Episode 34 - Interview with Noah (14 years old) who was born with IA/ARM and his mother Amy from Ohio, USA

For episode 34, we are joined by Noah, who is 14 years old and was born with IA/ARM and his mother Amy as they both talk openly about Noah’s and their family’s journey. Noah is such a charismatic and confident boy who shares how he has coped with the challenges he has faced with his health and how he went from wanting to keep his condition private to now being public about it. Amy also provides a great insight into how they had to navigate their way through the medical system when Noah was younger which finally found them at a dedicated colorectal center and where Noah had life-changing re-do surgeries and started on a bowel management program that has changed Noah’s quality of life in such a positive way.