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February 21, 2024 38 mins

Sällsynta Podden, en ny podcastserie om sällsynta diagnoser. Initiativtagare till podcasten är läkemedelsföretaget Takeda

I podcasten delar patientföreträdare sina erfarenheter av hur det är att leva med en sällsynt sjukdom, både som patient och anhörig.

Poddavsnittet gästas av Oskar Ahlberg, Ordförande MPS-föreningen och Vice Ordf. Riksförbundet Sällsynta Diagnoser, Margareta Haag, Ordförande Nätverket mot cancer, Ulrika Westerlund, (Mp), riksdagsledamot, ledamot i Socialutskottet och Lovisa Lovmar, Centrum för Sällsynta Diagnoser Region Väst och Verksamhetschef Klinisk genetik och genomik.

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