Place to reach the United Ostomy ASSN. as reference On One Leg Up With Alex Garrett - https://www.ostomy.org
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Episode Transcript
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Speaker 1 (00:00):
Here's your host, Alex Garrett. Well, this one is gonna
be a bit of a darker episode. By the way,
I cannot wait to hear how today's PC and GA
Viscardi Center collaboration went.
Speaker 2 (00:17):
As you might know, I posted a story.
Speaker 1 (00:21):
On my one Leg Up Alex dot com developing the
conversation I have with John Cassano and Orlando Molinaris and Donopulglici.
Speaker 2 (00:30):
Last week.
Speaker 1 (00:31):
I developed that even further on my blog One Leg
Up Alex dot com.
Speaker 2 (00:35):
So check that out.
Speaker 1 (00:38):
But the connection to the UOAA, and I've never really
shared this before, and I'm a little nervous too, because you're.
Speaker 2 (00:46):
Gonna be like, oh my god, what, Oh my god, what. Well,
there were times when my Soma my bag leaks were.
Speaker 1 (01:01):
So bad, I mean embarrassingly bad. We're talking leaking at
the Yankee Stadium lobby bad. We're talking Viscardi Center Medical Suite,
major emergency bad. We're talking right here at Salor Media.
Even on my twelve year anniversary, I could I could
(01:22):
share this. My bag kind of exploded in five dimensions
here and we had to clean it up, well, the
very patient cleaning staff did. But I find the alliance
with the EA, the embracing of the colostomy very intriguing.
Speaker 2 (01:48):
And sometimes I get these idea thoughts in the shower.
Maybe it's because I'm looking at this time. I'm sorry
to be graphic, but I do. I have to. It's
how I go to the bathroom. I go to the bathroom.
Speaker 1 (02:02):
But when I was in sixth grade, I was so
frustrated by the stoma itself, by the smells, the leaks,
not so much the pain, God blessed, I've never felt
pain with the stoma. It's really amazing, actually, But the hygiene.
Speaker 2 (02:27):
And then the.
Speaker 1 (02:31):
Not the picking on, but the observations, and I would say,
the encouragement to go change the bag from my friends
of Ascardi. It got me frustrated to the point where
I wanted to cut off the soma.
Speaker 2 (02:48):
I didn't want to deal with it anymore.
Speaker 1 (02:50):
And it's very daunting to admit that I wanted to
cut off my own damn stoma, but I did. But
of course I never did be because I felt like
why would I do that? But I wonder if that's
a dark thought for those who are adapting to stoma's
or have had it there all life too, because.
Speaker 2 (03:15):
As my friend Ashally said, we all have our dark.
Speaker 1 (03:17):
Moments, and you know I've turned that around and turn
that early pain around. Sometimes make jokes about it, but
mainly I get up in the morning and I change
(03:39):
the bag. Yeah, I changed the stone to make sure
the ostome is clear. I do whatever I can, even
if there's an inkling of a doubt it'll last through
the day. And as I told my friend Ashley, who
is a fellow ostemate, I said, I think we got
(04:00):
I think I gotta lay lean into this.
Speaker 2 (04:05):
And then.
Speaker 1 (04:11):
And as my fellow friend and as Ashley Mann and
I were talking about how energized changing the bag actually
does give energy, It gives a self dignity, it gives
a purpose already for the day, she called it a superpower.
It's like a superpower we got, and you too, if
(04:33):
you have an astomy and are unaware of the U
A way a way, can also have that superpower.
Speaker 2 (04:42):
But I tear up a little.
Speaker 1 (04:43):
Bit talking about this because it is it is painful
to think about that. I wanted to do away with
the stoma because I was so frustrated with it and
so frustrated.
Speaker 2 (04:51):
That the bag kept breaking.
Speaker 1 (04:54):
But maybe that was my breaking point in sixth grade
when I started to realize, all right, I'm gonna embrace
this shit.
Speaker 2 (05:02):
I'm gonna embrace this shit, and I'm gonna work on being.
Speaker 1 (05:11):
More dignified with it, cleaning it up, not letting it
stink up a joint, and be dignified.
Speaker 2 (05:22):
Instead of what was me? Why do I have this bag?
It became all right, it's part of me. We know this.
I'm ready.
Speaker 1 (05:34):
To face the day now because I have a clean
bag in toel. I don't know why I want this
on record for eternity, but I do that. I had
that dark moment where I wanted to off my stoma,
cut it off.
Speaker 2 (05:55):
I shivered to think about it now and look at
it now.
Speaker 1 (06:01):
We've made it part of the podcast family through UOA coverage,
and more importantly, we're taking that dark moment well at
least I am, I guess, and turn into advocating for
those who may not be able to get the supplies
they need. The UOA helps those get supplies needed, and
(06:25):
I love that.
Speaker 2 (06:27):
And they need to be praised even more for that.
Speaker 1 (06:32):
So not only am I fortunate to still have this soma,
that it's functioning, that it's healthy, but that we can
have a voice to it and say hey, if you're
lacking supplies, if you need supplies right now, go to
UAA their website, and yes, take action as well. We
(06:55):
need everybody to have the right access to the medical supplies.
Speaker 2 (07:02):
And if.
Speaker 1 (07:05):
We're not there yet, we're gonna get there, one estimate
at a time. And I know those are allies of
those with ostomes and disabilities will support youoa A in
the United OSome Association and the one million Americans with ostome.
(07:30):
But writing that article about PS and G supporting UOAA
inspire me to just open up and say, look, I've
had my issues with the stoma. I've had my trauma
with them, my sadness, but I go back to the
main fundamental thing about the stoma.
Speaker 2 (07:48):
It saved my frickin life. It saved my life and
it saved millions of other lives.
Speaker 1 (07:58):
So whenever you think about the darkest feeling that you
have with your ostomy, live in it for a moment
if you need to, But then remember that stoma is
saving your life right now.
Speaker 2 (08:13):
It's helping you have a route to keep living. And
that's another reason why I'm getting involved with the.
Speaker 1 (08:19):
ASTHME especially anymore because we need to have the other
million estimates living just as well, one estimate at a time.
That's how we have one leg up for the OSME community.
If we could sport one estimated at a time from
darkness to advocacy and remembering that that little stoma or
(08:46):
iliosthmey or whatever you might have is saving your life
right now. And thanks to PSC and GLI for helping
the OA save lives by donating to the cause. And
we're hopefully gonna have more partnerships to talk about on
UH for World Ostemy Day, which is in October, we'll
(09:07):
get more info on that and stay further involved. But
I've had my dark moments, I've had my embarrassing moments,
but I never lost faith in one thing. The stoma
adapt helped me adapt, and not only that, it saved
(09:27):
my life. I am here right now because of it,
and so I'll gladly change that bag whenever I feel
the need. If this is gonna help me live even
another day on this planet and help us all have
(09:50):
one leg up for each other in the ASTOME community.
Here's your host, Alex Garrett. Well, this one is gonna
be a bit of a darker episode. By the way,
I cannot wait to hear how today's PC and GA
Viscardi Center collaboration went.
Speaker 2 (00:17):
As you might know, I posted a story.
Speaker 1 (00:21):
On my one Leg Up Alex dot com developing the
conversation I have with John Cassano and Orlando Molinaris and Donopulglici.
Speaker 2 (00:30):
Last week.
Speaker 1 (00:31):
I developed that even further on my blog One Leg
Up Alex dot com.
Speaker 2 (00:35):
So check that out.
Speaker 1 (00:38):
But the connection to the UOAA, and I've never really
shared this before, and I'm a little nervous too, because you're.
Speaker 2 (00:46):
Gonna be like, oh my god, what, Oh my god, what. Well,
there were times when my Soma my bag leaks were.
Speaker 1 (01:01):
So bad, I mean embarrassingly bad. We're talking leaking at
the Yankee Stadium lobby bad. We're talking Viscardi Center Medical Suite,
major emergency bad. We're talking right here at Salor Media.
Even on my twelve year anniversary, I could I could
(01:22):
share this. My bag kind of exploded in five dimensions
here and we had to clean it up, well, the
very patient cleaning staff did. But I find the alliance
with the EA, the embracing of the colostomy very intriguing.
Speaker 2 (01:48):
And sometimes I get these idea thoughts in the shower.
Maybe it's because I'm looking at this time. I'm sorry
to be graphic, but I do. I have to. It's
how I go to the bathroom. I go to the bathroom.
Speaker 1 (02:02):
But when I was in sixth grade, I was so
frustrated by the stoma itself, by the smells, the leaks,
not so much the pain, God blessed, I've never felt
pain with the stoma. It's really amazing, actually, But the hygiene.
Speaker 2 (02:27):
And then the.
Speaker 1 (02:31):
Not the picking on, but the observations, and I would say,
the encouragement to go change the bag from my friends
of Ascardi. It got me frustrated to the point where
I wanted to cut off the soma.
Speaker 2 (02:48):
I didn't want to deal with it anymore.
Speaker 1 (02:50):
And it's very daunting to admit that I wanted to
cut off my own damn stoma, but I did. But
of course I never did be because I felt like
why would I do that? But I wonder if that's
a dark thought for those who are adapting to stoma's
or have had it there all life too, because.
Speaker 2 (03:15):
As my friend Ashally said, we all have our dark.
Speaker 1 (03:17):
Moments, and you know I've turned that around and turn
that early pain around. Sometimes make jokes about it, but
mainly I get up in the morning and I change
(03:39):
the bag. Yeah, I changed the stone to make sure
the ostome is clear. I do whatever I can, even
if there's an inkling of a doubt it'll last through
the day. And as I told my friend Ashley, who
is a fellow ostemate, I said, I think we got
(04:00):
I think I gotta lay lean into this.
Speaker 2 (04:05):
And then.
Speaker 1 (04:11):
And as my fellow friend and as Ashley Mann and
I were talking about how energized changing the bag actually
does give energy, It gives a self dignity, it gives
a purpose already for the day, she called it a superpower.
It's like a superpower we got, and you too, if
(04:33):
you have an astomy and are unaware of the U
A way a way, can also have that superpower.
Speaker 2 (04:42):
But I tear up a little.
Speaker 1 (04:43):
Bit talking about this because it is it is painful
to think about that. I wanted to do away with
the stoma because I was so frustrated with it and
so frustrated.
Speaker 2 (04:51):
That the bag kept breaking.
Speaker 1 (04:54):
But maybe that was my breaking point in sixth grade
when I started to realize, all right, I'm gonna embrace
this shit.
Speaker 2 (05:02):
I'm gonna embrace this shit, and I'm gonna work on being.
Speaker 1 (05:11):
More dignified with it, cleaning it up, not letting it
stink up a joint, and be dignified.
Speaker 2 (05:22):
Instead of what was me? Why do I have this bag?
It became all right, it's part of me. We know this.
I'm ready.
Speaker 1 (05:34):
To face the day now because I have a clean
bag in toel. I don't know why I want this
on record for eternity, but I do that. I had
that dark moment where I wanted to off my stoma,
cut it off.
Speaker 2 (05:55):
I shivered to think about it now and look at
it now.
Speaker 1 (06:01):
We've made it part of the podcast family through UOA coverage,
and more importantly, we're taking that dark moment well at
least I am, I guess, and turn into advocating for
those who may not be able to get the supplies
they need. The UOA helps those get supplies needed, and
(06:25):
I love that.
Speaker 2 (06:27):
And they need to be praised even more for that.
Speaker 1 (06:32):
So not only am I fortunate to still have this soma,
that it's functioning, that it's healthy, but that we can
have a voice to it and say hey, if you're
lacking supplies, if you need supplies right now, go to
UAA their website, and yes, take action as well. We
(06:55):
need everybody to have the right access to the medical supplies.
Speaker 2 (07:02):
And if.
Speaker 1 (07:05):
We're not there yet, we're gonna get there, one estimate
at a time. And I know those are allies of
those with ostomes and disabilities will support youoa A in
the United OSome Association and the one million Americans with ostome.
(07:30):
But writing that article about PS and G supporting UOAA
inspire me to just open up and say, look, I've
had my issues with the stoma. I've had my trauma
with them, my sadness, but I go back to the
main fundamental thing about the stoma.
Speaker 2 (07:48):
It saved my frickin life. It saved my life and
it saved millions of other lives.
Speaker 1 (07:58):
So whenever you think about the darkest feeling that you
have with your ostomy, live in it for a moment
if you need to, But then remember that stoma is
saving your life right now.
Speaker 2 (08:13):
It's helping you have a route to keep living. And
that's another reason why I'm getting involved with the.
Speaker 1 (08:19):
ASTHME especially anymore because we need to have the other
million estimates living just as well, one estimate at a time.
That's how we have one leg up for the OSME community.
If we could sport one estimated at a time from
darkness to advocacy and remembering that that little stoma or
(08:46):
iliosthmey or whatever you might have is saving your life
right now. And thanks to PSC and GLI for helping
the OA save lives by donating to the cause. And
we're hopefully gonna have more partnerships to talk about on
UH for World Ostemy Day, which is in October, we'll
(09:07):
get more info on that and stay further involved. But
I've had my dark moments, I've had my embarrassing moments,
but I never lost faith in one thing. The stoma
adapt helped me adapt, and not only that, it saved
(09:27):
my life. I am here right now because of it,
and so I'll gladly change that bag whenever I feel
the need. If this is gonna help me live even
another day on this planet and help us all have
(09:50):
one leg up for each other in the ASTOME community.
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