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February 13, 2024
developing-a-community-led-rare-disease-elsi-research-agenda

In this episode, Dr. Jeremy Garrett is joined by Courtney Berrios and Kimberly Freeman. They will be discussing the topic of pediatric rare diseases and the development of a community-led research agenda for better understanding the needs and priorities of patients and families living with rare diseases.


Click here to read Dr. Garrett's article focusing on Developing a community-led rare disease ELSI research agenda 

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