For episode 38, we are joined by Kari from South Carolina, USA who is a mother of two children with her 14 month old son Luca born with IA/ARM as well as associated VACTERL conditions. Kari shares with us the incredible challenges Luca faced in his initial months after his birth and the subsequent investigation finding he had a major issue due to his initial colostomy surgery, which then required revision surgery. Kari then made the decision to seek specialised care for Luca which led her to transfer his care to a dedicated multidisciplinary Colorectal centre, which has resulted in a much improved quality of life for Luca.
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