July 30, 2025 • 54 mins
Join us for a truly special and heartwarming episode as we welcome fellow podcaster ans Founder of Lupus Speaks, Shedrica Shant’e Holmes, the host of the Chronically Planned podcast. A faith-led entrepreneur, lupus warrior, and digital storyteller, Shedrica shares her powerful journey of living with Lupus SLE since 2008 and transforming survival-mode motherhood into a life of healing, clarity, and purpose. Shedrica will delve into how chronically ill moms can embrace a "soft start" approach to turn their personal stories into sustainable businesses and fulfilling lives.
Tune in for an inspiring conversation that offers actionable advice and mindset shifts for lupus warriors and chronically ill moms seeking to plan softer, live with purpose, and profit with intention.
She’ll discuss moving beyond the hustle to heal, offering insights into:
* **Starting Soft:**
The new way chronically ill moms are planning to profit.
* **Faith, Fatigue, and Finances:** Lessons learned about building a slow, intentional business.
* **The Power of Planning in Low-Energy Seasons:** Practical strategies for managing chronic illness while pursuing your dreams.
* **From Diagnosis to Digital Products:** How to build a brand even with chronic illness.
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Join your host, Savannah Burks, as she explores the struggles and triumphs of individuals navigating their health journeys, all while juggling life's many challenges. Don't miss an episode! Subscribe, listen, and share on all major podcast platforms. For more content and updates, follow us on social media and join the conversation.
Tune in for an inspiring conversation that offers actionable advice and mindset shifts for lupus warriors and chronically ill moms seeking to plan softer, live with purpose, and profit with intention.
She’ll discuss moving beyond the hustle to heal, offering insights into:
* **Starting Soft:**
The new way chronically ill moms are planning to profit.
* **Faith, Fatigue, and Finances:** Lessons learned about building a slow, intentional business.
* **The Power of Planning in Low-Energy Seasons:** Practical strategies for managing chronic illness while pursuing your dreams.
* **From Diagnosis to Digital Products:** How to build a brand even with chronic illness.
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Join your host, Savannah Burks, as she explores the struggles and triumphs of individuals navigating their health journeys, all while juggling life's many challenges. Don't miss an episode! Subscribe, listen, and share on all major podcast platforms. For more content and updates, follow us on social media and join the conversation.
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
M h.
Speaker 2 (00:04):
M hm.
Speaker 3 (00:08):
M were aged.
Speaker 1 (00:15):
Hurt her street up m m m m m m.
Speaker 3 (00:51):
Mm hmm.
Speaker 4 (01:21):
Welcome back to Lupa's haseno Face, the podcast where we
talk about real life, real struggle and the power behind
lupas and beyond. I'm your host Savannah Bertz, and we
will be discussing navigating chronic illness with soft substantial planning
with our special guests, Drinka and She is the founder
(01:46):
and host of Loopis. Oh my gosh, Lupus speaks. My
notes went all over the place. I thank you, guys.
I'm sorry, Lupus speaks. I know it all over the place.
Hold on, hold yeap. Today I'll got it together, y'all
(02:07):
can come from me. I got it together today. I'm
blaming it on the brain fogs, y'all, I'm blaming it
on the brain fogs.
Speaker 5 (02:15):
Oh okay. So.
Speaker 6 (02:19):
She is.
Speaker 4 (02:22):
The founder of Lupis Speak's host of Chronically Plannet podcasts
helping chronically ill moms turn their stories into a soft
substantial starts. Sadrinka Holmes is a faith entrepreneur, lupis warrior,
and a digital storyteller. She's the host of Chronically Planned,
a podcaster and a movement guide chronically ill woman through
(02:46):
soft substantial business and life design. After living with Lucas
Slle since two thousand and eight, navigating surviving mode motherhood,
Subdrinka created a new approach ruth and healing, clarity and purpose,
one plan at a time. She knew what it feels
like to be stuck in survivor mode, barely able to
(03:09):
plan for the week, let alone for her dream. She
created planning after realizing she didn't need to hustle to heal.
Now help women like herself story to start small, plan softer,
and profit with purpose. That's a lot, a lot. That
(03:36):
is a lot. So I am so happy that I
was finally able to get you. How you doing today?
Speaker 6 (03:43):
I'm doing well. I'm so glad to be here. Thank
you for having me.
Speaker 4 (03:47):
You are very welcome. So before we jump into all
of this, how has your day been so far?
Speaker 6 (03:54):
It's been a day.
Speaker 4 (03:58):
It's been a day, so brief, so to briefly tell
us what's what's that they've been like?
Speaker 1 (04:06):
So right now, I've been really in my becoming era
and I've been really trying to focus on prioritizing myself.
So that looks like going on the walk this morning,
eating breakfast, journaling devotion, some vitamins, and then just in
my computer all day long working on a few projects
(04:30):
for my business. So I was busy with that, and
then then it's pick up kids from school, could dinner,
and then it's that so trying to squeeze everything in.
Speaker 4 (04:43):
It that looked like you had today. You look beautiful
and well rested. So look you're wearing it very well.
Speaker 1 (04:49):
Thank you, because I literally am so sleepy and I'm
not put together at all. I literally just throwing this
wig and put on this blazing was like, whatever, you
look beautiful, thank you.
Speaker 4 (05:03):
Well for those that is just tuning in what inspired
you to start lupas Speak and chronically planning.
Speaker 1 (05:12):
What started Lupus Speaks was basically just isolation, like being alone,
not knowing other people who live with this, not knowing
you know, how to make friends that can relate to me.
Speaker 6 (05:30):
So I created LUPA Speaks. I was like, you know what,
I'm just.
Speaker 1 (05:33):
Gonna tell the truth of how it really is, because
when I first started, I didn't really see that.
Speaker 6 (05:39):
Much information going.
Speaker 1 (05:42):
When it came to a community, because I feel like
that's what I wanted. A lot and loop of speech
just came from that, just connected with other warriors while
they are sharing their stories and just creating an opportunity
for them to use my platform to speak and to
be able to talk to other like minded entrepreneurs in
(06:05):
the chronate illness space, so that way they can have
the opportunity to promote their businesses as well. And then
chronically plan came into play because it's like, I love planning.
I absolutely love it, like the stickers, the highlighters, depends
like everything, and I wanted to incorporate my love for
planning and loop us together because I know that through
(06:27):
my journey, planning has helped me heal and you know, have.
Speaker 6 (06:33):
A life of purpose.
Speaker 4 (06:36):
So because you like love the stickers and anything like that,
do you have like a planner, what stickers that you
sell or anything like that?
Speaker 5 (06:44):
Or is there anything like that?
Speaker 6 (06:45):
In the words, it is in the works.
Speaker 1 (06:47):
But I'm currently using a happy planner and I've using
that since the beginning of my planning journey.
Speaker 6 (06:56):
And it's so hard to undo that.
Speaker 1 (06:58):
But I am I have some differ so I don't
have an actual physical planner, but I do have digital planners.
Speaker 5 (07:04):
Yes, Okay, so when you when you get that up
and going.
Speaker 4 (07:08):
I hope I get that exclusive coming back on here
and when you watch that and drop that.
Speaker 6 (07:13):
Okay, yes, yes.
Speaker 5 (07:16):
Loop anything that you got going on with.
Speaker 6 (07:18):
That, Okay, we'll do.
Speaker 5 (07:21):
I would like to.
Speaker 4 (07:22):
Collaborate with with that because I already have a journal,
so it'd be something dope that I would love to
see coming through with that.
Speaker 1 (07:30):
Thank you, I would definitely.
Speaker 5 (07:32):
Okay.
Speaker 4 (07:35):
You've been living with lupus esselli since two thousand and eight.
What was your diagnosis journey like and how did it
shape who you are today.
Speaker 1 (07:45):
I feel like my diagnosis journey was pretty fast. It's
not long like how some people struggle with the long
term of symptoms before they figure out what's going on
with them.
Speaker 6 (07:57):
Mine happened fairly quickly.
Speaker 1 (08:00):
I basically went to an urgent care because I was
losing a lot of weight. I wasn't feeling well. I
was super skinny, like eighty pounds. I started to lose
my hair, I had joint pain, and I just could
not deal with light or sound, and so I just
went to an urgent care and I got the diagnosis
(08:22):
that exact day, and so that was pretty easy journey.
Speaker 6 (08:27):
And then like.
Speaker 1 (08:30):
It just made me stronger, Like that's pretty much what
it's made me today is just stronger, loving on myself
more and learning how to create boundaries so that I
don't get sick.
Speaker 5 (08:47):
That is really interesting.
Speaker 6 (08:48):
You are.
Speaker 4 (08:48):
I have did a lot of interviews with a lot
of words, and you are the first person. Everybody's journing
is definitely different, but you are the first person I
ever heard and say it was just that fast, like
literally the same day and just noise and light. That's
very different. I'm not surprised, but that's that's the first
(09:10):
for me. The same day.
Speaker 1 (09:12):
I mean after my diagnosis, I experienced a lot of seizures.
So I feel like that sensitivity to sound and light
was like a trigger or like a warning for that,
because any flashing lights or anything like that would like
trigger me to have a seizure.
Speaker 6 (09:28):
So I think.
Speaker 1 (09:30):
That is something different because I interview people and I
never hear them say that either, and there I guess
their journey to get a diagnosis is a long time.
Speaker 5 (09:41):
But no, I was not like that. So what did
the noise do to you?
Speaker 4 (09:46):
Like when you heard were any type of noise was
the Pacific type of noise and it was.
Speaker 6 (09:50):
Just loud, just really loud. Like Okay, So at the
time I was dating someone.
Speaker 1 (09:55):
And he played the saxophone, and oh my goodness, I
just could not He was good at praying his saxophone,
but I just couldn't handle the noise.
Speaker 3 (10:05):
Like the sound.
Speaker 6 (10:06):
It would just make my.
Speaker 1 (10:07):
Head hurt and it would just feel like it was
making my body hurt too. So I don't know.
Speaker 5 (10:14):
So was it like excruciating.
Speaker 6 (10:16):
Pain, like it wasn't even like pain in the joint.
Speaker 1 (10:19):
It was like pain in the nerves like it was
just like it just got on my nerves.
Speaker 5 (10:25):
Really, that is different. Yeah, it's really different. And you know,
so it's not crazy. I don't want to say crazy. Different.
Speaker 4 (10:35):
That is so different because if you would tell somebody
that don't know about that, they.
Speaker 5 (10:40):
Would be like, she crazy, She making that up? You
know what I mean? That is so unique. Wow. I
was just gonna say wow to that.
Speaker 4 (10:52):
I'm gonna add that to a learning session because that
is very unique. Thank you so much for tuning in.
That is that's my sister. She is, she's she's so
so much support. Thank you so much for tuning in,
doctor Goola. I don't know why she ain't changed her
name yet a good man. So yes, okay, thank you
(11:17):
for sharing that. Thank you for sharing that. So we're
gonna move uh, move on to living with Lupez. You
talked about shifting from survival mode into a life of
healing and clarity. What was the turning point for you?
Speaker 5 (11:37):
That's a good question.
Speaker 1 (11:40):
I think the I think the turning point is just like.
Speaker 6 (11:46):
Realizing that I'm capable of so much more and just.
Speaker 1 (11:54):
Being unhappy, you know, like why I'm just diving deep
and trying to figure are, Like why am I so unhappy?
And like what can I do about it? And I
realized that planning, yes, it's important, but it also was
me getting God's way basically because I am just so
(12:17):
in control of trying to control every narrative of my
life and this that and the third and my breaking
point was basically just to surrender, like, Okay, God, you know.
Speaker 6 (12:28):
This is your thing. What do you want me to do?
Speaker 1 (12:31):
Because I know that you created for me to have
so much more than where I can see right now?
Speaker 6 (12:36):
So what am I doing?
Speaker 1 (12:37):
And I just realized I was getting in my own
way and that was the breaking point for me because
I'm like, it's more so than to just surviving and
just doing what we know, Like, how about I just
do something different, like what I don't know, what I've
never done, And that's that's not easy. It's simple to
(12:58):
just do something that you never done, but it's hard
to not go back to the past or go back
to the same things that you used to do because
you're just so comfortable doing it. It's an emotional roller coaster,
but I'm I'm happier because even though I don't see
what's in front of me, I have so much fake
(13:19):
that it is so much better. It's so big, and
I just want to keep moving towards that versus just
reflecting on my past and the things that make me
feel like I'm just here.
Speaker 4 (13:30):
You have such amazing energy, like I feel like you
just seem so happy, like you just got me on
your smile.
Speaker 5 (13:39):
You got some dope energy and I love that.
Speaker 4 (13:41):
And it's just making me think about a question that
I don't know if it was a question or like
a statement. Yesterday somebody posted or tagged me in and
say like having oopers or something like that was miserable
or I don't know, and I'm like, no, it's not.
You know, you just got to learn what you can
and what you cannot do you like, you are a
prime example of like Lucas is not the presson.
Speaker 5 (14:03):
Or you know what I mean?
Speaker 4 (14:05):
And you are you just a radiant person, like I
just feel your energy like you so bubbly.
Speaker 6 (14:11):
Thank you, But you're.
Speaker 4 (14:12):
Just a prime example of just like Lucas can be
very happy and very bubbly, like how you are so
like I just like the spirit.
Speaker 5 (14:21):
That's pretty dope. You welcome.
Speaker 4 (14:25):
What has been one of the hardest parts of navigating
Lucas while raising their family.
Speaker 1 (14:35):
I'm so silly because I was about to say the
hardest part is raising the family.
Speaker 5 (14:45):
It really is.
Speaker 1 (14:46):
It's the hardest part because you know, it's not just
you that you have to take.
Speaker 6 (14:50):
Care of and make sure that you're well.
Speaker 1 (14:54):
And then you know, you got their things that they
have to navigate, their emotions, there feelings, you know, their pain.
Speaker 6 (15:03):
You know, it's just hard. It's difficult.
Speaker 1 (15:07):
But without my planner, I wouldn't be able to manage
to stay on type of things and remember because it's
a lot of stuff you've got to remember, you know,
school stuff, doc, disappointments, it's all kinds of stuff.
Speaker 6 (15:22):
Food, cooking dinner, like I plan everything. Do you think without.
Speaker 4 (15:27):
Your planner you would be lost? How you ever just
tried not not planning things?
Speaker 6 (15:31):
Yeah?
Speaker 1 (15:32):
Yeah, yeah, It's been seasons where I'm not consistent with
my planner. But I mean by the time you get
it into routine or habit, you know, basically, can you
(15:54):
hear now?
Speaker 5 (15:54):
Yes?
Speaker 4 (15:55):
Okay, he died, Okay, sorry, But I get it because
if I don't have my planner, I'm lost. I don't
know what I'm doing I'm supposed to be doing. I'll
just be I need my book. So I understand that.
I definitely understand that many warriors struggle with guilt or burnout.
(16:22):
How do you see burnout or yourself? How do you
see burnout or offer yourself grace on the hard days?
Speaker 3 (16:34):
Burnout?
Speaker 1 (16:36):
I have done that, you know in the past, because
you go through this seasons of feeling like you're behind
because of lupus, like you haven't been able to do X,
Y and Z because I had a flare, or just
I've been in the hospital for a long time, or
I didn't get to go to school or whatever. Your
you know, your reason is it makes you feel behind,
(16:58):
So you feel like you got to hurry up and
do a lot.
Speaker 3 (17:01):
So I have burnt myself out several times.
Speaker 1 (17:05):
But in this season, like I said, I just allow
myself some grace by loving on myself more and leaning
on people that I know support me, that do love
on me, and stop trying to do it all because
you just can't do it all.
Speaker 3 (17:23):
And it's okay to ask.
Speaker 1 (17:24):
For help and lean on those because at the end
of the day, that's what they for, just lean on
to be support.
Speaker 3 (17:31):
So use them for.
Speaker 4 (17:36):
Sure, for sure, for sure, there's nothing wrong with that.
We're gonna move on to the power of soft starts.
Tell us the soft starts approach you teach, what does
that mean in your daily life and how has it
changed how you show up?
Speaker 1 (17:55):
So my framework that I basically teach is faith. First,
you know, without faith, and it doesn't mean that you
have to believe in God or whatever.
Speaker 3 (18:05):
But I believe in God.
Speaker 1 (18:06):
But at the end of the day, in order to
see something promising, you have to believe that it can happen.
Speaker 3 (18:12):
You have to believe that it exists.
Speaker 1 (18:15):
And that's the first thing that I lead with is faith.
And then we go into planning, where we take that
dream or promise.
Speaker 3 (18:24):
Or vision that you have or you know what you
want to do, and.
Speaker 1 (18:27):
Break that down into steps to plan it out and
then execution, which is just holding you accountable to be
able to apply those steps that we've worked through or planned.
Speaker 3 (18:40):
And I don't remember the end of the.
Speaker 4 (18:41):
Question that our The end of the question is and
how has it changed? And how you show up? How
do you show up?
Speaker 3 (18:53):
Good question? Again, I don't know.
Speaker 1 (18:57):
I don't really know how to answer that because I
feel like I've been doing so many changes here lately
that I just.
Speaker 3 (19:04):
Show up, Like I just show up.
Speaker 1 (19:07):
I believe in giving your best self at anything that
you do, so you know, just show up, just get up,
just do it.
Speaker 3 (19:16):
You know, that's just my way.
Speaker 1 (19:18):
I don't. I don't. I don't like anybody that have anything,
so I'm not gonna have anything. So I show up
as my best self as much as I can in
everything that I do.
Speaker 4 (19:31):
Now that's really dope because I be telling people or
I have often conversations with whoever, and oftentimes people just
be like, you know, well I don't have this and
I haven't completed this, so I haven't done this, and
I'm like, you know what, just do it because if
you just show up and a person gonna tell you
will like come back when you got this, at least
(19:52):
you know what to do to come back. Just show up,
because if you keep waiting for the right time, it's
never gonna be the right time. Just do it because
the person is going to tell you what it is
that you need. As long as you show up, you done.
Speaker 5 (20:06):
You did it right. Time waits for no one, you
know what I mean.
Speaker 4 (20:10):
So I always just say just show up, just do it,
you know what I mean, because so many people always
try to wait for the right time, and it's never
gonna be the right time. You're never gonna have the
right financials, you're never gonna have the probably the right courage,
that enough courage, whatever it is that you're looking for
is never gonna be the right anything.
Speaker 5 (20:28):
You just gotta go and do it right.
Speaker 4 (20:31):
So I feel like that's probably like the question that
I ask you, and that's what you answer, like you
just you just do it whatever.
Speaker 5 (20:38):
You feel it's best to do.
Speaker 4 (20:39):
You just go do it, and that's the best that's
the best of you at that time, right, Yeah, I mean.
Speaker 1 (20:46):
You just give whatever capacity that you because I know
that word capacity is you know, like this thing now,
but it's like whatever capacity that you have, just do that.
You know what I'm saying, Like at this point, I
just feel.
Speaker 3 (20:58):
Like it's no excuses. It's just no excuses.
Speaker 1 (21:03):
I wouldn't allow myself to give myself excuses or anyone.
That's why I'm so part on accountability because we already
do that anyway. So you just need somebody to stay
on top of you and make sure that you could.
Speaker 3 (21:16):
Just get these things done. Start.
Speaker 1 (21:20):
I think that's the whole process for me as well.
That I've just included into my brain is you know,
starting with your story, because I think that a lot
of people overlook like the testimony that God has already
given you, which is that rough thing that this crnny illness,
this this whatever you have that you're feeling like, oh
(21:42):
my god, it's the worst thing. And it's like, no,
that is a thing. Feel confident and open enough to share.
But even if you're not, do it scared. Don't wait
for the right camera, don't wait for the right phone,
don't wait for the new tripod, like, just just start
(22:03):
because why not, Like I mean, at this point the
way things are going, like why not like, I mean,
what do you really have to lose by telling your truth?
Speaker 3 (22:13):
Telling your story?
Speaker 1 (22:14):
Like, I don't know, But that's just my opinion because
I've had practice in speaking and you know, sharing and
talking through my podcast. But at the beginning, I had
no idea what I was doing.
Speaker 3 (22:28):
I didn't know anything.
Speaker 1 (22:31):
I just look for the stuff that I needed to
know and then I just did it. And sometimes it
still looks sounds horrible, But at the end of the day,
I showed up and then I get a message where
somebody says, your story resonated with me.
Speaker 3 (22:46):
You know, is helping me, you know, build my confidence.
Speaker 1 (22:49):
It's helping me have insights on business in the chronic
illness space, because sometimes people just don't know, you know.
Speaker 5 (22:57):
So, who are you talking your stuff? Girl? You talking
a girl?
Speaker 4 (23:06):
How do you balance planning for the future while also
living with a condition that can be so unpredictable.
Speaker 1 (23:17):
I just keep planning. I just keep showing it like
everything is unpredictable. I have kids, so everything is unpredictable
in my life. Like today, you know, I wasn't supposed
to do pick up at the daycare, but I did,
you know, And so it's just so you just show
up anyway. It doesn't really matter about the chronic illness
being unpredictable.
Speaker 3 (23:38):
I mean, you do what you can.
Speaker 1 (23:42):
There was I mean, I was teaching a class in May,
and the first week of the class, my voice went out.
But that was unexpected, unpredictable. My voice went out, but
I came to over time. I think it was like
a few days and then I just pre recorded the
(24:04):
class and then I sent it out to them an
email like I didn't keep me, let it keep me
from doing what I need to do or showing up.
When I said that I was gonna show up and deliver.
So whatever you gotta do to deliver, just deliver.
Speaker 4 (24:19):
So many people in here gonna love you, especially my
Girlmna Kelle, especially doctor Garrolla, because they these are these
people on here that be like just do it, no
excuses necessary, like and you talking that stuff, like so
many people give so many excuses as to why they came,
why they won't, why they just wouldn't continue, because it's like,
oh the first day, mess up, why I'm gonna continue,
(24:40):
And it's just like just how you said, you find
out ways to continue to deliver, and that's what it's
all about because don't nobody care about excuses? Like we
understand excuses, right, we're not unsympathetic, but it's just kind
of like people won't what they want at the end
of the day, right, they want what they want at
(25:00):
the end of the day.
Speaker 5 (25:01):
And you are literally one of the people.
Speaker 4 (25:03):
You got a chronic illness, you got all this stuff
going on, but you understand.
Speaker 5 (25:07):
And that's that's the key, you know what it is?
Speaker 1 (25:13):
Because I used to sit back and be like, ain't
nobody coming to save me? Like like no, man, no, no, nothing,
nobody is coming to save me.
Speaker 3 (25:25):
So who gonna do it?
Speaker 1 (25:27):
And once I got that in, it was like, Okay,
I gotta I gotta get it.
Speaker 3 (25:31):
I gotta stay ready.
Speaker 6 (25:33):
Like.
Speaker 5 (25:35):
Right now what.
Speaker 3 (25:38):
Because it's that thing.
Speaker 1 (25:39):
If you see yourself as something, right, then how do
you expect to get there if you keep staying in
the same place, Like you have to operate as the
person that you see yourself as.
Speaker 3 (25:52):
Like me and my friend made jokes out of time
cause she was like the future self for me, don't
we don't eat donuhing, And I'd be.
Speaker 1 (25:57):
Like, okay, like whatever it is that to see yourself
as you have to operate that.
Speaker 3 (26:03):
In the present in order to get there.
Speaker 1 (26:06):
So I mean basically it was just like I'm not
I gotta save myself basically.
Speaker 4 (26:14):
Okay, okay, dude, Can you share a few sustainable tools
or routine that help you stay grounded.
Speaker 3 (26:28):
Faith God? Number one?
Speaker 1 (26:30):
You know, my tool, my source, my resource, my provision,
my everything. But I usually just you know, sit time,
sit down, pray. I usually like to write my prayers
because I prefer to go back and look at what
God has done.
Speaker 6 (26:49):
You know.
Speaker 3 (26:49):
It's just that reflection, devotion and getting into.
Speaker 1 (26:55):
Community or spaces where I could talk about God and
it's comfortable.
Speaker 3 (27:00):
But that's like the number one thing.
Speaker 6 (27:06):
Yeah.
Speaker 3 (27:07):
I don't remember the rest of the question because brain fog,
but it is what it is.
Speaker 5 (27:13):
No, you answered it. You definitely answer, did you?
Speaker 6 (27:17):
Buddy?
Speaker 5 (27:19):
We're gonna move on to a purpose and business.
Speaker 4 (27:22):
You turned your personal journey into a platform and purpose.
What advice do you have for other women with chronic
illnesses who wants to start a business or a brand?
Speaker 3 (27:35):
Work with me?
Speaker 5 (27:39):
What's the tags? We're gonna drop them tags?
Speaker 1 (27:41):
Tom?
Speaker 5 (27:42):
How can they reach you?
Speaker 1 (27:47):
You can reach me at ww dot, chronicallyplan dot com,
or at Lucas speech. You can send me a d
M and just let me know how I can help
you with getting started with sharing your story being afraid,
what part of your story you would like to tell
and we could break that down in steps and I
can show you how to start from the platforms you
(28:09):
should choose, from the content of platforms that you can
use as far as like canva cap cut like it's
it's a lot, it's a lot.
Speaker 5 (28:18):
You heard what she said, We're gonna drop them tax
below for sure.
Speaker 4 (28:25):
How do you blend your faith and your storytelling into
your work without feeling drained or overexploited.
Speaker 3 (28:35):
Uh, I'm trying to find the nicest way to.
Speaker 5 (28:40):
Say that, just saying.
Speaker 1 (28:47):
I'm not exploiting God in any kind of way, Like
I'm speaking my truth and the way He has been
there for me. And if you can't relate, oh well,
and if you can't with God, like I'm not about
the sugar coated or change it to make anybody feel
comfortable with my story.
Speaker 5 (29:07):
Whoever is for meant for it to receive, that's who
we'll receive it. That's it. That's all.
Speaker 1 (29:11):
That was the nice way to say that.
Speaker 5 (29:14):
That's that's all. I ain't say that's it.
Speaker 4 (29:19):
What has lupis taught you about yourself that you wouldn't
have learned otherwise?
Speaker 3 (29:31):
That I can endure pain?
Speaker 5 (29:35):
Mm hmm, you speaking of stuff?
Speaker 3 (29:41):
I mean really you you you endorse some things.
Speaker 5 (29:45):
It was radiating energy through me today? What is going
on here? Osten? All right? We pain? Okay? All right?
Speaker 1 (30:01):
Well?
Speaker 4 (30:03):
What does what does living well with lupees mean to you?
Speaker 1 (30:10):
Living well with lupus is being okay with who you are,
but doing the work that you need to do in
(30:31):
order to be better and make a difference, you know,
because there I mean, there's just I've been having loopus
since two thousand and eight, so it's been a long
journey for me. And there's times where you know, I
was young, you know, I was only twenty years old.
I'm like, oh, it's not that serious, you know, but
it's serious.
Speaker 3 (30:53):
Your life is not anything to play with.
Speaker 1 (30:55):
So I feel like I've learned basically just that your
life it's nothing to play with and it's your responsibility
to save yourself. Check your labs, understand what those mean,
Eat the right foods. Like we're not saying this stuff
for a reason, Like you can prevent how you feel,
(31:15):
how you think, how you speak yourself, Like nobody else
has anything to do with that. The doctors can tell
you whatever they want to tell you. But your faith,
your God can make a difference. What you say to yourself,
how you speak to yourself, It makes a difference. So
living well, it's all on you.
Speaker 4 (31:38):
Say it again, because that's exactly what I mean by
my slogan. Yes, exactly exactly. We're gonna dive a little
deeper into these questions. Okay, so identity and self elevation. Okay,
so how has Lupa's reshaped your identity as a woman,
mother and entrepreneur.
Speaker 1 (32:02):
I really, really really try my hardest not to allow
loopus to be my identity. I and I'm I'm sorry,
but I'm not sorry. But I speak a lot about
God because that is my belief that I try to
remember who He says I am, you know, and not
reflect on the whole woe is me kind of energy
(32:25):
like I just don't fit with that. Yes, it's okay
to have a day you know where you just like,
oh my god, this sucks. But then it's like, what
you're gonna do about it? You know, what can you
do about it and then do.
Speaker 3 (32:39):
That because I don't want my identity just wrapped around loopis.
Speaker 1 (32:47):
I mean, it's a part of my experience like anything else,
but it's not my identity. I mean, we already carry
so many roles as women. You know, we're the mom,
We're the uber driver, we the cook, we the nurse,
you know, we so many things.
Speaker 3 (33:02):
So it's just like staying.
Speaker 1 (33:03):
Rooted in what God says and who he says you are.
Speaker 3 (33:07):
No other identity matters.
Speaker 4 (33:09):
With that, for sure, for sure, for sure, what parts
of your old self do you have to let go
of and what new part have you embraced?
Speaker 3 (33:26):
The old parts of myself that I had to let
go of is.
Speaker 1 (33:32):
Carrying other people's burdens. And I know that Bible say
we're supposed to do that, but I think it's.
Speaker 3 (33:44):
That help, not carry it like it's yours.
Speaker 1 (33:47):
Like you know, taking on other people things as my
responsibility has been something I've had to let go of.
Speaker 3 (33:57):
Because it ends up just disrupting my whole.
Speaker 1 (34:02):
Path because I'm so like they don't even ask, I'm
just volunteering myself, like well, I can do that, can
help you with that, I can do.
Speaker 3 (34:10):
This, I can do that. And then it ends up being.
Speaker 1 (34:15):
Like, but they not wanting to help themselfs, they not
wanting to change, and you so invested in their healing
and their growth and they don't even want to do it.
Speaker 3 (34:23):
So that's my old self falling back. We're not doing
that no more.
Speaker 1 (34:28):
And now I'm like, let me gauge where I can
help by you.
Speaker 3 (34:33):
Let me see what you can do, and then maybe I'll.
Speaker 1 (34:35):
Put my two cents in because other than that, it's
a waste of my energy.
Speaker 3 (34:40):
But myself, I'm embracing.
Speaker 1 (34:45):
Being like like being I feel like because I'm all
over the place all the time, having to do this,
having to do that, and I just find myself just
finding a place to be stilled and then just embraces
like just being me, like cutting everything off, just tuning
everything out and just being still because it's always so
(35:08):
much noise.
Speaker 3 (35:09):
Especially with social media.
Speaker 1 (35:11):
It is like I get messages to myself all the
time like you'd be like why do I feel this way?
And it's like I've just seeing that video and it's
like I wouldn't even feel like that at first.
Speaker 3 (35:22):
So just like fixing my energy.
Speaker 1 (35:26):
And what's around me, what I'm listening to, what I'm internalizing.
That's something I'm embracing.
Speaker 5 (35:33):
That's though.
Speaker 4 (35:34):
I love that I been telling your energy, moving on
to healing thoughts and storytelling as they didn't know storyteller.
How do you decide what to share and what to
keep sacred?
Speaker 1 (35:50):
Who That's a hot one. It is because I'm an
open book, like I will. I can honestly say that
I have absolutely we know secrets.
Speaker 3 (36:02):
There is at least one to.
Speaker 1 (36:04):
Two people on this planet that would know any of
everything about me.
Speaker 3 (36:08):
I don't have no.
Speaker 1 (36:08):
Secrets, so it's hard to not share everything with the world.
But I'm learning that, you know, privacy is a mystery
in it. You know, it's kind of interesting. So I
can't say that I know that one pretty well. But
I'm working on keeping some things private. You messed.
Speaker 4 (36:35):
Have you ever shared something variable and being surprised by
the response?
Speaker 5 (36:44):
No, oh wow? You really is the open But.
Speaker 3 (36:51):
Because I didn't. If I didn't, I don't know. If
I didn't want to say it, I wouldn't say that,
you know, like.
Speaker 1 (37:02):
I just don't.
Speaker 3 (37:02):
It's not that deep for me. It's really nice.
Speaker 5 (37:07):
Okay, Okay.
Speaker 4 (37:10):
Mindset and mental health? How do you keep your mindset?
Center doing hard seasons therapy. Oh okay, for sure, nic
I love that we're.
Speaker 3 (37:23):
Going to therapy.
Speaker 1 (37:24):
I need you like every week now, you know, whenever
it's something that is turning up and I'm like, okay,
let me reconnate my emotions.
Speaker 3 (37:31):
I'm going every week.
Speaker 4 (37:32):
But you know, I love how open you are. That
is so dope. Now, that is really dope. You can
you can kind of tell that's probably why you so
like jolly and so happy and so free spirit spiritly,
that is really dupe. How how do you stay hopeful
when Lucas feels unpredictable or unfair?
Speaker 3 (37:56):
How do I stay what?
Speaker 5 (37:58):
How do you? How do you? Okay?
Speaker 4 (38:03):
So, how do you stay hopeful when lupis feels unpredictable
or unfair?
Speaker 1 (38:11):
I think that my children helped with that a lot,
just because you know, I feel and this is probably
gonna be real honest, but I feel like if I
didn't have them, I probably wouldn't get out of the bed.
I don't think that it would be that easy for
me to, you know, think of the future. But when
I think of the future, I see them and I
(38:33):
see me being there, and so it allows me to
remain hopeful and do whatever it is that I need
to do in order to be here, because I feel
like that's one of the things that I did not
think about as a as a component being a mother
with the chronic illness. I didn't think like, hmm, there
(38:53):
could be a time where I don't get to be
here to see them graduate, or you know, I just
wanted to your mom. I wasn't thinking about all the
other things. So now that they are here, just like
it's my responsibility to make sure I take care of
myself so that we can they can have the best
version of me.
Speaker 3 (39:12):
So I think that they keep me hopeful for the future.
Speaker 4 (39:16):
So is that your center focused point of everything is them?
You make it sound so bad, but no, no, no,
I didn't want to make it sound BD. But I
felt the shift in your voice when it came to them,
So I'm like, that must be your drives them. It is, no,
(39:39):
because I felt it like I felt that.
Speaker 3 (39:42):
Yeah, it is, because I mean it was a deep,
deep sorrow.
Speaker 1 (39:47):
You know, when you are in chronic pain and you
can't change a diaper, or you can't go outside because
the sun is just too hot. When you when it's
just certain things that limit you. You just can fall
into that sadness within. It's just like, well, what can
you do well? You can play indoors, just like being present,
(40:11):
like it means so much. And like I said, we
have all these worldly distractions where we are in the
same room with our kids, but we're not present with them.
So I'm just you know, working on being more intentional
with it and you know, making sure I spend that
time because they do grow up and they don't want
to do with you no more. So it's like taking
all the time you can to spend with them.
Speaker 3 (40:33):
And that's just that's my future them.
Speaker 1 (40:36):
Whatever I pour into them, how I raise them, what
they get that is my legacy in anything. That is
my legacy, not this business, not this podcast. Them whatever
they learn from me, that's the next generation in this world.
Speaker 3 (40:51):
So that's my priority.
Speaker 6 (40:53):
Man.
Speaker 5 (40:54):
That's how old are they?
Speaker 3 (40:55):
Eleven and two? Age gap.
Speaker 4 (41:02):
Let me tell you, when they get older, they gonna
be all to themselves.
Speaker 5 (41:05):
Minds is fourteen and twenty.
Speaker 4 (41:08):
When I tell you they be all to themselves, it's
very I ain't gonna say rare, but sometimes my twenty
girls will come lay with me and stuff like that.
Speaker 5 (41:17):
But girl.
Speaker 4 (41:17):
They do be off to themselves in the all little world.
I'll be like light in the bed with me.
Speaker 1 (41:23):
Oh yeah, come on girl, yeah but she yeah. I
think that's probably one of my biggest regrets is giving
her a phone too early.
Speaker 4 (41:36):
Yep, child, child, Well, legacy, legacy, impact. What's the legacy
you're building through Loopis speaks and chronically planned?
Speaker 1 (41:55):
I mean the legacy basically is for my children, you know,
I want them to have something that they can lean on,
whether that's a foundation or some type of platform where
it's like my mom did that and it grows off
to be something bigger. I mean, I honestly would like,
(42:16):
you know, some government contracts where I can actually have
some type of what are they called franchise, building spaces
for like the house of Loopis, you know, or just
something like that.
Speaker 3 (42:31):
Because breast cancer has their.
Speaker 1 (42:34):
Like facilities and things that they have, but Loopus doesn't
really have that. So creating some type of franchise or
something where people can go to together to have community,
because I feel like this is just an isolating experience
and it can make it worse.
Speaker 3 (42:52):
So I'm all about community.
Speaker 1 (42:55):
Anything that that's my legacy is community.
Speaker 5 (43:01):
I feel like, once.
Speaker 4 (43:04):
People get off the high horse and people come together
that are stronger individually merge together in the lupus community,
we will be able to have with the cancer foundations have.
(43:27):
But until then, we are going to continue to be
separated because individually we are making noise individually in smaller communities.
But it's all about being a unity, you know what
I mean. Until we figure that out, it's going to
be segregated the way that it is. And we need
(43:50):
to understand I'm gonna say we as a whole, we
need to understand that we all are fighting for one mission,
regardless of whatever we're doing a podcast, we're doing, whatever
it is we're doing. We all have loopers and it's
all for the same mission at the end of the day.
So so we understand that we're going to continue not
(44:11):
getting what it is that we need.
Speaker 5 (44:14):
So, yes, I'm totally with you on that. Yeah, so
I'm keeping cute like that.
Speaker 3 (44:21):
We all serve the same community.
Speaker 1 (44:24):
We all also have our own lane of things, you
know what I'm saying. Anyone that talks about playing in
the loop community, you know what I mean, I'm my
own lane.
Speaker 3 (44:36):
You know, everybody has their own.
Speaker 1 (44:39):
Thing that they because it's your story, it's your sauce.
So all you gotta do is bring it together and
collaborate with one.
Speaker 3 (44:47):
Calls and boom.
Speaker 4 (44:50):
Yeah, like everybody can support everybody and and we will
be strong together.
Speaker 5 (44:55):
But no one does that.
Speaker 4 (44:56):
And I don't know why for the life of me,
and when when it's time for cancer, everybody's supporting everybody
no matter what it is. Sister struck that I don't
know why people with loops does the things that they do,
but they do. And I feel like that's why it
is how it is, why the funding is how it is,
(45:16):
and why it's not being bigger. You know what I'm saying.
We got the loop in summit, but it's still a bridge.
It's still a big gap, you.
Speaker 5 (45:25):
Know what I mean.
Speaker 4 (45:26):
So until we do better as a whole, then it's
gonna be how it is, you know. So I just
wish that we get it together.
Speaker 5 (45:36):
I'm gonna say we as a whole.
Speaker 4 (45:38):
So I just I'm praying for better days, prayer for
better days.
Speaker 1 (45:45):
I mean, I can't say that's been my experience, but
I can see what you mean.
Speaker 3 (45:50):
When it comes to.
Speaker 1 (45:51):
The foundation, the bigger foundations and funding definitely can see
that there. I feel like, I'm not trying to be funny,
but they need some people of color on them panels
and them.
Speaker 4 (46:06):
That's why I say we, because I don't want to
segregate anybody out. That money needs to come to the
people in the communities because the people that's in the
community that are doing the legwork, the people that's up
there on they're they're not doing what we are doing
down here.
Speaker 5 (46:22):
That's as cute as I can keep it, you know
what I mean.
Speaker 4 (46:25):
So research always needs to be done, but research take
fair end a day to get done.
Speaker 1 (46:32):
So then it's the research, like what we researching? Like
and where's the funding going? Like what what the money at?
You know, like is this for uber e card from
when I can't go out and give me some eat?
Like where's the money going? Like all this funding for
this medication, they're literally suppressing something else to give us
(46:55):
something else, Like I mean, come on now, like like
those are the things that I really am not a
big of supporting because if I can't, it's just like
you want to know where your money going. So if
you donating, you raising funds, you putting all the legwork
out there to build.
Speaker 3 (47:10):
All this money for this walk, but then I get
a toe bag and a T shirt? Where where is
the money? What are we doing here?
Speaker 5 (47:20):
What I I do? That's that is a problem for me.
Speaker 4 (47:26):
I want to know why what you know, who's getting
funded to go to Washington d C.
Speaker 5 (47:33):
Who's getting funded to go to these camps?
Speaker 4 (47:36):
You know, who's why people rent is not getting paid
when they're out of work. I want to know all
of that stuff because you know, people have these high
end jobs, Like who's getting paid for all of this stuff?
Speaker 5 (47:47):
You getting billions of dollars millions of dollars? Like what
are y'all doing? You know what I'm saying?
Speaker 4 (47:52):
So that that is a that is an issue. You
know when of these smaller non profit organizations are uh
doing Turkey drives and Christmas giveaway and paying certain people
rents and I know, I know my nonprofit does, and
we raise stuff to give that and we're not nearly
getting any of that, you know what I mean? So
(48:14):
that is that's a problem.
Speaker 5 (48:16):
But again.
Speaker 3 (48:20):
I don't know, I said, I said, whoever do like
you heard me? I said, come find me, email me.
I'm staying with everybody.
Speaker 5 (48:34):
Thinking like I mean, I did ask those questions.
Speaker 4 (48:37):
I was at the White House, you know what I'm saying,
So you know I you know it's it. That is
an issue, that's the that's the issue. We don't know
where the money is going. That's a problems. It's a
huge problem in the community. But you know what I'm
(48:57):
i I'm going to bring you back on here so
we can definitely talk about that.
Speaker 5 (49:02):
That's gonna be a topic. I was trying to stay
away from that.
Speaker 3 (49:07):
But how does us if you keep quiet, it doesn't help.
Speaker 1 (49:11):
Nobody knows how we truly feel if we try to
stay away from certain topics.
Speaker 3 (49:16):
That's why Lucas It speaks and we have to open
our mouth.
Speaker 1 (49:19):
We have to come together and we got to do
what we got to do because there's no change in
being quiet.
Speaker 5 (49:25):
You are absolutely right. I am.
Speaker 4 (49:30):
We I'm gonna bring you back on here and we're
definitely gonna talk about that. We're gonna I'm gonna do
I was trying to stay away from that. I was
trying to stay away from it, but you're right, you
are absolutely right. We were gonna talk about that. I'm
definitely gonna bring you back on here. We are what
booked in to this sick sixteenth. After the twentieth, I'll
(49:55):
bring you on here after the twentieth, and we just
we just gonna have to open the doors.
Speaker 1 (50:01):
It should that's gonna be a panel of conversations about
something mean because I'm also open to new information. So
if somebody from the board or somebody on that panel
or somebody can say, okay, here, this is what we're
doing this like, let the people.
Speaker 3 (50:16):
Know because.
Speaker 1 (50:19):
We are, you know, not to raise money and we're
choosing not to do certain things because we don't know,
and you know, I feel like that is something that
they should be willing to share so that way we
can see what's going on. So it should definitely be
a conversation with multiple people that you know can shed
(50:42):
light on them.
Speaker 4 (50:45):
I'm open, I we we we just gonna have to
do it. I'm gonna do it. I'm definitely gonna do it.
Speaker 3 (50:53):
And look, I'm gonna hold you accountable too.
Speaker 4 (50:57):
The world is seeing me say that I'm gonna open
old doors. We're gonna open those doors. My producer said,
he agrees to it. I'm just gonna have to do it.
I'll try to stay away from that topic, but you
you are absolutely right, they keep coming up. You're not
the only person that said it. So I'm opening the door.
I'm opening the doors, and you're right, you are absolutely right.
(51:19):
So we're gonna do it. We're gonna do it. I'm
a'm dig deep into it. I've been doing it. But
you know we're gonna do it. We're definitely gonna do it.
So bring you back on here, Bring you back on here.
Speaker 5 (51:33):
Just forna, get your.
Speaker 2 (51:34):
Hot whoa Jesus, Okay, we're gonna do it.
Speaker 5 (51:47):
We're gonna make it a panel, so you.
Speaker 4 (51:50):
Can pick who you want to have on here. I'll
reach out to some people. I'll get some factual things,
you can get some whatever you want to. We can
discuss before we actually come on here exactly what's what.
We got to make sure things actually because they are
gonna come after me. They already been saying things, so
(52:11):
we got to make sure what we're saying is actual facts.
Speaker 5 (52:16):
Let's do it. Let's do it. He over there last,
you already know. Okay, we can do it.
Speaker 6 (52:32):
We can do it.
Speaker 5 (52:33):
You've got my numbers, so we can go back and forth.
Speaker 4 (52:36):
So that being said, we drop her tags in there
if anybody want them to help tell their story on
how to.
Speaker 5 (52:49):
Create their or tell a story in business and what
is your.
Speaker 4 (52:56):
Close the remarks on the topic that we have been
talking about as far as like planning anything.
Speaker 3 (53:05):
Mm hmmm.
Speaker 1 (53:10):
Mm hmm.
Speaker 6 (53:12):
I don't like.
Speaker 5 (53:13):
I don't know, Yes you do.
Speaker 3 (53:18):
I don't know.
Speaker 6 (53:20):
Do something.
Speaker 3 (53:21):
Hurry up right now? We ain't got much time.
Speaker 1 (53:24):
What that's my closing remark, like hurry up, do something,
make a change, make a difference, like like save yourself.
I don't know that that is.
Speaker 3 (53:39):
My remark, say yourself.
Speaker 5 (53:42):
You are funny. Yeah, you are so funny.
Speaker 4 (53:49):
Thank you so much for coming on taking out time
of your business schedule. Again, we are definitely going to
come back on here. What the topic that you want
to talk about, y'all stay tuned for that. This is
going to be very interesting. We're probably gonna have a
series on that topic. We are here every Wednesday esthics thirty.
(54:15):
Make sure you go on our YouTube to replay like subscribe,
share you do not, and yet we gotta wait sure
make sure everything is run through. So stay on until
you see a completion on your end. Until next time
you guys, peace.
Speaker 1 (54:44):
I know
M h.
Speaker 2 (00:04):
M hm.
Speaker 3 (00:08):
M were aged.
Speaker 1 (00:15):
Hurt her street up m m m m m m.
Speaker 3 (00:51):
Mm hmm.
Speaker 4 (01:21):
Welcome back to Lupa's haseno Face, the podcast where we
talk about real life, real struggle and the power behind
lupas and beyond. I'm your host Savannah Bertz, and we
will be discussing navigating chronic illness with soft substantial planning
with our special guests, Drinka and She is the founder
(01:46):
and host of Loopis. Oh my gosh, Lupus speaks. My
notes went all over the place. I thank you, guys.
I'm sorry, Lupus speaks. I know it all over the place.
Hold on, hold yeap. Today I'll got it together, y'all
(02:07):
can come from me. I got it together today. I'm
blaming it on the brain fogs, y'all, I'm blaming it
on the brain fogs.
Speaker 5 (02:15):
Oh okay. So.
Speaker 6 (02:19):
She is.
Speaker 4 (02:22):
The founder of Lupis Speak's host of Chronically Plannet podcasts
helping chronically ill moms turn their stories into a soft
substantial starts. Sadrinka Holmes is a faith entrepreneur, lupis warrior,
and a digital storyteller. She's the host of Chronically Planned,
a podcaster and a movement guide chronically ill woman through
(02:46):
soft substantial business and life design. After living with Lucas
Slle since two thousand and eight, navigating surviving mode motherhood,
Subdrinka created a new approach ruth and healing, clarity and purpose,
one plan at a time. She knew what it feels
like to be stuck in survivor mode, barely able to
(03:09):
plan for the week, let alone for her dream. She
created planning after realizing she didn't need to hustle to heal.
Now help women like herself story to start small, plan softer,
and profit with purpose. That's a lot, a lot. That
(03:36):
is a lot. So I am so happy that I
was finally able to get you. How you doing today?
Speaker 6 (03:43):
I'm doing well. I'm so glad to be here. Thank
you for having me.
Speaker 4 (03:47):
You are very welcome. So before we jump into all
of this, how has your day been so far?
Speaker 6 (03:54):
It's been a day.
Speaker 4 (03:58):
It's been a day, so brief, so to briefly tell
us what's what's that they've been like?
Speaker 1 (04:06):
So right now, I've been really in my becoming era
and I've been really trying to focus on prioritizing myself.
So that looks like going on the walk this morning,
eating breakfast, journaling devotion, some vitamins, and then just in
my computer all day long working on a few projects
(04:30):
for my business. So I was busy with that, and
then then it's pick up kids from school, could dinner,
and then it's that so trying to squeeze everything in.
Speaker 4 (04:43):
It that looked like you had today. You look beautiful
and well rested. So look you're wearing it very well.
Speaker 1 (04:49):
Thank you, because I literally am so sleepy and I'm
not put together at all. I literally just throwing this
wig and put on this blazing was like, whatever, you
look beautiful, thank you.
Speaker 4 (05:03):
Well for those that is just tuning in what inspired
you to start lupas Speak and chronically planning.
Speaker 1 (05:12):
What started Lupus Speaks was basically just isolation, like being alone,
not knowing other people who live with this, not knowing
you know, how to make friends that can relate to me.
Speaker 6 (05:30):
So I created LUPA Speaks. I was like, you know what,
I'm just.
Speaker 1 (05:33):
Gonna tell the truth of how it really is, because
when I first started, I didn't really see that.
Speaker 6 (05:39):
Much information going.
Speaker 1 (05:42):
When it came to a community, because I feel like
that's what I wanted. A lot and loop of speech
just came from that, just connected with other warriors while
they are sharing their stories and just creating an opportunity
for them to use my platform to speak and to
be able to talk to other like minded entrepreneurs in
(06:05):
the chronate illness space, so that way they can have
the opportunity to promote their businesses as well. And then
chronically plan came into play because it's like, I love planning.
I absolutely love it, like the stickers, the highlighters, depends
like everything, and I wanted to incorporate my love for
planning and loop us together because I know that through
(06:27):
my journey, planning has helped me heal and you know, have.
Speaker 6 (06:33):
A life of purpose.
Speaker 4 (06:36):
So because you like love the stickers and anything like that,
do you have like a planner, what stickers that you
sell or anything like that?
Speaker 5 (06:44):
Or is there anything like that?
Speaker 6 (06:45):
In the words, it is in the works.
Speaker 1 (06:47):
But I'm currently using a happy planner and I've using
that since the beginning of my planning journey.
Speaker 6 (06:56):
And it's so hard to undo that.
Speaker 1 (06:58):
But I am I have some differ so I don't
have an actual physical planner, but I do have digital planners.
Speaker 5 (07:04):
Yes, Okay, so when you when you get that up
and going.
Speaker 4 (07:08):
I hope I get that exclusive coming back on here
and when you watch that and drop that.
Speaker 6 (07:13):
Okay, yes, yes.
Speaker 5 (07:16):
Loop anything that you got going on with.
Speaker 6 (07:18):
That, Okay, we'll do.
Speaker 5 (07:21):
I would like to.
Speaker 4 (07:22):
Collaborate with with that because I already have a journal,
so it'd be something dope that I would love to
see coming through with that.
Speaker 1 (07:30):
Thank you, I would definitely.
Speaker 5 (07:32):
Okay.
Speaker 4 (07:35):
You've been living with lupus esselli since two thousand and eight.
What was your diagnosis journey like and how did it
shape who you are today.
Speaker 1 (07:45):
I feel like my diagnosis journey was pretty fast. It's
not long like how some people struggle with the long
term of symptoms before they figure out what's going on
with them.
Speaker 6 (07:57):
Mine happened fairly quickly.
Speaker 1 (08:00):
I basically went to an urgent care because I was
losing a lot of weight. I wasn't feeling well. I
was super skinny, like eighty pounds. I started to lose
my hair, I had joint pain, and I just could
not deal with light or sound, and so I just
went to an urgent care and I got the diagnosis
(08:22):
that exact day, and so that was pretty easy journey.
Speaker 6 (08:27):
And then like.
Speaker 1 (08:30):
It just made me stronger, Like that's pretty much what
it's made me today is just stronger, loving on myself
more and learning how to create boundaries so that I
don't get sick.
Speaker 5 (08:47):
That is really interesting.
Speaker 6 (08:48):
You are.
Speaker 4 (08:48):
I have did a lot of interviews with a lot
of words, and you are the first person. Everybody's journing
is definitely different, but you are the first person I
ever heard and say it was just that fast, like
literally the same day and just noise and light. That's
very different. I'm not surprised, but that's that's the first
(09:10):
for me. The same day.
Speaker 1 (09:12):
I mean after my diagnosis, I experienced a lot of seizures.
So I feel like that sensitivity to sound and light
was like a trigger or like a warning for that,
because any flashing lights or anything like that would like
trigger me to have a seizure.
Speaker 6 (09:28):
So I think.
Speaker 1 (09:30):
That is something different because I interview people and I
never hear them say that either, and there I guess
their journey to get a diagnosis is a long time.
Speaker 5 (09:41):
But no, I was not like that. So what did
the noise do to you?
Speaker 4 (09:46):
Like when you heard were any type of noise was
the Pacific type of noise and it was.
Speaker 6 (09:50):
Just loud, just really loud. Like Okay, So at the
time I was dating someone.
Speaker 1 (09:55):
And he played the saxophone, and oh my goodness, I
just could not He was good at praying his saxophone,
but I just couldn't handle the noise.
Speaker 3 (10:05):
Like the sound.
Speaker 6 (10:06):
It would just make my.
Speaker 1 (10:07):
Head hurt and it would just feel like it was
making my body hurt too. So I don't know.
Speaker 5 (10:14):
So was it like excruciating.
Speaker 6 (10:16):
Pain, like it wasn't even like pain in the joint.
Speaker 1 (10:19):
It was like pain in the nerves like it was
just like it just got on my nerves.
Speaker 5 (10:25):
Really, that is different. Yeah, it's really different. And you know,
so it's not crazy. I don't want to say crazy. Different.
Speaker 4 (10:35):
That is so different because if you would tell somebody
that don't know about that, they.
Speaker 5 (10:40):
Would be like, she crazy, She making that up? You
know what I mean? That is so unique. Wow. I
was just gonna say wow to that.
Speaker 4 (10:52):
I'm gonna add that to a learning session because that
is very unique. Thank you so much for tuning in.
That is that's my sister. She is, she's she's so
so much support. Thank you so much for tuning in,
doctor Goola. I don't know why she ain't changed her
name yet a good man. So yes, okay, thank you
(11:17):
for sharing that. Thank you for sharing that. So we're
gonna move uh, move on to living with Lupez. You
talked about shifting from survival mode into a life of
healing and clarity. What was the turning point for you?
Speaker 5 (11:37):
That's a good question.
Speaker 1 (11:40):
I think the I think the turning point is just like.
Speaker 6 (11:46):
Realizing that I'm capable of so much more and just.
Speaker 1 (11:54):
Being unhappy, you know, like why I'm just diving deep
and trying to figure are, Like why am I so unhappy?
And like what can I do about it? And I
realized that planning, yes, it's important, but it also was
me getting God's way basically because I am just so
(12:17):
in control of trying to control every narrative of my
life and this that and the third and my breaking
point was basically just to surrender, like, Okay, God, you know.
Speaker 6 (12:28):
This is your thing. What do you want me to do?
Speaker 1 (12:31):
Because I know that you created for me to have
so much more than where I can see right now?
Speaker 6 (12:36):
So what am I doing?
Speaker 1 (12:37):
And I just realized I was getting in my own
way and that was the breaking point for me because
I'm like, it's more so than to just surviving and
just doing what we know, Like, how about I just
do something different, like what I don't know, what I've
never done, And that's that's not easy. It's simple to
(12:58):
just do something that you never done, but it's hard
to not go back to the past or go back
to the same things that you used to do because
you're just so comfortable doing it. It's an emotional roller coaster,
but I'm I'm happier because even though I don't see
what's in front of me, I have so much fake
(13:19):
that it is so much better. It's so big, and
I just want to keep moving towards that versus just
reflecting on my past and the things that make me
feel like I'm just here.
Speaker 4 (13:30):
You have such amazing energy, like I feel like you
just seem so happy, like you just got me on
your smile.
Speaker 5 (13:39):
You got some dope energy and I love that.
Speaker 4 (13:41):
And it's just making me think about a question that
I don't know if it was a question or like
a statement. Yesterday somebody posted or tagged me in and
say like having oopers or something like that was miserable
or I don't know, and I'm like, no, it's not.
You know, you just got to learn what you can
and what you cannot do you like, you are a
prime example of like Lucas is not the presson.
Speaker 5 (14:03):
Or you know what I mean?
Speaker 4 (14:05):
And you are you just a radiant person, like I
just feel your energy like you so bubbly.
Speaker 6 (14:11):
Thank you, But you're.
Speaker 4 (14:12):
Just a prime example of just like Lucas can be
very happy and very bubbly, like how you are so
like I just like the spirit.
Speaker 5 (14:21):
That's pretty dope. You welcome.
Speaker 4 (14:25):
What has been one of the hardest parts of navigating
Lucas while raising their family.
Speaker 1 (14:35):
I'm so silly because I was about to say the
hardest part is raising the family.
Speaker 5 (14:45):
It really is.
Speaker 1 (14:46):
It's the hardest part because you know, it's not just
you that you have to take.
Speaker 6 (14:50):
Care of and make sure that you're well.
Speaker 1 (14:54):
And then you know, you got their things that they
have to navigate, their emotions, there feelings, you know, their pain.
Speaker 6 (15:03):
You know, it's just hard. It's difficult.
Speaker 1 (15:07):
But without my planner, I wouldn't be able to manage
to stay on type of things and remember because it's
a lot of stuff you've got to remember, you know,
school stuff, doc, disappointments, it's all kinds of stuff.
Speaker 6 (15:22):
Food, cooking dinner, like I plan everything. Do you think without.
Speaker 4 (15:27):
Your planner you would be lost? How you ever just
tried not not planning things?
Speaker 6 (15:31):
Yeah?
Speaker 1 (15:32):
Yeah, yeah, It's been seasons where I'm not consistent with
my planner. But I mean by the time you get
it into routine or habit, you know, basically, can you
(15:54):
hear now?
Speaker 5 (15:54):
Yes?
Speaker 4 (15:55):
Okay, he died, Okay, sorry, But I get it because
if I don't have my planner, I'm lost. I don't
know what I'm doing I'm supposed to be doing. I'll
just be I need my book. So I understand that.
I definitely understand that many warriors struggle with guilt or burnout.
(16:22):
How do you see burnout or yourself? How do you
see burnout or offer yourself grace on the hard days?
Speaker 3 (16:34):
Burnout?
Speaker 1 (16:36):
I have done that, you know in the past, because
you go through this seasons of feeling like you're behind
because of lupus, like you haven't been able to do X,
Y and Z because I had a flare, or just
I've been in the hospital for a long time, or
I didn't get to go to school or whatever. Your
you know, your reason is it makes you feel behind,
(16:58):
So you feel like you got to hurry up and
do a lot.
Speaker 3 (17:01):
So I have burnt myself out several times.
Speaker 1 (17:05):
But in this season, like I said, I just allow
myself some grace by loving on myself more and leaning
on people that I know support me, that do love
on me, and stop trying to do it all because
you just can't do it all.
Speaker 3 (17:23):
And it's okay to ask.
Speaker 1 (17:24):
For help and lean on those because at the end
of the day, that's what they for, just lean on
to be support.
Speaker 3 (17:31):
So use them for.
Speaker 4 (17:36):
Sure, for sure, for sure, there's nothing wrong with that.
We're gonna move on to the power of soft starts.
Tell us the soft starts approach you teach, what does
that mean in your daily life and how has it
changed how you show up?
Speaker 1 (17:55):
So my framework that I basically teach is faith. First,
you know, without faith, and it doesn't mean that you
have to believe in God or whatever.
Speaker 3 (18:05):
But I believe in God.
Speaker 1 (18:06):
But at the end of the day, in order to
see something promising, you have to believe that it can happen.
Speaker 3 (18:12):
You have to believe that it exists.
Speaker 1 (18:15):
And that's the first thing that I lead with is faith.
And then we go into planning, where we take that
dream or promise.
Speaker 3 (18:24):
Or vision that you have or you know what you
want to do, and.
Speaker 1 (18:27):
Break that down into steps to plan it out and
then execution, which is just holding you accountable to be
able to apply those steps that we've worked through or planned.
Speaker 3 (18:40):
And I don't remember the end of the.
Speaker 4 (18:41):
Question that our The end of the question is and
how has it changed? And how you show up? How
do you show up?
Speaker 3 (18:53):
Good question? Again, I don't know.
Speaker 1 (18:57):
I don't really know how to answer that because I
feel like I've been doing so many changes here lately
that I just.
Speaker 3 (19:04):
Show up, Like I just show up.
Speaker 1 (19:07):
I believe in giving your best self at anything that
you do, so you know, just show up, just get up,
just do it.
Speaker 3 (19:16):
You know, that's just my way.
Speaker 1 (19:18):
I don't. I don't. I don't like anybody that have anything,
so I'm not gonna have anything. So I show up
as my best self as much as I can in
everything that I do.
Speaker 4 (19:31):
Now that's really dope because I be telling people or
I have often conversations with whoever, and oftentimes people just
be like, you know, well I don't have this and
I haven't completed this, so I haven't done this, and
I'm like, you know what, just do it because if
you just show up and a person gonna tell you
will like come back when you got this, at least
(19:52):
you know what to do to come back. Just show up,
because if you keep waiting for the right time, it's
never gonna be the right time. Just do it because
the person is going to tell you what it is
that you need. As long as you show up, you done.
Speaker 5 (20:06):
You did it right. Time waits for no one, you
know what I mean.
Speaker 4 (20:10):
So I always just say just show up, just do it,
you know what I mean, because so many people always
try to wait for the right time, and it's never
gonna be the right time. You're never gonna have the
right financials, you're never gonna have the probably the right courage,
that enough courage, whatever it is that you're looking for
is never gonna be the right anything.
Speaker 5 (20:28):
You just gotta go and do it right.
Speaker 4 (20:31):
So I feel like that's probably like the question that
I ask you, and that's what you answer, like you
just you just do it whatever.
Speaker 5 (20:38):
You feel it's best to do.
Speaker 4 (20:39):
You just go do it, and that's the best that's
the best of you at that time, right, Yeah, I mean.
Speaker 1 (20:46):
You just give whatever capacity that you because I know
that word capacity is you know, like this thing now,
but it's like whatever capacity that you have, just do that.
You know what I'm saying, Like at this point, I
just feel.
Speaker 3 (20:58):
Like it's no excuses. It's just no excuses.
Speaker 1 (21:03):
I wouldn't allow myself to give myself excuses or anyone.
That's why I'm so part on accountability because we already
do that anyway. So you just need somebody to stay
on top of you and make sure that you could.
Speaker 3 (21:16):
Just get these things done. Start.
Speaker 1 (21:20):
I think that's the whole process for me as well.
That I've just included into my brain is you know,
starting with your story, because I think that a lot
of people overlook like the testimony that God has already
given you, which is that rough thing that this crnny illness,
this this whatever you have that you're feeling like, oh
(21:42):
my god, it's the worst thing. And it's like, no,
that is a thing. Feel confident and open enough to share.
But even if you're not, do it scared. Don't wait
for the right camera, don't wait for the right phone,
don't wait for the new tripod, like, just just start
(22:03):
because why not, Like I mean, at this point the
way things are going, like why not like, I mean,
what do you really have to lose by telling your truth?
Speaker 3 (22:13):
Telling your story?
Speaker 1 (22:14):
Like, I don't know, But that's just my opinion because
I've had practice in speaking and you know, sharing and
talking through my podcast. But at the beginning, I had
no idea what I was doing.
Speaker 3 (22:28):
I didn't know anything.
Speaker 1 (22:31):
I just look for the stuff that I needed to
know and then I just did it. And sometimes it
still looks sounds horrible, But at the end of the day,
I showed up and then I get a message where
somebody says, your story resonated with me.
Speaker 3 (22:46):
You know, is helping me, you know, build my confidence.
Speaker 1 (22:49):
It's helping me have insights on business in the chronic
illness space, because sometimes people just don't know, you know.
Speaker 5 (22:57):
So, who are you talking your stuff? Girl? You talking
a girl?
Speaker 4 (23:06):
How do you balance planning for the future while also
living with a condition that can be so unpredictable.
Speaker 1 (23:17):
I just keep planning. I just keep showing it like
everything is unpredictable. I have kids, so everything is unpredictable
in my life. Like today, you know, I wasn't supposed
to do pick up at the daycare, but I did,
you know, And so it's just so you just show
up anyway. It doesn't really matter about the chronic illness
being unpredictable.
Speaker 3 (23:38):
I mean, you do what you can.
Speaker 1 (23:42):
There was I mean, I was teaching a class in May,
and the first week of the class, my voice went out.
But that was unexpected, unpredictable. My voice went out, but
I came to over time. I think it was like
a few days and then I just pre recorded the
(24:04):
class and then I sent it out to them an
email like I didn't keep me, let it keep me
from doing what I need to do or showing up.
When I said that I was gonna show up and deliver.
So whatever you gotta do to deliver, just deliver.
Speaker 4 (24:19):
So many people in here gonna love you, especially my
Girlmna Kelle, especially doctor Garrolla, because they these are these
people on here that be like just do it, no
excuses necessary, like and you talking that stuff, like so
many people give so many excuses as to why they came,
why they won't, why they just wouldn't continue, because it's like,
oh the first day, mess up, why I'm gonna continue,
(24:40):
And it's just like just how you said, you find
out ways to continue to deliver, and that's what it's
all about because don't nobody care about excuses? Like we
understand excuses, right, we're not unsympathetic, but it's just kind
of like people won't what they want at the end
of the day, right, they want what they want at
(25:00):
the end of the day.
Speaker 5 (25:01):
And you are literally one of the people.
Speaker 4 (25:03):
You got a chronic illness, you got all this stuff
going on, but you understand.
Speaker 5 (25:07):
And that's that's the key, you know what it is?
Speaker 1 (25:13):
Because I used to sit back and be like, ain't
nobody coming to save me? Like like no, man, no, no, nothing,
nobody is coming to save me.
Speaker 3 (25:25):
So who gonna do it?
Speaker 1 (25:27):
And once I got that in, it was like, Okay,
I gotta I gotta get it.
Speaker 3 (25:31):
I gotta stay ready.
Speaker 6 (25:33):
Like.
Speaker 5 (25:35):
Right now what.
Speaker 3 (25:38):
Because it's that thing.
Speaker 1 (25:39):
If you see yourself as something, right, then how do
you expect to get there if you keep staying in
the same place, Like you have to operate as the
person that you see yourself as.
Speaker 3 (25:52):
Like me and my friend made jokes out of time
cause she was like the future self for me, don't
we don't eat donuhing, And I'd be.
Speaker 1 (25:57):
Like, okay, like whatever it is that to see yourself
as you have to operate that.
Speaker 3 (26:03):
In the present in order to get there.
Speaker 1 (26:06):
So I mean basically it was just like I'm not
I gotta save myself basically.
Speaker 4 (26:14):
Okay, okay, dude, Can you share a few sustainable tools
or routine that help you stay grounded.
Speaker 3 (26:28):
Faith God? Number one?
Speaker 1 (26:30):
You know, my tool, my source, my resource, my provision,
my everything. But I usually just you know, sit time,
sit down, pray. I usually like to write my prayers
because I prefer to go back and look at what
God has done.
Speaker 6 (26:49):
You know.
Speaker 3 (26:49):
It's just that reflection, devotion and getting into.
Speaker 1 (26:55):
Community or spaces where I could talk about God and
it's comfortable.
Speaker 3 (27:00):
But that's like the number one thing.
Speaker 6 (27:06):
Yeah.
Speaker 3 (27:07):
I don't remember the rest of the question because brain fog,
but it is what it is.
Speaker 5 (27:13):
No, you answered it. You definitely answer, did you?
Speaker 6 (27:17):
Buddy?
Speaker 5 (27:19):
We're gonna move on to a purpose and business.
Speaker 4 (27:22):
You turned your personal journey into a platform and purpose.
What advice do you have for other women with chronic
illnesses who wants to start a business or a brand?
Speaker 3 (27:35):
Work with me?
Speaker 5 (27:39):
What's the tags? We're gonna drop them tags?
Speaker 1 (27:41):
Tom?
Speaker 5 (27:42):
How can they reach you?
Speaker 1 (27:47):
You can reach me at ww dot, chronicallyplan dot com,
or at Lucas speech. You can send me a d
M and just let me know how I can help
you with getting started with sharing your story being afraid,
what part of your story you would like to tell
and we could break that down in steps and I
can show you how to start from the platforms you
(28:09):
should choose, from the content of platforms that you can
use as far as like canva cap cut like it's
it's a lot, it's a lot.
Speaker 5 (28:18):
You heard what she said, We're gonna drop them tax
below for sure.
Speaker 4 (28:25):
How do you blend your faith and your storytelling into
your work without feeling drained or overexploited.
Speaker 3 (28:35):
Uh, I'm trying to find the nicest way to.
Speaker 5 (28:40):
Say that, just saying.
Speaker 1 (28:47):
I'm not exploiting God in any kind of way, Like
I'm speaking my truth and the way He has been
there for me. And if you can't relate, oh well,
and if you can't with God, like I'm not about
the sugar coated or change it to make anybody feel
comfortable with my story.
Speaker 5 (29:07):
Whoever is for meant for it to receive, that's who
we'll receive it. That's it. That's all.
Speaker 1 (29:11):
That was the nice way to say that.
Speaker 5 (29:14):
That's that's all. I ain't say that's it.
Speaker 4 (29:19):
What has lupis taught you about yourself that you wouldn't
have learned otherwise?
Speaker 3 (29:31):
That I can endure pain?
Speaker 5 (29:35):
Mm hmm, you speaking of stuff?
Speaker 3 (29:41):
I mean really you you you endorse some things.
Speaker 5 (29:45):
It was radiating energy through me today? What is going
on here? Osten? All right? We pain? Okay? All right?
Speaker 1 (30:01):
Well?
Speaker 4 (30:03):
What does what does living well with lupees mean to you?
Speaker 1 (30:10):
Living well with lupus is being okay with who you are,
but doing the work that you need to do in
(30:31):
order to be better and make a difference, you know,
because there I mean, there's just I've been having loopus
since two thousand and eight, so it's been a long
journey for me. And there's times where you know, I
was young, you know, I was only twenty years old.
I'm like, oh, it's not that serious, you know, but
it's serious.
Speaker 3 (30:53):
Your life is not anything to play with.
Speaker 1 (30:55):
So I feel like I've learned basically just that your
life it's nothing to play with and it's your responsibility
to save yourself. Check your labs, understand what those mean,
Eat the right foods. Like we're not saying this stuff
for a reason, Like you can prevent how you feel,
(31:15):
how you think, how you speak yourself, Like nobody else
has anything to do with that. The doctors can tell
you whatever they want to tell you. But your faith,
your God can make a difference. What you say to yourself,
how you speak to yourself, It makes a difference. So
living well, it's all on you.
Speaker 4 (31:38):
Say it again, because that's exactly what I mean by
my slogan. Yes, exactly exactly. We're gonna dive a little
deeper into these questions. Okay, so identity and self elevation. Okay,
so how has Lupa's reshaped your identity as a woman,
mother and entrepreneur.
Speaker 1 (32:02):
I really, really really try my hardest not to allow
loopus to be my identity. I and I'm I'm sorry,
but I'm not sorry. But I speak a lot about
God because that is my belief that I try to
remember who He says I am, you know, and not
reflect on the whole woe is me kind of energy
(32:25):
like I just don't fit with that. Yes, it's okay
to have a day you know where you just like,
oh my god, this sucks. But then it's like, what
you're gonna do about it? You know, what can you
do about it and then do.
Speaker 3 (32:39):
That because I don't want my identity just wrapped around loopis.
Speaker 1 (32:47):
I mean, it's a part of my experience like anything else,
but it's not my identity. I mean, we already carry
so many roles as women. You know, we're the mom,
We're the uber driver, we the cook, we the nurse,
you know, we so many things.
Speaker 3 (33:02):
So it's just like staying.
Speaker 1 (33:03):
Rooted in what God says and who he says you are.
Speaker 3 (33:07):
No other identity matters.
Speaker 4 (33:09):
With that, for sure, for sure, for sure, what parts
of your old self do you have to let go
of and what new part have you embraced?
Speaker 3 (33:26):
The old parts of myself that I had to let
go of is.
Speaker 1 (33:32):
Carrying other people's burdens. And I know that Bible say
we're supposed to do that, but I think it's.
Speaker 3 (33:44):
That help, not carry it like it's yours.
Speaker 1 (33:47):
Like you know, taking on other people things as my
responsibility has been something I've had to let go of.
Speaker 3 (33:57):
Because it ends up just disrupting my whole.
Speaker 1 (34:02):
Path because I'm so like they don't even ask, I'm
just volunteering myself, like well, I can do that, can
help you with that, I can do.
Speaker 3 (34:10):
This, I can do that. And then it ends up being.
Speaker 1 (34:15):
Like, but they not wanting to help themselfs, they not
wanting to change, and you so invested in their healing
and their growth and they don't even want to do it.
Speaker 3 (34:23):
So that's my old self falling back. We're not doing
that no more.
Speaker 1 (34:28):
And now I'm like, let me gauge where I can
help by you.
Speaker 3 (34:33):
Let me see what you can do, and then maybe I'll.
Speaker 1 (34:35):
Put my two cents in because other than that, it's
a waste of my energy.
Speaker 3 (34:40):
But myself, I'm embracing.
Speaker 1 (34:45):
Being like like being I feel like because I'm all
over the place all the time, having to do this,
having to do that, and I just find myself just
finding a place to be stilled and then just embraces
like just being me, like cutting everything off, just tuning
everything out and just being still because it's always so
(35:08):
much noise.
Speaker 3 (35:09):
Especially with social media.
Speaker 1 (35:11):
It is like I get messages to myself all the
time like you'd be like why do I feel this way?
And it's like I've just seeing that video and it's
like I wouldn't even feel like that at first.
Speaker 3 (35:22):
So just like fixing my energy.
Speaker 1 (35:26):
And what's around me, what I'm listening to, what I'm internalizing.
That's something I'm embracing.
Speaker 5 (35:33):
That's though.
Speaker 4 (35:34):
I love that I been telling your energy, moving on
to healing thoughts and storytelling as they didn't know storyteller.
How do you decide what to share and what to
keep sacred?
Speaker 1 (35:50):
Who That's a hot one. It is because I'm an
open book, like I will. I can honestly say that
I have absolutely we know secrets.
Speaker 3 (36:02):
There is at least one to.
Speaker 1 (36:04):
Two people on this planet that would know any of
everything about me.
Speaker 3 (36:08):
I don't have no.
Speaker 1 (36:08):
Secrets, so it's hard to not share everything with the world.
But I'm learning that, you know, privacy is a mystery
in it. You know, it's kind of interesting. So I
can't say that I know that one pretty well. But
I'm working on keeping some things private. You messed.
Speaker 4 (36:35):
Have you ever shared something variable and being surprised by
the response?
Speaker 5 (36:44):
No, oh wow? You really is the open But.
Speaker 3 (36:51):
Because I didn't. If I didn't, I don't know. If
I didn't want to say it, I wouldn't say that,
you know, like.
Speaker 1 (37:02):
I just don't.
Speaker 3 (37:02):
It's not that deep for me. It's really nice.
Speaker 5 (37:07):
Okay, Okay.
Speaker 4 (37:10):
Mindset and mental health? How do you keep your mindset?
Center doing hard seasons therapy. Oh okay, for sure, nic
I love that we're.
Speaker 3 (37:23):
Going to therapy.
Speaker 1 (37:24):
I need you like every week now, you know, whenever
it's something that is turning up and I'm like, okay,
let me reconnate my emotions.
Speaker 3 (37:31):
I'm going every week.
Speaker 4 (37:32):
But you know, I love how open you are. That
is so dope. Now, that is really dope. You can
you can kind of tell that's probably why you so
like jolly and so happy and so free spirit spiritly,
that is really dupe. How how do you stay hopeful
when Lucas feels unpredictable or unfair?
Speaker 3 (37:56):
How do I stay what?
Speaker 5 (37:58):
How do you? How do you? Okay?
Speaker 4 (38:03):
So, how do you stay hopeful when lupis feels unpredictable
or unfair?
Speaker 1 (38:11):
I think that my children helped with that a lot,
just because you know, I feel and this is probably
gonna be real honest, but I feel like if I
didn't have them, I probably wouldn't get out of the bed.
I don't think that it would be that easy for
me to, you know, think of the future. But when
I think of the future, I see them and I
(38:33):
see me being there, and so it allows me to
remain hopeful and do whatever it is that I need
to do in order to be here, because I feel
like that's one of the things that I did not
think about as a as a component being a mother
with the chronic illness. I didn't think like, hmm, there
(38:53):
could be a time where I don't get to be
here to see them graduate, or you know, I just
wanted to your mom. I wasn't thinking about all the
other things. So now that they are here, just like
it's my responsibility to make sure I take care of
myself so that we can they can have the best
version of me.
Speaker 3 (39:12):
So I think that they keep me hopeful for the future.
Speaker 4 (39:16):
So is that your center focused point of everything is them?
You make it sound so bad, but no, no, no,
I didn't want to make it sound BD. But I
felt the shift in your voice when it came to them,
So I'm like, that must be your drives them. It is, no,
(39:39):
because I felt it like I felt that.
Speaker 3 (39:42):
Yeah, it is, because I mean it was a deep,
deep sorrow.
Speaker 1 (39:47):
You know, when you are in chronic pain and you
can't change a diaper, or you can't go outside because
the sun is just too hot. When you when it's
just certain things that limit you. You just can fall
into that sadness within. It's just like, well, what can
you do well? You can play indoors, just like being present,
(40:11):
like it means so much. And like I said, we
have all these worldly distractions where we are in the
same room with our kids, but we're not present with them.
So I'm just you know, working on being more intentional
with it and you know, making sure I spend that
time because they do grow up and they don't want
to do with you no more. So it's like taking
all the time you can to spend with them.
Speaker 3 (40:33):
And that's just that's my future them.
Speaker 1 (40:36):
Whatever I pour into them, how I raise them, what
they get that is my legacy in anything. That is
my legacy, not this business, not this podcast. Them whatever
they learn from me, that's the next generation in this world.
Speaker 3 (40:51):
So that's my priority.
Speaker 6 (40:53):
Man.
Speaker 5 (40:54):
That's how old are they?
Speaker 3 (40:55):
Eleven and two? Age gap.
Speaker 4 (41:02):
Let me tell you, when they get older, they gonna
be all to themselves.
Speaker 5 (41:05):
Minds is fourteen and twenty.
Speaker 4 (41:08):
When I tell you they be all to themselves, it's
very I ain't gonna say rare, but sometimes my twenty
girls will come lay with me and stuff like that.
Speaker 5 (41:17):
But girl.
Speaker 4 (41:17):
They do be off to themselves in the all little world.
I'll be like light in the bed with me.
Speaker 1 (41:23):
Oh yeah, come on girl, yeah but she yeah. I
think that's probably one of my biggest regrets is giving
her a phone too early.
Speaker 4 (41:36):
Yep, child, child, Well, legacy, legacy, impact. What's the legacy
you're building through Loopis speaks and chronically planned?
Speaker 1 (41:55):
I mean the legacy basically is for my children, you know,
I want them to have something that they can lean on,
whether that's a foundation or some type of platform where
it's like my mom did that and it grows off
to be something bigger. I mean, I honestly would like,
(42:16):
you know, some government contracts where I can actually have
some type of what are they called franchise, building spaces
for like the house of Loopis, you know, or just
something like that.
Speaker 3 (42:31):
Because breast cancer has their.
Speaker 1 (42:34):
Like facilities and things that they have, but Loopus doesn't
really have that. So creating some type of franchise or
something where people can go to together to have community,
because I feel like this is just an isolating experience
and it can make it worse.
Speaker 3 (42:52):
So I'm all about community.
Speaker 1 (42:55):
Anything that that's my legacy is community.
Speaker 5 (43:01):
I feel like, once.
Speaker 4 (43:04):
People get off the high horse and people come together
that are stronger individually merge together in the lupus community,
we will be able to have with the cancer foundations have.
(43:27):
But until then, we are going to continue to be
separated because individually we are making noise individually in smaller communities.
But it's all about being a unity, you know what
I mean. Until we figure that out, it's going to
be segregated the way that it is. And we need
(43:50):
to understand I'm gonna say we as a whole, we
need to understand that we all are fighting for one mission,
regardless of whatever we're doing a podcast, we're doing, whatever
it is we're doing. We all have loopers and it's
all for the same mission at the end of the day.
So so we understand that we're going to continue not
(44:11):
getting what it is that we need.
Speaker 5 (44:14):
So, yes, I'm totally with you on that. Yeah, so
I'm keeping cute like that.
Speaker 3 (44:21):
We all serve the same community.
Speaker 1 (44:24):
We all also have our own lane of things, you
know what I'm saying. Anyone that talks about playing in
the loop community, you know what I mean, I'm my
own lane.
Speaker 3 (44:36):
You know, everybody has their own.
Speaker 1 (44:39):
Thing that they because it's your story, it's your sauce.
So all you gotta do is bring it together and
collaborate with one.
Speaker 3 (44:47):
Calls and boom.
Speaker 4 (44:50):
Yeah, like everybody can support everybody and and we will
be strong together.
Speaker 5 (44:55):
But no one does that.
Speaker 4 (44:56):
And I don't know why for the life of me,
and when when it's time for cancer, everybody's supporting everybody
no matter what it is. Sister struck that I don't
know why people with loops does the things that they do,
but they do. And I feel like that's why it
is how it is, why the funding is how it is,
(45:16):
and why it's not being bigger. You know what I'm saying.
We got the loop in summit, but it's still a bridge.
It's still a big gap, you.
Speaker 5 (45:25):
Know what I mean.
Speaker 4 (45:26):
So until we do better as a whole, then it's
gonna be how it is, you know. So I just
wish that we get it together.
Speaker 5 (45:36):
I'm gonna say we as a whole.
Speaker 4 (45:38):
So I just I'm praying for better days, prayer for
better days.
Speaker 1 (45:45):
I mean, I can't say that's been my experience, but
I can see what you mean.
Speaker 3 (45:50):
When it comes to.
Speaker 1 (45:51):
The foundation, the bigger foundations and funding definitely can see
that there. I feel like, I'm not trying to be funny,
but they need some people of color on them panels
and them.
Speaker 4 (46:06):
That's why I say we, because I don't want to
segregate anybody out. That money needs to come to the
people in the communities because the people that's in the
community that are doing the legwork, the people that's up
there on they're they're not doing what we are doing
down here.
Speaker 5 (46:22):
That's as cute as I can keep it, you know
what I mean.
Speaker 4 (46:25):
So research always needs to be done, but research take
fair end a day to get done.
Speaker 1 (46:32):
So then it's the research, like what we researching? Like
and where's the funding going? Like what what the money at?
You know, like is this for uber e card from
when I can't go out and give me some eat?
Like where's the money going? Like all this funding for
this medication, they're literally suppressing something else to give us
(46:55):
something else, Like I mean, come on now, like like
those are the things that I really am not a
big of supporting because if I can't, it's just like
you want to know where your money going. So if
you donating, you raising funds, you putting all the legwork
out there to build.
Speaker 3 (47:10):
All this money for this walk, but then I get
a toe bag and a T shirt? Where where is
the money? What are we doing here?
Speaker 5 (47:20):
What I I do? That's that is a problem for me.
Speaker 4 (47:26):
I want to know why what you know, who's getting
funded to go to Washington d C.
Speaker 5 (47:33):
Who's getting funded to go to these camps?
Speaker 4 (47:36):
You know, who's why people rent is not getting paid
when they're out of work. I want to know all
of that stuff because you know, people have these high
end jobs, Like who's getting paid for all of this stuff?
Speaker 5 (47:47):
You getting billions of dollars millions of dollars? Like what
are y'all doing? You know what I'm saying?
Speaker 4 (47:52):
So that that is a that is an issue. You
know when of these smaller non profit organizations are uh
doing Turkey drives and Christmas giveaway and paying certain people
rents and I know, I know my nonprofit does, and
we raise stuff to give that and we're not nearly
getting any of that, you know what I mean? So
(48:14):
that is that's a problem.
Speaker 5 (48:16):
But again.
Speaker 3 (48:20):
I don't know, I said, I said, whoever do like
you heard me? I said, come find me, email me.
I'm staying with everybody.
Speaker 5 (48:34):
Thinking like I mean, I did ask those questions.
Speaker 4 (48:37):
I was at the White House, you know what I'm saying,
So you know I you know it's it. That is
an issue, that's the that's the issue. We don't know
where the money is going. That's a problems. It's a
huge problem in the community. But you know what I'm
(48:57):
i I'm going to bring you back on here so
we can definitely talk about that.
Speaker 5 (49:02):
That's gonna be a topic. I was trying to stay
away from that.
Speaker 3 (49:07):
But how does us if you keep quiet, it doesn't help.
Speaker 1 (49:11):
Nobody knows how we truly feel if we try to
stay away from certain topics.
Speaker 3 (49:16):
That's why Lucas It speaks and we have to open
our mouth.
Speaker 1 (49:19):
We have to come together and we got to do
what we got to do because there's no change in
being quiet.
Speaker 5 (49:25):
You are absolutely right. I am.
Speaker 4 (49:30):
We I'm gonna bring you back on here and we're
definitely gonna talk about that. We're gonna I'm gonna do
I was trying to stay away from that. I was
trying to stay away from it, but you're right, you
are absolutely right. We were gonna talk about that. I'm
definitely gonna bring you back on here. We are what
booked in to this sick sixteenth. After the twentieth, I'll
(49:55):
bring you on here after the twentieth, and we just
we just gonna have to open the doors.
Speaker 1 (50:01):
It should that's gonna be a panel of conversations about
something mean because I'm also open to new information. So
if somebody from the board or somebody on that panel
or somebody can say, okay, here, this is what we're
doing this like, let the people.
Speaker 3 (50:16):
Know because.
Speaker 1 (50:19):
We are, you know, not to raise money and we're
choosing not to do certain things because we don't know,
and you know, I feel like that is something that
they should be willing to share so that way we
can see what's going on. So it should definitely be
a conversation with multiple people that you know can shed
(50:42):
light on them.
Speaker 4 (50:45):
I'm open, I we we we just gonna have to
do it. I'm gonna do it. I'm definitely gonna do it.
Speaker 3 (50:53):
And look, I'm gonna hold you accountable too.
Speaker 4 (50:57):
The world is seeing me say that I'm gonna open
old doors. We're gonna open those doors. My producer said,
he agrees to it. I'm just gonna have to do it.
I'll try to stay away from that topic, but you
you are absolutely right, they keep coming up. You're not
the only person that said it. So I'm opening the door.
I'm opening the doors, and you're right, you are absolutely right.
(51:19):
So we're gonna do it. We're gonna do it. I'm
a'm dig deep into it. I've been doing it. But
you know we're gonna do it. We're definitely gonna do it.
So bring you back on here, Bring you back on here.
Speaker 5 (51:33):
Just forna, get your.
Speaker 2 (51:34):
Hot whoa Jesus, Okay, we're gonna do it.
Speaker 5 (51:47):
We're gonna make it a panel, so you.
Speaker 4 (51:50):
Can pick who you want to have on here. I'll
reach out to some people. I'll get some factual things,
you can get some whatever you want to. We can
discuss before we actually come on here exactly what's what.
We got to make sure things actually because they are
gonna come after me. They already been saying things, so
(52:11):
we got to make sure what we're saying is actual facts.
Speaker 5 (52:16):
Let's do it. Let's do it. He over there last,
you already know. Okay, we can do it.
Speaker 6 (52:32):
We can do it.
Speaker 5 (52:33):
You've got my numbers, so we can go back and forth.
Speaker 4 (52:36):
So that being said, we drop her tags in there
if anybody want them to help tell their story on
how to.
Speaker 5 (52:49):
Create their or tell a story in business and what
is your.
Speaker 4 (52:56):
Close the remarks on the topic that we have been
talking about as far as like planning anything.
Speaker 3 (53:05):
Mm hmmm.
Speaker 1 (53:10):
Mm hmm.
Speaker 6 (53:12):
I don't like.
Speaker 5 (53:13):
I don't know, Yes you do.
Speaker 3 (53:18):
I don't know.
Speaker 6 (53:20):
Do something.
Speaker 3 (53:21):
Hurry up right now? We ain't got much time.
Speaker 1 (53:24):
What that's my closing remark, like hurry up, do something,
make a change, make a difference, like like save yourself.
I don't know that that is.
Speaker 3 (53:39):
My remark, say yourself.
Speaker 5 (53:42):
You are funny. Yeah, you are so funny.
Speaker 4 (53:49):
Thank you so much for coming on taking out time
of your business schedule. Again, we are definitely going to
come back on here. What the topic that you want
to talk about, y'all stay tuned for that. This is
going to be very interesting. We're probably gonna have a
series on that topic. We are here every Wednesday esthics thirty.
(54:15):
Make sure you go on our YouTube to replay like subscribe,
share you do not, and yet we gotta wait sure
make sure everything is run through. So stay on until
you see a completion on your end. Until next time
you guys, peace.
Speaker 1 (54:44):
I know
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