Episode 34-Rethinking Rare: Raising Awareness and Rewriting the Keratoconus Narrative

In this episode of Clearly KC, Dr. Melissa Barnett sits down with Dr. Jennifer Harthan, Professor at the Illinois College of Optometry, Chief of the Cornea and Contact Lens Center, and the newly appointed Executive Director of the GP Lens Institute.

Together, they explore the power of education, research, and patient-centered care—especially when it comes to keratoconus. Dr. Harthan shares insights from a groundbreaking study conducted in a pediatric clinic in Chicago, which found keratoconus prevalence to be as high as 1 in 334—much higher than previously reported. The episode explores the implications of these findings, highlighting the urgent need for earlier screening, greater awareness, and better access to care.

Dr. Harthan also discusses the wide range of specialty contact lens options now available for patients with keratoconus and the importance of setting realistic expectations. From corneal shape and lens materials to dry eye management and midday fogging, she offers clinical pearls for both practitioners and patients alike.

Whether you’re a student, practitioner, or someone living with keratoconus, this episode is full of actionable insights—and a reminder that no one should face keratoconus alone.

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