Chiari malformation is a structural defect where brain tissue extends from the skull into the spinal canal, putting pressure on the brain and spinal cord and disrupting the flow of cerebrospinal fluid. In most cases, the condition is present at birth, although symptoms may not appear until late childhood or adulthood.
Types of Chiari MalformationThere are four primary types, categorized by severity and the involved brain parts.
SymptomsSymptoms can vary widely and may not appear until adulthood in Type I malformations.
DiagnosisDiagnosis typically involves a physical and neurological exam, followed by imaging tests for a detailed view of the brain and spine.
Types of Chiari MalformationThere are four primary types, categorized by severity and the involved brain parts.
- Type I: This is the most common form, where the cerebellum's lower part is pushed into the spinal canal. Many individuals with Type I show no symptoms and are diagnosed incidentally through imaging for other issues.
- Type II (Arnold-Chiari malformation): This type is almost always linked to spina bifida and involves both the cerebellum and brainstem extending into the spinal canal. Symptoms often appear in infancy and can be severe.
- Type III: This is a rare and severe type where parts of the cerebellum and brainstem protrude through an abnormal opening at the back of the skull. This form is often life-threatening and causes severe disabilities.
- Type IV: This is an extremely rare and severe type where the cerebellum is underdeveloped or missing parts. It is usually fatal in infancy.
SymptomsSymptoms can vary widely and may not appear until adulthood in Type I malformations.
- Common symptoms:
- Headaches, particularly at the back of the head or neck, which can worsen with coughing, sneezing, or straining.
- Neck pain.
- Balance and coordination issues.
- Poor hand coordination and numbness or tingling in the hands and feet.
- Dizziness or vertigo.
- Difficulty swallowing, gagging, or hoarseness.
- Blurred or double vision, as well as rapid eye movements.
- Sleep apnea or breathing problems.
- Infant-specific symptoms (often associated with Type II):
- Weak cry.
- Feeding difficulties and developmental delays.
- Stiff neck or arm weakness.
- Congenital causes:
- May involve genetic factors, as the condition can sometimes run in families.
- Poor nutrition, infections, or exposure to harmful substances during fetal development are also considered potential factors.
- Type II is strongly linked to spina bifida, a neural tube defect where the spinal canal does not close properly before birth.
- Acquired causes:
- In rare cases, a Chiari malformation can develop later in life due to causes such as traumatic injury, infection, or a tumor.
DiagnosisDiagnosis typically involves a physical and neurological exam, followed by imaging tests for a detailed view of the brain and spine.
- Magnetic resonance imaging (MRI): This is the most accurate test and can show the extent to which brain tissue has descended and whether there are associated complications like a syrinx (a fluid-filled cyst) in the spinal cord.
- Computed tomography (CT) scan: Uses X-rays to create detailed images of the bones in the skull and spine.
- Prenatal ultrasound: In more severe types, the malformation may be detected before birth via an ultrasound scan.
- Medical management:
- For those with mild symptoms like headaches, doctors may recommend pain medication or physical therapy.
- Regular monitoring with exams and MRIs is recommended for asymptomatic cases.
- Surgery:
- If symptoms are severe or neurological damage is progressing, surgery is typically recommended to relieve pressure and restore cerebrospinal fluid flow.
- The most common procedure is posterior fossa decompression, which involves removing a small piece of bone from the back of the skull to create more space for the brain.
- Outlook:
- Surgery ofte
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Transcript
Episode Transcript
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Speaker 1 (00:22):
USTe tactics of the dusty statistastic starts. The US capital Caractice,
(00:43):
the Stars of tune Us has not past fast Coastal.
Speaker 2 (00:53):
Has best friend, my sister Trevita, and we will be
(01:24):
talking about Kiari malformation. But before we begin, I would
like to go to the throne and pray Heavenly Father
is once again we call up on your name. We
asked that you be in the midst of the conversation tonight.
We asked at the words and the thought behind it
(01:45):
reaches who it needs to reach, and is taken in
the way that you would have it taken. I also
would like to thank you for traveling, grace and mercy.
I've been on the go all weekend, as you know, Lord,
but I thank you for keeping me safe. In Jesus' name,
I pray man Trevita, Yes, ma'am, how are you? I
(02:13):
am blessed in holly, Yes, ma'am, Yes, ma'am. So I
wanted to talk to you tonight about kr remlfirmation. I
know that I know that that's a condition that you
are currently dealing with and have been dealing with for
quite some time. Could you tell the people what ki
(02:35):
remalfirmation is.
Speaker 3 (02:38):
Uh Yes, Kiri information is a serious neurological condition that
does not have a cure for it. Unfortunately, most people
think that the decompression surgery is a cure, but it
is not. It is just to help to slow down
(02:58):
the progressiveness of the symptoms that we each deal with,
and it is you know, it's a progressive condition, but
it also helps to slow down the progression of some
of the symptoms and to alleviate the pain that is
associated with kyr.
Speaker 2 (03:19):
Okay, how long have you had it or how long
have you known that you've had it.
Speaker 3 (03:27):
I've known that I've had it since two thousand and nine.
But from what I understand is that I was born
with this condition, just misdiagnosed for years.
Speaker 2 (03:42):
So I was reading where it's a condition in which
brain tissue extends into the spinal canal present have birth.
It occurs when part of the school is abnormally small
or miss mishappened's shaping. I'm sorry. Symptoms include pain and
trouble swallowing. Treatment may involve monetary and surgery. Medication may
(04:06):
be given to manage symptoms symptom like pains, but there
is no cure. How has it affected your life.
Speaker 3 (04:14):
It has affected my life in many, many different ways.
Number One, I have a headache every day.
Speaker 1 (04:23):
It is.
Speaker 3 (04:26):
If you've ever had a migraine headache and you multiply
that by ten with the burning sensation in the neck
and shoulders. That is what I'm dealing with most of
the time. It's not easy. I have issues with my
balance at times. I have issues with holding things at times,
(04:49):
like it's just random. I can drop something that seems
as if I have a good hold on it, but
I don't. My knees and stuff will get with at times.
So it causes a lot of different things and trying
to live a sense of normalcy. My normal is different
(05:15):
from somebody else. It's normal. I'll say that.
Speaker 2 (05:21):
You say you have headaches more days than not. How
do you alleviate the pain?
Speaker 3 (05:29):
I honestly don't alleviate the pain. I've just learned certain
things to kind of ease it, but not alleviate it.
I used to take medications that would keep me bed ridden,
so to speak, to where I was just sleeping and
(05:53):
at the time. When you have small kids, teenage kids,
that's not always the best thing to do because that's
when they tend to do whatever they want to do,
and that was not a good thing. That was not
a good good space to be into, where you're just
functioning off of sleep and you're only up for moments
(06:13):
to eat and take the medication. So I've learned little
tricks that actually help, and that's usually a concoction of
basically extra streme talanol and ben a drill and go
to sleep for a little while and then it helps
(06:34):
me to function. But most of the time I've just
learned to not take the medicine because I don't like
being groggy all the time, because benadryl is that lingering
effect of being sleepy, and I don't.
Speaker 2 (06:47):
Like that right me either, me either, I mean I
like a good sleep, I do.
Speaker 3 (06:54):
But yeah, But.
Speaker 2 (07:02):
Have doctors tried to help you? Come up with something
to see if they could? I know they say that
there's no cure, but I do believe in God, and
I believe that God has a cure for everything, and
I believe that He puts doctors in places to be
able to help in that sense, Have doctors tried anything
(07:27):
with you to help?
Speaker 3 (07:30):
I have tried the botox injections. That was an experience
in itself. I got thirty six injections at one time.
It was an experience to say the least. It helped
with my migrains, but it didn't really help with the
kari with the different symptoms that I was experiencing. It's
(07:54):
frustrating when you don't deal with the kiri specialist in sense,
because if you go to a neurosurgeon who doesn't specialize
in krii the ones that I've dealt with, they their
quick solution is to have the surgery. However, the surgery
is not beneficial to each person because each kori person
(08:19):
who deals with k they're gonna deal with different symptoms
and different aspects, and so their number one thing is
to try to have the surgery to see what symptoms
it helps with and see what symptoms it doesn't help with.
But in my opinion, for me personally, that's just not
(08:41):
a gamble I'm willing to take. So me and God
have been rocking this thing, and so I trust him
better than I trust the doctors here on earth.
Speaker 2 (08:54):
Right right, I know that this month is all also
Kiauri malformation Awareness month, as it is hydrocephalous awareness. Doing
some reading, I realized that they both are connected. In
a certain way, and they both type with spina biffita.
(09:16):
Have you been tested for any of things?
Speaker 1 (09:20):
Uh?
Speaker 3 (09:21):
No, not spinal biffiita or any thing like that. However,
I do have a I guess you could say a
conditional offset that is related to QI with is the
epilasia Apartioli's continuum. And that's basically where I have localized
(09:42):
seizures to the left side of my body. They won't
ever turn into Grandma seizures or anything, but they are
localized seizures to the left side of my body. And
I noticed that when I get overly stressed or anything
like that, are having some anxiet mighty issues, is when
those tend to be triggered. So I tend to eliminate
(10:05):
any stress or anything that's going to cause me some stress.
You got to go on about your pieces.
Speaker 2 (10:12):
Right right right? What would you like the people to
know about Kiari?
Speaker 3 (10:20):
It's an invisible condition. Most people don't understand that just
because I look like I'm okay doesn't necessarily mean that
I am okay. Like today, I am hurting. My head hurts.
That's why number one, I got a glasses on. Number
two my neck and shoulders are on fire because it's
(10:41):
very tight, and it hurts that just because we look
like we're good and that we sound like we're okay,
we're not always okay. And as you can hear, my
voice is starting to do whatever this is. Yeah, this
is another symptom that I have to deal with when
(11:02):
I am in the middle of a flair. And so
it can come like I can wake up in the
morning and be perfectly fine. Headache is minimal, but as
the day goes by, the more that I'm doing, I
can become easily overwhelmed. And that's one of the things
that I want people to understand that just because we
(11:24):
look like we're okay and that we have no problems
and that we have no issues, there is an underlying
cause and we just want to be treated with the
same respect of a normal person that isn't dealing with
anything like this. Because a serious neurological condition of brain
(11:44):
injury or whatever you want to call it, it is
something that affects every aspect of our body. Because KRI
affects the cerebellum, which is the main component in the
brain that controls bodily functions, and so balance issues, voice issues, tetanitis,
(12:06):
which is the ringing in the ears, vision problems, balance issues.
Not only me having a stroke is also contributing to
some of the things that I have to deal with.
On top of y'all, these little fruit flies is get
on my nerves. They are well, I got some bananas
(12:28):
in here too, so they not helping because you know
your nephew he been sick. But anyway, letting them know
that if I drop something, don't laugh. You know, if
if my legs go weak in the middle of just walking,
understand that I didn't trip over anything. My legs literally
(12:49):
just gave out. And it's one of those things that
I have to be mindful of because I used to
be very active, running and things of thatwature. So a
lot of those things I can no longer do. Like
I love to clift weights, I love to run, I
love to do those types of things, but I can't
do those things anymore. And that's been frustrating for me
(13:12):
because I can't do them anymore. So I have to
find things that I can do that don't gyrate my head,
like just no jumping, no you know, heavy lifting, things
of that nature. And I'm still a hard headed and stuffer.
I'm gonna do it anyway, but I try to not
(13:33):
do it so much.
Speaker 2 (13:38):
I understand we are both a part of the hard
head committee. I believe.
Speaker 3 (13:50):
Girl good.
Speaker 2 (13:54):
Did he said that? Go ahead?
Speaker 3 (13:59):
No, you go?
Speaker 2 (14:01):
DD said what I was saying that d D said that.
She said that I believe in a good sleep aka nap.
I don't take naps. I take sleep. Yeah you don't.
Speaker 3 (14:12):
You don't really do naps. Naps are literally thirty to
forty five minutes. Basically, that is what a nap is.
You go to sleep. Yeah, you get in the bed,
under the cover and all of the above. That is
not that's not what that is. But yeah, see noll no, yeah, see.
(14:36):
I like a good nap better to forty five minutes.
I'm good and I'm ready to go. But I'm not.
Speaker 2 (14:42):
Big on naps.
Speaker 3 (14:44):
Like me taking a nap. I really don't feel good
to take a nap, Like I have to not feel
good to take a nap. But I've been trying to
do better and get a nap in here and there.
But yeh, it's just not working out for me.
Speaker 2 (15:02):
Because I know my niece and nephews fuss about about
you not taking naps.
Speaker 3 (15:08):
Especially yes, yes, they.
Speaker 2 (15:17):
Yeah, so we we need you to do better and
invest in some naps ma'am.
Speaker 3 (15:24):
Yeah, My my nap bank is is actually full of
deposits I haven't taken. I've only taken very few withdrawals
on those naps, and I give fussed that about that
quite regularly. I know you do.
Speaker 2 (15:42):
I know you do. I know that you're also an
author and you also have your own publishing brand and company.
How has ha been, KII? How am I trying to
with this? How has that inspired you to where you
(16:03):
are today?
Speaker 3 (16:05):
Number one? I will say it has inspired me to
actually stay focused on what I can do because Keyarri,
like I said, it is a progressive condition. And also
having a stroke, it forced me to stay active, keep
my brain active, keep my brain moving, because if I
(16:28):
don't use, you know, as joh saying goes, what you
don't use, you lose, and I refuse to you know
what knowledge I have, and so I pushed myself to
actually stay on top of everything. Like when I started
(16:49):
the writing journey, I had no idea about formatting, I
didn't know how to edit, I didn't know any of
those things. I knew how to write, but as far
as writing and putting a book together or anything like that,
I had no idea. And writing the second book, I
(17:09):
wrote about Kari and I wrote about my stroke and
how I was able to continue to raise my children,
and it was titled Struggle, Strength and Success or my
information won't Win because I refuse to allow KR to
control my life in the sense of being stuck in
the bed and being just not having the quality of
(17:35):
life that I feel I deserve, and so being able
to push myself and teach myself the things that I need.
I want to make sure that any client that I
get who's wanting to write a book or anything like that,
I want them to know that I've started where they are,
and so I know how to get them to the
(17:57):
next space, which is becoming. And it's a greater experience
when you can actually teach something, take somebody from beginning
to the finished product, you know, and through it myself,
I can take you from start to finish.
Speaker 2 (18:19):
You know.
Speaker 3 (18:20):
And I'm always going to push other people when I
see that they can do. I don't believe in limitations,
I'll say that. And so if I come in contact
with somebody and they feel like they can't do something.
Can't ends up getting out of their vocabulary because can't
doesn't exist. It's always where can't, could and can and shell,
(18:45):
and so you have to replace that can't word with
can and will and shell. And so when you do that,
that changes the perspective on people.
Speaker 2 (18:59):
Well, I like to pat myself on the back for
getting you started to write and because I wrote my
first book in twenty eighteen, and I came to you
as fast as I could listen. You need to put
your poetry in books. You need to do this, that
and the third. And you looked at me like you're
(19:22):
looking right now, because your face says a whole lot.
And it's a humbling experience for me watching you grow
into where you are now, going from writing writing a
book and not being too happy with how it came
out to actually having your own publishing business where you
(19:46):
are taking in clients and helping them get their brand
off the ground. My voice is gone. I've been on
the road all day. Okay, so I am struggling. I'm
not going to keep you because I know you said
your head is hurting. But before I let you go,
is there any final thoughts that you would like to share?
(20:09):
With the audience.
Speaker 3 (20:13):
Just be mindful of September is ki my information month.
Get to know someone who is dealing with an invisible condition,
not just Kiari, but hide yourselfhalss s, final befit, the lupus, MS,
(20:35):
Crohn's disease, anything that you cannot see with the visible eye,
because just because and I try not to be rude,
because you know, people will always say, well, you don't
look sick. And I try, I try really not to
be a smart you know what, but I have to
(20:56):
say sometimes you don't look stupid, but yet here we are,
because it's annoying for when somebody says you don't look sick.
I didn't know I needed to walk around with the
label on my face or my forehead that says, hey,
I'm sick. There's something wrong with me. Yeah, I don't
feel like I need to do that.
Speaker 1 (21:17):
Now.
Speaker 3 (21:17):
There are days when I feel like like my shirt
says we need space. Me and Kiari do need space.
We need to take a day apart.
Speaker 2 (21:25):
But that's not you to happen.
Speaker 3 (21:28):
So I'm learning to embrace what I have to deal
with with Kiari because it's just days where it is
not going to let up. It's gonna be hard, it's
going to be difficult, but I.
Speaker 2 (21:42):
Choose to not give in.
Speaker 3 (21:45):
And anybody that you know that is dealing with a
unseen illness, give them some grace because at some point
you're gonna be dealing with something. It may not be
you personally, but it may be someone that you know,
So extend grace to someone else because it is not
easy to go from what you knew was normal to
(22:11):
a new normal, because every day is a different day.
For me. I fear going to sleep number one, because
I had a stroke. I woke up different after having
that stroke, and I still tried to be in denial
about having the stroke because I was still going to
work until I couldn't feel my left arm, and then
(22:34):
I drove myself to the hospital because I was still
in denial of what a doctor had just told me.
So I'm very over and I'm very hard headed, and
I think that's part of the reason why God has
kept me here, and me and him we go back
and forth all the time, like, God, look here, I
(22:54):
don't know what you got on this agenda food, But
if there's something, there's a purpose, there's a reason, And
so I just want people to understand that keyr is
not an easy condition to deal with. We fight, we
are in pain, but we do what we are called
to do because a lot of us are not just existing,
(23:19):
but we're living. We're living the new normal. Like I'm
still able to drive, I'm still able to work, I'm
still able to do those things, but there are limits
to it. It is frustrating, it is hard, but love
somebody with grace, give them the grace that you would
(23:42):
expect to receive if you were on the other receiving
end of it.
Speaker 2 (23:48):
But it's how can the people support you During kor
malformation month, the.
Speaker 3 (24:01):
Color is purple, so if you want to wear purple
and make a post or something that says I love
someone who has kar. The other thing is you can
donate to the Kari Foundation. They usually do a walk
and if there's not one around here, maybe one day
(24:23):
I'll consider setting up a kor walk around here. But
there's a Conquer Kari Foundation that you can donate to.
And also if you're experiencing these things, because oftentimes we
are misdiagnosed. That was one of the things that I
was misdiagnosed for years with having KI. These are symptoms
(24:47):
that I noticed as a little girl and in my
early teens. Was not only the headaches because they were
I was diagnosed with just having my grains. That was it.
But these types kr your headaches do not last well.
They last longer than a week sometimes, and this was
(25:08):
one of the things, because a typical migraine will last
you maybe two to three days, but a headache can
last about a week, if not longer sometimes, and so
be mindful of that. Also advocate for yourself. I had
nose bleas, I have heart paputations, numbness and tingling in
(25:30):
my hands, in my feet where I used to think
that I had tied my shoes to type. But these
are things that people need to look out for when
dealing with KRI. And don't be afraid to ask for mrs.
Ask for those things, and ask for your medical records.
If you've been to the er and you know they
(25:50):
told you you just have migraines or whatever, make sure
you get a copy or written copy of your notes
from that visit at the er, simply because they may
tell you one thing in that room, but they have
noted in your chart something totally different. So when you
get that hard copy or visit. You're going to find
(26:11):
out more things of what they didn't tell you. So
always get that advocate for yourself, ask the necessary questions. Also,
don't take every prescription that the doctor prescribes for you
simply because some medications that they prescribe for you cause
ultimate ultimate other symptoms that you don't want to have
(26:32):
to deal with. So if you're on medication now that
it's supposed to be treating your headache, understand that it
could cause kidney damage later on, especially if they're telling you, well,
we're going to have to monitor your kidney's function six
months from now, so we'll have to cove you come
in and do this, and so be mindful of that.
(26:54):
One of the medications that they do use to treat KRII, topomax,
one of those that medicine I did not realize. I
had been on it for years, from two thousand and
nine until two thousand and eighteen, and so being on
(27:14):
that for so long, I did not realize that it
caused calcium build up until I had a kidney stone
for the very first time in twenty twenty, and so
when I had that kiddy zone, I'm a researcher. I
do research, and then I realized that this was a
medicine that I had been taking for years, and so
(27:38):
finding that out, it was like, Okay, yeah, we can't.
We can't do this, and if we do, make sure
that in moderation, that I'm doing the things that I can.
Even if I have to go back on this medication
later on down the line, I know what to do
to help myself to prevent the calcium build up again.
(27:58):
So just be mindful, don't always take every single prescription
that the doctor prescribes. I'm want of those people that
I will argue with my MIE in which I do
with my primary care provider about medications, because you're not
just gonna give me a medication because you say you
think or let's try. No, I'm not your guinea pig.
(28:19):
We're not going to let's just try and see. And
also they'll tell you that, okay, if you start this medication,
give it a little like a month or so to try. Really,
all you need is fourteen days for that medicine to
get into your system to notice whether or not it's
going to do something to actually help you. After those
(28:42):
fourteen days, if nothing has changed, you can stop that medication.
They will try to tell you that you can't stop
a medication that quickly. If you were not born taking
that medication, you can stop that medication. It is not
going to change anything outside of that. That is one
(29:03):
of the misleading things that doctors will tell you. If
I start you on this medication, you can't just stop it.
Speaker 2 (29:10):
You can.
Speaker 3 (29:10):
You can stop it the same way you started it.
Give it, yeah, give it fourteen days to get in
your system a good little bit, and once you have
realized what it's doing. If it's helping, then continue to
take the medication. If it's not. If it's not helping
and you're not seeing any results, then stop taking the medication.
(29:33):
Don't get yourself called up into where you're constantly taking
a medication that now you gotta get your kidney's check.
Now you gotta get this check. Your blood pressure is
prone to spike because you're on this medication. It could
go either way. And that's one of the things why
I am so adamant about not taking prescriptions anymore, is
(29:58):
if I don't see benefit, we ain't gonna argue about it.
I'm just not gonna take it. Me and God gonna
have a conversation. He's gonna give me a couple of
other solutions, and I'm gonna go with what he recommends
more so than what man recommends. And I can say
that God has kept me this far with being diagnosed
(30:19):
with Kari, and he is keeping me functioning. Now. Some
days I'm a little hard headed, I'm a little stubborn.
Now I'll be liking to listen to him too, but
he always comes back to me and sit me down
and be like, Okay, you didn't listen. Now you got
to sit over here for a couple of days because
she was hard headed. Sorry, I'm sorry. You know I'm
still learning and we got to go back and forth.
(30:41):
But you know, I'm gonna always be obedient as best
I can. He knows the child and he created, and
he knows that she can be very stubborn and wants
to do it her way to see what the outcome
gonna be. But most of the time he always right.
Speaker 2 (30:57):
I will say that absolutely. Well, I thank you for
joining me tonight to talk about Kiari malformation and to
raise awareness for it. I'm not gonna hold you. I
want you to go and resk, lay down, do what
(31:18):
you need to do well.
Speaker 3 (31:19):
I'm gonna lay down for just a little bit because
my grandbaby gonna be over here her mama and don't
want to go to the movies child, So I will
have a little little mama here in the little movie.
Speaker 2 (31:31):
Tell me we're gonna take a nap. It's eight thirty three.
Tell her we go take a nap.
Speaker 3 (31:38):
We gonna see how this is gonna go. She's a
she's a night out. She she's her mother, Yeah, she's
her mother child. And I quickly tell her, Lisa, grandma
is going to be whatever you choose to do, you
can do it right in this space. But outside of that,
we're gonna have a little problem. She'd be like okay,
T T. So she usually is okay, but if I
(32:01):
give her this bath tonight with the little nighttime bath, oh,
she would be out in thirty minutes. So I ain't
gonna worry about it because that little stuff put me out.
I use the baby nighttime bath myself and I'll be sleep.
Speaker 2 (32:15):
Yeah. Yeah, I would like it too. We tried it
on Ka, but kay, she's allergic to lavender so that
you can't have it. I use it, and it's just.
Speaker 3 (32:32):
Another natural thing you can get for kids to help
them sleep at night, and that is tart cherry juice. Okay, yeah,
it's tart cherry juice. Now I drink it only because
I like, like, this is another natural thing that I do,
and that is it helps with inflammation and so when
(32:53):
you're having joint pain or anything like that, So you
take two teaspoons in the morning and two tea spoons
at night and it helps. That also helps with lour
and the blood pressure and sugar cravings and things of
that nature as well. So tart cherry juice one hundred
percent tart cherry juice. It's very tart, but it is.
It's good when it's cold, and it's actually better than
(33:16):
cranberry juice. So get you some tar cherry juice.
Speaker 2 (33:19):
Yeah, I have to try.
Speaker 3 (33:21):
Yeah, it'll help you sleep too. It's good. But it's
good for kids, So don't give them a lot. Just
give them a little bit right before bed and then
they'd be good. And if she doesn't have any peanut
allergies or anything like that, she can take a And
this is good for yourself too, Like I'm these are
all little things that I do. If you can't sleep,
take a spoonful of peanut butter.
Speaker 2 (33:44):
Yeah.
Speaker 3 (33:44):
Help.
Speaker 2 (33:46):
So yeah, something new every day.
Speaker 3 (33:50):
Yeah. See, Like I said, I'm very, very weird when
it comes to certain things, and I've eliminated taken a
lot of prescription medications for that particular reason. So if
I can find something that is natural and that it works,
I'm sticking to that because at one point I was
on I want to say, six different medications at one time,
(34:15):
and I was only I was walking zombie and I
did not like that feeling. And I have not been
back on any of those medications now since I want
to say twenty twenty nineteen. Okay, so I've been heavy
(34:39):
medication prescription medications free since then. So everything I do
now is if it ain't natural, I ain't got I
don't know what is right.
Speaker 2 (34:50):
Well, I want to take a moment and thank you
for coming on tonight. Tell the listeners about your podcast
real quick.
Speaker 3 (35:00):
Okay. My podcast is titled Believe in the Journey and
it is every second Sunday and fourth Thursday of the month,
and I will be doing a full understanding of KRII
on September the fourteenth at eight pm, So make sure
you guys tune in because I'm gonna talk about the
(35:22):
types of KR malformation. There are four types and so
I want you guys to understand that, and then I'm
gonna give you a little bit more about me and
my journey with KRII. So I'll try not to keep
you guys too long, but k is a lot of
information to cover. So I may end up doing both
(35:46):
shows for the month of September on KR malformation. I
haven't decided just yet, but yeah, make sure you tune
in Sunday, September the fourteenth at eight pm to believe
in the journey. If you are wanting to write a book,
you can come and talk to me about that. We
can have a consultation call and we can get your
(36:08):
vision out there. That is Wings of Transformation Publishing business
page is on Facebook, or you can contact me directly
Trevida Harris. If you have in trouble, remember my name.
I always give you this little cheesy analogy, and that
is if you can remember Velvida cheese, you can say Trevida,
so you'll always remember my name. Anything else I got
(36:30):
going on, I don't think so outside of that, yeah, no,
I've got none else.
Speaker 2 (36:38):
Okay, Well, thank you again for joining me tonight. It's
been a pleasure as always. I will be back on
the fourth Friday of this month with my co host
d D discussing spina biffita because well, hydro syphilis.
Speaker 3 (36:59):
Yes, yeah, and that is blue still mm hmmm mm
hmm yeah, so.
Speaker 2 (37:11):
Look out for that and I thank you all for
tuning in tonight. I have a good night, Yie.
USTe tactics of the dusty statistastic starts. The US capital Caractice,
(00:43):
the Stars of tune Us has not past fast Coastal.
Speaker 2 (00:53):
Has best friend, my sister Trevita, and we will be
(01:24):
talking about Kiari malformation. But before we begin, I would
like to go to the throne and pray Heavenly Father
is once again we call up on your name. We
asked that you be in the midst of the conversation tonight.
We asked at the words and the thought behind it
(01:45):
reaches who it needs to reach, and is taken in
the way that you would have it taken. I also
would like to thank you for traveling, grace and mercy.
I've been on the go all weekend, as you know, Lord,
but I thank you for keeping me safe. In Jesus' name,
I pray man Trevita, Yes, ma'am, how are you? I
(02:13):
am blessed in holly, Yes, ma'am, Yes, ma'am. So I
wanted to talk to you tonight about kr remlfirmation. I
know that I know that that's a condition that you
are currently dealing with and have been dealing with for
quite some time. Could you tell the people what ki
(02:35):
remalfirmation is.
Speaker 3 (02:38):
Uh Yes, Kiri information is a serious neurological condition that
does not have a cure for it. Unfortunately, most people
think that the decompression surgery is a cure, but it
is not. It is just to help to slow down
(02:58):
the progressiveness of the symptoms that we each deal with,
and it is you know, it's a progressive condition, but
it also helps to slow down the progression of some
of the symptoms and to alleviate the pain that is
associated with kyr.
Speaker 2 (03:19):
Okay, how long have you had it or how long
have you known that you've had it.
Speaker 3 (03:27):
I've known that I've had it since two thousand and nine.
But from what I understand is that I was born
with this condition, just misdiagnosed for years.
Speaker 2 (03:42):
So I was reading where it's a condition in which
brain tissue extends into the spinal canal present have birth.
It occurs when part of the school is abnormally small
or miss mishappened's shaping. I'm sorry. Symptoms include pain and
trouble swallowing. Treatment may involve monetary and surgery. Medication may
(04:06):
be given to manage symptoms symptom like pains, but there
is no cure. How has it affected your life.
Speaker 3 (04:14):
It has affected my life in many, many different ways.
Number One, I have a headache every day.
Speaker 1 (04:23):
It is.
Speaker 3 (04:26):
If you've ever had a migraine headache and you multiply
that by ten with the burning sensation in the neck
and shoulders. That is what I'm dealing with most of
the time. It's not easy. I have issues with my
balance at times. I have issues with holding things at times,
(04:49):
like it's just random. I can drop something that seems
as if I have a good hold on it, but
I don't. My knees and stuff will get with at times.
So it causes a lot of different things and trying
to live a sense of normalcy. My normal is different
(05:15):
from somebody else. It's normal. I'll say that.
Speaker 2 (05:21):
You say you have headaches more days than not. How
do you alleviate the pain?
Speaker 3 (05:29):
I honestly don't alleviate the pain. I've just learned certain
things to kind of ease it, but not alleviate it.
I used to take medications that would keep me bed ridden,
so to speak, to where I was just sleeping and
(05:53):
at the time. When you have small kids, teenage kids,
that's not always the best thing to do because that's
when they tend to do whatever they want to do,
and that was not a good thing. That was not
a good good space to be into, where you're just
functioning off of sleep and you're only up for moments
(06:13):
to eat and take the medication. So I've learned little
tricks that actually help, and that's usually a concoction of
basically extra streme talanol and ben a drill and go
to sleep for a little while and then it helps
(06:34):
me to function. But most of the time I've just
learned to not take the medicine because I don't like
being groggy all the time, because benadryl is that lingering
effect of being sleepy, and I don't.
Speaker 2 (06:47):
Like that right me either, me either, I mean I
like a good sleep, I do.
Speaker 3 (06:54):
But yeah, But.
Speaker 2 (07:02):
Have doctors tried to help you? Come up with something
to see if they could? I know they say that
there's no cure, but I do believe in God, and
I believe that God has a cure for everything, and
I believe that He puts doctors in places to be
able to help in that sense, Have doctors tried anything
(07:27):
with you to help?
Speaker 3 (07:30):
I have tried the botox injections. That was an experience
in itself. I got thirty six injections at one time.
It was an experience to say the least. It helped
with my migrains, but it didn't really help with the
kari with the different symptoms that I was experiencing. It's
(07:54):
frustrating when you don't deal with the kiri specialist in sense,
because if you go to a neurosurgeon who doesn't specialize
in krii the ones that I've dealt with, they their
quick solution is to have the surgery. However, the surgery
is not beneficial to each person because each kori person
(08:19):
who deals with k they're gonna deal with different symptoms
and different aspects, and so their number one thing is
to try to have the surgery to see what symptoms
it helps with and see what symptoms it doesn't help with.
But in my opinion, for me personally, that's just not
(08:41):
a gamble I'm willing to take. So me and God
have been rocking this thing, and so I trust him
better than I trust the doctors here on earth.
Speaker 2 (08:54):
Right right, I know that this month is all also
Kiauri malformation Awareness month, as it is hydrocephalous awareness. Doing
some reading, I realized that they both are connected. In
a certain way, and they both type with spina biffita.
(09:16):
Have you been tested for any of things?
Speaker 1 (09:20):
Uh?
Speaker 3 (09:21):
No, not spinal biffiita or any thing like that. However,
I do have a I guess you could say a
conditional offset that is related to QI with is the
epilasia Apartioli's continuum. And that's basically where I have localized
(09:42):
seizures to the left side of my body. They won't
ever turn into Grandma seizures or anything, but they are
localized seizures to the left side of my body. And
I noticed that when I get overly stressed or anything
like that, are having some anxiet mighty issues, is when
those tend to be triggered. So I tend to eliminate
(10:05):
any stress or anything that's going to cause me some stress.
You got to go on about your pieces.
Speaker 2 (10:12):
Right right right? What would you like the people to
know about Kiari?
Speaker 3 (10:20):
It's an invisible condition. Most people don't understand that just
because I look like I'm okay doesn't necessarily mean that
I am okay. Like today, I am hurting. My head hurts.
That's why number one, I got a glasses on. Number
two my neck and shoulders are on fire because it's
(10:41):
very tight, and it hurts that just because we look
like we're good and that we sound like we're okay,
we're not always okay. And as you can hear, my
voice is starting to do whatever this is. Yeah, this
is another symptom that I have to deal with when
(11:02):
I am in the middle of a flair. And so
it can come like I can wake up in the
morning and be perfectly fine. Headache is minimal, but as
the day goes by, the more that I'm doing, I
can become easily overwhelmed. And that's one of the things
that I want people to understand that just because we
(11:24):
look like we're okay and that we have no problems
and that we have no issues, there is an underlying
cause and we just want to be treated with the
same respect of a normal person that isn't dealing with
anything like this. Because a serious neurological condition of brain
(11:44):
injury or whatever you want to call it, it is
something that affects every aspect of our body. Because KRI
affects the cerebellum, which is the main component in the
brain that controls bodily functions, and so balance issues, voice issues, tetanitis,
(12:06):
which is the ringing in the ears, vision problems, balance issues.
Not only me having a stroke is also contributing to
some of the things that I have to deal with.
On top of y'all, these little fruit flies is get
on my nerves. They are well, I got some bananas
(12:28):
in here too, so they not helping because you know
your nephew he been sick. But anyway, letting them know
that if I drop something, don't laugh. You know, if
if my legs go weak in the middle of just walking,
understand that I didn't trip over anything. My legs literally
(12:49):
just gave out. And it's one of those things that
I have to be mindful of because I used to
be very active, running and things of thatwature. So a
lot of those things I can no longer do. Like
I love to clift weights, I love to run, I
love to do those types of things, but I can't
do those things anymore. And that's been frustrating for me
(13:12):
because I can't do them anymore. So I have to
find things that I can do that don't gyrate my head,
like just no jumping, no you know, heavy lifting, things
of that nature. And I'm still a hard headed and stuffer.
I'm gonna do it anyway, but I try to not
(13:33):
do it so much.
Speaker 2 (13:38):
I understand we are both a part of the hard
head committee. I believe.
Speaker 3 (13:50):
Girl good.
Speaker 2 (13:54):
Did he said that? Go ahead?
Speaker 3 (13:59):
No, you go?
Speaker 2 (14:01):
DD said what I was saying that d D said that.
She said that I believe in a good sleep aka nap.
I don't take naps. I take sleep. Yeah you don't.
Speaker 3 (14:12):
You don't really do naps. Naps are literally thirty to
forty five minutes. Basically, that is what a nap is.
You go to sleep. Yeah, you get in the bed,
under the cover and all of the above. That is
not that's not what that is. But yeah, see noll no, yeah, see.
(14:36):
I like a good nap better to forty five minutes.
I'm good and I'm ready to go. But I'm not.
Speaker 2 (14:42):
Big on naps.
Speaker 3 (14:44):
Like me taking a nap. I really don't feel good
to take a nap, Like I have to not feel
good to take a nap. But I've been trying to
do better and get a nap in here and there.
But yeh, it's just not working out for me.
Speaker 2 (15:02):
Because I know my niece and nephews fuss about about
you not taking naps.
Speaker 3 (15:08):
Especially yes, yes, they.
Speaker 2 (15:17):
Yeah, so we we need you to do better and
invest in some naps ma'am.
Speaker 3 (15:24):
Yeah, My my nap bank is is actually full of
deposits I haven't taken. I've only taken very few withdrawals
on those naps, and I give fussed that about that
quite regularly. I know you do.
Speaker 2 (15:42):
I know you do. I know that you're also an
author and you also have your own publishing brand and company.
How has ha been, KII? How am I trying to
with this? How has that inspired you to where you
(16:03):
are today?
Speaker 3 (16:05):
Number one? I will say it has inspired me to
actually stay focused on what I can do because Keyarri,
like I said, it is a progressive condition. And also
having a stroke, it forced me to stay active, keep
my brain active, keep my brain moving, because if I
(16:28):
don't use, you know, as joh saying goes, what you
don't use, you lose, and I refuse to you know
what knowledge I have, and so I pushed myself to
actually stay on top of everything. Like when I started
(16:49):
the writing journey, I had no idea about formatting, I
didn't know how to edit, I didn't know any of
those things. I knew how to write, but as far
as writing and putting a book together or anything like that,
I had no idea. And writing the second book, I
(17:09):
wrote about Kari and I wrote about my stroke and
how I was able to continue to raise my children,
and it was titled Struggle, Strength and Success or my
information won't Win because I refuse to allow KR to
control my life in the sense of being stuck in
the bed and being just not having the quality of
(17:35):
life that I feel I deserve, and so being able
to push myself and teach myself the things that I need.
I want to make sure that any client that I
get who's wanting to write a book or anything like that,
I want them to know that I've started where they are,
and so I know how to get them to the
(17:57):
next space, which is becoming. And it's a greater experience
when you can actually teach something, take somebody from beginning
to the finished product, you know, and through it myself,
I can take you from start to finish.
Speaker 2 (18:19):
You know.
Speaker 3 (18:20):
And I'm always going to push other people when I
see that they can do. I don't believe in limitations,
I'll say that. And so if I come in contact
with somebody and they feel like they can't do something.
Can't ends up getting out of their vocabulary because can't
doesn't exist. It's always where can't, could and can and shell,
(18:45):
and so you have to replace that can't word with
can and will and shell. And so when you do that,
that changes the perspective on people.
Speaker 2 (18:59):
Well, I like to pat myself on the back for
getting you started to write and because I wrote my
first book in twenty eighteen, and I came to you
as fast as I could listen. You need to put
your poetry in books. You need to do this, that
and the third. And you looked at me like you're
(19:22):
looking right now, because your face says a whole lot.
And it's a humbling experience for me watching you grow
into where you are now, going from writing writing a
book and not being too happy with how it came
out to actually having your own publishing business where you
(19:46):
are taking in clients and helping them get their brand
off the ground. My voice is gone. I've been on
the road all day. Okay, so I am struggling. I'm
not going to keep you because I know you said
your head is hurting. But before I let you go,
is there any final thoughts that you would like to share?
(20:09):
With the audience.
Speaker 3 (20:13):
Just be mindful of September is ki my information month.
Get to know someone who is dealing with an invisible condition,
not just Kiari, but hide yourselfhalss s, final befit, the lupus, MS,
(20:35):
Crohn's disease, anything that you cannot see with the visible eye,
because just because and I try not to be rude,
because you know, people will always say, well, you don't
look sick. And I try, I try really not to
be a smart you know what, but I have to
(20:56):
say sometimes you don't look stupid, but yet here we are,
because it's annoying for when somebody says you don't look sick.
I didn't know I needed to walk around with the
label on my face or my forehead that says, hey,
I'm sick. There's something wrong with me. Yeah, I don't
feel like I need to do that.
Speaker 1 (21:17):
Now.
Speaker 3 (21:17):
There are days when I feel like like my shirt
says we need space. Me and Kiari do need space.
We need to take a day apart.
Speaker 2 (21:25):
But that's not you to happen.
Speaker 3 (21:28):
So I'm learning to embrace what I have to deal
with with Kiari because it's just days where it is
not going to let up. It's gonna be hard, it's
going to be difficult, but I.
Speaker 2 (21:42):
Choose to not give in.
Speaker 3 (21:45):
And anybody that you know that is dealing with a
unseen illness, give them some grace because at some point
you're gonna be dealing with something. It may not be
you personally, but it may be someone that you know,
So extend grace to someone else because it is not
easy to go from what you knew was normal to
(22:11):
a new normal, because every day is a different day.
For me. I fear going to sleep number one, because
I had a stroke. I woke up different after having
that stroke, and I still tried to be in denial
about having the stroke because I was still going to
work until I couldn't feel my left arm, and then
(22:34):
I drove myself to the hospital because I was still
in denial of what a doctor had just told me.
So I'm very over and I'm very hard headed, and
I think that's part of the reason why God has
kept me here, and me and him we go back
and forth all the time, like, God, look here, I
(22:54):
don't know what you got on this agenda food, But
if there's something, there's a purpose, there's a reason, And
so I just want people to understand that keyr is
not an easy condition to deal with. We fight, we
are in pain, but we do what we are called
to do because a lot of us are not just existing,
(23:19):
but we're living. We're living the new normal. Like I'm
still able to drive, I'm still able to work, I'm
still able to do those things, but there are limits
to it. It is frustrating, it is hard, but love
somebody with grace, give them the grace that you would
(23:42):
expect to receive if you were on the other receiving
end of it.
Speaker 2 (23:48):
But it's how can the people support you During kor
malformation month, the.
Speaker 3 (24:01):
Color is purple, so if you want to wear purple
and make a post or something that says I love
someone who has kar. The other thing is you can
donate to the Kari Foundation. They usually do a walk
and if there's not one around here, maybe one day
(24:23):
I'll consider setting up a kor walk around here. But
there's a Conquer Kari Foundation that you can donate to.
And also if you're experiencing these things, because oftentimes we
are misdiagnosed. That was one of the things that I
was misdiagnosed for years with having KI. These are symptoms
(24:47):
that I noticed as a little girl and in my
early teens. Was not only the headaches because they were
I was diagnosed with just having my grains. That was it.
But these types kr your headaches do not last well.
They last longer than a week sometimes, and this was
(25:08):
one of the things, because a typical migraine will last
you maybe two to three days, but a headache can
last about a week, if not longer sometimes, and so
be mindful of that. Also advocate for yourself. I had
nose bleas, I have heart paputations, numbness and tingling in
(25:30):
my hands, in my feet where I used to think
that I had tied my shoes to type. But these
are things that people need to look out for when
dealing with KRI. And don't be afraid to ask for mrs.
Ask for those things, and ask for your medical records.
If you've been to the er and you know they
(25:50):
told you you just have migraines or whatever, make sure
you get a copy or written copy of your notes
from that visit at the er, simply because they may
tell you one thing in that room, but they have
noted in your chart something totally different. So when you
get that hard copy or visit. You're going to find
(26:11):
out more things of what they didn't tell you. So
always get that advocate for yourself, ask the necessary questions. Also,
don't take every prescription that the doctor prescribes for you
simply because some medications that they prescribe for you cause
ultimate ultimate other symptoms that you don't want to have
(26:32):
to deal with. So if you're on medication now that
it's supposed to be treating your headache, understand that it
could cause kidney damage later on, especially if they're telling you, well,
we're going to have to monitor your kidney's function six
months from now, so we'll have to cove you come
in and do this, and so be mindful of that.
(26:54):
One of the medications that they do use to treat KRII, topomax,
one of those that medicine I did not realize. I
had been on it for years, from two thousand and
nine until two thousand and eighteen, and so being on
(27:14):
that for so long, I did not realize that it
caused calcium build up until I had a kidney stone
for the very first time in twenty twenty, and so
when I had that kiddy zone, I'm a researcher. I
do research, and then I realized that this was a
medicine that I had been taking for years, and so
(27:38):
finding that out, it was like, Okay, yeah, we can't.
We can't do this, and if we do, make sure
that in moderation, that I'm doing the things that I can.
Even if I have to go back on this medication
later on down the line, I know what to do
to help myself to prevent the calcium build up again.
(27:58):
So just be mindful, don't always take every single prescription
that the doctor prescribes. I'm want of those people that
I will argue with my MIE in which I do
with my primary care provider about medications, because you're not
just gonna give me a medication because you say you
think or let's try. No, I'm not your guinea pig.
(28:19):
We're not going to let's just try and see. And
also they'll tell you that, okay, if you start this medication,
give it a little like a month or so to try. Really,
all you need is fourteen days for that medicine to
get into your system to notice whether or not it's
going to do something to actually help you. After those
(28:42):
fourteen days, if nothing has changed, you can stop that medication.
They will try to tell you that you can't stop
a medication that quickly. If you were not born taking
that medication, you can stop that medication. It is not
going to change anything outside of that. That is one
(29:03):
of the misleading things that doctors will tell you. If
I start you on this medication, you can't just stop it.
Speaker 2 (29:10):
You can.
Speaker 3 (29:10):
You can stop it the same way you started it.
Give it, yeah, give it fourteen days to get in
your system a good little bit, and once you have
realized what it's doing. If it's helping, then continue to
take the medication. If it's not. If it's not helping
and you're not seeing any results, then stop taking the medication.
(29:33):
Don't get yourself called up into where you're constantly taking
a medication that now you gotta get your kidney's check.
Now you gotta get this check. Your blood pressure is
prone to spike because you're on this medication. It could
go either way. And that's one of the things why
I am so adamant about not taking prescriptions anymore, is
(29:58):
if I don't see benefit, we ain't gonna argue about it.
I'm just not gonna take it. Me and God gonna
have a conversation. He's gonna give me a couple of
other solutions, and I'm gonna go with what he recommends
more so than what man recommends. And I can say
that God has kept me this far with being diagnosed
(30:19):
with Kari, and he is keeping me functioning. Now. Some
days I'm a little hard headed, I'm a little stubborn.
Now I'll be liking to listen to him too, but
he always comes back to me and sit me down
and be like, Okay, you didn't listen. Now you got
to sit over here for a couple of days because
she was hard headed. Sorry, I'm sorry. You know I'm
still learning and we got to go back and forth.
(30:41):
But you know, I'm gonna always be obedient as best
I can. He knows the child and he created, and
he knows that she can be very stubborn and wants
to do it her way to see what the outcome
gonna be. But most of the time he always right.
Speaker 2 (30:57):
I will say that absolutely. Well, I thank you for
joining me tonight to talk about Kiari malformation and to
raise awareness for it. I'm not gonna hold you. I
want you to go and resk, lay down, do what
(31:18):
you need to do well.
Speaker 3 (31:19):
I'm gonna lay down for just a little bit because
my grandbaby gonna be over here her mama and don't
want to go to the movies child, So I will
have a little little mama here in the little movie.
Speaker 2 (31:31):
Tell me we're gonna take a nap. It's eight thirty three.
Tell her we go take a nap.
Speaker 3 (31:38):
We gonna see how this is gonna go. She's a
she's a night out. She she's her mother, Yeah, she's
her mother child. And I quickly tell her, Lisa, grandma
is going to be whatever you choose to do, you
can do it right in this space. But outside of that,
we're gonna have a little problem. She'd be like okay,
T T. So she usually is okay, but if I
(32:01):
give her this bath tonight with the little nighttime bath, oh,
she would be out in thirty minutes. So I ain't
gonna worry about it because that little stuff put me out.
I use the baby nighttime bath myself and I'll be sleep.
Speaker 2 (32:15):
Yeah. Yeah, I would like it too. We tried it
on Ka, but kay, she's allergic to lavender so that
you can't have it. I use it, and it's just.
Speaker 3 (32:32):
Another natural thing you can get for kids to help
them sleep at night, and that is tart cherry juice. Okay, yeah,
it's tart cherry juice. Now I drink it only because
I like, like, this is another natural thing that I do,
and that is it helps with inflammation and so when
(32:53):
you're having joint pain or anything like that, So you
take two teaspoons in the morning and two tea spoons
at night and it helps. That also helps with lour
and the blood pressure and sugar cravings and things of
that nature as well. So tart cherry juice one hundred
percent tart cherry juice. It's very tart, but it is.
It's good when it's cold, and it's actually better than
(33:16):
cranberry juice. So get you some tar cherry juice.
Speaker 2 (33:19):
Yeah, I have to try.
Speaker 3 (33:21):
Yeah, it'll help you sleep too. It's good. But it's
good for kids, So don't give them a lot. Just
give them a little bit right before bed and then
they'd be good. And if she doesn't have any peanut
allergies or anything like that, she can take a And
this is good for yourself too, Like I'm these are
all little things that I do. If you can't sleep,
take a spoonful of peanut butter.
Speaker 2 (33:44):
Yeah.
Speaker 3 (33:44):
Help.
Speaker 2 (33:46):
So yeah, something new every day.
Speaker 3 (33:50):
Yeah. See, Like I said, I'm very, very weird when
it comes to certain things, and I've eliminated taken a
lot of prescription medications for that particular reason. So if
I can find something that is natural and that it works,
I'm sticking to that because at one point I was
on I want to say, six different medications at one time,
(34:15):
and I was only I was walking zombie and I
did not like that feeling. And I have not been
back on any of those medications now since I want
to say twenty twenty nineteen. Okay, so I've been heavy
(34:39):
medication prescription medications free since then. So everything I do
now is if it ain't natural, I ain't got I
don't know what is right.
Speaker 2 (34:50):
Well, I want to take a moment and thank you
for coming on tonight. Tell the listeners about your podcast
real quick.
Speaker 3 (35:00):
Okay. My podcast is titled Believe in the Journey and
it is every second Sunday and fourth Thursday of the month,
and I will be doing a full understanding of KRII
on September the fourteenth at eight pm, So make sure
you guys tune in because I'm gonna talk about the
(35:22):
types of KR malformation. There are four types and so
I want you guys to understand that, and then I'm
gonna give you a little bit more about me and
my journey with KRII. So I'll try not to keep
you guys too long, but k is a lot of
information to cover. So I may end up doing both
(35:46):
shows for the month of September on KR malformation. I
haven't decided just yet, but yeah, make sure you tune
in Sunday, September the fourteenth at eight pm to believe
in the journey. If you are wanting to write a book,
you can come and talk to me about that. We
can have a consultation call and we can get your
(36:08):
vision out there. That is Wings of Transformation Publishing business
page is on Facebook, or you can contact me directly
Trevida Harris. If you have in trouble, remember my name.
I always give you this little cheesy analogy, and that
is if you can remember Velvida cheese, you can say Trevida,
so you'll always remember my name. Anything else I got
(36:30):
going on, I don't think so outside of that, yeah, no,
I've got none else.
Speaker 2 (36:38):
Okay, Well, thank you again for joining me tonight. It's
been a pleasure as always. I will be back on
the fourth Friday of this month with my co host
d D discussing spina biffita because well, hydro syphilis.
Speaker 3 (36:59):
Yes, yeah, and that is blue still mm hmmm mm
hmm yeah, so.
Speaker 2 (37:11):
Look out for that and I thank you all for
tuning in tonight. I have a good night, Yie.
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