22. Barry’s story! The Male Perspective!

This week you will hear Barry’s story. Barry talks for the first time about his son Mason who was diagnosed with peroxisome biogenesis disorders (PBD), Zellweger Syndrome at just four months old, when he was only given a year to live. Listen as Barry talks about his journey caring for his son and being a dad for the first time. You will hear how determined Barry was to give his son the best quality of life by thinking outside of the box and challenging where he felt necessary. And what a fantastic job he did. Mason managed to live until he was two and a half years old thanks to the care and determination of his parents. Barry is a proud dad and he talks about the struggles and the highs and lows of his journey caring for his son and what life was like after. Even after losing his son Barry continued to work and support others. It was a privilege to hear his story and hear the perspective of the dad in this episode. Barry is an amazing father and an inspiration to all.