July 28, 2025 • 37 mins
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Spectrum Voices Conversation presents "Harry's Facebook - 25th May 2025".
Facebook post sharing and discussion. Posts shared from:
Emergence Divergence The Ramblings of David Gray Hammond
Autism On The Water
AUsome Training
Grove Neurodivergent Mentoring
Autistic Jazzy
Rosie Weldon's Autistic Life
SWAN Autism Scotland
#psychosis #mental health #autism
#sailing #perfectionism #self-understanding
#safespace #routine #fundraising #charity #banks
Recorded on Sunday 25th May 2025
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(00:02):
We speak our words, we listen,we speak our words, we listen.
We speak our words.
We listen.
We speak our words.
We listen.
Good everyone.
And this is Harry, Facebook for.
Sunday, the 25th of May,
2025, and this is where we gothrough the tested radio's Facebook
(00:23):
page and go through the recent poststhat have been shared, and we talk
about them as topics of discussion.
The first post is from emergencedivergence, the neuro divergent ramblings
of David Hammond, who's an author.
What he shared is a book thathe's written which is regarding
autism and psychosis and on
the link itself, it's throughAmazon, and this is what it says,
(00:46):
A Guide to autism and psychosis.
And professional insightsfrom my psychotic mind.
In this book, David Grham takes on
a journey through the landscape of beingautistic, ang psychotic, using both
personal and professional experience.
He
interweaves academic literaturewith personal antidotes, giving
(01:07):
context to the loosely studied areaof psychosis and autistic people.
David highlights the impact of thelack of understanding, as well as
discussing how one might help anautistic person experiencing psychosis.
Further to this, he considers how hemight redefine the role of psychiatry
and the lives of autistic peopleand how he might address the social
(01:32):
issues that contribute to psychosis.
The supporting text on it to giveit, some background says that whether
you are an autistic person, researchor support worker, family member,
or just curious, a guided autism andpsychosis will give you insight into
the world of psychotic experiences for
(01:55):
autistic people and autism.
Okay.
I'll say it's a wee bit,
a heavy subject.
I've listened to David Grham and over thepast couple years and read some of his
stuff relating his experiences with us.
Yeah, I'd have to understanda wee bit more about psychosis
before I say anything.
'Cause it's often mental healthissues that bring us to our
(02:17):
diagnosis as we've discussed before.
From how I understand psychosisfrom learning at uni and like past
experiences is that it's almost likeeverybody's got like a breaking point.
There's like a stress point at whichour mind's well snap, and I feel like
that even just that knowledge reallykind of can help to destigmatize like.
(02:41):
What is a human like experience?
I think it brings up like a lot of bigquestions and like it can be a really
difficult thing to recover from as
well.
David Hammond always shares veryinsightful stuff, even if you may
not always agree with what he says.
He makes you think,
yeah.
I would like to read
(03:05):
this book.
I remember seeing a video that he'dmade and it was he was talking about
how our urge to hyper focus, we trywhen we get stressed and then we
try and hyper focus on everything.
That's when
our brains start to really struggle.
And I found that a really, like,I found that really relatable.
That kind of, yeah, that was similarto experiences that I've had.
Psychosis is a term used todescribe when someone experiences
(03:28):
a loss of contact with reality.
This can manifest in various ways,including hallucinations, seeing or
hearing things that aren't there.
Delusions, firmly heldbeliefs that are not true and
disorganized thinking or speech.
Yeah, I like take it as a loss ofcontact with consensual reality.
There's a number of people sayingthings like, I like his work a lot, and
(03:52):
David Grham and makes things an e easyread dealing with complex subjects.
The next post is from Autism on the Water,which is a charitable organization to
raise awareness and assist autistic peopleto access sailing and boating in the uk.
And what they shared is thatthey're involved in a competition
(04:14):
called the Scottish Series.
And this is an update saying,unfortunately, team autism on the
water had to retire from day threeof the Scottish series due to a
torn man sail in windy conditions.
We are extremely disappointed givenhow well we are doing, but thankfully
the sale is very much repairable and wewill be back racing for the final day
(04:35):
tomorrow despite having to retire today.
This is our discard and we are stillin a healthy position overall with
three first and three thoughts,and I did not finish as a discord.
We're
so incredibly proud of our teamfor the efforts they're putting in,
especially autistic crew members.
We are also very grateful to thevolunteers of the Clay Cruising
(04:59):
Club and 7 0 7 Sailing for theirassistance with our engine troubles.
And finally, as ever, a hugethanks to Corner House Tarper
for sponsoring us this weekend.
As David Whi of Kelberg says,we never give up and we'll
back out fighting tomorrow.
We have this.
(05:19):
Well, it's just great to see thischarity, this CIC making it possible for.
Autistic people to get out there, dosomething physical compete, become
part of a team, all of those negativesthat are associated with autism
that tend to make people dependent.
(05:41):
This idea increases . Independenceamongst autistic people and puts
a very positive message about howit is possible to be autistic.
Also a competitor, also asportsman, also a team member.
The next post is from awesometraining, which is an education page.
Autistic led neuro affirmingtraining, mentoring, consultancy,
(06:04):
and support for people ready tomake the world a better place.
For s. And what is shared is a following.
Perfectionism is a form of self-harm.
We talk about perfectionism likeit's a quirky character trait.
Something to joke aboutin a job interviews.
Oh, I'm a bit of perfectionist.
We
(06:27):
say half smiling as if is asign of ambition, a mark of
someone who cares deeply and
tries their best.
But the version of perfectionism I want totalk about today isn't funny or charming.
It's not about high standardsor having pride in your work.
That kind of care is somethingelse entirely, something healthy.
What I'm talking about is the deep knowingcompulsion to never be good enough.
(06:51):
The kind that sets you up tofail over and over again because
the finish line keeps moving.
The kind that masquerades as motivationis actually self punishment, the
kind that starts out as protectionand ends up as self-harm.
It's under a blog calledPerfectionism as a Trauma Response.
I think I'm a bit uncomfortable, theabsolutism that I get as a feeling from
(07:16):
the wording here, but the sense of it.
Where perfectionism goes beyond agood thing and goes into something
that is actually hurting us.
I'm fully with, I think one of thethings that we need to be encouraged
to do and practice for ourselves isthe concept of a good enough job.
And.
(07:37):
If we can adopt the idea of doingsomething to the 95% level and stop
fiddling with it and stop spendingall those hours on the last little
bit, then we will actually achieve andwe will get something out there, and
then something else will come from it.
If we are so perfectionist that wedon't get past and get something out
(07:58):
there, get something published, getsomething done, then it restricts us.
What it says is perfectionism as a traumaresponse, and it says, perfectionism
for so many of us begins with fear.
Fear of being found out, fearof rejection, fear of not being
loved unless we are exceptional.
Maybe we were criticized constantly.
(08:20):
Maybe we were praised onlywhen we overperformed.
Maybe we learned that mistakes made usunsafe, emotionally, physically, socially.
So we set out to fix that,to protect ourselves.
If I just get it right, then noone can hurt me if I'm perfect.
Then I'm safe then and fora while it works sort of.
(08:40):
We get praise, we get noticed.
We avoid blame.
We control the narrative,but the price is high.
The price is ourselves becauseprofessionalism is a moving target.
It's never arrived at,and it's never enough.
So we
moved the goalposts, we rewrite therules, we finished something, we,
one stop was brilliant, and insteadof resting in that achievement, we
(09:04):
call it sloppy, embarrassing, lazy.
We erase the version of ourselves that wasproud a few days ago and replace them with
a crew editor who demands more better.
Perfect.
I relate to this a lot because thatexactly expresses what I go through
from the trauma response, from beingbullied and never being good enough.
(09:26):
I now put myself except the highstandard, which I can't possibly achieve.
There is a comment that's sayingit's all guesswork in their opinion.
I can sort of see what it's tryingto say 'cause I do it myself.
There's some days where I think, Iknow it's sad to believe sometimes
when I even say it, that I'm absolutelybrilliant because all the stuff that
(09:46):
I've done well and things are workingout and I feel a sense of achievement
and because of stuff that I do,I feel good for the greater good.
It feels great because ofthe society we live in.
It's good that something'sgood's happening.
You know what, amongst allthe gloom and there's pride
and achievement and all that.
Then there's just sometimes where youstart to think, or I start to think and
(10:06):
it's, I could have done it a bit better.
I could have planned more ahead so I cansort of get what some of this is saying.
But it does seem quite brutal in itsapproach or in its narrative, even though
I do get and understand why it's sayingand why it's reading the way it's reading.
I tend to agree with what
was saying earlier about you.
Putting up with what's good enough.
You not putting up with, butaccepting what's good enough.
From my point of view, it'sthat matter of being good
(10:34):
enough to pass, for want of a better word.
You know, that old word pass,which is a bit like masking, I can
pass as normal or effective by.
Doing things just good enough to get by.
I see that as almost an aspect offawning, you know, 'cause I reflect
back on, early school where I did reallywell, but that was purely impressed.
(10:54):
Teachers who I saw as substitutes,other good mothers and to impress them,
got me places, but then got me in alot of trouble with social groups.
So.
I learned to just do enough to get by.
So after you leave school, it's justenough to get by for income generation
or work or acceptability, social stuff.
(11:15):
Whether that's perfectionismis another thing, you know,
perfectionism I see is like somethingthat's a wee bit outta control.
The block continues in terms of whatthe inner critic becomes the architect.
That society rewards our self-destruction
and then . It continues whenself-protection becomes a self-harm and
(11:35):
then it ends, , you deserve to be enough.
I think the other thing to think about itis that there is no such thing as perfect.
So striving for something thatdoes not exist leaves you in
that constant striving for it.
Something is never finished or a. If youare doing it inside your head and you're
(11:55):
thinking about it and you're planning init, it's never started in a practical way.
You go through a cycle where you plan it,work out how it should be, and then decide
it's not possible so you don't do it, andthat all of those things are debilitating.
So the only thing I can sort ofpass to say something that is
lightening your load is to say that.
(12:19):
Perfectionism doesn't exist, and theperfect job is the job that does the
minimum for the achieved results.
So set the standard atsomething that's achievable.
In some of the comments are saying, Inever think anything I do is good enough.
Everybody's idea of perfect is different.
(12:39):
Someone else says the greatest achievementis getting by even if you fail.
There's also something veryimportant here from a LinkedIn user.
They say, my nemesis andmy language holds me back.
I have the words, but thenthey don't make sense to me.
Or I doubt them a lot.
I doubt them a lot more.
Now since my diagnosis.
(13:01):
Which I find frustrating.
So there's a bit in that person'scomment that's saying that instead
of being a positive experience,diagnosis has actually undermined them.
Which I hope is something that willbe something that they pass through.
But I can see where somebodywould get stuck on that.
I think that's the case.
Like when you were using an old languageand now you almost require a new language.
(13:25):
So to use your old languagedoesn't make sense anymore.
Now, maybe you had thatpre-diagnosis as well.
You know, the intimations of thislanguage I have been given is not enough.
But also it's like that explanationand representation and all that.
Sometimes I think there's points in yourlife where that becomes meaningless.
You know, it's not in a bad way.
(13:45):
It just loses meaning for you.
There's other ways of being with thingsand expressing things and receiving
things, and it is a whole new language.
It can be very frustrating.
Yeah.
But also think it's a clue,you know, if you wanna treat
it like a we game it's a clue.
It's almost like, youknow, to find things.
(14:06):
You have to see whether they're not.
. The
next post is from Grove NeurodivergentMentoring and Education.
It's an education website describedas opportunities for neuro affirming
connection, community, and growthfor autistic young people in the
UK through individual mentoring,social and interest based groups
(14:26):
and autistic identity programs.
What they've shared is a program calledBeing Me, and they're saying, I'm
enjoying putting the finished touchesto our Being Me Program Guide for
parents and carers, as well as youngpeople gaining self-understanding.
What are we hoping for most withbeing me that they feel less alone.
(14:50):
That they feel a sense of belongingin the group and also in the wider
autistic community that they know thereis nothing wrong with who they are.
And in fact, they can beproud of being autistic.
We don't expect them to remembereveryone, but we hope these feelings
will become something they can remember
I always think that there are two crises.
(15:12):
The world of autism, and the first oneis the loneliness that comes from the
lack of networking and connectedness.
And the second one is the societyreducing our ability to build self-esteem.
I use those two things as a catchallfor everything else that goes with it.
(15:34):
So what I perceive here thatGrove Neurodivergent mentoring
and education is attempting to dois address both of those things.
Though it's somethingto uphold and support,
the next post is from AutisticJazzy, which is a personal blog.
Hi, I'm Jazzy and I have level two Autismwith Severe A DHD and mental health.
(15:59):
I am really happy most of
the time, but not always.
And I've shared a quote in thishouse we do stemming, rocking,
spinning, and hand flapping.
If you don't like that, you can leave.
It could be like a we doormat, eh.
, I think it's so important thata home is a safe like place for
being able to move and sing or.
(16:21):
Hum or whatever.
Just how you need to be ableto kinda reregulate yourself.
It's really important and it's beenreally important for us as a family to
have a really, like a place that we canbe ourselves and all feel really safe.
I support Nicola in that.
I like the post, I like the crayons.
I like the graphic, I like the colors.
(16:42):
I just don't like the sort of slightlyaggressive bit, which I understand.
You know, if you don'tlike it, you can leave.
'cause it sounds a bit, I dunno, but thenI know why people have to bite, you know?
Yes.
Personal people basically respondingto constant criticism of behaviors
(17:02):
are looped upon others as abnormaland it shouldn't be happening.
And maybe one or two people even getinto someone's home and basically
telling you how to live in your ownhome and how to behave in your own
home because they're not happy with it.
If feel uncomfortable withit, you just say, well, if you
don't like it, don't be here.
It's like a sort of defense mechanism,a quote of defines not being
(17:27):
bad, but just people defendingthemselves saying There's nothing
wrong with what happens here.
Stop judging because that is a big thingthat affects a lot of people, is judgment.
Is there a thing where this isseen as unacceptable in adults?
I mean, if it was a housefull of kids, nobody.
Should, we'd have the right to comein and complain about it being a noisy
environment, really, what do they expect?
But if you come into a place withadults behaving as they want, you
(17:50):
know, and not behaving in a sort ofneurotypical or stereotypical way,
an acceptable way suddenly they'vegot this right to lay down some kind.
Law.
Yeah, you're right, Roman.
The reason it's biting back is becausepeople do tell us to sit still.
They do tell us not to hand flap,and they do tell us to grow up.
(18:12):
I'm a 60-year-old man.
I have all kinds of stems.
Everything from biting my nailsto sitting, watching the TV
rocking on a rocking chair.
It's my own home.
And if you come into my own home, Iwouldn't expect you to lay down the law.
And people do tend to judge andcriticize autistic people for our stems.
(18:36):
So that's why it's a biting attitude here.
Even out in the wild, Jules, in yourmost recent public appearance, you
know, the fact that you got up outyour chair at times moved around.
I was sitting here cheering, you know,it's like, yes that's how it's done.
That's what we're like, but it's not whatwe're like, that's what Jules is like.
(18:56):
And you know, it's often what is seenas disconcerting to people who have.
Kinda conditioned and taught to sit still.
. Someone was saying in the commentsthat most support is about teaching
compliance and then followed thatup with school is about compliance.
To which someone replied, making referenceto an earlier conversation about meeting
(19:20):
people in the street, that he saidthat school is a machine for churning
people out for work, to which the chapthat you met in the street replied.
Yeah, I've heard someonetell me that before.
The next post is from Weldon's.
Autistic Life is a personal blog.
I am an autistic adult that sharesmy life openly and honestly online,
(19:42):
and she shared a quote, autisticlife is spending so much mental
energy just getting through the day.
That's why I have a routinebecause it makes it easy.
Everything is a routine.
Meals are a routine.
What I do on days of theweek is pretty much fixed.
That's how I get through.
Yes, that is very important because manypeople in society who will feel they're
(20:06):
stuck in a rut, feel lost is the lack ofroutine of being stuck in a vicious cycle.
So they're in some kinda routine, but it'squite negative, but it doesn't feel like
a routine that they have control over.
If they create a routine and able to geta routine that's more positive minded,
it feels that's like a step forwardfor a coping mechanism just to get
(20:30):
yourself either outta bed or if you'rehousebound quite a lot just to get out
the door and going somewhere, like goingto a shop or even just going for a walk
in a park on a quiet day, and it'smaybe something you do every day
that maybe kinda gets you going.
Just something to look forward to doing.
(20:50):
I think that's the main thing as well.
It's like something that makes senseand in many ways in the routine,
something to look forward to.
And that includes, you know,having meals, set times, et cetera.
It just depends on the personand what they're looking to
do and who to move forward.
This works exactly againstmy experience of life.
(21:10):
And that is why I feel sometimes asthough I'm on the margins of the autism or
autistic community, because I do not feelthat my autism is just about extending my
mental energy just to get through the day.
If an autistic person is in goodcircumstances and has the opportunities
(21:33):
and has the supports around them, thenit's not about just about getting through
the day, it's about being creative.
It's about having a purpose andhaving a goal and achieving things.
And every single day I am involved inso many different things that I believe.
Most non-autistic people wouldstruggle to deal with the variety
(21:58):
of things I do within a day.
So for me, being autisticis not a struggle.
So I just want the autistic community , toaccept and bring within the community.
People like me who do not feel entirelydisabled by their autism and have us as
(22:21):
part of the autism community, we do nothave to be struggling to be a member.
Do you feel, Jules, that you discoveredvery early when you were young,
possibly through an former independence,that you were able to access.
These capacities within yourselfbefore they became sort of traumatized
(22:42):
or conditioned, which I think is athing in my case as an adult senior
even has arisen, you know, dueto long periods of struggling and
masking with, you know, situationsthat are supposedly normal, but.
Were very uncomfortable.
And so I think it was at a young agethat the trauma stepped in, you know,
(23:07):
but not a very young age, but maybeteens and into twenties where it was
like the encounters we adult life.
And I thought, oh yeah, I canmanage and then I couldn't manage.
So, 'cause there's something inthat, I think when you see the young
getting advantages today, I hope.
In exploring that creativity, you speakabout the opportunities then there's great
(23:28):
hope that they're gonna have great lives.
They may still struggle in a lot of ways'cause it's an intense sensory existence.
And so routine is one of the methodsof managing that sensory overload.
I recognize everything that peopletalk about using routines as a way
of stopping, being overstimulated.
(23:49):
All these things that Irecognize, but I've been fortunate
and I think you are right.
I have not been traumatized inthe way that so many autistic
people have been traumatized,and trauma is not the necessary
requirement to be part of the club.
There are many autistic people thatI know who have managed to avoid
(24:14):
bullying, who I have never been bullied.
And they've managed to avoid trauma.
I have to say that I had the opportunityand I dropped out of society when I was
16 and I left, and I went off with mytent to my bicycle and I was entirely
independent, so nobody had the controlover me, and that continued until I
got into society in the ages of 20.
(24:37):
So it's a fortunate.
Situation.
Yeah.
I always like the reverse of you.
It's like, the society first traumaand then go independent and escape it.
For me, it isn't the autismthat's caused you, it's a lack of.
Accommodations to meet my needs.
When I was supported by my father,I didn't have this problem, but
(24:58):
now I'm having to do things ina way that's not natural to.
I think when
you say accommodation,
Rob's, is that what otherswould call adjustments?
'cause I just did a onlineautistic post-diagnosis group
this week and this week's subjectwas adjustments and benefits.
(25:20):
It's like the question waswhat kind of adjustments?
It's if organization will provide adifferent form of communication and
phone, I wouldn't have the extra stressof having to find someone to phone for me.
I think that illustrates, you canillustrate the difference between
adjustments and accommodationsby what Robbie has just said.
(25:41):
If it was adjusted.
So that Robbie didn't have to phone, buthe could text or chat or do something
appropriate to him, then that wouldbe an adjustment and he would be in
control of that, or somebody wouldbe offering that adjustment to him.
An accommodation is something thattends to be handed down to you,
(26:01):
so that we will accommodate youby making the phone call for you.
The next post is from Swan AutismScotland, and it's a community
page, and SWAN is an autistic ledcharity run by and for autistic women and
non-binary people since 2012, and they'veshared the following, we can't believe it.
(26:25):
One of our wonderful swansis fundraising for us.
Christine is on a mission to walk 50,000steps to raise money to support swan.
Every step I take represents notjust a physical challenge, but a
commitment to raising awarenessand funds for this vital charity.
I'm aiming to raise 500 pounds tocontribute towards one initiatives,
(26:46):
ing resources and support throughcourses, training, advocacy,
and safe spaces to socialize.
With your help, we can make a significantimpact in the lives of many who
are navigating the complexities ofautism, seeking acceptance, and a way
to find their place in a world that
can be very confusing and overwhelming.
She's already well in her way toachieving a massive step count
(27:11):
you can ate to help boost ourenergy and our fundraiser Target.
Visit Christine's page on the link to findout more about what she's doing and why.
And if you're not in a position todonate, please help by sharing if you can.
Thank you.
And a huge thank you to Christine,and it's a link provided through just
(27:32):
giving Christine's for swollen autism.
This is making me think about a radioprogram I held this week on Radio Four
Money Box about how small charitieswho try to do their own fundraising are
being penalized now by banks who are nowcharging them about four 50 a month to
keep an account for very small deposits.
(27:55):
That's exactly the problem thatwe're having in our community grip.
It's really difficult.
Like and getting charged by transaction.
When you're tiny, we would probablyneed about like 35 pounds a month.
And so, like, a fee like that justseems really disproportionate.
Yeah, some groups are losing allthat they're creating in a year and
(28:16):
just maintaining a bank account.
There are ways around this.
Most organizations.
For their accounting, simplyneed to provide records.
And it's unnecessary for themto have a bank account in
the name of the organization.
Where it becomes necessary iswhen they become incorporated
(28:39):
into something like a charity.
And if you are incorporatedinto a charity, then it
becomes a little bit easier.
So other organizations, it's quitepossible for somebody who is the
trusted member to hold an amountin a separate private bank account.
The only issue is whether thosepeople abscond with the funds.
(29:02):
So.
It's when you make a joint bankaccount and if you make a joint
bank account as two private people,then what you do there is you attach
your credit li reference together.
So yes, there are slight waysaround this when you're really
small, but it's an issue.
Well, thanks everyonefor discussion tonight.
(29:23):
, Thank you to the people thatshare these posts, which make
these conversations possible.
So this is Harris's Facebook for 25th ofMay, 2025, which is part of the Spectrum
V conversations five five 5:00 PM to 7:30PM UK time when Facebook Live and in other
platforms including YouTube and LinkedIn.
(29:45):
Thank you for your work again, Harry.
Here we'll talk about the workwe do with autistic association
that supports autistic radio.
Wherever you are listeningto autistic Radio.
It's good to have you thereand it's enjoyable for us to
make these programs for you.
At this point, I mentioned some of thethings that we are doing at autistic
(30:08):
radio with the backing of autisticassociation I received an email this
week with 24 hours notice before the.
Final time that a fundingapplication had to be put in.
And it felt to me as though, eventhough over the last few years I've
(30:28):
made the people who have this fundingavailable very aware of autistic
radio and autistic association thatwe received the email telling us about
the funding as an afterthought or even.
We were not expected to have theopportunity to apply for the funding,
so within 24 hours, I dotted all thei's crossed all the t's, finalized
(30:53):
the accounts, wrote a safeguarding,statement, and put together quite a
long application and got it in time.
It looked as though the way the fundingwas put together to specifically exclude
autistic people, organizations, APOs.
It was written as though it wouldbe necessary to have a non-autistic
(31:17):
organization with some input from an a PO.
Part of the reason I decidedto go to all that trouble.
And all that work was to take awaythe excuse that we couldn't be funded
because we weren't prepared andwe hadn't put in the application.
We will see what happens onthat, but from what I saw, we
(31:39):
not only fitted all the criteria.
The proposal that we put was veryappropriate for the autistic community,
not just having a meaningful inputfrom the autistic community, but from
an entirely autistic organization.
The second thing today isabout an invitation from the
restraint reduction network.
(32:00):
Which is an organization here in theuk, which brings a lot of different
professions together to reduce theamount of times in professional
environments such as prisons or mentalinstitutions or schools that the
techniques that are taught to caregivers.
(32:20):
Or security staff are not broughtto bear as the first option.
So we've been invited as a group if wewould like to follow up the suggestion
that I made at their recent annualconference with that, we had a Vox pop
and we took the autistic radio on the.
(32:42):
On the road and set up some microphonesin a quiet room and allowed various
people with lived experience andalso some of the professionals to
describe in short conversations theirexperience of restraint or from the
professional's point of view, whythey are part of that organization.
So I'm gonna bring it and open itto the members here and ask one
(33:06):
specific question, and that is.
Do you think that's somethingthat we should be doing?
And if so, is it something weshould do as a group and maybe
go in a mob handed or not?
Well, it seems a perfect opportunityto go as a team somewhere and take our
ideas forward and present an opportunityfor others to take part as well.
(33:27):
So I'm certainly up forthat depending on how.
Yeah, , there's two ways of taking part.
There is the usual way of taking part,which is remote, but also physically.
If people want to travel down toLiverpool and spend a couple of nights
in Liverpool and attend the conference,then that's another way of doing it.
(33:48):
We're going to be paid the same feethat we were paid last time and.
They were assuming before I spoketo you guys that it would just be
myself going along so that theywere gonna pay some of my costs.
But the fee and that cost, if we as agroup put it together, we could probably
make sure the charity could affordto do it for more than one person.
(34:11):
I am tempted to say just doit like you did the last one.
It's almost like jus on tour, you'regoing out there to air us across.
Well I think it's an opportunityfor others to actually give
Jules some physical support.
'cause even though Jules havedone a lot of good work and this
seems physically not left on hisown, but doing things on his own.
(34:31):
So if there's someone else
there.
It would be it'd be a good supportfor Jules, but obviously Jules can
tell me if that's required or no.
I just thought maybe that'smore of a team effort.
But it all depends on availabilityand all that Of course.
But that's nothing.
No.
I support a travel and band as well.
I just don't do the social thing.
I totally understand that side of it.
'cause I struggle with that as well.
(34:52):
And it's all kinda shop talk andtalking about the work that we do.
It'll be not a door.
Easier.
But then when it comes with socializingkind of thing, it's quite difficult,
but I'm sure there's ways aroundit and ways to protect ourselves.
Okay.
Well I'm reading in the textwe've got two people saying they
don't want to do the traveling.
It sounds as though our chairman Harryis volunteering, so that's great.
(35:15):
I'm happy to do it.
It's either way . I think it's really downto the group to decide whether they're
willing to spend the money to do this.
If it was myself plus another couple ofpeople, or even another three people,
we would have the funds to do this.
And it fits within ouraims of our charity.
(35:37):
So when people have had a little bitof time to think about it, then we'll
have a bit more of an open discussion.
Autistic radio is about us.
It's for us, and it's from us.
Autistic Radio is about you.
It's for you, and it can be from you.
We have every single Sunday dropin four, four 4:00 PM every Sunday.
(36:01):
That's not live.
That's us getting together,us talking community.
Every Sunday, Harry leads a fivefive 5:00 PM a discussion around
the Facebook page that he creates.
Involve yourself by suggestingwhat we should talk about next.
Share it with Harry and.
The bigger picture, advocate, use us.
(36:23):
Speak to the world, your project,your idea, your enthusiasm.
We have a whole range of differentprograms that will fit what you want.
As far as listening goes, there'ssome challenging stuff out there.
Because amongst the identity, theentertainment, and the community,
we also make serious programs withautism professionals challenging
(36:46):
their ideas and bringing whatyou say in other spaces to them.
A lot of those are difficult listens,but it's a holistic gathering.
It comes all together.
Autistic radio is very varied.
We need a favor to encourage us.
We need you to share us.
When you share us.
You give autistic people power.
(37:08):
When you share us, you makeus impossible to ignore.
When you repost on LinkedIn and Facebookand anywhere else, you are advocating
for everybody in the autistic community.
So pick the things that you arehappy with and get them out there.
So thank you from all of us.
We speak our words, we listen,we speak our words, we listen.
We speak our words.
We listen.
We speak our words.
We listen.
Good everyone.
And this is Harry, Facebook for.
Sunday, the 25th of May,
2025, and this is where we gothrough the tested radio's Facebook
(00:23):
page and go through the recent poststhat have been shared, and we talk
about them as topics of discussion.
The first post is from emergencedivergence, the neuro divergent ramblings
of David Hammond, who's an author.
What he shared is a book thathe's written which is regarding
autism and psychosis and on
the link itself, it's throughAmazon, and this is what it says,
(00:46):
A Guide to autism and psychosis.
And professional insightsfrom my psychotic mind.
In this book, David Grham takes on
a journey through the landscape of beingautistic, ang psychotic, using both
personal and professional experience.
He
interweaves academic literaturewith personal antidotes, giving
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context to the loosely studied areaof psychosis and autistic people.
David highlights the impact of thelack of understanding, as well as
discussing how one might help anautistic person experiencing psychosis.
Further to this, he considers how hemight redefine the role of psychiatry
and the lives of autistic peopleand how he might address the social
(01:32):
issues that contribute to psychosis.
The supporting text on it to giveit, some background says that whether
you are an autistic person, researchor support worker, family member,
or just curious, a guided autism andpsychosis will give you insight into
the world of psychotic experiences for
(01:55):
autistic people and autism.
Okay.
I'll say it's a wee bit,
a heavy subject.
I've listened to David Grham and over thepast couple years and read some of his
stuff relating his experiences with us.
Yeah, I'd have to understanda wee bit more about psychosis
before I say anything.
'Cause it's often mental healthissues that bring us to our
(02:17):
diagnosis as we've discussed before.
From how I understand psychosisfrom learning at uni and like past
experiences is that it's almost likeeverybody's got like a breaking point.
There's like a stress point at whichour mind's well snap, and I feel like
that even just that knowledge reallykind of can help to destigmatize like.
(02:41):
What is a human like experience?
I think it brings up like a lot of bigquestions and like it can be a really
difficult thing to recover from as
well.
David Hammond always shares veryinsightful stuff, even if you may
not always agree with what he says.
He makes you think,
yeah.
I would like to read
(03:05):
this book.
I remember seeing a video that he'dmade and it was he was talking about
how our urge to hyper focus, we trywhen we get stressed and then we
try and hyper focus on everything.
That's when
our brains start to really struggle.
And I found that a really, like,I found that really relatable.
That kind of, yeah, that was similarto experiences that I've had.
Psychosis is a term used todescribe when someone experiences
(03:28):
a loss of contact with reality.
This can manifest in various ways,including hallucinations, seeing or
hearing things that aren't there.
Delusions, firmly heldbeliefs that are not true and
disorganized thinking or speech.
Yeah, I like take it as a loss ofcontact with consensual reality.
There's a number of people sayingthings like, I like his work a lot, and
(03:52):
David Grham and makes things an e easyread dealing with complex subjects.
The next post is from Autism on the Water,which is a charitable organization to
raise awareness and assist autistic peopleto access sailing and boating in the uk.
And what they shared is thatthey're involved in a competition
(04:14):
called the Scottish Series.
And this is an update saying,unfortunately, team autism on the
water had to retire from day threeof the Scottish series due to a
torn man sail in windy conditions.
We are extremely disappointed givenhow well we are doing, but thankfully
the sale is very much repairable and wewill be back racing for the final day
(04:35):
tomorrow despite having to retire today.
This is our discard and we are stillin a healthy position overall with
three first and three thoughts,and I did not finish as a discord.
We're
so incredibly proud of our teamfor the efforts they're putting in,
especially autistic crew members.
We are also very grateful to thevolunteers of the Clay Cruising
(04:59):
Club and 7 0 7 Sailing for theirassistance with our engine troubles.
And finally, as ever, a hugethanks to Corner House Tarper
for sponsoring us this weekend.
As David Whi of Kelberg says,we never give up and we'll
back out fighting tomorrow.
We have this.
(05:19):
Well, it's just great to see thischarity, this CIC making it possible for.
Autistic people to get out there, dosomething physical compete, become
part of a team, all of those negativesthat are associated with autism
that tend to make people dependent.
(05:41):
This idea increases . Independenceamongst autistic people and puts
a very positive message about howit is possible to be autistic.
Also a competitor, also asportsman, also a team member.
The next post is from awesometraining, which is an education page.
Autistic led neuro affirmingtraining, mentoring, consultancy,
(06:04):
and support for people ready tomake the world a better place.
For s. And what is shared is a following.
Perfectionism is a form of self-harm.
We talk about perfectionism likeit's a quirky character trait.
Something to joke aboutin a job interviews.
Oh, I'm a bit of perfectionist.
We
(06:27):
say half smiling as if is asign of ambition, a mark of
someone who cares deeply and
tries their best.
But the version of perfectionism I want totalk about today isn't funny or charming.
It's not about high standardsor having pride in your work.
That kind of care is somethingelse entirely, something healthy.
What I'm talking about is the deep knowingcompulsion to never be good enough.
(06:51):
The kind that sets you up tofail over and over again because
the finish line keeps moving.
The kind that masquerades as motivationis actually self punishment, the
kind that starts out as protectionand ends up as self-harm.
It's under a blog calledPerfectionism as a Trauma Response.
I think I'm a bit uncomfortable, theabsolutism that I get as a feeling from
(07:16):
the wording here, but the sense of it.
Where perfectionism goes beyond agood thing and goes into something
that is actually hurting us.
I'm fully with, I think one of thethings that we need to be encouraged
to do and practice for ourselves isthe concept of a good enough job.
And.
(07:37):
If we can adopt the idea of doingsomething to the 95% level and stop
fiddling with it and stop spendingall those hours on the last little
bit, then we will actually achieve andwe will get something out there, and
then something else will come from it.
If we are so perfectionist that wedon't get past and get something out
(07:58):
there, get something published, getsomething done, then it restricts us.
What it says is perfectionism as a traumaresponse, and it says, perfectionism
for so many of us begins with fear.
Fear of being found out, fearof rejection, fear of not being
loved unless we are exceptional.
Maybe we were criticized constantly.
(08:20):
Maybe we were praised onlywhen we overperformed.
Maybe we learned that mistakes made usunsafe, emotionally, physically, socially.
So we set out to fix that,to protect ourselves.
If I just get it right, then noone can hurt me if I'm perfect.
Then I'm safe then and fora while it works sort of.
(08:40):
We get praise, we get noticed.
We avoid blame.
We control the narrative,but the price is high.
The price is ourselves becauseprofessionalism is a moving target.
It's never arrived at,and it's never enough.
So we
moved the goalposts, we rewrite therules, we finished something, we,
one stop was brilliant, and insteadof resting in that achievement, we
(09:04):
call it sloppy, embarrassing, lazy.
We erase the version of ourselves that wasproud a few days ago and replace them with
a crew editor who demands more better.
Perfect.
I relate to this a lot because thatexactly expresses what I go through
from the trauma response, from beingbullied and never being good enough.
(09:26):
I now put myself except the highstandard, which I can't possibly achieve.
There is a comment that's sayingit's all guesswork in their opinion.
I can sort of see what it's tryingto say 'cause I do it myself.
There's some days where I think, Iknow it's sad to believe sometimes
when I even say it, that I'm absolutelybrilliant because all the stuff that
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I've done well and things are workingout and I feel a sense of achievement
and because of stuff that I do,I feel good for the greater good.
It feels great because ofthe society we live in.
It's good that something'sgood's happening.
You know what, amongst allthe gloom and there's pride
and achievement and all that.
Then there's just sometimes where youstart to think, or I start to think and
(10:06):
it's, I could have done it a bit better.
I could have planned more ahead so I cansort of get what some of this is saying.
But it does seem quite brutal in itsapproach or in its narrative, even though
I do get and understand why it's sayingand why it's reading the way it's reading.
I tend to agree with what
was saying earlier about you.
Putting up with what's good enough.
You not putting up with, butaccepting what's good enough.
From my point of view, it'sthat matter of being good
(10:34):
enough to pass, for want of a better word.
You know, that old word pass,which is a bit like masking, I can
pass as normal or effective by.
Doing things just good enough to get by.
I see that as almost an aspect offawning, you know, 'cause I reflect
back on, early school where I did reallywell, but that was purely impressed.
(10:54):
Teachers who I saw as substitutes,other good mothers and to impress them,
got me places, but then got me in alot of trouble with social groups.
So.
I learned to just do enough to get by.
So after you leave school, it's justenough to get by for income generation
or work or acceptability, social stuff.
(11:15):
Whether that's perfectionismis another thing, you know,
perfectionism I see is like somethingthat's a wee bit outta control.
The block continues in terms of whatthe inner critic becomes the architect.
That society rewards our self-destruction
and then . It continues whenself-protection becomes a self-harm and
(11:35):
then it ends, , you deserve to be enough.
I think the other thing to think about itis that there is no such thing as perfect.
So striving for something thatdoes not exist leaves you in
that constant striving for it.
Something is never finished or a. If youare doing it inside your head and you're
(11:55):
thinking about it and you're planning init, it's never started in a practical way.
You go through a cycle where you plan it,work out how it should be, and then decide
it's not possible so you don't do it, andthat all of those things are debilitating.
So the only thing I can sort ofpass to say something that is
lightening your load is to say that.
(12:19):
Perfectionism doesn't exist, and theperfect job is the job that does the
minimum for the achieved results.
So set the standard atsomething that's achievable.
In some of the comments are saying, Inever think anything I do is good enough.
Everybody's idea of perfect is different.
(12:39):
Someone else says the greatest achievementis getting by even if you fail.
There's also something veryimportant here from a LinkedIn user.
They say, my nemesis andmy language holds me back.
I have the words, but thenthey don't make sense to me.
Or I doubt them a lot.
I doubt them a lot more.
Now since my diagnosis.
(13:01):
Which I find frustrating.
So there's a bit in that person'scomment that's saying that instead
of being a positive experience,diagnosis has actually undermined them.
Which I hope is something that willbe something that they pass through.
But I can see where somebodywould get stuck on that.
I think that's the case.
Like when you were using an old languageand now you almost require a new language.
(13:25):
So to use your old languagedoesn't make sense anymore.
Now, maybe you had thatpre-diagnosis as well.
You know, the intimations of thislanguage I have been given is not enough.
But also it's like that explanationand representation and all that.
Sometimes I think there's points in yourlife where that becomes meaningless.
You know, it's not in a bad way.
(13:45):
It just loses meaning for you.
There's other ways of being with thingsand expressing things and receiving
things, and it is a whole new language.
It can be very frustrating.
Yeah.
But also think it's a clue,you know, if you wanna treat
it like a we game it's a clue.
It's almost like, youknow, to find things.
(14:06):
You have to see whether they're not.
. The
next post is from Grove NeurodivergentMentoring and Education.
It's an education website describedas opportunities for neuro affirming
connection, community, and growthfor autistic young people in the
UK through individual mentoring,social and interest based groups
(14:26):
and autistic identity programs.
What they've shared is a program calledBeing Me, and they're saying, I'm
enjoying putting the finished touchesto our Being Me Program Guide for
parents and carers, as well as youngpeople gaining self-understanding.
What are we hoping for most withbeing me that they feel less alone.
(14:50):
That they feel a sense of belongingin the group and also in the wider
autistic community that they know thereis nothing wrong with who they are.
And in fact, they can beproud of being autistic.
We don't expect them to remembereveryone, but we hope these feelings
will become something they can remember
I always think that there are two crises.
(15:12):
The world of autism, and the first oneis the loneliness that comes from the
lack of networking and connectedness.
And the second one is the societyreducing our ability to build self-esteem.
I use those two things as a catchallfor everything else that goes with it.
(15:34):
So what I perceive here thatGrove Neurodivergent mentoring
and education is attempting to dois address both of those things.
Though it's somethingto uphold and support,
the next post is from AutisticJazzy, which is a personal blog.
Hi, I'm Jazzy and I have level two Autismwith Severe A DHD and mental health.
(15:59):
I am really happy most of
the time, but not always.
And I've shared a quote in thishouse we do stemming, rocking,
spinning, and hand flapping.
If you don't like that, you can leave.
It could be like a we doormat, eh.
, I think it's so important thata home is a safe like place for
being able to move and sing or.
(16:21):
Hum or whatever.
Just how you need to be ableto kinda reregulate yourself.
It's really important and it's beenreally important for us as a family to
have a really, like a place that we canbe ourselves and all feel really safe.
I support Nicola in that.
I like the post, I like the crayons.
I like the graphic, I like the colors.
(16:42):
I just don't like the sort of slightlyaggressive bit, which I understand.
You know, if you don'tlike it, you can leave.
'cause it sounds a bit, I dunno, but thenI know why people have to bite, you know?
Yes.
Personal people basically respondingto constant criticism of behaviors
(17:02):
are looped upon others as abnormaland it shouldn't be happening.
And maybe one or two people even getinto someone's home and basically
telling you how to live in your ownhome and how to behave in your own
home because they're not happy with it.
If feel uncomfortable withit, you just say, well, if you
don't like it, don't be here.
It's like a sort of defense mechanism,a quote of defines not being
(17:27):
bad, but just people defendingthemselves saying There's nothing
wrong with what happens here.
Stop judging because that is a big thingthat affects a lot of people, is judgment.
Is there a thing where this isseen as unacceptable in adults?
I mean, if it was a housefull of kids, nobody.
Should, we'd have the right to comein and complain about it being a noisy
environment, really, what do they expect?
But if you come into a place withadults behaving as they want, you
(17:50):
know, and not behaving in a sort ofneurotypical or stereotypical way,
an acceptable way suddenly they'vegot this right to lay down some kind.
Law.
Yeah, you're right, Roman.
The reason it's biting back is becausepeople do tell us to sit still.
They do tell us not to hand flap,and they do tell us to grow up.
(18:12):
I'm a 60-year-old man.
I have all kinds of stems.
Everything from biting my nailsto sitting, watching the TV
rocking on a rocking chair.
It's my own home.
And if you come into my own home, Iwouldn't expect you to lay down the law.
And people do tend to judge andcriticize autistic people for our stems.
(18:36):
So that's why it's a biting attitude here.
Even out in the wild, Jules, in yourmost recent public appearance, you
know, the fact that you got up outyour chair at times moved around.
I was sitting here cheering, you know,it's like, yes that's how it's done.
That's what we're like, but it's not whatwe're like, that's what Jules is like.
(18:56):
And you know, it's often what is seenas disconcerting to people who have.
Kinda conditioned and taught to sit still.
. Someone was saying in the commentsthat most support is about teaching
compliance and then followed thatup with school is about compliance.
To which someone replied, making referenceto an earlier conversation about meeting
(19:20):
people in the street, that he saidthat school is a machine for churning
people out for work, to which the chapthat you met in the street replied.
Yeah, I've heard someonetell me that before.
The next post is from Weldon's.
Autistic Life is a personal blog.
I am an autistic adult that sharesmy life openly and honestly online,
(19:42):
and she shared a quote, autisticlife is spending so much mental
energy just getting through the day.
That's why I have a routinebecause it makes it easy.
Everything is a routine.
Meals are a routine.
What I do on days of theweek is pretty much fixed.
That's how I get through.
Yes, that is very important because manypeople in society who will feel they're
(20:06):
stuck in a rut, feel lost is the lack ofroutine of being stuck in a vicious cycle.
So they're in some kinda routine, but it'squite negative, but it doesn't feel like
a routine that they have control over.
If they create a routine and able to geta routine that's more positive minded,
it feels that's like a step forwardfor a coping mechanism just to get
(20:30):
yourself either outta bed or if you'rehousebound quite a lot just to get out
the door and going somewhere, like goingto a shop or even just going for a walk
in a park on a quiet day, and it'smaybe something you do every day
that maybe kinda gets you going.
Just something to look forward to doing.
(20:50):
I think that's the main thing as well.
It's like something that makes senseand in many ways in the routine,
something to look forward to.
And that includes, you know,having meals, set times, et cetera.
It just depends on the personand what they're looking to
do and who to move forward.
This works exactly againstmy experience of life.
(21:10):
And that is why I feel sometimes asthough I'm on the margins of the autism or
autistic community, because I do not feelthat my autism is just about extending my
mental energy just to get through the day.
If an autistic person is in goodcircumstances and has the opportunities
(21:33):
and has the supports around them, thenit's not about just about getting through
the day, it's about being creative.
It's about having a purpose andhaving a goal and achieving things.
And every single day I am involved inso many different things that I believe.
Most non-autistic people wouldstruggle to deal with the variety
(21:58):
of things I do within a day.
So for me, being autisticis not a struggle.
So I just want the autistic community , toaccept and bring within the community.
People like me who do not feel entirelydisabled by their autism and have us as
(22:21):
part of the autism community, we do nothave to be struggling to be a member.
Do you feel, Jules, that you discoveredvery early when you were young,
possibly through an former independence,that you were able to access.
These capacities within yourselfbefore they became sort of traumatized
(22:42):
or conditioned, which I think is athing in my case as an adult senior
even has arisen, you know, dueto long periods of struggling and
masking with, you know, situationsthat are supposedly normal, but.
Were very uncomfortable.
And so I think it was at a young agethat the trauma stepped in, you know,
(23:07):
but not a very young age, but maybeteens and into twenties where it was
like the encounters we adult life.
And I thought, oh yeah, I canmanage and then I couldn't manage.
So, 'cause there's something inthat, I think when you see the young
getting advantages today, I hope.
In exploring that creativity, you speakabout the opportunities then there's great
(23:28):
hope that they're gonna have great lives.
They may still struggle in a lot of ways'cause it's an intense sensory existence.
And so routine is one of the methodsof managing that sensory overload.
I recognize everything that peopletalk about using routines as a way
of stopping, being overstimulated.
(23:49):
All these things that Irecognize, but I've been fortunate
and I think you are right.
I have not been traumatized inthe way that so many autistic
people have been traumatized,and trauma is not the necessary
requirement to be part of the club.
There are many autistic people thatI know who have managed to avoid
(24:14):
bullying, who I have never been bullied.
And they've managed to avoid trauma.
I have to say that I had the opportunityand I dropped out of society when I was
16 and I left, and I went off with mytent to my bicycle and I was entirely
independent, so nobody had the controlover me, and that continued until I
got into society in the ages of 20.
(24:37):
So it's a fortunate.
Situation.
Yeah.
I always like the reverse of you.
It's like, the society first traumaand then go independent and escape it.
For me, it isn't the autismthat's caused you, it's a lack of.
Accommodations to meet my needs.
When I was supported by my father,I didn't have this problem, but
(24:58):
now I'm having to do things ina way that's not natural to.
I think when
you say accommodation,
Rob's, is that what otherswould call adjustments?
'cause I just did a onlineautistic post-diagnosis group
this week and this week's subjectwas adjustments and benefits.
(25:20):
It's like the question waswhat kind of adjustments?
It's if organization will provide adifferent form of communication and
phone, I wouldn't have the extra stressof having to find someone to phone for me.
I think that illustrates, you canillustrate the difference between
adjustments and accommodationsby what Robbie has just said.
(25:41):
If it was adjusted.
So that Robbie didn't have to phone, buthe could text or chat or do something
appropriate to him, then that wouldbe an adjustment and he would be in
control of that, or somebody wouldbe offering that adjustment to him.
An accommodation is something thattends to be handed down to you,
(26:01):
so that we will accommodate youby making the phone call for you.
The next post is from Swan AutismScotland, and it's a community
page, and SWAN is an autistic ledcharity run by and for autistic women and
non-binary people since 2012, and they'veshared the following, we can't believe it.
(26:25):
One of our wonderful swansis fundraising for us.
Christine is on a mission to walk 50,000steps to raise money to support swan.
Every step I take represents notjust a physical challenge, but a
commitment to raising awarenessand funds for this vital charity.
I'm aiming to raise 500 pounds tocontribute towards one initiatives,
(26:46):
ing resources and support throughcourses, training, advocacy,
and safe spaces to socialize.
With your help, we can make a significantimpact in the lives of many who
are navigating the complexities ofautism, seeking acceptance, and a way
to find their place in a world that
can be very confusing and overwhelming.
She's already well in her way toachieving a massive step count
(27:11):
you can ate to help boost ourenergy and our fundraiser Target.
Visit Christine's page on the link to findout more about what she's doing and why.
And if you're not in a position todonate, please help by sharing if you can.
Thank you.
And a huge thank you to Christine,and it's a link provided through just
(27:32):
giving Christine's for swollen autism.
This is making me think about a radioprogram I held this week on Radio Four
Money Box about how small charitieswho try to do their own fundraising are
being penalized now by banks who are nowcharging them about four 50 a month to
keep an account for very small deposits.
(27:55):
That's exactly the problem thatwe're having in our community grip.
It's really difficult.
Like and getting charged by transaction.
When you're tiny, we would probablyneed about like 35 pounds a month.
And so, like, a fee like that justseems really disproportionate.
Yeah, some groups are losing allthat they're creating in a year and
(28:16):
just maintaining a bank account.
There are ways around this.
Most organizations.
For their accounting, simplyneed to provide records.
And it's unnecessary for themto have a bank account in
the name of the organization.
Where it becomes necessary iswhen they become incorporated
(28:39):
into something like a charity.
And if you are incorporatedinto a charity, then it
becomes a little bit easier.
So other organizations, it's quitepossible for somebody who is the
trusted member to hold an amountin a separate private bank account.
The only issue is whether thosepeople abscond with the funds.
(29:02):
So.
It's when you make a joint bankaccount and if you make a joint
bank account as two private people,then what you do there is you attach
your credit li reference together.
So yes, there are slight waysaround this when you're really
small, but it's an issue.
Well, thanks everyonefor discussion tonight.
(29:23):
, Thank you to the people thatshare these posts, which make
these conversations possible.
So this is Harris's Facebook for 25th ofMay, 2025, which is part of the Spectrum
V conversations five five 5:00 PM to 7:30PM UK time when Facebook Live and in other
platforms including YouTube and LinkedIn.
(29:45):
Thank you for your work again, Harry.
Here we'll talk about the workwe do with autistic association
that supports autistic radio.
Wherever you are listeningto autistic Radio.
It's good to have you thereand it's enjoyable for us to
make these programs for you.
At this point, I mentioned some of thethings that we are doing at autistic
(30:08):
radio with the backing of autisticassociation I received an email this
week with 24 hours notice before the.
Final time that a fundingapplication had to be put in.
And it felt to me as though, eventhough over the last few years I've
(30:28):
made the people who have this fundingavailable very aware of autistic
radio and autistic association thatwe received the email telling us about
the funding as an afterthought or even.
We were not expected to have theopportunity to apply for the funding,
so within 24 hours, I dotted all thei's crossed all the t's, finalized
(30:53):
the accounts, wrote a safeguarding,statement, and put together quite a
long application and got it in time.
It looked as though the way the fundingwas put together to specifically exclude
autistic people, organizations, APOs.
It was written as though it wouldbe necessary to have a non-autistic
(31:17):
organization with some input from an a PO.
Part of the reason I decidedto go to all that trouble.
And all that work was to take awaythe excuse that we couldn't be funded
because we weren't prepared andwe hadn't put in the application.
We will see what happens onthat, but from what I saw, we
(31:39):
not only fitted all the criteria.
The proposal that we put was veryappropriate for the autistic community,
not just having a meaningful inputfrom the autistic community, but from
an entirely autistic organization.
The second thing today isabout an invitation from the
restraint reduction network.
(32:00):
Which is an organization here in theuk, which brings a lot of different
professions together to reduce theamount of times in professional
environments such as prisons or mentalinstitutions or schools that the
techniques that are taught to caregivers.
(32:20):
Or security staff are not broughtto bear as the first option.
So we've been invited as a group if wewould like to follow up the suggestion
that I made at their recent annualconference with that, we had a Vox pop
and we took the autistic radio on the.
(32:42):
On the road and set up some microphonesin a quiet room and allowed various
people with lived experience andalso some of the professionals to
describe in short conversations theirexperience of restraint or from the
professional's point of view, whythey are part of that organization.
So I'm gonna bring it and open itto the members here and ask one
(33:06):
specific question, and that is.
Do you think that's somethingthat we should be doing?
And if so, is it something weshould do as a group and maybe
go in a mob handed or not?
Well, it seems a perfect opportunityto go as a team somewhere and take our
ideas forward and present an opportunityfor others to take part as well.
(33:27):
So I'm certainly up forthat depending on how.
Yeah, , there's two ways of taking part.
There is the usual way of taking part,which is remote, but also physically.
If people want to travel down toLiverpool and spend a couple of nights
in Liverpool and attend the conference,then that's another way of doing it.
(33:48):
We're going to be paid the same feethat we were paid last time and.
They were assuming before I spoketo you guys that it would just be
myself going along so that theywere gonna pay some of my costs.
But the fee and that cost, if we as agroup put it together, we could probably
make sure the charity could affordto do it for more than one person.
(34:11):
I am tempted to say just doit like you did the last one.
It's almost like jus on tour, you'regoing out there to air us across.
Well I think it's an opportunityfor others to actually give
Jules some physical support.
'cause even though Jules havedone a lot of good work and this
seems physically not left on hisown, but doing things on his own.
(34:31):
So if there's someone else
there.
It would be it'd be a good supportfor Jules, but obviously Jules can
tell me if that's required or no.
I just thought maybe that'smore of a team effort.
But it all depends on availabilityand all that Of course.
But that's nothing.
No.
I support a travel and band as well.
I just don't do the social thing.
I totally understand that side of it.
'cause I struggle with that as well.
(34:52):
And it's all kinda shop talk andtalking about the work that we do.
It'll be not a door.
Easier.
But then when it comes with socializingkind of thing, it's quite difficult,
but I'm sure there's ways aroundit and ways to protect ourselves.
Okay.
Well I'm reading in the textwe've got two people saying they
don't want to do the traveling.
It sounds as though our chairman Harryis volunteering, so that's great.
(35:15):
I'm happy to do it.
It's either way . I think it's really downto the group to decide whether they're
willing to spend the money to do this.
If it was myself plus another couple ofpeople, or even another three people,
we would have the funds to do this.
And it fits within ouraims of our charity.
(35:37):
So when people have had a little bitof time to think about it, then we'll
have a bit more of an open discussion.
Autistic radio is about us.
It's for us, and it's from us.
Autistic Radio is about you.
It's for you, and it can be from you.
We have every single Sunday dropin four, four 4:00 PM every Sunday.
(36:01):
That's not live.
That's us getting together,us talking community.
Every Sunday, Harry leads a fivefive 5:00 PM a discussion around
the Facebook page that he creates.
Involve yourself by suggestingwhat we should talk about next.
Share it with Harry and.
The bigger picture, advocate, use us.
(36:23):
Speak to the world, your project,your idea, your enthusiasm.
We have a whole range of differentprograms that will fit what you want.
As far as listening goes, there'ssome challenging stuff out there.
Because amongst the identity, theentertainment, and the community,
we also make serious programs withautism professionals challenging
(36:46):
their ideas and bringing whatyou say in other spaces to them.
A lot of those are difficult listens,but it's a holistic gathering.
It comes all together.
Autistic radio is very varied.
We need a favor to encourage us.
We need you to share us.
When you share us.
You give autistic people power.
(37:08):
When you share us, you makeus impossible to ignore.
When you repost on LinkedIn and Facebookand anywhere else, you are advocating
for everybody in the autistic community.
So pick the things that you arehappy with and get them out there.
So thank you from all of us.
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