June 4, 2025 • 64 mins
Prepare to be profoundly inspired! 🌟 This week on our podcast, we're honored to feature Dr. LaShon Gurrola, a true Lupus warrior who achieved the extraordinary feat of completing her doctorate while navigating the challenges of autoimmune disease. Dr. Gurrola's story is a testament to unwavering determination, powerful self-advocacy, and an insatiable love for knowledge. She shares how she pushed through unpredictable flares, debilitating brain fog, and the exhausting reality of invisible symptoms to realize her academic dreams. Don't miss this deep dive into her remarkable journey. Tune in to learn how Dr. Gurrola redefined what's possible, proving that #AutoimmuneAndAccomplished isn't just a title, it's a way of life.
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Join your host, Savannah Burks, as she explores the struggles and triumphs of individuals navigating their health journeys, all while juggling life's many challenges. Don't miss an episode! Subscribe, listen, and share on all major podcast platforms. For more content and updates, follow us on social media and join the conversation.
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Join your host, Savannah Burks, as she explores the struggles and triumphs of individuals navigating their health journeys, all while juggling life's many challenges. Don't miss an episode! Subscribe, listen, and share on all major podcast platforms. For more content and updates, follow us on social media and join the conversation.
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Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
M m m h were asweeded.
Speaker 2 (00:16):
Your street up?
Speaker 1 (00:22):
M m m m m m m mm hmmm.
Speaker 3 (01:24):
Hello, hello you guys.
Speaker 2 (01:25):
Thank you for tuning in to another wonderful Wednesday where
Lucas has No Face podcast, which are a wonderful hosts,
Savannah and I have a special guest, my sister, doctor
Lashan Corolla. How are you doing today.
Speaker 1 (01:42):
I am good.
Speaker 2 (01:43):
I am on my last leg here, and I'm saving
the last spoon for you, Savannah, just for you.
Speaker 3 (01:50):
See how special I am you guys, But I'll do
the same.
Speaker 1 (01:53):
I will do the same heart, So I'm supporting your paraphernalia. Yes,
is that you're wearing? I beg your pardon?
Speaker 3 (02:04):
What is that you're wearing?
Speaker 1 (02:05):
I'm wearing your brands?
Speaker 3 (02:10):
That's right.
Speaker 2 (02:10):
You heard what she said. You guys got no face charts?
Please post them because we want to see him. It's
lupids three hundred and sixty five days out of the year,
not just for May.
Speaker 3 (02:20):
Okay, thank you so much.
Speaker 1 (02:22):
You're welcome, and you got your longer waited interview. And
I kept him from hitting the pavement in DC.
Speaker 3 (02:33):
You. Oh, we can talk about that. Hey. I still
I still don't believe.
Speaker 2 (02:39):
But she said yes, so I would let her have it.
That was something, wasn't it.
Speaker 1 (02:47):
Yes, I've never seen anybody sleep standing up. But it's okay.
I had you. I had your back.
Speaker 3 (02:54):
When I tell you they ran over to I'm like,
what is going on? She's sleep?
Speaker 1 (03:01):
She stands up. I'm like, Kim, and I forgot if
it was Kim or Levina was We came and got you.
I know that we moved real fast.
Speaker 3 (03:12):
Start up the mess out of me. You walked me
about my sleep?
Speaker 1 (03:15):
Walk who's sleep standing up? Somebody with loopis right?
Speaker 2 (03:20):
Boom, put up the put up the als. Thank you
so much for all of that. But let's jump right
into it.
Speaker 1 (03:32):
Let's go.
Speaker 2 (03:32):
Who is which I would like to call her top notch,
but who is doctor Lachelle Grola?
Speaker 3 (03:40):
Who is she?
Speaker 1 (03:41):
Who is doctor La Shangarola. I'm the same person you've
known for the last one four or five years. I
mean they don't know. Yeah, I'm just me. I'm just
like anybody else. I'm a mom, I'm a nurse practitioner.
I have a loopis. I'm a loop warrior. I'm a friend.
(04:01):
I'm a sister, I'm a daughter, I'm a gamma priro
Looper Sorority Incorporated Founder. I'm a Zeta Phi Beta Sorority incorporator.
I wear many hats. So today you have you have
the academic person because I believe you centered this around
(04:24):
the doctoral journey. So you have that person today.
Speaker 3 (04:29):
Okay, I appreciate it.
Speaker 2 (04:31):
We will be discussing autoimmune while accomplishing her doctorates. Yes,
she does have her doctorates and it's not crazy. But
for someone who has loupees that went into a nurse
practitioner and writes straight into the doctorates, Yeah, what was that?
Speaker 3 (04:48):
Like?
Speaker 1 (04:49):
I know people, you know, I know it sounds crazy,
and I know people thought, oh my gosh, she's doing
too much, and I heard that quite often, but sometimes
it just made me self reflect am I doing too much?
Or is that person commenting not doing enough? It wasn't
exactly planned, so I basically have been in school since
(05:12):
twenty twenty one. I think that spring quarter I started
my Nurse Practitioner FNP Family Nurse Practitioner track and I
knew towards the end of that track that I wanted
to continue. And one of the reasons I decided to
do that is because I was uncertain if I wanted
to go into administration if I wanted to go in
(05:34):
to a leadership role at work or start my own thing,
my own consulting business. So I thought the doctor would
suit me for that purpose. And then I had to
decide do I want to do DNP Doctor of Nursing
Doctor of Nursing Practitioner, or did I want to do
Doctor of Nursing Practice, or did I want to do
(05:56):
the DHA, which is the Doctor of Healthcare Administration. I
chose that DHA program because it has a huge business
organizational component that prepares you to lead organizations, to do
leadership role. And so that's what I did, And yeah,
it was crazy. I took a six month break in between.
(06:16):
So in between completing the nurse practitioner track, I took
six months off and then I transitioned into the doctorate program.
Speaker 2 (06:27):
Yeah, because every time we went out of town you
were studying, I had a laptop.
Speaker 1 (06:32):
I couldn't even kick it with your guys because we
go on here, I'm like, no, I'm not going to
take a test in the room. I remember when we
were in Saint Louis and I had a as soon
as we got out, the transportation got out of the cab.
I had to go straight up to the room and
log in and do a quiz. So that had been
my life for like three and a half four years.
(06:53):
You know, I try to balance work life social like
I try to do the sorority stuff and do the
family stuff, okay, do the academic stuff. And most times
I was able to jungle in balance. I mean, looking back,
God was really covering me, yes, because you were doing
a lot.
Speaker 2 (07:10):
Even in LA we will be at dinner or celebrating,
like I'll take a past.
Speaker 1 (07:17):
Yeah. But you know that that was that whole micro
managing my own schedule, Like I had to set certain
days for study. I already have a work schedule, Okay.
Then I had to compromise with my daughter at home.
I have one living at home. Like, hey, I can
only cook two times a week. Now you're used to five,
(07:37):
it's going down to two. Okay. We got to order
two nights and then two nights we could either do
leftovers or you could cook, or you could order or
whatever it's going to be. So I had to kind
of just strategize how even down to laundry, even down
to grocery shopping. So it was a lot So.
Speaker 2 (07:54):
That's why I look up to you because after finishing
my nurse and I always wanted to do practitioner. So
when you came along, okay, let me jump on board.
Then you went from your doctors, I said, listen, I
don't want to go.
Speaker 1 (08:07):
Back to school. You don't have to follow your path.
Everybody should follow like you following your path with this
media social media, with your YouTube and with your what
do you call it blogging and with your podcast, and
so that's your your way that you educate and advocate
(08:29):
for lupis. So my way is more on educational, on
health literacy, on health promotion. So we're doing the same thing,
We're just doing it different ways.
Speaker 2 (08:40):
And I'm glad that you say that because everybody got
their own way on how they want to advocate for lupers.
It doesn't have to be the same exact thing. You
can still reach people teaching it in different ways exactly.
And I talked to Dion Langley a lot about that,
Like he uses his music okay.
Speaker 1 (08:58):
And it has a way that he does. The Male
Lupis Warriors, Tech Team, Dream Team. Everybody has their their
different way, and no way is wrong, no way is right.
It's what what gifts and talents you have that you
use that to enable other people to number one, understand
(09:19):
and know loopis and number two to use your voice
in your platforms and your resources for advocacy and education.
Speaker 2 (09:30):
Absolutely, and I feel like that is what separates us
our individuality because we are individual people, but we collaborate,
which is the most important thing. Because some people or
some foundations don't collaborate. They see it as a threat,
a threat there you go. They say it as a threat,
and it's like we're fighting for the same exact thing.
(09:51):
So if your mission means what you say it means,
then you have no problem collaborating and doing partnerships with
others because it's only one loop is word?
Speaker 1 (10:02):
Right, Well you have to remember. So let me answer
that in a different way for you. Like I told you,
I had a choice between the DNP and the DHA.
So the DHA brain is saying a collaboration. You look
at it almost like a business deal. Right, So for
(10:22):
me to collaborate with you or for you to collaborate
with me, you look at, okay, what's in this for me?
Speaker 3 (10:29):
Actually?
Speaker 1 (10:29):
And that's how bigger organizations look at that. They're figuring
I already have sponsors, already have advertising. What can working
with loopas has no face bring to me? And if
it cannot bring them a bigger audience, if it cannot
bring them funding, if they cannot bring some tangibles that
they consider valuable, you'll get no collaboration.
Speaker 2 (10:53):
Absolutely, And I'm so glad that you said that to me,
because people like to collaborate without nothing. And at the
end of the day is for us to deliver our message.
But we still have to have fund and to do
a lot of the things that we do throughout the
year too.
Speaker 1 (11:06):
Yeah. And it's even like speaking on lupus. Okay, some
organizations offer honorarium, stiping, pay for travel. Okay, you know,
if you reach out or somebody reach out, I might say,
you know what, that's a fellow Looper's warrior. Let me
just jump on in here and do this, so I
(11:26):
don't necessarily look for something of a monetary value.
Speaker 2 (11:32):
Yeah, and I definitely understand that too, because you get
more it, you're blessed with more abundant sometimes when you
do that.
Speaker 3 (11:38):
But it got to be authentic, right.
Speaker 1 (11:41):
Did you say it had to be on video?
Speaker 3 (11:44):
No? Authentic? Yes?
Speaker 1 (11:46):
Yes, you know, because so you have to remember we,
like you said, we have the same mission, we just
go about it differently. So if my goal is to
reach more people, and you have a big audience, then
it would make sense that if I want to promote
Looper's awareness, promote advocacy, promote health literacy, then why not
(12:09):
be on your podcast?
Speaker 3 (12:11):
Absolutely? I love you for that. I love you for that.
Speaker 2 (12:15):
Okay, can you share your personal journey with lupus and
how it has shaped your career as a doctor?
Speaker 1 (12:23):
Huh? Okay, My personal journey with lupez began and twenty eleven. Officially,
I say officially because several years before that I obviously
had signs and symptoms that were diagnosed as something else. Absolutely,
the diagnose came at a very critical time in my life,
(12:47):
six months after a stressful a life event, and so
the doctors feel like that stressful life event just brought
the Loopers out of the dormant state that it had
been quietly, you know, waiting to for a moment to
come out. So that was in twenty eleven, and to
be honest with you, Savannah, it took me about a
(13:10):
good two years to come to terms with it because
I'm like everybody else. I had that anger phase. I
had that confused phase, even though at that time I
was a nurse. I got a blurb in school about lupus,
and then we went on to the next topic. So
(13:33):
I had to spend that two years learning more about it,
finding support. That's what led me to seek out a
support group. It was it was. It was a difficult
transition because personally I had just lost a spouse, my
(13:53):
family dynamics changed. I had two kids still wanting mom,
needing mom every or all day every day like the usual.
So I couldn't let this new diagnose stop me from functioning.
So I did take some time off work. Initially, I
slowly eased myself back, but Loopis kind of took it.
(14:15):
I didn't know which way it was coming at me
because when I was diagnosed, I had lung inflammation as
well as three other organs, so I didn't know how
this was going to turn out for me. I was
initially on chemotherapy and at least three other oral agents
(14:35):
to get it under control. So once it was under control,
I started I started running from a calling. The calling
was that I was supposed to do more with this Loopis.
I was supposed to help other people learn how to
deal with it, and I ignored this calling. I ignored it.
(14:56):
And it was actually my grandmother who told me I
need to stop running and just do what I'm being
called to do. And so that led me into facilitating
support groups and then branching off into other things in
the LUPUS community.
Speaker 2 (15:12):
Yes, that you. You are a very strong advocate. Like
your name rings bells. You know what I mean. And
when you show up and you do your thing, you
know exactly what it is that you talk about life.
You do not play when it comes to any of that.
And just by knowing you for these years, like you
(15:33):
never changed ever you may consently you are a whole
way through.
Speaker 1 (15:42):
Because this is my authentic self, right, I can't I
can't pretend to be you. I can't pretend to be
the next person. Is like I have my own style
of how I explain things. I like power points, I
like presentations. You like to talk. Somebody else might play music,
you know, beat the drums, somebody might shake the tambourine.
(16:05):
You know, we we all do.
Speaker 2 (16:07):
Our own little thing, and you do it with ease.
Like if I didn't know what Lucas was, and if
I was on a warrior, I would be like, dang,
you look healthy, Like how can you do all of
these things versus a healthy person haven't accomplished half of
what you accomplished. But I think I don't consider myself
that type a But I knew early on with this
(16:30):
diagnose that I wanted to.
Speaker 1 (16:35):
Beat it. If that makes sense, that's gonna it's gonna
affect my life. It's gonna change some things. It's gonna
I'm gonna have down days, I'm gonna flare up here
and there, right, But I was determined to still thrive
and survive with it and still show I wanted to
be the example to other people, like their journey might
(16:58):
not be to get a doctorate degree. Their journey might
be to open the restaurant. Their journey might be to
start a book club. Their journey might be to have
a podcast show. So the point is I was determined
through self determination. And you're like that innate thing in
you that tells you that you have to overcome and
(17:21):
you have to surpass all these challenging times, you know,
and that's not nothing. Nobody someone can give you self
determination or self motivation. You have to have that in you.
Speaker 3 (17:35):
Absolutely.
Speaker 2 (17:35):
People can speak to you all day and you and
praise you for the things that they think you do.
But if you don't have it in yourself when you
lay down at night, it's not going anywhere.
Speaker 1 (17:48):
No excuse me, you are. I have a little going
on the money before. But yes, you're right. With lupus,
you have two choices. Okay, you're gonna try to control
it as much as possible, or you're gonna let it
control you. Now, Yes, it's gonna modify the way you work.
(18:11):
I work under accommodations. I you know, filled out the
paperwork for school for accommodations, Like there are gonna be
times where maybe I gotta miss class right or maybe
my assignment might be a little late because I was
flaring up for two weeks and I couldn't get it done.
So I think everybody has to look at where it
(18:34):
is they. If you're at point A and you know
you want to get to point Z, whatever that point is,
you have to kind of map that road out, and
you got to be prepared for With lupus, you have
to be prepared for the unexpected. I didn't expect a
flare and be in the hospital and have minimally invasive
surgical procedure. And my last semester I did. I didn't
(18:55):
plan that, Yeah, but I told my kids, Uh, graduation
is in a few months. I don't care if you're
rolling me on a stretcher, across the stage, in a wheelchair,
on a scooter, on roller skates, or god forbid, in
a casket. Get the degree because we've all earned it.
That's a family degree.
Speaker 2 (19:13):
That is what I told my kids, and it absolutely
is just a touch on doctors.
Speaker 3 (19:18):
Your other two daughters are doctors, right.
Speaker 1 (19:22):
Alex is a firm d a pharmacy doctor, and Samantha
is a DPT, which is a doctor of physical therapy.
Am eldest is a master sergeant in the Air Force.
So you know, I can't complain about my kids and
how they turned down.
Speaker 2 (19:38):
Why why you don't need to cook an error at all?
Speaker 3 (19:43):
You you got somebody, You got a chef to come in.
Speaker 1 (19:47):
You know what these girls, I gotta tell you. Sometimes
you think they don't love you or they're not thinking
about you. But let me flare and let me send
a text I'm not feeling well. They are right on it,
right on it. The pharmacists is talking about the meds
and saying, mom, did you start the pregnan zone. The
(20:08):
pet is massage in my legs, getting keating ice and whatever.
The master sergeants getting me on video. I want to
see you, mom, let me see what you're doing. You
need to lay down, you need the rest. So they
come through all the time. That support. I could not
make it without that.
Speaker 2 (20:23):
Yes, and people do not understand support is everything. So
that's why it's so important.
Speaker 1 (20:27):
To number one, Yeah, you have God's grace, right, but
then support in your your support team, like who that is?
I had support mates at school, my doctorate program, my
cohorts when they thought that I was in the hospital. Uh,
doctor Kenneth Griffin and or the other one, doctor Mark Hart.
(20:49):
If they're listening, they we had a team project due
and they was like, okay, we got you. They were texting,
we got you. We interested stuff. We put it in there.
It's like they rallied, you know, they rallied for me
in February March.
Speaker 2 (21:04):
Yeah, and people don't understand like that support it holds hard,
like it's very important. That's why it's good to accept
what you have so you can start learning to live well.
With it, because if you don't accept it, you're just
going to be in a dark space.
Speaker 1 (21:18):
If you don't accept it and you don't learn, then
you don't learn how to manage and deal. So if
if you If some people you're emotional and mental stability
has a lot to do with how you handle a
chronic illness, h autoimmune or lupus, Okay, if you're mentally
(21:39):
and emotionally not strong, you're easily you're easily flustered, You're
you're easily affected by the things in your previous life
that now you can't do or now you have to
moderate with. It's very hard for you to mourn and
(22:00):
grow like mourn what lupas has reached having in your
life on but then still take steps forward to overcome and.
Speaker 2 (22:09):
Supersede absolutely, because pain can definitely play on your mental you.
Speaker 1 (22:14):
Know, all of it, the fatigue, the pain, all of it,
the emotional and speaking of pain, when I had this
last flare up and I had these assignments, still I'm
trying to do. I'm in the hospital with the laptop
right in the nursing. You didn't even pay medicine, I said,
I do, But if I take it, I would be
(22:35):
drownsing and I can't finish myst site. It's like you
constantly got to make choices on how are you going?
But when I finished that assignment, I pushed that button
said bring that medicine.
Speaker 2 (22:47):
On in spoken like a true warrior, spoken like a
true warrior. Ill has having influence your approach to patient
care and autoimmune disease.
Speaker 1 (22:59):
You know what? You know? That's that that the thing
we feel, the stigmatization or surrounding pain or drug seeking
and the when you go to the e ED saying
you you in pain and they're looking at you like
you look good what you're talking about and they know what.
It changed my perspective of how I view patients when
(23:23):
they can you know, uh rate their pain. And then
it also made me educate myself on what's called multimodal
pain management. So actually for my unit at one hospital,
became like the pain management expert for the unit because
we got a lot of sickle cell patients, UH, we
(23:44):
got a lot of cancer patients, a lot of uh
loopers patients, chronic and just chronic pain patients who were
used to taking high opioid amounts UH for their condition.
And so a lot of staff didn't quite know how
to treat them or take care of them because they
would say, Okay, you gave me my sixty milligrans, but
(24:05):
I'm still in paint. So they didn't know how to
navigate that, how to develop a care plan, and how
to offer alternatives for this patient to be comfortable. So
I actually became My dealings with LUFUS enabled me and
help me be able to take care of these patients
at a higher level.
Speaker 2 (24:24):
Of No, that is so beautiful and sad at the
same time, you know what I mean, Because if it
wasn't for you or whoever else made a difference on
their unit or they floor, they wing, then the doctors
will still view some doctors will still view that. And
it's just kind of like what do loopers look like?
Or what do pay look like? Or why do pay
have to have you looking not put together? Why do
(24:47):
pay have to not have you take a shower, not
do your hair? And that like why why is that?
Like what is the gap between looking like you want
to feel good and you're in pain versus you know,
coming in there and your pj's or something you want
to see what I'm saying.
Speaker 1 (25:07):
Yeah, And it's also cultural awareness because you know African Americans, Uh,
we handle pain differently. Uh perhaps a Latino maybe more
vocal uh and have more facial expressions or body language
expressing pain. So if me, I'm kind of stoic with it,
(25:31):
and like you, if I know I'm going to the hospital,
the first thing I want to do is shower, absolutely,
went on some green underwear, moisturize, put some baby all
on my feet, right, you know, in the hospital with
krusty feet my daughter like in the car, I'm like, no,
I gotta get ready first. Yes, And usually I'm trying
(25:52):
to either get the jail and slick the hair back
or up and wrap it up because I know I'm
gonna what's gonna happen when I get there, right So
I'm sure I don't look like I'm in pain when
I show up. But right now I'm at a six
out of ten. But I can laugh, I can smile,
I can make jokes with you. I can get through
this conversation because you get used to it and you
(26:16):
learn to adapt, because if you don't, then you will
need higher levels of pain medication to make it through
to day where I've had none all day, not even actually.
Speaker 2 (26:27):
For a couple of months, and that is not a
quality of life at all.
Speaker 1 (26:34):
Well, no, because what's not a quality of life? Having
pain or.
Speaker 3 (26:39):
Medication all day?
Speaker 1 (26:43):
I don't want to be you know, if you need it.
I don't want to judge people I drive, So yes,
a consideration being on pain medications limits your driving, your
ability to think, you might be drowsy, you might have
constipation issue, you could inside effects to everything. But so
(27:04):
if I need to take something, I will, but usually
in the evening once I'm home. I'm not going to
drive on any kind of pain medicine. Maybe a tailent
on or something like that.
Speaker 2 (27:14):
But like that, Yeah, Like I'm totally not against medication
at all. I'm just saying, like, for people that can't
accept or you know, find that tolerance to go all
day without having to take you know, pay mads every
couple of hours to be okay, it's not a quality
a lot.
Speaker 1 (27:33):
You know what I tell my patients turn on some music,
music therapy or roma therapy. I truly believe in that,
and I have actually taken on my cell phone at
times and played my playlist that smooth jazzy and I
give him some Thailand, I say, look your oxicond and dude,
in an hour, let me get you this tailan on
(27:53):
until then I come back with after the music, the
little massage they sleep. I'm like, great job.
Speaker 3 (28:01):
That is beautiful.
Speaker 2 (28:03):
We're gonna go on to the next question, but I'm
gonna have tone start with some of these questions or
things that our guest has rolling in the comments a tone.
When you ready, can you start putting on some of
those comments so doctor Lashawan can read them until you
do that. The next question is what accomplishments are you
(28:27):
most proud of in your career despite the obstacles post
by loops.
Speaker 1 (28:37):
Okay, so in my total career, I think I would
say the best accomplishments or the ones the things that
I feel most passionate about is making a difference. And
I'm gonna just real briefly say two things. I had
a guy who was in he got a diagnosis that
(29:01):
you can be terminal, and he felt like nobody was
listening to his complaints of pain. And before he left,
he and his wife wrote a note to me and said,
thank you for listening. Thank you you were the first
nurse to actually do something that made my husband feel better.
(29:25):
Another time, was a lupus patient, and this was during COVID.
I had a mask on. She couldn't see my face,
but doctor Jolly had asked me to go and see her.
She was about a young girl in her twenties and
her husband was getting ready to divorce her and take
the kids because he couldn't deal with lupus. And I
(29:47):
went to talk to her. The point of me talking
to her was to try to see if she would
like the lupis support group. And I told her I
had lupus and she told me I was a liar.
And I said, why do you think I'm lying? And
she said, because you're beautiful, And I said you're beautiful too.
She says, no, lupus is ugly. Lupas has made me ugly,
(30:09):
and you are pretty. You have pretty teeth and pretty
smell and pretty hair. You don't have lupus. And just
hearing how she felt about herself and just being able
to before I left that room have her smile and
be open and be accepting of support. Those are some
(30:35):
highlights of my career that I'm most proud of.
Speaker 2 (30:38):
That is so beautiful. I'm gonna comment on what you
said in just a few moments. But we're going to
put some comments on the screen, and I would like
if you can read them.
Speaker 3 (30:45):
Off all right, if I could see him? Okay, can
you see uh?
Speaker 1 (30:55):
Yeah, but I don't see anything. I don't see any
questions unless I'm am I supposed to going to.
Speaker 3 (30:59):
Chant what they say. Yeah, you just you're just reading
what they say.
Speaker 1 (31:03):
Okay, but let me go in the chair and see.
I see.
Speaker 3 (31:07):
I don't.
Speaker 1 (31:10):
I don't see anything to read.
Speaker 3 (31:12):
Oh my god, I read about so.
Speaker 1 (31:18):
Every No, I don't know.
Speaker 3 (31:20):
I don't know what's going on on your side.
Speaker 1 (31:24):
I don't know. You read it to me. I don't
see anything. It says you're in the show. Everyone can
see and hear you uploading recording. That's all I see.
Speaker 3 (31:34):
Oh you're not you on the wrong. That's for you.
You're supposed to still look at your.
Speaker 1 (31:41):
Let me here, you know, all right, I think I see,
I see. It's so uh. It's so defeating showing up
to the ed looking how I do, but in extreme pain.
It's like I have to convince them I'm hurting when
I don't even have the energy for anything. That's from
(32:04):
uh sue shaniya uh. And then Prati Patricia D said
the reason why my daughter became a nurse. So I
think she's saying her daughter became a nurse because of
her pain issues or how she was stigmatized or stereotyped
on her pain issues. And yeah, it is hard to
(32:25):
try to advocate for yourself for pain control when you're
feeling miserable. Thank goodness, I have my doctor on text message,
and believe me when I say, if I have a problem,
I go, look, they don't want to give me any
medicine in this ed call up here in some mortis
in and it happens like that.
Speaker 3 (32:44):
That part, that part.
Speaker 1 (32:48):
Saying if you don't put a bit of a log
in and put them in.
Speaker 3 (32:50):
Myself, look at that, Look at that. Everybody. Everybody else
got that doctor's degree. Everybody can't do that.
Speaker 1 (32:58):
Nothing to do with the doctor, just me.
Speaker 3 (33:04):
Thank you guys so much for tuning in. Hello to
you all. We you tuning in.
Speaker 2 (33:11):
We're going to continue the conversation. Keep keep the comments coming.
If we do not read the comments while you're on live,
we will definitely respond back to them, and you can
go on the YouTube. LUPUS has on face podcast and
our responder respond and what ways.
Speaker 3 (33:29):
No, so you said, oh my god, what did you say.
Your last comment that you just said, I just got the.
Speaker 2 (33:36):
Brain fog was pain or about the highlights of my career,
that I'm most proud of, the highlights of your career,
that you are most proud of making a difference, making
a difference for other people. Yes, that is so beautiful,
and that right there just let you know why you
cannot stop like those things right there. It's just like, okay,
(34:01):
it's just fuel you back up, like I'm doing I'm
doing what I'm supposed to do, you know, because sometimes
being an advocate and having our you know, nonprofits in
our regular life and you know, whatever is going on
in our life, sometimes we get tired and sometimes you know,
we do want to kind of like slow down. But
then you get that person in front of you and
it's like, you know, I can't. It ain't loud enough yet,
(34:22):
it ain't bolded enough for you. It's not in our
face yet, it's not on the radio yet, it's not
on that part. Everybody has mental health awareness in cancer.
Where where's Lupu's awareness on the radio? You know what
I'm saying, where's lucas that will we turn around. That's
what we're aiming for it.
Speaker 1 (34:37):
You know.
Speaker 2 (34:38):
And I feel like once we get that, because we
will get that, that's gonna be this all of them more,
that that's just gonna hit so different.
Speaker 1 (34:47):
Well, the way I see that, Savannah is this, you
have to look at who lupus primarily affects, right, And
so we already know that a's women, and we already
know that's women of color. So you have to look
at where we sit on the totem pole as far
as hierarchy for our health care, we're at a body.
So for lupus to really get the recognition, the amount
(35:10):
of attention, the level of awareness, I personally feel, will
have to link it with something some other intersection or
some other out immune or some other condition to almost
tag team it, if that makes sense to you. So, uh,
that's that's what I believe. Because outside of a sponsor
(35:34):
that either has a personal connection to lupus or someone
in their life has a connection to lupus, that that
is able to be a spoke person for it, I
don't think will will necessarily push the the dial on it.
Speaker 3 (35:53):
And I totally understand when you said it, and if
that's a start.
Speaker 2 (35:58):
If that's a start that we have to link up
with other invisible illness, it wouldn't be such a bad thing,
only because a lot of Lupus's warriors have babimologatory authorities
and other invisible illnesses added on to the umbrella. So
that wouldn't be a bad thing if that's somewhere that
we want to start. But like myself, I'm in the media,
(36:18):
podcasts and and things like that. It wouldn't be a
bad thing to get on the radio. So I feel
like once we get one guess in an area, we
just blow it up so that one yes versus a
million o's that's still you know, that's that's still light,
that's still bright, that's still like Okay, we have.
Speaker 1 (36:37):
To do it. So I say this all the time.
We in the loopers community have to take the responsibility
and the action to get our messages out there. We
cannot depend on anybody else, not politicians, not physicians, not rheumatologists,
not Nike, not any we It's it's our it's our
(36:59):
daily life, it's what we walk through every day, and
so if any changes are to occur, they kind of
really need to center or we need to be involved,
so like we need to be at the table with that.
Speaker 3 (37:12):
Absolutely.
Speaker 1 (37:15):
There is a comment there is a young lady asking
what nurse I think she's a nurse. She says, what
should I touched on some points about getting a blurb
about loopus and more in nursing school, and she agrees,
what do I think most clinicians need to know when
involved in care for patients with lupus. I think it's
(37:37):
very important for clinicians to know that lupis will not
look the same for all the loopers patients right depending
on the organ involvement their their symptoms may be different,
the type of care they require will be different. It's
not gonna look the same. So where somebody else may
present with a rash and pain, another one may present
(38:00):
with swollen joints and inability to walk. So I think
the guard has to always be up with clinicians when
they're assessing somebody coming through the ED if they're coming
in with these common symptoms of fatigue, of chronic fatigue,
no matter how much you sleep, you're tired, that they
(38:22):
you know, do a further health history to see if
autoimmune runs in the family, if they have inflammation, if
they have uh, you know, joints swollen, because everybody thinks
you need to have a butterfly rash and you absolutely don't.
So I think in nursing schools, if they, you know,
(38:42):
increase the curriculum to more than a blurb about lupus,
because we get more on r A, lumatory arthritis, we
get more on other autoimmune inflammatory diseases. So I think
if they add us two more pages to say, hey,
lupus is not going to look the same for everyone.
(39:04):
It is. It's very important to ask and obtain a
complete history because that is how lupis is diagnosed.
Speaker 3 (39:13):
It is.
Speaker 1 (39:13):
If you're not active with it when you go to
the hospital, your markers will not indicate it. What I
mean by markers your inflammatory markers, certain blood tests that
are done. If you're not in an active flair, those
might not present themselves. So it's really going to come
down to health history and family history trying to figure
(39:34):
out what's going on.
Speaker 2 (39:36):
And that's where you have to be an advocate for
yourself because you do have the right to get tested
for anything that you add uh.
Speaker 1 (39:43):
And if you get gone.
Speaker 2 (39:44):
There and just saying let them do whatever and not
speaking up you know, that's a problem too, because.
Speaker 1 (39:51):
To ask for lupus to say, hey, do do a panel,
check me for lupis, or check me for this, or
check me for so, check me for all these other
things that lupas can look like. Yeah, that's why it's
so hard to tack news because it looks like a
whole lot of other cousins.
Speaker 2 (40:09):
And that that is correct as well, you know, but
we still got to pay attention to our bodies because
I'm sure sometimes if it's not the first time something
happened that you feel kind of weird and lasted for
a long time and got over it and came back
and probably got a little you know, extensive, and you
kind of ignored it. So we have to do better
as a whole as well as paying attention to our
(40:30):
body exactly.
Speaker 1 (40:33):
There's a comment I think it's Lisa for us asking
for more information of how to get involved with what
we have going on. So it Savana, I don't know
what you want to put in the chat. If you
want to put your website up, if you want to
give her Gamma Pye rolls information, if.
Speaker 3 (40:52):
You want to want to do it all. I'm a
part of I'm a part of it.
Speaker 2 (40:55):
We are part of it. You got your different entity.
I got my different entity. We give her a choice. So,
miss Lisa Ford, we are going to drop things in
a chat that you can just go and look at
your leisure and pick and choose to what you want
to start with.
Speaker 3 (41:12):
I think that's fair.
Speaker 1 (41:13):
That's fair.
Speaker 3 (41:14):
Yes, thank you so much.
Speaker 2 (41:18):
Can you discuss any research or initiatives that you were
involved in with regarding loops and autoimmune diseases.
Speaker 1 (41:29):
I can tell you of a couple of things I
was denied for, and one was the fatigue trial, and
one was a trial for I want to say vitamin
D and the levels in lupus. So for the fatigue one,
(41:53):
which is ironic to me, but they were looking for
people with lupus, and so I filled out all the
information or everything that I got called saying I didn't
qualify because of the medications I was on. So I
was like, huh, I'm on medications for lupus, but disqualified
from the study. Don't ask me, don't ask me. I
(42:19):
have done. What is it called? It was something with
doctor Ramsey out of Northwestern where you learn about research
and clinical trials and then you take that information out
Popular Opinion Leader pol Popular Opinion Leader. So that's basically
(42:41):
saying people who have credibility in their communities that people trust,
and I would listen to to go and reach out
into my network to talk about clinical trials. So those
are the only things I've done.
Speaker 3 (42:56):
I have a question that's not only here, but here.
You said that you were not for a certain things.
Speaker 2 (43:03):
Do you think that when it comes to Loopez and
the research that they are putting on or looking at
it from a personal from their personal glance on kind
of like what they think it should look like, or
what they want or the pieces that they want to
(43:24):
see added together. And I asked that because before you
answer that question, because the denial, that's that's crazy.
Speaker 1 (43:32):
Based on medication. So in other words, they thought one
of these medications might be contributing to fatigue. So can
we really say that's to loops because you're taking x
y Z. So I understood that from you know, after
I analyzed it, But that was just the craziness behind
uh having something for loopus and then somebody with loopus
(43:54):
who's African American trying to participate and saying, oh, you
don't qualify. But to answer your questions. No, I don't
think the research is trying to get it to prove
some ulterior motive of what they want. I really feel
like more African Americans should participate because we don't want
(44:18):
drugs or treatments that are not going to be effective
for us, and the only way we're going.
Speaker 2 (44:22):
To know that is if we're in the clinical tracks. Yes,
I'm gonna make a comment. I feel as though that, like,
I understand it why you said that they denied you.
But on the other hand, I feel like they shouldn't
have denied you because that's a good patience to have
to see if this is the loopis causing chronivity or
(44:45):
is it the medication? You know what I mean, because
you do want to know that. They should want to
know that.
Speaker 1 (44:52):
Well, you know, they have their inclusion exclusion criteria, so
that probably was somewhere on the exclusion listen that I
didn't see.
Speaker 3 (45:04):
It.
Speaker 1 (45:04):
Ain't gonna go your waist of it. It's stop.
Speaker 3 (45:07):
I just say, you know, you know, I just I
got you know, let's see.
Speaker 2 (45:16):
More people understood about lupus and autoimmune disease.
Speaker 1 (45:22):
I'm sorry I was reading those things. What did you say?
Could you repeat it.
Speaker 2 (45:26):
Please, Yes, what do you wish more people understood about
lupus and autoimmune disease? No, you guys, we have some
technical difficulties. It's okay, while we wait on her. I
(45:46):
did do a book signing for Lupis Awareness Month. She
she's back on. Okay, we'll talk about that later. Okay,
let me just my producer. You hear my producer back.
So I did do la'shelle one second. I did do
book signing in May for Lupis Awareness Month. It just
(46:10):
it's more so, uh, for the lupus warriors that's just
newly got diagnosed, but it's really for anyone.
Speaker 3 (46:17):
But I was really speaking to them, just learning.
Speaker 2 (46:20):
How to learn their triggers and what to do and
how to document and keeping appointments and how they feel
and letting them know that what they think is not crazy.
So I don't have too much time to even really
explain about that. But if you guys are more interested
in the book, you can obtain that book at www
(46:42):
dot lupis has no face dot com or Amazon Wellness
guid to Living Well with loops and we have missed.
Speaker 3 (46:50):
Corolla back all what hapad.
Speaker 1 (46:54):
You know? You know me and technology or not friends girl.
I was in the chat and I tried to leave
the chat, not exited out, but I got back in
real quick, didn't I? Oh you you did? You? Did? You? Did?
I have a hard sign before you got your things about?
I was back like.
Speaker 3 (47:08):
Stop you was, you were Clay?
Speaker 1 (47:11):
You was Clay every cover quickly and nicely. Thank you.
Speaker 3 (47:15):
Intermission, we got a question for you. Go back.
Speaker 1 (47:20):
I dropped my number in case somebody wanted to ask
me something later or something Leshan. Do you find that
rheumatologists typically have a higher rate of recognizing lupas versus
patient's alliance from the primary care Oh definitely, Uh, every
any person with lupus, I definitely highly recommend your treatment team.
(47:44):
Your care team includes your PCP and rheumatology and or
a specialist depending on where your lupus is active at.
So if it's in the kidneys, nephrology, if it's the heart, cardiology,
if it's the lung puminology, it is not uncommon for
lupus patient to have four specialists on their team. So
(48:08):
I mean, I fire my puma cologist, but I have
a PCP challenge. Yes, ma'am, I.
Speaker 3 (48:15):
Did you got it? And thank you for Sana.
Speaker 1 (48:17):
You have the right if you are you have the right.
Speaker 3 (48:20):
Yes, specialists or you're a therapist or whatever it is.
Speaker 1 (48:25):
You do have the right to find when you when
when a provider cannot listen to you and goes and
does something that you're saying, no, no, no, I'm experienced.
I'm the expert with this. We keep this how you
measure all drip running for a full twenty four hours
before we transition to PO when I'm or when I'm
(48:46):
in the hospital, he came in orders to stop the drip,
and I my doctor was like, oh, you can ask
him to sign off my case. Please follow the nurse
and put my orders back to put my drip back,
and we're gonna do what usually do and then we
will start the President's on taper tomorrow. Thank you. And
that's what we did.
Speaker 2 (49:06):
And that's all about having a void. You gotta be
able to speak up for yourself.
Speaker 1 (49:10):
You just don't have to know your body. You have
to know how lupus affects you. You have to know
what works for you. Some people knew and it won't
know that, but I was since twenty eleven in with it,
so I know what we do I know the cocktails,
I know the mixers, I know how months, I know
the dose, I know where the taper, I know where
to add I know what. So some newbie coming in
(49:30):
who didn't read my chart and trying to make orders
like no, sir, no, sir.
Speaker 3 (49:38):
I already couldn't imagine how that situation went.
Speaker 1 (49:43):
But guy, say and apologize because my doctor said, hey,
you know that is one of our clinicians here at
this hospital, and you just went in went in that
room when that charge, change them orders.
Speaker 2 (50:00):
And he came back to apologize. So he said, we
got out on the wrong foot, we got off on
the wrong for but you would not be treated me again. Hey, lit't, seny,
It's okay. But I am glad that you said that
you need more than just a PCP.
Speaker 3 (50:22):
I do.
Speaker 2 (50:22):
I'm very well about you have anything that's wrong with you,
you need a specialist in every department.
Speaker 1 (50:27):
Yeah, yeah, yeah. Usually the PCP is not usually the
one to diagnose sloopers. Usually it's going to be dermatology
or rheumatology. If you have the skin involvement and the
hair loss and all that, it's usually going to be
the dermatologist that suspected. Now, the PCP may suspect it,
but usually they'll refer you to rheumatology ticket the official decnose.
Speaker 3 (50:48):
Absolutely absolutely, you are dropping a lot of gems here.
I love it.
Speaker 2 (50:52):
I love it.
Speaker 1 (50:54):
What did you expect, girl?
Speaker 3 (50:55):
What?
Speaker 1 (50:56):
Nothing? Less?
Speaker 3 (50:57):
That's why I wanted you, because you you dope.
Speaker 1 (51:01):
So I like trying not to like, let me go
ahead and do this for this girl because you know
she gonna come at me. That's you too, so let
me just go get it out of her system.
Speaker 2 (51:12):
You don't have to have you on here, and this
is not gonna be the last time, and you just
so I just had to highlight you and pickup right
all at.
Speaker 3 (51:20):
The same time while we helping our amazing warriors.
Speaker 1 (51:22):
I didn't see I was looking for any questions I
didn't see anymore.
Speaker 2 (51:25):
So how do you stay current with medication advancements in
lupa's treatments while managing your own health?
Speaker 1 (51:38):
So that would come from reading so all of the
currents or the for the like, say, the last my
medication regiment hasn't changed in probably three years. So any
knowledge I've gotten about new treatments and what's come out
has mostly been geared toward nephrightis and I don't have
(52:00):
kidney involvement at all, whether my lupis thank God. So
it will be through reading peer review journals or you
know what I see in you know, advertised or as
sponsors at events, Lucas events. They're there at their table,
they talk about what they have knew. That's how I learned.
Speaker 2 (52:23):
Absolutely, that's amazing. Yes, education is very important.
Speaker 3 (52:27):
Read read, read, read.
Speaker 1 (52:32):
It's fundamental. It's fundamental.
Speaker 3 (52:35):
It is that things always changed, and you have to
you have to, you have to.
Speaker 1 (52:40):
But here's the thing. What happens when we read and
we don't comprehend when we read. And I say that
because health literacy, health literacy, I'm a real big proponent
of health disparities. And I feel like for us in
the Lucas community to decrease the health disparity with this
particular in other other diseases and the illnesses too, we
(53:03):
have to increase our health literacy. So increase our education,
and we have to increase our financial resources. You have
better options and choices most times with financial reserves and
options for treatment. And you all know what I'm saying.
So if I have this health plan and I'm limited
(53:25):
where I can go. But I got this health plan
and I can go where I want to go, and
I don't need a referral, and I got it like that,
then I have more options available to me. If you're
you know your financial situation is a little different, and
you have a plan that is dictating to you where
you can go, who you can see, that's a problem.
Speaker 2 (53:49):
So, in lack of a better verbage, because that was
a lot. I understood it, but I want to make
sure our people understand it. What are you saying in
English terms?
Speaker 1 (54:00):
In English terms, I'm saying when you have more financial resources,
better insurance, more money, more finances, more people that support
you with money or finances or access to it, and
maybe you don't have it, but grandmother has it in
the chest under the drawer, you have more options. I'm
(54:25):
not gonna necessarily say better because County has a lot
of excellent positions, but you have more choices, access, the
opportunity to see what else is out there. The access
is different. It's about access, okay, yep, and do your
horror you guys.
Speaker 2 (54:42):
If you have insurance and it's not a network for
some doctors that you want to go so you do
have a right to switch it, so you're not locked in.
So for those that do not know you have the
right to switch your insurance, don't talk about you don't
understand that been and you want to just do that.
I said, I understood it, but I just go people
(55:04):
that's all here, that's not in the field and things
like that kind of.
Speaker 3 (55:08):
Them.
Speaker 1 (55:09):
Okay, you are missed.
Speaker 2 (55:19):
What road do you think lifestyle changes plays in managing
on our mule conditions like loope is okay?
Speaker 1 (55:28):
So for me, lifestyle one thing that's helped me is
walking three miles a couple of times a week. And
people would look at my weight and think I'm inactive.
When I'm in my little fitbig group, I lead everybody,
they'd be like, you can't that meeting. I was like, yeah,
y'all assume bigger people are lazy and don't move. So
lifestyle of exercising or walking or getting some because you
(55:53):
want healthy joints, you want to move them right. Heating
and poor size, especially when we're flat up and on
pregnant zone. I strictly cut carbs and sugar because I
have no choice. Otherwise I'd be like like a big old,
big old, big old whale. Smoking and drinking. Yeah, smoking
(56:18):
cessation is one of the best things you can do,
whether you've got loopers or not. Smoking sensation if you smoke,
alcohol intake reducing. I'm not saying don't ever drink, but
I'm saying we don't need four when we drink. Yes,
that that lifestyle, alcohol, tobacco, diet, exercise lifestyle.
Speaker 3 (56:39):
That is right.
Speaker 2 (56:40):
And when you do know your body and know your
triggers and things of that nature, you will understand what
what type of liquor you can and someone what you
can assume. Like for me, it's some liquors that will
swow me up that I just got to stay away from.
Speaker 1 (56:57):
That's what you're saying. Don't mix that with what else.
Speaker 3 (57:00):
No, not you. I'm just giving it some more. You know.
I'm just and.
Speaker 1 (57:07):
That doctor Ma Sean said, it depends on what con
I say to choose. What I said liber your alcohol.
Speaker 2 (57:18):
You gotta limit to alcohol too, But you know I
gotta tell them too for those that do that, you
know your body because some liquor like will swow you
up and some well, you gotta find the right I
said that.
Speaker 1 (57:37):
That's look you, I don't want to listen to that,
because I'm saying alcohol and moderation. We don't need to
have drink every day, and we don't need to have
three and four and five. Okay you want to have
you look glass on one a couple of times a week,
more power to you. But if you're don't paying medication, obviously,
curve the alcohol completely wire you're.
Speaker 3 (57:58):
So yep, absolutely, I think see.
Speaker 1 (58:05):
You ain't getting me caught up girl.
Speaker 3 (58:09):
They's they gotta hear both sides.
Speaker 2 (58:14):
They got you got some people on here that's probably
been alcohol and been swollen up and don't even know why, I.
Speaker 1 (58:23):
Think, but I want them thinking, oh it's the type
Oh I had, I had?
Speaker 3 (58:29):
Uh you know they not twist these words on here.
You know exactly what she and I said. Oh why God?
Speaker 2 (58:43):
The last question, looking ahead, what are your hopes for
future of Lupe's research and awareness.
Speaker 1 (58:52):
Obviously, like everybody, I hope for a cure in my lifetime.
Do I expect to see that? No, but in generations.
I mean I have granddaughter, she will have kids one day,
and I hope that this is not passed down. So
I would say that's number one that I would like
to see. And what was the other part of that question,
(59:16):
where did.
Speaker 3 (59:16):
I go look it ahead?
Speaker 2 (59:18):
What are your hopes for the future of loops research
and awareness.
Speaker 1 (59:24):
And awareness obviously national consistent exposure, not just in the
month of May. In the month of May, I promise
you I got about ten invitations to speak or do interviews.
And like you said, this is a year, all year,
we need to be running this, right. I know you
do your stuff, your show, your podcast every Wednesday. Your
(59:47):
topics vary. I think in the background it's always loops,
but I know you talk about other things too, So
that's what I would like to see. I would like
to see a cure for particularly based off research that
African Americans women participated in and men too. And then
secondly for advocacy and awareness. I would like to see
(01:00:10):
it on a national level and have the Purple ribbon
as recognizable as the peak.
Speaker 2 (01:00:18):
Absolutely, I would definitely have to agree with you on that.
And yes, as you heard a doctor Lashawan Gorilla said,
I am here every Wednesday at six thirty Central Standard time,
and we talk about loops and everything because we're not
just in a box, Okay, we have regular life that
we live, so I like to cover lupas and everything.
(01:00:41):
So that this is what this podcast is all about.
A lot of people learn from things at least there's
a lot of takeaways and so on and so forth.
So and then I bring powerful women on like yourself.
Speaker 1 (01:00:52):
Thank you, thank you for having me.
Speaker 3 (01:00:54):
You're welcome. So what takeaways?
Speaker 2 (01:00:56):
I want to be respectable of your time. So what
takeaways would you leave our viewers today?
Speaker 1 (01:01:03):
Takeaways that would leave your viewers today is you know,
follow your own path and not one of others. You
know your limitations, you know your strengths and your weaknesses.
What one person does in their path with lupus may
not be your Your journey is your journey. Keep your
mindset open to increasing your knowledge base about loupus and
(01:01:27):
just know that anything is possible with loops. Lupus is
not the end all be all, Okay, we can supersede
most times with the obstacles that we have, like hang
in there, hang in their, stay in the race.
Speaker 2 (01:01:43):
Absolutely, And do you want to drop any of your
tags if we already do not have them in there?
Speaker 3 (01:01:48):
If they want to.
Speaker 2 (01:01:50):
Visit your support group or contact you in any way
for anything, You got any upcoming events that you want
to share thinks, dion, I see the commentation.
Speaker 1 (01:02:00):
Look listen, thanksbook people. I'm only on Facebook right now,
that's right, So y'all see my first name l A
s h O n gorolla g u r r O
l A. I'm gonna drop that in the chat. That's
how I'm on Facebook. From there, I can connect you
to my Gluper support group, which is monthly. It's usually
on a Saturday. I do try to do like socials
(01:02:24):
twice a year, so June will be a social meaning
we'll get together outside, whether it's go bowling, go for pizza,
go for advertisers, and drinks doesn't have to be alcohol,
but it's certainly your mind mocktail. There you go. And
I'm trying to get back in the little chat. I'm sure, okay,
(01:02:45):
here's in the chat, so I'll put that in there
for Facebook people, and I think that's about it. But yeah,
this was fun. I enjoyed. Uh it was. It was
nice to laugh with you, and you know, yeah, sometimes
we are serious. I know I am, but this this
(01:03:08):
was very important and I think we discussed some great
things and I'm happy we.
Speaker 2 (01:03:16):
Definitely discussed some great things. Thank you for taking time
out of your busy schedule for coming.
Speaker 1 (01:03:21):
You know it's busy. You know it's busy.
Speaker 3 (01:03:25):
For the rest of your life.
Speaker 1 (01:03:29):
You know what, I'm gonna slow down in a few years.
I think I say that right, I said that two
years ago, but I still have.
Speaker 2 (01:03:38):
Because you got other stuff that you do with with
rebuilding houses and things of that nature.
Speaker 1 (01:03:42):
But we're not even when you do finance, I'll come back.
You do lopers and finance, I'll come back and I'll
have that conversation with you. I'm bringing my wife, my wife,
the team with me, that's Tomiko and Levito. All right, Okay,
We're gonna definitely set that up. So again, thank you
for your time, for coming host, all the pleasure.
Speaker 3 (01:04:03):
Of having you. Congratulations on your doctorates and you guys.
Speaker 2 (01:04:10):
We are here every Wednesday at six thirty Central Standard time.
If you miss it live on Facebook, you can go
to the YouTube Lupas Has No Face podcast and replay
it and comment and again we myself or if doctor
Lashan Garola would like to respond, she will respond as well.
Speaker 3 (01:04:29):
So thank you all so much for tuning in. Until
next time,
M m m h were asweeded.
Speaker 2 (00:16):
Your street up?
Speaker 1 (00:22):
M m m m m m m mm hmmm.
Speaker 3 (01:24):
Hello, hello you guys.
Speaker 2 (01:25):
Thank you for tuning in to another wonderful Wednesday where
Lucas has No Face podcast, which are a wonderful hosts,
Savannah and I have a special guest, my sister, doctor
Lashan Corolla. How are you doing today.
Speaker 1 (01:42):
I am good.
Speaker 2 (01:43):
I am on my last leg here, and I'm saving
the last spoon for you, Savannah, just for you.
Speaker 3 (01:50):
See how special I am you guys, But I'll do
the same.
Speaker 1 (01:53):
I will do the same heart, So I'm supporting your paraphernalia. Yes,
is that you're wearing? I beg your pardon?
Speaker 3 (02:04):
What is that you're wearing?
Speaker 1 (02:05):
I'm wearing your brands?
Speaker 3 (02:10):
That's right.
Speaker 2 (02:10):
You heard what she said. You guys got no face charts?
Please post them because we want to see him. It's
lupids three hundred and sixty five days out of the year,
not just for May.
Speaker 3 (02:20):
Okay, thank you so much.
Speaker 1 (02:22):
You're welcome, and you got your longer waited interview. And
I kept him from hitting the pavement in DC.
Speaker 3 (02:33):
You. Oh, we can talk about that. Hey. I still
I still don't believe.
Speaker 2 (02:39):
But she said yes, so I would let her have it.
That was something, wasn't it.
Speaker 1 (02:47):
Yes, I've never seen anybody sleep standing up. But it's okay.
I had you. I had your back.
Speaker 3 (02:54):
When I tell you they ran over to I'm like,
what is going on? She's sleep?
Speaker 1 (03:01):
She stands up. I'm like, Kim, and I forgot if
it was Kim or Levina was We came and got you.
I know that we moved real fast.
Speaker 3 (03:12):
Start up the mess out of me. You walked me
about my sleep?
Speaker 1 (03:15):
Walk who's sleep standing up? Somebody with loopis right?
Speaker 2 (03:20):
Boom, put up the put up the als. Thank you
so much for all of that. But let's jump right
into it.
Speaker 1 (03:32):
Let's go.
Speaker 2 (03:32):
Who is which I would like to call her top notch,
but who is doctor Lachelle Grola?
Speaker 3 (03:40):
Who is she?
Speaker 1 (03:41):
Who is doctor La Shangarola. I'm the same person you've
known for the last one four or five years. I
mean they don't know. Yeah, I'm just me. I'm just
like anybody else. I'm a mom, I'm a nurse practitioner.
I have a loopis. I'm a loop warrior. I'm a friend.
(04:01):
I'm a sister, I'm a daughter, I'm a gamma priro
Looper Sorority Incorporated Founder. I'm a Zeta Phi Beta Sorority incorporator.
I wear many hats. So today you have you have
the academic person because I believe you centered this around
(04:24):
the doctoral journey. So you have that person today.
Speaker 3 (04:29):
Okay, I appreciate it.
Speaker 2 (04:31):
We will be discussing autoimmune while accomplishing her doctorates. Yes,
she does have her doctorates and it's not crazy. But
for someone who has loupees that went into a nurse
practitioner and writes straight into the doctorates, Yeah, what was that?
Speaker 3 (04:48):
Like?
Speaker 1 (04:49):
I know people, you know, I know it sounds crazy,
and I know people thought, oh my gosh, she's doing
too much, and I heard that quite often, but sometimes
it just made me self reflect am I doing too much?
Or is that person commenting not doing enough? It wasn't
exactly planned, so I basically have been in school since
(05:12):
twenty twenty one. I think that spring quarter I started
my Nurse Practitioner FNP Family Nurse Practitioner track and I
knew towards the end of that track that I wanted
to continue. And one of the reasons I decided to
do that is because I was uncertain if I wanted
to go into administration if I wanted to go in
(05:34):
to a leadership role at work or start my own thing,
my own consulting business. So I thought the doctor would
suit me for that purpose. And then I had to
decide do I want to do DNP Doctor of Nursing
Doctor of Nursing Practitioner, or did I want to do
Doctor of Nursing Practice, or did I want to do
(05:56):
the DHA, which is the Doctor of Healthcare Administration. I
chose that DHA program because it has a huge business
organizational component that prepares you to lead organizations, to do
leadership role. And so that's what I did, And yeah,
it was crazy. I took a six month break in between.
(06:16):
So in between completing the nurse practitioner track, I took
six months off and then I transitioned into the doctorate program.
Speaker 2 (06:27):
Yeah, because every time we went out of town you
were studying, I had a laptop.
Speaker 1 (06:32):
I couldn't even kick it with your guys because we
go on here, I'm like, no, I'm not going to
take a test in the room. I remember when we
were in Saint Louis and I had a as soon
as we got out, the transportation got out of the cab.
I had to go straight up to the room and
log in and do a quiz. So that had been
my life for like three and a half four years.
(06:53):
You know, I try to balance work life social like
I try to do the sorority stuff and do the
family stuff, okay, do the academic stuff. And most times
I was able to jungle in balance. I mean, looking back,
God was really covering me, yes, because you were doing
a lot.
Speaker 2 (07:10):
Even in LA we will be at dinner or celebrating,
like I'll take a past.
Speaker 1 (07:17):
Yeah. But you know that that was that whole micro
managing my own schedule, Like I had to set certain
days for study. I already have a work schedule, Okay.
Then I had to compromise with my daughter at home.
I have one living at home. Like, hey, I can
only cook two times a week. Now you're used to five,
(07:37):
it's going down to two. Okay. We got to order
two nights and then two nights we could either do
leftovers or you could cook, or you could order or
whatever it's going to be. So I had to kind
of just strategize how even down to laundry, even down
to grocery shopping. So it was a lot So.
Speaker 2 (07:54):
That's why I look up to you because after finishing
my nurse and I always wanted to do practitioner. So
when you came along, okay, let me jump on board.
Then you went from your doctors, I said, listen, I
don't want to go.
Speaker 1 (08:07):
Back to school. You don't have to follow your path.
Everybody should follow like you following your path with this
media social media, with your YouTube and with your what
do you call it blogging and with your podcast, and
so that's your your way that you educate and advocate
(08:29):
for lupis. So my way is more on educational, on
health literacy, on health promotion. So we're doing the same thing,
We're just doing it different ways.
Speaker 2 (08:40):
And I'm glad that you say that because everybody got
their own way on how they want to advocate for lupers.
It doesn't have to be the same exact thing. You
can still reach people teaching it in different ways exactly.
And I talked to Dion Langley a lot about that,
Like he uses his music okay.
Speaker 1 (08:58):
And it has a way that he does. The Male
Lupis Warriors, Tech Team, Dream Team. Everybody has their their
different way, and no way is wrong, no way is right.
It's what what gifts and talents you have that you
use that to enable other people to number one, understand
(09:19):
and know loopis and number two to use your voice
in your platforms and your resources for advocacy and education.
Speaker 2 (09:30):
Absolutely, and I feel like that is what separates us
our individuality because we are individual people, but we collaborate,
which is the most important thing. Because some people or
some foundations don't collaborate. They see it as a threat,
a threat there you go. They say it as a threat,
and it's like we're fighting for the same exact thing.
(09:51):
So if your mission means what you say it means,
then you have no problem collaborating and doing partnerships with
others because it's only one loop is word?
Speaker 1 (10:02):
Right, Well you have to remember. So let me answer
that in a different way for you. Like I told you,
I had a choice between the DNP and the DHA.
So the DHA brain is saying a collaboration. You look
at it almost like a business deal. Right, So for
(10:22):
me to collaborate with you or for you to collaborate
with me, you look at, okay, what's in this for me?
Speaker 3 (10:29):
Actually?
Speaker 1 (10:29):
And that's how bigger organizations look at that. They're figuring
I already have sponsors, already have advertising. What can working
with loopas has no face bring to me? And if
it cannot bring them a bigger audience, if it cannot
bring them funding, if they cannot bring some tangibles that
they consider valuable, you'll get no collaboration.
Speaker 2 (10:53):
Absolutely, And I'm so glad that you said that to me,
because people like to collaborate without nothing. And at the
end of the day is for us to deliver our message.
But we still have to have fund and to do
a lot of the things that we do throughout the
year too.
Speaker 1 (11:06):
Yeah. And it's even like speaking on lupus. Okay, some
organizations offer honorarium, stiping, pay for travel. Okay, you know,
if you reach out or somebody reach out, I might say,
you know what, that's a fellow Looper's warrior. Let me
just jump on in here and do this, so I
(11:26):
don't necessarily look for something of a monetary value.
Speaker 2 (11:32):
Yeah, and I definitely understand that too, because you get
more it, you're blessed with more abundant sometimes when you
do that.
Speaker 3 (11:38):
But it got to be authentic, right.
Speaker 1 (11:41):
Did you say it had to be on video?
Speaker 3 (11:44):
No? Authentic? Yes?
Speaker 1 (11:46):
Yes, you know, because so you have to remember we,
like you said, we have the same mission, we just
go about it differently. So if my goal is to
reach more people, and you have a big audience, then
it would make sense that if I want to promote
Looper's awareness, promote advocacy, promote health literacy, then why not
(12:09):
be on your podcast?
Speaker 3 (12:11):
Absolutely? I love you for that. I love you for that.
Speaker 2 (12:15):
Okay, can you share your personal journey with lupus and
how it has shaped your career as a doctor?
Speaker 1 (12:23):
Huh? Okay, My personal journey with lupez began and twenty eleven. Officially,
I say officially because several years before that I obviously
had signs and symptoms that were diagnosed as something else. Absolutely,
the diagnose came at a very critical time in my life,
(12:47):
six months after a stressful a life event, and so
the doctors feel like that stressful life event just brought
the Loopers out of the dormant state that it had
been quietly, you know, waiting to for a moment to
come out. So that was in twenty eleven, and to
be honest with you, Savannah, it took me about a
(13:10):
good two years to come to terms with it because
I'm like everybody else. I had that anger phase. I
had that confused phase, even though at that time I
was a nurse. I got a blurb in school about lupus,
and then we went on to the next topic. So
(13:33):
I had to spend that two years learning more about it,
finding support. That's what led me to seek out a
support group. It was it was. It was a difficult
transition because personally I had just lost a spouse, my
(13:53):
family dynamics changed. I had two kids still wanting mom,
needing mom every or all day every day like the usual.
So I couldn't let this new diagnose stop me from functioning.
So I did take some time off work. Initially, I
slowly eased myself back, but Loopis kind of took it.
(14:15):
I didn't know which way it was coming at me
because when I was diagnosed, I had lung inflammation as
well as three other organs, so I didn't know how
this was going to turn out for me. I was
initially on chemotherapy and at least three other oral agents
(14:35):
to get it under control. So once it was under control,
I started I started running from a calling. The calling
was that I was supposed to do more with this Loopis.
I was supposed to help other people learn how to
deal with it, and I ignored this calling. I ignored it.
(14:56):
And it was actually my grandmother who told me I
need to stop running and just do what I'm being
called to do. And so that led me into facilitating
support groups and then branching off into other things in
the LUPUS community.
Speaker 2 (15:12):
Yes, that you. You are a very strong advocate. Like
your name rings bells. You know what I mean. And
when you show up and you do your thing, you
know exactly what it is that you talk about life.
You do not play when it comes to any of that.
And just by knowing you for these years, like you
(15:33):
never changed ever you may consently you are a whole
way through.
Speaker 1 (15:42):
Because this is my authentic self, right, I can't I
can't pretend to be you. I can't pretend to be
the next person. Is like I have my own style
of how I explain things. I like power points, I
like presentations. You like to talk. Somebody else might play music,
you know, beat the drums, somebody might shake the tambourine.
(16:05):
You know, we we all do.
Speaker 2 (16:07):
Our own little thing, and you do it with ease.
Like if I didn't know what Lucas was, and if
I was on a warrior, I would be like, dang,
you look healthy, Like how can you do all of
these things versus a healthy person haven't accomplished half of
what you accomplished. But I think I don't consider myself
that type a But I knew early on with this
(16:30):
diagnose that I wanted to.
Speaker 1 (16:35):
Beat it. If that makes sense, that's gonna it's gonna
affect my life. It's gonna change some things. It's gonna
I'm gonna have down days, I'm gonna flare up here
and there, right, But I was determined to still thrive
and survive with it and still show I wanted to
be the example to other people, like their journey might
(16:58):
not be to get a doctorate degree. Their journey might
be to open the restaurant. Their journey might be to
start a book club. Their journey might be to have
a podcast show. So the point is I was determined
through self determination. And you're like that innate thing in
you that tells you that you have to overcome and
(17:21):
you have to surpass all these challenging times, you know,
and that's not nothing. Nobody someone can give you self
determination or self motivation. You have to have that in you.
Speaker 3 (17:35):
Absolutely.
Speaker 2 (17:35):
People can speak to you all day and you and
praise you for the things that they think you do.
But if you don't have it in yourself when you
lay down at night, it's not going anywhere.
Speaker 1 (17:48):
No excuse me, you are. I have a little going
on the money before. But yes, you're right. With lupus,
you have two choices. Okay, you're gonna try to control
it as much as possible, or you're gonna let it
control you. Now, Yes, it's gonna modify the way you work.
(18:11):
I work under accommodations. I you know, filled out the
paperwork for school for accommodations, Like there are gonna be
times where maybe I gotta miss class right or maybe
my assignment might be a little late because I was
flaring up for two weeks and I couldn't get it done.
So I think everybody has to look at where it
(18:34):
is they. If you're at point A and you know
you want to get to point Z, whatever that point is,
you have to kind of map that road out, and
you got to be prepared for With lupus, you have
to be prepared for the unexpected. I didn't expect a
flare and be in the hospital and have minimally invasive
surgical procedure. And my last semester I did. I didn't
(18:55):
plan that, Yeah, but I told my kids, Uh, graduation
is in a few months. I don't care if you're
rolling me on a stretcher, across the stage, in a wheelchair,
on a scooter, on roller skates, or god forbid, in
a casket. Get the degree because we've all earned it.
That's a family degree.
Speaker 2 (19:13):
That is what I told my kids, and it absolutely
is just a touch on doctors.
Speaker 3 (19:18):
Your other two daughters are doctors, right.
Speaker 1 (19:22):
Alex is a firm d a pharmacy doctor, and Samantha
is a DPT, which is a doctor of physical therapy.
Am eldest is a master sergeant in the Air Force.
So you know, I can't complain about my kids and
how they turned down.
Speaker 2 (19:38):
Why why you don't need to cook an error at all?
Speaker 3 (19:43):
You you got somebody, You got a chef to come in.
Speaker 1 (19:47):
You know what these girls, I gotta tell you. Sometimes
you think they don't love you or they're not thinking
about you. But let me flare and let me send
a text I'm not feeling well. They are right on it,
right on it. The pharmacists is talking about the meds
and saying, mom, did you start the pregnan zone. The
(20:08):
pet is massage in my legs, getting keating ice and whatever.
The master sergeants getting me on video. I want to
see you, mom, let me see what you're doing. You
need to lay down, you need the rest. So they
come through all the time. That support. I could not
make it without that.
Speaker 2 (20:23):
Yes, and people do not understand support is everything. So
that's why it's so important.
Speaker 1 (20:27):
To number one, Yeah, you have God's grace, right, but
then support in your your support team, like who that is?
I had support mates at school, my doctorate program, my
cohorts when they thought that I was in the hospital. Uh,
doctor Kenneth Griffin and or the other one, doctor Mark Hart.
(20:49):
If they're listening, they we had a team project due
and they was like, okay, we got you. They were texting,
we got you. We interested stuff. We put it in there.
It's like they rallied, you know, they rallied for me
in February March.
Speaker 2 (21:04):
Yeah, and people don't understand like that support it holds hard,
like it's very important. That's why it's good to accept
what you have so you can start learning to live well.
With it, because if you don't accept it, you're just
going to be in a dark space.
Speaker 1 (21:18):
If you don't accept it and you don't learn, then
you don't learn how to manage and deal. So if
if you If some people you're emotional and mental stability
has a lot to do with how you handle a
chronic illness, h autoimmune or lupus, Okay, if you're mentally
(21:39):
and emotionally not strong, you're easily you're easily flustered, You're
you're easily affected by the things in your previous life
that now you can't do or now you have to
moderate with. It's very hard for you to mourn and
(22:00):
grow like mourn what lupas has reached having in your
life on but then still take steps forward to overcome and.
Speaker 2 (22:09):
Supersede absolutely, because pain can definitely play on your mental you.
Speaker 1 (22:14):
Know, all of it, the fatigue, the pain, all of it,
the emotional and speaking of pain, when I had this
last flare up and I had these assignments, still I'm
trying to do. I'm in the hospital with the laptop
right in the nursing. You didn't even pay medicine, I said,
I do, But if I take it, I would be
(22:35):
drownsing and I can't finish myst site. It's like you
constantly got to make choices on how are you going?
But when I finished that assignment, I pushed that button
said bring that medicine.
Speaker 2 (22:47):
On in spoken like a true warrior, spoken like a
true warrior. Ill has having influence your approach to patient
care and autoimmune disease.
Speaker 1 (22:59):
You know what? You know? That's that that the thing
we feel, the stigmatization or surrounding pain or drug seeking
and the when you go to the e ED saying
you you in pain and they're looking at you like
you look good what you're talking about and they know what.
It changed my perspective of how I view patients when
(23:23):
they can you know, uh rate their pain. And then
it also made me educate myself on what's called multimodal
pain management. So actually for my unit at one hospital,
became like the pain management expert for the unit because
we got a lot of sickle cell patients, UH, we
(23:44):
got a lot of cancer patients, a lot of uh
loopers patients, chronic and just chronic pain patients who were
used to taking high opioid amounts UH for their condition.
And so a lot of staff didn't quite know how
to treat them or take care of them because they
would say, Okay, you gave me my sixty milligrans, but
(24:05):
I'm still in paint. So they didn't know how to
navigate that, how to develop a care plan, and how
to offer alternatives for this patient to be comfortable. So
I actually became My dealings with LUFUS enabled me and
help me be able to take care of these patients
at a higher level.
Speaker 2 (24:24):
Of No, that is so beautiful and sad at the
same time, you know what I mean, Because if it
wasn't for you or whoever else made a difference on
their unit or they floor, they wing, then the doctors
will still view some doctors will still view that. And
it's just kind of like what do loopers look like?
Or what do pay look like? Or why do pay
have to have you looking not put together? Why do
(24:47):
pay have to not have you take a shower, not
do your hair? And that like why why is that?
Like what is the gap between looking like you want
to feel good and you're in pain versus you know,
coming in there and your pj's or something you want
to see what I'm saying.
Speaker 1 (25:07):
Yeah, And it's also cultural awareness because you know African Americans, Uh,
we handle pain differently. Uh perhaps a Latino maybe more
vocal uh and have more facial expressions or body language
expressing pain. So if me, I'm kind of stoic with it,
(25:31):
and like you, if I know I'm going to the hospital,
the first thing I want to do is shower, absolutely,
went on some green underwear, moisturize, put some baby all
on my feet, right, you know, in the hospital with
krusty feet my daughter like in the car, I'm like, no,
I gotta get ready first. Yes, And usually I'm trying
(25:52):
to either get the jail and slick the hair back
or up and wrap it up because I know I'm
gonna what's gonna happen when I get there, right So
I'm sure I don't look like I'm in pain when
I show up. But right now I'm at a six
out of ten. But I can laugh, I can smile,
I can make jokes with you. I can get through
this conversation because you get used to it and you
(26:16):
learn to adapt, because if you don't, then you will
need higher levels of pain medication to make it through
to day where I've had none all day, not even actually.
Speaker 2 (26:27):
For a couple of months, and that is not a
quality of life at all.
Speaker 1 (26:34):
Well, no, because what's not a quality of life? Having
pain or.
Speaker 3 (26:39):
Medication all day?
Speaker 1 (26:43):
I don't want to be you know, if you need it.
I don't want to judge people I drive, So yes,
a consideration being on pain medications limits your driving, your
ability to think, you might be drowsy, you might have
constipation issue, you could inside effects to everything. But so
(27:04):
if I need to take something, I will, but usually
in the evening once I'm home. I'm not going to
drive on any kind of pain medicine. Maybe a tailent
on or something like that.
Speaker 2 (27:14):
But like that, Yeah, Like I'm totally not against medication
at all. I'm just saying, like, for people that can't
accept or you know, find that tolerance to go all
day without having to take you know, pay mads every
couple of hours to be okay, it's not a quality
a lot.
Speaker 1 (27:33):
You know what I tell my patients turn on some music,
music therapy or roma therapy. I truly believe in that,
and I have actually taken on my cell phone at
times and played my playlist that smooth jazzy and I
give him some Thailand, I say, look your oxicond and dude,
in an hour, let me get you this tailan on
(27:53):
until then I come back with after the music, the
little massage they sleep. I'm like, great job.
Speaker 3 (28:01):
That is beautiful.
Speaker 2 (28:03):
We're gonna go on to the next question, but I'm
gonna have tone start with some of these questions or
things that our guest has rolling in the comments a tone.
When you ready, can you start putting on some of
those comments so doctor Lashawan can read them until you
do that. The next question is what accomplishments are you
(28:27):
most proud of in your career despite the obstacles post
by loops.
Speaker 1 (28:37):
Okay, so in my total career, I think I would
say the best accomplishments or the ones the things that
I feel most passionate about is making a difference. And
I'm gonna just real briefly say two things. I had
a guy who was in he got a diagnosis that
(29:01):
you can be terminal, and he felt like nobody was
listening to his complaints of pain. And before he left,
he and his wife wrote a note to me and said,
thank you for listening. Thank you you were the first
nurse to actually do something that made my husband feel better.
(29:25):
Another time, was a lupus patient, and this was during COVID.
I had a mask on. She couldn't see my face,
but doctor Jolly had asked me to go and see her.
She was about a young girl in her twenties and
her husband was getting ready to divorce her and take
the kids because he couldn't deal with lupus. And I
(29:47):
went to talk to her. The point of me talking
to her was to try to see if she would
like the lupis support group. And I told her I
had lupus and she told me I was a liar.
And I said, why do you think I'm lying? And
she said, because you're beautiful, And I said you're beautiful too.
She says, no, lupus is ugly. Lupas has made me ugly,
(30:09):
and you are pretty. You have pretty teeth and pretty
smell and pretty hair. You don't have lupus. And just
hearing how she felt about herself and just being able
to before I left that room have her smile and
be open and be accepting of support. Those are some
(30:35):
highlights of my career that I'm most proud of.
Speaker 2 (30:38):
That is so beautiful. I'm gonna comment on what you
said in just a few moments. But we're going to
put some comments on the screen, and I would like
if you can read them.
Speaker 3 (30:45):
Off all right, if I could see him? Okay, can
you see uh?
Speaker 1 (30:55):
Yeah, but I don't see anything. I don't see any
questions unless I'm am I supposed to going to.
Speaker 3 (30:59):
Chant what they say. Yeah, you just you're just reading
what they say.
Speaker 1 (31:03):
Okay, but let me go in the chair and see.
I see.
Speaker 3 (31:07):
I don't.
Speaker 1 (31:10):
I don't see anything to read.
Speaker 3 (31:12):
Oh my god, I read about so.
Speaker 1 (31:18):
Every No, I don't know.
Speaker 3 (31:20):
I don't know what's going on on your side.
Speaker 1 (31:24):
I don't know. You read it to me. I don't
see anything. It says you're in the show. Everyone can
see and hear you uploading recording. That's all I see.
Speaker 3 (31:34):
Oh you're not you on the wrong. That's for you.
You're supposed to still look at your.
Speaker 1 (31:41):
Let me here, you know, all right, I think I see,
I see. It's so uh. It's so defeating showing up
to the ed looking how I do, but in extreme pain.
It's like I have to convince them I'm hurting when
I don't even have the energy for anything. That's from
(32:04):
uh sue shaniya uh. And then Prati Patricia D said
the reason why my daughter became a nurse. So I
think she's saying her daughter became a nurse because of
her pain issues or how she was stigmatized or stereotyped
on her pain issues. And yeah, it is hard to
(32:25):
try to advocate for yourself for pain control when you're
feeling miserable. Thank goodness, I have my doctor on text message,
and believe me when I say, if I have a problem,
I go, look, they don't want to give me any
medicine in this ed call up here in some mortis
in and it happens like that.
Speaker 3 (32:44):
That part, that part.
Speaker 1 (32:48):
Saying if you don't put a bit of a log
in and put them in.
Speaker 3 (32:50):
Myself, look at that, Look at that. Everybody. Everybody else
got that doctor's degree. Everybody can't do that.
Speaker 1 (32:58):
Nothing to do with the doctor, just me.
Speaker 3 (33:04):
Thank you guys so much for tuning in. Hello to
you all. We you tuning in.
Speaker 2 (33:11):
We're going to continue the conversation. Keep keep the comments coming.
If we do not read the comments while you're on live,
we will definitely respond back to them, and you can
go on the YouTube. LUPUS has on face podcast and
our responder respond and what ways.
Speaker 3 (33:29):
No, so you said, oh my god, what did you say.
Your last comment that you just said, I just got the.
Speaker 2 (33:36):
Brain fog was pain or about the highlights of my career,
that I'm most proud of, the highlights of your career,
that you are most proud of making a difference, making
a difference for other people. Yes, that is so beautiful,
and that right there just let you know why you
cannot stop like those things right there. It's just like, okay,
(34:01):
it's just fuel you back up, like I'm doing I'm
doing what I'm supposed to do, you know, because sometimes
being an advocate and having our you know, nonprofits in
our regular life and you know, whatever is going on
in our life, sometimes we get tired and sometimes you know,
we do want to kind of like slow down. But
then you get that person in front of you and
it's like, you know, I can't. It ain't loud enough yet,
(34:22):
it ain't bolded enough for you. It's not in our
face yet, it's not on the radio yet, it's not
on that part. Everybody has mental health awareness in cancer.
Where where's Lupu's awareness on the radio? You know what
I'm saying, where's lucas that will we turn around. That's
what we're aiming for it.
Speaker 1 (34:37):
You know.
Speaker 2 (34:38):
And I feel like once we get that, because we
will get that, that's gonna be this all of them more,
that that's just gonna hit so different.
Speaker 1 (34:47):
Well, the way I see that, Savannah is this, you
have to look at who lupus primarily affects, right, And
so we already know that a's women, and we already
know that's women of color. So you have to look
at where we sit on the totem pole as far
as hierarchy for our health care, we're at a body.
So for lupus to really get the recognition, the amount
(35:10):
of attention, the level of awareness, I personally feel, will
have to link it with something some other intersection or
some other out immune or some other condition to almost
tag team it, if that makes sense to you. So, uh,
that's that's what I believe. Because outside of a sponsor
(35:34):
that either has a personal connection to lupus or someone
in their life has a connection to lupus, that that
is able to be a spoke person for it, I
don't think will will necessarily push the the dial on it.
Speaker 3 (35:53):
And I totally understand when you said it, and if
that's a start.
Speaker 2 (35:58):
If that's a start that we have to link up
with other invisible illness, it wouldn't be such a bad thing,
only because a lot of Lupus's warriors have babimologatory authorities
and other invisible illnesses added on to the umbrella. So
that wouldn't be a bad thing if that's somewhere that
we want to start. But like myself, I'm in the media,
(36:18):
podcasts and and things like that. It wouldn't be a
bad thing to get on the radio. So I feel
like once we get one guess in an area, we
just blow it up so that one yes versus a
million o's that's still you know, that's that's still light,
that's still bright, that's still like Okay, we have.
Speaker 1 (36:37):
To do it. So I say this all the time.
We in the loopers community have to take the responsibility
and the action to get our messages out there. We
cannot depend on anybody else, not politicians, not physicians, not rheumatologists,
not Nike, not any we It's it's our it's our
(36:59):
daily life, it's what we walk through every day, and
so if any changes are to occur, they kind of
really need to center or we need to be involved,
so like we need to be at the table with that.
Speaker 3 (37:12):
Absolutely.
Speaker 1 (37:15):
There is a comment there is a young lady asking
what nurse I think she's a nurse. She says, what
should I touched on some points about getting a blurb
about loopus and more in nursing school, and she agrees,
what do I think most clinicians need to know when
involved in care for patients with lupus. I think it's
(37:37):
very important for clinicians to know that lupis will not
look the same for all the loopers patients right depending
on the organ involvement their their symptoms may be different,
the type of care they require will be different. It's
not gonna look the same. So where somebody else may
present with a rash and pain, another one may present
(38:00):
with swollen joints and inability to walk. So I think
the guard has to always be up with clinicians when
they're assessing somebody coming through the ED if they're coming
in with these common symptoms of fatigue, of chronic fatigue,
no matter how much you sleep, you're tired, that they
(38:22):
you know, do a further health history to see if
autoimmune runs in the family, if they have inflammation, if
they have uh, you know, joints swollen, because everybody thinks
you need to have a butterfly rash and you absolutely don't.
So I think in nursing schools, if they, you know,
(38:42):
increase the curriculum to more than a blurb about lupus,
because we get more on r A, lumatory arthritis, we
get more on other autoimmune inflammatory diseases. So I think
if they add us two more pages to say, hey,
lupus is not going to look the same for everyone.
(39:04):
It is. It's very important to ask and obtain a
complete history because that is how lupis is diagnosed.
Speaker 3 (39:13):
It is.
Speaker 1 (39:13):
If you're not active with it when you go to
the hospital, your markers will not indicate it. What I
mean by markers your inflammatory markers, certain blood tests that
are done. If you're not in an active flair, those
might not present themselves. So it's really going to come
down to health history and family history trying to figure
(39:34):
out what's going on.
Speaker 2 (39:36):
And that's where you have to be an advocate for
yourself because you do have the right to get tested
for anything that you add uh.
Speaker 1 (39:43):
And if you get gone.
Speaker 2 (39:44):
There and just saying let them do whatever and not
speaking up you know, that's a problem too, because.
Speaker 1 (39:51):
To ask for lupus to say, hey, do do a panel,
check me for lupis, or check me for this, or
check me for so, check me for all these other
things that lupas can look like. Yeah, that's why it's
so hard to tack news because it looks like a
whole lot of other cousins.
Speaker 2 (40:09):
And that that is correct as well, you know, but
we still got to pay attention to our bodies because
I'm sure sometimes if it's not the first time something
happened that you feel kind of weird and lasted for
a long time and got over it and came back
and probably got a little you know, extensive, and you
kind of ignored it. So we have to do better
as a whole as well as paying attention to our
(40:30):
body exactly.
Speaker 1 (40:33):
There's a comment I think it's Lisa for us asking
for more information of how to get involved with what
we have going on. So it Savana, I don't know
what you want to put in the chat. If you
want to put your website up, if you want to
give her Gamma Pye rolls information, if.
Speaker 3 (40:52):
You want to want to do it all. I'm a
part of I'm a part of it.
Speaker 2 (40:55):
We are part of it. You got your different entity.
I got my different entity. We give her a choice. So,
miss Lisa Ford, we are going to drop things in
a chat that you can just go and look at
your leisure and pick and choose to what you want
to start with.
Speaker 3 (41:12):
I think that's fair.
Speaker 1 (41:13):
That's fair.
Speaker 3 (41:14):
Yes, thank you so much.
Speaker 2 (41:18):
Can you discuss any research or initiatives that you were
involved in with regarding loops and autoimmune diseases.
Speaker 1 (41:29):
I can tell you of a couple of things I
was denied for, and one was the fatigue trial, and
one was a trial for I want to say vitamin
D and the levels in lupus. So for the fatigue one,
(41:53):
which is ironic to me, but they were looking for
people with lupus, and so I filled out all the
information or everything that I got called saying I didn't
qualify because of the medications I was on. So I
was like, huh, I'm on medications for lupus, but disqualified
from the study. Don't ask me, don't ask me. I
(42:19):
have done. What is it called? It was something with
doctor Ramsey out of Northwestern where you learn about research
and clinical trials and then you take that information out
Popular Opinion Leader pol Popular Opinion Leader. So that's basically
(42:41):
saying people who have credibility in their communities that people trust,
and I would listen to to go and reach out
into my network to talk about clinical trials. So those
are the only things I've done.
Speaker 3 (42:56):
I have a question that's not only here, but here.
You said that you were not for a certain things.
Speaker 2 (43:03):
Do you think that when it comes to Loopez and
the research that they are putting on or looking at
it from a personal from their personal glance on kind
of like what they think it should look like, or
what they want or the pieces that they want to
(43:24):
see added together. And I asked that because before you
answer that question, because the denial, that's that's crazy.
Speaker 1 (43:32):
Based on medication. So in other words, they thought one
of these medications might be contributing to fatigue. So can
we really say that's to loops because you're taking x
y Z. So I understood that from you know, after
I analyzed it, But that was just the craziness behind
uh having something for loopus and then somebody with loopus
(43:54):
who's African American trying to participate and saying, oh, you
don't qualify. But to answer your questions. No, I don't
think the research is trying to get it to prove
some ulterior motive of what they want. I really feel
like more African Americans should participate because we don't want
(44:18):
drugs or treatments that are not going to be effective
for us, and the only way we're going.
Speaker 2 (44:22):
To know that is if we're in the clinical tracks. Yes,
I'm gonna make a comment. I feel as though that, like,
I understand it why you said that they denied you.
But on the other hand, I feel like they shouldn't
have denied you because that's a good patience to have
to see if this is the loopis causing chronivity or
(44:45):
is it the medication? You know what I mean, because
you do want to know that. They should want to
know that.
Speaker 1 (44:52):
Well, you know, they have their inclusion exclusion criteria, so
that probably was somewhere on the exclusion listen that I
didn't see.
Speaker 3 (45:04):
It.
Speaker 1 (45:04):
Ain't gonna go your waist of it. It's stop.
Speaker 3 (45:07):
I just say, you know, you know, I just I
got you know, let's see.
Speaker 2 (45:16):
More people understood about lupus and autoimmune disease.
Speaker 1 (45:22):
I'm sorry I was reading those things. What did you say?
Could you repeat it.
Speaker 2 (45:26):
Please, Yes, what do you wish more people understood about
lupus and autoimmune disease? No, you guys, we have some
technical difficulties. It's okay, while we wait on her. I
(45:46):
did do a book signing for Lupis Awareness Month. She
she's back on. Okay, we'll talk about that later. Okay,
let me just my producer. You hear my producer back.
So I did do la'shelle one second. I did do
book signing in May for Lupis Awareness Month. It just
(46:10):
it's more so, uh, for the lupus warriors that's just
newly got diagnosed, but it's really for anyone.
Speaker 3 (46:17):
But I was really speaking to them, just learning.
Speaker 2 (46:20):
How to learn their triggers and what to do and
how to document and keeping appointments and how they feel
and letting them know that what they think is not crazy.
So I don't have too much time to even really
explain about that. But if you guys are more interested
in the book, you can obtain that book at www
(46:42):
dot lupis has no face dot com or Amazon Wellness
guid to Living Well with loops and we have missed.
Speaker 3 (46:50):
Corolla back all what hapad.
Speaker 1 (46:54):
You know? You know me and technology or not friends girl.
I was in the chat and I tried to leave
the chat, not exited out, but I got back in
real quick, didn't I? Oh you you did? You? Did? You? Did?
I have a hard sign before you got your things about?
I was back like.
Speaker 3 (47:08):
Stop you was, you were Clay?
Speaker 1 (47:11):
You was Clay every cover quickly and nicely. Thank you.
Speaker 3 (47:15):
Intermission, we got a question for you. Go back.
Speaker 1 (47:20):
I dropped my number in case somebody wanted to ask
me something later or something Leshan. Do you find that
rheumatologists typically have a higher rate of recognizing lupas versus
patient's alliance from the primary care Oh definitely, Uh, every
any person with lupus, I definitely highly recommend your treatment team.
(47:44):
Your care team includes your PCP and rheumatology and or
a specialist depending on where your lupus is active at.
So if it's in the kidneys, nephrology, if it's the heart, cardiology,
if it's the lung puminology, it is not uncommon for
lupus patient to have four specialists on their team. So
(48:08):
I mean, I fire my puma cologist, but I have
a PCP challenge. Yes, ma'am, I.
Speaker 3 (48:15):
Did you got it? And thank you for Sana.
Speaker 1 (48:17):
You have the right if you are you have the right.
Speaker 3 (48:20):
Yes, specialists or you're a therapist or whatever it is.
Speaker 1 (48:25):
You do have the right to find when you when
when a provider cannot listen to you and goes and
does something that you're saying, no, no, no, I'm experienced.
I'm the expert with this. We keep this how you
measure all drip running for a full twenty four hours
before we transition to PO when I'm or when I'm
(48:46):
in the hospital, he came in orders to stop the drip,
and I my doctor was like, oh, you can ask
him to sign off my case. Please follow the nurse
and put my orders back to put my drip back,
and we're gonna do what usually do and then we
will start the President's on taper tomorrow. Thank you. And
that's what we did.
Speaker 2 (49:06):
And that's all about having a void. You gotta be
able to speak up for yourself.
Speaker 1 (49:10):
You just don't have to know your body. You have
to know how lupus affects you. You have to know
what works for you. Some people knew and it won't
know that, but I was since twenty eleven in with it,
so I know what we do I know the cocktails,
I know the mixers, I know how months, I know
the dose, I know where the taper, I know where
to add I know what. So some newbie coming in
(49:30):
who didn't read my chart and trying to make orders
like no, sir, no, sir.
Speaker 3 (49:38):
I already couldn't imagine how that situation went.
Speaker 1 (49:43):
But guy, say and apologize because my doctor said, hey,
you know that is one of our clinicians here at
this hospital, and you just went in went in that
room when that charge, change them orders.
Speaker 2 (50:00):
And he came back to apologize. So he said, we
got out on the wrong foot, we got off on
the wrong for but you would not be treated me again. Hey, lit't, seny,
It's okay. But I am glad that you said that
you need more than just a PCP.
Speaker 3 (50:22):
I do.
Speaker 2 (50:22):
I'm very well about you have anything that's wrong with you,
you need a specialist in every department.
Speaker 1 (50:27):
Yeah, yeah, yeah. Usually the PCP is not usually the
one to diagnose sloopers. Usually it's going to be dermatology
or rheumatology. If you have the skin involvement and the
hair loss and all that, it's usually going to be
the dermatologist that suspected. Now, the PCP may suspect it,
but usually they'll refer you to rheumatology ticket the official decnose.
Speaker 3 (50:48):
Absolutely absolutely, you are dropping a lot of gems here.
I love it.
Speaker 2 (50:52):
I love it.
Speaker 1 (50:54):
What did you expect, girl?
Speaker 3 (50:55):
What?
Speaker 1 (50:56):
Nothing? Less?
Speaker 3 (50:57):
That's why I wanted you, because you you dope.
Speaker 1 (51:01):
So I like trying not to like, let me go
ahead and do this for this girl because you know
she gonna come at me. That's you too, so let
me just go get it out of her system.
Speaker 2 (51:12):
You don't have to have you on here, and this
is not gonna be the last time, and you just
so I just had to highlight you and pickup right
all at.
Speaker 3 (51:20):
The same time while we helping our amazing warriors.
Speaker 1 (51:22):
I didn't see I was looking for any questions I
didn't see anymore.
Speaker 2 (51:25):
So how do you stay current with medication advancements in
lupa's treatments while managing your own health?
Speaker 1 (51:38):
So that would come from reading so all of the
currents or the for the like, say, the last my
medication regiment hasn't changed in probably three years. So any
knowledge I've gotten about new treatments and what's come out
has mostly been geared toward nephrightis and I don't have
(52:00):
kidney involvement at all, whether my lupis thank God. So
it will be through reading peer review journals or you
know what I see in you know, advertised or as
sponsors at events, Lucas events. They're there at their table,
they talk about what they have knew. That's how I learned.
Speaker 2 (52:23):
Absolutely, that's amazing. Yes, education is very important.
Speaker 3 (52:27):
Read read, read, read.
Speaker 1 (52:32):
It's fundamental. It's fundamental.
Speaker 3 (52:35):
It is that things always changed, and you have to
you have to, you have to.
Speaker 1 (52:40):
But here's the thing. What happens when we read and
we don't comprehend when we read. And I say that
because health literacy, health literacy, I'm a real big proponent
of health disparities. And I feel like for us in
the Lucas community to decrease the health disparity with this
particular in other other diseases and the illnesses too, we
(53:03):
have to increase our health literacy. So increase our education,
and we have to increase our financial resources. You have
better options and choices most times with financial reserves and
options for treatment. And you all know what I'm saying.
So if I have this health plan and I'm limited
(53:25):
where I can go. But I got this health plan
and I can go where I want to go, and
I don't need a referral, and I got it like that,
then I have more options available to me. If you're
you know your financial situation is a little different, and
you have a plan that is dictating to you where
you can go, who you can see, that's a problem.
Speaker 2 (53:49):
So, in lack of a better verbage, because that was
a lot. I understood it, but I want to make
sure our people understand it. What are you saying in
English terms?
Speaker 1 (54:00):
In English terms, I'm saying when you have more financial resources,
better insurance, more money, more finances, more people that support
you with money or finances or access to it, and
maybe you don't have it, but grandmother has it in
the chest under the drawer, you have more options. I'm
(54:25):
not gonna necessarily say better because County has a lot
of excellent positions, but you have more choices, access, the
opportunity to see what else is out there. The access
is different. It's about access, okay, yep, and do your
horror you guys.
Speaker 2 (54:42):
If you have insurance and it's not a network for
some doctors that you want to go so you do
have a right to switch it, so you're not locked in.
So for those that do not know you have the
right to switch your insurance, don't talk about you don't
understand that been and you want to just do that.
I said, I understood it, but I just go people
(55:04):
that's all here, that's not in the field and things
like that kind of.
Speaker 3 (55:08):
Them.
Speaker 1 (55:09):
Okay, you are missed.
Speaker 2 (55:19):
What road do you think lifestyle changes plays in managing
on our mule conditions like loope is okay?
Speaker 1 (55:28):
So for me, lifestyle one thing that's helped me is
walking three miles a couple of times a week. And
people would look at my weight and think I'm inactive.
When I'm in my little fitbig group, I lead everybody,
they'd be like, you can't that meeting. I was like, yeah,
y'all assume bigger people are lazy and don't move. So
lifestyle of exercising or walking or getting some because you
(55:53):
want healthy joints, you want to move them right. Heating
and poor size, especially when we're flat up and on
pregnant zone. I strictly cut carbs and sugar because I
have no choice. Otherwise I'd be like like a big old,
big old, big old whale. Smoking and drinking. Yeah, smoking
(56:18):
cessation is one of the best things you can do,
whether you've got loopers or not. Smoking sensation if you smoke,
alcohol intake reducing. I'm not saying don't ever drink, but
I'm saying we don't need four when we drink. Yes,
that that lifestyle, alcohol, tobacco, diet, exercise lifestyle.
Speaker 3 (56:39):
That is right.
Speaker 2 (56:40):
And when you do know your body and know your
triggers and things of that nature, you will understand what
what type of liquor you can and someone what you
can assume. Like for me, it's some liquors that will
swow me up that I just got to stay away from.
Speaker 1 (56:57):
That's what you're saying. Don't mix that with what else.
Speaker 3 (57:00):
No, not you. I'm just giving it some more. You know.
I'm just and.
Speaker 1 (57:07):
That doctor Ma Sean said, it depends on what con
I say to choose. What I said liber your alcohol.
Speaker 2 (57:18):
You gotta limit to alcohol too, But you know I
gotta tell them too for those that do that, you
know your body because some liquor like will swow you
up and some well, you gotta find the right I
said that.
Speaker 1 (57:37):
That's look you, I don't want to listen to that,
because I'm saying alcohol and moderation. We don't need to
have drink every day, and we don't need to have
three and four and five. Okay you want to have
you look glass on one a couple of times a week,
more power to you. But if you're don't paying medication, obviously,
curve the alcohol completely wire you're.
Speaker 3 (57:58):
So yep, absolutely, I think see.
Speaker 1 (58:05):
You ain't getting me caught up girl.
Speaker 3 (58:09):
They's they gotta hear both sides.
Speaker 2 (58:14):
They got you got some people on here that's probably
been alcohol and been swollen up and don't even know why, I.
Speaker 1 (58:23):
Think, but I want them thinking, oh it's the type
Oh I had, I had?
Speaker 3 (58:29):
Uh you know they not twist these words on here.
You know exactly what she and I said. Oh why God?
Speaker 2 (58:43):
The last question, looking ahead, what are your hopes for
future of Lupe's research and awareness.
Speaker 1 (58:52):
Obviously, like everybody, I hope for a cure in my lifetime.
Do I expect to see that? No, but in generations.
I mean I have granddaughter, she will have kids one day,
and I hope that this is not passed down. So
I would say that's number one that I would like
to see. And what was the other part of that question,
(59:16):
where did.
Speaker 3 (59:16):
I go look it ahead?
Speaker 2 (59:18):
What are your hopes for the future of loops research
and awareness.
Speaker 1 (59:24):
And awareness obviously national consistent exposure, not just in the
month of May. In the month of May, I promise
you I got about ten invitations to speak or do interviews.
And like you said, this is a year, all year,
we need to be running this, right. I know you
do your stuff, your show, your podcast every Wednesday. Your
(59:47):
topics vary. I think in the background it's always loops,
but I know you talk about other things too, So
that's what I would like to see. I would like
to see a cure for particularly based off research that
African Americans women participated in and men too. And then
secondly for advocacy and awareness. I would like to see
(01:00:10):
it on a national level and have the Purple ribbon
as recognizable as the peak.
Speaker 2 (01:00:18):
Absolutely, I would definitely have to agree with you on that.
And yes, as you heard a doctor Lashawan Gorilla said,
I am here every Wednesday at six thirty Central Standard time,
and we talk about loops and everything because we're not
just in a box, Okay, we have regular life that
we live, so I like to cover lupas and everything.
(01:00:41):
So that this is what this podcast is all about.
A lot of people learn from things at least there's
a lot of takeaways and so on and so forth.
So and then I bring powerful women on like yourself.
Speaker 1 (01:00:52):
Thank you, thank you for having me.
Speaker 3 (01:00:54):
You're welcome. So what takeaways?
Speaker 2 (01:00:56):
I want to be respectable of your time. So what
takeaways would you leave our viewers today?
Speaker 1 (01:01:03):
Takeaways that would leave your viewers today is you know,
follow your own path and not one of others. You
know your limitations, you know your strengths and your weaknesses.
What one person does in their path with lupus may
not be your Your journey is your journey. Keep your
mindset open to increasing your knowledge base about loupus and
(01:01:27):
just know that anything is possible with loops. Lupus is
not the end all be all, Okay, we can supersede
most times with the obstacles that we have, like hang
in there, hang in their, stay in the race.
Speaker 2 (01:01:43):
Absolutely, And do you want to drop any of your
tags if we already do not have them in there?
Speaker 3 (01:01:48):
If they want to.
Speaker 2 (01:01:50):
Visit your support group or contact you in any way
for anything, You got any upcoming events that you want
to share thinks, dion, I see the commentation.
Speaker 1 (01:02:00):
Look listen, thanksbook people. I'm only on Facebook right now,
that's right, So y'all see my first name l A
s h O n gorolla g u r r O
l A. I'm gonna drop that in the chat. That's
how I'm on Facebook. From there, I can connect you
to my Gluper support group, which is monthly. It's usually
on a Saturday. I do try to do like socials
(01:02:24):
twice a year, so June will be a social meaning
we'll get together outside, whether it's go bowling, go for pizza,
go for advertisers, and drinks doesn't have to be alcohol,
but it's certainly your mind mocktail. There you go. And
I'm trying to get back in the little chat. I'm sure, okay,
(01:02:45):
here's in the chat, so I'll put that in there
for Facebook people, and I think that's about it. But yeah,
this was fun. I enjoyed. Uh it was. It was
nice to laugh with you, and you know, yeah, sometimes
we are serious. I know I am, but this this
(01:03:08):
was very important and I think we discussed some great
things and I'm happy we.
Speaker 2 (01:03:16):
Definitely discussed some great things. Thank you for taking time
out of your busy schedule for coming.
Speaker 1 (01:03:21):
You know it's busy. You know it's busy.
Speaker 3 (01:03:25):
For the rest of your life.
Speaker 1 (01:03:29):
You know what, I'm gonna slow down in a few years.
I think I say that right, I said that two
years ago, but I still have.
Speaker 2 (01:03:38):
Because you got other stuff that you do with with
rebuilding houses and things of that nature.
Speaker 1 (01:03:42):
But we're not even when you do finance, I'll come back.
You do lopers and finance, I'll come back and I'll
have that conversation with you. I'm bringing my wife, my wife,
the team with me, that's Tomiko and Levito. All right, Okay,
We're gonna definitely set that up. So again, thank you
for your time, for coming host, all the pleasure.
Speaker 3 (01:04:03):
Of having you. Congratulations on your doctorates and you guys.
Speaker 2 (01:04:10):
We are here every Wednesday at six thirty Central Standard time.
If you miss it live on Facebook, you can go
to the YouTube Lupas Has No Face podcast and replay
it and comment and again we myself or if doctor
Lashan Garola would like to respond, she will respond as well.
Speaker 3 (01:04:29):
So thank you all so much for tuning in. Until
next time,
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