Episode Transcript
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Speaker 1 (00:24):
Well, hello, hello everyone, it's your girl, Gabrielle. Welcome to
our brand new episode of Hot Topics. Let me tell
you what the show is about. So, this is the
show where we like to have a real talk about
real teens. As we are a part of my tutoring company,
(00:47):
A step ahead Tutoring Services. Naturally, we like to focus
on educational things. We like to stay within a particular
scope with the tension to have you the audience, more informed,
more knowledgeable than how you were the day before. So
(01:10):
we've done topics about homeschooling, talking with tutors, mental health,
we have talked about AI. We've covered a lot of
different ground here on Hot Topics, and today is no different.
So I am looking forward to this episode. This is
an interesting episode. I look forward to see where this
(01:30):
is going. So first off, I'm going to start off
with the title of this episode and today's focus. So
the title of the episode is Living with a Chronic Illness,
Part four with the focus on multiple schoolerosis. That's right,
So this is the fourth time that well, I think
(01:56):
technically the okay, then the numbering is kind of weird,
So it's technically the fifth time that I have discussed
living with the chronic illness. But this is the fourth illness.
It's kind of weird, but living with a chronic illness.
(02:18):
So this is part four. So this is the fifth
time that I have brought this topic, but this but
this is the fourth illness, the fourth chronic illness that
I have brought to the podcast. So I encourage you
guys to check out the other episodes in our catalog.
(02:39):
So make sure you guys check out the other parts
of this sub thread. But yeah, so today the focus
is on multiple sclerosis and I have a guest who
is going to help me with this conversation. So let
me tell you who she is. So her name is
Talitha Humes, and I am going to tell you about her.
(03:03):
So who is to Lisa Humes? So let me tell you. So,
she's a patient turned founder who created a medication management
solution after struggling with the confusion of taking multiple daily medications.
She's been living with multiple scrosses since two thousand and five,
(03:25):
and she's experienced firsthand how medication appearance can change from
months to months, creating unnecessary stress and uncertainty. She realized
there was a gap in how patients track and recognize
their pills. She transformed that personal challenge into a mission
(03:46):
to help others take the right medication at the right time.
She's passionate about using tech and support Excuse me, She's
passionate about using tech to support people managing chronic illness, pharmacy,
or caring for loved ones. And she loves sharing her
journey to inspire and inform others. Fabulous, fabulous, fabulous. All right, So,
(04:11):
without further ado, I am going to bring to Lisa
to the stage. High to Lisa, how is it going,
How are you good? Good good? Thank you for coming
on Hot topics. Thank you for getting on the hot seats.
So we are going to so we're gonna talk about
(04:33):
your living with multiple sclerosis. So I would love for
you to tell your story about what's it like living
living with that chronic illness. So wherever you want to start,
I'm gonna go ahead and pass the baton to you.
Speaker 2 (04:51):
I guess I guess you start from the beginning, because
I hear a lot of horror stories about how people
are diagnosed with an illness after many, many, many years.
So for mine, it started off with having another illness.
I had an overactive thyroid. So once that was treated,
I started having difficulty walking and going to you know,
(05:13):
overactive bladder, and my husband saw it. I'm like, uh,
nothing drawing me. I'm okay, And then I finally decided
to go to the doctor, who then referring to neurologists.
I had the test done and then I found out
that actually I had multiple scrosses. So that's how and
it took about May about a year and a half
for me to get to that diagnosis.
Speaker 1 (05:35):
Okay, yeah, all right, so let's let's start there. Okay,
so you so what made you go to see the
doctor was? If you could just clarify that part again,
what made you go to the doctor.
Speaker 2 (05:51):
So I was I was having difficulty walking correctly, my
balance was off, and I had an overactive bladder and
I didn't understand what was going on. So I went
to a regular primary care doctor and they looked at
me and they said, well, this sounded like a neurological
kind of issue. So went to neurologists and did an
MRI on it, and then he said, yeah, she had
(06:13):
multiple scroses. But then a couple of days later he
had did a spinal tap just to confirm everything. So
once the spinal tap results came back, I was definitely
diagnosed with multiple scrosses. And how long ago was this
two thousand and five, so it's been twenty years.
Speaker 1 (06:32):
Twenty years, twenty years. Wow, So tell me, So, what
was it like hearing that? What was it like? Take
us through that moment of receiving the news?
Speaker 2 (06:49):
It was different. So when I went to my neurologists,
he said, well, I think I should have had someone
with you. When I tell you this, I'm like, okay,
what is going on? So you told me I had
multiple scrolses. I thought I had Jerry's kids, which is
most scular dystrophy. I've never heard of multiple scrolses. And
(07:10):
then as you tell me what could happen, I could
be disabled, can't walk, and all these things are spinning
through my head. Of course, I'm scared. I don't know
what to do. And then he said, oh, and guess what.
The medicine is a shot every three days. So that's
scared me even more. So he gave me a video.
Watch this video, and this is the shot you're going
(07:32):
to take for the rest of your life. That's scared
me because I hate needles. So eventually I had to
do the medication. I had to do the shots and
deal with whatever's happening. And as the years went on,
I get more and more different symptoms, so I have
to go back to a doctor, get some more medication
(07:54):
until it's corrected itself, and then go on and start
adding more and more medication depending on whatever symptoms I'm
having at that time. So it's been an interesting journey.
And hearing the words multiple scleroses is sometime I've never
heard of. So when I first found out about it,
my mind is going I'm going crazy, crying, like what
(08:16):
I'm going to do? And a couple days later, I
was watching the news CNN and there was there was
a bomb in London. And then I'm watching CNN and
the bottom of the screen set multiple scurosis in London,
and I'm like, wait, what is going on? Everybody's having
the same illness as I am. It's really saying multiple
(08:38):
explosions in London rather than multiple scroses. So at that time,
I'm still trying to process everything, looking at the symptoms,
look at what I'm doing, What's going to happen to me?
And how am I going to live my life? Do
I need to stop working? Am I going to be
in a wheelchair? That was just very, very scary for me.
Speaker 1 (08:58):
Yeah, I can. I can imagine. You know, you went in,
you know, thinking one thing, but something I picked up.
You went in thinking what was it called distrophe?
Speaker 2 (09:15):
Yeah, muscular distrophe. That's why I thought it was when
I first heard it, because I never heard of multiple
scuroses when you first said it.
Speaker 1 (09:21):
Oh, I was.
Speaker 2 (09:22):
One of Jerry's kids. You know, muscular distrophe. I mean,
that's the only thing I ever heard. I mean, you know,
multiple scros is very new to me. I never thought
about it. And then he explained to me what it is.
I'm like, okay, now understand. And the way they explain
it to me is they say, it's like you have
an iron, you plug into the wall and then the
electricity goes through the wire to get to iron to work.
(09:45):
But if the cord is damaged, it cannot work and
electricity cannot go through it. The same thing with multiple scleroses.
Messages from my brain go through something like a chord
to the rest of my body, but my body is
attacking itself, is attacking the cord, leaving multiple score scars
on the cord. That's why they get the word multiple sclerosis,
(10:07):
because my body is attacking the system that is used
to send a message to my body, and as a result,
it affects everything from head to toe. And that's the
bad part about it.
Speaker 1 (10:23):
That's uh. I actually like that explanation. I like that analogy. Actually,
So so what hm, what were you? I guess did
you What were you thinking when you heard that in
(10:45):
terms of what does this mean for the future? What
does this mean about tomorrow? What what was going through
your mind about the days to come?
Speaker 2 (10:56):
It was scary because when they say you could be disabled,
you cannot walk, you will be in a wheelchair. That's scary.
So I mean, I'm walking at the time he's telling me,
and I'm like, oh, so that's gonna happen for me
sometime in near future. And that was scary. So because
I had a family, had a small daughter, and I'm like,
(11:19):
what am I gonna do? How am I going to live?
How am I gonna survive? So that's kind of what
I'm dealing with. It's just it was. It was scary,
really was, And I tell anybody who's first diagnosed, it
is scary. But once I started learning more about the illness.
Then I became a little bit better because the technology
and information has changed over the years, more and more medication,
(11:43):
more help for people like me to survive, to live
with it. No cure for it, so just have to
deal with the symptoms as we go.
Speaker 1 (11:55):
Yeah, and you know, I can't imagine hearing things like
you may end up in a wheelchair, you may not
be able to walk again, like these are life changing
events happening to you, And I can imagine that. It's
(12:18):
it's hard to process. Mm hmm, right, not being able
to walk again. I can imagine that's that's a lot
to take in.
Speaker 2 (12:29):
Yes, it is.
Speaker 1 (12:33):
So now all right, so take me through the next day.
So well, I guess take take us through the treatment.
So what was the doctor said? You know, you have
to what's the treatment? What did the doctor say?
Speaker 2 (12:48):
So at the beginning, I was taking an injectable medication
that I had to inject in my stomach or my
leg So that was the only medication that he suggested
that I take at that time. So as about a
year or so went by, then I started having problems walking.
(13:10):
So he gave me some steroids, a kind of steroid
that you kind of drink which does not taste good.
And then also that did physical therapy, so that kind
of helped a little bit with actually using my cane
because I had to start using the cane, which I
wasn't doing before. And so then other medications like pills
(13:34):
and so forth. So the only injectible I had at
that time was the it was a peal and then
injectable for the multiple sclerosis, so he won't get worse
for me. They can slow down the process, but it
doesn't cure it. So that's where we were at that time.
Speaker 1 (13:55):
So all right, so you were doing the injectable first.
So at that time, were you still having trouble walking
or did you stabilized? Were you walking properly because of
the injectable.
Speaker 2 (14:08):
Well, the injectible, I'm not sure if it kind of
stopped it, but it seemed like I was at a
standstill at the moment. It didn't get worse, but over
time it got a little bit worse. But it's kind
of delayed the process of me getting into having to
(14:29):
do a walker or a wheelchair, So it kind of
delayed the process a little bit, just slow it down.
So it wasn't bad at the beginning, but then over
time it got a little worse, and the dizziness and
different things like that in the progressing over.
Speaker 1 (14:43):
Time, and just so unclear. It was injected into your
stomach and leg.
Speaker 2 (14:50):
Yeah, that's some of the areas.
Speaker 1 (14:52):
Yes, yeah, okay, So time went on, So this was
over a year. It didn't get better, it didn't get worse.
That just kind of stayed where it was, and then
a year goes by, things start getting worse. How did
it get worse?
Speaker 2 (15:09):
Other symptoms of the stiffness and movement and cognitive issues
as well, memory issues, So those are the main things.
Having to go to work and you have to remember
what to do, and then as the symptoms go you
also start adding medication and remembering what medications to take
(15:34):
this time, So that was another issue. It's remembering and
the cognitive issues of processing whatever's happening in your life.
And that's kind of still going on right now for me.
Speaker 1 (15:47):
So it's you went from an injectable to taking all
these pills, and cognitively it's there's already a decline. So
now it's to remembering to take all these pills. How
many how many pills did you have to take.
Speaker 2 (16:05):
At the beginning, probably about five. Now it's about eight
a day, you know, So it just it just delays
the process somewhat help. But some of the things that
I'm having, like tingling in my legs that will never
go away, and I tried to take medication for it,
(16:28):
It's not helping, so I just stopped taking it. So
unfortunately that happened sometimes. And then ject what was the
medication I started off with, but then I said, I'm
tired of taking it, so I stopped cold turkey, which
is not a good thing. Because there was another type
of medication that came out of the market. It was
(16:48):
a pill, so like, oh good, I'm going to take
the pill. So I targeted started taking pills. So it's
another pill to add to the other pills I was taking.
So I was doing that for several years. So that
was working. I mean, that was helping me because I
wasn't doing the shot. So you just have to do
what you need to do at the time to help
whatever symptom is flaring up at that time. So that's
(17:10):
what I was doing.
Speaker 1 (17:13):
So are you still taking the pills now?
Speaker 2 (17:17):
No, because I've started having other issues and so as
recently suggested like last year for me to start taking
an injectable, and I'm like, oh yeah, and it's objectible that
I start seeing on television and commercials, which now you
start to seeing more and more commercials for medication for
(17:37):
multiple sclerosis, which wasn't like that years when I started
in two thousand and five, it was like that at all.
Now you see it all the time. I see at
least several times a day. So when the medications on
television is what I started taking, and it's once a month,
it's not bad. And I take it in my legs,
so it's not bad at all. It's just the principle
(17:59):
that I have to take the needle in my legs
once a month. So I mean, I have to deal
with it. It's one of the things you have to
go through.
Speaker 1 (18:08):
Did it? So is it helping you? Now? What? Is
it the same?
Speaker 2 (18:16):
It's about the same. It's about the same. But from
what the issues that I was having, they suggest that
maybe I should switch to something else to keep it
from getting worse. So so far, I'm stable because I
just started in December, and so far it's I'm just
stable right now, So I'm okay. I didn't see nothing
(18:39):
get worse or anything like that. Also started therapy again
and that really helped this time because I was having
new issues, so I had to do new things with therapy,
got new medication, so everything is new right now, and
it really made a difference in the way I walk,
where I move and try to stabilize myself when I
(19:00):
walk outside. And I noticed, okay, it's hot right now.
It's very very hot outside, So now I need to
manage when I leave when I come back. And I'm
just more aware of things when I wasn't before.
Speaker 1 (19:17):
So I'm picking up like a yo yo of medication treatments.
You started off with the injectible didn't really do much.
It didn't get better, it didn't get worse. It's pretty neutral.
But then things got worse. More symptoms came up, so
they gave you five pills. You stop the injectible, switched
(19:39):
the pills, and then they uped it to eight pills,
and then things still were still getting worse. So you
were just like, I'm just gonna stop, and you went
cold turkey for a while. Then the new injectable came
out and you were just like, you know what, let
me just try it. Get back on it, so you
went back to the inject the ball and where you
(20:02):
are right now?
Speaker 2 (20:03):
Yes, yes I am, and I don't like it, but
it's better than getting worse, so I just have to
deal with it. Once a month. I still have to
take the other medication because I thought it would eliminate.
It didn't. So with MS, you have appeal for depending
on the symptom that you haven't at that time, and
(20:25):
that's crazy, I know, right, So yeah, one for the
to keep the MS from going worse you want to
help you walk better, and one for your mind and
one for your bladder, and one is just a pill
after pill after pill, and it's frustrating, but you know,
you just have to take it and move on. That's
my new normal unfortunately.
Speaker 1 (20:46):
So you're still all right, I'm still trying to grapple
with all this. You're so you're doing the injectable and
the pills.
Speaker 2 (20:52):
Yes, and yes, because yeah, the injectable is it's to
delay the multiple sclerosis getting worse. It's the only thing
that does delay it. But then as a result, I
have other things going on with me because I have
multiple scroses. So you need appeal to deal with each symptom.
Speaker 1 (21:11):
Yeah, the I forgot what it was called. But like,
and so because it's causing all these other things, you're
taking a pill to deal with Yeah, the Cold War,
but I forgot the word. But it's not treating the
multiple scroses. It's treating the symptom of multiple Yeah. Yes,
so you have an injectable and you have eight it's
(21:34):
still eight pills.
Speaker 2 (21:36):
Yes, I take three in the morning. Oh and actually
no six at nights or nine? Oh? Actually is nine? Sorry?
Speaker 1 (21:43):
Yeah, behind pills. Yeah, talk about polypharmacy, right, yes, yes,
So because when I think multiple, when I think MS,
I guess I whenever I've heard of it, it's uh,
you know people like degenerative disease. People just stop walking
(22:05):
after a while and they go into a wheelchair. I just,
do you do have do you have that fear of you? Do?
Tell us about that?
Speaker 2 (22:19):
So my first meeting for MS, I went in the room,
I saw wheelchairs. I'm like, I am not coming back.
And I didn't go back because I'm like, can you
tell me this could happen to me? I heard about it,
but to see it in person that really scared me,
and I didn't go back. Over time, I started finding
different places to go, and you see people with different symptoms.
(22:44):
It's and everybody's different. You meet another person a multiple crosses,
they can walk like nothing is changed. And some people
have a wheelchair, some people have a walk or someone
and it's somebody could be bed written. Everybody's different, And
the problem is the fear of being in a wheelchair.
(23:05):
I have to sit and kind of move my legs.
Could They all say, if you don't use it, you
lose it. So even as I'm talking, I need to
move my legs. It's not even it gets stiff. Then
I need to stretch and like, oh the stiffness. So
I just have to deal with it. Yeah, it is scary.
So that's why if you ever see me, I'm sitting down,
(23:25):
but I'm moving my legs. I have to. And now
it's going to be stiffer than you have to get
up and people looking at you crazy, and so for
it's like, oh are you okay? I say, I'm fine.
I guess. I think of myself as like you know,
a wizard of ours, a ten man, just all my
joints and then I'm good. Once I'm moving, I'm okay.
Once I'm moving on. It is when I stop and
(23:46):
don't move, That is when it's move issue, what you
call a sedimentary or something just not moving at all.
Speaker 1 (23:53):
You just have to keep moving, Yes, you just have
to keep moving right. Yes, it's like you can't stay
still or else you'll get stiff.
Speaker 2 (24:01):
And yes, you're getting lose all those muscles and right right,
keep moving, keep moving.
Speaker 1 (24:07):
Yeah, So looking back, so this has been You've been
dealing with this for twenty years, pill after pill after
pill after injectable and then off stopping and the fear
of getting in wheelchairs and things being delayed, and you know,
just kind of looking back over twenty years, do you
(24:31):
I guess what do you think about? What comes to
mind when you reflect over the past twenty years?
Speaker 2 (24:38):
When I started, I didn't know anything. I didn't know
what to expect, and I should have done more to
educate myself or maybe probably eating better, to be more active, exercise,
and probably tail inform my family. I'm okay, but this
(25:01):
is what's happening right now. But I'm still okay, and
I have a problem telling them every time they ask you,
are you okay? Yes, I'm fine, even though I'm hurting.
I'm dizzy. I'm scared, I'm frustrated, I'm depressed. It's some
multiple things going on, and I just don't make them aware,
(25:22):
and I think going If I would have done it again,
I would do it differently. Educating myself, educate the people
around me, do more exercises, eat better, do stretches, what
have you, just to keep me moving so I wouldn't
get in a bad situation for my body myself.
Speaker 1 (25:43):
You said you were depressed. Can you tell us more
about that?
Speaker 2 (25:47):
Because I wasn't working at one point because and when
I was at work, I couldn't process something. I couldn't
figure things out. I was messing up, and I'm like,
I know, I'm not stupid. I'm like, I'm not stupid.
So I was put on medical leave because of that,
and this so happened that my job eliminated and then
(26:08):
I went into disability. But I was hurt because I'm like,
I'm not stupid. Why can I process this thing? It's
irritate me. Why can I do this? It was hurtful.
And then after time, my children getting older and it
didn't need me anymore. So now I'm really in a
spot of what am I going to do? I can't
(26:31):
work because I can't process things and having a hard
time with moving, just staying alert to you know, function
like regular people. And it was scary because like, what
am I going to do? Until one day I read
a book write doctor Bieber, I think a biaber called
Resilience in the Face of MS, and I'm reading it
(26:55):
by people that they had in mess but they're still living.
I'm like, oh, I could still do that. Because it
was scary because I cannot not do anything because you
don't disability. I mean, I'm supposed to just sit there
and just deteriorate, you know, disappear. And that bothered me
for a while. And then I read the book. I'm like, oh,
my life can still go on. I could still do
(27:16):
something because these people are still doing something with their life.
And ever since then, I changed my thought process. I
mean I still get a little upset every now and then,
but still I know I can do better because I
have MS. It's my new normal. Just have to live
with it and do something different so I can keep
moving going forward.
Speaker 1 (27:36):
But that's wonderful, you know, I know, but you know,
just living with the chronic illness, right, there's that feeling
of hopelessness. Like you said, you have to stop working
right and get on disability right, and your family didn't.
You didn't, you weren't needed by your family. So it's
(27:56):
like you weren't working you know, you have, it's sort
of like you lost your purpose in a way, and
feeling that just you felt low about yourself and and
and again you're you're already taking all these pills and injectables,
(28:17):
and you know your symptoms are getting worse, it's getting stable,
and just the fear in your mind of degenerating, degenerating, degenerating.
So there's that mental torture, you know, all that is
accumulating all at once, you know. So it's understandable why
(28:42):
you would be depressed. But but it's it's good that
you that you read read that book about how to
keep living right. So how so let me let me
put it to you this way. So if you come
across somebody who they just found they were just diagnosed
(29:05):
with multiple corosses, what would you tell them?
Speaker 2 (29:09):
The first thing is to educate yourself about the illness.
What is entail? What is it going to do? Why
why are you having all these symptoms? Because if you
don't know what it is, then it's even scarier. And
then now people tell you, oh, you're going to be
disabled I mean different things. And then and let them
know everybody is different. You may not get to this
(29:33):
part of life that they did. You don't know their history,
you don't know their genetic makeup or something. So everybody's different.
Educate yourself and listen to your doctor, take your medication,
and do what you have to do to to accept
your new norm, because it's going to be different going
(29:54):
forward than it's ever been in your life.
Speaker 1 (29:58):
And then how how do you do that? How do
you accept the new normal?
Speaker 2 (30:03):
It takes time, cause you when you try to do something,
your body remind you you can't do that anymore. Try
to do this, you can't do it anymore. And when
you start to look at it and say, you know
what this is it, I mean, this is what it is.
I can't you can't change it. You can just live
(30:23):
with it, deal with it. And talking to other people
who have had multiple skirls whose I went to other
groups and they had kind of the same concept. You
just have to live with what you have. I have it.
This is what I do to combat the symptoms. You know,
I know, if I'm tired, let me take a nap.
Okay it's hot outside, and let me go in early
(30:44):
in the morning, afternoon, or if I go I have
to go out, let me do it for a short
period of time. So you just have to just what
you do on a normal basis, too, so that you
don't make it worse, because extreme heat or extreme cold
makes it worse. So you just have to deal with it.
Speaker 1 (31:00):
See you see it as more. It's a slight adjustment
to what you're already doing.
Speaker 2 (31:08):
Yes, I had to get that way. I'm on chapter
twenty because it's been twenty years. At the beginning, no,
I'm sure you asked my family and I was like, oh no,
she would not take mass. She wouldn't let da da da.
It's and looking back, I'm like I started off. I
remember calling my aunt crying. I'm like, I got it, miss,
(31:28):
you know, and she said, be okay. That was time
that my husband saw that. Yeah, you're walking funny. I'm
like what. And then I had other issues and it's
like there are people there to help me, but I
didn't want them to help me because I'm not sick, right,
I'm not sick. But then they saw that I was.
They saw it. I'm not working, I mean walking correctly.
(31:51):
They see him forgetting. They say I'm wobbling. I felt
a few times, and they want to help me. But
I'm like, I can do it. I can do it.
Just be in hard head. That's that's just it's normal.
I'm human, right, So that's kind of what it is,
just dealing with that.
Speaker 1 (32:09):
So there was also a sense of pride, right because
the people see these things happening to you and they
want to help. You know what you saw it as
you looked at your you didn't want to be seen
as what they call like a charity case, right, or
you didn't want to seem helpless.
Speaker 2 (32:28):
And as a female, you know, you walk in a store,
something go somewhere. If they open the door for you
because you're a female, I'm looking at it. You see
my cane. That's why you're going to do it for me.
I can do it myself. I'm just going through I
mean I was going through oh a lot of things
at that time. I Mean, people say they open the
door because you're female, you just so happen to have
(32:48):
a cane when you walk in. But that's just me.
I'm Okay, I can do it. It's just something I
had to work through, kind.
Speaker 1 (32:59):
Of something you had to let go of.
Speaker 2 (33:03):
Yes, yes, definitely, they have to let go life.
Speaker 1 (33:11):
So what how how do you how do you let
go of that pride? What do you do? What are
you doing to let it go?
Speaker 2 (33:23):
Listening to my you have your inner voice telling you
stop doing that, don't do it, stop it, get the help.
And I'm learning to listen and actually getting the help
that I need. People tell me, look, you need the help,
get it while you can. And the crazy part about
(33:43):
it is, you know I said I can do it.
I got it because I'll be with my daughters walking
and they're waiting for me. I got it. I'm okay,
I can do it. When they leave me, I'm like, wait,
they left me by myself. Yes, I said leave me,
but that I don't want you to leave me? Is
that crazy? Right? So you just have to deal. It's
(34:03):
funny to hear. I'm like, oh yeah, I do that
all the time. I know you say you don't want help,
but we can help you. And I need to let
them help me so I can save my energy for
something else, because that's one thing I have to have
to save my energy. I can't do everything get the
help that I need right.
Speaker 1 (34:21):
And I can hear the sense of pride, But it
does get to a point, you know, it takes a
toll on the body where it's like, Okay, I need help.
I can't do this no more.
Speaker 2 (34:35):
Yeah.
Speaker 1 (34:37):
So I didn't even ask you. How How did the
people around you react to the news. How did let's
start with your husband? How how did he react to
the diagnosis.
Speaker 2 (34:49):
Okay, he was the one. I have to say. I
have to give him all the credit because after I
was dealing with my hyperthyroid, had some medication, he said,
you're walking funny. I'm not walking funny. I'm fighting. I'm walking.
I'm not walking funny. Yes you are. So it took
some time for you to go back to the doctor.
(35:11):
I told you was walking funny. So when I went
to a doctor, to the neurologist, I was by myself
because I didn't think it was something bad. So that's
why the doctor like, I should have had your husband
want soon when I tell you this, so like, oh,
but after admitting he's my cheerleader, he's the one telling
(35:31):
me do this, do that, because you know you need it.
Just like I was fighting for the handicapped parking.
Speaker 1 (35:38):
You need it.
Speaker 2 (35:39):
When I said I fought it, I fought it because
I don't need it, but yes I do. So it's
little things like that that I fought that I should
not have. But he's been my biggest cheerleader. He's there
for me.
Speaker 1 (35:57):
You know.
Speaker 2 (35:57):
He opened the door for make sure I get out
to me walking so where he have his arm out
to make sure when I step up the curve on
the curve that I'm there, I don't fall, you know,
go to church and make sure you're okay good. So yeah,
he's You're my biggest true that I have to tell him.
Speaker 1 (36:13):
I have to admit that that's wonderful. You found that
you have a lot of support at home.
Speaker 2 (36:21):
Yes, yes, my girls. When I go to a grocery
store and then I tell him I said I have
some grocery, they come and to bring it. They come,
bring the house, and you can't do it. I'm strong enough,
I say, I can do it. I'm strong enough. I
still do the same thing. So even now, but they
do help me. They really do say, Mom, I can
help you because you can't carry that. You know, your
balance is off I'm like, oh, they know it. I
(36:45):
just fight it to this day. But I'm getting better,
but I still.
Speaker 1 (36:53):
Working on it.
Speaker 2 (36:54):
Yeah, everybody needs to be independent, you know what I mean.
It's just to be independent. It's just a big thing,
like a little kid trying to do myself and a
big kid, same thing.
Speaker 1 (37:05):
All right, you still, I mean, you still want to
be independent, you don't want to be baby. But it's
also like you know sometimes that it helps to lighten
the load a little bit.
Speaker 2 (37:16):
Yes, yes, yes, yes, So.
Speaker 1 (37:20):
You definitely have a strong support system. Your husband is
he got your back, he's holding your arm. You got
your daughters helping you. They have a good support system.
What about friends, other family, strangers?
Speaker 2 (37:36):
Oh well my immediate my immediate family, they're good. I
just had to say for my sister, So, I have
an overactive bladder, and she gave me some I call
them protection, right instead of saying I wear diapers, I
would past. So she gave me some protection. My life changed,
(37:57):
like it was the biggest thing because at one point
I wouldn't I didn't want to go anywhere because the
overactive bladder accidents, many many accidents. And then when she
gave me that I'm like, oh, oh my gosh, my life.
I can I can have an accident. Nobody's going to know.
(38:21):
You go home, take a bath, everything's okay. But when
you have an accident, you don't have protection. Everybody can
see it. Right. So in my case, that was the
biggest thing ever for the protection that I needed. And
the thing is, nobody knows, right, nobody cares that I
have an issue with my bladder. Only thing they will
(38:44):
see is a spot on my pants, and that'll be
so embarrassing.
Speaker 1 (38:47):
Right.
Speaker 2 (38:48):
So ever since that, I've been having protection and I've
been able to go on trips. I can be out
all day without a problem because I have protection, and
I can live in my life. I mean, it's totally different.
I mean it's just my eyes open up, like, oh,
I can do more things. You know, have an accident,
(39:12):
nobody knows that. Protection picks it up, keep going. And
ever since then, I'm it's the biggest thing. I mean,
you just I have MS. Sometimes I don't know, like
my grandma said, I don't know if I'm coming or going.
I'm spinning around, I'm falling, I can't remember anything. But
that's the one thing that bothers me more than anything.
It's the overactive bladder because I feel like a kid
(39:33):
and that brought us. That's that's number one for me.
Other people have something else. I could have a cane,
I can be in a wheelchair. But it's the bladder part.
That's that. Why am I getting sentimental?
Speaker 1 (39:46):
Okay, you could take you could take the forgetfulness, I
can take, you could take the cane, take the wheelchair,
But the over the bladders where.
Speaker 2 (39:58):
You oh yes, I mean it really really bothers me
more than anything. That is the craziest part of all
this stuff I have to deal with.
Speaker 1 (40:09):
And why I mean, I guess.
Speaker 2 (40:12):
Yeah, because people can see you. Yeah, when I feel
like a kid, like, oh, you can't hold your bladder?
No I can't. I have Oh what is you have
to go through the whole spill and nobody cares how
you doing. I'm fine, you know, and nobody cares. But
if they see that, and it's like it's so embarrassing, like,
(40:34):
oh my gosh, I got to help him get home.
You know, it's embarrassing. You know, kids can do it,
but not a older kid like me. It's just not
something you said.
Speaker 1 (40:47):
Sorry you said. People don't care.
Speaker 2 (40:50):
In general, you don't want to go you know you
you don't want to go spill your whole life. Oh
this is happening, Okay, Yeah, you just keep it simple.
I'm fine, I'm okay to walk. Yeah, just keep it simple.
I just need a cane to help me stay balanced.
I'm good, yes, And just keep it at that. I
don't talk a lot anyway, but I mean, just keep
(41:11):
it at short and sweet.
Speaker 1 (41:14):
So, I mean, from what you're telling me, it's your
your MS is not as severe as you know what
I've heard about and seen stories about. So what you're
going through is not as severe as you know, being
(41:34):
like you said, being bedridden, right, So not to minimize, yes,
what other people are going through, but your particular experience
it doesn't sound as severe as I thought.
Speaker 2 (41:46):
Mm hmm.
Speaker 1 (41:47):
Yeah.
Speaker 2 (41:47):
And I'm fortunate in that because and then everybody's different.
Some people don't have a cant at all. Some people
walking dancing like celebrities have it. It's like you have it.
You look like a regular person, you know, So you
just it's everybody's different. And that's the crazy part. It
doesn't mean that they're not going through something, but it's
(42:09):
just that their experience is different from mine. And I'm
at this point. I have a cane, and I'm good
with the cane, and I just hope it doesn't get
worse to where I have to do something else. That's
why I'm trying to move my legs and everything. Even
while I'm talking, I'm getting stiff.
Speaker 1 (42:32):
All right, well, and I'll you know, we're almost done.
Don't worry. And the physical therapy. You're still doing that, right?
Speaker 2 (42:40):
Actually no, I finished. I finished, but I learned a
lot because I thought my left side was weak, but
really my right side was weak and I had the
I was carrying the holding the cane on the wrong hand.
So what I found out is my left side was
compensating for the weakness and my right side. And ever
(43:01):
since then, I'm like, I started noticing my legs, like, oh,
it is true. My right side was weaker than my left.
It was given me more issues with movement. I could
pick up my left leg, I wouldn't feel anything. I
picked my right leg and I could feel the you know,
the it takes more an effort to move it. And
(43:22):
that's when my eyes I was like, oh my gosh,
all these all this time I was doing it wrong.
I mean all these I'm right handed, so I had
became in my right hands for many years, over ten years,
so now I have to redo what I did. And
then I was given a brace, which I don't wear often.
(43:43):
You see, I'm still learning. So we used to put
on the brace, and because I really needed more for
my right leg, so I had it in therapy and
I felt good. I mean, I felt strong walking. I
just need to go back and use it like I'm
supposed to. Yeah, it's one of the things you have
to do.
Speaker 1 (44:05):
So so now so you've you've you've overcame a lot,
you know, because it's been twenty years since you went
through all this. So so now what would you So
I guess I'll put it this way. Actually, I'll put
(44:33):
it like this. So where do you where do you
see yourself in like five years, ten years? We'll start small.
Where do you see yourself in five years? And in
terms of your.
Speaker 2 (44:43):
Illness, hopefully I stay the way that I am, I
don't get worse. So I'm trying to find ways to
stretch my legs. So yesterday, no, actually this morning, I
started doing more stretches and I'm like, oh, this helps.
So I'm going to do more things to stretch my
(45:07):
legs so I wouldn't get worse. So right now, I'm
going to just continue the new medication. I'm going to
use my braids, I'm going to stretch, so I'm going
to use what I have so that I can do
better for myself and save my energy. So I can
just do better in general with this, with this illness.
(45:30):
In five years, hopefully I'm I'm the way that I
am right now.
Speaker 1 (45:34):
That's worse. Things don't get worse, things don't get better.
Just I just want to stay where I'm at.
Speaker 2 (45:40):
Yes, yeah, yes, yeah.
Speaker 1 (45:43):
Yeah, Okay, wonderful, wonderful. I wanted to ask have you
experienced like changes in your mood? I know you talked
about depression, but changes in your mood or do you
feel yourself Do you feel more tired unusual?
Speaker 2 (46:01):
Oh, definitely tired. It's the heat makes it worse. And
so to go to my room, I have to go
up the stairs and like, oh do I really need
something in our room? Y'all really need it today right
now the second. So I have to make an adjustment
on what I'm going to do depending on my strength
(46:24):
at the time. So let's say, if I take a shower,
I make sure I'm sitting down at least ten fifteen minutes.
I've been doing that lately, sitting down. Just make sure
my legs are comfortable, I mean more rested. Because you're
taking a shower, you're standing up right, So I don't
want to be standing up for a long time doing
(46:45):
someone else standing up, doing something else standing up. So
I'm just trying to do something different. Actually has helped.
It really has helped. Like if I'm washing dishes, I
put the dishes in there that I sit down for
a few minutes, then I go back and wash it,
sit down for a few minutes. It just takes a
little longer. But I just had to do that to
save my energy so I don't fall or do something else,
(47:07):
you know, with.
Speaker 1 (47:08):
My hair and and taking and bathing yourself. You do
that yourself? Do you have? You do that yourself? So
you don't you don't have an aid right now? You
just have no no aid, okay, And I'll wrap it
up with I will ask about insurance. Just listening to
your story, I think of you on my own father
(47:31):
and and all of his health issues. So how is
it with insurance paying for all this treatment.
Speaker 2 (47:38):
Yeah, I have Meta care mm hmm and Medicare I
was able to do just C. I can't find I
can't find a word the C one level C like
have a B and C Medicare advantage.
Speaker 1 (47:54):
That's the word advantage. Yeah, my dad has.
Speaker 2 (47:56):
That Medicare advantage. So and I've been with this particular
company for a while, over ten years. Yeah, I use
a certain company and I'm not sure I can say
it or not, but I don't know. So I found
it and they have been the best for me. I
(48:18):
have a good doctor. It caused my medicine reason more
prices for me, and I'm not changing it. It's going
to stay where it is. It helps me, insurance covered,
it helps me, and I'm like it. I really do.
Speaker 1 (48:33):
Awesome, awesome, awesome, awesome. All right, well listen, this is
the let's start to wind things down. So this is
the part of the show where I like to ask
my guests to share worth of wisdom with our audience. So, Talisa,
do you have any worth of wisdom that you like to.
Speaker 2 (48:54):
Share wisdom for anyone? Oh?
Speaker 1 (48:59):
Thank God?
Speaker 2 (49:00):
Think of is depending on whatever you're going through in
your life. Just keep moving forward. You make it, make
it stuck, but you have to keep moving forward in
order to overcome whatever that is that you're going through.
So just keep moving forward and don't stop because you're
(49:22):
the only one that can make your life better. So
just do whatever you need to do for yourself and
just keep moving forward.
Speaker 1 (49:28):
That's it, all right, simple to the point. All right
to Lisa, thank you for coming on Hot Topics and
sharing your story and giving us all the fabulous words
of wisdom. So we have made it to the promotion part.
(49:49):
So let's let's do that, all right, you guys. So
Talisa Humes not much out there. She just has a
website and an Instagram and that's it. So she is simple.
So if you want to learn more about her and
what she has to offer, you can go to her website.
(50:11):
It is cemmed dot com and she is also on
Instagram cemds app, and so make sure you visit that website,
make sure you follow her on Instagram learn more about
her and her business. So, speaking of business, you have
(50:33):
an app that you have out right now, So I
am going to put that up on the screen for
my video people, But you have an app right now,
on the App Store that you are promoting, So tell
(50:54):
us about your app.
Speaker 2 (50:56):
Oh so, and I want to say about two thousand too.
I created the app because over the years, I had
several medications and I'm using an app to help me
remember to take it. But what I noticed is that
the pills I was getting from the pharmacy look different
(51:17):
from the app that I was using to help me
remember to take the medicine. So searching the App store,
of the Apple Store, anywhere to see if I could
take a picture of the medication because everything looked different
and I couldn't find anything. And then I found that
I can make an app. So I went to a
class learned how to do it, and as a result,
(51:41):
I created c Meds and I have it available in
the Apple Store because of that. It is really it
really helped me because I can actually take a picture
of the medicine that I have because sometimes it changes
for me too, and so it helps me remember because
when the notification comes up, I see a picture of
the actual medicaid and I can take my medicine and
(52:03):
I know that I'm taking it correctly because I had
the peel in my hand and I have the app
to verify them doing it at the right time with
the right medication. So that's where I am with that.
Speaker 1 (52:20):
Oh I'm muted. Sorry, And you use it for yourself personally.
Speaker 2 (52:24):
Yes, I do, Yes, I do.
Speaker 1 (52:27):
So, so it's like a it's like a reminder. Especially yeah,
especially for people with polypharmacy who have to take five
or more pills. You know, it can be a lot
for someone to remember, right, So you have it organized
(52:50):
in your app where it's you have the name of
the pill. You have like the generic name and the
brand name. You have the color, the description, and you
have the times where you could you you can organize
it by the time of day that you take it.
Speaker 2 (53:08):
Correct. Yes, the other medication minded app that I had,
which is like a regular generic picture of them peel,
but they would mind. It has a screen that allows
you to take a picture of the medicine that you
haven't with you. Then you type in the name of
the medicine and the how long you take it, I
mean when you take it, and the time and it
(53:29):
hits saving and when the time comes you get a
pop up on your phone saying don't forget to take
this medicine, And it actually shows the picture of what
you're supposed to be taking at that time, so you
know that you're doing it the correct way at the
right time.
Speaker 1 (53:44):
Right, and then every day you track it right, so
you would indicate in the app, I took it today,
and then the time yes, and the time, and then
you indicate on the app that you took it and
they'll mind it yes, that's your okay, So it's like
a tracker. Yes. So what what what was the need
(54:08):
for this because you know, when we discussed it in
the preliminary interview, I brought up okay, if you know,
some people might be comfortable with all the taking from
the bottles. There's the pill containers now that organize it
by the day. So what what need did you see
(54:28):
for this app?
Speaker 2 (54:30):
So whenever you get the medicine from the pharmacy, they
give you the big form and say the pill like
a round circle with a number on it. But then
once you take it out the pill bottle, you separate
the bottle from the paperwork and you put into the
container and it's just a container that and so the
pills could fall out, they can go on the wrong slot.
(54:53):
And now you're like, okay, know what am I supposed
to be taking. We're supposed to look like because at
some time, even now I got have what four pills?
They all white circles. Now have to figure out am
I taking the right one? Even now I'm like, okay,
it's just the right one. And look at the picture.
Because they're white circles, they all look the same. So
after a while you're like, okay, what am I doing? Right?
(55:15):
And so with the picture of it that you already
save in the app, it will help you because once
you separate it from the pill bottle, then you don't
know what is because everybody don't care the pill bottle
when they travel, when it goes somewhere, they just have
it in the nice, pretty one week container that you
preduce that you do every week to make sure you
(55:36):
take it at the right time on the right day.
So that's the purpose, because you separated from the paper
that you get originally from the pharmacy. And I think
that's another way to kind of help you keep organized
on what to take and when to take it.
Speaker 1 (55:53):
Right. Right, it's all in one place right instead of
because the farm to see that I go to, they
attach like these information booklets to like it to the bag,
and it could be a lot of instead of having
like all these different booklets and leaflets, you know, everything
(56:18):
is it's just in one place on the app.
Speaker 2 (56:20):
Yeah. Even sometimes I get mail order. I remember seeing
it's sent a picture of the pill, but it's a
black and white picture. Like, how am I supposed to
know what the pill looks like? They sent me a
black and white picture of a pill and say this
is the name of it. I mean, are you serious?
That's difficult? And then to remember that, I'm like, yeah,
(56:43):
it's hard. It was hard for me, and I think
it's hard for other people as well.
Speaker 1 (56:49):
Right, And so the pictures are in color so you
can literally see it. Yeah, and then the pictures you said,
the client can take the picture and.
Speaker 2 (56:58):
Upload it, okay, yes, and it stays in the system.
Speaker 1 (57:02):
Yes, God, good, good? All right? Is it free to use?
Is there a fee? How does that work?
Speaker 2 (57:09):
Now? It's free to use? Yeah, I'm just it's still
in the early process, so it's free to you. So yeah,
anybody can use it, and they can use it and
they get notifications, so it's working properly. So it doesn't
have any a lot of functions on It's not like
high tech and different gadget is just straight to the point.
What peel do I need to take? Let me take it,
(57:32):
make a notation that it did, and then you move on.
Nothing fancy, Keep it simple because I have enough things
to worry about, right and I have to word about
other things, you know, So keeping it simple is really good.
Speaker 1 (57:43):
That's good. That's good, all right, you guys. Well you
heard it here, so download her app. It is for
free right now, it is only on the App store,
excuse me, on the Apple Store, sorry to my Android user,
but right now it is only on the Apple Store,
(58:05):
but you are working on getting it on the Google
Play Store, correct, yes, so it's yeah, all right, Android users.
It's a work in progress, so which is another reason
to stay in touch with her, right so make sure
you follow her on Instagram as well to keep an
(58:25):
eye on that. But right now, it is only on
the Apple Store at this time. But yes, I'll just
say that information one more time. So again, to learn
more about Talisa and her app, it is go to
our website seemmed dot com and you could also follow
her on Instagram see Med's app. So that is so
(58:50):
this information of course is on the screen right now.
For my video people before my audio podcasting people. It
is in the description. All of these links are in
the description, so one way or another, you are getting
this information. All right, well, Talisa, thank you so much
(59:12):
for joining me today and thank you for coming on
Hot Topics.
Speaker 2 (59:17):
Thank you for having me. I really really appreciate you
and welcome me on this show. Thank you.
Speaker 1 (59:22):
All right, so you can rest yourself now. I'm gonna
put you off camera. Your time is done, thank you. Yeah, yeah,
all right, you guys. Uh So that is it for
that conversation. So we've reached the conclusion of another episode,
(59:44):
but before we go on. So whenever I I'm just
gonna share this screen so you know, whenever I do
these chronic illnesses, these this particular thread, I like to
have my facts available to you in terms of the
(01:00:08):
illness itself. So this is from the MYO Clinic. So
I just wanted to just go over it briefly. I'm
not going to read all of it, but just to
kind of give well, it's not the Myoclinic. This is
Google AI. So according to Google AI, what is multiple sclerosis?
(01:00:29):
So I'm just going to just read what it says here.
Multiple sclerosis or commonly known as MS, is a chronic,
often unpredictable disease that affects the central nervous system, which
is the brain and spinal cord. It is an autoimmune
disorder where the body's immune system mistakenly attacks the myelin sheath,
(01:00:51):
the protective covering of nerve fibers. This damage disrupts communication
between the brain and the rest of the body, leading
to a wide range of symptoms. So, like that analogy
which I liked earlier, It's like the iron is plugged
into the wall and the electricity goes from the wall
to the iron, but if the cord is broken, the
(01:01:14):
electricity can't go through and the iron can't turn on.
So it's sort of like the brain. The messagers from
the brain is not reaching parts to your body, right
because there's something wrong with the messaging part of that
communication system. So just some common symptoms, like te Lisa
(01:01:34):
was talking about, Fatigue is one of them, where you're
really tired. She's tingling in her feet, which is another one.
Balance and coordination, which is another symptom. The overact of bladder,
so bladder dysfunction, that's another one. She did say, depression,
so mood changes there, muscle weakness, she says, she gets dizzy.
(01:02:00):
I'm not sure that's attributed to a vision problem, but
vision problems are another common symptom of multiple sclerosis. So
I just wanted to share those to share that information,
there's just some extra facts for you, and of course
I should give this disclaimer. I'm gonna start giving these
(01:02:22):
medical disclaimers, but of course, if you are experiencing any
of those symptoms, please see your doctor. All right, beautiful, Well, well,
thank you again for joining me on another episode of
Hot Topics. So let me just take this moment to
remind you about the powers that be behind this podcast.
(01:02:45):
So the powers that be is me pretty much and
my company a step ahead tutoring services. So we're a
company that we come out to you in person. So
it really is for our local area at this time,
(01:03:07):
which is New York City and Nasau County, So our
tutors come out to you in person if you happen
to be in those areas. So we do maths, we
do reading, language arts, we do writing, mostly the core
subjects and excuse me, mostly the core subjects from third
(01:03:29):
to twelfth grades. So that's where we are focusing on
right now. But we also do SAT prep as well,
SAT Prep ACT, the sh STT for our New Yorkers
regions prep all that. So we do a lot of
test prep as well. We also do college counseling. We
(01:03:50):
do collaborative editing and proof reading. Well, we'll help you,
will coordinate with you to improve that paper. So there's
a lot of services that we offer under our umbrella,
and I encourage you to take advantage of those services.
So if you happen to be in the New York
City or in Nasau County, Long Island, our tutors come
(01:04:10):
out to you in person and we can provide that
to you. If you are not in those areas, or
maybe you are, we really don't want people rolling up
in your house or you know, you don't really want
to be around people. We offer virtual services as well,
so we are in person and we are online. So
(01:04:31):
wherever you fall in the spectrum, I encourage you to
connect with our tutors. So our information is on the
screen right now, but I will tell you the website.
The website is www dot a Step Ahead Tutoring Services
dot com. So the website again www dot Step Ahead
Tutoring Services dot com you can also find us on
(01:04:53):
multiple social media platforms. We're on Facebook, Instagram, LinkedIn, YouTube, Twitter, Akax,
and TikTok. We're also on event bright as well because
we also host virtual workshops, and you can find us
on WhatsApp, you know, if you want to communicate with
us on WhatsApp. So we're across multiple platforms, and I
(01:05:17):
encourage you to subscribe. I encourage you to like our account, subscribe, follow,
whatever the call to action is, I encourage you to
do that. But yes, all of this information, of course,
you can get on the website, which is once again
www dot a step ahead tutoring services dot com. I
(01:05:40):
also encourage you to follow me personally, so all that
stuff is for my business, so you could also follow
me personally on Facebook, Instagram and LinkedIn. So on Facebook
and Instagram, my account name is Gabrielle dot Critchlow, so
there's a period in between my first and last name.
On LinkedIn, however, it is a dash between my first
(01:06:04):
and last name, so it is Gabrielle dash Crichlow for LinkedIn.
On Facebook and Instagram, it is Gabrielle period Crichlow. So
I encourage you to follow me personally as well, so
follow me personally and professionally, so I should rephrase it
(01:06:24):
like that. So follow me personally right on Facebook, Instagram, LinkedIn,
and also follow my company a step ahead tutoring services
on all those accounts that I gave you, which of
course is at the bottom of the screen right now
or in the description. So, however you are taking in
the sound of my voice, I encourage you to come
(01:06:47):
to the light. Come to the light, all right, And
one last thing before I run, I encourage you to
leave a comment, give us a rating. So wherever you
are taking in my aura, and you know, if you
are watching this on video, please take like five minutes
(01:07:08):
and leave a comment in the comment section the leave
a comment down below in the comment section. If you're
listening to this on a podcast, a lot of these
podcast platforms have comment sections now, so Apple Podcasts is
a big one. So I encourage you to leave your
(01:07:28):
feedback in the comment section. Did you love it? Did
you hate it? Did you have questions of your own?
Maybe you want to share your own MS story, whatever
it is, Take five minutes and leave your comments in
the comment section or in the comment thread. I encourage
you to do that. So the more comments that you leave,
(01:07:49):
the more that this episode will circulate on social media.
That is how the robots work. So I'm asking you
to feed the robots. I should have a hashtag. Hashtag
feed the robots. So I'm asking you to feed the robox.
Feed the robots by manipulating the algorithm to our advantage
(01:08:17):
by leaving comments down below in the comment section. So
the more comments you leave, the more that this episode
will circulate across social media. So please take five minutes
help us out give us your feedback about today's episode.
All right, you guys, Well that is it. I thank
(01:08:38):
you for joining me on another episode of Hot Topics.
I look forward to you joining me on the next episode.
Thank you guys, and now I am signing off. Bye
(01:09:11):
n