July 31, 2023 • 38 mins
En el programa de hoy, entrevistaremos a María Eugenia quintero coach neuro lingüística, que actualmente está información de psicología y R. B. Ella desarrolla un programa de acompañamiento a través del coach para familia neuro versas.
Fomenta la crianza respetuosa con conciencia resiliente.
Maria Eugenia es una Venezolana con 2 hijos y uno de ellos tiene Autismo y ella nos guiara como lidiar con un niño que aparte de la cardiopatía tenga autismo. Ella nos hablará de como entrenador neuro lingüístico puede ayudar a tantas personas como deportistas, niños y empresarios.
Son prácticas a través de técnicas y herramientas para poder superara las adversidades de la vida. Lo mas importante es que nos guía como tratar a un niño con autismo y balancear con la cardiopatía.
Organizaciones mencionadas en nuestro programa:
https://fundacionestrellitadebelen.org
IG: @mariae.coachpnl
Enlaces a las páginas de podcasts y redes sociales de 'Guerreros Del Corazón':
Instagram: @guerrerosdelcorazon
Facebook: https://www.facebook.com/Guerreros-Del-Coraz%C3%B3n-106786128027732
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
website: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Conviértete en un seguidor de este podcast: https://www.spreaker.com/podcast/guerreros-del-corazon--4731556/support.
Fomenta la crianza respetuosa con conciencia resiliente.
Maria Eugenia es una Venezolana con 2 hijos y uno de ellos tiene Autismo y ella nos guiara como lidiar con un niño que aparte de la cardiopatía tenga autismo. Ella nos hablará de como entrenador neuro lingüístico puede ayudar a tantas personas como deportistas, niños y empresarios.
Son prácticas a través de técnicas y herramientas para poder superara las adversidades de la vida. Lo mas importante es que nos guía como tratar a un niño con autismo y balancear con la cardiopatía.
Organizaciones mencionadas en nuestro programa:
https://fundacionestrellitadebelen.org
IG: @mariae.coachpnl
Enlaces a las páginas de podcasts y redes sociales de 'Guerreros Del Corazón':
Instagram: @guerrerosdelcorazon
Facebook: https://www.facebook.com/Guerreros-Del-Coraz%C3%B3n-106786128027732
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
website: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Conviértete en un seguidor de este podcast: https://www.spreaker.com/podcast/guerreros-del-corazon--4731556/support.
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:05):
Welcome to your heart warrior program,fighting congenital heart disease. I am Marta
Raquel Montero, one of the hostsof this program, and I am also
the mother of a warrior of heart. I am accompanied in this interview by
Belén Bland, another guénera de corazón. In today' s program we will
interview Maria Eugenia, quinted puach neurolinguistics, who is currently in formation of big
(00:30):
RPT psychology. She develops an accompanyingprogram through coaching and mentoring for neurodiverse family.
It encourages respectful parenting with Resilism consciousness. María Eugenia is Venezuelan with two
wonderful children and one of them suffersfrom autism that in this program she will
guide us how to deal with thecondition and how it affects children with caliopathy.
(00:53):
Congenitals, welcome to warriors of theheart. Mario Eugenia, thank you,
thank you for the invitation, Marta, Good Bethlehem. It is a
pleasure for me to be here withyou and it is a pleasure for us
to have a professional that you talkabout everything a little bit about what we
normally talk about palliopathy and this situationthat sometimes presents you with children with caliopathy,
(01:15):
which are the additional conditions. Thankyou, Maria, in your biography
we met that you' re aneurolinguistic coach. You can tell us that
it took you to fulfill this clearvocation Look from the year two thousand and
fourteen. Like you said, I' m Venezuelan. I set up with
an organization called SEMAE. I startedmy preparation because at that time I was
(01:38):
having problems in my marriage with mycurrent husband and I was kind of in
the process of divorce, but itreally was to learn how to lead the
marriage better. And it really servedme a lot, because I' m
already fifteen years married today, thankGod. And you can briefly explain to
us what it is to be alinguistic corsch nouro. Of course, look
at the coaching. It is aprofessional accompaniment thing that, in fact,
(02:04):
car means coach and there are inmany aspects of the life of entrepreneurial sport
and specifically with the neurolinguistic, whichis neurolinguistic programming, it accompanies the clients,
because here we do not talk abouttherapy, but are practical through techniques
and tools so that they can haveor promote their skills with more strength and
(02:30):
be able to overcome the adversities presentedin life, for example, as simple
as a phobia, like the fearof being able to speak in cameras or
to speak in public, some emotionalsituation, some goal that they want to
pose. We accompany them in thatprocess with these techniques and tools so that
they can achieve it and we workthrough the neuro that is the brain process
(02:53):
of the mind, and the linguistics, which is through the word of language.
So these two processes merge into amagical connection so that we can work
those processes that we bring from asmall age and be able to reprogram the
mind so that we can have betterresults in that longed for? I wish
(03:15):
that we want to reach that potentialthat we want to achieve and the combination
of the word, I imagine thatis what makes parents with children with autism
seek this type of treatment, accompanyingtherapy do notice that I, with all
this that I have been able tolearn through theory and practice, because I
(03:37):
took it into my life with theexperience of Minena. He is four and
a half years old and was diagnosedalmost three years ago, and I began
to employ many of these techniques andtools that I learned in coaching with my
family and with him, because oneof the most frequent skills and this I
lived first in my personal experience andalso I live with the families that I
(03:59):
have the honor, the honor ofbeing able to accompany in this process of
neurodiversity. And it is the abilityof patience. For us, being able
to be patient is not from nightto morning. It' s not like
I' m gonna be patient.Yes, and everything became easy to be
patient with through air- linguistic programming. We rely on techniques that enable us
(04:25):
to strengthen or empower that ability.Yeah. In fact, Bethlehem, recently
lived the experience at a seminar wegave here in Jacksonville, such as the
circle of excellence. I want tostrengthen my ability of patience and I work
through incorporating through me my thinking,my linguistics and my mind, elements that
(04:46):
help me strengthen patience and put itinto practice. I don' t compare
this to a natural medicine. Youconsume it, and eventually your whole system
will get stronger. So, asyou repeat it, these techniques strengthen your
ability to cope. And one ofthe most repetitive I' m going to
(05:10):
say ninety- nine percent that familiesseek to have is patience. I'
m definitely not going to have tolook for more information. I' m
on your order. Thank you verymuch. You can explain to us what
it means to be a rebel ifyou turn around. That' s a
certification I' m currently making.The acronym is because it is register Behebor
Dennistion, which is technical of therecorded conduct. This certification works here in
(05:36):
the United States through a science ofconduct called AB, which is the analysis
of applied behavior. And this isused for children with conditions, especially children
with autism. What is done there, you work the behavior of the children
(05:57):
to take them to that state ofthis one that achieve good common among the
family, to tell you, towork the crying, to work the kicks,
to work even the anxiety, theBCB. We work hand in hand
with bc BI, which is theconduct analyst. They, together with us,
(06:18):
make an evaluation, especially the analyst, we do a review of the
behavior of the child and the analystdoes a work scheme and we, like
AIRBT, employ that work structure,which is through therapies and we help parents,
or schools or any environment in whichthe child develops so that they can
(06:40):
employ them with them and have amore acceptable behavior, because the behaviors are
neither good nor bad. They aresimply conducts that must be worked out and
brought to a State where they canlive together in a peaceful way and where
good coexistence can be achieved. Thatseveral studies have actually emerged on these topics,
this theme of autism throughout our lives, especially because they are increasingly and
(07:04):
the prevalence of child with the spectrum. But there is a recent study that
there is the association between congeeni heartdisease and disorders within the autistic spectrum,
and this study has some results thatcould be useful for parents to advise them.
(07:27):
But that' s the way I' m going to tell you,
because I know the definition is broader, but you can explain to us as
simple as you can what it is. Autism looks. Autism is a condition
of neurodevelopment with evolutionary character. Whyof neurodevelopment, because formation all human beings
carry a brain development according to theage that we are fulfilling. Yes,
(07:56):
the baby is developing step by step. Comes the crawl comes the walk,
is employed. Language is like atypical regular development. Our children with autism
are developing in a different way andshow perhaps sometimes perhaps late in language,
deficient in the subject of communication,social awareness. So the condition that the
(08:24):
neurodevelopment is different and why it iswith evolutionary character, because when these children
are employed an adequate diet and,moreover, an accompaniment with therapies that are
behavioral therapy, language therapy and DVtherapy, which is what I mentioned to
(08:45):
you, which is the analysis ofapplied behavior or behavioral therapy, they manage
to evolve to the point that,as the DSM has diagnosed it, which
is the diagnostic and statistical manual ofmental disorders on three levels, being the
level three that requires very substantial support, that we could classify it as the
(09:11):
most severe, the level two thatrequires substantial support and the level one that
requires support. So this evolution mayoccur that a child who is diagnosed with
a level three can move to alevel two or one that has been diagnosed
at level two can move to alevel one. That is why it has
(09:33):
an evolutionary character. And here Iinsist very much that this evolution also depends
on collaboration, the acceptance of society, because it is the environment, it
is the world that surrounds them.And if we are more compassionate and if
we accept more this condition that isnot a disease today, it is a
(09:54):
condition for all life, they canevolve better and be able to integrate into
society. That' s right.I am a teacher of autism and special
education. So what you' reexplaining we see in the classroom. Obviously,
with the acceptance of all their parents' lathes and the ability they have
(10:18):
to provide them with the therapies andprovide them with all the services, it
is what makes it more possible.The mother I was talking about before the
show started, she' s inthe situation right now. In the place
where she lives she is of lowcomic resources and she does not have those
facilities and where she is seeing thesituation that is facing her pregnancy or,
(10:43):
her child, because in school shehas no longer been able to mate,
she has not been able to havean adequate education, simply because economically she
cannot receive the therapies. For example, I speak to her, not because
in Puerto Rico students have a personwho is with them, a service assistant,
and then she is given therapy.She has this therapy and she tells
(11:05):
me all those things are wonderful,but I don' t know what it
is wow because I, where Ilive or I don' t have access
to these things. And marta notice, it is regrettable, because well,
I am Venezuelan and the situation inmy country is not a secret for anyone
and many children who are there donot have either. Parents, they don
' t have access to the therapiesI have here in the United States.
(11:28):
With mateo. However, I alwaystell you that there is one if you
ask me today that what has beenthe secret for me to carry out this
situation with my jo that at firstwas not easy. And there those moments,
it' s not like a carouselbut a roller coaster. I'
d say no more and sometimes itgoes faster, sometimes it goes slower,
(11:48):
but what was the secret? Well, first of all, my faith in
God who is very great the collaborationof my family and the fact that I
was prepared, that I was preparednot only for studying psychology and preparing myself
as a coach or perhaps for certificationas a registered conduct technician, but now.
(12:11):
We have something that is access tosocial networks and, while it is
true, there is a lot ofinformation that is important that you can use
and employ it on your children andwhen we dedicate ourselves well, I don
' t know what the situation is, because sometimes it is that they work
too and they can' t delicaceit full time. But with them,
not only with children with autism,but with any child who is in development
(12:31):
stage and therefore greatly encourages respectful parenting. They need to be given more quality
time than amount of time. ThenI always read whatever it is. I
can' t orient with something Iknow that some little thing, some technique
or something I' ve learned canhelp you and, above all, work
(12:52):
with us first, and that's where I insist. If you don
' t work as a mom,as a dad, have patience with your
son, because besides, they're super perceptive, then they feel how
stressed you are, that you wantto hide it. And if you don
' t have that peace of mind, that patience, of being able to
encourage it, more and more,it' s harder to be able to
(13:13):
help your child, It' sharder for you to go out on the
street and have someone have an attitudeor be not so compassionate and you have
to have patience even for that andmove on, because he' s your
son and he' s your commitmentand he' s your life teacher and
it' s your responsibility. It' s yours. This content is not
(13:33):
intended to replace diagnostic advice or professionalmedical treatment. The opinions expressed in this
podcast are not those of Horge UnitedLove, but those of the hosts and
guests and they intend to generate adebate on issues related to congenital heart disease.
(14:00):
Welcome back I' m white Bethlehem. Before the break we knew a
little bit about the programs that Mariaimplements. What is autism and how it
develops. You can explain to thoseof us who know what it means to
be in the clear spectrum. Ofcourse, directly I don' t know,
(14:24):
why I don' t have it. There are no adults who have
shown us what it means to haveautism. In fact, I am going
to tell you an anecdote from afriend who is a therapist, already dedicated
to autism and tells me that theevaluations she has made to her patients,
even already children and adolescents forgiveness,have told her that things as simple as
(14:48):
they are handled between the criteria orthe characteristics her or hyposensitivity to stimuli,
that is, to what is visual, to what is auditory, to what
I detect, to what is tastefuland to what is smelly. And she
tells me that one of her patientsonce told her that it was so difficult
(15:09):
for him to eat certain foods becauseamong her hypersensitivity she felt that she ate
glass. Imagine that? Imagine that, and it was just that I was
eating cereal and I couldn' tstand it because of the child' s
tasteful hypersensitivity. So I, amongwhat I have seen of my son and
(15:33):
children of the children of the familiesI have attended and in the criterion that
well, right now, we willcome to talk about it that maintains the
sm five is that his appreciation ofthe world is totally different and for a
child, for example, a personwith autism. I' m going to
talk about people because that comes inall adults, children and the elderly,
(16:00):
who suddenly have a hearing hypersensitivity.If we can hear the ability to hear
several sounds at once when we areon the street, it overwhelms them and
stuns them. If we hear themon a level five, they can'
t hear on a level one hundredimagine what that means or maybe a tactile
hyposensibility that can even burn because theydon' t feel the heat of a
(16:23):
pot. So his appreciation of theworld is totally different. Me with my
son, he has auditory hypersensitivity,it' s one of his characteristics and
I always go with the charge ofhis hearing aids, because I try to
make him have a sound block thatcan alter him. So, once they
(16:44):
have that information perceived in excess,they know it' s not the same
as going to the highway to presentmiles an hour than going to one hundred
and twenty. Then they receive thatstimulus at one hundred twenty or three hundred
miles an hour. There will immediatelybe an internal impact that will produce an
alteration. Then there comes the screamsand we meet people on the street who,
(17:11):
until they live it, may notunderstand it. But as we become
more aware of this condition, weseek to make people more compassionate in understanding
that it cannot be with it,that they are in a mall with the
mom and are having a kick,not a misbehave, but that they are
having a reaction to a super beforereceiving a lot of encouragement that he cannot
(17:37):
control, and that is what helpswith the therapies that they have that self
- control. So what is anautistic person, a person who has a
condition, a perception of the worlddifferent from us. Another thing I'
d like to know how much autismis. It has some statistics or something
(18:00):
that you can tell us yes clear, of course, notice that in the
cdes, which is the center fordisease control and prevention, they manage right
now in the twenty- three thousandthat one in thirty- six people under
twenty- one is being diagnosed withautism. And what strikes me very much
(18:22):
is that, as the comparison tothe statistics before this one, which was
from last year, was one inforty- four, imagine how increased it
is currently one in thirty- six. So, this condition is becoming more
common in our population every day.Impressive, impressive, really. Another thing,
(18:45):
aspergel is a kind of autism lookat how interesting what you just said
in the previous manual, I thinkit was in the four was diagnosed with
asper heat yes, but currently andI' m going to read it literally
says in DSM five, which isthe manual of statisticians and diagnoses of mental
(19:07):
disorders that I told them at thebeginning, says that it is well established
autistic disorder, rough disorder or generalizeddisorder to unspecified development. They should be
diagnosed with autistic spectrum disorder. Sobefore what was called aperherm is autism,
(19:29):
that is, now, according tothe DSM criterion five, it is diagnosed
with autism. Of course, thereare people who were diagnosed with the previous
DSM and have a diagnosis of Asperger, but today, at the present time,
year two thousand twenty- three,in fact, right now the most
recent two thousand twenty- two thatthe DSM five. T r they do
not diagnose on level one that remindthem what I told them is the level
(19:55):
that simply requires support. It isnot in the levelvel so Severo that they
require less help us, because inverjet it has certain characteristics as of more
independence. He doesn' t needthat much help support. If artificer socialization
has now been noticed that God noticingit by oportive levels, exact. I
(20:19):
know that you, thank God,your son, don' t have any
heart disease, but how, what, advice, what would you tell moms
how they can handle this diagnosis alongwith heart disease. They remember that heart
disease is something that the mother hasto be on the lookout for all the
(20:44):
time and she' s going tohave this other diagnosis. How do you
think it would be the best wayfor them to deal with that? Well,
the first thing I have to sayto all the mothers that you'
re listening to us is that,for my part, my great respect,
my honor and my admiration for all, because yes my son. So far,
(21:07):
well, he' s been diagnosedwith autism and level two and he
' s shown a surprising evolution.But imagine already with a comorbidity as we
call it in autism, which isthe heart disease that I have known through
IT a lot about it. Theymust always be accompanied by a specialist.
As much as for heart disease theyneed the cardiologist. For autism, they
(21:32):
need the psychologist or they need theneurologist, because the same is a condition
that, even though it is nota disease, needs to be evaluated every
once in a while. And,of course, key, key, key,
and this I say and I insiston, food, proper nutrition,
therapies like therapies to accompany us withbehavioral therapies, language therapies, those three
(21:57):
therapies. Manera goes hand in handalong with feeding, because what is done.
With this and especially with behavioral therapy, children are given a tool so
that they can have self- controlof their emotions, that is, when
they have that appreciation of some elementof the world around them, as I
(22:18):
told them, of the visual orkinesthetic hearing part, they can identify it
and immediately my son, in fact, I tell them. There is a
breathing technique that applies that is oilin the flowers and blows the candles.
That' s what he learned atthe BIEY therapy clinic, so it'
s already when he' s collapsedbecause of some situation, like, for
(22:44):
example, he dropped a drop ofwater on his flannel. That' s
a good one at once gets upset, so he immediately, when he sees
that situation he' s having ahard time handling it, he starts smelling
in the flowers. They' replalavera, they run into the flora.
So that' s a tool thathe has through breathing, that works it
in a neurolinguistic way, in someway that makes him control that emotion,
(23:11):
that gets him out of his peaceof mind. Then be able to design
through professional accompaniments. I, wellsee you know that I am always on
the order for your children' sparents and if they are of low resources,
because, of course that goes thereas a kind of donation through what
(23:32):
I can help them, accompany themwith all this that does, that does
work, because they sometimes are notaware of what they are doing. But
if they don' t have properaccompaniment, they' re not like we
have a filter. You know,imagine you' re going down the street
(23:52):
and suddenly someone' s going througha car. No, of course at
the moment it causes you to tellher everything. And if we go with
someone to the known side that we' re meeting, we can control ourselves
and maybe just say it mentally,but not say it out of the mouth.
Yeah, exactly, they don't have that filter. They go
(24:14):
with everything and vent and kick andweep. That' s how it'
s done in the middle of themall or in the church, because they
don' t have that filter.But through these therapies and the feeding that
helped us a lot I have alreadyseen live results, they can work those
emotions and be more calm. They' re quiet in them. Come on,
(24:37):
Dad, the world around us.We also achieve the common good,
as we say in the right ofthe heart. It is a presentation of
heavyey Night Tetlau and is part ofJack cast Nerwork Hot Trea hug and are
the acronyms of HORGEI Night of LoveUnited Love is a non- profit organization
(25:03):
dedicated to providing resources to the congenitalheart disease community to raise, empower and
enrich the lives of members of ourcommunity. If you want to access free
resources from the congenital heart defects community, visit our double or doblo de Blo
doto web site with genetal hear defexdot com for information about hospitals treating children
(25:30):
summer camps for survivors and much morebefore the break, we were talking about
how to deal with the Commission ofautism in a child with cardiodiopathy and in
terms of the difficulty of learning socializationof children Juan Faliopathy. It is also
(25:53):
noted that almost twenty- seven percentof parents with children from the age of
six years old state that, apartfrom being diagnosed with caliopathy, they are
also diagnosed with learning or socialization disorder, among which autism stands out, so
we were already talking about sensory problemsand socialization problems that you can tell parents
that they have not only to facethe news of paleopathy, but that,
(26:17):
when the years go by, theyrealize that they also have to face learning
problems, that they have to faceautism, that is, you have to
face an additional condition that may putthe child' s schooling at risk,
or put their sharing with society atrisk. Yeah, definitely. In fact,
(26:41):
I share here the way of confessionthat one of the situations in which
I lived the mourning, this mourningof autism, when it receives good not
even when receiving agnostic, before receivingthe diagnosis, because as mothers and fathers,
we have something, especially women,something that is called intuition of mother
and autism has certain signs that makeyou like to see here there is something
(27:07):
strange, like the lack of visualcontact, like the lack of being able
to socialize, to have those socialabilities and to be able to integrate into
society. And it' s veryworrying, because the fear that activates you
as mom and dad and I understandeveryone, this one is going to happen
(27:29):
to me the day I' mgone and I think that' s one
of the biggest things to work on. That fear, that fear and that
is why the topic of therapies isso important, of being able to prepare
them for this world, because yes, tomorrow we will not be, they
will continue to live. So preparingthem with proper information is that it is
(27:51):
very important that they report with peoplewho have already lived autism, with professional
is that they have a record,that they have experience. It is enough
that they can help them if theydo not know them, because through Benen,
through me, on my social networks, I share some professionals in whom
(28:12):
I believe and know that they workin this, because if there are other
people who work it in a moremonetary way than as a mission or purpose
of life, then what can Isay to them that yes, that that
fear will exist, that fear maynot go away, but that they will
carry it by hand, in away, with strength, with optimism and
(28:33):
here I activate many two words thatare for me as the key to overcoming
any adversity. And this one thatI have had in my life, which
has been autism, which is tobe conscious, that is, awake,
is the child that has, isthe mission of life that corresponded to you
and I continued forward and resilient.See it positively, the why, because
(28:55):
there' s always something good behindthings that we don' t seem to
know. Then fill up Mom andDad from that fortress. He said Mom
' s love and Dad' slove to take this great teacher by the
hand, because they' re teachersof life. They are people who come
to this world of love because theydon' t know evil, they don
' t have command in their heart, they just love to give and that,
(29:19):
that' s the big one.Focus on that love, that consciousness,
that resilience and move forward. Whata river Yes, it is true,
yes, Mari, there is acure for autism. No, and
I' m telling you that,not in a very closed way, because
(29:41):
I also lived it because I wasfrustrated when I watched programs and at that
moment I was confused that there waspure for autism. There' s this
treatment, not this one. Autismis a lifelong condition of neurodevelopment. That
if you have a proper diet withyour children, that if you use therapies,
they can make their lives. Andthere are examples in the lives of
(30:06):
people who have triumphed, like LeonelMessi, like Eond Mush, who is
the creator of Tesla, who haveachieved success in their stratosphere and have family.
So it looks like, like,it doesn' t mean, if
it' s cured, look,that' s her vivid. They learn
to live with autism, as Iimagine it happens with genetic heart disease,
(30:29):
they learn to live with it andthey move on with their lives. But
he has no cure. No cure, well, it' s better to
tell the truth. I don't know. It' s very important
that parents know the reality. Yes, absolutely, absolutely, and I believe
in God and believe in miracles.Yes, but in the human part,
(30:52):
of the human being, of theearth, of the flesh, it is
not cured. I mean, thescientific response so far has been that it
doesn' t heal. It's for life. Although it doesn'
t sound so familiar anymore, butyou can' t talk about this guilt
that the vaccines had in relation todiagnosis, look, that' s a
huge myth. Are there many theories? Are there many theories? It is
(31:15):
said that yes, because there arevaccines that, because of their genetic formation
of the laboratory, have many heavymetals and that causes the neurological system to
alter that produces certain sequelae. However, I tell you what I have seen
(31:36):
in my son. He' sgot his shots and I can' t
tell you. There are other momswho do say. Well, my kids
vaccinated him and I started seeing thechanges immediately. It was the vaccine I
make my child in my experience Ihave not experienced it through vaccines. I
can' t tell you they vaccinatedhim and he got worse. I already
feel that autism in it, thecondition we have carried it rather in an
(31:59):
evolutionary, positive way, yes,resilient. Then no, no. I
can' t tell you whether vaccineshurt or not. Vaccines don' t
hurt, because I come back andI repeat it' s a myth that
there are theories that say yes,others say no, but, according to
my experience, because I can't give you an answer to do.
We know that you have your childMatthew who is a beauty and he has
(32:22):
autism and, as you say,the most wonderful learning that you have ever
had and I hope that all motherswill feel that way with all their children.
If you cannot tell what your dayto day is like with him,
of course this is clear from thefact that today Matthew many of the people
who know him, including you,see that he has moments that are very
(32:47):
quiet, because in the twenty-four hours of the day. I could
say he' s a very quietkid, but he' s got his
moments, he' s got hismoments of crisis and many times I'
m well, I don' tgo out because I have him like I
have that skill here in the house, although I work a lot, as
I tell you, my team,my family team. It is I who
(33:09):
have the most patience, because Ihave developed it more from what I know
and have studied more and have preparedand understood it more. But one day,
for example, he went to school. He' s been going to
school since he was three because it' s the two- year game.
Here, in the United States thereis a program called Steps Laws, and
they give you the help through therapist, who comes even to your home.
(33:30):
And from there I started preparing withthe therapists. Then, at the age
of three he enters another program calledChile Fine, which is with the county,
and entered a regular school, butwith a special program called AIPI and
currently graduated from preschool and is alreadygoing to kindergarten. From preakay, it
(33:52):
' s going to kindergarten. Thereare times when I kill gets up,
especially when one has a good sleepgets up upset and good. I have
to do several hands, maneuvers withhim, to activate myself with my circle
of excellence of patience first, andto be able to help him to maintain
his own calm or be active,his calm and work, his emotion,
(34:12):
be self- regulate. But ingeneral terms, I can tell you it
' s been a learning experience.Why, because you have to learn how
Mom to accept a lot of things, even from me, from here I
break everything. But it' snot easy when you, why it'
s the duel in autism, becauseyou expect a child designed in your mind
and comes different and at the momentyou don' t understand and feel a
(34:37):
huge guilt. You' re lookingfor a lot of answers and I understand
all the dads and mom more wholive it, but eventually you realize he
' s a great teacher. Whyit makes you accept it as it is,
and that projects you to accept yourselfand the humanity around you, because
the world is people, and tobe able to activate that love in a
congruent way, to be able tounderstand society more. It is I ask
(35:00):
for it written because I was oneof those that I had difficulty understanding many
things and now with him I understandthem better and they bring me many satisfactions
for him. Imagine that for methe fact that he the first time Mom
told me, that he did itat two years and three months, for
me was the first miracle, Mommy, because I had practiced it like seven
(35:21):
months that already my other son atten months already told me Mom, he
told me at two years and threemonths that he could look me in the
eyes today with the depth that madehim see me in the soul. That
for me is a daily miracle thatbefore, for me a look was so
simple. Now, for me ithas enormous value. So, day to
(35:42):
day with mateo definitely Bethlehem is alearning. Loaded with love, loaded with
patience and loaded with much, muchhumanity and also with the mothers of the
children of the heart. That's right, Amiga, that' s
right, Mary. You have someoff, some Instagram, some place where
(36:04):
I can contact you, some dadwho needs advice or help or some word
of encouragement that you can provide,some lual where they can communicate with you.
Yeah, I run my instagram pagea lot, which is Maria and
coachl, but you can still getme my name, like let me see
(36:30):
it here, Maria and quintero.S on Instagram, also on Instagram,
Yes, on Instagram, I haveFacebook too, but I mostly manage on
Instagram. And there I have MilianTreed where you can get my Whatsack number
information that I have saved a lotof things that I share. Mary,
we thank you as a lot ofyour time for all the things you'
(36:52):
ve told us, both personally andprofessionally. We are very happy to have
finished our program and we hope thateverything we learn here with you will also
be of benefit to all parent actsof the Latino community that listens to us.
Thank you for coming to Hodia onthe show, Thanks to You Marta,
(37:12):
Thank you Bellen Igualanna who helps us. God bless me and good what
you need. I' m totallyin order because I know what it'
s like to live. This isn' t easy, but I' m
telling you, you can. Youcan and you can. You, mom,
dad carer, you can and Icould You' re gonna be able
to, too. Thus concludes thisepisode of that heart. Thank you for
(37:35):
listening to us today. If youhave enjoyed this episode, please leave a
review of our podcast on our WhitsideWww. Arts and Olite the glog Ort
and remember friends never give up.Thank you again for joining us this week.
We hope that you have been inspiredand empowered to become a defender of
(38:00):
the community of congenital heart defects,with your hosts Welene, blancton jenefer Inguina
and Marta Montero. It is producedmonthly and can be heard wherever you have
access to Parkast. The new episodesare broadcast on the second Saturday of the month
Welcome to your heart warrior program,fighting congenital heart disease. I am Marta
Raquel Montero, one of the hostsof this program, and I am also
the mother of a warrior of heart. I am accompanied in this interview by
Belén Bland, another guénera de corazón. In today' s program we will
interview Maria Eugenia, quinted puach neurolinguistics, who is currently in formation of big
(00:30):
RPT psychology. She develops an accompanyingprogram through coaching and mentoring for neurodiverse family.
It encourages respectful parenting with Resilism consciousness. María Eugenia is Venezuelan with two
wonderful children and one of them suffersfrom autism that in this program she will
guide us how to deal with thecondition and how it affects children with caliopathy.
(00:53):
Congenitals, welcome to warriors of theheart. Mario Eugenia, thank you,
thank you for the invitation, Marta, Good Bethlehem. It is a
pleasure for me to be here withyou and it is a pleasure for us
to have a professional that you talkabout everything a little bit about what we
normally talk about palliopathy and this situationthat sometimes presents you with children with caliopathy,
(01:15):
which are the additional conditions. Thankyou, Maria, in your biography
we met that you' re aneurolinguistic coach. You can tell us that
it took you to fulfill this clearvocation Look from the year two thousand and
fourteen. Like you said, I' m Venezuelan. I set up with
an organization called SEMAE. I startedmy preparation because at that time I was
(01:38):
having problems in my marriage with mycurrent husband and I was kind of in
the process of divorce, but itreally was to learn how to lead the
marriage better. And it really servedme a lot, because I' m
already fifteen years married today, thankGod. And you can briefly explain to
us what it is to be alinguistic corsch nouro. Of course, look
at the coaching. It is aprofessional accompaniment thing that, in fact,
(02:04):
car means coach and there are inmany aspects of the life of entrepreneurial sport
and specifically with the neurolinguistic, whichis neurolinguistic programming, it accompanies the clients,
because here we do not talk abouttherapy, but are practical through techniques
and tools so that they can haveor promote their skills with more strength and
(02:30):
be able to overcome the adversities presentedin life, for example, as simple
as a phobia, like the fearof being able to speak in cameras or
to speak in public, some emotionalsituation, some goal that they want to
pose. We accompany them in thatprocess with these techniques and tools so that
they can achieve it and we workthrough the neuro that is the brain process
(02:53):
of the mind, and the linguistics, which is through the word of language.
So these two processes merge into amagical connection so that we can work
those processes that we bring from asmall age and be able to reprogram the
mind so that we can have betterresults in that longed for? I wish
(03:15):
that we want to reach that potentialthat we want to achieve and the combination
of the word, I imagine thatis what makes parents with children with autism
seek this type of treatment, accompanyingtherapy do notice that I, with all
this that I have been able tolearn through theory and practice, because I
(03:37):
took it into my life with theexperience of Minena. He is four and
a half years old and was diagnosedalmost three years ago, and I began
to employ many of these techniques andtools that I learned in coaching with my
family and with him, because oneof the most frequent skills and this I
lived first in my personal experience andalso I live with the families that I
(03:59):
have the honor, the honor ofbeing able to accompany in this process of
neurodiversity. And it is the abilityof patience. For us, being able
to be patient is not from nightto morning. It' s not like
I' m gonna be patient.Yes, and everything became easy to be
patient with through air- linguistic programming. We rely on techniques that enable us
(04:25):
to strengthen or empower that ability.Yeah. In fact, Bethlehem, recently
lived the experience at a seminar wegave here in Jacksonville, such as the
circle of excellence. I want tostrengthen my ability of patience and I work
through incorporating through me my thinking,my linguistics and my mind, elements that
(04:46):
help me strengthen patience and put itinto practice. I don' t compare
this to a natural medicine. Youconsume it, and eventually your whole system
will get stronger. So, asyou repeat it, these techniques strengthen your
ability to cope. And one ofthe most repetitive I' m going to
(05:10):
say ninety- nine percent that familiesseek to have is patience. I'
m definitely not going to have tolook for more information. I' m
on your order. Thank you verymuch. You can explain to us what
it means to be a rebel ifyou turn around. That' s a
certification I' m currently making.The acronym is because it is register Behebor
Dennistion, which is technical of therecorded conduct. This certification works here in
(05:36):
the United States through a science ofconduct called AB, which is the analysis
of applied behavior. And this isused for children with conditions, especially children
with autism. What is done there, you work the behavior of the children
(05:57):
to take them to that state ofthis one that achieve good common among the
family, to tell you, towork the crying, to work the kicks,
to work even the anxiety, theBCB. We work hand in hand
with bc BI, which is theconduct analyst. They, together with us,
(06:18):
make an evaluation, especially the analyst, we do a review of the
behavior of the child and the analystdoes a work scheme and we, like
AIRBT, employ that work structure,which is through therapies and we help parents,
or schools or any environment in whichthe child develops so that they can
(06:40):
employ them with them and have amore acceptable behavior, because the behaviors are
neither good nor bad. They aresimply conducts that must be worked out and
brought to a State where they canlive together in a peaceful way and where
good coexistence can be achieved. Thatseveral studies have actually emerged on these topics,
this theme of autism throughout our lives, especially because they are increasingly and
(07:04):
the prevalence of child with the spectrum. But there is a recent study that
there is the association between congeeni heartdisease and disorders within the autistic spectrum,
and this study has some results thatcould be useful for parents to advise them.
(07:27):
But that' s the way I' m going to tell you,
because I know the definition is broader, but you can explain to us as
simple as you can what it is. Autism looks. Autism is a condition
of neurodevelopment with evolutionary character. Whyof neurodevelopment, because formation all human beings
carry a brain development according to theage that we are fulfilling. Yes,
(07:56):
the baby is developing step by step. Comes the crawl comes the walk,
is employed. Language is like atypical regular development. Our children with autism
are developing in a different way andshow perhaps sometimes perhaps late in language,
deficient in the subject of communication,social awareness. So the condition that the
(08:24):
neurodevelopment is different and why it iswith evolutionary character, because when these children
are employed an adequate diet and,moreover, an accompaniment with therapies that are
behavioral therapy, language therapy and DVtherapy, which is what I mentioned to
(08:45):
you, which is the analysis ofapplied behavior or behavioral therapy, they manage
to evolve to the point that,as the DSM has diagnosed it, which
is the diagnostic and statistical manual ofmental disorders on three levels, being the
level three that requires very substantial support, that we could classify it as the
(09:11):
most severe, the level two thatrequires substantial support and the level one that
requires support. So this evolution mayoccur that a child who is diagnosed with
a level three can move to alevel two or one that has been diagnosed
at level two can move to alevel one. That is why it has
(09:33):
an evolutionary character. And here Iinsist very much that this evolution also depends
on collaboration, the acceptance of society, because it is the environment, it
is the world that surrounds them.And if we are more compassionate and if
we accept more this condition that isnot a disease today, it is a
(09:54):
condition for all life, they canevolve better and be able to integrate into
society. That' s right.I am a teacher of autism and special
education. So what you' reexplaining we see in the classroom. Obviously,
with the acceptance of all their parents' lathes and the ability they have
(10:18):
to provide them with the therapies andprovide them with all the services, it
is what makes it more possible.The mother I was talking about before the
show started, she' s inthe situation right now. In the place
where she lives she is of lowcomic resources and she does not have those
facilities and where she is seeing thesituation that is facing her pregnancy or,
(10:43):
her child, because in school shehas no longer been able to mate,
she has not been able to havean adequate education, simply because economically she
cannot receive the therapies. For example, I speak to her, not because
in Puerto Rico students have a personwho is with them, a service assistant,
and then she is given therapy.She has this therapy and she tells
(11:05):
me all those things are wonderful,but I don' t know what it
is wow because I, where Ilive or I don' t have access
to these things. And marta notice, it is regrettable, because well,
I am Venezuelan and the situation inmy country is not a secret for anyone
and many children who are there donot have either. Parents, they don
' t have access to the therapiesI have here in the United States.
(11:28):
With mateo. However, I alwaystell you that there is one if you
ask me today that what has beenthe secret for me to carry out this
situation with my jo that at firstwas not easy. And there those moments,
it' s not like a carouselbut a roller coaster. I'
d say no more and sometimes itgoes faster, sometimes it goes slower,
(11:48):
but what was the secret? Well, first of all, my faith in
God who is very great the collaborationof my family and the fact that I
was prepared, that I was preparednot only for studying psychology and preparing myself
as a coach or perhaps for certificationas a registered conduct technician, but now.
(12:11):
We have something that is access tosocial networks and, while it is
true, there is a lot ofinformation that is important that you can use
and employ it on your children andwhen we dedicate ourselves well, I don
' t know what the situation is, because sometimes it is that they work
too and they can' t delicaceit full time. But with them,
not only with children with autism,but with any child who is in development
(12:31):
stage and therefore greatly encourages respectful parenting. They need to be given more quality
time than amount of time. ThenI always read whatever it is. I
can' t orient with something Iknow that some little thing, some technique
or something I' ve learned canhelp you and, above all, work
(12:52):
with us first, and that's where I insist. If you don
' t work as a mom,as a dad, have patience with your
son, because besides, they're super perceptive, then they feel how
stressed you are, that you wantto hide it. And if you don
' t have that peace of mind, that patience, of being able to
encourage it, more and more,it' s harder to be able to
(13:13):
help your child, It' sharder for you to go out on the
street and have someone have an attitudeor be not so compassionate and you have
to have patience even for that andmove on, because he' s your
son and he' s your commitmentand he' s your life teacher and
it' s your responsibility. It' s yours. This content is not
(13:33):
intended to replace diagnostic advice or professionalmedical treatment. The opinions expressed in this
podcast are not those of Horge UnitedLove, but those of the hosts and
guests and they intend to generate adebate on issues related to congenital heart disease.
(14:00):
Welcome back I' m white Bethlehem. Before the break we knew a
little bit about the programs that Mariaimplements. What is autism and how it
develops. You can explain to thoseof us who know what it means to
be in the clear spectrum. Ofcourse, directly I don' t know,
(14:24):
why I don' t have it. There are no adults who have
shown us what it means to haveautism. In fact, I am going
to tell you an anecdote from afriend who is a therapist, already dedicated
to autism and tells me that theevaluations she has made to her patients,
even already children and adolescents forgiveness,have told her that things as simple as
(14:48):
they are handled between the criteria orthe characteristics her or hyposensitivity to stimuli,
that is, to what is visual, to what is auditory, to what
I detect, to what is tastefuland to what is smelly. And she
tells me that one of her patientsonce told her that it was so difficult
(15:09):
for him to eat certain foods becauseamong her hypersensitivity she felt that she ate
glass. Imagine that? Imagine that, and it was just that I was
eating cereal and I couldn' tstand it because of the child' s
tasteful hypersensitivity. So I, amongwhat I have seen of my son and
(15:33):
children of the children of the familiesI have attended and in the criterion that
well, right now, we willcome to talk about it that maintains the
sm five is that his appreciation ofthe world is totally different and for a
child, for example, a personwith autism. I' m going to
talk about people because that comes inall adults, children and the elderly,
(16:00):
who suddenly have a hearing hypersensitivity.If we can hear the ability to hear
several sounds at once when we areon the street, it overwhelms them and
stuns them. If we hear themon a level five, they can'
t hear on a level one hundredimagine what that means or maybe a tactile
hyposensibility that can even burn because theydon' t feel the heat of a
(16:23):
pot. So his appreciation of theworld is totally different. Me with my
son, he has auditory hypersensitivity,it' s one of his characteristics and
I always go with the charge ofhis hearing aids, because I try to
make him have a sound block thatcan alter him. So, once they
(16:44):
have that information perceived in excess,they know it' s not the same
as going to the highway to presentmiles an hour than going to one hundred
and twenty. Then they receive thatstimulus at one hundred twenty or three hundred
miles an hour. There will immediatelybe an internal impact that will produce an
alteration. Then there comes the screamsand we meet people on the street who,
(17:11):
until they live it, may notunderstand it. But as we become
more aware of this condition, weseek to make people more compassionate in understanding
that it cannot be with it,that they are in a mall with the
mom and are having a kick,not a misbehave, but that they are
having a reaction to a super beforereceiving a lot of encouragement that he cannot
(17:37):
control, and that is what helpswith the therapies that they have that self
- control. So what is anautistic person, a person who has a
condition, a perception of the worlddifferent from us. Another thing I'
d like to know how much autismis. It has some statistics or something
(18:00):
that you can tell us yes clear, of course, notice that in the
cdes, which is the center fordisease control and prevention, they manage right
now in the twenty- three thousandthat one in thirty- six people under
twenty- one is being diagnosed withautism. And what strikes me very much
(18:22):
is that, as the comparison tothe statistics before this one, which was
from last year, was one inforty- four, imagine how increased it
is currently one in thirty- six. So, this condition is becoming more
common in our population every day.Impressive, impressive, really. Another thing,
(18:45):
aspergel is a kind of autism lookat how interesting what you just said
in the previous manual, I thinkit was in the four was diagnosed with
asper heat yes, but currently andI' m going to read it literally
says in DSM five, which isthe manual of statisticians and diagnoses of mental
(19:07):
disorders that I told them at thebeginning, says that it is well established
autistic disorder, rough disorder or generalizeddisorder to unspecified development. They should be
diagnosed with autistic spectrum disorder. Sobefore what was called aperherm is autism,
(19:29):
that is, now, according tothe DSM criterion five, it is diagnosed
with autism. Of course, thereare people who were diagnosed with the previous
DSM and have a diagnosis of Asperger, but today, at the present time,
year two thousand twenty- three,in fact, right now the most
recent two thousand twenty- two thatthe DSM five. T r they do
not diagnose on level one that remindthem what I told them is the level
(19:55):
that simply requires support. It isnot in the levelvel so Severo that they
require less help us, because inverjet it has certain characteristics as of more
independence. He doesn' t needthat much help support. If artificer socialization
has now been noticed that God noticingit by oportive levels, exact. I
(20:19):
know that you, thank God,your son, don' t have any
heart disease, but how, what, advice, what would you tell moms
how they can handle this diagnosis alongwith heart disease. They remember that heart
disease is something that the mother hasto be on the lookout for all the
(20:44):
time and she' s going tohave this other diagnosis. How do you
think it would be the best wayfor them to deal with that? Well,
the first thing I have to sayto all the mothers that you'
re listening to us is that,for my part, my great respect,
my honor and my admiration for all, because yes my son. So far,
(21:07):
well, he' s been diagnosedwith autism and level two and he
' s shown a surprising evolution.But imagine already with a comorbidity as we
call it in autism, which isthe heart disease that I have known through
IT a lot about it. Theymust always be accompanied by a specialist.
As much as for heart disease theyneed the cardiologist. For autism, they
(21:32):
need the psychologist or they need theneurologist, because the same is a condition
that, even though it is nota disease, needs to be evaluated every
once in a while. And,of course, key, key, key,
and this I say and I insiston, food, proper nutrition,
therapies like therapies to accompany us withbehavioral therapies, language therapies, those three
(21:57):
therapies. Manera goes hand in handalong with feeding, because what is done.
With this and especially with behavioral therapy, children are given a tool so
that they can have self- controlof their emotions, that is, when
they have that appreciation of some elementof the world around them, as I
(22:18):
told them, of the visual orkinesthetic hearing part, they can identify it
and immediately my son, in fact, I tell them. There is a
breathing technique that applies that is oilin the flowers and blows the candles.
That' s what he learned atthe BIEY therapy clinic, so it'
s already when he' s collapsedbecause of some situation, like, for
(22:44):
example, he dropped a drop ofwater on his flannel. That' s
a good one at once gets upset, so he immediately, when he sees
that situation he' s having ahard time handling it, he starts smelling
in the flowers. They' replalavera, they run into the flora.
So that' s a tool thathe has through breathing, that works it
in a neurolinguistic way, in someway that makes him control that emotion,
(23:11):
that gets him out of his peaceof mind. Then be able to design
through professional accompaniments. I, wellsee you know that I am always on
the order for your children' sparents and if they are of low resources,
because, of course that goes thereas a kind of donation through what
(23:32):
I can help them, accompany themwith all this that does, that does
work, because they sometimes are notaware of what they are doing. But
if they don' t have properaccompaniment, they' re not like we
have a filter. You know,imagine you' re going down the street
(23:52):
and suddenly someone' s going througha car. No, of course at
the moment it causes you to tellher everything. And if we go with
someone to the known side that we' re meeting, we can control ourselves
and maybe just say it mentally,but not say it out of the mouth.
Yeah, exactly, they don't have that filter. They go
(24:14):
with everything and vent and kick andweep. That' s how it'
s done in the middle of themall or in the church, because they
don' t have that filter.But through these therapies and the feeding that
helped us a lot I have alreadyseen live results, they can work those
emotions and be more calm. They' re quiet in them. Come on,
(24:37):
Dad, the world around us.We also achieve the common good,
as we say in the right ofthe heart. It is a presentation of
heavyey Night Tetlau and is part ofJack cast Nerwork Hot Trea hug and are
the acronyms of HORGEI Night of LoveUnited Love is a non- profit organization
(25:03):
dedicated to providing resources to the congenitalheart disease community to raise, empower and
enrich the lives of members of ourcommunity. If you want to access free
resources from the congenital heart defects community, visit our double or doblo de Blo
doto web site with genetal hear defexdot com for information about hospitals treating children
(25:30):
summer camps for survivors and much morebefore the break, we were talking about
how to deal with the Commission ofautism in a child with cardiodiopathy and in
terms of the difficulty of learning socializationof children Juan Faliopathy. It is also
(25:53):
noted that almost twenty- seven percentof parents with children from the age of
six years old state that, apartfrom being diagnosed with caliopathy, they are
also diagnosed with learning or socialization disorder, among which autism stands out, so
we were already talking about sensory problemsand socialization problems that you can tell parents
that they have not only to facethe news of paleopathy, but that,
(26:17):
when the years go by, theyrealize that they also have to face learning
problems, that they have to faceautism, that is, you have to
face an additional condition that may putthe child' s schooling at risk,
or put their sharing with society atrisk. Yeah, definitely. In fact,
(26:41):
I share here the way of confessionthat one of the situations in which
I lived the mourning, this mourningof autism, when it receives good not
even when receiving agnostic, before receivingthe diagnosis, because as mothers and fathers,
we have something, especially women,something that is called intuition of mother
and autism has certain signs that makeyou like to see here there is something
(27:07):
strange, like the lack of visualcontact, like the lack of being able
to socialize, to have those socialabilities and to be able to integrate into
society. And it' s veryworrying, because the fear that activates you
as mom and dad and I understandeveryone, this one is going to happen
(27:29):
to me the day I' mgone and I think that' s one
of the biggest things to work on. That fear, that fear and that
is why the topic of therapies isso important, of being able to prepare
them for this world, because yes, tomorrow we will not be, they
will continue to live. So preparingthem with proper information is that it is
(27:51):
very important that they report with peoplewho have already lived autism, with professional
is that they have a record,that they have experience. It is enough
that they can help them if theydo not know them, because through Benen,
through me, on my social networks, I share some professionals in whom
(28:12):
I believe and know that they workin this, because if there are other
people who work it in a moremonetary way than as a mission or purpose
of life, then what can Isay to them that yes, that that
fear will exist, that fear maynot go away, but that they will
carry it by hand, in away, with strength, with optimism and
(28:33):
here I activate many two words thatare for me as the key to overcoming
any adversity. And this one thatI have had in my life, which
has been autism, which is tobe conscious, that is, awake,
is the child that has, isthe mission of life that corresponded to you
and I continued forward and resilient.See it positively, the why, because
(28:55):
there' s always something good behindthings that we don' t seem to
know. Then fill up Mom andDad from that fortress. He said Mom
' s love and Dad' slove to take this great teacher by the
hand, because they' re teachersof life. They are people who come
to this world of love because theydon' t know evil, they don
' t have command in their heart, they just love to give and that,
(29:19):
that' s the big one.Focus on that love, that consciousness,
that resilience and move forward. Whata river Yes, it is true,
yes, Mari, there is acure for autism. No, and
I' m telling you that,not in a very closed way, because
(29:41):
I also lived it because I wasfrustrated when I watched programs and at that
moment I was confused that there waspure for autism. There' s this
treatment, not this one. Autismis a lifelong condition of neurodevelopment. That
if you have a proper diet withyour children, that if you use therapies,
they can make their lives. Andthere are examples in the lives of
(30:06):
people who have triumphed, like LeonelMessi, like Eond Mush, who is
the creator of Tesla, who haveachieved success in their stratosphere and have family.
So it looks like, like,it doesn' t mean, if
it' s cured, look,that' s her vivid. They learn
to live with autism, as Iimagine it happens with genetic heart disease,
(30:29):
they learn to live with it andthey move on with their lives. But
he has no cure. No cure, well, it' s better to
tell the truth. I don't know. It' s very important
that parents know the reality. Yes, absolutely, absolutely, and I believe
in God and believe in miracles.Yes, but in the human part,
(30:52):
of the human being, of theearth, of the flesh, it is
not cured. I mean, thescientific response so far has been that it
doesn' t heal. It's for life. Although it doesn'
t sound so familiar anymore, butyou can' t talk about this guilt
that the vaccines had in relation todiagnosis, look, that' s a
huge myth. Are there many theories? Are there many theories? It is
(31:15):
said that yes, because there arevaccines that, because of their genetic formation
of the laboratory, have many heavymetals and that causes the neurological system to
alter that produces certain sequelae. However, I tell you what I have seen
(31:36):
in my son. He' sgot his shots and I can' t
tell you. There are other momswho do say. Well, my kids
vaccinated him and I started seeing thechanges immediately. It was the vaccine I
make my child in my experience Ihave not experienced it through vaccines. I
can' t tell you they vaccinatedhim and he got worse. I already
feel that autism in it, thecondition we have carried it rather in an
(31:59):
evolutionary, positive way, yes,resilient. Then no, no. I
can' t tell you whether vaccineshurt or not. Vaccines don' t
hurt, because I come back andI repeat it' s a myth that
there are theories that say yes,others say no, but, according to
my experience, because I can't give you an answer to do.
We know that you have your childMatthew who is a beauty and he has
(32:22):
autism and, as you say,the most wonderful learning that you have ever
had and I hope that all motherswill feel that way with all their children.
If you cannot tell what your dayto day is like with him,
of course this is clear from thefact that today Matthew many of the people
who know him, including you,see that he has moments that are very
(32:47):
quiet, because in the twenty-four hours of the day. I could
say he' s a very quietkid, but he' s got his
moments, he' s got hismoments of crisis and many times I'
m well, I don' tgo out because I have him like I
have that skill here in the house, although I work a lot, as
I tell you, my team,my family team. It is I who
(33:09):
have the most patience, because Ihave developed it more from what I know
and have studied more and have preparedand understood it more. But one day,
for example, he went to school. He' s been going to
school since he was three because it' s the two- year game.
Here, in the United States thereis a program called Steps Laws, and
they give you the help through therapist, who comes even to your home.
(33:30):
And from there I started preparing withthe therapists. Then, at the age
of three he enters another program calledChile Fine, which is with the county,
and entered a regular school, butwith a special program called AIPI and
currently graduated from preschool and is alreadygoing to kindergarten. From preakay, it
(33:52):
' s going to kindergarten. Thereare times when I kill gets up,
especially when one has a good sleepgets up upset and good. I have
to do several hands, maneuvers withhim, to activate myself with my circle
of excellence of patience first, andto be able to help him to maintain
his own calm or be active,his calm and work, his emotion,
(34:12):
be self- regulate. But ingeneral terms, I can tell you it
' s been a learning experience.Why, because you have to learn how
Mom to accept a lot of things, even from me, from here I
break everything. But it' snot easy when you, why it'
s the duel in autism, becauseyou expect a child designed in your mind
and comes different and at the momentyou don' t understand and feel a
(34:37):
huge guilt. You' re lookingfor a lot of answers and I understand
all the dads and mom more wholive it, but eventually you realize he
' s a great teacher. Whyit makes you accept it as it is,
and that projects you to accept yourselfand the humanity around you, because
the world is people, and tobe able to activate that love in a
congruent way, to be able tounderstand society more. It is I ask
(35:00):
for it written because I was oneof those that I had difficulty understanding many
things and now with him I understandthem better and they bring me many satisfactions
for him. Imagine that for methe fact that he the first time Mom
told me, that he did itat two years and three months, for
me was the first miracle, Mommy, because I had practiced it like seven
(35:21):
months that already my other son atten months already told me Mom, he
told me at two years and threemonths that he could look me in the
eyes today with the depth that madehim see me in the soul. That
for me is a daily miracle thatbefore, for me a look was so
simple. Now, for me ithas enormous value. So, day to
(35:42):
day with mateo definitely Bethlehem is alearning. Loaded with love, loaded with
patience and loaded with much, muchhumanity and also with the mothers of the
children of the heart. That's right, Amiga, that' s
right, Mary. You have someoff, some Instagram, some place where
(36:04):
I can contact you, some dadwho needs advice or help or some word
of encouragement that you can provide,some lual where they can communicate with you.
Yeah, I run my instagram pagea lot, which is Maria and
coachl, but you can still getme my name, like let me see
(36:30):
it here, Maria and quintero.S on Instagram, also on Instagram,
Yes, on Instagram, I haveFacebook too, but I mostly manage on
Instagram. And there I have MilianTreed where you can get my Whatsack number
information that I have saved a lotof things that I share. Mary,
we thank you as a lot ofyour time for all the things you'
(36:52):
ve told us, both personally andprofessionally. We are very happy to have
finished our program and we hope thateverything we learn here with you will also
be of benefit to all parent actsof the Latino community that listens to us.
Thank you for coming to Hodia onthe show, Thanks to You Marta,
(37:12):
Thank you Bellen Igualanna who helps us. God bless me and good what
you need. I' m totallyin order because I know what it'
s like to live. This isn' t easy, but I' m
telling you, you can. Youcan and you can. You, mom,
dad carer, you can and Icould You' re gonna be able
to, too. Thus concludes thisepisode of that heart. Thank you for
(37:35):
listening to us today. If youhave enjoyed this episode, please leave a
review of our podcast on our WhitsideWww. Arts and Olite the glog Ort
and remember friends never give up.Thank you again for joining us this week.
We hope that you have been inspiredand empowered to become a defender of
(38:00):
the community of congenital heart defects,with your hosts Welene, blancton jenefer Inguina
and Marta Montero. It is producedmonthly and can be heard wherever you have
access to Parkast. The new episodesare broadcast on the second Saturday of the month
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