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November 2, 2023 42 mins
The podcast transcript is a discussion on epilepsy and its impact on mental health. The speakers involved are Dr. Sylvia Moraa, a parent to children with autism and epilepsy, Grace Kasandra, a psychologist, and Sharon Bou, a person with lived experience of epilepsy. They discuss the definition of epilepsy as a disorder characterized by recurrent and provoked seizures caused by disruptions in the electrical pulse patterns of the brain. They also explore the possible causes of epilepsy, such as head trauma and alcohol withdrawal. The speakers highlight the challenges faced by individuals living with epilepsy and their caregivers, including the unpredictability of seizures, the impact on daily life and milestones, and the constant fear and vigilance required. They emphasize the importance of support systems and understanding in managing epilepsy and maintaining mental health. The discussion sheds light on the reality of living with epilepsy in Kenya, with examples of individuals who have struggled with self-esteem, dropped out of school, or required full-time care, as well as those who have been able to lead fulfilling lives with proper support. The speakers also touch on the mental health implications for individuals with epilepsy and their caregivers, including a sense of loss, recalibrating expectations, and the need for constant caution and vigilance. Overall, the podcast raises awareness about epilepsy and its impact on mental health, highlighting the challenges faced by individuals and the importance of support and understanding. The conversation took place in honor of International Epilepsy Day on February 8th. The speakers express the importance of creating awareness about rare diseases and mental health to ensure better understanding and support for those affected.
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