April 30, 2023 • 29 mins
En este episodio estaremos hablando con el Dr. Eric Griffiths Norteamericano que trabaja en el hospital de la Universidad de Utah y es especialista en transplantes.
Conversaremos sobres las cardiopatias congênitas y sus vivencias como Doctor
Organizaciones mencionadas en nuestro programa:
Surgeons of Hope: https://surgeonsofhope.org/
https://fundacionestrellitadebelen.org
Enlaces a las páginas de podcasts y redes sociales de 'Guerreros Del Corazón':
Instagram: @guerrerosdelcorazon
Facebook: https://www.facebook.com/Guerreros-Del-Coraz%C3%B3n-106786128027732
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Conviértete en un seguidor de este podcast: https://www.spreaker.com/podcast/guerreros-del-corazon--4731556/support.
Conversaremos sobres las cardiopatias congênitas y sus vivencias como Doctor
Organizaciones mencionadas en nuestro programa:
Surgeons of Hope: https://surgeonsofhope.org/
https://fundacionestrellitadebelen.org
Enlaces a las páginas de podcasts y redes sociales de 'Guerreros Del Corazón':
Instagram: @guerrerosdelcorazon
Facebook: https://www.facebook.com/Guerreros-Del-Coraz%C3%B3n-106786128027732
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Conviértete en un seguidor de este podcast: https://www.spreaker.com/podcast/guerreros-del-corazon--4731556/support.
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:05):
Welcome to your heart warrior program,fighting congenital heart disease. I am Marta
raquel Montero, one of the hostsof this program, and I am also
the mother of a warrior of heart. I am accompanied in this interview by
Belén Blanco, another warrior with aheart. Today' s program is about
a pediatric cardiologist with knowledge of cardiothoracicsurgery located at Utah University Hospital. Our
(00:33):
guest is Dr. Eric Chriffix.We will begin in the first segment knowing
more about the doctor' s life, his university studies and his interest in
pediatric cardiology. In the second segmenthe will explain what his specialization is about.
In the third segment we will talkabout heart transplants and as a patient
(00:58):
from a low- income country,he can access, if possible, this
type of surgery. Dr. Griffitzwas born in the United States. The
cardiozoraxic pediatric surgeon and director of theDepartment of Heart and Ventricular Failure. He
attends the device implant program and alsoparticipates in the society program at the University
(01:19):
of Utah. As Director, hisspecialty is on researching the long- term
effects on palpitations of single ventricular patientsand how to improve the care of a
ventricular device and its results. Hespecializes in the recovery of myocardium and transplant.
(01:40):
Its specialty encompasses all aspects of congenitalheart disease, including complex neonatal repairs,
congenital heart disease in adults, andheart transplantation. Welcome to heart warriors,
Doctor Griffith, thank you very much. It is a pleasure to be
(02:00):
here and to be able to talka little bit about congenital heart defects and
a little more about heart transplantation.Thank you, Doctor, for your time,
for the effort you are making tocommunicate in Spanish and bring this information
to the community. You can tellus your full name, your specialty and
where your medical office is in Utah, for the benefit of the listeners of
(02:25):
our program who live in this country, because my name calls me El Tucker
Eric groffs I am a surrujan ofcongenital heart defects and I practice and my
office is located in the Hospital PrimerChallence, which is to the city of
(02:45):
Soulex City, in Newtah I havebeen there for almost nine years and I
was very happy to be here,because it is where I was born and
I lived disgusted for about twenty-five years, and now the opportunity to
return to Utah and be able topractice medicine Here you can tell us what
(03:07):
motivated you to study specifically pediatric cardiology. Well, I always wanted to be
a doctor and specifically a surgeon.I had as experiences with trauma and other
types of arising as a student incollege, but to get to medical school,
(03:30):
I met a surgeon who was attendingchurch with us and he was a
congenital heart surgeon and to practice alittle bit. He invited me to do
a research on the first summer betweenmedical school and with this I had the
(03:52):
opportunity to learn a little more aboutpediatric cariology and he took me to Kirofhin
and I had the opportunity to observesome operations and the first, which I
remembered was an arterial switch. Itis an operation for the defect of transposition
(04:15):
of the large arteries and it happenedin a baby about a week old and
was very small and the operation wasvery complex and I was with the shadow
when I saw this and I wasvery motivated to want to do this type
(04:40):
of operation and be able to takecare of these types of children, and
with this I set some goals tobecome this type of circane. He six
is called Jhan lan Berkey and sincethen we have been friends from time to
time I call him and practice onso life also on patients of this type
(05:02):
of operation. What would I dowith this and with this I have had
as a mentor to help me inthis field of medicine. Doctor. In
the same way as the universities whereyou have studied, you passed the experience
that told us now of what wasthe kilophane that I met this doctor,
(05:23):
because I started at the University ofBe Way You Prizen University and then I
went to Cornell, Cornell' sSchool of Medicine, and it was in
this place that I met this doctorand started with my goal of becoming a
surgeon of children' s hearts.I had to talk to many people to
(05:46):
learn how to become this type ofsurgeon, because when I turned four years
of medical school, I had tofulfill five years of general surgery training.
Me and I could go to Texas, Dallas to study an alge hospital called
park An hust, but it's a hospital well known for its trauma
(06:11):
service. During this time of fiveyears, I decided that I wanted to
be about two years of research andthis doctor, darkard Bury, helped me
to get a research position with thetouch of the nest in Boston willen Hruspel
(06:33):
and in Boston with Hurvert and thereI began to study as the mechanisms biology
of cariopathy, hypotrophia, of heartdeath. And after two years we moved
back to Texas and completed general surgerytraining. And then I passed RCGID University
(06:59):
which at this time was a well- known program for training heart surgeons from
heart surgery. I spent two yearsthere and then went back to Boston to
do congenital heart surgery training. Ithink it was fifteen months I had the
(07:24):
opportunity to get back to my stateof Utah, where my family, my
wife' s family, was,and start participating in the program for operations
here thanks for telling of their experiencesat Doctor University Yes, this content is
not intended to replace diagnostic counseling orprofessional medical treatment. The opinions expressed in
(07:54):
this podcast are not those of HorgeUnite the Low, but those of the
guest hosts and they intend to generatea debate on issues related to congenital heart
disease. Welcome back I' ma white nativity scene. Before the break
(08:16):
we met about Dr. Graffence andher decision to be a pediatric cardiologist.
Now, Dr Griffi, you canexplain to us what your specialties consist of.
Here. Me and all my othersurgeons who work here at this hospital
(08:37):
treat all the conditions that affect congenitalcariopots. Ora treat patients, newborns of
about two days until they reach adultswith congenital adult cariopathy. Mostly we operate
(08:58):
at the earliest of our steps youfeel are less than a month. I
think almost forty percent of patients arenewborns and there are many defects. There
are holes inside the heart. Thereare problems with the structures of the heart
(09:18):
connections of a camera or glass andwe need to connect or reconnect to correct
these connections. In what we decideda few years ago that we needed a
specialist in heart transplantation and also inheart devices, which are bomb machines is
(09:39):
that it helps a person who hasheart death, who needs a transplant,
but is too sick to get thetime, crying the time waiting for a
new heart to arrive. Then weuse these bombs, these later to support,
(10:01):
help the patient, spend time waitingfor the new heart. And in
this I have focused on how toimprove and have more as wisdom experience and
treat these patients. But what wedo is we treat all the flaws.
We operate on all the defects herein the first turn toust but, according
(10:24):
to your experience, gual you understandwhat is the main thing to determine that
type of surgery. There is alot that we deliver on deciding when is
the best time to operate some operationsthan to arrive with us newborns who need
an operation to continue living for otherpeople. It is one thing that problems
(10:50):
come very slowly and can pass upto six eight months, up to one
year old, until they have thisage and others that can reach adolescence,
when they can be older, larger, until the time they need an operation.
We use other ways to identify defects, echocaryograms, amari computer tomography citiskents.
(11:20):
We use all this to determine andidentify exactly what the defect is and
what is needed to repair it.What would be the right follow- up,
for both a child and an adult. After you leave this surgery,
it would be going to the cardiologistat least every six months or what they
(11:41):
would be like. Yeah, usually, and it depends on how complicated it
is outside the operation. Some defectssince the patient saved hospital after about three
four days, then an appointment,one week later and a appointment with his
cardiologist at six months a year.Then, every year, most patients will
(12:09):
need a cariologist for the rest oftheir lives. There are certain flaws in
which we cannot achieve perfection. Thenthey' ll need how the epocadiograms are
every six months to see how they' re getting better. So it'
s time for another operation. Thenthe health road to recovery. Then it
(12:35):
can be very different between patients withdifferent defects. Very important to the parents
who are listening to us. Whatrecommendations I would give to parents for the
recovery of children or auitus. That' s a good question. That is,
although I always meet with parents.As you leave the hospital, the
(12:58):
child recovered from your cooperation and alreadyhas your son and is afraid to go
home because they have seen everything andis afraid about how my son will recover
and what I always tell them yes, if you are leaving the hospital,
your son, your child, yourdaughter is fine. Now what you need
(13:20):
are good parents who have a goodsense of caring for a child. Actually,
it' s usually not necessary.From time to time a child leaves
the hospital with oxygen or with atube of food and there is training to
help them take care of their child, but what they need is a father
who doesn' t let sick bracesguys come and kiss him and I do
(13:48):
things like that, parents who carefor their children good wisdom. It'
s actually what' s necessary.And always son cariologists, surgeons, we
tell them, we teach them whatare the things you should like to observe
to find is. Usually if yourchild has trouble running or if a small
(14:11):
child is not eating well, growingwell, or seems to be breathing with
a lot of work. These arethe things and I think every parent can
look at their child and say well, it' s not the same,
it' s not like the others, and that' s what we want
to know about parents. Yes,it' s very important. That is
(14:31):
why we, especially in what isthe Latin American Union, because congenital heart
defects throughout Latin America are not yetwell known. Parents sometimes don' t
even know when a child has aheart disease. Then they' ll be
(14:52):
operated on. We have experience asa child, of course, in my
country, Venezuela, that they operateand then they are no longer cured.
And it' s not like that, so it' s very difficult to
make them understand that the child isgoing to have a heart disease with hygenite
(15:13):
all his life. You could givehim that advice so they can hear him
from a doctor. Please, yes, of course that' s what I
want you to understand, because Iwant you to treat your son as formal
as possible. I don' twant parents to be so afraid that they
(15:33):
won' t let their child bea child to get involved. But also
the parents what I always tell themis that they need to go to the
doctor every year, every two years, because in time, conditions can get
worse for the child. Something likethat. So, with her appointments,
(15:58):
she looks at her son because he' s not growing up. This is
something important, that is not gainingweight, it is something important and although
you have had a good operation,you still have to observe it. And
see that he' s eating well, growing well, and with those things,
kids usually do well. But wehave found many times that parents did
(16:22):
not understand well, that they stillhad to watch their child and keep him
on appointments with medications to maintain goodhealth. They are the congenital caribatia that
has to be operated several times,or not all the time is so.
It' s like this all thetime. There are certain flaws in which
(16:45):
we have to put a conduit fromwhich you right up to the pomonals.
And this conduit won' t growin time, so, after about two,
three, ten years, it'll grow the child. This conduit
isn' t going to be ofsufficient size, so you have to replace
(17:07):
it with a new operation. Andthis is a kind of operation that a
defect that for about four or fiveor six years is going to be okay,
but to keep growing is going tobe too big. That' s
why it' s duct size.There are not many geonotic, non-
(17:27):
scientotic operations that will need operations duringlife thanks to very important warriors of the
heart. It is a presentation ofHearth Unite de glob and is part of
hog parkest Network Holts de la treahug and are the acronyms of Horthy Nite
(17:51):
de lo Horge Night The Love isa non- profit organization dedicated to providing
resources to the community of congenital diseasesto raise, empower and enrich the lives
of members of our community. Ifyou want to access free resources belonging to
the community of congenital heart defects.Visit our website with Genetal Heart Defects com
(18:19):
for information about hospitals treating children,summer camps for survivors and much more before
the break. We were talking aboutDr. Graffice in relation to caldiothoracic surgery.
(18:42):
Doctor, you can explain to usthe difference between cardiothoracic surgery and a
heart transplant. Yeah, sure.The first thing is that reality, a
transplant of your heart is a cardiothrasicsurgery, but it' s a kind
(19:03):
of operation we do. It's usually for patients people who don'
t have another treatment, there's no other operation, it' s
a drag- or- art operation, if there' s no other way
to proceed. Patients are usually veryill. They can' t gain weight,
(19:27):
they can' t go out andthey don' t have much energy
to do things. And from timeto time they' re in the hospital
with a duo breathing, on thefan, medications to increase pressure, the
rhythm of hearts, so they canbe very very difficult patients. And the
(19:47):
other operations are difficult and the patientscan be very sick. But the rule
is that transplants are very sick.S as a person of scarce resources,
for example, who do not livein the United States, can get a
(20:08):
heart transplant. It is true thatthey first choose a person who has left
here and then for a person whois from another country. How they can
ask for that kind of operation thatin many parts of South America does not
exist. It' s actually aglobal problem. In resource- rich countries,
(20:33):
transplantation is a part of a wholeheart program of heart disease. We
have to get to our show here. We don' t really ask what
country it' s from, butwe have to have that guruter there'
(20:56):
s a way to pay. Thereare for the citizens of our country.
We have to pay. So thisis the problem where the program and the
severance business are always fighting about howwe' re going to support these patients
people out of the country. It' s a tough thing to do.
It is very difficult to think aboutthis, because, as doctors, if
(21:21):
we want to cure, we wantto fight against any defects of problems.
But there' s not a goodway with very low resources to get here
and be able to have a transplantand there are few programs outside of Mexico,
(21:48):
in Central America that have programs likevery large heart transplants, so it
' s kind of difficult. Wecan get people who want to pay for
everything with cash, but there arefew who can like pay$ 300,
000 Steffiese is expensive. So,yeah, it' s hard. Whether
(22:11):
it is mandatory for the person whoneeds this type of surgery to do what
is humanly possible to get the costof it and it has to be paid
in full. Or there' ssome kind of payment plan, they make
some sort of arrangement. And forus, on our show we talked about
(22:32):
this. Actually, there' susually a budget of what we want to
cost, and this we send tothe patient, his family, and they
can decide if they can afford topay for it. We usually ask for
half when we start and then paythe rest to meet and usually need as
(22:59):
a way to know that you canafford this person. In fact, there
has not been a heart transplant onour program with a person outside the country
who has simply paid with cash.There are other programs in the country that
have received people outside the United States, but we have not. We are
(23:23):
available to receive them. But thehospital' s business department wants to talk
about their goals. Yes, it' s clear what his function is in
the sorgian of FOLPS and what hecan' t say about it is that
(23:45):
I met a pediatric choreologist who workedwith them and he asked me to assist
them with a visit to Mexico andwe went to Mexico' s Enfintil Hospital,
Federico Gómez, and we had theopportunity to observe the program and I
(24:06):
had the opportunity to participate in anoperation and see how things are done.
There we talk about things like beinga good team, because in caring for
these children, I do need manypeople with a lot of training, choreologists,
interviewers, anesthesiologists, surgeons and thereare many decisions that are sometimes very
(24:33):
difficult. And being able to bea good team, we understand that each
person has their own and being ableto listen and understand it is very important
to have good results in the sanenessof these children. And we talked about
these things to visit other programs andmy role with the sergenth hopees is to
(25:00):
be a surgeon, to be likea coach, a helper and also to
be able to attend operations. I' m gonna have to recruit him there.
For the stars of Bethlehem. Yeah, sure serves me a lot of
good. Doctor. Before I askyou the last question, first I wanted
(25:22):
to tell you that thank you somuch for coming to our program and also
tell you that your Spanish is perfect, very good, Oh, no,
I don' t believe you,but thank you. Yeah, not from
me, he means very well.It' s meant to be, sir.
Yes, gentlemen, better than usin english. Yeah, compared to
(25:45):
my Spanish English, it' sspectacular. I' ve practiced a lot,
there' s a lot of soapoperas now in jail at night and
it' s my wife Averley mbut I' m gonna learn good.
That' s fine with me.I' m really very grateful for coming
(26:06):
to our show. Your question iswhat your personal and professional goals are in
the long term. All right.That' s a good question, because
now I have enough time. Ilike to do a lot of things outside
of the hospital, outside the Crofin. I am very happy and very happy
(26:30):
on the spot in first challenge.I really like what I do with transplants.
What I always think and what encouragesme in the morning is thinking about
how I' m going to improveour program, how I' m going
to treat it. The noso islung how I' m going to improve
(26:52):
the program of how I' mgoing to improve patients who only have a
vintricle, but maybe with a repair. We can go out with two always
thinking about these things and I wantto keep improving our program. And that
' s actually my, this iswhat I want to achieve professionally perfect.
(27:18):
We see that you are going tosucceed, of course you are. We
know that it will succeed, becausethis effort to learn in Spanish also puts
it. Everything you do will definitelyaccomplish, yes, of course again,
Dr Grife, thank you so muchfor helping us in this program by telling
us about your specialties, what youdo, what you want to continue doing
(27:41):
for the scalyopathy community. We knowthat there is a lot of Latino community
in the United States that perhaps dohave the economic possibility of, if you
need this type of surgery, beingable to get to where you are located,
where the program is located, sowe hope that this program you make
(28:03):
yourself known, Let the program bemade known and keep listening to the Latin
Community and continue to help our childrenwith congenital caliopathy. All right, of
course I have and I have enjoyedbeing here with you and putting a part
on this topic and also speaking inSpanish and talking to you here we are
for you to practice IgA yes cras. This is how this episode of heart
(28:26):
warriors ends. Thank you for listeningto us today. If you have enjoyed
this episode, please leave a reviewof our podcast on our websidew hearst United
glob Org and remember friends never giveup. Thank you again for joining us
(28:48):
this week. We hope you havebeen inspired and empowered to become an advocate
of the community of congenital heart candiopathy, with your hosts Welene, Blancton,
Jenefer Inguina and Marta Montero. Itis produced monthly and can be heard wherever
you have access to podcast. Thenew episodes are broadcast on the second Saturday
(29:15):
of the month
Welcome to your heart warrior program,fighting congenital heart disease. I am Marta
raquel Montero, one of the hostsof this program, and I am also
the mother of a warrior of heart. I am accompanied in this interview by
Belén Blanco, another warrior with aheart. Today' s program is about
a pediatric cardiologist with knowledge of cardiothoracicsurgery located at Utah University Hospital. Our
(00:33):
guest is Dr. Eric Chriffix.We will begin in the first segment knowing
more about the doctor' s life, his university studies and his interest in
pediatric cardiology. In the second segmenthe will explain what his specialization is about.
In the third segment we will talkabout heart transplants and as a patient
(00:58):
from a low- income country,he can access, if possible, this
type of surgery. Dr. Griffitzwas born in the United States. The
cardiozoraxic pediatric surgeon and director of theDepartment of Heart and Ventricular Failure. He
attends the device implant program and alsoparticipates in the society program at the University
(01:19):
of Utah. As Director, hisspecialty is on researching the long- term
effects on palpitations of single ventricular patientsand how to improve the care of a
ventricular device and its results. Hespecializes in the recovery of myocardium and transplant.
(01:40):
Its specialty encompasses all aspects of congenitalheart disease, including complex neonatal repairs,
congenital heart disease in adults, andheart transplantation. Welcome to heart warriors,
Doctor Griffith, thank you very much. It is a pleasure to be
(02:00):
here and to be able to talka little bit about congenital heart defects and
a little more about heart transplantation.Thank you, Doctor, for your time,
for the effort you are making tocommunicate in Spanish and bring this information
to the community. You can tellus your full name, your specialty and
where your medical office is in Utah, for the benefit of the listeners of
(02:25):
our program who live in this country, because my name calls me El Tucker
Eric groffs I am a surrujan ofcongenital heart defects and I practice and my
office is located in the Hospital PrimerChallence, which is to the city of
(02:45):
Soulex City, in Newtah I havebeen there for almost nine years and I
was very happy to be here,because it is where I was born and
I lived disgusted for about twenty-five years, and now the opportunity to
return to Utah and be able topractice medicine Here you can tell us what
(03:07):
motivated you to study specifically pediatric cardiology. Well, I always wanted to be
a doctor and specifically a surgeon.I had as experiences with trauma and other
types of arising as a student incollege, but to get to medical school,
(03:30):
I met a surgeon who was attendingchurch with us and he was a
congenital heart surgeon and to practice alittle bit. He invited me to do
a research on the first summer betweenmedical school and with this I had the
(03:52):
opportunity to learn a little more aboutpediatric cariology and he took me to Kirofhin
and I had the opportunity to observesome operations and the first, which I
remembered was an arterial switch. Itis an operation for the defect of transposition
(04:15):
of the large arteries and it happenedin a baby about a week old and
was very small and the operation wasvery complex and I was with the shadow
when I saw this and I wasvery motivated to want to do this type
(04:40):
of operation and be able to takecare of these types of children, and
with this I set some goals tobecome this type of circane. He six
is called Jhan lan Berkey and sincethen we have been friends from time to
time I call him and practice onso life also on patients of this type
(05:02):
of operation. What would I dowith this and with this I have had
as a mentor to help me inthis field of medicine. Doctor. In
the same way as the universities whereyou have studied, you passed the experience
that told us now of what wasthe kilophane that I met this doctor,
(05:23):
because I started at the University ofBe Way You Prizen University and then I
went to Cornell, Cornell' sSchool of Medicine, and it was in
this place that I met this doctorand started with my goal of becoming a
surgeon of children' s hearts.I had to talk to many people to
(05:46):
learn how to become this type ofsurgeon, because when I turned four years
of medical school, I had tofulfill five years of general surgery training.
Me and I could go to Texas, Dallas to study an alge hospital called
park An hust, but it's a hospital well known for its trauma
(06:11):
service. During this time of fiveyears, I decided that I wanted to
be about two years of research andthis doctor, darkard Bury, helped me
to get a research position with thetouch of the nest in Boston willen Hruspel
(06:33):
and in Boston with Hurvert and thereI began to study as the mechanisms biology
of cariopathy, hypotrophia, of heartdeath. And after two years we moved
back to Texas and completed general surgerytraining. And then I passed RCGID University
(06:59):
which at this time was a well- known program for training heart surgeons from
heart surgery. I spent two yearsthere and then went back to Boston to
do congenital heart surgery training. Ithink it was fifteen months I had the
(07:24):
opportunity to get back to my stateof Utah, where my family, my
wife' s family, was,and start participating in the program for operations
here thanks for telling of their experiencesat Doctor University Yes, this content is
not intended to replace diagnostic counseling orprofessional medical treatment. The opinions expressed in
(07:54):
this podcast are not those of HorgeUnite the Low, but those of the
guest hosts and they intend to generatea debate on issues related to congenital heart
disease. Welcome back I' ma white nativity scene. Before the break
(08:16):
we met about Dr. Graffence andher decision to be a pediatric cardiologist.
Now, Dr Griffi, you canexplain to us what your specialties consist of.
Here. Me and all my othersurgeons who work here at this hospital
(08:37):
treat all the conditions that affect congenitalcariopots. Ora treat patients, newborns of
about two days until they reach adultswith congenital adult cariopathy. Mostly we operate
(08:58):
at the earliest of our steps youfeel are less than a month. I
think almost forty percent of patients arenewborns and there are many defects. There
are holes inside the heart. Thereare problems with the structures of the heart
(09:18):
connections of a camera or glass andwe need to connect or reconnect to correct
these connections. In what we decideda few years ago that we needed a
specialist in heart transplantation and also inheart devices, which are bomb machines is
(09:39):
that it helps a person who hasheart death, who needs a transplant,
but is too sick to get thetime, crying the time waiting for a
new heart to arrive. Then weuse these bombs, these later to support,
(10:01):
help the patient, spend time waitingfor the new heart. And in
this I have focused on how toimprove and have more as wisdom experience and
treat these patients. But what wedo is we treat all the flaws.
We operate on all the defects herein the first turn toust but, according
(10:24):
to your experience, gual you understandwhat is the main thing to determine that
type of surgery. There is alot that we deliver on deciding when is
the best time to operate some operationsthan to arrive with us newborns who need
an operation to continue living for otherpeople. It is one thing that problems
(10:50):
come very slowly and can pass upto six eight months, up to one
year old, until they have thisage and others that can reach adolescence,
when they can be older, larger, until the time they need an operation.
We use other ways to identify defects, echocaryograms, amari computer tomography citiskents.
(11:20):
We use all this to determine andidentify exactly what the defect is and
what is needed to repair it.What would be the right follow- up,
for both a child and an adult. After you leave this surgery,
it would be going to the cardiologistat least every six months or what they
(11:41):
would be like. Yeah, usually, and it depends on how complicated it
is outside the operation. Some defectssince the patient saved hospital after about three
four days, then an appointment,one week later and a appointment with his
cardiologist at six months a year.Then, every year, most patients will
(12:09):
need a cariologist for the rest oftheir lives. There are certain flaws in
which we cannot achieve perfection. Thenthey' ll need how the epocadiograms are
every six months to see how they' re getting better. So it'
s time for another operation. Thenthe health road to recovery. Then it
(12:35):
can be very different between patients withdifferent defects. Very important to the parents
who are listening to us. Whatrecommendations I would give to parents for the
recovery of children or auitus. That' s a good question. That is,
although I always meet with parents.As you leave the hospital, the
(12:58):
child recovered from your cooperation and alreadyhas your son and is afraid to go
home because they have seen everything andis afraid about how my son will recover
and what I always tell them yes, if you are leaving the hospital,
your son, your child, yourdaughter is fine. Now what you need
(13:20):
are good parents who have a goodsense of caring for a child. Actually,
it' s usually not necessary.From time to time a child leaves
the hospital with oxygen or with atube of food and there is training to
help them take care of their child, but what they need is a father
who doesn' t let sick bracesguys come and kiss him and I do
(13:48):
things like that, parents who carefor their children good wisdom. It'
s actually what' s necessary.And always son cariologists, surgeons, we
tell them, we teach them whatare the things you should like to observe
to find is. Usually if yourchild has trouble running or if a small
(14:11):
child is not eating well, growingwell, or seems to be breathing with
a lot of work. These arethe things and I think every parent can
look at their child and say well, it' s not the same,
it' s not like the others, and that' s what we want
to know about parents. Yes,it' s very important. That is
(14:31):
why we, especially in what isthe Latin American Union, because congenital heart
defects throughout Latin America are not yetwell known. Parents sometimes don' t
even know when a child has aheart disease. Then they' ll be
(14:52):
operated on. We have experience asa child, of course, in my
country, Venezuela, that they operateand then they are no longer cured.
And it' s not like that, so it' s very difficult to
make them understand that the child isgoing to have a heart disease with hygenite
(15:13):
all his life. You could givehim that advice so they can hear him
from a doctor. Please, yes, of course that' s what I
want you to understand, because Iwant you to treat your son as formal
as possible. I don' twant parents to be so afraid that they
(15:33):
won' t let their child bea child to get involved. But also
the parents what I always tell themis that they need to go to the
doctor every year, every two years, because in time, conditions can get
worse for the child. Something likethat. So, with her appointments,
(15:58):
she looks at her son because he' s not growing up. This is
something important, that is not gainingweight, it is something important and although
you have had a good operation,you still have to observe it. And
see that he' s eating well, growing well, and with those things,
kids usually do well. But wehave found many times that parents did
(16:22):
not understand well, that they stillhad to watch their child and keep him
on appointments with medications to maintain goodhealth. They are the congenital caribatia that
has to be operated several times,or not all the time is so.
It' s like this all thetime. There are certain flaws in which
(16:45):
we have to put a conduit fromwhich you right up to the pomonals.
And this conduit won' t growin time, so, after about two,
three, ten years, it'll grow the child. This conduit
isn' t going to be ofsufficient size, so you have to replace
(17:07):
it with a new operation. Andthis is a kind of operation that a
defect that for about four or fiveor six years is going to be okay,
but to keep growing is going tobe too big. That' s
why it' s duct size.There are not many geonotic, non-
(17:27):
scientotic operations that will need operations duringlife thanks to very important warriors of the
heart. It is a presentation ofHearth Unite de glob and is part of
hog parkest Network Holts de la treahug and are the acronyms of Horthy Nite
(17:51):
de lo Horge Night The Love isa non- profit organization dedicated to providing
resources to the community of congenital diseasesto raise, empower and enrich the lives
of members of our community. Ifyou want to access free resources belonging to
the community of congenital heart defects.Visit our website with Genetal Heart Defects com
(18:19):
for information about hospitals treating children,summer camps for survivors and much more before
the break. We were talking aboutDr. Graffice in relation to caldiothoracic surgery.
(18:42):
Doctor, you can explain to usthe difference between cardiothoracic surgery and a
heart transplant. Yeah, sure.The first thing is that reality, a
transplant of your heart is a cardiothrasicsurgery, but it' s a kind
(19:03):
of operation we do. It's usually for patients people who don'
t have another treatment, there's no other operation, it' s
a drag- or- art operation, if there' s no other way
to proceed. Patients are usually veryill. They can' t gain weight,
(19:27):
they can' t go out andthey don' t have much energy
to do things. And from timeto time they' re in the hospital
with a duo breathing, on thefan, medications to increase pressure, the
rhythm of hearts, so they canbe very very difficult patients. And the
(19:47):
other operations are difficult and the patientscan be very sick. But the rule
is that transplants are very sick.S as a person of scarce resources,
for example, who do not livein the United States, can get a
(20:08):
heart transplant. It is true thatthey first choose a person who has left
here and then for a person whois from another country. How they can
ask for that kind of operation thatin many parts of South America does not
exist. It' s actually aglobal problem. In resource- rich countries,
(20:33):
transplantation is a part of a wholeheart program of heart disease. We
have to get to our show here. We don' t really ask what
country it' s from, butwe have to have that guruter there'
(20:56):
s a way to pay. Thereare for the citizens of our country.
We have to pay. So thisis the problem where the program and the
severance business are always fighting about howwe' re going to support these patients
people out of the country. It' s a tough thing to do.
It is very difficult to think aboutthis, because, as doctors, if
(21:21):
we want to cure, we wantto fight against any defects of problems.
But there' s not a goodway with very low resources to get here
and be able to have a transplantand there are few programs outside of Mexico,
(21:48):
in Central America that have programs likevery large heart transplants, so it
' s kind of difficult. Wecan get people who want to pay for
everything with cash, but there arefew who can like pay$ 300,
000 Steffiese is expensive. So,yeah, it' s hard. Whether
(22:11):
it is mandatory for the person whoneeds this type of surgery to do what
is humanly possible to get the costof it and it has to be paid
in full. Or there' ssome kind of payment plan, they make
some sort of arrangement. And forus, on our show we talked about
(22:32):
this. Actually, there' susually a budget of what we want to
cost, and this we send tothe patient, his family, and they
can decide if they can afford topay for it. We usually ask for
half when we start and then paythe rest to meet and usually need as
(22:59):
a way to know that you canafford this person. In fact, there
has not been a heart transplant onour program with a person outside the country
who has simply paid with cash.There are other programs in the country that
have received people outside the United States, but we have not. We are
(23:23):
available to receive them. But thehospital' s business department wants to talk
about their goals. Yes, it' s clear what his function is in
the sorgian of FOLPS and what hecan' t say about it is that
(23:45):
I met a pediatric choreologist who workedwith them and he asked me to assist
them with a visit to Mexico andwe went to Mexico' s Enfintil Hospital,
Federico Gómez, and we had theopportunity to observe the program and I
(24:06):
had the opportunity to participate in anoperation and see how things are done.
There we talk about things like beinga good team, because in caring for
these children, I do need manypeople with a lot of training, choreologists,
interviewers, anesthesiologists, surgeons and thereare many decisions that are sometimes very
(24:33):
difficult. And being able to bea good team, we understand that each
person has their own and being ableto listen and understand it is very important
to have good results in the sanenessof these children. And we talked about
these things to visit other programs andmy role with the sergenth hopees is to
(25:00):
be a surgeon, to be likea coach, a helper and also to
be able to attend operations. I' m gonna have to recruit him there.
For the stars of Bethlehem. Yeah, sure serves me a lot of
good. Doctor. Before I askyou the last question, first I wanted
(25:22):
to tell you that thank you somuch for coming to our program and also
tell you that your Spanish is perfect, very good, Oh, no,
I don' t believe you,but thank you. Yeah, not from
me, he means very well.It' s meant to be, sir.
Yes, gentlemen, better than usin english. Yeah, compared to
(25:45):
my Spanish English, it' sspectacular. I' ve practiced a lot,
there' s a lot of soapoperas now in jail at night and
it' s my wife Averley mbut I' m gonna learn good.
That' s fine with me.I' m really very grateful for coming
(26:06):
to our show. Your question iswhat your personal and professional goals are in
the long term. All right.That' s a good question, because
now I have enough time. Ilike to do a lot of things outside
of the hospital, outside the Crofin. I am very happy and very happy
(26:30):
on the spot in first challenge.I really like what I do with transplants.
What I always think and what encouragesme in the morning is thinking about
how I' m going to improveour program, how I' m going
to treat it. The noso islung how I' m going to improve
(26:52):
the program of how I' mgoing to improve patients who only have a
vintricle, but maybe with a repair. We can go out with two always
thinking about these things and I wantto keep improving our program. And that
' s actually my, this iswhat I want to achieve professionally perfect.
(27:18):
We see that you are going tosucceed, of course you are. We
know that it will succeed, becausethis effort to learn in Spanish also puts
it. Everything you do will definitelyaccomplish, yes, of course again,
Dr Grife, thank you so muchfor helping us in this program by telling
us about your specialties, what youdo, what you want to continue doing
(27:41):
for the scalyopathy community. We knowthat there is a lot of Latino community
in the United States that perhaps dohave the economic possibility of, if you
need this type of surgery, beingable to get to where you are located,
where the program is located, sowe hope that this program you make
(28:03):
yourself known, Let the program bemade known and keep listening to the Latin
Community and continue to help our childrenwith congenital caliopathy. All right, of
course I have and I have enjoyedbeing here with you and putting a part
on this topic and also speaking inSpanish and talking to you here we are
for you to practice IgA yes cras. This is how this episode of heart
(28:26):
warriors ends. Thank you for listeningto us today. If you have enjoyed
this episode, please leave a reviewof our podcast on our websidew hearst United
glob Org and remember friends never giveup. Thank you again for joining us
(28:48):
this week. We hope you havebeen inspired and empowered to become an advocate
of the community of congenital heart candiopathy, with your hosts Welene, Blancton,
Jenefer Inguina and Marta Montero. Itis produced monthly and can be heard wherever
you have access to podcast. Thenew episodes are broadcast on the second Saturday
(29:15):
of the month
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