February 28, 2023 • 21 mins
En este episodio de Guerreros del Corazon, Marta y Belen alertan importante de las 10 senales que pueden ser prominentes para reconocer si tu hijo tiene una cardiopatia congenita. Daremos las 10 mas importantes y mas comunesCompartir nuestras experiencias como madre de un guerrero y una sobreviviente de cardiopatia.
Segmento Uno: Hablamos de las senales y contamos nuestras experiencias
Segmento Dos: Seguimos enumerando las senales y dando ejemplos para que puedan reconocerlos
Segmento Tres: Discutimos sobre la variedad de cardiopatias cianoticas y no cianoticas.
Enlaces a las páginas de podcasts y redes sociales de 'Guerreros Del Corazón':
Instagram: @guerrerosdelcorazon
Facebook: https://www.facebook.com/Guerreros-Del-Coraz%C3%B3n-106786128027732
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
website: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Conviértete en un seguidor de este podcast: https://www.spreaker.com/podcast/guerreros-del-corazon--4731556/support.
Segmento Uno: Hablamos de las senales y contamos nuestras experiencias
Segmento Dos: Seguimos enumerando las senales y dando ejemplos para que puedan reconocerlos
Segmento Tres: Discutimos sobre la variedad de cardiopatias cianoticas y no cianoticas.
Enlaces a las páginas de podcasts y redes sociales de 'Guerreros Del Corazón':
Instagram: @guerrerosdelcorazon
Facebook: https://www.facebook.com/Guerreros-Del-Coraz%C3%B3n-106786128027732
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
website: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Conviértete en un seguidor de este podcast: https://www.spreaker.com/podcast/guerreros-del-corazon--4731556/support.
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
We are going to be a differentprogram in which the premos of heart disease,
but more pleasantly welcome to this program, which is one of those of
the heart fighting against congenital heart disease. I am a fine raquel Montero,
one of the manftrionas of this programand I am the mother of a warrior
(00:22):
of heart. He accompanies me onthis ben show in Blan another from the
heart. We appreciate your sympathy.Incredibly, we' re starting a tough
third season. This second season wasthere in health situations. Atmospheric and personal.
They made it a little difficult toachieve the continuity of our podcast on
(00:43):
a monthly basis, as we usedto. However, we come with great
faith to return with much important andinteresting information, as well as special guests
on this occasion. In our firstsegment we will discuss how to identify the
characteristics or mouths of a child withcongenital cadiova. Already in the second segment
we will explain in a general wayabout the songeanotic and non- seonotic Callicacies.
(01:07):
They' re worth if we're going to talk about statistics that
we need to know about the issueof congenital thaliopathy. Well, Marta,
first of all, welcome to seasonthree. We' re super happy.
Let' s hope everything goes welland well, let' s do a
different program in which we' lltalk about heart disease but more pleasantly and
(01:32):
we' ll talk and we'll have a lot of guests. Congenital
heart disease is the most common birthdefect in the world, although the statistics
are different in all countries, butyou knew that eighty to one hundred and
twenty out of ten zero children inthe world are born with a heart defect.
As you know, I have afoundation which is for Venezuelan children with
(01:56):
heart disease and, unfortunately more than90 percent of these children do not receive
this surgery the first year of life, as in all countries that are of
low resource. It is for thisreason that alertness of the different symptoms is
so important. We will abound alittle more than the ten most prominent signs,
(02:21):
to which we must be super alert. Ten signs that you' re
going to have a heart defect.Look at your marta get irritated easily they
cry from anything. For no reason, that happened to your son, because
look really. Ian wasn' tthat he would get into it easily,
(02:43):
but like us, we want tothink that he makes a typical baby when
it was his turn to sleep,because they did give him what we could.
We can know as tantrums, butas every child, as every child
with carleopathy. It' s quitedifferent, because at least I can'
t make you such that Guian gottangled up easily. But there may be
the possibility that it' s oneof the signs that, as you wish,
(03:07):
we have to be on the lookout. If we see that our little
babies of anything, they tend tofeel like you need to, like,
cry, because we can' tunderstand where it' s coming from right
now. We also have what isthe difficulty to eat and excessive fatigue.
Perhaps it makes it difficult for youto breastfeed or take your bottle or teapot,
(03:32):
as we say. Maybe your owngranny will tell you that boy is
a payment that does nothing. Butin reality, that can be a vital
symptom that there can be heart diseaseand when they are already older, you
can notice that it fits easily evenin the performance of simple activities. I
(03:54):
remember, when I was growing upthat I didn' t do physical exercise
and I never understood why. Butit was that, I mean, I
was moving and everything was feeling bad, bad, bad, and still at
this age I have good days andI have bad days. I have days
that I have total energy and itcan happen the next day that what I
(04:17):
want is to sleep all day,then you have to be aware of that
for the children. In that caseit is. I can tell you that
they would identify her or not atfirst instance, because, like when I
have over my arm, I stillknow that he has a condition. It
was quick that he was born,that they took him to the room.
(04:38):
I did vote and I couldn't pile it up because it didn'
t get the grip. But whenI gave her the bottle, I also
thought, like that granny, thatshe had had a lazy little boy that
was why she was so busy.And now that I know a little bit
more about the subject, I canidentify those that prime the day, where
(05:00):
I saw him, where I sawhim, that he had all the sleeping
time that he wanted the bottle thatwas, because we were close to Heraldo
that he had a heart disease withpeople and obviously, as he grew what
was thin, because like he was, he got tired. But now that
(05:20):
you' re big, you're in your teens and it' s
a little bit more weighty, asyou notice even more of the simple activities.
That tiredness, the one the personwould say, but he' s
tired. Well, yeah, he' s tired, because there' s
a heart that' s there workingdouble and so it' s song faster,
(05:44):
faster. The other thing is torealize it. If the palpitations are
accelerated to more than sixty, pulsationsapologize and breaths per minute. If you
see that your child is hyperventilating andhis breathing is difficult to communicate immediately with
a doctor. In fact, whenyou see, I' ve seen children
(06:09):
with newborn heart disease and you cansee the nightgown that goes up and goes
to her, as well as thenightgown goes up a little bit so fast
that it has the pulsations, sothat you have to have a lot of
consideration definitely of what is usually knownas rhythmis. Maybe when I go to
(06:30):
the doctor, what they' retold is that they' re allymies,
but even though they might tell themthat' s either you' re evil
or I don' t know ifit' s happened to you at the
foundation. If I' ve heardit so much that I haven' t.
You or he' s like asnitch. Oh, but everybody does
put on a little tip and yousee it as natural as that you shouldn
' t have a follow- upto that there' s something in that
(06:56):
heart, that you have to keepan eye on it, that you have
to take care of it. Thenwe have something that is vital, that
is cold hands and feet or thatare in a violet tone. Normally violet
tones are children with heart disease whohave sncianosis, cyanotic heart disease. This
may be a possible unmistakable sign ofheart disease. In fact, my mom,
(07:21):
the way she realized I had aheart disease, was because of the
fact that I had purple lips allthe time. So you have to have
a lot to look out for.This content is not intended to replace diagnostic
(07:44):
advice or professional medical treatment. Theopinions expressed in this podcast are not those
of Hearts United Love, but thoseof the hosts and guests and they intend
to generate a debate on issues relatedto congenital heart disease. Then, the
(08:07):
number five martens is the one youwere mentioning, which is the rapid palpitations,
the so- called arrhythmias, wherethe heart is unstable and fast and
many times you can see the movementof the chest. That' s what
I meant when you saw the nightgown, because it looks like flying. Then
(08:28):
we have jaundice, which is yellowishskin and eyes, which is also known.
You told me it was to havethe bilirubin high. You can'
t see the billion Roeder and howJohn' s song is war. Exactly
this symptom. Sometimes it can belinked to a congenital cartepathy. But before
(08:52):
I take this as a point reference. It is best to go to your
doctor asking to bring confidence to clarifythe doubts. We also have in number
seven excessive sweating. For no reason, When a child or baby is born
with congenital heart disease, his heartworks twice as hard, as you were
(09:16):
saying before, that a normal heart, which causes this to sweat excessively.
Something happened to you when I wasa kid. You know that normally,
when we have a baby, we' re in the lump that we have
everything there. The Spaniards wear it, because I carry the clothes more because
they sweated than because the social Waroudand I left that they got very dirty.
(09:41):
But if it was a g methat was constantly bubbling, because I
was always sweaty, so I hadto be looking for the way I accommodated
it, where I didn' teven accept it at this age yet.
Obviously, the effort is constantly there. Sometimes I came to the White School
of Salt that I had voted forthe sublet for all the exercise I had
(10:03):
done in the day. Yeah,well, here' s number eight,
which is more sleep than usual.That happens to all the cardiopaths as the
heart works, twice as much,the body gets tired of pumping and that
makes the child not want to sleepto not do activity and then it happens
(10:24):
and it is happening also to theadults, as told them good days bad
days. But if you see thatyour baby sleeps more than normal and doesn
' t want to play, youdon' t want to do anything.
That may be a symptom that theremay be some heart disease. In number
nine we have sounds or snoring whenwe sleep. Watch your child sleep is
(10:48):
very important. If you make anysound or snoring, it is best to
take it to the pediatrician to ruleout any breathing conditions that may be related
to a heart disease. Say good- bye. In number ten, very
important, very little development, verylittle weight. Many children do not assimilate
(11:13):
food for the same reason that thebody and heart have to work. The
dual warriors of the heart is apresentation of Hearth United glob and is part
of Hogg Podcast Network, Hock CD, Trea hug And are the acronyms of
(11:35):
Horthy Night de glob Horge a ighTed Love is a non- profit organization
dedicated to providing resources to the communityof congenital heart disease to uplift, empower
and enrich the lives of members ofour community. If you want to access
free resources from the congenital heart defectscommunity, visit our Heard defect com genetal
(12:01):
website for information about hospitals treating children, summer camps for survivors, and much
more. What I was going totell you is that it is very important
(12:24):
to establish those who listen to usthat these are signs that it is not
necessarily that they have them means thatthey have a quantity of congerita heart disease,
but they are the ones that mostdistinguish that they may be linked to
tending the condition always very important tothe doctor. They may even make an
(12:46):
appointment with the pediatric cardiologist to gowars ad folds and have the worry.
We are saying that, for example, if roncat is because he has heart
disease, but swears possible signs thatthere is something to verify, that we
need to investigate and that we needto take care of. The most important
(13:07):
thing is that I believe, Marta, that when you have a baby you
more or less, even if you' re a mother, first time there
' s something that tells you it' s okay, but then the most
important thing is that you know howto listen to what you mean by that
(13:30):
signal they' re sending you,because, for example, if you'
re a child, that if you' re laughing a little baby, if
you' re laughing and there's a lot of moms that can be
desperate, it' s best totake it to the doctor to rule out
any delay. You don' tthink it' s clear. That'
s why you' re looking forwardto specifying to them what it is,
(13:50):
for example, right now you're just giving birth and it' s
just a coincidence that your Baby wasborn with listericia and they had it in
therapy, in phototherapy, which isn' t that you' re listening to
the program and you' re sayingups wait for me to be distracted.
It has a power of the heart, but it gave it then there are
(14:16):
still signs check to see if theneverything flows, because, for example,
my eldest son your mystery and thankGod, does not have a heart condition.
However, since if you do,you did have an interest, but
I don' t need phototherapy.So the important thing is to establish that
yes We need you to be awareof these signs, but it doesn'
(14:39):
t necessarily mean that they have acongenital heart condition. Welcome back, before
the break we were talking about themost common signs is to identify a possible
congenital calicapatia. Now we' regoing to talk generally about staged and erotic
and erotic notions. For example,kinotic thaleopathy may include a quartering or internal,
be it silver in short for normalepste, hypoplastic left heart syndrome,
(15:03):
total venous lot drainage tralogy, exposureof large trunk- alterial vessels. The
cyano refers to a bluish color onthe skin and the bucose membranes and that
' s where my marta heart diseasecomes from. I was born with a
(15:26):
tricuspid atherecia and done, until today' s sun I still have a cyanosis
that is good, very strong andas I did not have the operations that
I had to do for the samefact that I am living in Venezuela.
Now I have another disease, whichis a heart disease called iced menger syndrome,
which we will be talking about inother programs. And well, and
(15:52):
it' s more than all aboutcyanosis. On the other hand, we
also have the nythic cravings, whichare those formed by stenotics, which is
the lung flow. It is onlydivided into aortic fourths, stenosis to aortics
and pulmonary stenosis from left to right, which is an increased lung flow,
which is divided into interventricular communication,interpentricular communication, atioventricular canal and persistent alterious
(16:18):
ductus. In fact, here weare mentioning above all, but there are
more candiopathy and the two comments thatalready have a cyanotic, but my son,
for example, has three and arebetween cereotics and gothic dosia. He
(16:38):
said it has a double outlet ofright venticles, it has a transposition of
the large vessels that towards it iserotic and has an otricular channel that is
do cyanotic. And many times we' re going to find ourselves through different
diagnoses where the stones have combidac conditions. And in this case, because many
(17:03):
times we have to take special carewith that, because that' s where
we have to look for medical surgery, fir trees and proper cardiac follow-
up. Yeah, I' malso seeing here that in the noncias oticas
is the SHONT and I also havea shunt I don' t know if
I will also have a gothic notion. It really is so interesting and embraces
(17:26):
as much as one. You reallyhave to learn so many things, but
I think this program is going tohelp us understand what congenital heart disease is.
In fact, seeing when he wasborn, I was very surprised,
true that they were not first mothersand I am more of this special education.
(17:48):
But the subject of the conditions ofthe heart, to me it was
not known, you had no typeof information and to me, as a
mother, it was amazing life thatalways say that the tabeno of the heart
of your baby is the size ofhis fleas and when they told me all
the conditions that they already had,for me it was impressive to think like
(18:11):
such a small heart, although yousound cruel what I am going to say,
but in reality it could be sodefective. Yeah, I could have
so many things. I was sayinghow it' s possible that something so
small can have your arteries looked atyou, this could have the lack of
valves or age. It' ssomething that' s very hard to work
(18:33):
with. And even though we're not here for you to be afraid
of, on the contrary, we' re here for you to educate and
how do we sometimes pass what parentsdo when we first find out and fight
for that bite. Yeah, that' s the worst. So you don
' t know what' s goingon. You don' t understand.
(18:56):
I' ve had a lot ofmoms tell me yes, my son has
a congenital heart defect, well,but what kind not a congenital heart defect,
because it' s that they don' t actually have, I mean,
there' s still a lot leftfor the education of congenital heart disease.
And one of the things we weretalking about is the number one birth
(19:19):
defect and we' re in themonth of the birth defect, that is,
that people learn from what' sin this that' s so serious
and that' s really happening allover the world. I was reading that
up to one thirty- five millionpeople are born with heart disease. We,
(19:44):
in the upcoming programs and we willbe a little more abundant on each
of them so that they can identifywhich type of heart disease is suffering with
special guests and special doctors can writeto our Facebook page than the heart clock.
(20:04):
Also if you would like to tellus some anecdotes or tell us something
about your condition or what you havelived with your children throughout this process,
it would not also be of greathelp to all people who hear us many
times the dd it some kind oftestimony from other people who are going through
(20:26):
the same thing that we make theroad simpler. I can say that here,
being with Bethlehem, I can seethe simplest way in the future of
my son summons the language. Sohere we conclude this episode of step genre.
Thank you for listening to us today. If you have enjoyed this episode,
please it is a review of ourpodcast is our webside part you ist
(20:48):
glub order as never give bolver setis. Thank you again for joining us this
week. We hope you have beeninspired and empowered to become an advocate of
the community of congenital heart defects withyour hosts, Belene Blanton, jenefer Inguina
(21:11):
and Marta Montero. It is producedmonthly and can be heard wherever you have
access to Pardcast. The new episodesare broadcast on the second Saturday of the month
We are going to be a differentprogram in which the premos of heart disease,
but more pleasantly welcome to this program, which is one of those of
the heart fighting against congenital heart disease. I am a fine raquel Montero,
one of the manftrionas of this programand I am the mother of a warrior
(00:22):
of heart. He accompanies me onthis ben show in Blan another from the
heart. We appreciate your sympathy.Incredibly, we' re starting a tough
third season. This second season wasthere in health situations. Atmospheric and personal.
They made it a little difficult toachieve the continuity of our podcast on
(00:43):
a monthly basis, as we usedto. However, we come with great
faith to return with much important andinteresting information, as well as special guests
on this occasion. In our firstsegment we will discuss how to identify the
characteristics or mouths of a child withcongenital cadiova. Already in the second segment
we will explain in a general wayabout the songeanotic and non- seonotic Callicacies.
(01:07):
They' re worth if we're going to talk about statistics that
we need to know about the issueof congenital thaliopathy. Well, Marta,
first of all, welcome to seasonthree. We' re super happy.
Let' s hope everything goes welland well, let' s do a
different program in which we' lltalk about heart disease but more pleasantly and
(01:32):
we' ll talk and we'll have a lot of guests. Congenital
heart disease is the most common birthdefect in the world, although the statistics
are different in all countries, butyou knew that eighty to one hundred and
twenty out of ten zero children inthe world are born with a heart defect.
As you know, I have afoundation which is for Venezuelan children with
(01:56):
heart disease and, unfortunately more than90 percent of these children do not receive
this surgery the first year of life, as in all countries that are of
low resource. It is for thisreason that alertness of the different symptoms is
so important. We will abound alittle more than the ten most prominent signs,
(02:21):
to which we must be super alert. Ten signs that you' re
going to have a heart defect.Look at your marta get irritated easily they
cry from anything. For no reason, that happened to your son, because
look really. Ian wasn' tthat he would get into it easily,
(02:43):
but like us, we want tothink that he makes a typical baby when
it was his turn to sleep,because they did give him what we could.
We can know as tantrums, butas every child, as every child
with carleopathy. It' s quitedifferent, because at least I can'
t make you such that Guian gottangled up easily. But there may be
the possibility that it' s oneof the signs that, as you wish,
(03:07):
we have to be on the lookout. If we see that our little
babies of anything, they tend tofeel like you need to, like,
cry, because we can' tunderstand where it' s coming from right
now. We also have what isthe difficulty to eat and excessive fatigue.
Perhaps it makes it difficult for youto breastfeed or take your bottle or teapot,
(03:32):
as we say. Maybe your owngranny will tell you that boy is
a payment that does nothing. Butin reality, that can be a vital
symptom that there can be heart diseaseand when they are already older, you
can notice that it fits easily evenin the performance of simple activities. I
(03:54):
remember, when I was growing upthat I didn' t do physical exercise
and I never understood why. Butit was that, I mean, I
was moving and everything was feeling bad, bad, bad, and still at
this age I have good days andI have bad days. I have days
that I have total energy and itcan happen the next day that what I
(04:17):
want is to sleep all day,then you have to be aware of that
for the children. In that caseit is. I can tell you that
they would identify her or not atfirst instance, because, like when I
have over my arm, I stillknow that he has a condition. It
was quick that he was born,that they took him to the room.
(04:38):
I did vote and I couldn't pile it up because it didn'
t get the grip. But whenI gave her the bottle, I also
thought, like that granny, thatshe had had a lazy little boy that
was why she was so busy.And now that I know a little bit
more about the subject, I canidentify those that prime the day, where
(05:00):
I saw him, where I sawhim, that he had all the sleeping
time that he wanted the bottle thatwas, because we were close to Heraldo
that he had a heart disease withpeople and obviously, as he grew what
was thin, because like he was, he got tired. But now that
(05:20):
you' re big, you're in your teens and it' s
a little bit more weighty, asyou notice even more of the simple activities.
That tiredness, the one the personwould say, but he' s
tired. Well, yeah, he' s tired, because there' s
a heart that' s there workingdouble and so it' s song faster,
(05:44):
faster. The other thing is torealize it. If the palpitations are
accelerated to more than sixty, pulsationsapologize and breaths per minute. If you
see that your child is hyperventilating andhis breathing is difficult to communicate immediately with
a doctor. In fact, whenyou see, I' ve seen children
(06:09):
with newborn heart disease and you cansee the nightgown that goes up and goes
to her, as well as thenightgown goes up a little bit so fast
that it has the pulsations, sothat you have to have a lot of
consideration definitely of what is usually knownas rhythmis. Maybe when I go to
(06:30):
the doctor, what they' retold is that they' re allymies,
but even though they might tell themthat' s either you' re evil
or I don' t know ifit' s happened to you at the
foundation. If I' ve heardit so much that I haven' t.
You or he' s like asnitch. Oh, but everybody does
put on a little tip and yousee it as natural as that you shouldn
' t have a follow- upto that there' s something in that
(06:56):
heart, that you have to keepan eye on it, that you have
to take care of it. Thenwe have something that is vital, that
is cold hands and feet or thatare in a violet tone. Normally violet
tones are children with heart disease whohave sncianosis, cyanotic heart disease. This
may be a possible unmistakable sign ofheart disease. In fact, my mom,
(07:21):
the way she realized I had aheart disease, was because of the
fact that I had purple lips allthe time. So you have to have
a lot to look out for.This content is not intended to replace diagnostic
(07:44):
advice or professional medical treatment. Theopinions expressed in this podcast are not those
of Hearts United Love, but thoseof the hosts and guests and they intend
to generate a debate on issues relatedto congenital heart disease. Then, the
(08:07):
number five martens is the one youwere mentioning, which is the rapid palpitations,
the so- called arrhythmias, wherethe heart is unstable and fast and
many times you can see the movementof the chest. That' s what
I meant when you saw the nightgown, because it looks like flying. Then
(08:28):
we have jaundice, which is yellowishskin and eyes, which is also known.
You told me it was to havethe bilirubin high. You can'
t see the billion Roeder and howJohn' s song is war. Exactly
this symptom. Sometimes it can belinked to a congenital cartepathy. But before
(08:52):
I take this as a point reference. It is best to go to your
doctor asking to bring confidence to clarifythe doubts. We also have in number
seven excessive sweating. For no reason, When a child or baby is born
with congenital heart disease, his heartworks twice as hard, as you were
(09:16):
saying before, that a normal heart, which causes this to sweat excessively.
Something happened to you when I wasa kid. You know that normally,
when we have a baby, we' re in the lump that we have
everything there. The Spaniards wear it, because I carry the clothes more because
they sweated than because the social Waroudand I left that they got very dirty.
(09:41):
But if it was a g methat was constantly bubbling, because I
was always sweaty, so I hadto be looking for the way I accommodated
it, where I didn' teven accept it at this age yet.
Obviously, the effort is constantly there. Sometimes I came to the White School
of Salt that I had voted forthe sublet for all the exercise I had
(10:03):
done in the day. Yeah,well, here' s number eight,
which is more sleep than usual.That happens to all the cardiopaths as the
heart works, twice as much,the body gets tired of pumping and that
makes the child not want to sleepto not do activity and then it happens
(10:24):
and it is happening also to theadults, as told them good days bad
days. But if you see thatyour baby sleeps more than normal and doesn
' t want to play, youdon' t want to do anything.
That may be a symptom that theremay be some heart disease. In number
nine we have sounds or snoring whenwe sleep. Watch your child sleep is
(10:48):
very important. If you make anysound or snoring, it is best to
take it to the pediatrician to ruleout any breathing conditions that may be related
to a heart disease. Say good- bye. In number ten, very
important, very little development, verylittle weight. Many children do not assimilate
(11:13):
food for the same reason that thebody and heart have to work. The
dual warriors of the heart is apresentation of Hearth United glob and is part
of Hogg Podcast Network, Hock CD, Trea hug And are the acronyms of
(11:35):
Horthy Night de glob Horge a ighTed Love is a non- profit organization
dedicated to providing resources to the communityof congenital heart disease to uplift, empower
and enrich the lives of members ofour community. If you want to access
free resources from the congenital heart defectscommunity, visit our Heard defect com genetal
(12:01):
website for information about hospitals treating children, summer camps for survivors, and much
more. What I was going totell you is that it is very important
(12:24):
to establish those who listen to usthat these are signs that it is not
necessarily that they have them means thatthey have a quantity of congerita heart disease,
but they are the ones that mostdistinguish that they may be linked to
tending the condition always very important tothe doctor. They may even make an
(12:46):
appointment with the pediatric cardiologist to gowars ad folds and have the worry.
We are saying that, for example, if roncat is because he has heart
disease, but swears possible signs thatthere is something to verify, that we
need to investigate and that we needto take care of. The most important
(13:07):
thing is that I believe, Marta, that when you have a baby you
more or less, even if you' re a mother, first time there
' s something that tells you it' s okay, but then the most
important thing is that you know howto listen to what you mean by that
(13:30):
signal they' re sending you,because, for example, if you'
re a child, that if you' re laughing a little baby, if
you' re laughing and there's a lot of moms that can be
desperate, it' s best totake it to the doctor to rule out
any delay. You don' tthink it' s clear. That'
s why you' re looking forwardto specifying to them what it is,
(13:50):
for example, right now you're just giving birth and it' s
just a coincidence that your Baby wasborn with listericia and they had it in
therapy, in phototherapy, which isn' t that you' re listening to
the program and you' re sayingups wait for me to be distracted.
It has a power of the heart, but it gave it then there are
(14:16):
still signs check to see if theneverything flows, because, for example,
my eldest son your mystery and thankGod, does not have a heart condition.
However, since if you do,you did have an interest, but
I don' t need phototherapy.So the important thing is to establish that
yes We need you to be awareof these signs, but it doesn'
(14:39):
t necessarily mean that they have acongenital heart condition. Welcome back, before
the break we were talking about themost common signs is to identify a possible
congenital calicapatia. Now we' regoing to talk generally about staged and erotic
and erotic notions. For example,kinotic thaleopathy may include a quartering or internal,
be it silver in short for normalepste, hypoplastic left heart syndrome,
(15:03):
total venous lot drainage tralogy, exposureof large trunk- alterial vessels. The
cyano refers to a bluish color onthe skin and the bucose membranes and that
' s where my marta heart diseasecomes from. I was born with a
(15:26):
tricuspid atherecia and done, until today' s sun I still have a cyanosis
that is good, very strong andas I did not have the operations that
I had to do for the samefact that I am living in Venezuela.
Now I have another disease, whichis a heart disease called iced menger syndrome,
which we will be talking about inother programs. And well, and
(15:52):
it' s more than all aboutcyanosis. On the other hand, we
also have the nythic cravings, whichare those formed by stenotics, which is
the lung flow. It is onlydivided into aortic fourths, stenosis to aortics
and pulmonary stenosis from left to right, which is an increased lung flow,
which is divided into interventricular communication,interpentricular communication, atioventricular canal and persistent alterious
(16:18):
ductus. In fact, here weare mentioning above all, but there are
more candiopathy and the two comments thatalready have a cyanotic, but my son,
for example, has three and arebetween cereotics and gothic dosia. He
(16:38):
said it has a double outlet ofright venticles, it has a transposition of
the large vessels that towards it iserotic and has an otricular channel that is
do cyanotic. And many times we' re going to find ourselves through different
diagnoses where the stones have combidac conditions. And in this case, because many
(17:03):
times we have to take special carewith that, because that' s where
we have to look for medical surgery, fir trees and proper cardiac follow-
up. Yeah, I' malso seeing here that in the noncias oticas
is the SHONT and I also havea shunt I don' t know if
I will also have a gothic notion. It really is so interesting and embraces
(17:26):
as much as one. You reallyhave to learn so many things, but
I think this program is going tohelp us understand what congenital heart disease is.
In fact, seeing when he wasborn, I was very surprised,
true that they were not first mothersand I am more of this special education.
(17:48):
But the subject of the conditions ofthe heart, to me it was
not known, you had no typeof information and to me, as a
mother, it was amazing life thatalways say that the tabeno of the heart
of your baby is the size ofhis fleas and when they told me all
the conditions that they already had,for me it was impressive to think like
(18:11):
such a small heart, although yousound cruel what I am going to say,
but in reality it could be sodefective. Yeah, I could have
so many things. I was sayinghow it' s possible that something so
small can have your arteries looked atyou, this could have the lack of
valves or age. It' ssomething that' s very hard to work
(18:33):
with. And even though we're not here for you to be afraid
of, on the contrary, we' re here for you to educate and
how do we sometimes pass what parentsdo when we first find out and fight
for that bite. Yeah, that' s the worst. So you don
' t know what' s goingon. You don' t understand.
(18:56):
I' ve had a lot ofmoms tell me yes, my son has
a congenital heart defect, well,but what kind not a congenital heart defect,
because it' s that they don' t actually have, I mean,
there' s still a lot leftfor the education of congenital heart disease.
And one of the things we weretalking about is the number one birth
(19:19):
defect and we' re in themonth of the birth defect, that is,
that people learn from what' sin this that' s so serious
and that' s really happening allover the world. I was reading that
up to one thirty- five millionpeople are born with heart disease. We,
(19:44):
in the upcoming programs and we willbe a little more abundant on each
of them so that they can identifywhich type of heart disease is suffering with
special guests and special doctors can writeto our Facebook page than the heart clock.
(20:04):
Also if you would like to tellus some anecdotes or tell us something
about your condition or what you havelived with your children throughout this process,
it would not also be of greathelp to all people who hear us many
times the dd it some kind oftestimony from other people who are going through
(20:26):
the same thing that we make theroad simpler. I can say that here,
being with Bethlehem, I can seethe simplest way in the future of
my son summons the language. Sohere we conclude this episode of step genre.
Thank you for listening to us today. If you have enjoyed this episode,
please it is a review of ourpodcast is our webside part you ist
(20:48):
glub order as never give bolver setis. Thank you again for joining us this
week. We hope you have beeninspired and empowered to become an advocate of
the community of congenital heart defects withyour hosts, Belene Blanton, jenefer Inguina
(21:11):
and Marta Montero. It is producedmonthly and can be heard wherever you have
access to Pardcast. The new episodesare broadcast on the second Saturday of the month
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