Joel vs Arthritis Podcast
Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality. Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) LIVE on the ’Joel vs Arthritis’ YouTube Channel.
Episodes
Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition.
We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face.
Plus, we get valuable insight into ...
Eczema and psoriasis are common skin conditions that can cause significant discomfort and disruption to everyday life. This talk show provides practical tips and advice on managing these conditions and living more comfortably from various lived experience perspectives.
We talk to experts in the field of skincare, as well as people who have lived with eczema and psoriasis, to get their insights and experiences. We also cover topics ...
On this episode of the podcast, we are joined by somebody who needs little introduction in the UK access and disability space.
Broadcaster, Journalist, Musician and disability advocate Mik Scarlet joins us to talk about his lifelong relationship with pain, the darker side of living with pain and how he uses humour to cope, the amazing work he does for access, disability and inclusion and touches upon his incredible and varied caree...
In this episode, we are joined by the wonderful Ian Taverner, aka Mr Cookfulness.
Ian becomes an instant favourite with our live audience as we talk about adjusting to chronic pain, the mental health impact pain can have and how Ian turned to cooking to cope with his change in circumstances. Following Ian’s incredible journey from the grief of pain and the impact on his family to how he now owns the stage at events like Naidex, thi...
Tracy lived with Antiphospholipid Syndrome for 17 Years, from her first symptom to diagnosis, resulting in internal damage.
Over the years, Tracy learned to use art to process and began painting her condition as she saw and experienced it.
Now a patient advocate for Antiphospholipid Syndrome, Invisible Disability and Chronic Pain, Tracy joins us on the Chronic Pain Club Talk Show to talk about this often-overlooked autoimmune cond...
On this episode, we are joined by Katy Pieris to talk about parenting with Rheumatoid Arthritis, the importance of exercise, why she volunteers and hear her arthritis story.
This felt more like two friends chatting at the bus stop than a video call between two people for the first time, and I really hope that mutual respect, candidness and relaxed conversation comes across in the recording. :)
Follow our GUEST: Instagram: https://...
We are joined by special guest Russ Cowper - Psoriatic Arthritis Patient Advocate, Charity Trustee and Poet - to hear why they advocate and how writing poetry helps them live with a chronic condition. This one, and the live poetry readings, proved very popular on our YouTube channel at the time of recording.
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook), or for full links, click here.
On this episode of The Joel vs Arthritis Podcast, we are joined by inspirational special guest Sukhjeen Kaur. We talk about her path to equality and inclusion advocacy, her founding of Chronically Brown and why Intersectionality is so important.
Follow our GUEST:
Instagram: @chronicallybrown Facebook: chronicallybrown Twitter: @chronicbrown Website: chronicallybrown.com
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
I report to you live from EULAR 2023 in Milan in a very special mini-series!
Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes.
Join me every day this week live from EULAR!
For live tweeting during sessions, follow me on Twitter: https:...
I report to you live from EULAR 2023 in Milan in a very special mini-series!
Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes.
Join me every day this week live from EULAR!
For live tweeting during sessions, follow me on Twitter: https:...
I report to you live from EULAR 2023 in Milan in a very special mini-series!
Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes.
Join me every day this week live from EULAR!
For live tweeting during sessions, follow me on Twitter: https:...
This week, we are joined by special guest Molly Schreiber, Patient and Community Director of Savvy Cooperative, who shares with us their Rheumatoid Arthritis and Type 1 Diabetes lived experience and their work at Savvy Cooperative, helping to amplify patient and caregiver voices.
Find our Guest: @mollyeschreiber (Instagram) @mollyschreiber (Twitter)
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
The Chronic Pain Club returns as Zoë Clark joins us to talk about her Ankylosing Spondylitis journey, how it feels to go through multiple and sometimes incorrect diagnoses, disability identity and how her work as an Allied Health Professional and patient advocate helps her and many others.
Find our Guest: @ZoeTheOsteo (Instagram) @ZoeClarkOsteo (Twitter).
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
The Chronic Pain Club has more real patient stories and chronic illness awareness.
This week, we were joined by James Hillery - Ankylosing Spondylitis patient and two-time contestant on the Great British Bake Off. He shares his AS journey candidly, and we get lots of behind-the-curtain insider info on what is happening on the set of The Great British Bake Off! This one was a must-watch/listen! - Watch the Chronic Pain Club live on...
In this episode, originally recorded in August 2022, we are joined by the inspirational Emma Townley for a Psoriasis Awareness Special, where we discuss Psoriatic Arthritis, its co-morbidities and how it impacts your mental health. We hear Emma's emotional journey from diagnosis to raising awareness to help others.
Recorded live on Twitch as part of 'The Chronic Pain Club' weekly talk show - Watch it live and for free at https://ww...
Does your invisible illness ever make you feel like a fraud?
We have a special guest as the wonderful Amy joins us to talk about her Juvenile Idiopathic Arthritis journey, the awareness she is raising to change future experiences and how it influenced her decision to train as an Occupational Therapist.
Part of The Chronic Pain Club weekly chat show - Watch it live at https://www.twitch.tv/joelvsarthritis.
SHOW NOTESIn this special episode recorded during Mental Health Awareness Week here in the UK, I am honoured to be joined by fellow WEGO Health Award Winner and TEDx speaker Dr Ashley Perkins.
In a break from our usual arthritis-based content, Ashley candidly shares her eye-opening journey with anxiety, agoraphobia and OCD and how they significantly impacted her life and career. We learn how an upsetting and dangerous event, along with discr...
World yOung Rheumatic Diseases Day (WORD Day) is an annual event on 18th March to raise awareness that children and young people get rheumatic diseases.
On Saturday the 19th March, Joel hosted an 8-hour marathon stream on his Twitch Channel to raise awareness of WORD Day 2022 and rheumatic disease in children and raise funds in aid of Juvenile Arthritis Research https://www.jarproject.org.
In this second part of three special inter...
World yOung Rheumatic Diseases Day (WORD Day) is an annual event on 18th March to raise awareness that children and young people get rheumatic diseases.
On Saturday the 19th March, Joel hosted an 8-hour marathon stream on his Twitch Channel to raise awareness of WORD Day 2022 and rheumatic disease in children and raise funds in aid of Juvenile Arthritis Research https://www.jarproject.org.
In this first part of three special inter...
Has the Covid pandemic impacted the care we receive for our arthritis or chronic illness?
In this 'round table' chat, full of insight, lived experience and heartbreak, we discuss the experiences of Jacyln, Safia and Ashleigh to understand how their 'normal' care has changed over the last two years.
From lifelong conditions to the recently diagnosed, we take a sample of stories from across the country to get a snapshot of how treatm...
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