Advocacy Bring People Home From Hospital Ep27 Autistic Radio

Episode Transcript
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(00:03):
We speak our words, we listen,we speak our words, we listen.
We speak our words.
We listen.
We speak our words.
We listen.

Jules-Autistic-Radio.com (00:18):
If we can all be kind to each other,
the world is a better place.

Simone-Inclusion-London (00:22):
Yes, I totally utter agree with you there.

Hello and welcome to Autistic Radio Simone
has an important event comingup on the 29th of April, 2025.
It's the day of action to move autisticand learning disabled people outta

(00:48):
psychiatric hospital into their own home.
For many years, we have seen autisticpeople held in inappropriate places.
Sometimes that's longstay mental institutions.
Sometimes that's inappropriate detainmentin almost prison-like circumstances.

(01:14):
Simone, what's happeningon the 29th of April.

So from hospital.
A project that is supportedby three Hour people.
Campaign and Inclusion.
London Free Hour People Campaign isa campaign that's led by people learn
difficulties and autistic people to stoppeople with learning difficulties and

(01:40):
autistic people from being locked up inthe psychiatric system and to move people
out of hospital into their own homes.
A network of organizations andindividuals doing a lot of great
work supporting people with learningdifficulties and autistic people

(02:01):
get outta a psychiatric system thenetwork wanted to have a day of action.
There is a mental health bill goingthrough Parliament as we speak.
The mental health bill issupposed to support people with
learning difficulties and autisticpeople to move out of hospital

(02:27):
section three of a mental healthact that is about treating people
simply because they're autisticor got learning diff difficulties,
stroke learning disabilities.
We don't believe that just removingpeople out of a mental health bill

(02:47):
outta the law will actually make anydifference whatsoever to get people
out of hospital into their own homes.
The law starts from the wrong place.
It starts from detaining.
People in the psychiatric hospitals.
People must have the right.

(03:09):
To live in the community with theappropriate support that they need
to live good fulfilling lives.
Our, one of our big concerns are, isthat people will just end up being
detained under the Mental Health Act,either going through the criminal
justice route or going for themental capacity Act capacity route.

(03:34):
This legislation will do very littleto move people out of hospitals.
By Marin and Steven Kinnick, who are bothministers responsible for mental health
and her have with lots of big charitiesthat are not led by our communities.

(03:59):
They have refused to meet the onlynational campaign that's led by
our communities to find out fromus what we think needs to happen to
make the mental health bill work forpeople and difficulties and autistic
people who want to get out hospitaland live in their own communities.

Jules-Autistic-Radio.com: Thank you, Simone. (04:21):
undefined
That's quite a long speech thatpeople are trying to get a handle on.
The last bit seems particularlyinteresting to me in that
you've described the issue.
The issue is that people with learningdifficulties, and I said disabilities

(04:45):
earlier, so I apologize, are being.
Held or contained in inappropriatecircumstances and what is supposed to
be a bill that addresses the situationfrom your point of view, misses

(05:06):
the point, and you are led by thecommunity that's most affected by this.
But you are not.
Being heard, you arenot being represented.
The ministers are not speaking to you.
They're bypassing you and goingdirectly to the main charities
that have their own agenda.

(05:27):
And you are saying that despite allof the rhetoric that we have in the
UK about speaking to the end user.
Speaking to the people who are mostaffected, the current government
is bypassing you, you have set upspecifically to enable them to take

(05:52):
your voice, but they are ignoring you.
Have I described that Reasonably?
Have I understood?

Free our People.
Campaign is a project thatInclusion London is supporting.
We got funding from Guinness Trust.
Bring People Home from HospitalNetwork is not an organization, it is
a network of groups who are campaigningaround getting people outta hospital.

(06:26):
To make that quite clear.
We're not, it's not anorganization, it's a network.

Do you think that thing that you've just made clear is
actually part of the problem that you arebeing sidelined because you look like a
ragle, Tagle group of pressure group, whenactually you are a well thought out group
of people that the impression is giventhat you are not as valid as as you are.

I think there is just a complete contempt for a
voice of disabled people across allpolicies, around welfare reform, as
big issues around to what extent.
Disabled people have been involvedin conversations about welfare
reform, housing this is another goodexample of governments , contempt

(07:13):
to , disabled people's voices.

You experience what the government's
doing as a complete contempt.

Yeah.

But you surely, you must also recognize
that there are disabled peoplewithin government to some degree.
It's just, it's quite a small voice.
If we talk in absolutes,sometimes we turn people off.
Your experience is that it feelslike there is a contempt for the
disabled voice and what's happeningat the moment increases that

(07:46):
feeling amongst the community.
Is that a reasonable way of framing it?

Yeah.
To a certain extent, the government, clearly have an agenda that is
very different to our agenda.
, the government, havedecided that this bill is.
As good as it can be, andobviously looking to charities
to support that position.

(08:13):
We take a very fundamentalapproach to the mental health bill.
This mental health billstarts from the wrong place.
It starts from how do we make hospitaldetention better where actually you
can't make a system that Compuls treats.
Disabled people.

(08:33):
Disabled people againsttheir wishes any better.
What you need to do is look at thefundamentals, which is how do we support
people living in, in the community.
. It needs to start from upholding.
Our U-N-C-R-P-D rights for UN PreventionRights of Persons with Disabilities.

(08:57):
Everybody has the right to live in thecommunity with appropriate support.
Disabled people are the onlypeople that can be detained just
simply because they are disabled.
No other group of.
Without a court hearing, without goingthrough a criminal justice processes.

Okay, so what I hear from you is you say
that the bill is intended to improvethe circumstances of people who are
detained, but it is ignoring whatyou would see as a fundamental.
Part of this in that many of thosepeople should not be detained at

(09:44):
all, and that detention in underthe Mental Health Act is being used
against disability rather than peoplewho are a danger to the public.
Does that frame it correctly?

, Simone-Inclusion-London (09:57):
we would argue what danger to the public means
or what the risk of being dangerto the public, but more generally
speaking, the mental health bill.
The only provisions in mobile aroundcommunity care is that, is that the local
authorities and the integrated care boardsmust have regard for duties to provide

(10:22):
appropriate provision for people andcausing autistic people in the community.
They only have to have due regardfor their due regard for the
individual's care, treatment,review plan, recommendations, and
recommendations, means nothing.
There is no obligation uponthe local authorities to.

(10:47):
And
to co-produce with people learneddifficulties, autistic people
plans for actually move people outof hospital into their own homes.

Hearing your words today, some people
will be excited to involvethemselves in this day of action.
How do they do that?
Who do they contact?
Do they just turn up.

We have both an online offering and an in-person offering.
We have a , bring peoplehome from hospital pack.
29th of April we have a day of action.
It starts off with about halfpast 11 people will be assembling.
You'll have the op, there will be arally of speakers that will be speaking

(11:37):
out against the mental health bill.
And then we are going to be, we're goingto be walking up to the Department of
Health and Social Care to deliver aletter to both Marin and Steven Knik mp.
The minister's responsiblefor both mental health and

(11:59):
community care.
To deliver a letter, a meeting totalk about the mental health bill.
This really is an opportunityfor us to raise our voices.
. We're asking people to bringtheir banners, to bring their
voices and to bring their craftwork on the day of action.
But there's also opportunity ifyou are unable to come, to also

(12:22):
upload or upload your contributionsonline, which we will be.
Sharing with people, sharing onthe day of action itself because
we're trying to be inclusive.
So everybody has theopportunity either online or
in person to get their voices heardat Parliament Square and also at the

(12:46):
Department of Health and Social Care.
, when we are
gonna.
Government ministers to talk abouthow we can get people outta hospitals.
We have three government asks, we wanta powerful and meaningful say on how

(13:09):
to get us outta psychiatric hospital.
Our voice is important.
Having a good.
Our second ask is our right to livedecent lives in our communities.
Laws need to be changed, so they upholddisabled people's U-N-C-R-P-D human

(13:32):
rights to live in the community numberthree is to be treated with respect
and protected from abuse everywhere.
Tougher legal action Care qualitycommission, including criminal
prosecution, is needed againstservice staff who harm us.

(13:53):
So we're looking for changesin the mental health bill.
That covers our three major asks.
We're asking people to alsosupport , our three major asks

Jules-Autistic-Radio.com: that's wonderful. (14:04):
undefined
You've put that clearly those threeasks is what the protest is about.
You are going to have a safe festivalatmosphere where people can meet
up with other like-minded folk.

(14:26):
It's going to be a day out witha serious intention, a network
opportunity, smiles craft work, andit's the serious start of democracy.
Protest is the basis of democracy,and you are requesting in our

(14:50):
democratic society a voice forward.
If you, as the listener, have been movedby what Simone and her colleagues are
saying, please look in the program notes.
Please see all the links thatshe has provided to us, and this

(15:11):
might be your first protest.
Why not join?
Thank you Simone for coming anddescribing what you're doing
today here on Autistic Radio.
We will make our best effortsto distribute this for you,
and I hope you will too.
Autistic radio is about us.

(15:34):
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It's for you, and it can be from you.
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(15:56):
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Every Sunday, Harry leads a fivefive 5:00 PM a discussion around
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Involve yourself by suggestingwhat we should talk about next.

(16:19):
Share it with Harry and.
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Speak to the world, your project,your idea, your enthusiasm.
We have a whole range of differentprograms that will fit what you want.

(16:43):
As far as listening goes, there'ssome challenging stuff out there.
Because amongst the identity, theentertainment, and the community,
we also make serious programs withautism professionals challenging

(17:04):
their ideas and bringing whatyou say in other spaces to them.
A lot of those are difficult listens,but it's a holistic gathering.
It comes all together.
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(17:26):
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(17:52):
for everybody in the autistic community.
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