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August 24, 2023 27 mins
Paula and Jason explore ways to find support during treatment, whether from the medical team, social workers, or others. They share the importance of advocating for yourself and your child and how important it is to speak up when you know something is not right. Jason and Paula explain how they responded to unsolicited medical advice during treatment, and when to ask for help from someone outside the care team. They point to self-care, connecting with patient families, and living in the moment as tools for making it through. A special thank you to our moderator, Erica Sirrine, Social Work Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.
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