Episode Transcript
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Speaker 1 (00:01):
iHeart Communities Presents Palm Beach Treasure Coast Perspective, which Dead Nepp.
Speaker 2 (00:06):
Good morning, Welcome to Palm Beach Treasure Coast Perspective. I'm
your host, dev Net.
Speaker 3 (00:09):
Thanks for spending your weekend with me. All kinds of
great things happening, and if you've not been to the
Cravis Center lately, put it on your list. They've got
a fantastic Cravis on Broadway.
Speaker 2 (00:19):
Series this season.
Speaker 3 (00:20):
This year there's MJ the Musical, We've got the Neil
Diamond one coming. Just lots of ones to check out,
and then they also have really cool lunch and learns.
Speaker 2 (00:33):
They have got Adults at Leisure series.
Speaker 3 (00:36):
I think those are cool, and Adults at Leisure I
definitely want try. I want to become an adult and
I'm at Leisure hasn't happened yet, but I have plans.
And they are also looking for ushers and like volunteers.
So if you want to get out and do some
fun things, see some cool shows, reach out to them.
It is Cravis dot org, kr a vis dot org
(00:58):
and they also have some really cool shows coming in
like January. They have some like it Hot part of
the Crafts on Broadway series and that's January sixth through
the eleventh, and then Diana Crawl is coming, so for
all the jazz fans, she is just a phenomenal jazz singer.
Eight albums out top charts, so cool. Her performance is
(01:19):
gonna be Monday, January twenty six at seven thirty pm,
So definitely put that one on your list of musty
shows for this season into one, head outside and take
a walk. I always recommend this. Our friends over at
Palm Beach County Environmental Resource Management have a lot of
fun things planned for the Palm Beach Natural Areas see
(01:41):
don't check this out. Coming up on Tuesday, November twenty
fifth is a nature scavenger hunt. It's from nine am
till ten thirty am and it's gonna be the Rosemary
Scrub Natural Area. And then on the twenty sixth of November,
it's a Wednesday from eight am till ten am. It
is pulled together for nature. It's a weed pool, so
(02:03):
now it gets some exercise, clean up an area that
needs to get beautified a little bit, and that's at
the Yamato Scrub Natural Area. You can simply go to
pbc r M dot com and they have all the
different pools and walks. They have some kayaks, some stand
up paddles, all kinds of fun things happening there. And
(02:25):
if you're in Saint Lucy County, they have it for
SLC Hikes dot Org. So they a bunch of like
kayaks and stuff and paddles into the preserves and they
have like they have one where there's like a disc
golf in the front end of it. You can do
a little disc golf and then take your hike. They
have one and they take pictures of the burrs with
your camera phones.
Speaker 2 (02:42):
A lot of cool things for that one as well.
This is a new one.
Speaker 3 (02:46):
Cultural Council has brand new Lake Theater revival series coming
up and they are it's gonna be happening in their
historic Lake Theater. It's eighty fifth anniversary. They're gonna be
doing some select screenings on Friday nights at the Council's
downtown Lakeworth Beach headquarters. So definitely check these out. So
we have coming up on December twelfth from six to
(03:08):
eight thirty pm. It is the Subtropic Film Festival Winners,
so the Subtopping Film festivals going on, and then they'll
be showcasing the winners that night, so definitely check that out.
They have the Whiz a Flavor Film event on February sixth,
and then they're going to do a season finale with
Citizen Kane, and then we have also all fun The
(03:30):
more Commi Museum always has cold things going on. They
have a couple of exhibitions happening right now going on
and through the New year, Zodiac animals and then Japanese
roof tiles. It's really neat, so definitely check them out.
You go to Morikami dot org and while you're there
you can also find out about the tea ceremonies and
all that good stuff that goes on.
Speaker 2 (03:51):
I love it.
Speaker 3 (03:52):
And then of course we talked to Ms Marjorie from
Arts Garage a couple of months ago. Great season lined
up for them, so you definitely check out. They have
some really cool ones coming up. On December seventh, it
is Fighting for Freedom, honoring our veteran community, and then
January eleventh is why It's an actor preparing and it's
(04:13):
like following a short journey of an actor in his
studio and like how he's preparing for roles and stuff
like that kind of like a little behind the scenes,
and of course they always have great like music performances,
tribute bands, jazz artists coming through, blues artists and check
it out. And of course they have their like open
mic nights and stuff, so lots of fun things for
the community to participate in. Go to Artsgarage dot org.
(04:35):
It's all listed there for you. A couple of weeks
ago we spoke with Ms. Colleen from Ballet Palm Beach.
They've got a beautiful season lined up, so lots of
shows to check out. And this one is like a
family tradition for a lot of folks. It's the Nutcracker,
so I'm going to check that out. It's December fifth
through the seventh and the Big Dreyfus Hall the Cravis Center,
(04:56):
and then Wednesday, January twenty eighth is their big annual
fund raising game and it's the Gala by the Sea
this year and it's going to beat the breakers. Definitely
check that out. And then coming up in March they're
presenting Queen Esther. Carmen will be there in April and
then Giselle wrapping things up on May sixteenth, and you
simply go to Valet Palmdeach dot org to get more
(05:18):
details and you get tickets there, or you'll also get
tickets at the Cravis Box Office because they share space,
so it's Cravis dot org as well. Of course, our
friends pomp each County Parks, lots of cool things coming up.
Kenyon Amphitheater has a nice live music events series going on.
So the next one coming up, so I definitely check
it out on December twentieth. It is Chase Stites and
(05:40):
the last word is like a little country pop. So
you always follow them on Facebook. Or you can go
to Pbcparks dot com and all the different stuff happening
the parks is listed there, and we talk to the
folks from pomp Beach County Literacy Coalition. Lots of cool
things happening. You can be a mentor you can be
like a tutor, or you can do these programs called
(06:02):
Read with Me where you go to the schools and
just read with the kids. They have one coming up
on December twelfth, January sixteenth, and March sixteenth. Sipy go
to LITERACYPBC dot org and they're all listed right there
for you and speaking getting more information. I want to
welcome my guests for today, I have doctor Karen Gilbert.
(06:23):
She's the vice president of Education and Quality Assurance for
Alzheimer's Community Care located here in Wants Pompeach. Good morning,
doctor Gilbert, Good morning, Thank you for having me, well,
thank you for coming in.
Speaker 2 (06:36):
So really interesting point.
Speaker 3 (06:37):
I think it's like pomp Beach County's number two in
the cases of Alzheimer's, if I'm not mistaken.
Speaker 4 (06:44):
Well, pom Beach County has a little bit less than
ten percent of the total states cases. So we're one
county out of sixty seven, but we have a high
prevalence of those identified with Alzheimer's disease is and we
really need to double that number because that patient struggling
(07:08):
with that disorder has a caregiver, and so we understand
we need to meet the needs of the caregiver as well.
And it is a large number. Florida has about one
tenth of the entire country's population of affected patients, second
only to California. So it is a significant segment of
(07:33):
our population and one that we really need to help
and support.
Speaker 3 (07:38):
Oh, I agree, one hundred percent. And especially when you're
talking about the caregivers, the amount of stress that they
are under because they want to care for the patient,
but then they actually need some help for themselves as well.
I mean, because that's really stressful caring for someone who's ill,
and then, as you know, the cognitive ability declines, and
(08:01):
then they don't recognize them and other things become a problem.
Speaker 2 (08:04):
You know what I'm saying. Then I think they need
even more respite, if you will.
Speaker 4 (08:08):
I would like to clarify I am not a physician.
I am a nurse prepared at the doctoral level. So
one of the things I do with that degree is
apply the research that the PhDs have done. We take
that evidence and we use that evidence to help our
families as best we can. And the caregivers do need
(08:33):
a tremendous amount of support. They are challenged physically, they
are challenged emotionally, they are often challenged financially when they're
caring for a loved one. So we participate as much
as we can in events that are designed to help
the caregiver navigate the course of Alzheimer's disease.
Speaker 3 (08:56):
I think that's fantastic. Speaking of events, you're.
Speaker 4 (08:59):
With present Alzheimer's Community Care based in West Palm Beach
but serving Palm Beach, Martin and Saint Lucie Counties. But
we were thrilled to be invited by the Alzheimer's Foundation
of America to present as part of their event on Wednesday,
November nineteenth at the Boca Ratone Marriott at Bocas Center.
(09:22):
For those who use navigation, I'll go ahead and give
the address. It's at fifty one point fifty Town Center
Circle in Boga Ratone and that ZIP code for the
navigation is three three four eight six. And this event
will take place from ten am to one pm. It
is a free event really focusing on caregivers and healthcare professionals.
(09:47):
Many healthcare professionals are also family caregivers. And it's really
for anyone that's interested in the latest information on how
to protect and preserve brain health.
Speaker 3 (10:02):
So, for example, someone like me who does not have
a family member with Alzheimer's but I'm getting a little
bit older, I can come and just find out information.
I'm always like, knowledge is power. The more you know,
the better decisions you can make, the better you are
able to help other folks.
Speaker 2 (10:16):
I like this.
Speaker 3 (10:17):
So it's November nineteenth from ten to one, and you
are one of the presenting speakers. So what is it
you're going to talk about? Can you tell me or
is it a secret?
Speaker 4 (10:27):
Well, no, we can give a spoiler alert here. There
are several speakers. Again, we're thrilled to be part of
this presentation. Doctor James Galvin, affiliated with the University of
Miami Miller's School of Medicine, an internationally known expert on
Alzheimer's disease and related disorders. He's going to talk about
(10:49):
how the brain ages, what the risk factors are for
developing Alzheimer's, what's currently available as treatments, what are the
newest clinical trials, what are they looking at? Very important information.
Doctor Galvin has done extraordinary work with preventive strategies. Again,
(11:10):
how you act proactively to preserve brain health for a lifetime.
Our education program manager Blake Davis will actually be doing
the in person presentation on the nineteenth, representing Alzheimer's community care.
Speaker 2 (11:28):
We will be.
Speaker 4 (11:29):
Focusing on how a caregiver can understand and interpret their
loved one's behaviors. What we know with Alzheimer's disease is
that that loved one will start to have difficulty making
their needs known, explaining how they feel, and often their
(11:52):
needs will be expressed as behaviors. Those behaviors can be
quite challenging at times, really adding to the stress and
burden on the caregiver. So we educate about why do
we see behaviors, why are they becoming your loved one's
form of communication, and what might that behavior be telling you,
(12:16):
And with that knowledge, we can then help you to
de escalate challenging behaviors, to understand when it's important to
get a medical evaluation, because that sudden change in behavior
is likely an indication that something medical is happening, a
new infection or illness, or potentially a reaction to some
(12:41):
medication that they're taking, and so we like to nip
those situations in the bud before they become a medical emergency.
So that's very important information we can give our caregivers
and also explain to them how to communicate therapyutically with
your loved one. You know, if we're constantly saying don't
(13:05):
you remember they don't or no, Dad, you retired twenty
years ago, you don't go to work anymore, that might
actually facilitate some challenging behaviors. So we teach them how
to validate instead and why that's so valuable for their
(13:25):
loved one and for themselves.
Speaker 3 (13:27):
Why no, My one of my best friends growing up,
her grandmother developed dimensional later in life, and apparently her
grandfather was taking care of her and I want to
say covering, but kind of because when he passed, it
became a parent that she was having issues and there
was no one there. They didn't know, and then they
found out, but the way they found out was kind
(13:49):
of cute. She would call the hairdresser to get her
hair done. Well, that lady had retired twenty years earlier,
so when she was calling for you know, miss Mary
can do her hair, they're like, well, miss Mary's not here,
and she would get very agitated. And then they realized
who it was and what was going on, and they're like, well,
we'll set up an appointment with you. And then they'd
(14:10):
call the granddaughter and say, we got a call. We
think you need to do like a like a well
check if you will, and they did, and then of
course they were able to get her to a place
where she could get help and stuff. They went stayed
with a cousin who was younger than twenty years younger
than her, but like forty years older than my friends.
And she lived with them in Jersey for a while
and went to an adult daycare that was geared for
(14:32):
folks with Alzheimer's, so every day was like a new
date school for her. But she went there, oh gosh,
probably for seven years until it became more debilitating and
she needed other options. But she was like, they're so
lovely there, They're always so nice.
Speaker 4 (14:47):
Because we have adult day centers, specialized adult day centers.
We are licensed in particular to address the needs of
this population, and we have our day centers in many areas,
areas of Pompeach County, in Martin and in Saint Lucie County,
and that is their safe space. They are with people
(15:08):
like themselves. We validate, we don't challenge, argue in correct,
so when they express information from their long term memory,
like calling for the hairdresser from twenty years ago, we
go along. We don't correct, challenge and give them what's
(15:30):
current information. They can't absorb current information. That short term
memory function is not working anymore. So they do very
well in our day center. Some of them believe it
is their job, that's where they go to work every day.
Some believe it's their school. Some believe it's a club
(15:52):
and it's a most therapeutic environment. And we have had
participants with us many many years. We have one participant
who's past twenty five years attending our day center, engaged
in these therapeutic, cognitive and physical activities all week long.
(16:13):
So another speaker at the Alzheimer's Foundation of America conference
will be doctor Jeremy Kopple from north Welles Litwin Zucker
Research Center, and he will be addressing clinical trials, what
to consider when you are thinking about participating in a
clinical trial, and so on. So this is a very
(16:38):
fast moving field. Now there's a tremendous amount of research.
Some new treatments have been approved in the last few years.
They don't stop the disease, they don't cure the disease,
they don't reverse the disease. It is something, but it's
(16:58):
not really where we ultimately want to get. So one
of the things we talk about quite a bit is
knowing when you're starting to have symptoms, getting an evaluation,
not denying it, not saying well, I'm just getting older.
That's what happens when you get older, because that's not true.
(17:19):
You should be able to maintain your cognitive abilities throughout
your lifespan, whether you live to seventy five, ninety five,
or one hundred and ten. So recognizing early symptoms, not
being afraid to get a diagnosis is hugely important because
strategies can begin in that early stage that can achieve
(17:44):
far more benefit than if that person waits a couple
of years. Once they're in middle stage, we don't have
very much medically. Our Therapeutic day Center is really the
so called meta at that point. So we really are
trying to encourage people, you know, understand what might be
(18:07):
putting you at risk. It might be family history, it
might be some lifestyle choices, but these are things that
you can influence. We now know Alzheimer's disease is multi factorial,
no one thing causes it, and that's really good news
because that means there are lots of things we can
(18:29):
do to decrease our risk, and we know that that
will be discussed at this conference by those medical experts.
Speaker 3 (18:39):
Oh and that's fantastic. How do people do they need
to have MAC reservations?
Speaker 4 (18:44):
Yeah, it is recommended that you register in advance, and
again this is a free event and the website to
register is of course www dot a l z zebra
f like Frank, do you like David and like Nancy
(19:07):
dot org slash tour too. You are so again that
address All's Foundation al z f d n dot org
slash tour and that will get you right to that
registration for this event. And we expect it to be
(19:29):
well attended. So I'd register.
Speaker 3 (19:31):
Soon, Oh definitely. And I know folks can also go
to their website and there's like some like memory tests
you can submit.
Speaker 2 (19:40):
You're confidential.
Speaker 3 (19:41):
If you have concerns, you can try that. I think
there's some caregiving tips on there, so I know one
of the things I read and can confirm or deny that.
As far as I caregivers, it's really helpful if they
can like set up a routine with the patient.
Speaker 2 (20:00):
Yes, that correct.
Speaker 4 (20:02):
Yes, routines are incredibly important. The person struggling with Alzheimer's
may not know the clock anymore or the calendar. They
thrive on routine because then they can predict they know
the rhythm of the day. So we encourage caregivers keep
(20:22):
your meal times the same as much as possible, keep
your bedtime and wake time for your loved one as
regular as possible. This will help them feel more secure
again with the rhythm of the day. We know this
in our day center. We know that every attendee, every participant,
(20:47):
settles into that schedule and they feel the routine. And
so if we ever have to disrupt the routine. For instance,
we are required to do fire drills once a month,
and of course for safety, well that could upset their routine,
but we know to get right back into that routine
of activities as quickly as we can. And so that's
(21:12):
another reason they feel so successful in that environment, knowing
the pace of the day and just feeling that they
have some level of control. So these are things we
also teach our family caregivers to do at home. We
operate Monday through Friday, so on the weekends and the holidays.
(21:34):
To the extent that you can keep everything consistent, that
may help prevent challenging behaviors or de escalate any that
should arise. But again we always emphasize as soon as
you're saying to yourself as a caregiver, gee, that's a
new behavior that's different, this is sudden. We need you
(21:57):
to think it could be medical, it could be medication related.
Don't wait for fever by the time someone has a
fever as an adult, they could be critically ill. So
that is another strategy that we really try to impress
better to get them diagnosed when it's really early in
(22:18):
that urinary tract infection which is very common, or early pneumonia,
or we still see COVID nineteen. They don't have the
usual symptoms you would expect. What they are going to
show is a change in behavior when they deviate from
that routine that they've been successful with. Something's up. Could
(22:42):
be their usual appetite, could be their usual sleep quality.
Could be that they generally love a certain activity but
today they're not engaging in it again because they so
thrive on routine. Any change we need to look at
more critically and decide if medical evaluation is needed before
(23:04):
it becomes more serious.
Speaker 2 (23:06):
Oh, definitely.
Speaker 3 (23:07):
And I find it interesting that you mentioned the UTI.
I'm an avid reader, and in one of my little
cozy mysteries, the grandmother was having some like it seemed
like dementia issues, and they get her the doctor and
it turned out it was a UTI, And of course
it's a story, you know. They gave her the medication
and she went back to her normal cognitive ability and
(23:29):
they're just like from an infection.
Speaker 2 (23:31):
They were amazed.
Speaker 4 (23:32):
Right. Well, you know that a person struggling with Alzheimer's
is not able to problem solve or plan, so they're
not able to say to their caregiver it hurts when
I urinate. Instead, they will show it as behavior. They
may not be able to say it hurts if I
try to take a deep breath, it will be behavior.
Speaker 2 (23:56):
Any of us.
Speaker 4 (23:56):
Could imagine what it would be like if we were
in pain, but we couldn't express it. We didn't have
a way to explain what was happening. We would likely
act it out with behavior. So in that way, we
can address things early before they become an emergency room
visit or a hospitalization. And that's critical to quality of
(24:19):
life for that patient, for their caregiver and also helps
to control health care costs.
Speaker 3 (24:27):
Oh absolutely, yeah. And of course you want the patients
to stay home and be happy in their environment. Obviously
that's where they're going to have their routine, feel comfortable,
and you know the best outcome for everybody's that. Does
your program offer respite services for the family caregivers.
Speaker 4 (24:46):
Well, the respite that we provide is in the form
of our specialized adult day centers. We do have family navigators.
Those are nurses and social work professionals. They can help
guide the caregiver to other respite opportunities that might be available.
One of them that many don't know about is a
(25:07):
recent program started by Medicare and it's called guide Guide
for an Improved Dementia Experience, and it will actually pay
for services. It will give that family up to twenty
five hundred dollars a year to either have a home
health agency help out here and there, or to pay
(25:30):
for adult day services. So that is another respite opportunity.
We can connect those where that loved one does have
standard Medicare, the original regular Medicare, if you will, others
who might engage the services of hospice. And Alzheimer's disease
(25:51):
is a qualifying diagnosis, hospice can start providing care long
before that person is terminally ill. Many caregivers think engaging
hospice means you're giving up. No, it doesn't. I know
my loved one that I was a caregiver for was
on hospice for more than two years and had incredible
(26:13):
services that she would not have had if she had
just stayed with her standard Medicare. So many hospice facilities
offer a respite stay where that loved one can be
in this wonderful supportive environment for a week and the
caregiver does have that break. So we do try to
(26:35):
make sure caregivers understand they need respite, they don't work
outside the home, they need a break from twenty four
to seven caregiving. So we do try to link them
with every program they might be eligible for that can
help provide that relief.
Speaker 3 (26:56):
Oh and I think that's fantastic. How do they get
a hold of you? Would they go to your webs
Is there a phone number for them to reach out
to your service?
Speaker 4 (27:03):
Absolutely? The website is all'scare dot org, so that's al
z CR dot org, or just calling our headquarters which
is five six' one six' eight three two seven. ZERO
(27:23):
zero i do want to mention the services Of Our
family navigator are free to. The family there is no
cost to, the family there is no financial barrier to
start getting, that assistance and we're thrilled to be able to.
Provide that we are not for profit and we do
have significant funding to cover. These services we also have
(27:46):
a Lost on Foot program lost on, foot prevention, let's
say and we do an evaluation of the loved one
to see if they are at risk to leave their
supervised setting and become lost, on foot which could have.
Tragic outcomes we provide education to the caregiver how to
minimize the risk of such, an event and we also
(28:08):
provide electronic technologies so if that loved one should leave a,
supervised setting they can be quickly located and. Returned home
that is a service we provide at no cost to
the family, as well and in the twelve years we've had,
that service we've had almost three hundred reports from caregivers
(28:30):
that they're, loved one they turned around and suddenly they.
Were gone not one has ever, been injured so it
has been a one hundred percent, Successful program so we're
very proud to be. Offering, that also no financial barrier
for any family to be able to take advantage, of
that and our navigators again will help link that caregiver
(28:55):
with lots of other services that other, organizations provide Like
The area agency on aging and. So on it takes all,
of us oh definitely takes a village to put this
safety net around, these families but it is a significant
proportion of, our population and we are an, aging population
(29:19):
so age is the greatest.
Speaker 2 (29:20):
Risk factor For.
Speaker 4 (29:21):
Developing alzheimer's so we want to get the message out.
About prevention we want to get the message out about
how important early. Intervention is but for those who are, further,
along unfortunately we want to make sure they know there.
Is help there is help for the, loved one there
is help for.
Speaker 3 (29:41):
THE caregiver i think, That's fantastic and of course people
can find out more about that by coming to this
Conference absolutely, november nineteenth ten am to one pm At
the Boca ratone Marriott At. Boca, center well, Very cool
and how do they sign up? For, that again you
say they can. Preregister rate they can preregister on this.
Speaker 4 (30:03):
Website Www Dot, all's foundation which has ABBREVIATED alz F, like,
frank D like david And like nancy dot org slash
TOUR too r and that will get them right to
the site where they can register and have that seat reserve.
Speaker 3 (30:24):
For THEM and i think that's FANTASTIC and i definite
encourage all the listeners, and caregivers medical professionals and folks
should just need more information about what's going on to
sign up and come participate in this wonderful, free conference
and thank you guys.
Speaker 2 (30:39):
For participating that's such a. Cool thing is it is.
Speaker 4 (30:42):
A privilege to be invited. To participate. Just you thank
you for letting me share Our Website Alzheimer's. COMMUNITY care
i would like to let people know that on, that
website right down there on the home screen is a
link to a series of. Brief videos they are two
to three and it's each but each one focuses on
(31:03):
those strategies for preserving and protecting. Brain health and we
also have one on therapeutic communications strategies for a caregiver
to employ with their. Loved ones so lots of information
available through.
Speaker 2 (31:19):
The website oh.
Speaker 3 (31:20):
That's, fantastic Well, doctor gilbert thank you so much for
coming in and talking with us today doing such a
cool thing in. The community it's obviously very much needed
and is definitely very. Much appreciated and if you need,
more information reach out To Me palmpeach perspective at iHeartMedia,
dot com happy to forward on the details and don't
forget you can always download the shows a podcast On our.
iHeartRadio app hope everybody has a. Wonderful weekend I'm.
Speaker 2 (31:44):
Dev nev and this has been.
Speaker 3 (31:46):
My perspective remember life, is good so be your healthiest
toe and let's get out there and.
Speaker 2 (31:51):
Live it until, Next Week Intel.
Speaker 1 (31:53):
iHeart communities the community engagement arm of, the station champions
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and wellness, social, impact, education literacy and music. And art
join us next Week From, Palm Beach Treasure coast perspective