March 9, 2023 • 12 mins
Find more information about the KY LEND here! https://hdi.uky.edu/kylend
Application Survey: https://uky.az1.qualtrics.com/jfe/form/SV_cJeRRQzFDEfWZwy
You may be asked to have an interview as part of the application process. If you have questions or need help in applying, call Caroline Gooden at 859.582.5134 or email cjgood2@uky.edu
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
[Narrator] The Human Development Institute hosts theState of HDI Podcast.
The views and opinions expressed in this programare those of the speakers and may not reflect
the views of the University of Kentucky.
A downloadable transcript is available inthe description.
Thank you for listening!
(00:30):
[Patti] Hello and thank you for tuning in to the stateof HDI, a University of Kentucky Human Development
Institute podcast.
This is Patti Singleton.
With me in the studio are Caroline Gooden,and Stephanie Battistini.
Caroline is the training director at HDI andStephanie is a developmental behavioral pediatrician
(00:52):
at the University of Louisville.
Welcome to you both.
So Caroline, tell me what the LEND is.
[Caroline] I would be glad to tell you about the LEND.
LEND stands for Leadership in Education forNeurodevelopmental and other related Disorders.
It's an exciting training program.
It includes nine trainees or students andinterdisciplinary faculty team and professionals
(01:15):
across the state.
Each year we have nine trainees includinga self-advocate with a disability, a family
member of a person with a disability and sevengraduate students.
The students attend college at UK, Universityof Louisville, and Eastern Kentucky University.
Their areas of study are intentionally variedto produce an interdisciplinary learning setting.
(01:37):
Their fields thus far have included medicine,education, psychology, special education,
physical therapy, speech and language therapy,kinesiology and health, music therapy, educational
leadership, and social work.
Our faculty members are from the same areas,as well as Rehabilitation Science and Early
Childhood.
[Patti] That's fantastic.
(01:57):
And Stephanie, as a LEND trainee and Kentuckytransplant, tell me what the program was like
for you.
[Stephanie] Well, Patti, the program for me was fantastic,especially as a Kentucky transplant, it allowed
me to learn more about the Kentucky landscapeas far as what the community that I am serving
(02:19):
as a developmentalist; like what their strugglesare, what their strengths are, and how to
best approach them.
And you can imagine the LEND classes beingmore like a discussion, and even a brainstorming
session discussing various topics as wellas dilemmas that many families and patients
(02:42):
face throughout Kentucky.
[Patti] That's great.
And Caroline, you listed the majors, but canyou tell us a little bit about the trainees
that have participated in the LEND?
[Caroline] I would be delighted to tell you about ourtrainees, we are delighted to have Stephanie
with us today who was our - in our first cohortlast year has definitely brought a great medical
and a really humanistic perspective to ourprogram.
(03:04):
So, our trainees are a really diverse groupeach year.
They include students in physical and speechtherapies, who are completing rigorous clinical
programs, social work students who will workwith persons with disabilities, health promotions
researchers, clinical psychologists - whowill be evaluating and treating persons with
disabilities - community organizers, familymembers, and advocates.
(03:26):
Each one is special to us, as we are ableto watch their amazing growth over the course
of the year.
They begin as students; they leave us as leadersin their fields.
They form a close collaborative group withtheir fellow trainees and join a national
group of highly respected lead trainees.
Several of our LEND faculty are former LENDtrainees.
(03:46):
Steph is an outstanding example of a traineewith partnerships in Kentucky as a result
of her LEND work.
Her partnerships include University of Louisvilleand UK Healthcare, with the Kentucky Department
for Aging and Independent Living, as wellas continued connections with her LEND cohort.
[Patti] And so, to continue that, Stephanie, can youtell us how the LEND has prepared you for
(04:06):
the work that you do?
[Stephanie] Oh, that is such a big question for me, becauseLEND truly opened my eyes to many of the resources
that Kentucky has available for families andthe many patients that I serve, it also allowed
me to really build connections across multiplespecialties and disciplines.
(04:31):
In my practice, I lean a lot on other professionalsto help my families and patients learn, obtain
skills, and really get what they need fromthe community to live the most fulfilling
life that they can.
I think one of the big things that LEND reallytaught me was the importance of working with
(04:55):
a dedicated team to really serve the communityof Kentucky the best way that we can.
[Patti] And so, Caroline, tell us what is the reachof the LEND program?
[Caroline] Patti, that's also a great question.
The LEND faculty and partners are presentacross many universities, state agencies,
and community groups in Kentucky.
(05:16):
In addition to our three partnering universities,one of our students Direct Services for Students
with Disabilities at Hazard Community Collegethis year.
Some of our participating state partners includethe Department for Public Health, the Department
for Behavioral Health, Protection and Advocacy,The Centers for Independent Living, the Office
for Children with Special Healthcare needs,the Kentucky Autism Center, many Human Development
(05:40):
Institute state and national projects - includingthe National Center for Prenatal and Postnatal
Resources, Innovative Supports for AutisticWorkers, and HDI Center for Assistive Technology.
So, you can see that we have a broad reachacross partners across the state.
Our partnering community agencies includeUK’s Early Childhood Laboratory, the Child
(06:01):
Development Center of the Bluegrass, the AllegroDance Project, and more agencies participating
each year.
We have students placed in each of these settingseach year.
Stephanie, can you tell us one of the connectionsyou have made and sustained since your time
in the LEND?
[Stephanie] Oh, yes.
I think one of my favorite connections thatI made while participating in LEND was the
(06:22):
one with the Office for children with SpecialHealthcare Needs, as I had the opportunity
to not only work with one of my mentors, Dr.Gail Williams, but I also got to work with
the wonderful staff associated with the office.
As well as with Dr. Mary Beth Bundy, one of- an amazing, licensed psychologist.
(06:45):
And it was an eye opening experience as theydid their evaluations via Telehealth.
And I was able to observe them and observethe ways that they approached these families
who live in rural parts of Kentucky, and whatsort of resources and anticipatory guidance
they gave these families to ensure that theirchild had the best resources and therapies
(07:10):
available for them.
[Patti] Stephanie, the role of an advocate looks differentacross the specialties participating in the
LEND, how has your experience change yourperspective of advocacy and leadership?
[Stephanie] So, the biggest thing that I took away fromLEND as far as the role of being an advocate
and a leader for children with special healthcare needs is that it truly takes a team or
(07:37):
a village to really help their families andthe patient to make sure that they are obtaining
the right therapies and the right services,and in appropriate timing.
So, I think it's really important that thefuture LEND cohorts have a passion for advocacy,
as not only will you advocate for these patientsin your work or professional role, but many
(08:03):
times I play an advocate for these childrenin the school system, or within different
therapy programs to ensure that they are gettingthe right resources or accommodations that
they have the right to.
In addition, I think it's really importantthat as an advocate, you really understand
(08:24):
the landscape.
You know, unfortunately, with the COVID pandemic,there is a strain on the system.
And many programs unfortunately have a waitlist.
And I think it's important that as a developmentalistthat I advocate for these patients, and that
I try to be as creative as possible in makingsure that they understand that they can place
(08:49):
themselves on multiple waitlists, and thatthey should keep me up to date if they continue
to have difficulties as time is really importantwhen it comes to early intervention, for example.
And lastly, you know, one of my biggest passionis education.
And, you know, I and I thoroughly enjoy educatingnot only my parents, of my patients, but I
(09:13):
also enjoy educating our future pediatricians.
And I think it's really important that anylearner from any sort of specialty or interdisciplinary
profession that works with children with differentneurodevelopmental disorders, that they understand
(09:34):
how they can advocate, how they can reachout to leaders that can make a change, and
how they can get involved in the community.
[Patti] That's so great, Stephanie, thank you forthat.
And Caroline, will you tell us what the measureof success for the LEND will be?
[Caroline] I am glad to talk about the measures of successfor the LEND.
The success of the LEND will be the productionof leaders who are trained and ready to improve
(09:56):
services with persons with neurodevelopmentaldisabilities, as Stephanie indicated, across
all fields of service.
We will also see the success of led by thecreation of increased diagnostic and treatment
settings, an increased collaboration by professionalsacross agencies.
Woven throughout all these improvements mustbe the voices of self-advocates, informing
(10:17):
the best course of action by persons withlived experience.
[Patti] That's fantastic.
And how can someone apply to participate inthe LEND?
[Caroline] We encourage applications even as we speak,the application deadline closes on March 13th.
So, to apply, go to hdi.uky.edu/kylend andscroll down to apply to be a 2023-2024 trainee,
(10:43):
and follow the instructions there.
Just a simple Qualtrics form that you willuse.
If you have any questions, feel free to contactus.
And again, applications close on March 13th.
[Patti] That's great, Caroline.
And we'll make sure that the contact informationand that link to the application are included
in the show notes.
So, Stephanie, and Caroline, do you have anylast thoughts that you would like to share
(11:05):
before we sign off?
[Stephanie] I just want to say that LEND was an amazingexperience.
And I hope that LEND in Kentucky is somethingthat continues for many, many years.
In my short time here in Kentucky, I can tellyou that we need more professionals who have
(11:29):
a passion who want to advocate for our childrenwith neurodevelopmental disorders.
And LEND is just one of the many ways thatnot only professionals but families and self-advocates
can get involved with.
[Caroline] Thank you, Stephanie, I agree with what you'vesaid.
And I would just add that LEND is a uniqueopportunity for our graduate students, for
(11:54):
our self-advocates, for our family membersacross Kentucky to improve services for children
and adults in Kentucky who have disabilities.
That really is the goal of our project.
And it happens through a unique combinationof a mix of wonderfully trained folks whose
goal really is to improve services for childrenand adults across Kentucky.
(12:17):
We are a close group of professionals andfamily members.
And we do hope that LEND will be here foryears to come to improve the services in Kentucky.
[Patti] Well, thanks to you both for your work anddedication to enhancing the lives of people
with disabilities.
We'll make sure that all of the links thatwe've mentioned will be included on the show
(12:39):
notes.
And thank you for listening.
[Narrator] The Human Development Institute hosts theState of HDI Podcast.
The views and opinions expressed in this programare those of the speakers and may not reflect
the views of the University of Kentucky.
A downloadable transcript is available inthe description.
Thank you for listening!
(00:30):
[Patti] Hello and thank you for tuning in to the stateof HDI, a University of Kentucky Human Development
Institute podcast.
This is Patti Singleton.
With me in the studio are Caroline Gooden,and Stephanie Battistini.
Caroline is the training director at HDI andStephanie is a developmental behavioral pediatrician
(00:52):
at the University of Louisville.
Welcome to you both.
So Caroline, tell me what the LEND is.
[Caroline] I would be glad to tell you about the LEND.
LEND stands for Leadership in Education forNeurodevelopmental and other related Disorders.
It's an exciting training program.
It includes nine trainees or students andinterdisciplinary faculty team and professionals
(01:15):
across the state.
Each year we have nine trainees includinga self-advocate with a disability, a family
member of a person with a disability and sevengraduate students.
The students attend college at UK, Universityof Louisville, and Eastern Kentucky University.
Their areas of study are intentionally variedto produce an interdisciplinary learning setting.
(01:37):
Their fields thus far have included medicine,education, psychology, special education,
physical therapy, speech and language therapy,kinesiology and health, music therapy, educational
leadership, and social work.
Our faculty members are from the same areas,as well as Rehabilitation Science and Early
Childhood.
[Patti] That's fantastic.
(01:57):
And Stephanie, as a LEND trainee and Kentuckytransplant, tell me what the program was like
for you.
[Stephanie] Well, Patti, the program for me was fantastic,especially as a Kentucky transplant, it allowed
me to learn more about the Kentucky landscapeas far as what the community that I am serving
(02:19):
as a developmentalist; like what their strugglesare, what their strengths are, and how to
best approach them.
And you can imagine the LEND classes beingmore like a discussion, and even a brainstorming
session discussing various topics as wellas dilemmas that many families and patients
(02:42):
face throughout Kentucky.
[Patti] That's great.
And Caroline, you listed the majors, but canyou tell us a little bit about the trainees
that have participated in the LEND?
[Caroline] I would be delighted to tell you about ourtrainees, we are delighted to have Stephanie
with us today who was our - in our first cohortlast year has definitely brought a great medical
and a really humanistic perspective to ourprogram.
(03:04):
So, our trainees are a really diverse groupeach year.
They include students in physical and speechtherapies, who are completing rigorous clinical
programs, social work students who will workwith persons with disabilities, health promotions
researchers, clinical psychologists - whowill be evaluating and treating persons with
disabilities - community organizers, familymembers, and advocates.
(03:26):
Each one is special to us, as we are ableto watch their amazing growth over the course
of the year.
They begin as students; they leave us as leadersin their fields.
They form a close collaborative group withtheir fellow trainees and join a national
group of highly respected lead trainees.
Several of our LEND faculty are former LENDtrainees.
(03:46):
Steph is an outstanding example of a traineewith partnerships in Kentucky as a result
of her LEND work.
Her partnerships include University of Louisvilleand UK Healthcare, with the Kentucky Department
for Aging and Independent Living, as wellas continued connections with her LEND cohort.
[Patti] And so, to continue that, Stephanie, can youtell us how the LEND has prepared you for
(04:06):
the work that you do?
[Stephanie] Oh, that is such a big question for me, becauseLEND truly opened my eyes to many of the resources
that Kentucky has available for families andthe many patients that I serve, it also allowed
me to really build connections across multiplespecialties and disciplines.
(04:31):
In my practice, I lean a lot on other professionalsto help my families and patients learn, obtain
skills, and really get what they need fromthe community to live the most fulfilling
life that they can.
I think one of the big things that LEND reallytaught me was the importance of working with
(04:55):
a dedicated team to really serve the communityof Kentucky the best way that we can.
[Patti] And so, Caroline, tell us what is the reachof the LEND program?
[Caroline] Patti, that's also a great question.
The LEND faculty and partners are presentacross many universities, state agencies,
and community groups in Kentucky.
(05:16):
In addition to our three partnering universities,one of our students Direct Services for Students
with Disabilities at Hazard Community Collegethis year.
Some of our participating state partners includethe Department for Public Health, the Department
for Behavioral Health, Protection and Advocacy,The Centers for Independent Living, the Office
for Children with Special Healthcare needs,the Kentucky Autism Center, many Human Development
(05:40):
Institute state and national projects - includingthe National Center for Prenatal and Postnatal
Resources, Innovative Supports for AutisticWorkers, and HDI Center for Assistive Technology.
So, you can see that we have a broad reachacross partners across the state.
Our partnering community agencies includeUK’s Early Childhood Laboratory, the Child
(06:01):
Development Center of the Bluegrass, the AllegroDance Project, and more agencies participating
each year.
We have students placed in each of these settingseach year.
Stephanie, can you tell us one of the connectionsyou have made and sustained since your time
in the LEND?
[Stephanie] Oh, yes.
I think one of my favorite connections thatI made while participating in LEND was the
(06:22):
one with the Office for children with SpecialHealthcare Needs, as I had the opportunity
to not only work with one of my mentors, Dr.Gail Williams, but I also got to work with
the wonderful staff associated with the office.
As well as with Dr. Mary Beth Bundy, one of- an amazing, licensed psychologist.
(06:45):
And it was an eye opening experience as theydid their evaluations via Telehealth.
And I was able to observe them and observethe ways that they approached these families
who live in rural parts of Kentucky, and whatsort of resources and anticipatory guidance
they gave these families to ensure that theirchild had the best resources and therapies
(07:10):
available for them.
[Patti] Stephanie, the role of an advocate looks differentacross the specialties participating in the
LEND, how has your experience change yourperspective of advocacy and leadership?
[Stephanie] So, the biggest thing that I took away fromLEND as far as the role of being an advocate
and a leader for children with special healthcare needs is that it truly takes a team or
(07:37):
a village to really help their families andthe patient to make sure that they are obtaining
the right therapies and the right services,and in appropriate timing.
So, I think it's really important that thefuture LEND cohorts have a passion for advocacy,
as not only will you advocate for these patientsin your work or professional role, but many
(08:03):
times I play an advocate for these childrenin the school system, or within different
therapy programs to ensure that they are gettingthe right resources or accommodations that
they have the right to.
In addition, I think it's really importantthat as an advocate, you really understand
(08:24):
the landscape.
You know, unfortunately, with the COVID pandemic,there is a strain on the system.
And many programs unfortunately have a waitlist.
And I think it's important that as a developmentalistthat I advocate for these patients, and that
I try to be as creative as possible in makingsure that they understand that they can place
(08:49):
themselves on multiple waitlists, and thatthey should keep me up to date if they continue
to have difficulties as time is really importantwhen it comes to early intervention, for example.
And lastly, you know, one of my biggest passionis education.
And, you know, I and I thoroughly enjoy educatingnot only my parents, of my patients, but I
(09:13):
also enjoy educating our future pediatricians.
And I think it's really important that anylearner from any sort of specialty or interdisciplinary
profession that works with children with differentneurodevelopmental disorders, that they understand
(09:34):
how they can advocate, how they can reachout to leaders that can make a change, and
how they can get involved in the community.
[Patti] That's so great, Stephanie, thank you forthat.
And Caroline, will you tell us what the measureof success for the LEND will be?
[Caroline] I am glad to talk about the measures of successfor the LEND.
The success of the LEND will be the productionof leaders who are trained and ready to improve
(09:56):
services with persons with neurodevelopmentaldisabilities, as Stephanie indicated, across
all fields of service.
We will also see the success of led by thecreation of increased diagnostic and treatment
settings, an increased collaboration by professionalsacross agencies.
Woven throughout all these improvements mustbe the voices of self-advocates, informing
(10:17):
the best course of action by persons withlived experience.
[Patti] That's fantastic.
And how can someone apply to participate inthe LEND?
[Caroline] We encourage applications even as we speak,the application deadline closes on March 13th.
So, to apply, go to hdi.uky.edu/kylend andscroll down to apply to be a 2023-2024 trainee,
(10:43):
and follow the instructions there.
Just a simple Qualtrics form that you willuse.
If you have any questions, feel free to contactus.
And again, applications close on March 13th.
[Patti] That's great, Caroline.
And we'll make sure that the contact informationand that link to the application are included
in the show notes.
So, Stephanie, and Caroline, do you have anylast thoughts that you would like to share
(11:05):
before we sign off?
[Stephanie] I just want to say that LEND was an amazingexperience.
And I hope that LEND in Kentucky is somethingthat continues for many, many years.
In my short time here in Kentucky, I can tellyou that we need more professionals who have
(11:29):
a passion who want to advocate for our childrenwith neurodevelopmental disorders.
And LEND is just one of the many ways thatnot only professionals but families and self-advocates
can get involved with.
[Caroline] Thank you, Stephanie, I agree with what you'vesaid.
And I would just add that LEND is a uniqueopportunity for our graduate students, for
(11:54):
our self-advocates, for our family membersacross Kentucky to improve services for children
and adults in Kentucky who have disabilities.
That really is the goal of our project.
And it happens through a unique combinationof a mix of wonderfully trained folks whose
goal really is to improve services for childrenand adults across Kentucky.
(12:17):
We are a close group of professionals andfamily members.
And we do hope that LEND will be here foryears to come to improve the services in Kentucky.
[Patti] Well, thanks to you both for your work anddedication to enhancing the lives of people
with disabilities.
We'll make sure that all of the links thatwe've mentioned will be included on the show
(12:39):
notes.
And thank you for listening.
Popular Podcasts
Stuff You Should Know
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.
Dateline NBC
Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Follow now to get the latest episodes of Dateline NBC completely free, or subscribe to Dateline Premium for ad-free listening and exclusive bonus content: DatelinePremium.com
On Purpose with Jay Shetty
I’m Jay Shetty host of On Purpose the worlds #1 Mental Health podcast and I’m so grateful you found us. I started this podcast 5 years ago to invite you into conversations and workshops that are designed to help make you happier, healthier and more healed. I believe that when you (yes you) feel seen, heard and understood you’re able to deal with relationship struggles, work challenges and life’s ups and downs with more ease and grace. I interview experts, celebrities, thought leaders and athletes so that we can grow our mindset, build better habits and uncover a side of them we’ve never seen before. New episodes every Monday and Friday. Your support means the world to me and I don’t take it for granted — click the follow button and leave a review to help us spread the love with On Purpose. I can’t wait for you to listen to your first or 500th episode!