The Encephalitis Podcast

Encephalitis Podcast Episode 58

In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions.

They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face.

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In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy.

Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric auto...

In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?'

Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical Neurosciences, University of Oxford. She is also on the Scientific Advisory Panel for Encephalitis International. 

Her research focuses on clinical a...

The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats

In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates.

Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis.

Dr Yeates is a consultant clinical neuropsychologist wi...

In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International.

Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our...

It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?'

Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark.

He was part of the team that discovered LGI1 and CASPR2 antibodies and has car...

In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis. 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our wor...

In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previo...

In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work pr...

In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will.

To learn more about wills or leaving a legacy gift to Encephalitis International visit: https://www.encephalitis.info/gift-in-will/.

This page also contains information about how UK residents can...

In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of Neuroimmunology and Autoimmune Neurology within the Department of Neurology at the University of Utah and the Salt Lake City Veterans Affairs Hospi...

In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth Central Hospital in Blantyre, Malawi in the last year. He's also a clinical research fellow and specialty registrar in infectious diseases and ...

In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a study that looked at improving diagnosis and treatment of encephalitis in low-to-middle income countries.

If you have been affected by ence...

In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane.

Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a s...

In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of Malawi's College of Medicine with a postgraduate MSC in Integrated Immunology from the University of Oxford.

If you have been affected by encep...

In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is here to discuss this and a bit more on the work of the World Health Organization. Useful Link - the WHO Intersectoral Global Action Plan (IGA...

We are delighted to welcome Bethany Facer and Dr Brendan Sargent to The Encephalitis Podcast. Beth and Brendan talk to host Prav Prathapan about recent research on the neurological effects of Covid-19, including cognitive deficits and long-term effects, and the potential implications for other diseases.

Beth and Brendan also discussed the Covid-19 Clinical Neuroscience Study – a £2.3 million research study looking at the acute neur...

Please note that this episode was recorded in November 2023.

In this episode of The Encephalitis Podcast, Dr Ava Easton is joined by Dr James Sejvar for a discussion around climate change, and how it's affecting our risk for deadly infectious diseases, such as West Nile encephalitis or Japanese encephalitis.

Dr Sejvar is a Neuroepidemiologist at the University of Pittsburgh and, University of Pittsburgh Medical Center, USA. At the ...

One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to recover. Luckily, Nicole is recovering well and is about to start the final semester of her course just two years later.

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