November 20, 2024 • 5 mins
Meet Sutton! She's going to Disney World with Jay's Juniors!
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
The Troitch Christmas Station is one hundred point three w N.
Speaker 2 (00:03):
I see Jay Towers, Allison, Chelsea. Good morning to you.
Speaker 1 (00:06):
What a great party last night our Jay Junior's welcome
party in Royal Oak and we continue every day introducing
you to our Jace Junior's families.
Speaker 2 (00:16):
Hello, hello, Nicole.
Speaker 1 (00:17):
Yeah, it's Jay Towers from w nic with Allison and Chelsea.
How are you good?
Speaker 2 (00:22):
How are you delightful? How's your day going well?
Speaker 3 (00:26):
And a little surprise right now?
Speaker 2 (00:28):
Oh our phone call?
Speaker 3 (00:30):
Yeah?
Speaker 1 (00:30):
Oh, I tell you man, you were going something something
happened at your house.
Speaker 2 (00:35):
Me there's water leaking or something. I don't know.
Speaker 3 (00:37):
I got no there was last night, but not today.
Speaker 2 (00:39):
Gee, I was close.
Speaker 1 (00:41):
Allison and Chelsea myself have been going through Jays.
Speaker 2 (00:43):
Junior's applications, which we do this time of year. We've
got hundreds of them.
Speaker 1 (00:47):
But we came across Sutton, four year old Sutton, and
we wanted to ask you just to tell tell us
a little bit more, tell us the story.
Speaker 3 (00:54):
Okay So was diagnose with Angelman syndrome when she was
nine months old. I'm sure you've read up on it.
She's missing her maternal gene of her fifteenth chromosome, so
it's very very rare. It's actually like one in fifteen
thousand to twenty thousand in her case because it's completely deleted.
(01:16):
In some cases there are mutation so which means she
has developmental delays. She's not walking yet. She does like
a bunny hop krawl if you will. She's non verbal.
She's not your typical four year old, let's put it
that way. She goes to school full time where she
(01:37):
receives all of her therapies. She has three older siblings
who adore her and love her. I could cry if
I start talking about it. She's just been a really
big blessing to us and teaches us to you know,
appreciate the little things in life. Those are the big
(01:58):
things in our family.
Speaker 1 (02:00):
How old was she when you found out about this
rare syndrome?
Speaker 3 (02:05):
Nine months old, so I would say, I think at
like six months. I brought it to our you know,
her pediatrician was like, look, something's going on.
Speaker 2 (02:15):
What were you noticing? Though? In a baby so little?
Speaker 3 (02:18):
So she wasn't like grasping for toys. She wasn't like
your typical baby where they say could and you know,
like those little things I mean, we've had three kids, right,
so you kind of know what you're looking for. And
she wouldn't sleep. She wasn't sleeping. I mean sleep is
huge for angel and syndrome. I will say we're pretty
lucky right now that she's doing pretty good right now,
(02:41):
but oh my gosh, she didn't sleep.
Speaker 2 (02:43):
What are some things that she enjoys doing or that
she likes.
Speaker 3 (02:47):
She loves the water, she loves badtime, she loves any
toys that like vibrate and light up. She loves to
be outside. Honestly, she's seriously like the happiest, joyful, like
I hit the jackpot with her.
Speaker 1 (03:02):
And you said it sounds like the support system from
the siblings for those sound great, right, two sisters and
a brother.
Speaker 3 (03:09):
Yeah. So I have a thirteen year old and eleven
year old and a nine year old and they're beyond
amazing with her, and they learned so much from her.
They now go out into school and they understand that
people are different and people, you know, just to be kind. Yeah,
go a long way.
Speaker 1 (03:30):
Well, listen, there's six of you in that big, happy family,
and we're thinking that we are going to invite you
to be our special guest for our tenth year for
Jay's Juniors.
Speaker 2 (03:40):
You're all going to Disney World with us?
Speaker 3 (03:42):
Oh my gosh, are you serious? Right now?
Speaker 2 (03:44):
We're one hundred percent serious. You're coming with us?
Speaker 1 (03:47):
Can I be.
Speaker 3 (03:48):
Honest with you? Like I do my prayer journal every morning?
And I literally wrote this down today, like I'm not
even kidding you. It was the first time I put
it in there. I wrote, James Junior, it's crazy.
Speaker 2 (04:01):
I'm going to get. What I just learned is I'm
getting a prayer journal.
Speaker 3 (04:04):
You don't have one already, not not yet? Oh my god, yes,
trust me, listen, it doesn't happen right Like I'm I
pray every day. There's clinical trials out there Rangelman syndrome.
It's like one of the most promising neurogenetic disordered for
a cure. We have her on a list to actually
like get into trial. Yeah, and I so trust me
(04:25):
that every day my prayer Jurnol. I'm still waiting on
that one.
Speaker 2 (04:27):
But one day you manifested this. That's right.
Speaker 3 (04:32):
I'm like, I'm freaked out, Like it's crazy. We somehow
felt we needed to call you today.
Speaker 2 (04:38):
That's right. That's so.
Speaker 1 (04:40):
And the big takeaway is and the oddest thing ever
said is that Allison is going to get a prayer
journal as soon as I leave.
Speaker 3 (04:46):
Here, and I hope, I hope it works for you too.
Speaker 1 (04:52):
Hey, listen, this is an all expenses pay trip. So
you get on the Jersey Mics jet with us, we
go down to Disney World. Everything's included, hotel, par our passes,
all your food, spending money.
Speaker 2 (05:02):
I mean, you're just gonna have a great time.
Speaker 1 (05:04):
The family's gonna have a great time, Sutton's gonna have
a great time.
Speaker 3 (05:09):
This is amazing. Thank you so much.
Speaker 1 (05:12):
We are so grateful for our fantastic partners with Jase
Juniors every single year, and we couldn't do it without,
of course, Jersey, Mike's and Planet Fitness.
Speaker 2 (05:22):
Canterbury Village, Moscow, imagine.
Speaker 1 (05:25):
Kroger and our charitable partner Angels of Hope.
Speaker 3 (05:28):
That's amazing. Thank you so much.
Speaker 2 (05:30):
And we'll see you soon. Yes, we'll see you soon.
Speaker 3 (05:33):
Thank you.
Speaker 2 (05:34):
Okay, have a great day here too.
Speaker 1 (05:36):
Bus
The Troitch Christmas Station is one hundred point three w N.
Speaker 2 (00:03):
I see Jay Towers, Allison, Chelsea. Good morning to you.
Speaker 1 (00:06):
What a great party last night our Jay Junior's welcome
party in Royal Oak and we continue every day introducing
you to our Jace Junior's families.
Speaker 2 (00:16):
Hello, hello, Nicole.
Speaker 1 (00:17):
Yeah, it's Jay Towers from w nic with Allison and Chelsea.
How are you good?
Speaker 2 (00:22):
How are you delightful? How's your day going well?
Speaker 3 (00:26):
And a little surprise right now?
Speaker 2 (00:28):
Oh our phone call?
Speaker 3 (00:30):
Yeah?
Speaker 1 (00:30):
Oh, I tell you man, you were going something something
happened at your house.
Speaker 2 (00:35):
Me there's water leaking or something. I don't know.
Speaker 3 (00:37):
I got no there was last night, but not today.
Speaker 2 (00:39):
Gee, I was close.
Speaker 1 (00:41):
Allison and Chelsea myself have been going through Jays.
Speaker 2 (00:43):
Junior's applications, which we do this time of year. We've
got hundreds of them.
Speaker 1 (00:47):
But we came across Sutton, four year old Sutton, and
we wanted to ask you just to tell tell us
a little bit more, tell us the story.
Speaker 3 (00:54):
Okay So was diagnose with Angelman syndrome when she was
nine months old. I'm sure you've read up on it.
She's missing her maternal gene of her fifteenth chromosome, so
it's very very rare. It's actually like one in fifteen
thousand to twenty thousand in her case because it's completely deleted.
(01:16):
In some cases there are mutation so which means she
has developmental delays. She's not walking yet. She does like
a bunny hop krawl if you will. She's non verbal.
She's not your typical four year old, let's put it
that way. She goes to school full time where she
(01:37):
receives all of her therapies. She has three older siblings
who adore her and love her. I could cry if
I start talking about it. She's just been a really
big blessing to us and teaches us to you know,
appreciate the little things in life. Those are the big
(01:58):
things in our family.
Speaker 1 (02:00):
How old was she when you found out about this
rare syndrome?
Speaker 3 (02:05):
Nine months old, so I would say, I think at
like six months. I brought it to our you know,
her pediatrician was like, look, something's going on.
Speaker 2 (02:15):
What were you noticing? Though? In a baby so little?
Speaker 3 (02:18):
So she wasn't like grasping for toys. She wasn't like
your typical baby where they say could and you know,
like those little things I mean, we've had three kids, right,
so you kind of know what you're looking for. And
she wouldn't sleep. She wasn't sleeping. I mean sleep is
huge for angel and syndrome. I will say we're pretty
lucky right now that she's doing pretty good right now,
(02:41):
but oh my gosh, she didn't sleep.
Speaker 2 (02:43):
What are some things that she enjoys doing or that
she likes.
Speaker 3 (02:47):
She loves the water, she loves badtime, she loves any
toys that like vibrate and light up. She loves to
be outside. Honestly, she's seriously like the happiest, joyful, like
I hit the jackpot with her.
Speaker 1 (03:02):
And you said it sounds like the support system from
the siblings for those sound great, right, two sisters and
a brother.
Speaker 3 (03:09):
Yeah. So I have a thirteen year old and eleven
year old and a nine year old and they're beyond
amazing with her, and they learned so much from her.
They now go out into school and they understand that
people are different and people, you know, just to be kind. Yeah,
go a long way.
Speaker 1 (03:30):
Well, listen, there's six of you in that big, happy family,
and we're thinking that we are going to invite you
to be our special guest for our tenth year for
Jay's Juniors.
Speaker 2 (03:40):
You're all going to Disney World with us?
Speaker 3 (03:42):
Oh my gosh, are you serious? Right now?
Speaker 2 (03:44):
We're one hundred percent serious. You're coming with us?
Speaker 1 (03:47):
Can I be.
Speaker 3 (03:48):
Honest with you? Like I do my prayer journal every morning?
And I literally wrote this down today, like I'm not
even kidding you. It was the first time I put
it in there. I wrote, James Junior, it's crazy.
Speaker 2 (04:01):
I'm going to get. What I just learned is I'm
getting a prayer journal.
Speaker 3 (04:04):
You don't have one already, not not yet? Oh my god, yes,
trust me, listen, it doesn't happen right Like I'm I
pray every day. There's clinical trials out there Rangelman syndrome.
It's like one of the most promising neurogenetic disordered for
a cure. We have her on a list to actually
like get into trial. Yeah, and I so trust me
(04:25):
that every day my prayer Jurnol. I'm still waiting on
that one.
Speaker 2 (04:27):
But one day you manifested this. That's right.
Speaker 3 (04:32):
I'm like, I'm freaked out, Like it's crazy. We somehow
felt we needed to call you today.
Speaker 2 (04:38):
That's right. That's so.
Speaker 1 (04:40):
And the big takeaway is and the oddest thing ever
said is that Allison is going to get a prayer
journal as soon as I leave.
Speaker 3 (04:46):
Here, and I hope, I hope it works for you too.
Speaker 1 (04:52):
Hey, listen, this is an all expenses pay trip. So
you get on the Jersey Mics jet with us, we
go down to Disney World. Everything's included, hotel, par our passes,
all your food, spending money.
Speaker 2 (05:02):
I mean, you're just gonna have a great time.
Speaker 1 (05:04):
The family's gonna have a great time, Sutton's gonna have
a great time.
Speaker 3 (05:09):
This is amazing. Thank you so much.
Speaker 1 (05:12):
We are so grateful for our fantastic partners with Jase
Juniors every single year, and we couldn't do it without,
of course, Jersey, Mike's and Planet Fitness.
Speaker 2 (05:22):
Canterbury Village, Moscow, imagine.
Speaker 1 (05:25):
Kroger and our charitable partner Angels of Hope.
Speaker 3 (05:28):
That's amazing. Thank you so much.
Speaker 2 (05:30):
And we'll see you soon. Yes, we'll see you soon.
Speaker 3 (05:33):
Thank you.
Speaker 2 (05:34):
Okay, have a great day here too.
Speaker 1 (05:36):
Bus
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