Love Doesn't Pay The Bills: Highlighting the Value of Family Caregiving

Love Doesn't Pay The Bills: Highlighting the Value of Family Caregiving

In Love Doesn't Pay the Bills, we explore the role of family caregivers in the modern United States through personal stories and interviews with leaders. Care work is vital to all other aspects of life, yet often under-resourced. Caregivers cannot house and feed ourselves or provide for our own medical needs based on our love for our family members alone: access to income matters. We also have the same needs as other workers for regular time off, to participate in social life and recreation, and for ongoing education and new opportunities over time. email Lisa: lisatschudi@twosquaredmediaproductions.com Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support.

Episodes

May 7, 2026 30 mins
"Conventional measures of economic success don’t capture the experience of everyday life in the U.S. The stock market is booming, and Gross Domestic Product is trudging upward. But inflation remains endemic, and the cost of care services is going up even faster than the “cost of living” measured by the standard Consumer Price Index." -Nancy Folbre

What economic picture do we get when we ask questions about how people use all of thei...
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Welcome back to the relaunch of Love Doesn't Pay the Bills: Highlighting the Value of Care Work! 

Guest Laura Mauldin is the author of "In Sickness and In Health", about America's failure to properly support citizens who are chronically ill or disabled, instead relying on the unpaid labor of spouses.
Laura interviews care recipient and caregiver dyads who are romantic partners.

Laura shares some of her own experience caregiving for a ...
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Informal or natural supports are care that is provided as part of a relationship, unpaid and outside of particular organizations or structures. It's what we build relationships from and a deep part of being  human.  Formal supports are the paid caregivers who do specific tasks at specific times as part of a paid job within some kind of organization. For example: A parent providing care for their own child is informal support, and a...
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April 17, 2025 21 mins
Financial impact can be one of the most difficult aspects of being a family caregiver.  Suzanne Ricklin joins us to discuss the particular impact of caregiving on Women investors, and encourages each of us to start small because saving even a little bit can make an impact on our future financial situation.  She talks about hiring a financial advisor and why women have particular advising needs.  

Suzanne Ricklin serves as vice presi...
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Jay Chaudry and Lisa get philosophical about care.  We acknowledge the multi-faceted nature of care as a main feature of the human experience.   Beyond narratives that place care firmly on one side or the other of various binary descriptions, care is woven in many ways throughout our lives.  What does this have to do with public policy?  How might we change our advocacy if we view care as an important, key part of our humanity?

Read...
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We've talked a lot recently about possible cuts to Medicaid.  One possible way de facto cuts could be implemented is work requirements.  Mary-Beth Malcarney joins us to talk all about how such requirements would impact people who currently use Medicaid, family caregivers, and in fact, everyone in the US, including those using private insurance.  Caregivers will understand that sometimes, while we may qualify for a formal program, d...
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There are threats to Medicaid among many other services, and today we talk about how to help preserve access to public services for disability related support needs that help both caregivers and people with disabilities.   There are various approaches each individual can take to make an impact on public services.  If we each do what we can, where we are with the resources we have, people with disabilities will receive the formal pu...
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What is the care provided by family caregivers financially worth?  We discuss the value of unpaid care in America, how this value is beginning to be recognized or properly supported and what listeners can do to help make sure it is.  

"Susan C. Reinhard is the chief strategist emeritus for the Center to
Champion Nursing in America, a national resource center created to
ensure that America has the highly skilled nurses it needs to prov...
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With recent threats to Medicaid funding, we discuss why Medicaid is important to care in the United States, what it is and what cutting funds might mean.
  • “More than 72 million people have health insurance through Medicaid – that’s more than one in five Americans. It covers children, senior citizens, people with disabilities, parents and adults without dependents.  In addition, more than 7.2 million children are enrolled in the C...
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Mike George helps families rewrite their caregiving story – from one of sacrifice and exhaustion to one of joy, strength and resilience. A family caregiver himself for 3 decades, Mike intimately understands the burdens of supporting the primary care of a loved one. But he also knows the tremendous fulfillment it can bring. This lived experience led him to create The Soaring Families WayTM, a proven method that can be every family’s...
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Dr. Merle Griff is the author of  the author of "Solace in the Storm: Caring for Loved Ones of Every Generation" as well as the owner of SarahCare Senior Solutions. She has lived experience caring for two family members: her mother and her husband. Lisa talks with Dr. Griff about ways to maintain healthy communication in relationships as family caregivers, particularly listening to the care recipient deeply. She also suggests micro...
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The Chief Executive Officer and President of the National Alliance for Direct
Support Professionals (NADSP), Joe Macbeth joins us to talk about the labor pool for these employees. Joe's experience in the field of intellectual and developmental disabilities(IDD)
goes back 42 years - beginning as a direct support professional(DSP). Macbeth is recognized as an international leader when it comes to advocacy to recognize direct support as...
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Calli Ross returns to the show to discuss a bill currently making it's way through the Oregon state legislature.  Named for her son, Tensy's law will make good on the legislative intent behind OR SB91 passed in 2023.  SB91 created a waiver for children with very high disability related support needs to pay their parents as direct support professional (DSP) providers under Medicaid Home and Community Based Services.   However, SB91 ...
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Susanne cared for her mother and her father simultaneously.  Out of that experience grew Susanne's service to other family caregivers:  Caregiverwarrior.com and the book Self Care for Caregivers.  She shares wisdom from her intense caregiving. She writes that self care is "Not All Bubble Baths and Yoga Pants" and at LDPTB we agree!  Nontheless, treating oneself with kindness matters in the most high acuity care situations.  Instead...
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Our guest today is Becky Curran Kekula.  Becky is a disability inclusion advocade.  She is a speaker and movie industry equity and inclusion expert.  Her experiences of both achrondoplasia, which is a form of drawfism, and medical motherhood give Becky a unique persepective on care.  

http://www.beckymotivates.com/About-Us.html



Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlightin...
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This episode was originally published on March 7, 2023.  The Guest this week is Calli Ross who is a family caregiver and leader in the movement in Oregon to allow parents to be paid for providing extraordinary care to their minor children with disabilities.   In the 2025 legislative session, Tensy's law, named for her son will be introduced to eliminate the lottery system that was created with SB91 which allows only about 10% of ot...
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Lynn Abaté-Johnson  joins Lisa to discuss the breadth and complexity of our human feelings as caregivers, particularly at the holidays.  We reflect on the paradox that embracing difficult emotions can bring more ability to adjust to them, live with them, and notice the more pleasant ones which can exist right alongside them.

After being a primary caregiver for her mom for over six years, International Best-Selling Author & Speak...
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Jessica Patay is the founder and executive director of We Are Brave Together which brings together and uplifts over three thousand parents of children with disabilities.  When her son was diagnosed with Prader-Willi syndrome, she met a warm community of famlies whose child also experienced the condition.  We Are Brave Together creates a similar experience for many more moms whose children experience a wide variety of disabilities. ...
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When we move away from specifying the care recipient's disease to focus on the caregiver, we find that different ways of talking about care experiences are very useful and descriptive.  The Rosalynn Carter Institute for Caregivers together with Duke University created a system to describe various caregiver experiences called Caregiver Profiles:  Are you learning about a new diagnosis for your family member?  or maybe managing a sta...
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November 28, 2024 5 mins
A heartfelt wish for your holiday season from Lisa.

May your coming month be full of moments that you genuinely enjoy! 

Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support.

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Subscribe to Lisa's blog on Substack.
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