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May 22, 2022 39 mins

For episode 33, we are joined by Lori, a mother of a IA/ARM adult daughter who shares her experiences of navigating her families journey from a pre-internet time where the information was extremely limited. They sought out the best medical treatment and care available which led Lori to becoming an active member of the Pull-Thru Network and subsequent role as the Executive Director who she has held for many years. Lori is able to provide a very unique perspective, as she details the many experiences with pediatric care and the transition to adult patient care, and dealing with so many families and medical professionals in the IA/ARM community.

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