieces that, carried with me.
Like I didn't take all the wholething, but there was definitely
parts of it that have been helpful.
So I don't think there's any pressure atall to, to kinda go and go up and do that.
But I think if there's like aburning and an actual issue and.
(15:19):
In somebody's life, it's goodto, I dunno I think there it is
just about having resources there.
And my experience of the burnout thingis I didn't feel like it was somebody
sort of self righteously kind ofpreaching to me about how to live at all.
I just felt like a bunch oftools and a bunch of things.
Well, this autism seems tohave some commonalities and.
(15:41):
Like, a lot of people find this andit was like, is it relevant to me?
Yes or no?
And I could just throwit away if it isn't.
I think you're right there, Nicola.
I agree.
With particular issues, you know, , it'sgood to get a bit of advice if somebody's
been through a similar experienceand has some kinda insight to it.
I like how Nicola expressedit, this kind of, if it.
(16:04):
Has relevance.
If it resonates, it'suseful and pick a mix.
You know, pick out the bits youfind useful to you and move on.
And more and more of the resourcesthat are out there now are like that.
. The next post is from Artistic Village.
Which is an education website anddescribes itself as an autistic
(16:26):
community that seeks to educate aboutautistic community culture and identity.
What is shared it saysthat the UK government.
It's launching researchinto how to support autistic
people better and positive.
Note, they use autisticand not people with autism.
They're looking for submissions fromautistic people with or without diagnosis.
(16:47):
So if you're in the UK and havethe time battery bandwidth,
please consider getting involved.
So I looked at the link to UKParliament and it was announced on 2nd
of April.
It says, call for evidence, launched toMark World Autism Acceptance Day, and it
says to Mark, world Autism Acceptance Day.
(17:08):
The House of Lords Committee on theAutism Act 2009 is today launching
its call for evidence, inviting andwritten contributions to its inquiry.
The background, it says Thecommittee wants to understand
how well the autism act.
The government's autism strategy and thestrategy guidance are working so they can
(17:29):
make specific, practical recommendationsabout what the government should do next.
The committee is seeking evidence on keyquestions about how to improve support
for artistic people, including how canpublic understanding and acceptance
of autistic people be improved?
How can the government improve assessment,diagnosis, and post diagnostic support?
(17:50):
How can the government improve theidentification and support of autistic
people when they need it, includingif they do not have a diagnosis.
How can access to healthcare be improved?
How can community support be improved?
How can access to education be improved?
How can support for autistic peopleto find and stay and work be improved?
(18:11):
How can support for autistic peoplewho are in contact with criminal and
youth justice systems be improved?
The committee wants to hear from a widerange of people and organizations with
different experiences and perspectives.
We particularly welcome your viewsif any of the falling applied to
you, your autistic person, includingif you have a diagnosis or if
(18:31):
you consider yourself autistic.
If you have an autisticperson in your family.
Or you care for supportan autistic person.
You work with autistic people in yourjob and you work on research into how to
support autistic people to give everyoneinterested the opportunity to respond.
The call for evidence is open for twomonths, which is longer than usual.
(18:54):
The committee invite interestedpeople to submit written evidence
by Monday, the 2nd of June, 2025.
We are grateful to autistic people workingwith National Autism Charities who gave
us feedback on the call for evidencedocument to make us make it accessible.
We wanna make sure you can send usevidence in a way that works for you.
(19:15):
You are welcome to work with someone else,such as a friend, family member, carer,
to prepare your evidence, ask someoneelse to submit evidence on your behalf.
Ask for help from an organizationthat supports you to prepare your
evidence or submit a voice recordingas evidence which you will transcribe
into a published written document.
You should try to make surethat your submission is no
(19:39):
longer than six pages long.
In total.
If your submission is longerthan six pages, you should
include a one page summary.
This is because we may receive alot of submissions from different
people and we want to be ableto consider each one carefully.
So you can send us your written submissiononline in the Word document format,
(19:59):
using the form available online, oryou can send your written submission
or voice recording by email to HLAutism Act two thousand9@parliament.uk.
Further information is availableon the committee's website.
You can contact on the email I'vealready given if you need to send us
your evidence or if anything is unclear.
(20:20):
Has anybody heard about this?
It seems really important.
I always think i'd be interestedin having a conversation with
you a lot more about it as well.
Those are some questionsI'd love to dream about.
I don't know what it is.
I think it's just abit a defensive thing.
Even though you want to see thingslike this happening, conversations
(20:40):
that more understanding andacceptance as they call it.
It's when , a government does somethingor doing something is how they're going
to do it and how worthwhile it's goingto come or become because you're that
kinda cynical about because I've beeninvolved and maybe many of us have been
involved in so many things with differentorganization, governments, councils.
(21:02):
Et cetera.
And it feels like it's been alot of effort for very little.
, But , it does feel an opportunityto get the voice out there
and get information out there.
So yeah, I'm quite pleased to see them.
I feel bit apprehensive about it.
My expectation is that it'sthe same usual suspects
that are going to reply to this andthat their voice will be much clearer
(21:26):
and much more easy to assimilate.
The big charities, the.
Organized autistic groups that putthemselves out as representative of a much
bigger population than they actually are.
And this is asking for people to givevery personal grassroots experiences.
(21:47):
And the more people who writefrom their own personal grassroots
experience and put it into this.
The more chance there is the usualsuspects will, the power of them will
be diluted, however, yeah I get it.
It does look performative.
It's really well set out ifyou look at the website, but
(22:07):
it does look performative.
And personally I think I will put myefforts into autistic radio instead, but.
I hope other people willtake up this opportunity.
We have something in Scotlandthat is different at the moment.
The pressure towards the learningdisability and autism bill, and
(22:30):
also the call for an ombudsman.
Very different to what's goingon down in England because
they've had this acts in 2009.
That's an important point that this is.
Not Scotland.
Yeah, I'm picking up on that now too.
Yeah, I'm just kinda realizing thatsometimes you just get caught out.
It's important to share and I'm glad we'retalking about it because we're global
(22:52):
anyway, , as a radio, as a Facebook page.
Sometimes because of the makeup ofhow the UK is and where Scotland sits,
there's things that I assume, thatare joined and there's things that are
totally different in terms of lawsand governments and things like that.
So yeah it's good to be on mind that, butit's good that this is happening now, even
(23:13):
though, as I said already apprehensive.
What happens south of the border isvery influential on what happens north
of the border because it's the same bigcharities that span the populations.
The next post is from the Scottishethnic minority artistic CICA
non-profit organization, which striveto improve understanding of being
(23:34):
artistic from the various communitiesof the global majority, and it's a
post about wishing a blessed Easter.
To all who celebrate, to everyoneobserving Easter, we send you warmth,
reflection, and joy as you honorthis sacred time or resurrection,
renewal, and light after darkness.
We know that for many autistic people,especially those from racialized or
(23:58):
faith-based communities, this season canbring complex emotions, the weight of
grief or exclusion in traditional spaces.
The overwhelm of loud gatherings,strong sense or unspoken social rules.
The deep spiritual connection that oftengoes unseen or misunderstood, and yet
there is stress and stillness, meaningthat quiet rituals and join celebrating
(24:22):
in ways that feel authentic, whetheryou're attending midday liturgy, sharing
a meet with loved ones, or honoringthe day through personal reflecting.
Your way of observing is valid,sacred, and enough on this..
It's strange.
I'm kind of going through dumpinga lot of old books and a book
appeared in my hands this morning.
(24:42):
It was cold Easter, and it's by awoman who worked for the Anthro coal.
So it's a strange we angle onEaster, you know, explaining it's
kinda mythical and elemental roots.
But if you take it as just like anotherevent like Christmas and things like
that, these organized kind of holidaysand Easter being a varying one.
(25:05):
You know, I can be a wee bit cynicalabout these things, but I know there
is a need there for people to be apart of some kinda seasonal shift,
which is in the post, you know,when they talk about spiritual and
the deep spiritual connection thatoften goes unseen or misunderstood.
And quiet rituals and all that.
(25:25):
So Easter, what does it mean for you?
This post, like the similar postto Ramadan and Christmas and other
events, , it raises the point,
the issue, the debate, the subject.
Of society having this set ruleof how a festival or an event or
(25:48):
occasion should be celebrated.
And if you do it in a way thatpeople think it's too different,
there's something wrong with you.
Like, you know, especially whenyou're artistic, where you don't
want to be involved too much in loudspaces and loud noises and all that.
You wanna do things yourselfor do something different.
Like I can recall kind of readingstuff from different places about
(26:10):
Christmas and how poems and mediaand it's like there this so called.
Normal.
It doesn't exist.
It's kind of made up, but it'ssort of kinda, that's what you
should aspire to and that's the wayyou should celebrate an occasion.
We know kind of talking aboutit, it doesn't make any sense.
You celebrate it in your own way, whetherit's a big way or where it's a nice,
(26:35):
quiet, spiritual way, especially thingslike Easter and Christmas and Ramadan.
A lot of stuff that's alot of religious stuff.
A lot of it is quiet reflection.
It doesn't have to be big celebration.
It could be quieter and there'snothing wrong with that, but people.
Seem to come across as ifyou do something quiet.
If you celebrate something quiet,you're not celebrating it properly,
(26:57):
and then you're criticized, youshould be celebrating better than
that, you're not making an effort,you know, that sort of nonsense.
So that's what that reminds me of.
And it's just a reminder thatyou do things your own way.
And that's nothing wrong with that.
I like the quiet approach, Harry.
Isn't that what the Quakers are all about?
But you know, anybody canbe quiet and I think it's.
A core kind of thing on some in theneurodivergent community to be quiet
(27:23):
because noise and sensory stimulationis a wee bit too much for us.
I don't do very well with any of thecelebrations because it, like, just
'cause of the changes of routine, itwould probably ask of me and, but I
remember I had a couple of friends like.
Probably about 15 years ago andthey celebrated everything on like
(27:44):
show they were having pancakeson that at Show of Tuesday.
They had all of the celebrations andthey went all in and it was like, it
was really fun to be around and stuff.
But yeah, no, I'm notvery good at celebrations.
The next post is from EmergenceDivergence, the neuro divergent
ramblings of David Gray Hammond,who's an author of books, writer,
(28:07):
blogs, advocate, mentor, trainer, andSelf-described as Professional Nuisance.
I want the shared is about theethics of retrain and seclusion
for autistic people and.
Autistic people are disproportionatelyvictimized by the use of
restrictive practice, also isknown as restrained and seclusion.
(28:30):
Finding accurate statistics on thefrequency of such events is tricky.
Reporting by the professionals usingrestrictive practice is inconsistent,
and many of those autistic peoplesubject to it are unable or unwilling
to report it for a variety of reasons.
I have previously considered the useof such practice in the inpatient
(28:50):
setting, but I feel it necessary totake a broader look at the ethics
of restricted practice in general.
So what is restraint?
Restraint is the intentional limitingof a person's bodily movement.
It can be applied by anotherperson, physical restraint
mechanically through use of strapsand other mechanical devices.
(29:11):
Or even chemically through theuse of sedative medications.
In all cases, there is ofsignificant injury or death, such
as in the case of Max Benson.
What is seclusion?
Seclusion is the restrictionsof a person's liberty, usually
via the use of isolation rooms.
A person on seclusion is usuallyremoved from the presence
(29:33):
of other people by force.
As such is likely to havealso been restrained.
Is restrictive practice ethical?
In terms of Western culture, thereis a legal right to bodily autonomy.
This mean that a person has a rightto use their body as they wish
and not have their body touchedor manipulated without consent.
In this regard, restrictivepractice sets opposed to a
(29:56):
person's right to that autonomy.
There are some complications tothe assumption of autonomy, any
diagnosis of a condition thatmeans a person does not perform.
A neurotypical embodiment can be usedas grounds to remove a person's bodily
autonomy via restrictive practice.
The justification is often that a person,in this case, an autistic person, is
(30:16):
behaving in a manner that infringesupon the boly autonomy of others.
I. In simple terms, if your behavioris perceived as a threat to the
safety of others, then your rightto bodily autonomy can be suspended.
This presents a challenge to autisticpeople who may be prone to behavior and
performance that can be deemed unsafe.
One of the challenges that arisesin the interpretation of what is
necessary for the safety of others.
The
(30:40):
use of restrictive practice and subsequentdenial of autonomy is not broadly
standardized, and usually the decisionto use such practice is at a discretion
of those with greater privilege thanthe person being restrained or secluded.
This
raises questions about the perceptionof behavior in Western culture.
Autistic people are regularlyvictimized by ableist attitudes and
(31:01):
the normativity they are founded upon.
There's an attitude that one should think,feel, and behave in such a way as to cost
systems as little as possible while you'remaximizing your production of capital.
. This means that the target forneuronal society is to have
people behave in such a way tobenefit , Neil neoliberal capitalism.
(31:22):
With regard to restrictive practice,it can be assumed that its use is.
Pro not only due to neuronal standards,but also because it costs less to restrain
an autistic person when at distressthat it does to create an environment
to be more accommodating of their needs.
Further to this is a growth ofautism industrial complex, wherein
(31:46):
interventions for autistic behaviorshave become a hugely lucrative business.
Many organizations produce high profitsfrom the sale and implementation
of restrictive practice training.
This means that there's a financialincentive to normalize the use of the
strain and discourage the alterationof environments that trigger the
(32:06):
ambiguous vector of challenging behavior.
We can see then that not only doautistic people find themselves
perceived to have less of a right to bolyautonomy, their autonomy is for sale.
Financial interest encouraged those with
privilege to create broader thresholdsfor the use of restrictive practice
on autistic people, and subsequentlycompound the disproportionate use of force
(32:32):
against an already marginalized group.
This forms a foundation from which we cansee the unethical nature of restrictive
practice across a broad spectrum.
It may be argued that these ethicalarguments do not only apply to autistic
people, but it should be consideredthat many of the justifications for
such practice favor the liberal useof such practice, more so for autistic
(32:56):
people than for non-autistic people.
It should also not be forgottenthat there are wider issues in how
autistic people are perceived and theimpact this has on society It seems.
Such denial of autonomy acceptable.
It is time that systematic powerstook more accountability for the
(33:17):
unethical applications of suchpractice and the disproportionate
use against autistic people.
I find it like terrifying to imaginelike being in that situation where
somebody else is deciding whetheror not you're going to be like
physically or chemically restrained.
And for autistic behavior to bemisinterpreted like a violence risk.
(33:42):
Oh, that's just horrible.
And it's like, it's really importantthat he's bringing attention to this.
I don't know what else to say just now.
There's a lot there to digest.
I feel these currents are in theair and David picks up on stuff
like that at times, you know.
My thought straight.
Things like the trade wars that aregoing on just now between states and the
(34:04):
self, you know, personal identity canbe seen like that kind of construction.
And so the personal autonomy beingmade criminal because of its lack of
productivity or its challenging behavior,you know, these are things we have to
be aware of, you know, they're going on.
And so it is a deepdiscussion to be had here.
(34:26):
It does bring up a point, I mean, whenyou talk about capitalism, it sounds
like you're going on a sort of politicalsort of kinda rant, but you're not,
You're just talkingabout the way society is.
And the society
we currently live in is about finance.
It's about money.
It's about what costs money, what costsless, what makes profit, et cetera.
(34:49):
So that's always going to come intoplay even in these sort of situations.
And that's why things areas they are for many people,
, the first time I've ever heardof that word was strained.
Was one time before my diagnosis,I was in an adolescent unit in
Glasgow and I was going through a hard
(35:13):
time.
I was kinda not long in the unit,and this was actually myself.
, It was like self admittance basically.
'cause I wanted to, you know,find out what was wrong.
'cause I felt there was somethingcredibly wrong with me and I was
like feeling suicidal and things.
I went, we need to get the bottom of this.
And I think there was this one time Ijust sort of kinda lashed out and started
kinda hitting my door outta frustration.
I can't remember what happened, butsomething triggered me and the two.
(35:35):
Ran to me and they heldme to calm me down.
And that felt like that was what they weredoing was restraining, but they didn't
any kinda time into a bed or anything.
But it was like a physical, sort of kindalike calmed down and thinking about it.
Actually, probably the worst thingyou can do to autistic person.
But they didn't know I was autistic.
I didn't know I was autistic at time.
But it did calm me down.
I did actually speak toone of them afterwards and.
(35:58):
I actually feel a bit better consideringjust thinking that happening to people.
You know, a misunderstanding someoneor you're being, you know, just
misinterpreted or even dare I say,abuse someday, you know, a bit of power.
'cause you do get that and peoplejust being kinda thrown about
or tied to a bed and all that.
(36:19):
It's all that stuff you kind of worryabout that will be happening to people.
There will be a lot of cases, and that'swhat David was alluding to as well.
It's interesting it's quite kindaheart wrenching to know that
there's many people are within asystem that's not helping them.
We have policy that maybehasn't been explicit but is
implied here at Autistic Radio
(36:41):
We cooperated with the UK Societyfor Behavior Analysts on the
basis, partly because they arealigned with the restraint
reduction network here in the uk.
And the same for the PBS conferencethat we are cooperating with from
BILD build, who are also part ofthe Restraint Reduction Network.
(37:05):
The Restraint Reduction Network is calleda coalition of the Willing, an independent
network, which brings together committedorganizations providing education,
health, and social care services.
With an ambitious vision to reducereliance on restrictive practices and make
a real difference in the lives of people.
Now, an awful lot of people in theautistic community have experienced
(37:27):
restraint, and there is a suspicion thatthe restraint reduction network itself.
Is also part of the autismmoneymaking construct and
that there is suspicion that peoplewho take courses to reduce restraint
(37:48):
are actually ending up usingslightly different techniques and.
The individual is not necessarilyreceiving the best care, so
this is a very difficult area.
Human beings restrain each other,take control each other, and
hold power over each other, andthey do it within a structure in
(38:12):
society that they do as a paid job.
So it's really good that David GreyHammond is bringing this forward
and it would be interested to speakwith him at length, perhaps one in
one of our broadcasts at some point.
The next post is from SteveO's Artistic Surplus, who's
(38:34):
a digital creator, A-U-D-H-D.
Me guy dealing with chronic painand just life in general and
what is shared as a following.
The world is even more scary place than itis to be different person at the moment,
being disabled, autistic, transgender.
Bipoc or any other person who isnot visibly and openly white, cis,
(38:57):
typical and straight every day.
People in positions of power are sayingthe most dehumanizing shit about anyone
who dares to diverse from the socialnorms, making laws that strip people
of their rights, making decisions thataffect the sport, understanding and
aid those people need and deserve.
Debating whether they have a right toexist and the terms of their existence.
(39:21):
People are applauding what ispretty much a reset and all the
progressive work and forward thinking.
We as society and as a humanrace, have pushed for and worked
towards for such a long time.
Celebrities are being seen asheroes who are fighting against and
what has been deemed a woke virus.
In reality, they're just dismantling avirus, which is just basic human kindness
(39:44):
and saying people should have the rightto exist without having to conform
to a very outdated view of humanity.
At the moment, if you fit intotheir world of normal, you are safe.
But the thing is once they runout of different people to blame,
then their view will come to you.
Defendant support the vulnerablenow because the elite will always
(40:05):
need someone to call parasitesand it could be you next.
It's quite powerful and intense, thisparticular post, but I felt it was
very important , to share becauseof the current kind of political
and societal kind of environmentwe currently are living in.
Which itself is, you know, it's actuallytearing a lot of people apart in terms
(40:27):
of the qualities and things because theydifferent perspective of different things.
And it is very concerning for many peoplein the community, especially if you're
perceived as different from the norm.
It's like, which group's going be thenext scapegoat for society's ills?
Yeah, we are very much on the list.
(40:47):
Neurodivergency,
neurodivergent, people, neurodiversity
are very much on the listand you've got two choices.
You either put your head down andtry to pretend it is not happening.
Or you do something within yourown atmosphere, within your own
(41:07):
powers, within your own levelof safety to stand against these
thoughts.
I choose
to stand against these thoughts byspeaking here on autistic radio,
and other people can do that too.
The real historical issue is.
That we are in a phase of societythat is very much like the late
(41:30):
twenties, early thirties, wheredifferent groups in societies are
blamed by the people in power forthe inequality that they create.
So the scapegoats are beingpointed to so that we.
Scapegoat parts of our society
and don't notice the realpeople with the power.
(41:53):
And there was a poem that waswritten about the 1930s that
went along the lines of,first they came for one group.
And then it didn't worry me becauseI wasn't part of that group.
And then they came for anothergroup, and then they came for another
group and then they came for me.
(42:14):
So within your own safety zoneand within your own comfort, it
is important to speak against whatmight seem the overwhelming odds.
But remember the algorithm thatyou are exposed to makes things look
a lot bleecker than it really is.
So don't believe that thesepeople have all the power.
(42:35):
They don't.
And you have to remember whathappened to those people in the
past who performed like that.
And if you have short memories.
Even the things that, thatmay appear obvious or whatever
you want to put, I mean,
the, you know, the thing thatgets me is I'm just seeing a lot
(42:55):
of pain, a lot of people beingtrotted on, and it's not just, you
know, about a lot of this stuff.
It's about, you know, people, youknow, people and benefits and all
that are getting attacked as well.
They're choosing to pickin different people.
In, they're picking in immigrants as well.
It's just like they're picking indifferent people and blaming all
these different sections of peoplein society, and it doesn't actually
(43:18):
make sense in what they're saying, butdespite it in my head, not making sense.
Some people are buying into itjust because of the way it's been
sold, the way it's been presented.
And I'm glad that I'm involved in,you know, things such as this as
a radio and other kind of positivekind of community movements because
it'd be a very lonely place withoutthat just the heart that I'm seeing.
(43:41):
It's getting lashed out.
That's what's getting to be the most,there's a lot of the kind of political
stuff in that as well, but it's justpeople being targeted and targeted
in a big way, in a bad way, and Ijust find it absolutely atrocious.
It's happening.
Leave people alone.
,. So thank you very much for everyone that's taking part tonight, and a special
(44:02):
thanks to people that share those poststhat we're able to share and discuss.
So this is Harry's Facebookfor Sunday the 20th.
Of April, 2025, which is Easter Sunday,so thank you for listening and hand over.
Thanks Harry.
A great show as usual.
Such a lot to think about.
(44:24):
This is the point of the show wherewe talk about some of the work that
we do here on autistic radio and thework of autistic association, the
charity that we created as autisticpeople to support autistic radio.
I'm just going to try and encouragepeople to understand what we do here.
(44:46):
The 5 5 5 show is where we talk aboutthe Facebook that Harry creates.
, It's not one of those ordinarykind of Facebook pages.
What Harry does is he specificallyfinds the things out there.
That are most interesting to us, thatwill start a conversation for the show.
Sometimes it's possible that wewill say things that don't express
(45:11):
what the original poster might beputting down there because we use
what's there in the public domainof social media to inspire us to say
things that are in our own heads.
None of this is intended to becritical of the original poster.
We're all different.
We all have our own ideas, and we allhave things that we want to think about.
(45:32):
If there's a possibility that youwish to put your words out there,
then the 5, 5 5 is a place where youcan join the group and be part of it.
Most people, however, start by cominginto the 4, 4, 4 drop in the four.
Four is 4 (45:50):
44 PM UK time every Sunday.
The 5 5 5 is 5:55 PM every Sunday.
Starting with the 4, 4, 4 isa way that you can join in
with the conversation in text.
Just listen and also put your voiceto it when you feel comfortable,
(46:11):
if that's what you wish to do.
The 4, 4, 4 is intended to beautistic people supporting each other
and always being reliably there.
So even though today is an Easter holiday,a religious holiday for many people, the
4, 4 4 was still there . Just the sameas we are making this recording for the
(46:31):
5, 5, 5, at least 50 weeks of the year.
We are reliable here at autisticradio, and that's important to us all.
Autistic radio is about us.
It's for us, and it's from us.
Autistic Radio is about you.
It's for you, and it can be from you.
We have every single Sunday dropin four, four 4:00 PM every Sunday.
(46:56):
That's not live.
That's us getting together,us talking community.
Every Sunday, Harry leads a fivefive 5:00 PM a discussion around
the Facebook page that he creates.
Involve yourself by suggestingwhat we should talk about next.
Share it with Harry and.
The bigger picture, advocate, use us.
(47:19):
Speak to the world, your project,your idea, your enthusiasm.
We have a whole range of differentprograms that will fit what you want.
As far as listening goes, there'ssome challenging stuff out there.
Because amongst the identity, theentertainment, and the community,
we also make serious programs withautism professionals challenging
(47:42):
their ideas and bringing whatyou say in other spaces to them.
A lot of those are difficult listens,but it's a holistic gathering.
It comes all together.
Autistic radio is very varied.
We need a favor to encourage us.
We need you to share us.
When you share us.
You give autistic people power.
(48:05):
When you share us, you makeus impossible to ignore.
When you repost on LinkedIn and Facebookand anywhere else, you are advocating
for everybody in the autistic community.
So pick the things that you arehappy with and get them out there.
So thank you, thank you, thankyou, thank you from all of us.
We speak our words, we listen,we speak our words, we listen.
We speak our words.
We listen.
We speak our words.
We listen.
this is Harry's Facebook for Sunday,the 20th of April, 2025, Easter Sunday.
So happy Easter everyone, oreveryone that celebrates Easter.
And the first post we're gonna startwith this evening is from Reach
(00:26):
Every Voice, which is a disabilityservice, and described as a practice of
educators working with non-speaking andminimally speaking autistic students.
We teach these students to expressthemselves with alternative communication.
We also collaborate with familiesand schools, and what they've
(00:47):
shared is the following, manywell-meaning people, family, teachers,
behaviors, completely misunderstandthe behaviors of autistic individuals.
And it often leads to people giving up.
Challenging behaviors are oftenseen as original defiance.
He refuses to sit.
She won't do what I ask andcan lead to teachers or parents
(01:09):
saying, that's it, I'm done.
If they don't want to doit, we are not doing it.
It sometimes pushes people to theopposite extreme, the struggle that we
are going to sit here until you do this.
Or the idea you have to finish the thingyou said you were going to do like a
page or three math problems instead ofcontinuing with our agenda or giving up,
(01:33):
we as parents, teachers, and communicationpartners need to listen to and respect
feelings of anxiety and dysregulation.
Certain behaviors areactually coping responses.
In her book Beyond Behaviors, MonaHoo writes, we fail to recognize
that many behaviors representthe body response to stress.
(01:56):
There are ways of compensatingfor and dealing with
a body.
They experience sensoryand motor differences.
We need to remember that our studentsdon't want to give us a hard time.
They're having a
hard time pursue competence.
Oh God.
Wow.
I really want to jump in asquickly as I can on this, Harry.
It's really well put and it follows atheme that I am trying to impress upon
(02:21):
the professionals in behaviorism out therewhen I was at the recent conference, and
I will do it again at the next conference.
The thing that I said to them thatgarnered a lot of them contacting me
separate to say what the power was inthe talk that I gave was when I discussed
the misunderstanding that peopleattempting to support people had about
(02:47):
the behaviors that they were observing.
And I put the propositionthat as an autistic man.
I was able to empathize with what I sawin front of me in an autistic person,
whether that person be an autistic child,an autistic man, woman, transgender,
(03:07):
whatever type of autistic person.
I put forward the proposition that I.Just being autistic gave me a little
bit of a key of empathy that meantthat I would interpret what I was
seeing in front of me very differentlyfrom what they were interpreting.
And I have to say thatthey accepted that people.
Came back to say that what they weretrying to do in this country, in
(03:31):
this small group of forward thinking,progressive behaviorists, I'm not
gonna talk about the whole gamut ofdifferent behavioral interventions that
exist out there in the whole world.
Just this group of people,they are trying to get it.
They don't get it.
(03:51):
But they're trying to get it, andif we can get them to interpret our
behavior in a more accurate way,then I believe that some of the
things that they do in behaviorismwill have some validity for us.
I think a lot of autistic peoplewhen they're hearing me say that here
on autistic radio are going to spitfeathers just on the basis that I'm
(04:12):
saying that it might have validity.
I like these posts.
It's basically a reminder or maybeeven giving a lesson, educating about
not assuming because people that arewell-meaning and people working listed
there, but a lot can be friends and allthat as well is they try to do the best
(04:34):
thing, what they think in their is thebest thing a. I believe are trying to
be understanding, but they feel thatdiscipline and our scope is, the best way
to combat the issue they feel they needto combat because it's been misunderstood.
If someone, a child is kinda behaving,distressed, basically like a meltdown,
(04:57):
which may be misinterpreted a.
Well, they can't get away with this.
They must be punished for that, causinga scene or causing distress to the parent
or causing distress to other people.
So it's nice that these sort ofposts come up to remind people.
It's not as simple as that.
It's not as simple asbeing good and being bad.
(05:19):
It's about being understandingof how different people being
are and how they live, and howthey respond, and how they feel.
Because a lot of the time, I mean,I can remember being young myself,
and there was a lot of sensitivethings, like loud noises, crowded
places and things like that.
But that's with the communicationwhere I speak, there's people
(05:41):
that have communication that's
different, that's alternative.
And that in itself is another thingthat organizations and people are trying
to get people to understand as well.
It's not just about talking.
It's about communicatingdifferent ways and taking the
onboard and pursuing competence.
I was gonna ask about assumedcompetence 'cause it seemed to come
(06:02):
up what you just said there, Harry.
And the earlier what Joel said was thisidea of the behaviorist community as.
It's their interpretationof that assumed competence.
So am I right in understandingit in that context?
I think they don'tunderstand necessarily, and
I think there is such a difference inwhat a behavior might mean for an autistic
(06:27):
person and for a non-autistic person.
It requires a specialism thatnot all professionals have.
In fact, I would say it wasrare for them to have it.
So my cooperation with them, I. It isnot about saying that they have it right.
It's actually saying that thisis something that they need
(06:48):
to look at and they need us tohelp them to reinterpret things.
They need the autistic communityto help them to interpret things.
Somebody in the text has writtenthis assumed normativity.
The power struggle.
What creates the judgment?
That behavior is challenging.
Under what criteria and Isit an assumed normativity?
(07:11):
And yes, you know, the criteriais produced by the outside body.
I. And yes, I believe it is an assumednormativity in most circumstances,
the most progressive professionals,and it takes a lot for them to be
that progressive, get the idea thatof the neurological difference and
(07:32):
of the neurodiversity paradigm.
But an awful lot of it is.
Thinking that they've got it because theyhave the words that they can use, but I
don't believe that until they experienceit a bit more deeper with us guiding
them, that they will get it emotionally.
I. I think they're trying, but Ithink they're failing and that's
(07:56):
why I'm not willing to just say bana, b, a, be because it's out there.
It's big, it's enormous, and it'sgrowing and banning isn't gonna happen.
We need to change it and get thebest people of them to then explain
it to the worst people of them.
That's why I want to cooperate with'em to some degree, is to change
what they do and change what theyunderstand so that we put the input in.
(08:20):
Yes, a neurodivergentsolution, an autistic solution.
'cause you can't just roundup all these people and tell
them to stop and disappear.
You know?
You have to work with them.
It's like any problem inlife, it won't go away.
The next post is from I've beenAutistic all along, who's a blogger
(08:42):
sharing my experience of late diagnosedautism, A DHD with memes, cats,
sunset, sprinkled in qualified autismpeer support worker, and what the
shared is about theautism All along workbook.
Guided self-reflection tool designedfor late discovered autistic
adults, diagnose or self-identified.
(09:05):
It helps you explore your artisticidentity, build self-compassion,
and develop practical strategiesfor living authentically business.
Four adults who recentlydiscovered their artistic.
Anyone struggling to understand howautism shows up in their life, and
people looking for self-compassionateways to support themselves?
What's inside thoughtful prompts tohelp you reflect on your experiences,
(09:29):
a deep dive into masking burnout,sensing needs and boundaries,
practical strategies to support yourwellbeing and encouragement to embrace
your true self without judgment.
I'm Curious about this phrase,your autistic identity.
The only real understanding I have ofthat phrase is what I've shared with other
(09:50):
autistic people in an autistic community.
I think that's where onegains an understanding of.
What is meant by that phrase,your autistic identity?
'cause there is a fear I havethat a lot of it is inherited.
It's almost conditioned.
It comes from outside.
I quite like workbooks like this.
If they're like, if they're done well, and
(10:13):
there's thoughts are comingto my head or a bit like it.
I got some help from an OT to look atsome of my sensory needs, which to help me
with my kind of daily living activities.
And it sounds like it would kind of belike a kind of DIY version of that as
well, like trying to help you serve.
Like , figure yourself out.
(10:34):
And sometimes it's just like,there's just sometimes little ways
of asking questions and reflecting onthings that can just help you to see
things like from a new perspective.
Yeah.
Nicole, it made me think of what you'dsaid a couple of weeks back, or was it
even months back about a book that you'dpicked up from a local community resource?
Yeah.
Self-management to a certain extent.
(10:55):
Yeah, that was like, I remembersaying, I just wish that I could
find out all the things that I'mresponsible for, you know, teaching
my kids as they're trying to grow up.
If there was some lesson where, and theperson was like, well, actually, and
gave me this little booklet and it waskind of looking at all the different.
Activities or your life that you mighthave to go through to get all your deeds
met and how you could approach them.
(11:16):
So yeah, I found that quite helpful.
Yeah, almost like a Howto be a person manual.
I've got a lot of these goodhousekeeping books from the 1920s
and thirties that are really amazing.
You know, about like how to run ahome, how to mend something, how
to get a certain type of stainout of a certain type of material.
They're amazing.
(11:37):
It's just the way my mind works.
I hear these things and I think,what are we learning here?
How to be autistic?
But then again, that's me justputting a negative tongue on it.
You know?
The positive tongue could belike, okay, I am autistic.
I have an autistic experience.
What's the best way of managing this?
Or what is the currentthinking on shared thinking on.
(12:00):
What this experience is like andhow to manage it and be with it.
I like these books, although I don'treally read anything like that now, but
I've read or at least seen these sortof things, you know, over the years.
It's someone's experience, andthen what they also do is they
realize sometime down that journey.
Probably earlier on in the journeythat it's a unique experience
(12:20):
they have and it's not just
a general artistic
experience, it's theirartistic experience.
'cause they speak to other peopleand they realize, as I've done in
the past, you know, people withautism, everybody's different.
Just like basically everything else.
And it's like, it's acollection of these.
(12:43):
Sound bites can even bit researchedand all clear into one workbook,
which would be limited in a waybecause you can't get everyone.
But it's certainly a startingpoint for some people and
the language as well alike.
There used to be the worddiagnosis and it still gets used
because people are diagnosed.
(13:04):
I mean, I was diagnosed and other peopleare diagnosed and get a certificate, you
know, the medical sort of kinda rubberstamp of you're autistic because that's
the way that autism comes about in manypeople's lives, but other people's lives.
People realize it's a way that they areand it's like they're self identified.
, A lot of people this way
feel that they're on the outsidebecause there's a bit of resentment
(13:27):
saying, you're not really autistic.
You need to get the diagnosis youneed to, you're not part of our club.
You know, that's sort of an nonsenseyou seen to get everywhere.
But I like that sort of inclusive languageso that everyone, or at least most people,
you say that a good amount of people,if not everyone would feel included.
And feel that boot would be worthwhilehaving a look at least just a look
(13:50):
over, if not a complete video.
It's just nice.
It's not just about obviously autisticpeople, it's also kinda educating
other people regarding autism and whatto expect and breakdown stereotypes.
Yeah, just putting the notes here toexplain it that you know, we talk often
about advocacy and it's something thathappens to people who may be energized
(14:10):
by their self discovery in this context.
So I put that would I ever feelI have to help other autistic
people with my insights?
Because in the secondpart it said I could be.
Quite unique in my responses.
You know, it's particular to myself andmy own circumstances, but I suppose we're
all out there trying to find a commonlanguage of a shared experience because,
(14:36):
you know, that inclination, isolation,it's not necessarily a positive thing.
I feel like for me, Iwouldn't be just like.
Randomly just want to just do books
just because I'm autistic.
But I did a kind ofrecourse that was similar.
I think it was like Neurodivergent Lou,we've read some of their stuff before
and it was like their work on burnout.
(14:57):
I found it really helpful actually.
And there was quite a few wee bitsand pieces that, carried with me.
Like I didn't take all the wholething, but there was definitely
parts of it that have been helpful.
So I don't think there's any pressure atall to, to kinda go and go up and do that.
But I think if there's like aburning and an actual issue and.
(15:19):
In somebody's life, it's goodto, I dunno I think there it is
just about having resources there.
And my experience of the burnout thingis I didn't feel like it was somebody
sort of self righteously kind ofpreaching to me about how to live at all.
I just felt like a bunch oftools and a bunch of things.
Well, this autism seems tohave some commonalities and.
(15:41):
Like, a lot of people find this andit was like, is it relevant to me?
Yes or no?
And I could just throwit away if it isn't.
I think you're right there, Nicola.
I agree.
With particular issues, you know, , it'sgood to get a bit of advice if somebody's
been through a similar experienceand has some kinda insight to it.
I like how Nicola expressedit, this kind of, if it.
(16:04):
Has relevance.
If it resonates, it'suseful and pick a mix.
You know, pick out the bits youfind useful to you and move on.
And more and more of the resourcesthat are out there now are like that.
. The next post is from Artistic Village.
Which is an education website anddescribes itself as an autistic
(16:26):
community that seeks to educate aboutautistic community culture and identity.
What is shared it saysthat the UK government.
It's launching researchinto how to support autistic
people better and positive.
Note, they use autisticand not people with autism.
They're looking for submissions fromautistic people with or without diagnosis.
(16:47):
So if you're in the UK and havethe time battery bandwidth,
please consider getting involved.
So I looked at the link to UKParliament and it was announced on 2nd
of April.
It says, call for evidence, launched toMark World Autism Acceptance Day, and it
says to Mark, world Autism Acceptance Day.
(17:08):
The House of Lords Committee on theAutism Act 2009 is today launching
its call for evidence, inviting andwritten contributions to its inquiry.
The background, it says Thecommittee wants to understand
how well the autism act.
The government's autism strategy and thestrategy guidance are working so they can
(17:29):
make specific, practical recommendationsabout what the government should do next.
The committee is seeking evidence on keyquestions about how to improve support
for artistic people, including how canpublic understanding and acceptance
of autistic people be improved?
How can the government improve assessment,diagnosis, and post diagnostic support?
(17:50):
How can the government improve theidentification and support of autistic
people when they need it, includingif they do not have a diagnosis.
How can access to healthcare be improved?
How can community support be improved?
How can access to education be improved?
How can support for autistic peopleto find and stay and work be improved?
(18:11):
How can support for autistic peoplewho are in contact with criminal and
youth justice systems be improved?
The committee wants to hear from a widerange of people and organizations with
different experiences and perspectives.
We particularly welcome your viewsif any of the falling applied to
you, your autistic person, includingif you have a diagnosis or if
(18:31):
you consider yourself autistic.
If you have an autisticperson in your family.
Or you care for supportan autistic person.
You work with autistic people in yourjob and you work on research into how to
support autistic people to give everyoneinterested the opportunity to respond.
The call for evidence is open for twomonths, which is longer than usual.
(18:54):
The committee invite interestedpeople to submit written evidence
by Monday, the 2nd of June, 2025.
We are grateful to autistic people workingwith National Autism Charities who gave
us feedback on the call for evidencedocument to make us make it accessible.
We wanna make sure you can send usevidence in a way that works for you.
(19:15):
You are welcome to work with someone else,such as a friend, family member, carer,
to prepare your evidence, ask someoneelse to submit evidence on your behalf.
Ask for help from an organizationthat supports you to prepare your
evidence or submit a voice recordingas evidence which you will transcribe
into a published written document.
You should try to make surethat your submission is no
(19:39):
longer than six pages long.
In total.
If your submission is longerthan six pages, you should
include a one page summary.
This is because we may receive alot of submissions from different
people and we want to be ableto consider each one carefully.
So you can send us your written submissiononline in the Word document format,
(19:59):
using the form available online, oryou can send your written submission
or voice recording by email to HLAutism Act two thousand9@parliament.uk.
Further information is availableon the committee's website.
You can contact on the email I'vealready given if you need to send us
your evidence or if anything is unclear.
(20:20):
Has anybody heard about this?
It seems really important.
I always think i'd be interestedin having a conversation with
you a lot more about it as well.
Those are some questionsI'd love to dream about.
I don't know what it is.
I think it's just abit a defensive thing.
Even though you want to see thingslike this happening, conversations
(20:40):
that more understanding andacceptance as they call it.
It's when , a government does somethingor doing something is how they're going
to do it and how worthwhile it's goingto come or become because you're that
kinda cynical about because I've beeninvolved and maybe many of us have been
involved in so many things with differentorganization, governments, councils.
(21:02):
Et cetera.
And it feels like it's been alot of effort for very little.
, But , it does feel an opportunityto get the voice out there
and get information out there.
So yeah, I'm quite pleased to see them.
I feel bit apprehensive about it.
My expectation is that it'sthe same usual suspects
that are going to reply to this andthat their voice will be much clearer
(21:26):
and much more easy to assimilate.
The big charities, the.
Organized autistic groups that putthemselves out as representative of a much
bigger population than they actually are.
And this is asking for people to givevery personal grassroots experiences.
(21:47):
And the more people who writefrom their own personal grassroots
experience and put it into this.
The more chance there is the usualsuspects will, the power of them will
be diluted, however, yeah I get it.
It does look performative.
It's really well set out ifyou look at the website, but
(22:07):
it does look performative.
And personally I think I will put myefforts into autistic radio instead, but.
I hope other people willtake up this opportunity.
We have something in Scotlandthat is different at the moment.
The pressure towards the learningdisability and autism bill, and
(22:30):
also the call for an ombudsman.
Very different to what's goingon down in England because
they've had this acts in 2009.
That's an important point that this is.
Not Scotland.
Yeah, I'm picking up on that now too.
Yeah, I'm just kinda realizing thatsometimes you just get caught out.
It's important to share and I'm glad we'retalking about it because we're global
(22:52):
anyway, , as a radio, as a Facebook page.
Sometimes because of the makeup ofhow the UK is and where Scotland sits,
there's things that I assume, thatare joined and there's things that are
totally different in terms of lawsand governments and things like that.
So yeah it's good to be on mind that, butit's good that this is happening now, even
(23:13):
though, as I said already apprehensive.
What happens south of the border isvery influential on what happens north
of the border because it's the same bigcharities that span the populations.
The next post is from the Scottishethnic minority artistic CICA
non-profit organization, which striveto improve understanding of being
(23:34):
artistic from the various communitiesof the global majority, and it's a
post about wishing a blessed Easter.
To all who celebrate, to everyoneobserving Easter, we send you warmth,
reflection, and joy as you honorthis sacred time or resurrection,
renewal, and light after darkness.
We know that for many autistic people,especially those from racialized or
(23:58):
faith-based communities, this season canbring complex emotions, the weight of
grief or exclusion in traditional spaces.
The overwhelm of loud gatherings,strong sense or unspoken social rules.
The deep spiritual connection that oftengoes unseen or misunderstood, and yet
there is stress and stillness, meaningthat quiet rituals and join celebrating
(24:22):
in ways that feel authentic, whetheryou're attending midday liturgy, sharing
a meet with loved ones, or honoringthe day through personal reflecting.
Your way of observing is valid,sacred, and enough on this..
It's strange.
I'm kind of going through dumpinga lot of old books and a book
appeared in my hands this morning.
(24:42):
It was cold Easter, and it's by awoman who worked for the Anthro coal.
So it's a strange we angle onEaster, you know, explaining it's
kinda mythical and elemental roots.
But if you take it as just like anotherevent like Christmas and things like
that, these organized kind of holidaysand Easter being a varying one.
(25:05):
You know, I can be a wee bit cynicalabout these things, but I know there
is a need there for people to be apart of some kinda seasonal shift,
which is in the post, you know,when they talk about spiritual and
the deep spiritual connection thatoften goes unseen or misunderstood.
And quiet rituals and all that.
(25:25):
So Easter, what does it mean for you?
This post, like the similar postto Ramadan and Christmas and other
events, , it raises the point,
the issue, the debate, the subject.
Of society having this set ruleof how a festival or an event or
(25:48):
occasion should be celebrated.
And if you do it in a way thatpeople think it's too different,
there's something wrong with you.
Like, you know, especially whenyou're artistic, where you don't
want to be involved too much in loudspaces and loud noises and all that.
You wanna do things yourselfor do something different.
Like I can recall kind of readingstuff from different places about
(26:10):
Christmas and how poems and mediaand it's like there this so called.
Normal.
It doesn't exist.
It's kind of made up, but it'ssort of kinda, that's what you
should aspire to and that's the wayyou should celebrate an occasion.
We know kind of talking aboutit, it doesn't make any sense.
You celebrate it in your own way, whetherit's a big way or where it's a nice,
(26:35):
quiet, spiritual way, especially thingslike Easter and Christmas and Ramadan.
A lot of stuff that's alot of religious stuff.
A lot of it is quiet reflection.
It doesn't have to be big celebration.
It could be quieter and there'snothing wrong with that, but people.
Seem to come across as ifyou do something quiet.
If you celebrate something quiet,you're not celebrating it properly,
(26:57):
and then you're criticized, youshould be celebrating better than
that, you're not making an effort,you know, that sort of nonsense.
So that's what that reminds me of.
And it's just a reminder thatyou do things your own way.
And that's nothing wrong with that.
I like the quiet approach, Harry.
Isn't that what the Quakers are all about?
But you know, anybody canbe quiet and I think it's.
A core kind of thing on some in theneurodivergent community to be quiet
(27:23):
because noise and sensory stimulationis a wee bit too much for us.
I don't do very well with any of thecelebrations because it, like, just
'cause of the changes of routine, itwould probably ask of me and, but I
remember I had a couple of friends like.
Probably about 15 years ago andthey celebrated everything on like
(27:44):
show they were having pancakeson that at Show of Tuesday.
They had all of the celebrations andthey went all in and it was like, it
was really fun to be around and stuff.
But yeah, no, I'm notvery good at celebrations.
The next post is from EmergenceDivergence, the neuro divergent
ramblings of David Gray Hammond,who's an author of books, writer,
(28:07):
blogs, advocate, mentor, trainer, andSelf-described as Professional Nuisance.
I want the shared is about theethics of retrain and seclusion
for autistic people and.
Autistic people are disproportionatelyvictimized by the use of
restrictive practice, also isknown as restrained and seclusion.
(28:30):
Finding accurate statistics on thefrequency of such events is tricky.
Reporting by the professionals usingrestrictive practice is inconsistent,
and many of those autistic peoplesubject to it are unable or unwilling
to report it for a variety of reasons.
I have previously considered the useof such practice in the inpatient
(28:50):
setting, but I feel it necessary totake a broader look at the ethics
of restricted practice in general.
So what is restraint?
Restraint is the intentional limitingof a person's bodily movement.
It can be applied by anotherperson, physical restraint
mechanically through use of strapsand other mechanical devices.
(29:11):
Or even chemically through theuse of sedative medications.
In all cases, there is ofsignificant injury or death, such
as in the case of Max Benson.
What is seclusion?
Seclusion is the restrictionsof a person's liberty, usually
via the use of isolation rooms.
A person on seclusion is usuallyremoved from the presence
(29:33):
of other people by force.
As such is likely to havealso been restrained.
Is restrictive practice ethical?
In terms of Western culture, thereis a legal right to bodily autonomy.
This mean that a person has a rightto use their body as they wish
and not have their body touchedor manipulated without consent.
In this regard, restrictivepractice sets opposed to a
(29:56):
person's right to that autonomy.
There are some complications tothe assumption of autonomy, any
diagnosis of a condition thatmeans a person does not perform.
A neurotypical embodiment can be usedas grounds to remove a person's bodily
autonomy via restrictive practice.
The justification is often that a person,in this case, an autistic person, is
(30:16):
behaving in a manner that infringesupon the boly autonomy of others.
I. In simple terms, if your behavioris perceived as a threat to the
safety of others, then your rightto bodily autonomy can be suspended.
This presents a challenge to autisticpeople who may be prone to behavior and
performance that can be deemed unsafe.
One of the challenges that arisesin the interpretation of what is
necessary for the safety of others.
The
(30:40):
use of restrictive practice and subsequentdenial of autonomy is not broadly
standardized, and usually the decisionto use such practice is at a discretion
of those with greater privilege thanthe person being restrained or secluded.
This
raises questions about the perceptionof behavior in Western culture.
Autistic people are regularlyvictimized by ableist attitudes and
(31:01):
the normativity they are founded upon.
There's an attitude that one should think,feel, and behave in such a way as to cost
systems as little as possible while you'remaximizing your production of capital.
. This means that the target forneuronal society is to have
people behave in such a way tobenefit , Neil neoliberal capitalism.
(31:22):
With regard to restrictive practice,it can be assumed that its use is.
Pro not only due to neuronal standards,but also because it costs less to restrain
an autistic person when at distressthat it does to create an environment
to be more accommodating of their needs.
Further to this is a growth ofautism industrial complex, wherein
(31:46):
interventions for autistic behaviorshave become a hugely lucrative business.
Many organizations produce high profitsfrom the sale and implementation
of restrictive practice training.
This means that there's a financialincentive to normalize the use of the
strain and discourage the alterationof environments that trigger the
(32:06):
ambiguous vector of challenging behavior.
We can see then that not only doautistic people find themselves
perceived to have less of a right to bolyautonomy, their autonomy is for sale.
Financial interest encouraged those with
privilege to create broader thresholdsfor the use of restrictive practice
on autistic people, and subsequentlycompound the disproportionate use of force
(32:32):
against an already marginalized group.
This forms a foundation from which we cansee the unethical nature of restrictive
practice across a broad spectrum.
It may be argued that these ethicalarguments do not only apply to autistic
people, but it should be consideredthat many of the justifications for
such practice favor the liberal useof such practice, more so for autistic
(32:56):
people than for non-autistic people.
It should also not be forgottenthat there are wider issues in how
autistic people are perceived and theimpact this has on society It seems.
Such denial of autonomy acceptable.
It is time that systematic powerstook more accountability for the
(33:17):
unethical applications of suchpractice and the disproportionate
use against autistic people.
I find it like terrifying to imaginelike being in that situation where
somebody else is deciding whetheror not you're going to be like
physically or chemically restrained.
And for autistic behavior to bemisinterpreted like a violence risk.
(33:42):
Oh, that's just horrible.
And it's like, it's really importantthat he's bringing attention to this.
I don't know what else to say just now.
There's a lot there to digest.
I feel these currents are in theair and David picks up on stuff
like that at times, you know.
My thought straight.
Things like the trade wars that aregoing on just now between states and the
(34:04):
self, you know, personal identity canbe seen like that kind of construction.
And so the personal autonomy beingmade criminal because of its lack of
productivity or its challenging behavior,you know, these are things we have to
be aware of, you know, they're going on.
And so it is a deepdiscussion to be had here.
(34:26):
It does bring up a point, I mean, whenyou talk about capitalism, it sounds
like you're going on a sort of politicalsort of kinda rant, but you're not,
You're just talkingabout the way society is.
And the society
we currently live in is about finance.
It's about money.
It's about what costs money, what costsless, what makes profit, et cetera.
(34:49):
So that's always going to come intoplay even in these sort of situations.
And that's why things areas they are for many people,
, the first time I've ever heardof that word was strained.
Was one time before my diagnosis,I was in an adolescent unit in
Glasgow and I was going through a hard
(35:13):
time.
I was kinda not long in the unit,and this was actually myself.
, It was like self admittance basically.
'cause I wanted to, you know,find out what was wrong.
'cause I felt there was somethingcredibly wrong with me and I was
like feeling suicidal and things.
I went, we need to get the bottom of this.
And I think there was this one time Ijust sort of kinda lashed out and started
kinda hitting my door outta frustration.
I can't remember what happened, butsomething triggered me and the two.
(35:35):
Ran to me and they heldme to calm me down.
And that felt like that was what they weredoing was restraining, but they didn't
any kinda time into a bed or anything.
But it was like a physical, sort of kindalike calmed down and thinking about it.
Actually, probably the worst thingyou can do to autistic person.
But they didn't know I was autistic.
I didn't know I was autistic at time.
But it did calm me down.
I did actually speak toone of them afterwards and.
(35:58):
I actually feel a bit better consideringjust thinking that happening to people.
You know, a misunderstanding someoneor you're being, you know, just
misinterpreted or even dare I say,abuse someday, you know, a bit of power.
'cause you do get that and peoplejust being kinda thrown about
or tied to a bed and all that.
(36:19):
It's all that stuff you kind of worryabout that will be happening to people.
There will be a lot of cases, and that'swhat David was alluding to as well.
It's interesting it's quite kindaheart wrenching to know that
there's many people are within asystem that's not helping them.
We have policy that maybehasn't been explicit but is
implied here at Autistic Radio
(36:41):
We cooperated with the UK Societyfor Behavior Analysts on the
basis, partly because they arealigned with the restraint
reduction network here in the uk.
And the same for the PBS conferencethat we are cooperating with from
BILD build, who are also part ofthe Restraint Reduction Network.
(37:05):
The Restraint Reduction Network is calleda coalition of the Willing, an independent
network, which brings together committedorganizations providing education,
health, and social care services.
With an ambitious vision to reducereliance on restrictive practices and make
a real difference in the lives of people.
Now, an awful lot of people in theautistic community have experienced
(37:27):
restraint, and there is a suspicion thatthe restraint reduction network itself.
Is also part of the autismmoneymaking construct and
that there is suspicion that peoplewho take courses to reduce restraint
(37:48):
are actually ending up usingslightly different techniques and.
The individual is not necessarilyreceiving the best care, so
this is a very difficult area.
Human beings restrain each other,take control each other, and
hold power over each other, andthey do it within a structure in
(38:12):
society that they do as a paid job.
So it's really good that David GreyHammond is bringing this forward
and it would be interested to speakwith him at length, perhaps one in
one of our broadcasts at some point.
The next post is from SteveO's Artistic Surplus, who's
(38:34):
a digital creator, A-U-D-H-D.
Me guy dealing with chronic painand just life in general and
what is shared as a following.
The world is even more scary place than itis to be different person at the moment,
being disabled, autistic, transgender.
Bipoc or any other person who isnot visibly and openly white, cis,
(38:57):
typical and straight every day.
People in positions of power are sayingthe most dehumanizing shit about anyone
who dares to diverse from the socialnorms, making laws that strip people
of their rights, making decisions thataffect the sport, understanding and
aid those people need and deserve.
Debating whether they have a right toexist and the terms of their existence.
(39:21):
People are applauding what ispretty much a reset and all the
progressive work and forward thinking.
We as society and as a humanrace, have pushed for and worked
towards for such a long time.
Celebrities are being seen asheroes who are fighting against and
what has been deemed a woke virus.
In reality, they're just dismantling avirus, which is just basic human kindness
(39:44):
and saying people should have the rightto exist without having to conform
to a very outdated view of humanity.
At the moment, if you fit intotheir world of normal, you are safe.
But the thing is once they runout of different people to blame,
then their view will come to you.
Defendant support the vulnerablenow because the elite will always
(40:05):
need someone to call parasitesand it could be you next.
It's quite powerful and intense, thisparticular post, but I felt it was
very important , to share becauseof the current kind of political
and societal kind of environmentwe currently are living in.
Which itself is, you know, it's actuallytearing a lot of people apart in terms
(40:27):
of the qualities and things because theydifferent perspective of different things.
And it is very concerning for many peoplein the community, especially if you're
perceived as different from the norm.
It's like, which group's going be thenext scapegoat for society's ills?
Yeah, we are very much on the list.
(40:47):
Neurodivergency,
neurodivergent, people, neurodiversity
are very much on the listand you've got two choices.
You either put your head down andtry to pretend it is not happening.
Or you do something within yourown atmosphere, within your own
(41:07):
powers, within your own levelof safety to stand against these
thoughts.
I choose
to stand against these thoughts byspeaking here on autistic radio,
and other people can do that too.
The real historical issue is.
That we are in a phase of societythat is very much like the late
(41:30):
twenties, early thirties, wheredifferent groups in societies are
blamed by the people in power forthe inequality that they create.
So the scapegoats are beingpointed to so that we.
Scapegoat parts of our society
and don't notice the realpeople with the power.
(41:53):
And there was a poem that waswritten about the 1930s that
went along the lines of,first they came for one group.
And then it didn't worry me becauseI wasn't part of that group.
And then they came for anothergroup, and then they came for another
group and then they came for me.
(42:14):
So within your own safety zoneand within your own comfort, it
is important to speak against whatmight seem the overwhelming odds.
But remember the algorithm thatyou are exposed to makes things look
a lot bleecker than it really is.
So don't believe that thesepeople have all the power.
(42:35):
They don't.
And you have to remember whathappened to those people in the
past who performed like that.
And if you have short memories.
Even the things that, thatmay appear obvious or whatever
you want to put, I mean,
the, you know, the thing thatgets me is I'm just seeing a lot
(42:55):
of pain, a lot of people beingtrotted on, and it's not just, you
know, about a lot of this stuff.
It's about, you know, people, youknow, people and benefits and all
that are getting attacked as well.
They're choosing to pickin different people.
In, they're picking in immigrants as well.
It's just like they're picking indifferent people and blaming all
these different sections of peoplein society, and it doesn't actually
(43:18):
make sense in what they're saying, butdespite it in my head, not making sense.
Some people are buying into itjust because of the way it's been
sold, the way it's been presented.
And I'm glad that I'm involved in,you know, things such as this as
a radio and other kind of positivekind of community movements because
it'd be a very lonely place withoutthat just the heart that I'm seeing.
(43:41):
It's getting lashed out.
That's what's getting to be the most,there's a lot of the kind of political
stuff in that as well, but it's justpeople being targeted and targeted
in a big way, in a bad way, and Ijust find it absolutely atrocious.
It's happening.
Leave people alone.
,. So thank you very much for everyone that's taking part tonight, and a special
(44:02):
thanks to people that share those poststhat we're able to share and discuss.
So this is Harry's Facebookfor Sunday the 20th.
Of April, 2025, which is Easter Sunday,so thank you for listening and hand over.
Thanks Harry.
A great show as usual.
Such a lot to think about.
(44:24):
This is the point of the show wherewe talk about some of the work that
we do here on autistic radio and thework of autistic association, the
charity that we created as autisticpeople to support autistic radio.
I'm just going to try and encouragepeople to understand what we do here.
(44:46):
The 5 5 5 show is where we talk aboutthe Facebook that Harry creates.
, It's not one of those ordinarykind of Facebook pages.
What Harry does is he specificallyfinds the things out there.
That are most interesting to us, thatwill start a conversation for the show.
Sometimes it's possible that wewill say things that don't express
(45:11):
what the original poster might beputting down there because we use
what's there in the public domainof social media to inspire us to say
things that are in our own heads.
None of this is intended to becritical of the original poster.
We're all different.
We all have our own ideas, and we allhave things that we want to think about.
(45:32):
If there's a possibility that youwish to put your words out there,
then the 5, 5 5 is a place where youcan join the group and be part of it.
Most people, however, start by cominginto the 4, 4, 4 drop in the four.
Four is 4 (45:50):
44 PM UK time every Sunday.
The 5 5 5 is 5:55 PM every Sunday.
Starting with the 4, 4, 4 isa way that you can join in
with the conversation in text.
Just listen and also put your voiceto it when you feel comfortable,
(46:11):
if that's what you wish to do.
The 4, 4, 4 is intended to beautistic people supporting each other
and always being reliably there.
So even though today is an Easter holiday,a religious holiday for many people, the
4, 4 4 was still there . Just the sameas we are making this recording for the
(46:31):
5, 5, 5, at least 50 weeks of the year.
We are reliable here at autisticradio, and that's important to us all.
Autistic radio is about us.
It's for us, and it's from us.
Autistic Radio is about you.
It's for you, and it can be from you.
We have every single Sunday dropin four, four 4:00 PM every Sunday.
(46:56):
That's not live.
That's us getting together,us talking community.
Every Sunday, Harry leads a fivefive 5:00 PM a discussion around
the Facebook page that he creates.
Involve yourself by suggestingwhat we should talk about next.
Share it with Harry and.
The bigger picture, advocate, use us.
(47:19):
Speak to the world, your project,your idea, your enthusiasm.
We have a whole range of differentprograms that will fit what you want.
As far as listening goes, there'ssome challenging stuff out there.
Because amongst the identity, theentertainment, and the community,
we also make serious programs withautism professionals challenging
(47:42):
their ideas and bringing whatyou say in other spaces to them.
A lot of those are difficult listens,but it's a holistic gathering.
It comes all together.
Autistic radio is very varied.
We need a favor to encourage us.
We need you to share us.
When you share us.
You give autistic people power.
(48:05):
When you share us, you makeus impossible to ignore.
When you repost on LinkedIn and Facebookand anywhere else, you are advocating
for everybody in the autistic community.
So pick the things that you arehappy with and get them out there.
So thank you, thank you, thankyou, thank you from all of us.
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