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March 31, 2023 8 mins
¿Qué es el Síndrome de Eisenmenger? ¿Qué sucede si una persona tiene un defecto cardíaco congénito que no se corrige por completo? ¿Qué tipo de complicaciones pueden ocurrir?

En este episodio de Guerreros Del Corazón, Belén discutirá qué es el síndrome de Eisenmenger, quién puede verse afectado por él y qué tratamientos están disponibles.

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Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
Welcome to your heart warriors program fightingcongenital heart disease. I am Belen Blanton,
one of the hosts of this programand I am also a warrior at
heart. This time I will bealone because my hostess, Marta, is

(00:21):
in her activities for her doctorate ineducation. Today' s program is how
a heart defect can trigger another conditionand in my case it was Isen Menger
syndrome. This content is not intendedto replace diagnostic advice or professional medical treatment.

(00:44):
The opinions expressed in this podcast arenot those of Horge Unighted Love,
but those of the hosts and guestsand they intend to generate a debate on
issues related to congenital heart disease.Many of you already know me. I

(01:06):
' m Belen Blanton and I'm the coprosentator of this podcast program.
If you heard in episode number one, you know a little bit about me,
but today I want to talk toyou about Isen Menger syndrome and I,
as you know, I was bornwith a congenital heart disease called thirteen.
Trecopita to thirteen means abnormal absence ornarrowing of an opening. This is

(01:36):
a condition in which the tricupine valveis not formed correctly. Or how it
happened to me I was born withoutthat valve. The valves in our heart
move blood from our heart to ourlungs in order to obtain oxygen, then

(01:59):
water the heart and then to therest of the body. If the valve
is narrowed or absent, the bloodcan build up in the heart and cause
congestive heart failure. I was luckythat my parents were able to fly me

(02:24):
from Venezuela to the United States forheart surgery when I was very young.
I was taken to the American ChildrenceHospirol and Dr Denton Coolin was the one
who did that Shon. The preachersgave me Dr. Cole put a mentricular

(02:50):
shunt in my heart, to helpmy body have proper oxygen blood, because
without that surgery I would have developedheart failure and died very young. Thanks
to that derivation or shont I findmyself in my fifties. That surgery definitely

(03:17):
saved my life, but my shameto say I didn' t really learn
about my heart condition until I movedhere to the United States, already an
adult. By that time my bodyhad suffered irreparable damage. Sometimes it'

(03:38):
s too dangerous to be more surgicalbecause the pulpons have been damaged. And
that' s my situation. Ihave a condition known as ise Menger syndrome.
People with Isen Menger syndrome have irregularblood flow to the heart and lungs.

(04:03):
That makes the tiny vessels in thelungs stiff and narrow. Anteronal persion
increases in the arteries of the lungsand causes what is called pulmonary hypertension.
As you realize every time I speak, I have to breathe very deeply.

(04:28):
You listen, because I don't get enough oxygen. Isen Menger syndrome
permanently damages the blood vessels in thelungs, but there is always good news,
and one can live with leisen Mengersyndrome. I have a good quality

(04:50):
of life even though I have thisheart and lung condition, and you will
wonder what allows my teacher to belike this. Well, I tell you
the secret. I have a goodattitude. I love life, I love

(05:11):
what I do. I like tohelp other people and most importantly, I
have excellent doctors and excellent medicines andtreatments to help me. I am being
seen in the Mayo clinic two medicinesthat are all called ambier stam and Tadalafin,

(05:35):
which help my lungs I also takemy ordaron and NOPSI to help with
atrial fibrillation. Here they tell tripwatter flation is a rhythm that is in

(05:55):
the upper cavities of my heart.My blood thinner is what it is to
keep me from having a stroke.I also take a lot more medications to
help control my congestive heart failure,although all of this may sound scary.

(06:15):
Education is power. Ten years ago, people were lucky enough to live until
they were forty years old and ifthey had the aarsen menger syndrome it was
a feat, that they lived fortyyears. Now, with new technology,
new medical treatment and good medical management, we don' t know how long

(06:42):
we can live and so I livemy day to day and am happy.
Only what I can recommend to peoplewho have congenital heart disease, who are
educated a lot, who study,who learn from heart disease with people,
because there are so many things thatcan be avoided. I didn' t

(07:05):
learn everything you had since I waslittle, I couldn' t stop you
from having this syndrome, and now, you live with a lot of medicine,
a lot of things, but I' m here and you can.
The other thing I want to tellyou is that if you tend any questions

(07:30):
or want to know more about LiisinMenger, you can write me to Belén
Blanton robbing warriors of the heart comand I will gladly answer you there.
I just want to tell you toplease keep fighting so that this episode of
heart warriors ends. Thanks for listeningto me. If you have enjoyed this

(07:54):
space, please leave a review ofour podcast on our good one. If
you globor wwwwars and remember friends,never give up. Thank you, thank

(08:16):
you again for joining us this week. We hope you have been inspired and
empowered to become an advocate of theheart disease community, with your hosts Belen
Blancton, Jennafer Inguina and Marta Montero. It is produced monthly and can be

(08:37):
heard wherever you have access to Pardcast. The new episodes are broadcast on the
second Saturday of the month
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