In our previous episode, we delved into an insightful conversation with Dr. Sydney Martinez and Dr. Corcoran, exploring their impactful work in community-engaged research inspired by their children’s battle with intestinal malrotation. For those just joining us or needing a refresher, we highly recommend revisiting that enlightening discussion as it perfectly sets the stage for today's exploration.
In this episode, we reconnect with Dr. Martinez to discover the latest developments since our last session. Excitingly, we introduce a new and spirited voice to the podcast—Amelia, the very heart of Dr. Martinez's motivation and passion for her work. Amelia, the vibrant and brave 5-year-old, joins us too! She's here alongside her mom to share her own journey and how she's been advocating for herself and others, even at her young age. Together, they embody the spirit of community-engaged research and advocacy, showcasing the power of resilience and collective support in facing health challenges.
We hope that this episode has provided valuable insights, particularly in shedding light on the patient's perspective regarding intestinal malrotation, as exemplified by the experiences of a young child like Amelia. Her resilience and perseverance are truly inspiring. We also hope to continue amplifying the voices of those facing invisible illnesses, acknowledging that each story possesses the power to create a meaningful impact.
Connect with their malrotation community below:
Facebook: https://www.facebook.com/profile.php?id=61552410669693&mibextid=dGKdO6
Email: intestinalmalrotation@ouhsc.edu
IMPOWER paper: https://rdcu.be/dBLbV
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