Love Doesn't Pay The Bills
In Love Doesn't Pay the Bills, we explore the role of family caregivers in the modern United States through personal stories and interviews with leaders. Care work is vital to all other aspects of life, yet often under-resourced. Caregivers cannot house and feed ourselves or provide for our own medical needs based on our love for our family members alone: access to income matters. We also have the same needs as other workers for regular time off, to participate in social life and recreation, and for ongoing education and new opportunities over time. email Lisa: lisatschudi@twosquaredmediaproductions.com Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
Episodes
April 24, 2025 • 28 mins
Informal or natural supports are care that is provided as part of a relationship, unpaid and outside of particular organizations or structures. It's what we build relationships from and a deep part of being human. Formal supports are the paid caregivers who do specific tasks at specific times as part of a paid job within some kind of organization. For example: A parent providing care for their own child is informal support, and a...
Mark as Played
April 17, 2025 • 21 mins
Financial impact can be one of the most difficult aspects of being a family caregiver. Suzanne Ricklin joins us to discuss the particular impact of caregiving on Women investors, and encourages each of us to start small because saving even a little bit can make an impact on our future financial situation. She talks about hiring a financial advisor and why women have particular advising needs.
Suzanne Ricklin serves as vice presi...
Suzanne Ricklin serves as vice presi...
Mark as Played
April 3, 2025 • 28 mins
Jay Chaudry and Lisa get philosophical about care. We acknowledge the multi-faceted nature of care as a main feature of the human experience. Beyond narratives that place care firmly on one side or the other of various binary descriptions, care is woven in many ways throughout our lives. What does this have to do with public policy? How might we change our advocacy if we view care as an important, key part of our humanity?
Read...
Read...
Mark as Played
We've talked a lot recently about possible cuts to Medicaid. One possible way de facto cuts could be implemented is work requirements. Mary-Beth Malcarney joins us to talk all about how such requirements would impact people who currently use Medicaid, family caregivers, and in fact, everyone in the US, including those using private insurance. Caregivers will understand that sometimes, while we may qualify for a formal program, d...
Mark as Played
There are threats to Medicaid among many other services, and today we talk about how to help preserve access to public services for disability related support needs that help both caregivers and people with disabilities. There are various approaches each individual can take to make an impact on public services. If we each do what we can, where we are with the resources we have, people with disabilities will receive the formal pu...
Mark as Played
March 13, 2025 • 35 mins
What is the care provided by family caregivers financially worth? We discuss the value of unpaid care in America, how this value is beginning to be recognized or properly supported and what listeners can do to help make sure it is.
"Susan C. Reinhard is the chief strategist emeritus for the Center to
Champion Nursing in America, a national resource center created to
ensure that America has the highly skilled nurses it needs to prov...
"Susan C. Reinhard is the chief strategist emeritus for the Center to
Champion Nursing in America, a national resource center created to
ensure that America has the highly skilled nurses it needs to prov...
Mark as Played
March 6, 2025 • 25 mins
With recent threats to Medicaid funding, we discuss why Medicaid is important to care in the United States, what it is and what cutting funds might mean.
- “More than 72 million people have health insurance through Medicaid – that’s more than one in five Americans. It covers children, senior citizens, people with disabilities, parents and adults without dependents. In addition, more than 7.2 million children are enrolled in the C...
Mark as Played
February 20, 2025 • 38 mins
Mike George helps families rewrite their caregiving story – from one of sacrifice and exhaustion to one of joy, strength and resilience. A family caregiver himself for 3 decades, Mike intimately understands the burdens of supporting the primary care of a loved one. But he also knows the tremendous fulfillment it can bring. This lived experience led him to create The Soaring Families WayTM, a proven method that can be every family’s...
Mark as Played
February 13, 2025 • 29 mins
Dr. Merle Griff is the author of the author of "Solace in the Storm: Caring for Loved Ones of Every Generation" as well as the owner of SarahCare Senior Solutions. She has lived experience caring for two family members: her mother and her husband. Lisa talks with Dr. Griff about ways to maintain healthy communication in relationships as family caregivers, particularly listening to the care recipient deeply. She also suggests micro...
Mark as Played
February 6, 2025 • 37 mins
The Chief Executive Officer and President of the National Alliance for Direct
Support Professionals (NADSP), Joe Macbeth joins us to talk about the labor pool for these employees. Joe's experience in the field of intellectual and developmental disabilities(IDD)
goes back 42 years - beginning as a direct support professional(DSP). Macbeth is recognized as an international leader when it comes to advocacy to recognize direct support as...
Support Professionals (NADSP), Joe Macbeth joins us to talk about the labor pool for these employees. Joe's experience in the field of intellectual and developmental disabilities(IDD)
goes back 42 years - beginning as a direct support professional(DSP). Macbeth is recognized as an international leader when it comes to advocacy to recognize direct support as...
Mark as Played
January 30, 2025 • 32 mins
Calli Ross returns to the show to discuss a bill currently making it's way through the Oregon state legislature. Named for her son, Tensy's law will make good on the legislative intent behind OR SB91 passed in 2023. SB91 created a waiver for children with very high disability related support needs to pay their parents as direct support professional (DSP) providers under Medicaid Home and Community Based Services. However, SB91 ...
Mark as Played
January 16, 2025 • 29 mins
Susanne cared for her mother and her father simultaneously. Out of that experience grew Susanne's service to other family caregivers: Caregiverwarrior.com and the book Self Care for Caregivers. She shares wisdom from her intense caregiving. She writes that self care is "Not All Bubble Baths and Yoga Pants" and at LDPTB we agree! Nontheless, treating oneself with kindness matters in the most high acuity care situations. Instead...
Mark as Played
January 9, 2025 • 36 mins
Our guest today is Becky Curran Kekula. Becky is a disability inclusion advocade. She is a speaker and movie industry equity and inclusion expert. Her experiences of both achrondoplasia, which is a form of drawfism, and medical motherhood give Becky a unique persepective on care.
http://www.beckymotivates.com/About-Us.html
Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/su...
http://www.beckymotivates.com/About-Us.html
Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/su...
Mark as Played
December 26, 2024 • 42 mins
This episode was originally published on March 7, 2023. The Guest this week is Calli Ross who is a family caregiver and leader in the movement in Oregon to allow parents to be paid for providing extraordinary care to their minor children with disabilities. In the 2025 legislative session, Tensy's law, named for her son will be introduced to eliminate the lottery system that was created with SB91 which allows only about 10% of ot...
Mark as Played
December 19, 2024 • 35 mins
Lynn Abaté-Johnson joins Lisa to discuss the breadth and complexity of our human feelings as caregivers, particularly at the holidays. We reflect on the paradox that embracing difficult emotions can bring more ability to adjust to them, live with them, and notice the more pleasant ones which can exist right alongside them.
After being a primary caregiver for her mom for over six years, International Best-Selling Author & Speak...
After being a primary caregiver for her mom for over six years, International Best-Selling Author & Speak...
Mark as Played
December 12, 2024 • 22 mins
Jessica Patay is the founder and executive director of We Are Brave Together which brings together and uplifts over three thousand parents of children with disabilities. When her son was diagnosed with Prader-Willi syndrome, she met a warm community of famlies whose child also experienced the condition. We Are Brave Together creates a similar experience for many more moms whose children experience a wide variety of disabilities. ...
Mark as Played
December 5, 2024 • 29 mins
When we move away from specifying the care recipient's disease to focus on the caregiver, we find that different ways of talking about care experiences are very useful and descriptive. The Rosalynn Carter Institute for Caregivers together with Duke University created a system to describe various caregiver experiences called Caregiver Profiles: Are you learning about a new diagnosis for your family member? or maybe managing a sta...
Mark as Played
November 28, 2024 • 5 mins
A heartfelt wish for your holiday season from Lisa.
May your coming month be full of moments that you genuinely enjoy!
Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
May your coming month be full of moments that you genuinely enjoy!
Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
Mark as Played
November 21, 2024 • 26 mins
This is a must listen episode! Elissa Strauss brings to the podcast her deep contemplation of all aspects of caregiving.
Elissa is the author of "When You Care", which is described as an “urgent and necessary book” by Rebecca Traister, New York Times bestselling author and we agree.
How do we see care as the huge profound experience that it is?: Care is just as worthy of storytelling, respect, and material support as mountain cli...
Elissa is the author of "When You Care", which is described as an “urgent and necessary book” by Rebecca Traister, New York Times bestselling author and we agree.
How do we see care as the huge profound experience that it is?: Care is just as worthy of storytelling, respect, and material support as mountain cli...
Mark as Played
November 14, 2024 • 42 mins
In this re-launch of the podcast, we talk data around caregiving. Denise Brown is with us to talk about data, why it matters and her tool to help you view some of your own numbers. Why do we need the numbers around care? We have some compelling reasons.
Explore your own caregiving stats
The Data Story of Caregiving event registration
Denise supports individuals managing difficult life experiences with coaching, planning and trai...
Explore your own caregiving stats
The Data Story of Caregiving event registration
Denise supports individuals managing difficult life experiences with coaching, planning and trai...
Mark as Played
Popular Podcasts
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.
Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Follow now to get the latest episodes of Dateline NBC completely free, or subscribe to Dateline Premium for ad-free listening and exclusive bonus content: DatelinePremium.com
Ding dong! Join your culture consultants, Matt Rogers and Bowen Yang, on an unforgettable journey into the beating heart of CULTURE. Alongside sizzling special guests, they GET INTO the hottest pop-culture moments of the day and the formative cultural experiences that turned them into Culturistas. Produced by the Big Money Players Network and iHeartRadio.
The World's Most Dangerous Morning Show, The Breakfast Club, With DJ Envy And Charlamagne Tha God!
The Clay Travis and Buck Sexton Show. Clay Travis and Buck Sexton tackle the biggest stories in news, politics and current events with intelligence and humor. From the border crisis, to the madness of cancel culture and far-left missteps, Clay and Buck guide listeners through the latest headlines and hot topics with fun and entertaining conversations and opinions.